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February 2019 chemo starters

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Re: February starters 2019 - yes, we rule!

For morning stretches

 

Getting up to do my stretches. 

Have a lovely day everyone.

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Re: February starters 2019 - yes, we rule!

Morning Nettinoo ( hi Trixielady good to hear from you too ) 🤗

Re. Music :

Folk, Country and Western, World Music, New Age, Ballet Music and stuff from the Musicals. 

I love Adele’s voice. A good voice always catches my attention: Nina Simone, Tina Turner ( I saw Tina Turner the musical 👍) Edith Piaf.

 I saw ‘An American In Paris’ and loved it. The sets, the dancing, the music. This is why I like Matthew Bourne ‘s creations.

 I fancy going to a Womad ( World Music Festival) but so far haven’t managed to do so.

 I also - as I get older- love silence 🤪

 

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Re: February starters 2019 - yes, we rule!

Ps Trixie go and get on mummy’s lap so she gets some rest today and doesn’t overdo things by cleaning the other half of that conservatory. 😘

pps my posts are like buses. You don’t see one for a while, then 3 turn up together. 😂😂😂

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Re: February starters 2019 - yes, we rule!

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Re: February starters 2019 - yes, we rule!

Hi lovelies, sorry I’ve been a bit quiet. First week after FEC no. 5 has been really tough (the side effects def seem to get stronger the more you have). The Onco did say that because I react so badly to the FEC toxins, I may have been less ill on the T but she wasn’t willing to risk it and neither was I.

I am starting to feel much better now so hopefully will have some more normal days before inevitable infection kicks in. 🙄

I’m with you all on the sleep thing. It’s just impossible to get a decent night and I have tried everything. Going on phone is last resort when I’m fed up with tossing and turning and once I’ve done that all is lost. I have a line of trees opposite the window of the spare room where I am currently trying to sleep. Even with window shut, the birds are sooooooo noisy. I normally love waking up to birdsong but do admit to shouting “will you just shut the bleep up” at them the other morning. Poor birdies. 

I’ve also been dealing with the fallout of my son and his partner splitting this week. Since arriving home 7 days ago he has been out 3 times with mates and arrived home absolutely hammered. (The weeks he is on his survey ship are alcohol free so his poor liver must be thinking “what the Barry?”). I’m trying not to worry too much as it was his decision and having taken a van down to London to collect his stuff on Monday, he seems to be coping better thank goodness. Really could do without extra 💩. It seems to happen like that thought doesn’t it girls? There is never just bc to cope with. My problems are minute compared to some of yours. 

Some happier news now, need to keep the balance right......I had to phone the Royal Opera House as won’t be able to use the really expensive tickets we have for Carmen on 20th July as part of my big birthday celebration a few weeks back. To cut a long story short after first being told they could only take tickets back for resale if performance sold out, playing the big c card 🙈(I know, shameful but first time and needs must), I was asked to email in to management. Within an hour they contacted me to say my current tickets were to be cancelled. They would refund the £400 on to a gift certificate with no expiry date and throw in champagne vouchers to boot. Result............. what lovely people. Now eyeing up La Traviata at Xmas or Madame Butterfly next year. 

By the way, my husband thinks I have the weirdest, most diverse musical tastes ever. Opera is only one genre I have a passion for. I am really into Ministry of Sound/Ibiza type stuff. Have always been crazy for The Stones and Oasis. Love Artic Monkeys, Wombats. Kanye West!!!!!! To top it off choral music sends me into an almost transcendental state and the tune that makes me want to get up and dance immediately...Dizzie Rascal’s “Bonkers”. 😂😂😂😂. The one singing voice I can’t stand is Florence of Florence and the Machine. I’ve seen her live twice at festivals and I have the “nails down a chalk board” feeling. Is there anyone else out there like me? I would love to hear all your favourite tunes. We are all friends here. I would love to hear what music you like. No judgements will be made........well unless you like Florence’s work. Hahahaha! Sorry, not sorry. 

Back to more serious stuff. Daisydi, I am so sorry you aren’t feeling well love. Is this just a little set back or are you constantly struggling to walk? 

I can see so many worrying about ops. I had a lumpectomy 5 years ago, small implant and reconstruction 4 years ago. Various wires, dyes inserted. Dots tattooed.  A mastectomy one side with full reconstruction, uplift other side  and lymph nodes removed in November and I promise you all, apart from the odd drain issue and one wound taking a bit longer to heal it was all pretty plain sailing compared to chemo. Please try not to worry too much and if you are let the surgeon/anaesthetist know so you get loads of reassurance. I am hoping SusieB’s good experience will have helped. As far as buying special clothes, I always managed with what I had apart from soft bra purchases. Any top with a bit of room did. You will soon get used to manipulating them on and off your dodgy side. 

Love you all. Sorry about the looooooonnnngg post. Sorry if I’ve sent anyone into snooze mode but perhaps that’s a good thing as we are all suffering from sleep deprivation. 

Xxxx

ps I’m going to try and post a happy photo or two of me at a festival in the hope that one day soon those days will return. Xx

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Re: February starters 2019 - yes, we rule!

I dont get any sleep either and I am so tired.  I cant sleep during the day or during daylight and I only manage a couple of hours before it gets light.  Dont think Ive had more than a few hours sleep in the last week and I am really feeling it now.  Can barely walk today either.  Just wish I could have at least one decent sleep.  Ive even tried an eye mask but that didnt help.  Lots of birds round here getting up early.  Hopefully the sweating should stop now Ive stopped taking steroids.  If I shut the window Im too hot and Im too cold with it open.  Will it ever end ?????

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Re: February starters 2019 - yes, we rule!

Good evening ladies 

Rosina glad you had fun at the LGFG session. I really enjoyed mine but like Edinbird never seem to have the time to put it in on when going out plus i always feel false in makeup.

Implausible haha you've brought back some memories of when my son used to dump all his muddy washing and tent after Download its a shame it was never sunny though xx

Hope all those on radiation treatment are coping  well and the creams are helping with the burns and itching.

I've got Trixie sitting on my knee she's good at making me rest haha coz i hate to move her but I've actually cleaned half the conservatory today before i got out of breath and knackered but feeling good for it, still doing jigsaws and reading When Breath Becomes Air by Paul Kalanithi.

Had my first Herceptin without chemo but still don't know what effect it will have as the nurse said it will still take about another 3 weeks before the chemo is out of my system xx

Seaside sar hows that cute baby niece of yours doing? Xx

Ocean21 how many more weeks on taxol do you have? X

Nettienoo hope your doing ok?? Xx

Marlyn, Sandraindurham, Stargazer1, Deano 

Hopefully your all as good as you can be??

Hope MBJ is having a fantastic time on her cruise x

Not sure if I've missed anyone out but hello and take care xx

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Re: February starters 2019 - yes, we rule!

Edinbird,

your bedtime routine sounds identical to mine, I go to bed feeling tired, get all snuggled under quilt....then bam! Raging hot flush, off comes the quilt on goes the fan.....then the brain goes into silly chat mode....all the while hubby is snoring like a baby next to me.....grrrrrrr! No matter how hard I try to get into some sort of routine...it fails.....even my calm app sleep stories aren't doing it anymore....

oh.....just to get a few hours uninterrupted sleep.........xxxx

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Re: February starters 2019 - yes, we rule!

Edinbird,

 I go to sleep with an eye mask on ( to block the light) it works- got it for airplane travel and it’s great.

Also when you wake up at 4 am ( I can relate to that ) try yoga Nidra or take deep breaths to relax your body.

Do not go on phone or iPad.

 I have done this and it wakes you up totally.

The skin care stuff from LGFB is good. 

 No. 7 stuff.

xxx

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Re: February starters 2019 - yes, we rule!

Glad you had a good time at the session Rosina. I bought some new brushes to go with the goodies I got and they’re still all in the bag... good intentions but I’m not going to do my makeup for sitting at home and I can never be bothered or give myself enough time to do it if I’m going anywhere! The concealer pencil I bought a sharpener for - the concealer just snapped off when I tried that! And my Dolce and Gabbana lip liner won’t twist up out of the tube. Ah well. I’m sure I’ll use some of it at some point.

 

Thanks for the tips on the clothes Susie. I’m not buying anything new I have so many clothes already my husband would go loopy if I bought more! I guess I’ll just see how I go when it comes to it. I’m wondering if they’ll give me a cushion though. I have a couple of small cushions though not heart shaped so I hope I could get by without. I also had a clip put in at my biopsy but I was told it was more to locate it on scans - however with 11mm left I don’t think that’s a problem. I have to have the wire and the dye. Need to start writing questions for my pre op but that’s not until Thursday next week.

 

Trying to get work done today I’m still struggling to get up in the morning. Just want to go to bed and sleep but the routine goes like this -

 

Go to bed - find it’s a bit chilly so put pjs on and sometimes the electric blanket

Get cosy and think maybe I’ll fall asleep easily. Take temperature which is fine

Turn off blanket if on and try and relax

Start to get warm - take off some or all of pjs

Get restless - still hot, maybe open window or put fan on

Eventually get to sleep for a couple of hours at a time. Particularly awake at 4 when it starts getting light. Then too tired and toss and turn until I feel like I ought to get up which is sometimes not until gone 10...

 

It’s a mess. I have oncologist for my CT results at 9.15 on Friday so I’ll need to leave at 8.15! I’m determined to get up at 8 tomorrow and Thursday to try to break this cycle. Even if I go to bed later tonight to make sure I’m tired. I’m sure I’ll get there but I’m fed up having not properly slept since February!

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Re: February starters 2019 - yes, we rule!

Not many of us chatting today.

LGFB was good fun.

Daughter is very pleased with the goodie bag. 

 I kept the eyebrow thingy with a brush on one end and a twistable crayon on the other.

 In bed now,

sleep well everybody.

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Re: February starters 2019 - yes, we rule!

Funny you should mention Download - look what came up on my Facebook memories this morning from 5 years ago!  😄

 

"Oh dear lord what a horrid afternoon 

Connor managed to get himself in a fight this lunchtime. There is a kid who has been baiting him for months. Today he chucked a sausage at Connor and laughed at him, pretty minor but it seems it was the straw that broke the camel's back and fisticuffs ensued. Connor rips the other kids shirt, and the other lad breaks Connor's glasses. School has now withdrawn their permission for Connor to have tomorrow off as they want both boys in detention tomorrow morning so they can get to the bottom of the incident, talk to witnesses etc. So no Download tomorrow at least not until evening/ night anyway. So I break this to Connor. He starts crying hysterically in the car and flailing about. I try to calm him down and boom, his foot hits the windscreen and cracks it in all directions. So now I have a hysterical child who can't even see as his only specs are broken and a windscreen I can't see out of. Oh joy. I must say I have had better days!!!!"

 

I remember that afternoon well!!!  We ended up missing a whole day of Download as not only did he have to go into school on his day off due to sausage-gate, but we had to go straight to town afterwards to get him some new emergency glasses!  and obviously I had to get the windscreen replaced in the car.  Fun all round!


On other matters, I'm not convinced I like my boob being compared to an allotment 😄

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Re: February starters 2019 - yes, we rule!

Hi everyone

Good to know I won't be wearing shirts for too long Implausible. I don't normally wear them but hubby bought me a couple, bless and I already had a couple, impulse buys, so I should have enough to get me through. If the weather was warmer it may have been a problem. My arm movement hasn't been too bad so I managed to do my bra up in the normal way and roll deodorant under my good arm on Sunday morning☺.

Rosina hope you enjoy your LGFB session. After yesterday's disappointment and feeling emotional it will give you a well deserved boost. I love H1's comparison of the thinking of surgeons and  allotment gardeners. Makes sense when you think about it as with many things there is no right or wrong way just an individual's preferred way.

Seaside Sar, sorry about the fly problem. If it was sunny it wouldn't be such a problem as you would probably be wearing sunglasses 😎. Bit of a problem when it's wet and cloudy🌫🌧🌫. After what you've been told about rads I think I'll take everything with a pinch of salt until I actually start to receive it. Somewhere along the line I'm sure 2 weeks was mentioned to me during a general chat with medical staff.

Following my son's return from Drownload he actually managed to introduce his muddy clothes to the washing machine and hang it on our airer to dry. Don't think he thought about the tumble dryer. Perhaps he lapsed back to his student days. Let's see if he'll iron it next. That will be entertaining as I normally do it - I do his as I'm ironing ours anyway.  Although hubby took on that job prior to chemo starting. Anyway Chris enjoyed the event and was with a brilliant crowd.

It really is wet here now🌧🌧🌧🌧🌧🌧

 

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Re: February starters 2019 - yes, we rule!

Hello again Ladies,

caught the bus so I could get to the ‘Look Good Feel Better ‘ session at the Macmillan Center at Redhill Hospital.

 I am doing this for my daughter

🤗

I am in a much better place compared to yesterday. H1 even said he prefers me shouting at him than getting all emotional ( as I was yesterday) which is amusing ( and quite insightful).

 I also asked him why some surgeons use a drain and others don’t and he said that there are lots of different techniques for each operation and surgeons have a preference. He likened it to different techniques used in allotment gardening!

This actually kind of made sense to me.

🌈☘️

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Re: February starters 2019 - yes, we rule!

Hi all

 

Seaside I hear you about the nose hairs!  My nose is constantly streaming, but at least now it is only clear runny nose stuff not blood!  T gave me nosebleeds every morning for a week or so after treatment, so whenever I felt my nose start to drip during the rest of the day I was always paranoid in case I was bleeding out!  😄

 

Susie - you should find that you don't need those button up / easy to get into tops for too long.  I was back in my usual t shirts in less than a week after surgery.  Just as well as I don't own any button up tops!  I was living in zip up hoodies with just a bra underneath for the first few days 🙂  But I had full enough movement with my dodgy arm to dress over my head in the normal way within 5 days or so....

 

Am at work today so just a quick pop by .... love to all..... Sarah x

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Re: February starters 2019 - yes, we rule!

The range of info we get told about this radiotherapy bleep is a joke! I am 46 and was told ages ago I would have 25 sessions. The breast surgeon said this was due to the tumour being close to my chest wall so it needed an extra boost. Then last week it changed to 20 sessions and I wasn't going to argue with that! As for Tamoxifen, I've been told I will start taking this when radiotherapy has finished.

 

All I've got to add today is I will never take my eyelashes and hairs in my nose for granted again. Just back from a walk where several flies decided to launch themselves straight into my eye and my nose wouldn't stop streaming. End result, me looking like I've been bawling. Come back hairs!!!

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Re: February starters 2019 - yes, we rule!

Hi everyone 

Finally caught up with everything,  I know I read some prior to and after surgery but I don't think too much stuck in my fuddled brain. After feeling fairly awake and with it over the weekend I think I'm paying for it now. So it's a case of taking it easy today but won't forget my exercises🤸‍♂️🏋️‍♀️

Ocean21, like the idea of an online reading group, it would be nice to stay in contact and have something else in common other bc. As with some of the others though I may have to wait until this Barrying bc is over I haven't read a book since my diagnosis. I can't even concentrate on one of my 'holiday reading' books📚☹ and they're easy reading. Thank for all your beautiful photos.

Deano I know it's difficult, but try to see the input of a guide wire as a positive thing. If your Gremlin was still big the surgeon wouldn't need it so it must be fairly small. Sorry I don't know/remember what size your lump was or is. I had a titanium marker placed in my Gremlin during my initial investigation and biopsies so that it could be easily located during surgery. On another point, this may be of help to you aswell Edinbird, if the weather ever warms up or you get fed up with wearing tops with button openings I've discovered that I can step into the cheap and cheerful Asda swing vest tops and pull them upwards and slide my arms in. They're the one that cost £4 or£6 or so much for 2. Sorry can't remember exact cost. Pop a cardigan on and you're ready to go.

What an array of things we are told about our treatments. The relationship between age and length of time receiving radiotherapy seems rather odd. At  62 three weeks should be the number for me. I'll let you know but that won't be for a while yet. Who likened it to a game of Bingo? Lottery would sum it up too.      

Right, my tummy is telling me it wants lunch, so I had better oblige. Need to pick some lettuce and it's raining🌧🌧🌧. Quick dash outside it is then. 

Have a good day everyone, or at least the best you can manage if you are feeling under the weather. xxxxxx

 

  

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Re: February starters 2019 - yes, we rule!

Hi Marlyn, 

thanks for sharing the story of you chatting to the lady who is having 18 cycles of chemotherapy 😳

I still have difficulty absorbing this fact.

18 cycles - a very sobering thought.

I have been reading up on Tamoxifen as the oncologist said that I start taking this medication once radiotherapy starts .

 I also re- read my notes to see what the % benefit is from taking this hormone therapy and it’s actually more than the chemotherapy (!!!!) at 5 and 10 years so I will give it a go.

 Off to do some yoga stretches now before I flip 🤪

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Re: February starters 2019 - yes, we rule!

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Re: February starters 2019 - yes, we rule!

Thank you, nice to know in not alone

 

Xx

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Re: February starters 2019 - yes, we rule!

Hi everyone 

Just having a quick flick through today's posts. I'm knackered and slept most of this afternoon so hope to catch up properly tomorrow with everyone.

Edinbird, I was told on Friday not to drive for two weeks and keep the initial trips short. You don't need to tell your insurance company about surgery.  As for starting dates for things I'm taking one step at a time. I have an appointment with my surgeon on 27th June.  

Rosina, sorry about the delayed chemo. And thanks for the tip about lavender. I've got fresh and dried to sniff.

I'm going to read the rest of the posts now. Oh maybe not Chris has just returned from D(r)download! Hope he knows how to use the washing machine. Love you all xxxxx 

Love you all. xxxxxxx  

 

 

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Re: February starters 2019 - yes, we rule!

I've lost the plot.  It has just taken me about 10 zillion hours to change my sweaty stinky bed and to put the green bin out.  I'm knackered!  Think I am having 15 sessions of r/t but then I just turned 60 in April.  Hate saying that age.  I feel about 3 at the moment.  With the driving I just waited until the consultant appt 2 weeks after op when dressings were removed and they said I could drive.  Didnt even think about telling insurance company.  Saying that I cant really remember as it was so long ago as I had 3 ops.  All a bit of a blur like everything else at the moment.  I really dont think I could have another single chemo, ever ever ever again. Hate every minute of it.  The thought of 16 just makes me feel so sick,yuk!  My toes are really strange very red and hot and all the skin is peeling off around the big toes but they are not numb so I suppose thats a good thing.  My fingers feel like they have been stamped on but holding them under a cold tap gives me some relief.  Im waiting for all my teeth to fall out as I keep eating chewy mints too but I am trying to suck not chew.  Ive found some bras on Amazon that are nursing bras and separate the boobs so when I look down one doesnt seem so full and with clothes on its really hard to see that one is bigger than the other.  I can move big girl to the side and little one just sits nice and pert.  Hopefully big one will shrink a bit when I lose a bit of weight and I wont need more surgery.  Wonder why you have had to have so many r/t sessions Maryln.  Nearly done for you now.  Im dreading mine especially to my neck.  Must go and have some dinner.   I'm starving again ......

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Re: February starters 2019 - yes, we rule!

Ugh.  That poor lady Marlyn!!!

 

My chemo mate from the hospital had 16, but it wasn't quite as bad as that sounds, as she had 4 ECs fortnightly, which she didn't much like, but then 12 weekly fairly low dose Taxol which didn't seem to bother her at all, side effect wise.  She was full of energy, away every weekend, working every weekday except the Tuesday when she had the actual chemo....

 

But 8 full FEC and 8 full T?  I'd be ready to throw myself off a cliff partway through that lot!!!

 

Edinbird re driving, I was told that I should call my insurers to let them know I was having/have had surgery, and that whether or not they place any restrictions, and for how long, varies according to the type of surgery.

 

My experiences back that up, because I've had the same insurers (AA) for years, and with my hysterectomy they said I couldn't drive for 6 weeks - but with the lumpectomy they didn't give me a time, they just said I could drive as soon as my doc was happy for me to drive.

Doc told me to go for it as soon as I felt up to it.  Which I certainly wasn't at first.  I ended up driving short distances from about 2 weeks after the op and slowly built back up.

 

 

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Re: February starters 2019 - yes, we rule!

Thanks Ladies, re. Your responses regarding radiotherapy.

You have made me laugh, it’s like flipping bingo 🤪

I am definitely speaking to the radiologist as I suspect it’s got more to do with the severity of lymph node involvement than age. Don’t think the oncologist wanted to tell me this as he is baffled by the fact that I go in saying I feel fine ( no temperatures, feeling unwell etc) and that I have hiked 16 miles the day before and then the blood test results give him a different picture so that he keeps stressing the temperature taking and A@E etc. Nurse who was in there with us was telling me that I have been extremely lucky. She was also impressed with my hair 😀 she also admired a ring I was wearing and chatted to my husband about healthy eating. She was lovely, put me at ease. The oncologist is like a textbook, and a bit distant.

 I am back to watching ‘Line of Duty’ to distract myself.

Hugs,

Rosina

ps. The other thing that makes me chuckle is a friend who wanted to know what I was going to do for my 50th ( she had been bugging me for like 4 years before). Well that got taken care of nicely 🤪 no forgetting this year now!!!! 

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Re: February starters 2019 - yes, we rule!

I'm 53 and am having almost 5 weeks...( thus is my last week) who knows how it's worked out.....

 

sat chatting in waiting room today with a lovely lovely lady who had 18 cycles of chemotherapy??!!! 8 fec and 8 T .....oh boy did I feel for her.....xxx

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Re: February starters 2019 - yes, we rule!

Hi Rosina xx

 

You must be so frustrated no wonder you’re upset. And the nonsense about age and rads... I wish that everyone had the same protocols or at least the same advice about them! I just wish I knew when mine are starting and how many. But I can’t know that until we know if the op is a success. But even the surgeon telling me 8 weeks and the oncologist 6-8 weeks is annoying! I want to know what’s happening for the summer, for my birthday, wedding anniversary, new job, I want to make sure I can get on the moving on course at Maggie’s... so much to consider.

 

It’s got me thinking about my op... how long before any of you started driving again? The surgeon said I’d be signed off for two weeks. Looking online it looks like you need to tell your insurance company, what did yours say? I’m worried I’ll feel able to but the insurers won’t let me!

 

Ear is still being a pain too... less general pain but it’s constantly blocked so the pressure makes it ache. Fed up of it.

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Re: February starters 2019 - yes, we rule!

Rosina,

I'm 47 and I'm having 3 weeks, or that's what he told me. It all so different in all areas. x

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Re: February starters 2019 - yes, we rule!

Oops!

 

I fell foul of the naughty words monitor 🙂

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Re: February starters 2019 - yes, we rule!

I have 4 weeks and I'm 52.  I swear they just make this **bleep** up as they go along!

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Re: February starters 2019 - yes, we rule!

When upset crush and sniff lavenderWhen upset crush and sniff lavender

Hi Ladies, 

yes I was upset and kept tearing up. I am OK now.

The other bit of news that took me by surprise was that as I am under 50 they are prescribing 4 weeks of daily radiotherapy as opposed to 3 weeks ( if I was over 50).

H1 says it’s up to me if I have 3 or 4 weeks and nobody can force me. 

Oncologist said that was a discussion I would have with the radiologist.

 I was really hoping it would all be over by August.

 Thanks everybody for your kind words, they really do make a difference. I used to play snakes and ladders at school with the kids, now I am living it 🥴

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Re: February starters 2019 - yes, we rule!

Rosina, I feel your frustration and disappointment. Especially big Nettie cuddles for you today. 

Seaside, ouch. No more mints eh? 😘 x

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Re: February starters 2019 - yes, we rule!

Rosina so sorry you have been delayed again.  I bet you just cant wait to get this out the way.  Big Hug x

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Re: February starters 2019 - yes, we rule!

Rosina,

Sorry to hear you've been delayed. I hated it when I was delayed, but it did give you another week to feel human again.

Take care of yourself, I know how disappointment it can be. xx

 

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Re: February starters 2019 - yes, we rule!

Oh Rosina, that's a pain. Poor you. I know you're keen to get it over and done with. Bloomin neutrophils!

 

One of the ladies I met at my local support group has had her last 2 treatments delayed as well. On top of that, they have added an extra T session as they have reduced her dose to 75%. She doesn't seem to mind too much but for me the thought of having 4 T sessions instead of 3 would have been a no no.

 

I am off to the dentist later to replace the temporary cover which has broken off my broken tooth. It came off while I was chewing on a mint to revive the ever bland tastebuds. That will teach me!

 

Hope everyone else is having a good day.

 

Sar xxx 

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Re: February starters 2019 - yes, we rule!

Oh Rosina I'm so sad to hear you have another delay 😞  you seem to bounce back so well fitness levels wise every time with your big walks and stuff but your blooming neutrophils aren't having any of it!!! Grrrr!!!  hopefully it is only the one week this time and then you will be all wrapped up x

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Re: February starters 2019 - yes, we rule!

Poppies in Priory Park, ReigatePoppies in Priory Park, Reigate

I have had another delay, neutrophils at 1.2. Chemotherapy bumped to next week. 

H1 came with me . He is very good. Feeling emotional 🥴

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Re: February starters 2019 - yes, we rule!

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Re: February starters 2019 - yes, we rule!

Hi everyone

Just popping on for a quick catch up before bed time, as is becoming a habit 🙂

 

Deano, great to hear from you.  Although not so great to hear that T knocked you for six for a full week 😞  Seems par for the course, though - I think that all of us have found T blooming hard work!  Hopefully you are now on the up and up.

 

I have also lost near enough all my eyelashes (got about 3 stragglers left on each eye), and have very watery eyes as a result.  It is flipping annoying but I guess it is just a waiting game until they decide to come back 😕

 

The thing I'm really worried about are toe and finger nails.  Mine have all started to low level hurt over the past day or two.  And I've read too many horror stories about people who are a month or more past their last chemo and suddenly all their fingernails fall out!  😮  fingers crossed!  (Gently so as not to dislodge the nails 😄 )

 

Oh Rosina I love that quote from the window
( ‘ Weeping may endure the night , but joy cometh in the morning ‘.).  It's basically bible-talk for "hang on in there girl, it will get better".  Which is something we all need to hear from time to time throughout this process!

 

Susie, my surgeon said exactly the same about drains not being necessary and fluid reabsorbing.  But she blooming gave me one anyway!  In the end though hardly anything actually drained into mine and they took it out after a day.  So I guess she could have not bothered....

 

Daidydi, thanks for your kind words (made me blush 🙂 ) and did you say that your brows and lashes are already starting to grow back?  That's really encouraging.  I do miss my eyelashes.
Hope the 'roids aren't keeping you up all night.

 

Susie (again),  your thing about anaesthetic and suddenly waking up in a different room and it's all over really made me laugh.  Because it reminded me of how confused I was the first time that happened 😄 


I know now that that's how they operate, they get you chatting and distracted and boom!  You're out cold! 
But the first time I didnt know that, I thought they would count me down like they do on the telly so I would know when it was coming. 
Instead, one of the anaesthetists asked me a question about my holiday and I started answering him in theatre, and then woke up on the recovery ward and continued answering the question!  Then I got really confused that he wasn't there and apparently I said to the nurse "he asked me a question and then walked off!  How rude!".  And she had to gently explain to me that that was about 3 hours ago and he had since finished his shift and gone home 😄

 

All this talk of bras, I could really do with getting a new one.  I've been living in the same 2 post surgery bras since my op in January as none of my old bras fit any more given I'm 2 different sizes.  But now I have managed to lose one of them (how did I do that??) and I need more than one bra to last me till my next op!  After I've recovered from that second op though and I'm all "evened" up, I'll actually be able to wear normal bras again.  Can't wait!

 

Hope your ear is starting to ease up Edinbird?  And definitely don't forget to apply for that "special day" thing.  If the football dates don't work out perhaps there is something else you'd like to do?

 

Hi Nettie.  Thanks for checking in so we don't worry.  Hope you come through the side effects fog soon x

 

Think that's everyone who has been on today.  I hope that all the others are out there living their best lives x

 

I had a fairly dull day today, didn't do much, went to Hobbycraft, got stuck in their car park on the way out for over 40 minutes because there were roadworks nearby which caused complete gridlock.  Thought I was going to have to abandon the car and walk home! 

 

Then when I finally got home I spent hours cutting little people out of vintage magazine ads for collage materials:

20190616_174005-picsay.jpg

 

While watching 6 episodes of the Year of the Rabbit which is funny but very sweary! 

 

I've had more interesting Sundays but the main thing was my taste buds were working, I don't feel utterly exhausted and my nose seems to have finally stopped bleeding.  Woohoo!  Here's to recovery from chemo-bashing!!!

 

Night all x
Another new week beckons, throughout which I expect all of us to continue kicking ass!

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Re: February starters 2019 - yes, we rule!

Hi Susie

Thanks got the update and glad to hear one minute your having a cannula and then your coming around. I am scared as well asI have to have a wire fitted as my gremlin has shrunk and the surgeon needs to trace it down to the lump to remove it not looking forward to fnc and the results but one thing is I couldn’t do chemo again 

keep the updates coming and glad this bit is now over for you and thanks for the top tips on the bra front

Deano ❤️😍❤️😍

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Re: February starters 2019 - yes, we rule!

Hi lovelies, just popping in so nobody worries that I’ve gone quiet. Having my stopping steroids awful slump so in bed but hopefully will pick up later tomorrow (that’s the normal schedule). There is sun shining through the windows......at barrying last! SusieB I am so so happy to hear how well you are doing post op. Don’t worry too much about the swelling. If you feel too mismatched get your husband to get a pack of that cotton wool that comes in long folded piece and pad with that. I did it for a few weeks until I felt more even. Worked well. Before I got the cotton wool I used a folded sock. 😂 

Love you all. Xxx

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Re: February starters 2019 - yes, we rule!

Hi Edinbird and Deano

Quick update on bra front. Hubby just returned with 2x 36C M&S bras, I'm usually 34C. Fits fine around chest and I have set straps so that the bra doesn't rub on the incision. Bad boob fills cup beautifully which is more than can be said for my good boob. Anyone got a spare chicken fillet?☺

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Re: February starters 2019 - yes, we rule!

Thanks for the surgery info Susie. I bought some non wired bras in the sale in Sainsbury’s a few weeks ago but they’re a bit tight already so I’m going to order some extenders off eBay so I can adjust the size if needed. They were £4 a bra so wouldn’t be the end of the world if they didn’t fit but still can’t be bothered to get more!

 

Went back to bed with my sore ear but I need to go shopping and take more antibiotics so better get up. My ear has felt blocked and ringing all morning it makes me feel even more tired. It’s all itchy inside and feels like a load of fluid should drain out not that it would. I was going to sleep but then my mum rang and that was the end of that.

 

In case anyone was wondering I didn’t take the Willow Foundation form in on Friday I hadn’t printed it out and the football fixtures went totally against me the match I wanted isn’t until the end of April!!! I might take it next week when I get my CT results. There’s no rush I can submit the form during my rads but it still wouldn’t quite cover the timescale I need 😕

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Re: February starters 2019 - yes, we rule!

My cushion. Just hang it on your shoulder and the cushion stops your arm from rubbing up against the wounds. Don't know why all my photos seem to come out sideways. 15606926858701074015405.jpg 

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Re: February starters 2019 - yes, we rule!

Hi Deano 

I had a  lumpectomy and full nodal clearance the same as you're having. I don't know if you've read my previous posts but one of my biggest fears was having a general anaesthetic, so the prospect of surgery for me was pretty terrifying. A few weeks ago I was back on meds for anxiety, that's how bad I was. Anyway fast forward to operation day and I reached a sense of calm. I was the same when chemo started, at last something was being done to get rid of Gremlin. Both the aneathatist and surgeon came and had a chat about the proceedure, the anaesthetist asked lots of questions and checked my neck glands, throat, jaw action and several other things. After that it was a case of waiting so I chatted to you lot and played somes games on my tablet, then it was show time. I was taken into the pre-op room where I was met by two medics. One put a cannula in injected me with a relaxant, pain killers and anti sickness meds. I'd already informed the surgeon that I didn't want to chuck up after surgery thank you very much. The other medic put probes on me and fitted a blood pressure monitor to my leg as I have a PICC line. The next thing I was being spoken to by a nurse in a completely different room. The proceedure was over and done with. Most surreal feeling I've ever had. I think because of my anxiety they didn't tell me when they were injecting me with the GA. I had a mask over my mouth and nose for oxygen. She chatted to and carried several observations, bp, heart rate, pain, etc. Then I was wheeled back to the ward. Hubby was back at the hospital by now. Few more checks by another nurse and did the three Ts - toast, tea and tiddle. I don't do tea so had water. My mouth was very dry and remained so for the next 24 hours. Oh and throat was a little sore from the breathing tubes. In for operation around 11:30 back to ward around 2:15pm home by 5:30pm for fish and chips. Your op might not be quite so long as I had volunteered to take part in a trial within the trial I am on. I'll explain in another post. As for pain, I think the discomfort after boob and lymph node biopsies was worse. I've taken paracetamol as there is a bit of stiffness but that's about it.. I started my exercises late Saturday afternoon and tried to move my arm as much as possible. I haven't got a drain which is a huge bonus. Will keep you posted on that one. The hospital also gave me a cushion, donated by the Inner Wheel to use with seat belt, whilst sleeping and anything you'd like to use it for. Can also be used as a neck rest when travelling. As for a bra for afterwards buy larger than your normal size. I bought a couple of post op bras in my normal size but due to the swelling they're too tight. Hurriedly ordered 2 more from M&S next size up 36C rather than 34C which my poor hubby is currently collecting for me. I'll let you know if they fit. Sorry if I've waffled on too much. Upshot is it's true what everybody on here has said surgery is easy after chemo. I'm surprised to say that I agree. Will keep you up to date with my progress. Make sure you take full advantage of the break between chemo and surgery. I was lucky as I had 9 weeks☺. Take care Susie B xxxxx             

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Re: February starters 2019 - yes, we rule!

Afternoon all just checking in to put my two penneth in.  Lizand Sarah I have had far too many side effects to list and am now day 7 post last T.  Re taste buds dont really think you can do anything about it but I am drinking fresh tap water infused with fresh lemon and it does stop everything from tasting like kak.  Debi I have had severe pain in my wounds from surgery all the way through my chemo,especially where the anc scar is. It all seems to swell but it does go down eventually.  I am not due any more chemo so now maybe it will get a chance to heal properly.  I have discovered organic joboba oil which I put on my face, hands and nails in the evening.  It does keep skin really soft as apparently it is very close to the make up of the skin.  I have used Evonail on my finger nails throughout chemo and they seem to have survived for now.  I have used a botanical treatment on my hair, eyebrows and eyelashes and used the cold cap with much success so far.  Even though I have lost hair, eyebrows and eyelashes they seem to be coming back.  Just hoping the last treatment doesnt take the lot!

 

Hope everyone else is ok.  Glad to see some of you with new hair and Rosina you look beautiful just as you are and Implausible Sarah I love love love reading your posts.  Its the highlight of my day.  We are total opposites I have few words as you can probably tell so I love reading your posts.  Susie hope your recovery continues. Maryln you look fab too.  Hope you are ok Nettie.  I am still on the steroids which are keeping me awake most of the night with sweating but they are keeping all the nasty side effects at bay for now.  Take last lot tomorrow so will see what happens then.  Love to all xx

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Re: February starters 2019 - yes, we rule!

Hi Rosina 

My surgeon doesn't feel that a drain is necessary as she believes the body will naturally reabsorb whatever the body produces to protect the area it thinks has been attacked. She just told me to think of it in the same way as a blister forms and if left alone the area will dry out. I currently have a nicely swollen boob, D cup(?) from C cup and some swelling where the nodes were removed. Started my arm exercises yesterday evening and generally moving my arm as much as possible. If the swelling becomes too large and uncomfortable they will drain it at the hospital. After seeing a drain whilst at my pre op chat, different to pre assessment, I'm glad I haven't got one attached. xxx   

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Re: February starters 2019 - yes, we rule!

Hi Debi2

I didn't have breast pain where lump (Gremlin) was but I did get occasional dull ache under my arm from where the lymph nodes were swollen. I had a lumpectomy and ANC on Friday 14th and am feeling fine. Keep in touch. Take care Susie B xxx

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Re: February starters 2019 - yes, we rule!

Hi lizandsarah

I think you've had some replies regarding taste and weight gain. I had 4 rounds of FEC prior to surgery (I'm on a trial) and it took around 3 weeks for taste buds to return properly. As for weight gain I've put on a few pounds but put that down to craving cheese toasties, going off healthy salads and fruit. A few days in France probably added to the weight gain. As you'll see from the replies chemo affects us all in such different ways. Just go with it. Good luck with your last 2 sessions.     

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Re: February starters 2019 - yes, we rule!

Where the quote comes from

I did a google search on the quote underneath the angels feet and it comes from a psalm.

See link.

 

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Re: February starters 2019 - yes, we rule!

Correction, the quote is ‘ Weeping may endure the night , but joy cometh in the morning ‘.

Angel on the left has blues and purples and a star above their head, Angel on the right is yellow and green.

The whole composition is glorious 🤗