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February 2019 chemo starters

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Re: February starters 2019 - yes, we rule!

Good Morning Ladies

Nettienoo I think you are wonderful for sticking with chemo and so brave after everything you have gone through. Indeed all of you are remarkable women and I just really wish I could have done the journey with you. 

I seem to be having some issues with my left arm, or around my shoulder and under arm area which I think is down to Lymphodema 😢. It feels heavy and really uncomfortable, I have found some new exercises on line to complement the simple lymphatic drainage the physio taught me. But I know once you have it it never goes away. It's really dragging me down as it's like a nagging discomfort all the time. Trying everything, loosing weight (hard going) exercises, not sleeping on that side so pillow in my way. Some days are better than others but is a bit constant at the moment. I know my arm was up 5% last visit to clinic and she did talk about a sleeve. I really hope I can work on it to avoid that but I am not hopeful at the moment the way it feels, and my body never does what I want it to do. 

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Re: February starters 2019 - yes, we rule!

Thanks SusieB. Xx

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Re: February starters 2019 - yes, we rule!

Hi Nettienoo 

 

I'm sorry to hear you've had such a rough time since your 5th round of FEC. I think it must be the cumulative effect that makes your body react in such a way. I only had 4 rounds of FEC and the fatigue went on for around 4 weeks - I was just about ok when we went to France-  and I continued to lose a lot of my hair that survived chemo, although new regrowth emerged. My taste buds also took longer to return to anything like normal. I understand your concerns regarding that 6th and final hurdle, but as you say you have to put your faith in the medics and believe that they know what is best for you. Glad the Parga pics brought back some lovely memories. As for the CT scan results I'm waiting for an appointment date with my onco when hopefully I'll find out all I want to know, including a date for the start of my next rounds of chemo🤞🤞🤞. Take care and get that Barrying 6th round out of the way❤❤❤❤❤❤.    

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Re: February starters 2019 - yes, we rule!

Hi sonia28 

Rant all you like. You know we're all here for you. Southampton Uni is great! But I may be a little biased as I that is my home town (almost) as I come from Totton, just a short distance away. I was down that way on Sunday. My husband keeps telling me everything is going to be fine too, but he did admit yesterday that he realised from day one that life for me or indeed us would never be the same. I just cling on to the thought that I will get through this. We all will. How else are we all going to meet up otherwise?  This WILL end one day. xxxxx   

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Re: February starters 2019 - yes, we rule!

Yes Sonia, I do know exactly where you are coming from love. You are entitled to have your down days when you need to rant. You have really had it tough so far and those barrying swollen ankles/feet must be driving you nuts. So debilitating. I think twice now about saying “ I feel a bit better today” to my husband because he seems to take that as me being up for going shopping with him, having a weekend away in the caravan or something similar when actually at the moment it means I just feel a little less awful than yesterday but I still feel absolutely dire! 🙄 . Bless him! X

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Re: February starters 2019 - yes, we rule!

Sonia28

I totally understand where you are coming from. It's really hard to be positive all the time. Some days I seem to have the C word on a loop in my head. I was talking to a complete stranger in the coffee que last week and before I knew it I was telling her all about it. It's like as if I opened my mouth and the words just fell out. I hope you have a better day tomorrow. Xx

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Re: February starters 2019 - yes, we rule!

Wow my lovelies, what a busy lot you have been over the last few days. 

Mum glad you first rads went ok Seaside. Hopefully now you know what it’s like, you will be more relaxed for the rest. 

Well done on the walking. Very impressive. Implausible and Rosina, you’ve been on the go too. You are all going to have lovely toned legs. Implausible, I loved seeing all the tiny books in the suitcase. It reminded me that I used to make little books for my dolls and teddies when I was a kid and I set up a lending library for them all to visit. Is your rash improving? 

Daisydi, I definitely with you on the just managing to put one foot in front of the other. More on that later. 

Deano, is your surgery Wednesday this week? You will feel so relieved when it’s done and dusted and you realise it was nowhere near as scary as you thought it would be. Do you know roughly what time the op will be?

Hopefully an early one so you get it over and done with. I would love to see some pics of your horses please. When you get a minute. 

Rosina, good news that your mum in law is recovering and that you have been treated well by Easy Jet. 

Edinbird, I can only agree with the others that you must allow yourself the time to recover properly from the op. 

Susieb, I hope the CT scan goes ok tomorrow love. When will you be able to discuss the results? Loved the Parga photos. They bought back some lovely memories. 

Marlyn, are you still using the Kate Mciver original Serum like me? There is a special edition one specifically for spot prone hormonal skin. It’s supposed to be very good. Might be worth a try. 

Debi2, I’ve been having 7 x Filgrastim each cycle and I do occasionally get jaw ache right up into my ear. I also get pain at the top of my neck into the back of my skull and sometimes pain in my eye sockets as well as the more normal pains in hips, bum and legs. It doesn’t last long though. 

MBJ, I agree that the really short hair suits you. You are lucky to have a great face shape for short hair and nice ears. I didn’t realise how big my ears were until I lost my hair. 😂

 

Cycle 5 of FEC has been a tough one. I haven’t felt at all well throughout. It’s now 4 weeks since and I am just starting to feel a bit better but still not as good as previous cycles “good days”. On Saturday, I felt so poorly still that I made up my mind that I wasn’t going to have the final cycle. I started to feel a bit better yesterday evening and today I went and had my bloods done and spoke to the Onco Nurse Specialist. I have decided to go ahead with the final one on Wednesday afternoon as long as my bloods are good and temp ok however I am feeling. The Onco Nurse said it is normal to feel the way I do after 5 FEC. I just feel very spaced out and as if I have really heavy lead weights round my ankles. Just no energy at all and a constant bad headache. I had to stop taking the cocodamol I was given last week as they made me feel even worse so am managing on paracetamol but they are pretty useless. My temp is ok now. I think it’s just a case of getting it over and done with and if it means I am ill in bed for a few weeks at least it should be for the last time. At least I managed to not get admitted to hospital in cycle 5 (just 2 separate days on the assessment ward). I am a bit scared to carry on in case it’s causing permanent damage in some way but then again I don’t think I’d forgive myself in the future for giving up at the last hurdle. If the professionals feel I’m ok to carry on then I suppose I’ve got to put my trust in them and just barrying get on with it and grows some sphericals!!!!! 😬xxx

 

 

 

 

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Re: February starters 2019 - yes, we rule!

Sarah, I'm a lefty. Thought it was left boobed peeps only who had to do breath hold so I was wrong about that then. Do you have the little bar thingy on the screen to look at so you can see that you're holding your breath? Reminds me of the Wii fit game where you have to balance. Can't do that very well either...

 

Daisy, that's a barry pain for you. Fingers crossed you can enjoy the sea again soon.

 

Good luck for tomorrow, Sonia.

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Re: February starters 2019 - yes, we rule!

Good luck for tomorrow Sonia and yes we understand!

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Re: February starters 2019 - yes, we rule!


Happy birthday Trixielady I hope you’ve had a lovely day xxx 

 

 

 

@Implausible wrote:

@daisydi wrote:

Marlyn maybe its because Sarah has that special fancy machine where they dont do tattooing? Hope so.  


oh yes, maybe.  Seaside has the same fancy schmancy machine.  Are you right-boob or left-boob, Seaside?


Implausible I’m a righty so I tell you what happens tomorrow. We don’t have a fancy no tattoo machine.

 

I have  had a busy  weekend, up to Southampton on Saturday to look around the university, my daughter is 100% sold. We then travelled onto Gloucester to stay over night as youngest had swim competition on Sunday. It was a nice weekend although I’ve gone on a bit of a downer, I’m trying to be positive but I’m just fed up with not being able to move around, and do everything I want. Also I just can’t see the end in all of this and I’m just fed up of it all now. It doesn’t help that hubby seems to be glossing  over everything saying it’s all going be be fine, and seems to think o can do everything I use to do. 

Sorry for my rant, I just feel like you ladies might know where I’m coming from. Xx 

 

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Re: February starters 2019 - yes, we rule!

Daisy,

 

I've gone in a time machine and gone back to 1979 ....a time when I was covered in acne....all over my chin and around my nose.....boo hoo!!!!! X

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Re: February starters 2019 - yes, we rule!


@daisydi wrote:

Marlyn maybe its because Sarah has that special fancy machine where they dont do tattooing? Hope so.  


oh yes, maybe.  Seaside has the same fancy schmancy machine.  Are you right-boob or left-boob, Seaside?

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Re: February starters 2019 - yes, we rule!

Marlyn maybe its because Sarah has that special fancy machine where they dont do tattooing? Hope so.  Where are your spots?

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Re: February starters 2019 - yes, we rule!

I too thought it was left bobbies only.....I didn't have to do the breath holding.....odd how it all differs...huh...

 

im still a spotty dotty....I'm certain it's herceptin....

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Re: February starters 2019 - yes, we rule!

I thought you were too Sarah.  Bit of a bugger as I will probably cough and splutter all over the place x

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Re: February starters 2019 - yes, we rule!


@daisydi wrote:

This may be a really stupid question but do you have to hold your breath because its your left side or does everyone have to do it?

 


Not a stupid question at all, because I also previously thought it was only the left-boob peeps who had to do the breath holding.  But I'm a "rightie", so it must be everyone?

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Re: February starters 2019 - yes, we rule!

This may be a really stupid question but do you have to hold your breath because its your left side or does everyone have to do it?

Seaside no unfortunately still unable to get down to the beach.  In fact I could probably get down but I would never be able to get back up again.  Just want to put my feet in the sea.  Hopefully not too long now ...

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Re: February starters 2019 - yes, we rule!

Seaside - I panicked a bit with the breath holding on the first go too - I thought they were never going to let me breathe again and that I was going to pop!!

 

I've found subsequent visits much more relaxed as I now know roughly how long they will need me to hold my breath for, and it doesn't seem so long when you're not flapping 🙂

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Re: February starters 2019 - yes, we rule!

Also Edinbird,

I have friends that get household appliances for their birthday presents .

 I don’t think they asked for them or even got asked 😂

As I said you are lucky.

Now think, what do you like doing, wearing, eating, seeing?

Go for it 🌼

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Re: February starters 2019 - yes, we rule!

Hi everyone,

 

Happy birthday Trixielady 😎🍦🎂🍰🍸🍾🎈🎁🎉 Hope you're doing something nice today and hope the Herceptin goes well.

 

Rosina, your post about your holiday also struck a chord with me. I am not committing to anything until I see how my skin reacts as it would definitely be torture not to be able to go in the sea. Swim trek sounds interesting. I much prefer swimming to running but I would need to build up my stamina.

 

Sarah, hope you have have your rads by now. Good to hear you got a lot of your money back for the cancelled holiday. Hopefully you can put it towards a rescheduled version.

 

Edinbird, it's dreadful not being able to plan anything, particularly for your special birthday. Just think, you will do something at some point when treatment is over/more definite and you're feeling well. I really hope you get something sorted.

 

Susie, hope you get your tennis ball sorted. What a barry pain.

 

Debi2, no jaw ache for me, just tummy ache and discomfort around the pelvic area.

 

Nettienoo, how are you feeling? When is your chemo? I've lost track.

 

How is your skin now, Marlyn?

 

Daisydi, how are things with you? Are you managing to get down to the beach at all?

 

I've returned from my first rads session. No problems at all other than an early phonecall to let me know my apointment was delayed by an hour due to a broken machine. I found the breath holding quite hard and seemingly never ending but I managed it. The radiographer commented that I am very tanned which I took as a reminder to cover up! Now just chilling in the garden, covered up 😂

 

Have a good day everyone.

 

Sar xxx

 

 

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Re: February starters 2019 - yes, we rule!

Hi Edinbird

I hope you find a way to shower successfully. I agree it's hard to really feel you want or need anything other than what you suggested. Hopefully in a few weeks you will feel better and be more able to focus on your birthday. At least he asked mine would not have thought of asking. But sometimes it's too hard even to think about it. Hope you are up, heart tablets swallowed and in that shower even if it is wrapped in a bin bag 😃.

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Re: February starters 2019 - yes, we rule!

Hi again everyone 

 

Wishing you a very happy birthday Trixielady🎉🎉🎈🎈🎈🎁🎁🎁🎁. Have a brilliant day, despite the extra gift of Herceptin💉☹. All the Best Susie B xxx

 

Implausible  and Seaside Sar, hope the rads go ok. Something else to tick off the list in a few weeks.

 

Rosina what an achievement on completing your trek around London. We walked from Little Venice to Camden Lock, via Primrose Hill a couple of years ago. It was lovely but I must admit we did get the Underground there and back from Leicsester Square🚈. Sorry to hear about your cancelled trip to Greece, but great to know that Easyjet have come up trumps. We such hear such bad things about them in the Press, so well done. My onc did say I could go away late August/September this year after telling me I couldn't go now but I decided not to risk it. Glad I didn't as I think I may be in the middle of next lot of chemo the way things are going. I'll try and get away for a short break when chemo and rads are over and done with. Still don't know if I'll have anything else as HER2 positive or negative still not known☹.Hopefully I'll have a better idea when I get my next onc appointment.. At least I've got my holiday booked for next year☺🛫🛬🏖🌝.   

 

Loving all the photos ladies. I like the suitcase turned into a bookcase Implausible☺, but not quite so sure about your rash🤔. Hope it gets better soon. Isn't plain yoghurt supposed to help with heat rash if it's itching?  MJB, you're positively glowing, and the hair regrowth looks fine. Beautiful photos of Stowe Gardens Seaside Sar.

 

Debi2 and Daisydi, you may have both solved a conundrum I had recently. Debi2, I didn't get jaw ache but I did get some random tooth pain all on the upper left hand side. At my recent dental check up my dentist took x-rays, tapped my teeth with what I can only describe as a hammer and sprayed the area with cold water and air. No discomfort at all. Something else to blame on chemo and associated meds perhaps!!??🤔.   

 

Deano, 2 cobs and a miniature Shetland, they're my kind of horses, not too big, although I do have a soft spot for Shire horses. If you have to do arm stretches after your surgery brushing your horses down will be an excellent way of incorporating them I to your daily routine.

 

Hopefully I've caught up with most of you. Sandra and Veronica, and Stargazer1 I hope you're all ok. Edinbird I know it's difficult, especially after our type of surgery and we don't feel I'll, but try and rest as much as possible. I was really tired after travelling down to my mum's and back yesterday and I wasn't even driving.

 

I'm currently awaiting a call back from my bc nurse to arrange to go in and get my growing tennis ball shrunk. It's not too bad going in if I can arrange to go in when I have my PICC care on Weds or as I'm going in tomorrow for my CT scan it could be done then but I may be feeling a little anxious so may not be such a good idea.

 

Have a good day everyone xxxxx

 

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Re: February starters 2019 - yes, we rule!

Edinbird, you’re lucky to have a husband who asks you what you want for your birthday.

I tell mine , it would not occur to him to ask. I also go ahead and just do stuff and just tell him I am doing it.

 It works perfectly 🤪😂 .

 

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Re: February starters 2019 - yes, we rule!

Edinbird I used a bin liner when I had a shower.  I cut along the bottom and put it over my head and then taped the top so no water got onto the dressings.  Worked really well.

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Re: February starters 2019 - yes, we rule!

Glad I found ‘Pride’ on iplayer. Can’t type as fast as my brain in thinking.

Horse film is called ‘Dream Alliance ‘

Here is a clip :

Race horse: Dream Alliance

 

 

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Re: February starters 2019 - yes, we rule!

Happy Birthday Trixie!!! Have a wonderful day. I’m celebrating it by sitting on my bum in bed. Need to get up as my heart pills are downstairs and need taking... but also need to brave that shower. The extra dressing we put on to cover the happy one is starting to peel so not sure if it will survive a wash.

 

Just feeling a bit sorry for myself. Nothing was booked for this summer and yesterday my husband asked what I want for my 40th next month. Well I don’t even know if I’ll be having any treatment on it so no, I don’t know. Ask me again when I get my results I guess but I don’t suppose I’ll even know then. Probably a time machine, oh and a cure for cancer. I guess a big donation to cancer charities and research would be good - except most people don’t know I’ve got (fingers crossed had) it... six weeks to think of something!

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Re: February starters 2019 - yes, we rule!

«Did you enjoy the Pride movie?  I remember a lot of people saying it was good when it was first shown.  I'll have to get around to watching it at some point. «

Yes, very much.

I wanted to see it at the cinema but never got round to it.

Glad I found it on 

I like movies like this ( based on a true story and the underdog has is day).

’Made in Dagenham ‘ comes into this category as does the film about the racehorse that was co- owned by a community/ cooperative in a Welsh village. Loved it.

 I second what you have said to Edinbird and MBJ. 👏🏻

 

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Re: February starters 2019 - yes, we rule!

https://www.swimtrek.com/

Hiya Implausible 

thanks for making me laugh out loud 😄

What's "swim track"?

Ah just saw your later message.  In that case, what's "swim trek"?  Smiley Happy  like star trek but wetter? Smiley Happy

Your answer is in the link above.

They have some amazing destinations,

I sit lusting after them. 

Trixielady , how did I miss that ‘Happy Birthday ‘ , Marlyn found a lovely image so I won’t try to find another ( and then get into trouble with the moderator because of copyright- this has happened before when I tried to copy and paste off Pinterest) 🌸🌸🌸

What else , just did a Tesco run. Drove there shopped and returned my trolley right back to the front of the supermarket instead of shoving it into the snake trail of trolleys that are now going to cause problems as they are sticking out into the pathway of cars in the car park . I hate supermarkets .

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Re: February starters 2019 - yes, we rule!

Morning everybody

 

And Happy Birthday Trixielady!!!! 

happy birthday in thai สุขสันวันเกิด.png

 

And you are so right, every new birthday now will feel like a bonus.  Once the bulk of this treatment is over and we start to feel and look a little more like ourselves, every year will definitely feel more like a gift, I reckon. 

 

What is it they say?  Growing old sucks, but it's a lot better than the alternative!  🙂

 

Rosina - my sister lives in an absolutely gorgeous 3 bed apartment in West Hampstead, short walking distance from the heath and the pond.  It really is a nice part of town.  That's what you can afford if you have a nice job but no kids to squander all your money away 🙂  she made very sensible life choices 😄 

 

Did you enjoy the Pride movie?  I remember a lot of people saying it was good when it was first shown.  I'll have to get around to watching it at some point. 

 

MBJ you look awesome, totally rocking that short spiky look!  It looks like a deliberate cut to me, rather than a "hair by cancer" jobbie.  If you know what I mean 🙂 

 

(As an aside, am sat here waiting for my lift to Oxford, wondering why they are late.  Just had a call that the car they originally sent for me this morning has had a little accident, so they are sending another which will get me in about half an hour.  I wonder which driver that was? 😕 Hope they are ok! )

 

Where was I?  Oh yes, drooling jealously over the doc's hair 🙂  not literally!  You don't want my dribble on your head 😄

 

And that big happy smile too, look at you 🙂  there really is something to be said for just getting out of the house into the fresh air and looking at something, anything, other than the same 4 walls, isn't there?  I seem to get a real burst of energy whenever we go out for the day or a weekend.  Then I pay for it all the following week 😄  but it's so worth it 🙂

 

I read somewhere.... was it one of the articles one of you ladies linked to maybe?.... that your brain links your worries to a place.  So if when you sit at home, you worry about stuff (as I certainly do), then when you head out and have a change of scenery, you literally leave your worries and stresses behind.  Seems to work....


Daisydi, don't worry, my ankle rashes aren't sore at all.  They have got darker since yesterday, they are a bold burgundy now, but hopefully will start to fade soon.  I've slathered some sudocrem on them this morning.

 

I'm also ridiculously slow when walking.  All round London on Saturday I kept apologising to my other half as he was having to walk at a snail's pace to match me.  Must have been driving him potty!  Although he is far too nice to admit it 🙂

 

Edinbird.  You workaholic, you 🙂  You are 4 days out from surgery.  Whether you "feel ill" or not, you absolutely 100 percent should not be thinking about work 🙂   This is your long overdue "you time".  Relax, enjoy a movie or the new series of Stranger Things or get lost in a good book.  Work will wait for you, they have already given you a big vote of confidence by giving you the job you went for....

 

Glad you are recovering so quickly though.  You are just a spring chicken so that certainly helps with bouncing back quickly from surgery.  Still be careful not to overdo things though, lifting and stuff....

 

Marlyn, anastrazole is supposed to make us grow beards??? I don't remember that one on the list of side effects I read! 😄  (At least it would give us all a new source of income working for the local circus 🙂  )   I do remember that it said it might cause both loss of appetite and weight gain.  How does that work then? 🙂

 

(Aside, my driver dude is now over an hour late.  I could have driven to Oxford myself by now.  Happily would have done if they had suggested it...)

 

Seaside, best of luck today with starting rads.  You are probably all done and dusted by now?

Those photos of Stowe are gorgeous! 

 

(Another aside, just after saying how late the car was, he turned up.  Nice new chap I haven't met before, a ginger bearded South African called Dmitri, very chatty 🙂 )

 

Deano, 3 horses?  Lovely!!!  I think having animals to care for be they dogs or horses and to a lesser extent even my little cat, gives us all a good reason to keep active when maybe otherwise with no responsibilities it would be easy to just stay curled up on the sofa.... 

 

(Running commentary continues. I'm now at the hospital and they are running late and I won't now get zapped until 11 at the earliest.  Never mind, they have fruit and biscuits here, I'll live 🙂 )

 

Susie, I would say don't torture yourself with the photos of the holiday you should be on, but I know from experience that is nigh on impossible!  I didn't stop sulking about my American trip until the day we should have flown home again.  Once the dates were behind me I was ok.  But during the dates?  I was insufferable:D

 

Oh yes, talking of my holiday that never happened.  That was in March.  I finally got the last of the insurance money last Friday!  Talk about a prolonged battle! 

 

Ended up getting about £2,300 back of the £2,800 outlay.  Could have been worse.  Most of the losses was from having to sell the various NHL hockey tickets for a lot less than we paid for them.

 

Rosina, well done on getting a cancellation from Easyjet.  I only managed to get one from one of the 5 airlines we were dealing with for the USA trip, and even then they only refunded my flight, they wouldn't cancel Jason's.

 

What's "swim track"?

Ah just saw your later message.  In that case, what's "swim trek"?  🙂  like star trek but wetter? 🙂

 

Hi Debi, sorry I can't help with that one as I had lonquex not filgrastim, and was lucky enough to not have any side effects from it.

 

As for the whole resentment thing re missing out on stuff, as mentioned by MBJ, and not being able to make plans.  I've definitely got better at handling that as this year has gone on.  After being fuming about missing my big holiday and a few other smaller plans, I decided to just write 2019 off completely in my head.  Since then, anything I do manage to do (like London this weekend and Glasgow last week) I've treated as a bonus.  I don't make firm plans and actually put money down until the last minute.  It has helped my mental state to assume I can't do anything and be pleasantly surprised when I can.  Rather than assume I can do everything and be constantly disappointed....

 

And on that note, I'd better sign off before I'm called in to be zapped.

Love to all

Sarah x





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Re: February starters 2019 - yes, we rule!

Just a quick pop in to wish our lovely Trixielady a very happy birthday. I hope you have a super sunny day sweetie. Lots of love. Xxx

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Re: February starters 2019 - yes, we rule!

Happy birthday trixelady!! By eck you know how to celebrate....herceptin!!! Hope you get spoiled rotten my love xxxxx

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Re: February starters 2019 - yes, we rule!

Happy Birthday Trixielady x

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Re: February starters 2019 - yes, we rule!

Hope you have a very Happy Birthday Trixielady x

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Re: February starters 2019 - yes, we rule!

Good Morning Ladies

Gosh our lives are like mirrors at the moment. DaisiD, Trixielady and Rowena I could have written your posts myself. The disappointment and to some degree resentment of having to miss out on stuff is horrible. It's like we have lost the ability to plan and anticipate enjoyment. I was really fed up on Saturday when I missed out on singing for the air show. Then thought I am being rather childish here. I think we have all had refunds on holidays which were booked for a life that was. Can't see me ever booking a holiday very far in advance again, although to be fair other than our Australia cruise we never have. 

Well enough moaning now. It's another lovey day here, I am off to have my nails done later. 

Trixielady have a really nice BIRTHDAY. 

HAPPY BIRTHDAY TO YOU 🥂🎂🎉🎉🎁 I hope you get more than a Herceptin injection though!!

 

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Re: February starters 2019 - yes, we rule!

Morning all,

Rosina I had exactly the same thoughts about a holiday.  I was going to book for end of rads but I would also want to get in the sea or pool and couldn't be tortured with covering up in the shade.  I will wait till next year.

Debi2 I didnt get any jaw pain with the injections but I did get random tooth ache on various occasions.  Hope it goes away soon x

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Re: February starters 2019 - yes, we rule!

Oops , swim trek not trak

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Re: February starters 2019 - yes, we rule!

Good Morning everyone

 

Popping in from April thread for a bit of advice, Did anyone have jaw pain with the white blood cell injection?  I have Zarzio (filgrastim) for 5 days after my Docetaxel and the last three injections seem to be giving me great jaw pain that start about 3 - 5 hours after injection. 

 

Regards

Debi

 

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Re: February starters 2019 - yes, we rule!

Good Luck with the rads Seasidesar and Implausible ( is there any body else? - not sure).

SusieB , Trixielady is right.

Have a blast next year.

 I will let you in on a secret.

Way back in March I had assumed that chemotherapy would go according to plan and I would be ‘done’ by May 30th, then 3 week break, then 3 weeks of rads ( what I thought and what the oncologist said at the time, asked her about flying after treatment- she said it was up to me and how I felt) so I went ahead and booked a flight to Mum in Athens for August.

Upshot is , I have had to cancel it but EasyJet have been fab and the have put all my money into a special account so that I can use the funds for a flight ( or flights ) in the future as long as I book within the next 6 months ( hey ho Xmas) . I did have to provide them with a doctors letter because normally they do not refund for cancelled flights ( being a low cost carrier). Customer services were lovely over the phone too.

 Initially every time I got a delay in my chemotherapy treatment plan I was stressing over the August flight. Eventually mid June, I saw sense and cancelled ( initially I was even considering cutting the rads short), I love the sea and swimming but it would kill me if all I could do would be to stay in the shade and look at the sea as I would want to fling myself in.

 Next year I am definitely going to make up for it ( swim track anyone? my kids are already interested, H1 can’t swim 🤪) but it’s not that bad once you accept the fact. Now I am thinking, Norwich, Edinburgh Festival, Hampstead Heath Ladies pond ( when I can swim!!!!) , Pells pool (Lewes) it’s the oldest lido and fed with spring water.

 

Any other suggestions????

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Re: February starters 2019 - yes, we rule!

Hope today goes well for you both Sar and Implausible xx

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Re: February starters 2019 - yes, we rule!

Morning lovely ladies 

Susie its awful having to miss out on things i think we've all felt it especially with the uncertainty we've all felt, really do feel for you but dream big sweetheart for the day it will happen xx 

Its my birthday and i thought last year was fantastic being 50 but this year feels amazing although this time last year was  worry free enjoying a cruise and stay but so blessed I'm still here for a herceptin injection later today xx

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Re: February starters 2019 - yes, we rule!

Morning ladies

Some views that I should be seeing this evening ☹😢, but never mind 'cos I'll be there in a year's time😎😊😊😊. We survived a visit to my mum's yesterday and managed to escape at a reasonable time by playing the tired after chemo and surgery card. She'd have us there until 8:00pm otherwise😴😴😴😴. I read all the posts last night and will catch up with you all later. xxxxParga, GreeceParga, Greece

 

Beach in front of our hotelBeach in front of our hotel

 

Sunset on the way up to the castleSunset on the way up to the castle

 

Favourite haunt Blue Bar at nightFavourite haunt Blue Bar at night

 

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Re: February starters 2019 - yes, we rule!

Good luck with your first rads session tomorrow Sar and good luck with your 2nd week Sarah. x

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Re: February starters 2019 - yes, we rule!

Hi Implausable

i own my horses I have 2 cobs and a miniature Shetland all mares I ride with my daughter and it’s been my life saver taking myself off into the fields if not riding doing jobs due to not being able to mix much but I’m shattered though as they graze on a hill 

mbj - you look amazing your hair has grown a lot I’m hoping mines at that stage soon. 

I hope everyone is managing their own side effects and recovery- onwards and upwards ❤️❤️

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Re: February starters 2019 - yes, we rule!

20190707_143733.jpgEvening everyone,

 

Nice to hear from you, Deano. Good luck for your surgery. Try not to worry too much - easier said than done I know. Hope it all goes well and you can tick off another hurdle. I'm with you on the lack of brows and lashes. Although I kept a few, they still seem to be falling out which is making me sad. Haven't got white fingernails but they are very bumpy.

 

Well done on the mahoosive hike, Rosina! Puts my efforts to shame. I am still feeling the effects from my walk on Friday. Sore knees, ankles and heels. Feel like an old woman.

 

Sarah, that rash looks painful. I hope it goes down quickly. This hot weather can't be helping. Good luck for weeks 2 of rads.

 

MBJ, you look lovely! If I looked like you without my wig/hats, I'd ditch them too, especially in the hot weather.

 

Daisy, I hope your nails stay put. Like you, I am thinking surely the T has cleared by now. I've also removed the dark polish and will paint mine a lighter shade tomorrow.

 

Edinbird, sounds like your making a good recovery from your op. Enjoy your films and don't overdo things too quickly.

 

Marlyn, good to hear you're doing ok with the tabs. It is hard to know what is causing side effects when you have several things going on at the same time. I'm sure Herceptin is responsible for some of the annoyances you're going through.

 

As for me, I went for a lovely walk around Stowe Gardens today. Some photos below and one at the top for some strange reason!

 

20190707_143338.jpg20190707_143353.jpg20190707_145045.jpg20190707_143741.jpg

 

Right, I'm off to bed soon. Starting rads tomorrow and it's all early morning apointments for me.

 

Night everyone.

 

Sar xxx

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Re: February starters 2019 - yes, we rule!

Daisy,

day 4 now and am relieved to report no side effects.......of course I'm still knackered and pretty spotty but I'm putting this down to treatments and herceptin....I do wonder if it takes a while to kick in but for now no beard growth or gruff voice...

 

edinbird, good to hear your doing ok....I think you more than deserve that lazy day tomorrow...don't forget there's gentleman jack to watch too...x

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Re: February starters 2019 - yes, we rule!

Hello xx

 

I’m still waking up lots and still hot but feel less tired. I can sleep on both sides - surgery side not quite how I would normally but enough - and the swelling seems to be subsiding more but still a way to go. I can get my hands over my head already. I managed to cover the dressing that was slightly open so I’ll have a shower in the morning and see how I fare. Got no oomph rather than feeling wiped out like I did before. Took a dihydrocodeine before bed last night and Friday night but it didn’t seem to make me drowsy. Don’t see the point of taking it just because so might try the sleeping pills again. Still need to have the window open which is fine when the weather is ok. Not sure what I’m going to do tomorrow as I know why I’m off sick but I don’t feel sick - at least with T is was feeling a bit crap on sick days! I have some films to watch so maybe that.

 

Just a bit bored I guess. Once I’ve showered I’ll need to let my hair dry and that might be quite intense for my arm so I guess a lazy day is allowed.

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Re: February starters 2019 - yes, we rule!

Hi everyone, MJB you look great you suit short hair.

Implausible are you coming out in sympathy with me with your rashes?  Yours look very sore.  I think my bad red leg is on the mend although the skin is breaking down like it did on my under carriage when the swelling went down.

I took my dark nail varnish off my toenails today as they are still very sore and I wanted to see what was going on.  Well my big toenails have gone white like my finger nails and the toe next to big toe is brown.  The nails are so brittle took me ages to cut them and I have now left them to breathe.  Surely the T is gone by now.  It will be 4 weeks tomorrow since my last dose.  My finger nails are still all white but they are hanging in there.  I am cutting them really short so I dont catch them and pull them off.  Hopefully they will stay put.

Well done Rosina on your walk.  I just dont know how you do it.  I have managed short walks yesterday and today but I am so slow.

Im waiting patiently for my lashes and brows to grow back but my head hair has stayed put.  It has thinned out but no bald patches.  Any hairs growing back seem to be really white though, even my lashes have white ones coming back.

How are you doing Edinbird.  Hope you are getting some sleep.

Susie sorry you will have to be drained again.  I dont know whats worse having a drain in or having to go and get drained.

Maryln are you coping with the Anastrazole ok.  Any side effects yet?

Hope everyone else is ok and enjoying the sunshine.

Love to you all x

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Re: February starters 2019 - yes, we rule!

That is a fab photo MBJ, you look great 🤗

I have finally found something to watch that does not annoy me :

’Pride’ on BBC iplayer.

Bill Nighy and Imelda Staunton are in it so it should be good.

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Re: February starters 2019 - yes, we rule!

Wow, you've got a pretty good head of going on there mjb.....much longer than mine....you look great! Xxxx

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Re: February starters 2019 - yes, we rule!

Hi Rosina

Yes it was great to go out without my wig, have not worn it at home for weeks now. I thought if anyone looks at me then they are blinking welcome to have the year I have just had. I bought a great baseball hat from Simply Wigs it has a soft top with elastic on the back and there is a tie too to make it smaller (thank goodness as I have a small head). You can pull it down over your ears too if you want to. It's comfy and cool I wore it a lot on the cruise.

You had a great day yesterday. I don't think I have walked that many steps all year combined. 

Here is a photo of my first non wig outing. IMG_20190707_171927.jpg