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February 2019 chemo starters

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Re: February starters 2019 - yes, we rule!

Susie I cant bear the thought of not being able to talk to you lot so you will definitely not be alone.  It was my bc nurse who told me not to take steroids much after 2 so as not to interfere with sleep too much.  I was taking 4 at a time so 8 every day.

  I had to wear my surgical stockings for a week after each surgery and a very very tight corset.  It was absolute torture.

Rosina that R1 and R2 was definitely made for you.  When do your rads start?

Edinbird cider sounds good.  At least its wet!

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Re: February starters 2019 - yes, we rule!

Susie B

You will never be on your own. Look how I have hung around, and I have not had chemo since February. Glad you are all sorted now and you have a plan to move forward with. X

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Re: February starters 2019 - yes, we rule!

Oh Susie. You won't be alone I promise you! You've got us lot right behind you, we will still need each other in 10 years time!! If not longer, I simply can't imagine not looking at this forum and catching up with you lovely lot.....after all.....we're family by now surely??? Xxx

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Re: February starters 2019 - yes, we rule!

Aw Susie you missed out on the stockings! I had to wear mine until the morning after. I think I took them off in bed overnight since I didn’t need another layer to make me even more hot.

 

Been out, very muggy. Bumped into my neighbour trying to explain the feeling or lack of under my arm whilst her kids were running up and down the road. Then when I got to the shop I found I had a voucher for cider so that was my limit to carry back, was fine actually.

 

Seems like there is plenty going on with some people still to have more ops and my rads won’t be for a while so we won’t be abandoning you Susie!

 

Hope things are going ok for Deano and Nettie xx

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Re: February starters 2019 - yes, we rule!

Hi everyone 

 

Blimey, just read all the posts from today. Do we ever stop talking? Firstly my news. Whilst at the hospital this morning the nurse gave me my long awaited for appointment dates.  I left home this morning before our post arrived. So I will have PICC care, bloods and onco appointment on Weds 17th and the joys of chemo CT on Friday 19th, so long as my bloods are ok when I see the onc. Glad I'm still having chemo on a Friday as that works in better with hubby's job, as Friday's are usually fairly quiet and he usually only works a few hours. He builds up plenty of flexi, not usually intentionally, so he takes the day off when I have chemo. Hopefully I'll find out once and for all if I am HER2 positive or negative. Of course I could be Barrying awkward and be a mix of both☹☹😆😆. He'll have my CT scan results too. I came away with my little packet of steroids ready for me to start taking on Thursday. Did someone's nurse suggest taking 2 in the morning and the other 2 around 3:00pm so as not to interfere with sleep too much? Perhaps I'll be able to find out  if CT, the T bit anyway, causes as many problems after a 13 week break from FEC. Watch this space. Guess I'll be all alone, within the group, having chemo then I'll probably be the same with rads☹☹☹☹☹. Downside to being on a trial I guess.    

 

Could someone send some if that eye candy in this direction, pleeeeeeease🤗. Now that would be worth the effort of going for PICC care once a week even though it hasn't been used since my last chemo session😚😚😊😊.  

 

MBJ hope you get an appointment soon for the palpitations clinic. We seem to spend all our time either waiting for results or appointments. As for the arm exercises I think I'll take a look at the  cancer research website too. I hadn't thought about them having information. I also need to establish if there is anything I can do to stop these blinking tennis balls🎾🎾🎾 reappearing as my body doesn't seem to want to sort itself out.   

 

Hope you got out to the shop Edinbird. And, as I found today you can't buy endless rubbish🛍🛍🛍🛍. I didn't come out of Tescos with much after my hospital visit . 

 

So Rosina do R1 and R2 get on with H1? 

 

Deano, Implausible, Edinbird I never had the stockings unless they were put on and whipped off me whilst I was out cold. My surgeon did mention them, but perhaps she thought a blood pressure monitor on my leg would be more stylish😀😀.

 

Well that's me sort of caught up with all the posts. Going outside in the sunshine for a while. ❤❤❤❤❤ to everyone. 

 

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Re: February starters 2019 - yes, we rule!

Hi Edinbird,

back from my lunch ( too hot and humid and I needed to flop - at least I got my steps in 🤗) .

Never even thought about the Rs 🤪, if the system works I will be well pleased ( it costs £72.60 to purchase the products which are enough for 6 weeks) as I saw a colleague’ s décolletage at work ( she has completed treatment chemotherapy, radiotherapy - 3 weeks) and it was red and blistered so I freaked out seeing that. 

I have sensitive skin and burn so I don’t know what Mega electron volts of X rays are going to do to me ( bone X rays are Kilo electron volts) .

The radiologist said we all react differently but I like to ‘ be prepared ‘. 

I was prepared to purchase the stuff myself if they wouldn’t write a prescription🧯I don’t fancy being toasted 🔥

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Re: February starters 2019 - yes, we rule!

Hi Trixielady

Well I am still waiting for my appointment for palpitations clinic. I feel fine now no obvious heart issues that I can feel. But still it needs checking out. Yes I am on Letrozole and really have not noticed any sideffects at all. I can however sleep for Wales at least 9 hours a night. But then I have always  enjoyed sleeping. At the moment I am really trying to get any lymphodema in my left side sorted. Now found more exercises on the cancer research web site as I am not convinced the simple lymphatic drainage shown to be by the lymphodema physio is enough. Takes ages though. Dry brushing first then exercise.  It was 11.30 before I finished this morning. But then better than house work 😃.

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Re: February starters 2019 - yes, we rule!

😂 R1 and R2 😁 sorry it just made me giggle! It’s like it was made for you Rosina!

 

Progress - got dressed! Considering when to go to the shop. Maybe at 1... at least I can’t buy endless rubbish as I won’t be able to carry it!

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Re: February starters 2019 - yes, we rule!

Re. Rads. I have just got back from my GP and she has gone ahead and written a prescription for the R1 and R2  Watergel system ( gel and cream specifically designed for those undergoing radiotherapy ) which I politely requested. I was expecting a ‘No’ as the hospital didn’t prescribe it. So I am very pleased.

Getting to know my local chemist too - another lovely lady.

Meeting friends for lunch today at my local hospice, we support their cafe.

Hugs to all,

Rosina 

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Re: February starters 2019 - yes, we rule!

Posted too quickly, 

enjoy the view when you can Sarah, never anything like that when I’m waiting, I think the youngest person in there yesterday was over 65  at least. Xx 

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Re: February starters 2019 - yes, we rule!

Good luck Nettinoo, last one 🎉🎉🎉

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Re: February starters 2019 - yes, we rule!

Lots of love Deano and Nettie!!!

 

I was third and I was in at 3.30... but they had clinic in the morning so didn’t start til the afternoon. My stockings were absolutely fine. Did they give me the right size?! The other ladies seemed to be popping out of theirs.

 

Had a decent sleep after a triple whammy of Sleapeaze Nytol and dihydrocodeine... not sure it’s to be recommended but once I did get off to sleep (about an hour) I didn’t sweat. Woke a couple of times. Feel ok. And luckily was awake when the window cleaner suddenly started slapping some water on outside!! If the window had been open that would have been awkward too!

 

The rain has vanished for now so I should get up and try the walk round to Morrisons shortly see how I get on. Last lump away Deano I hope between us we never have another one. Bye bye last Barry! 👋🏻🖕🏻💪🏻

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Re: February starters 2019 - yes, we rule!

We're all behind you deano, let us know how you are when you can? Xx

 

whitwoo nettienoos son!! Hope the nurses can concentrate on you....thinking of you as your approaching the finishing post xxx

 

implausible....enjoy your view! Don't ask him if that's a truncheon in his pocket..... lol xxxx

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Re: February starters 2019 - yes, we rule!

Implausible.....gotta love an unexpected perk eh? 😉😂 x

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Re: February starters 2019 - yes, we rule!

Talking of eye candy.  I'm sat in reception here at the hospital waiting to be called in to be zapped, and a super duper hunky policeman has just presented himself at reception, as he wants to check something on their CCTV.

 

Don't usually get such a nice view here!  

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Re: February starters 2019 - yes, we rule!

Deano I remember the struggle with those stockings too 🙂  3rd on the list is good.  Hope they call you through before you get too thirsty (that's the worst bit for me!)

 

Nettie, I see you're taking the ward eye candy in with you again to cheer up the nurses 😄  Best of luck for your LAST CHEMO wooooot!!!!

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Re: February starters 2019 - yes, we rule!

More Good Luck for Deano and Nettinoo

Also for Trixielady and anybody else who is interested in meditation 

I just did more searching:

https://www.tarabrach.com/guided-meditations/

 

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Re: February starters 2019 - yes, we rule!

Good luck Nettienoo and Deano ☘💕💪

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Re: February starters 2019 - yes, we rule!

SusieB, I’m ok thanks darling. Last chemo going ahead at 2pm. Eeeeek! Ive got mixed emotions this morning. I’m desperate to get it over with but anxious about the after effects. My son, Tom, is taking me today and he is my absolute rock so I’ll be fine. XxxDECA1996-7B74-4517-BDE7-F816A9A21B3B.png

 

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Re: February starters 2019 - yes, we rule!

Hi everyone 

Thanks for the well wishes I am sat all gowned up with my lovely stockings which took ages to put on it felt like a gym session especially when your nails are short - gonna try to stop being nervous and wanting to cry I am ok until they ask how I am xx

speak you you all later I am 3 rd on list and should be out later xx

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Re: February starters 2019 - yes, we rule!

Morning everyone 

 

Just a quick pop in as I've got PICC care this morning 

Edinbird, get that water down you🚰🚰🚰.

Nettienoo, hope you're feeling ok.

Implausible, I'd have been upset too if I'd walked all that way, feeling  exhausted, only to find a blank wall😭😭😭.

Will catch up properly later. Hope you all have a good day or at least the best you can manage if you are feeling under the weather. xxxxx .   

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Re: February starters 2019 - yes, we rule!

MBJ, how are you doing?? what's happening with the heart issue?  and was it letrozole your taking and are you experiencing any side effects? Xx

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Re: February starters 2019 - yes, we rule!

Morning All,

if anyone is using the Calm app today’s meditation is really apt.

It is called ‘No Mud , No Lotus’.

 I wish I could share it, but I cannot.

So instead I googled the phrase ‘No Mud, No Lotus’ and found this clip on YouTube which looks like it will cover the same topic but in more than 10 minutes. 

Don’t know who the speaker is , haven’t heard of her. Anyway here goes :

No Mud, No Lotus

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Re: February starters 2019 - yes, we rule!

Deano, A40BDA67-D2E8-4F5A-91DF-5FE4B6D268BF.png

Lots of good vibes winging their way to you and lots of love. Xxxxx

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Re: February starters 2019 - yes, we rule!

Good luck Deano 🍀🍀

thinking of you today 💕

 

Implausible, I will 

look into reflexology, I get a free session through the mustard tree,  

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Re: February starters 2019 - yes, we rule!

SusieB how are you after yesterday?xx

Sonia28 how's the rads going?? Xx

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Re: February starters 2019 - yes, we rule!

Morning lovely ladies 

Will be thinking about you today Deano surgery will be a gallop after coping with chemo hun, a big hug xx the recovery of surgery is down to the rest, arm exercise and good care and plenty of positivity xxx

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Re: February starters 2019 - yes, we rule!

Hi Deano

 

Thinking of you today. When you feel ready let us know how things went. xxx

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Re: February starters 2019 - yes, we rule!

Hi Deano 

Good luck for tomorrow I am sure they will look after you well. When you feel up to it let us know how the day went.xx

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Re: February starters 2019 - yes, we rule!

Hi everyone

 

sorry I didn't get on this morning in time to wish Susie good luck with the draining and the scan, and Sonia all the best with rads #1 - so this is more of a "well done" after the event.  Hope all went well.

 

I'm waaaaay behind on all these messages, let me try to catch up....

 

I totally meant to ask the radiologist this morning about the left boob / right boob / breath holding thing, but I totally forgot!  I'll have another go tomorrow....

 

Marlyn - I hope you get the spots sorted, here's to finding a magic potion.  I have also got a little zittier since chemo - but more pimples than acne.  I've got three new pimples in a straight line on my chin which look most peculiar and I'm hoping they aren't a permanent fixture!  

 

Sonia - I absolutely, completely, totally 100% understand where you're coming from with the fed upness and wondering when you'll feel fully fit and able again.  I'm still really struggling to get up stairs which drives me mad, I have to haul myself up the bannisters, I get so embarassed if it is stairs in public and someone is behind me.  7 months ago I was skipping up them 2 at a time 😕  And I'm so fed up of spending 2 or 3 days totally zonked after 1 day of minor exertion.  And being zonked out and ready for bed so early every night when it is still daylight outside.  I used to be a creature of ze night!! 🦇  (I think that's supposed to be a bat)

 

I lose track of how far out from chemo we all are, but I'm 5 weeks out as of today, and I really didn't think I would still feel so weak and tired and broken by now 😞   I don't think I can blame the radiotherapy for that yet, it's all still a chemo hangover, I'm pretty sure.  All that said, I think I am feeling *marginally* more lively week by week, so eventually, hopefully, we will all feel fit and well again.  I bloody well hope so!

 

You also have the issue of the swollen ankles which must be getting you down too 😞  I can't believe that I'm saying this, as I am such a skeptic about alternative medicine, but have you considered reflexology?  Last Friday after rads the massage lady did reflexology on my hands (because I didn't really like the idea of someone touching my feet).  She pointed out that my right wrist (surgery side) was a little swollen in relation to my left.  You could totally see it when the 2 wrists were next to each other on the table.  She did a special reflexology "thing" that is supposed to perk up your lymphatic drainage and the swelling went down right in front of my eyes!  I mentioned to her your swollen ankles and she reckoned that if you looked for a reflexology practitioner in your area who specialises in RLD (reflexology lymph drainage), that they would have you sorted in no time.  I totally meant to mention this to you over the weekend but my brain is still a sieve!  (Another thing I'm hoping will recover over time!  and my eyesight!)

 

Seaside - yes I have the little breath hold screen with the line that you have to aim at and then hold it still.  I quite like it, it makes the whole thing into a bit of a game 🙂  but also helps me know when I've done it right.  How was day 2?

 

Nettienoo - I love the sound of your tiny lending library!  You must have been a very creative youngun 🙂  And yes thanks, the rash on my ankles is clearing up nicely, it's only just still visible.  Happy about that, as it looked so unsightly!

 

Sorry that FEC cycle 5 has been a rough one 😞  I hit a point in cycle 5 too when I was ready to call the oncologist and cry off from #6.  By number 5 you're thoroughly sick and tired (literally!) of the whole thing and the thought of going through it yet again is just horrendous.  My #5 was a T not another FEC though.  They definitely do build up cumulatively, in fact I wonder if that's why we all thought T was worse than FEC.  Maybe if we had them the other way round we'd have thought FEC was the the worst offender. 

 

I really hope you manage to shift that headache soon - it's horrid when it just won't go away and the painkillers aren't helping 😞

If you DO grow those sphericals, though, call the nurse?  I'm pretty sure that wasn't on the side effect list 🙂

 

MBJ - maybe that RLD thing I mentioned to Sonia up there ^ might also be worth a look for you, in relation to your arm?

 

Rosina - what are the odds of non identical twins developing the exact same type of cancer at the same time?? crazy!!  hope they were both on the mend.

 

Susie - no my hospital doesn't have a support service like you describe, sounds good though, for those that need it.  

 

Marlyn again - I definitely am not bionic!  I still have days where even just walking round Tesco leaves me half dead.  The 22k steps in London weren't easy, or even particularly enjoyable (I enjoyed the places we walked to but not getting there)  and I had to have a LOT of sit-breaks.  My other half is getting good at spotting walls or other suitable sitting spots.  There really aren't anywhere enough benches around nowadays!   At one point we walked about 20 mins out of our way to find this wall by one of my favourite artists:

 

WSW.jpeg

 

Only to find this when we got there....

WSW2.jpg

 

I burst into tears!  All that exertion that half killed me, for a painted over wall 😞

 

I am so far from being fighting fit 😞  it is beyond frustrating.  And I walk so SLOWLY.  Jason was being super polite and not complaining but I know he was finding it a bind having to slow to my snail pace.

 

All my whinging aside, I'm quite sure that by December you'll be skipping through the London streets 🙂  that's aaaages away.  Try my trick of looking in the other threads for the ladies who had chemo X months before us, to get an idea of how we should feel in X months' time.  I love the August 2018 thread - they are exactly 6 months ahead of us and they all seem to be running and swimming an holidaying and most are back to work.  It's really encouraging 🙂

 

Susie again - your hair looks great - you'll be able to kick that wig to the kerb in no time at the rate your own hair is growing back.  Not jealous at all (lie 🙂 )   It's great that you already favour a short style so you will only have months to grow your hair back in not years.   And that's a really pretty Poppy!

 

Glad the tennis ball has been dealt with again, hopefully it won't come back this time?

 

Edinbird, I'm sure another old mother hen nagging you won't help in the slightest, but you need to drink more, young lady!!!  🙂  If it helps to gamify the whole thing a bit, get a hydration app on your phone or a small white board in the kitchen so you can tick off your 8 glasses a day (that's 8 small glasses, or 3-4 pint glasses). I promise when you get past the first 3 or 4 days (when you'll do nothing but wee 🙂 ) you'll feel so much better for it.  I made a real effort to up my hydration levels a few years ago (before then I was a bit like you and would go hours without a drink) - and  - apart from the whole cancer thing which I don't think I can blame on the water - I think it has really helped my general health.  I only really did it for vanity reasons as I read it would smooth out my crows feet 🙂 (and it did!)  - but I felt generally better for it too.

 

Glad you checked with the nurse about the dressings and they are happy for you to replace them when they get raggedy.  Sorry you are bored though 😞  It is difficult sometimes to deal with down time when we are so used to working constantly / always being on the go.  But try to make the most of it as before you know it your life will be back to 100mph.

 

Deano, is tomorrow surgery day?  All the very best of luck! We'll all be there supporting you in spirit.  Do let us know when it's all done and you have woken from your deep slumber.

I'd also love to see some photos of your horses, if you don't mind sharing?

 

Sonia - glad day 1 of rads went smoothly (apart from your top getting you a telling off!).  Finally I have a justification for my 500+ t shirts!!!  I don't think a single one has a V neck, so I'm hopefully safe both from the sun and naggy radiologists 🙂

And yes I've also been warned that the 2 weeks after rads finish are the worst for both the skin soreness and general fatigue 😞  I've warned my boss I might need to take 2 weeks holiday at short notice if I can't face work.  Would you have an option to move your caravan break back a bit out of that 2 week period?

 

Daisydi  - really glad you are feeling a little more human now and had a little walk an a prune 🙂   (lame attempt at a Lily Allen joke which I don't expect anyone to get 🙂 )

 

As for the "blue splodge" conversation.  I never had a splodge as such after surgery, but my nipple was blue for a good few weeks.  Maybe even a couple of months.  All back to normal now though.

 

And me?  I'm beat after 2 very busy work afternoons.  Yesterday I worked till gone 8pm, today till about 7.30.  So that's 4.5 extra hours they've had off me in 2 days.  That should really earn me an afternoon off later in the week but we are so busy I can't see that happening 😕

 

Crazy when a trip to Oxford to have radioactive lasers fired at my boobs is the easy part of my day 🙂

 

I also had my first counselling session today after rads.  Pity I only have time to have 3 of these as today's was super helpful!  Didn't really talk much about the cancer stuff, she was more interested in picking apart the various other past traumas that I tried very hard to belittle and downplay, but she was on them like a hawk!!  🙂  

 

Right, it's gone half past 8, waaaay past my bedtime!

 

Night everyone

 

Love to all who've been on recently and to those who haven't.  Hope everyone is ok x

 

 

 

 

 

 

 

 

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Re: February starters 2019 - yes, we rule!

Hi Edinbird 

 

I started the full range of arm exercises a week after surgery. I was told not to raise my arm above shoulder height until then. As for the splodge it covers the whole of my nipple area with more at the top than the bottom, at least an inch long☹📏. I did have some bruising underneath but that has now gone As for drinking water listen to Daisydi. That said my mother-in-law nagged me for years to drink more and for many years now I've always drunk plenty of water during the day. Nearly every time I go into the kitchen I'll have a small glass full. Take care and try not to do too much too soon. Sunday tired me out and so has today and that's just over 3 weeks since surgery.  xxxxx 

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Re: February starters 2019 - yes, we rule!

Hi Daisydi,

the cleansing milk is for anytime ( not just during chemotherapy/rads).

 I used up the bottle mum left behind and I was really impressed with it.

 I am even more impressed with it now that I know how much it costs !!!

 I am actually stunned and I have re-purchased it. It is stocked in Boots, Superdrug and ASDA ( probably other supermarkets too just haven’t looked) just that today my eyes have been watering and I wanted something with rose in as it is so soothing.

The Lyonsleaf balm cleanser is good but heavier. 

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Re: February starters 2019 - yes, we rule!

Thanks Sonia never even thought of that. It’s ok I’m in Scotland the chances are so slight.. 😂

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Re: February starters 2019 - yes, we rule!

Edinbird, it’s for incase the sun may hit that part of your body, by the v moving. 

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Re: February starters 2019 - yes, we rule!

Thanks Daisy I’ll find out next week big reveal! 😂 what’s the issue with the T-shirts? Are you not top off for the rads so they line up the tattoos? I have lots of round neck T-shirts so if it’s important I’ll have to change as I can’t go to work in them!

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Re: February starters 2019 - yes, we rule!

I still have my blue splodge and that's from October.  It has faded a bit though. About the size of a 10p I suppose but mine is in a really funny place near my armpit.  I have no idea why it was put up there and I have never been given an answer to that question or maybe I didnt ask it!.  My friend had one in her nipple area and her nipple stayed blue for ages

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Re: February starters 2019 - yes, we rule!

Daisy don’t worry I have now had two cups of tea 😂

 

My wee stopped being blue at the weekend so it should all be flushed out. I’ll have more to drink with my dinner. I’m a bit curious to take these dressings off as where I thought I had my blue splodge around the bottom of my nipple has gone yellow now so it’s a bruise. There isn’t that much covered up so if I have a splodge it’s strategically placed! I thought it would be a large area, do you guys have one and if so how big?

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Re: February starters 2019 - yes, we rule!

Glad it went ok Sonia.  I have had to buy some round neck tops as I dont possess any as they dont suit me.  Find them really annoying round my neck but needs must!  I have my planning appt on Friday and then I start on 24th.  I only have 3 my first week too.  We are getting there!  

Rosina is that cleansing milk for use during radiotherapy or just generally.  Looks nice

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Re: February starters 2019 - yes, we rule!

Thanks MBJ xx yes I have exercises I can do the first set easily, second set say start when drains out - I have no drains so I thought I’d start them after a week so tomorrow or Thursday. I’m just fed up being stuck here can’t drive haven’t any work to do. Even when I was off sick for chemo I got up and dressed every day but that’s two days I haven’t now. I will make an effort to go get my order tomorrow I can’t sit here for three days in a row!

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Re: February starters 2019 - yes, we rule!

Edinbird I am going to nag you!  One cup of tea is definitely not good enough!  You need to get rid of the anaesthetic and get everything moving round your body.  You need to drink at least 2-3 pints or water per day and I was told to drink 5-6 pints during chemo.  

I have at last managed a decent walk today and done a bit of pruning in the garden.  It is 4 weeks since my chemo so maybe that is the magic number.

Nettie so much love and luck for tomorrow.  It's the last one, yayyyyyy!  I really hope you stay fit and well for this one.  I nearly didnt have my last one.  When I went in to see the doc he said to me that he had heard that I didnt want any more, and I really didnt but I said I would never forgive myself if something happened and I hadnt gone through with it so he prescribed so much stuff for me to take and it really really helped with the side effects.  Is there anything they can give you to try and make it a bit easier?

Maryln glad to hear that you are doing ok on the hormones with no nasty side effects. Long may it continue!

Susie hope you have been drained and that your scan went ok.

Hope the rads girls are going ok.  How did your first one go Sonia?  Good luck with your op Deano x

Love to everyone else xx

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Re: February starters 2019 - yes, we rule!

Well first radiotherapy done, 

I got told off, I had a small v neck t-shirt on and was told that probably best to wear round neck tops as the v can slip, great I have very little clothing that fits at this time, looks like I will have to source so cheap t shirts now I’m on half pay 😞

only have 3 sessions this week, none of Friday for some reason. I hadn’t realised that the treatment continues on the skin 2 weeks after radiotherapy stops, bang goes enjoying any of our caravan holiday, no swimming for me,

hope everyone is well, 

Susie glad you got sorted today, and Edinbird glad you had conformation too, Rosina that looks like something worth trying xx 

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Re: February starters 2019 - yes, we rule!

This stuff is fabulousThis stuff is fabulous

I bought another bottle today from Boots. My mum had been using it so I tried what she left behind.

Smells lovely, soothing and less than £4 for a bottle 🤗

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Re: February starters 2019 - yes, we rule!

Hi Edinbird

I really hope you feel better soon and your energy levels improve. Yes keep that arm moving. Have they given you exercises to do? 

Susie B good luck with your scan you have had quite a day. 

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Re: February starters 2019 - yes, we rule!

Hope your scan went ok Susie you’re the same as me with the water! I’ve been useless again. One cup of tea today... I know not good enough. Got up for a few hours then back to bed. Was tired but I started watching Four In A Bed and then you have to watch all five so I have just sat here. Feeling fed up. Starting to get a stiff and pulling upper arm but I have full movement in it. Keep stretching it out beside me to try to improve things.

 

I am sleeping better but still very hot so not sleeping through. Had to have the fan on since it was going to rain overnight. Had a few warm moments in bed this afternoon too. Hoping this will pass at some point!

 

Called the nurse this afternoon to ask about the dressings. Felt a bit niffy even though I showered yesterday so thought I must ask now! They said I should keep them on and keep patching up the underarm one for 10-14 days then I can remove them and replace (since we have a good dressing supply at home). The ones we have aren’t waterproof but there are enough to get me through until the surgeon appointment. So we don’t need to stress about them any longer!

 

Maybe tomorrow I’ll watch a film. I ordered something from Amazon and deliberately had it taken to the locker at Morrisons so I have to walk and get it. Hoping the rain stops for long enough.

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Re: February starters 2019 - yes, we rule!

At the hospital. Tennis ball gone🥎😊. CT scan next☹☹☹.

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Re: February starters 2019 - yes, we rule!

Hi (again), some photos of my hair from May and today. I think you'll notice that my fringe is a lot thinner now and it's acquired a kink! My wig is very similar to my usual style and colour - from a bottle - but I think it wll be many months before my hair looks anything like it☹☹. As for the poppy I'll have to ask my chief gardener, aka my husband.

 

Deano, all the best for you tomorrow. I'll be thinking of you. ❤❤❤

 

Marlyn, a week in London!? We're usually exhausted after 3 or 4 days😴😴😴😴

 

 

29th May 201929th May 201929th May 201929th May 20199th June 20199th June 2019My future! Wig has to do for now.My future! Wig has to do for now.Poppy but can't recall it's namePoppy but can't recall it's name

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Re: February starters 2019 - yes, we rule!

Nettienoo,

 

your spot on ( see what I did there) I didn't even think to look through the Kate maciver stuff, I do like my serum ...I didn't know they did a spotty one! Defo ordering me some of that...

 

Rosina and implausible....your bionic! My energy levels are depleted, just going to Tesco leaves me worn out, and taking the dog out....well...I keep having to stop every 10 mins or so....I often wonder if I will be ever back to how I was.....we've booked a week in London in December......surely I'll be more able by then?? Won't I??

 

edinbird...how's you Hun? Sleeping? I'm still in the silly sleep club....how are you healing?

susie...got it all crossed for your onco appointment...whenever that may be...xx

 

to all those on rads...hope it's going as well as can be....

 

now on day 6 of anastrozole......so far so good.....but there again maybe it hasn't kicked in yet? Xxxxx

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Re: February starters 2019 - yes, we rule!

Morning everyone 

 

MJB, sorry to hear that you appear to having yet more problems. Hopefully, with exercise you'll be able to keep lymphodeama at bay. As far as a sleeve goes I wouldn't want to wear one either, especially in warm weather. That said, there are at least 4 women in my husband's office (MOD) that wear sleeves, quite a sobering thought that so many in his office have had bc. Infact another work colleague approached him the other day as his wife was recently diagnosed. She's had surgery and just started chemo    

 

As for me I have a wonderful day ahead, I wish. A cancer support worker who works alongside the Breast Care Team is phoning me at 11:30 as a follow up after surgery. Infact they contact you after things such as chemo, diagnosis, etc.  You have the opportunity to discuss anything with them. Do any of your hospitals have this kind of service in place? For me it's not really required at the moment as I see the bc nurses every week for PICC care, my bc nurse for draining my ANC site, who I'm actually seeing later, and of course there's all the wonderful support and help from you lovely ladies☺☺☺. Anyway,  as you've probably guessed I've got an appointment at 2:30 to get my tennis ball drained then I've got my CT scan at 3:20. Somewhere along the line I've got to get a litre of water down me an hour before my scan. That'll be interesting. At least I can go to the loo as it's only for hydration and not to have a full bladder.   

 

That's about it for now. As there's been talk recently about hair growth, or not, I'll try and post some photos in a while. xxxx  

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Re: February starters 2019 - yes, we rule!

Morning MBJ, 

re. A very simple arm exercise. Squeeze your hands to make fists and then bend your arms up in towards your chest ( imagine you are holding weights if it helps ). I do this whenever my arm feels odd / heavy and I find it helps. I understand the action squeezes lymph back in an upwards direction.

Nettinoo so sorry you are feeling poorly. At the LGFB that I attended there were 2 (non - identical) twin sisters both with bowel cancer and they had responded to chemotherapy treatment completely differently. 

Sonia28, you must be very proud of your daughter. I hope you feel better soon also.

Ocean 21 how are you. You are VERY quiet. I hope you are OK 🌼

Yesterday , I also started watching ‘Burton and Taylor’ on bbc iplayer. I like Helena Bonham Carter and she is ‘Taylor’ in the film.

Good if you need a distraction Edinbird.

Also sales, Jigsaw is doing 70 % off and there are lots of beautiful bargains to be had. I was looking at their sandals and mules. Don’t need anything though , my hair for Xmas ( plus eyebrows and eyelashes) would be fab though 😂

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Re: February starters 2019 - yes, we rule!

You're welcome Nettienoo.