Sorry it made me smile when you mentioned your hubby's name😊. You kept they very quiet when talking about 'Barry' this and 'Barrying' that. As for the PICC line a normal shower is what I am yearning for🚿. Perhaps I'll pencil in the 20th Sept✏📅.
Well done Sonia for completing your rads. Another one ticked! I only have 15 to go. I will continue to drive myself unless I dont feel able. Im ok until they run late and not getting back till 8.30/9 is a bit of a pain but going in the evening means I can park right outside the unit so its a bit of a catch 22. Yesterday I bought another hat, an enormous sombrero type thing but it does the job, also bought a flimsy scarf but not needed at the moment as the beach isnt calling me!
Sarah your grandson is so cute. Congratulations on becoming a nanna x Thinking about your rads you were also going to work straight after so no wonder you were tired. Leaving the house at 8 would be nigh on impossible for me at the moment. Im picking up my Anastrazole today. Think I will start taking it and hope I dont get any side effects.
Last night I had a male radiographer and he drew on me with red pen and when I got home I thought I was bleeding! Will ask them not to do that again. Didnt really warm to him either. Hope I dont have him again.
Hope you are recovering well Edinbird and that everyone else is ok.
Love to all xx
Sonia I think it is so funny that your hub is actually called Barry! Hope he doesn't kind us using his name as a swear word 😄
Well done on getting to the end of rads, don't let that family of yours run you ragged!
well as rads is finished I now feel like a taxi for my 14 year old 😂 We were at the beach yesterday and today I get to take 5 of the lovely creatures up to the caravan for the day as need the gas check done.
Ive been keeping up with you all, just shattered when I finally sit down to reply.
MJB, I love your pink hair, I’m very tempted to go the same way to cover my grey.
sarah, congratulations on becoming and grandmama, even if he’s not blood related 10 years is a long time, and I’m sure you will make the most of it if your boys don’t budge on the idea of being parents. Congratulations to your son for passing his theory, Leah took 3 attempts, fingers crossed she won’t take that many for her practical as it cost too much.
Daisy, I drove myself to all my radiotherapy appointments, I did use my seat belt cushion being blasted in the right side sometimes rubbed on seat belt when I left. I found my earlier appointments better, just tiring getting up and back each day.
Susie, I bet you can’t wait to get your PICC
(Klingon) out, they took mine out on the day of my last chemo. As we know they are great, but can be a pain. It was lovely to shower all of my arm again. The Northern lights trip sounds lovely.
Rosina, glad you and hubby are all sorted again, and The bathroom gets finished. Barry always like to start the big projects but never do the finishing bits.
Trixielady, so jealous that you are off on holiday, my 2 weeks at the caravan aren’t going to be quite the same especially now the weathers changing. Although trying to stay out the sun will be easier at home, have a lovely relaxing time, your deserve it.
Edinbird, hope you are well, and remembering to
put yourself first.
SeasideSar, you must be coming to the end of your rads now, as I know you were having blast sessions extra to me. Hope your not too tired.
Marilyn, hows the garden works coming along? what lovely grounds you have,
well ladies best get my butt in gear, and get ready for the day.
hope you all have a good one xxx
Thanks for all the granny congrats 🙂 it doesn't feel overly earned as I've only been with Jay for 10 years and Kier is in his mid 20s so I never knew him growing up, and Jay and I aren't married or living together or anything. So I'm not really a fully fledged relative. But young Oskar may well be the closest thing to a proper grandchild I'll ever get as my 3 boys are adamant they never want children. So I'm taking it! 😄
Marlyn thanks for calling me a funky chick 😄 and talking of funky.....
Dr James!!!!! That new extra strong pink!!!! Wow!!!! Rare to get colour that bright on non bleached hair, it looks fabulous!!!! Please let me know how well it lasts.
You look positively radiant in that photo 💜
Ta for the implant info, I'll pass it on
Rosina, glad you've got an apology from your hub. Hope his conciliatory mood lasts. I like the kindness motto. Good words to live by.
Soup sounds lovely.
Susie I hear you with counting down the days till your PICC line is gone. I'm the same with my port. Especially since it stopped working properly 3 cycles in anyway and I had to have all my blood tests the old fashioned way. They are finally removing it in a couple of weeks (Aug 19th) and I can't wait to see the back of it.
Your son shouldn't feel bad about the 3 attempts at the theory test, my younger stepson took 8 goes before he passed, and Connor has a pal who has so far taken it 16 times and still hasn't passed it! It isn't easy! How Connor managed to pass it first time I don't know, must have bribed someone 🙂
I don't blame you not particularly wanting to head to a crowded christmas market, not really my cup of tea either. The northern lights sounds much better. And absolutely this trip should be your choice.
Trixielady I'm not remotely brave, I'm just used to travelling alone, to be honest I prefer it! I can do exactly what I want to do and not worry about other people getting fed up or bored or wanting to do something different. This will be my 4th trip to New York and 2 of the previous 3 were solo too. I used to travel abroad a lot for business, so I guess that's where I got a taste for it.
Great to hear that you have a holiday lined up yourself in a few weeks. I think we all need a change of scenery once in a while.
Implausible congratulations to you and your partner on the birth of your grandson so pleased all is well, great news about New York but sounds way to scary for me not that brave although I used to travel backwards and forwards to France but was always met by my friend haha xx
We're finally getting to go on holiday to Majorca (Cal Bona) end of August so fingers crossed all stays well xx
I had PICC care again today, fully intend to work out how much longer Klingon will be with me for. I mustn't complain really since it does save all the problems when having bloods taken and chemo put in.
Welcome to baby Oska, Implausible. He looks georgeous and how thoughtful of his Dad not wanting to know if it was a boy or girl until his partner knew. Glad to know both baby and mother are doing well. Congratulations on your son passing his theory driving test at the first attempt. My son took 3 tries☹. He did better on the practical. Good for you too for getting your trip to New York arranged. After all that we've been through I think each and everyone of us deserves a special treat. Funny you reminded Rosina that Norwich was her special trip. I had to do a similar thing with hubby last night. He suggested taking me to Iceland to see the Northern Lights (It's on my to do list. We've been 3 times but that was during the spring and summer months) even though he's not quite so keen on the country as he hates the food and spent several very cold January's and Februarys in Norway on excercise. He was rather hoping I would suggest going to one of the Xmas markets in Europe when rads were finished. I've never been bothered although I love going to London for the Xmas markets there. Plus I don't think I'd be fit enough in December as I don't expect rads to finish until mid to late November. I had to point out that the trip was for me, not him. Maybe next year but not including 5th Dec as that's my birthday. Shouldn't be too hard on him to be fair as I know he will do anything for me😚☺. As for trials it may be that Swindon isn't taking part in any, or if they are you may not have fit the criteria. You can check what trials are being carried out and where on the Cancer Research UK website. Well done on the weight loss too☺.
MBJ, I'm definitely getting that deeper shade of pink hair colour☺. I love it.. It really suits you too.
Rosina, I looked at the Wandering Wild weekend. It seems just the sort of thing that would attract you. Like Implausible though I would have to stay in a hotel overnight. Did all that camping lark when I was in the Guides and Rangers. We're overrun with courgettes and hubby is the only one who eats them. The recipe looks interesting🥒🥒🍜.
Lovely baby photos Implausible and congratulations.
H1 and I are back on track. I have received a sincere apology plus he has got a code of conduct stuck to our notice board ‘Be kind, feel kind and do kind’ which he wrote and we both use as a reminder.
I got called an ‘eyebrow less monkey ‘ on Sunday ‘ which as the Macmillan lady said was at best insensitive and at worst extremely rude and tantamount to verbal abuse . It doesn’t matter what I say back to him he finds this kind of thing funny ( sometimes I do find some of the rubbish things he relays funny : like the news story about the bust up on a P&O cruise ship because somebody dressed up as a clown 🤪 but on Sunday he was telling me about another news story which I didn’t find funny ( about an idiot Greek Orthodox priest and the shocking comments he made at a Primary school) at all , so by the end of the walk I wasn’t talking to him much.
He is currently redecorating the bathroom ( If he can do the job he refuses to hire someone else to do it),
my soup got complimented too.
Courgette, Feta and Mint.
We have courgettes galore coming in from the allotment;
I used 3 cloves of garlic, no cream and 200 ml of stock.
Hope to do WOMAD at some point.
Ditto Norwich , but my way 🤗
My implant is a good match to my natural breast when in a bra (braless is another story). It is still very firm and feels heavy sometimes, I was told to massage it every day in a figure of eight movement. I do think there is some swelling still there and also in my breast tail under my arm. I am going to lymphodema clinic on Monday so I am going to ask about it there.
I have also had my appointment for cardiology for Tuesday morning. Gosh my social life is fab!!!
I did not think my hair was bright enough so bought a deeper shade of pink. Well it's DEFINITELY bright enough now 😱😱😱
I love your posts implausible! Congrats on becoming a grandmother ( lol.sounds so old for a funky chic like you) oskar is a super name too xx
I've had a super busy couple of days (so much for my relaxing, recuperative fortnight off work!) but no big plans for this morning so I'm taking the opportunity to have a bit of a lie in and catch up with my gals.
Big news first.... I'm kind of sort of almost a grandma!!!! My other half has a son who is technically not his biological son but he raised him from the age of 2 so Kieran sees him as dad. And he had a baby yesterday! Well, his girlfriend did 🙂
All a bit unexpectedly quick as she wasn't due for another few weeks but she couldn't feel the baby moving and was understandably worried, went in for a check up yesterday morning, and there was a problem so they gave mum a general anaesthetic and gave her an emergency c-section.
Happy to report all well and good now, baby is doing well, he is moving out of the special care baby unit today and hopefully they will all be home soon.
They brought baby through to meet dad when mum was still out cold, and Kieran was adamant that he mustn't find out the gender of the baby before his girlfriend did, so the nurses swaddled the baby tight and he had to promise not to peek 🙂 He was so convinced they were having a girl that in that first cuddle he assumed he was hugging his daughter 🙂
I get to see him at the weekend, in the meantime, meet Oskar 🙂 :
Now catch up time, so much has been happening in here!
Rosina.... that Wandering Wild weekend looks great. I do admire your willingness to camp! I'd do the walking bit (once my legs have recovered) but I would want to be airlifted each night to a nice hotel with a comfy bed and good shower 😄 I used to camp a lot as a youngster, at festivals and for short holidays, but I have become more of a creature of comfort in my old age.
My middle son used to be really into the old wild hiking stuff, camping for ages in the more deserted terrain like Dartmoor and Northumberland. He used to occasionally catch a rabbit to eat and get all his water from streams. All very Bear Grylls. Although he did also partially live off Mars bars, he would always pack a ton of them 🙂 I always worried about him out in the wild on his own but he always survived somehow.
He still enjoys a good rambling trip with his girlfriend but I don't think she is quite so into the survivalist stuff...
As for your trip to Norwich after rads, surely if it is *your* celebration trip, for once this doesn't get to be up for debate, you should be able to choose what you do and where you stay? Tell your man to pipe down!!! (And this is perhaps why I've never managed the marriage thing 😄 )
I booked my own celebration trip this week (I'm heading over to New York for a week in October just before my op), and not only am I going on my own and leaving my fella at home, but I'm going to miss his 50th birthday as I'll be flying home that day and not landing till the next morning because of the time difference. I really am the worst girlfriend in existence!! Although he assures me he doesn't mind, and he was the one who was most encouraging me to go.
(Maybe he has a side chick lined up to celebrate his birthday with so he needed me out of the way 😄 )
Nettie your son must be doing well, house prices in Bristol are eye wateringly high! I plan to move there myself once my remaining kids have flown the nest as I won't exactly still need this big house just for little old me. But I'll barely be able to get a 2 bed flat in Bristol for the same price as I can sell my big 4 bed detached house in Swindon... whereabouts in the city is he buying?
If you want me to make you up a little map of where the best street art is, just ask. It's not always in the most obvious places.
MBJ I just googled Craig Y Nos castle, it looks lovely. Looks like you can stay there too. Fancy!
And there is no such thing as a stupid question as far as I'm concerned, ask away! Yes the paintings are sprayed directly onto the building walls, and yes it is permanent. Modern spray paint will stay looking fresh for years and years, it doesn't fade like it used to.
These particular paintings (from my previous post) are predominantly on "invitation only" walls. Not ones that are open for anyone to paint on. So these should and probably will stay up and unmolested until next year's Upfest festival when new nominated artists will overpaint them with something new.
On public walls, where anybody can paint freely, a design is lucky to last a week! There is an unspoken rule in graffiti that you only overpaint someone's work if you can do something at least as good if not better. It is considered very disrespectful to paint something of lesser quality over the top. There is a whole etiquette thing 🙂
That's why I don't paint in public very often, I'm not good enough!
Edinbird, have been chatting to you offline about the problem with your friend, but didn't want to ignore it on here in case the other ladies thought I was being insensitive! But yes you know my thoughts and they are roughly in line with everyone else's, I really do admire how much effort you have put into the friendship and trying to help him become a more grounded person, but right now there is not much you can do for him and you really do need to put yourself first right now. The justice system will do its thing and hopefully for your sake and his there will be a positive outcome. Until then, put some of that effort into your own self care , you need it and deserve it x Time to lean a bit more on your family and other friends (like us! We are all here for you!)
Trixielady really glad that you are feeling a little better and able to get out and about. The "forbidden garden" sounds good, hope you didn't get caught in the act!! 😄
All this talk of zoledronic acid reminds me I have to make a big scary dentist appointment 😞 I have always been terrified of the dentist and subsequently my teeth are not in the best shape. Before I can commence the Z A stuff I have to have 2 to 4 (he hasn't decided yet) dead teeth removed at the back of my mouth. Not looking forward to that at all! Onco said I should get it sorted once recovered from chemo and rads, so I guess that is about now. But selfishly I just want a month without any medical intervention after so much of it throughout the rest of this year, so I just can't quite face making the call!
Must do it this week. Must be a big brave girl.
Also interesting reading about all the trials. None of my docs have ever mentioned any trials to me.... so I assume I'm not doing any (I figure I'd know??)
Sonia, glad to hear that your rads are going well so far bar the tiredness. Have fun at your caravan!
Daisydi, really sorry they are messing you around so much with your rads! And leaving you stuck in uncomfortable positions for so long 😞
To answer your qu about whether i could have driven myself, I reckon I probably could have managed for the first fortnight, as my tiredness didn't really kick in hard until weeks 3 and 4. Although that said I remember being really wiped by the Friday even in the first 2 weeks, and overjoyed that it was nearly the weekend. Part of that was down to having to get up so early (they picked me up at 8ish every morning, sometimes earlier, and I'm really not a morning person!), so I think if I was driving myself I probably would have asked to move to slightly later appts.
Sorry to hear it is making you tearful 😞 exhaustion really is the pits 😞
Trixielady I finished my rads last Friday, and all in all they went well. I seem to have (so far, they can still build and occur in the 2 weeks post treatment) got away with very minimal side effects and I didn't find the whole process too gruelling (other than the early mornings already mentioned). As the others have said, it is a little relentless heading to hospital every day for a month, but I found that the time zoomed by and it was soon over.
MBJ so sorry to hear what your mother in law went through at her advanced age 😞 Honestly if I get cancer again at 93 and a doctor comes at me with anything but morphine I shall hit him over the head with my walking stick! Why do they put someone through such gruelling treatment at the end of their life, instead of just making them comfortable, it makes no sense 😞
My dad was going through similar when he was 92. He had lung cancer right at the end and they were making him have CT scans which terrified him and taking blood and giving him infusions and generally making him miserable and one doc started talking about chemo! Can you imagine 😞 luckily a different, far more compassionate doc took over and agreed to give only gentle palliative care.
They still wouldn't let him out of the hospital though so he spent his last few months on a loud, discordant ward which was definitely not what he would have wanted 😞 at least he was sufficiently drugged up he had little idea what was going on 😕 so sad.
As for your implant, how long have you had it now? Can't remember when you had your op. I went for a nice walk on Monday with my chemo buddy t'other Sarah, she had her mastectomy and implant a fortnight ago now. They've done a great job visually matching to her other boob but the implant is super hard and firm and unnatural feeling. They have told her it will soften up over time and become more naturalistic and comfortable. Has that happened in your case? She was wondering how long it takes if so...
Rosina, sounds like you had a good old emotional vent the other day to the radiologists and macmillan nurse. It is so good to let it all out, I hope you feel better for it?
(On a side note I haven't cried for months, not even in my counselling sessions last month, only time I can think of was when I saw the Apollo 11 documentary in Glasgow! But that was more a happy cry at the magnificence of space travel 🙂 I must be well overdue for a good weep!!!)
(And I LOVE rollercoasters :D)
As for couples counselling. If there exists a man on earth who would enthusiastically agree to that under any circumstances, I'm yet to meet him. I think you would need to trick him into going, somehow, like when you tell a kid they are going to Disneyland but don't mention it is via the dentist's.... in all seriousness, if it is required, then I hope you can eventually persuade him.
MBJ!!! I adore your hairrrrrr!!!!! But that will come as no surprise 😄 😄 😄 that shade of subtle pink suits you SO much!!!!
And good job granddaughter with the vaseline at the hairline 🙂
Sounds like you have a great weekend coming up with all those parties, enjoy!!
Susie I'm glad you have gotten through your side effects for this round of the CT, it will be easier next time as you will know what to expect and roughly when it will hit and when it will subside again. That helps a lot.
As for editing photos to crop them and resize them for uploading, I use a free app called picsaypro. It is fab, you can also enhance the pics and add effects and captions etc if you feel so inclined.
A trip to see the northern lights at Iceland-the-country-not-the-shop sounds amazing! Lucky you!
Thanks for the reminder re travel insurance. Before I go to New York I had better phone mine and see how much extra they want from me to cover any potential complications while I am away from my "pre existing condition" (not that hopefully there should be any).
I also love lazy rivers 🙂
Re "normal bras", I haven't worn one since January! I've only worn my post surgery bras since, in fact I chucked out all my old bras so I have no choice! As I am DD on the left and C on the right until end October when the surgeon is going to even me up, I can't really find a normal bra to fit, so it is post surgery bra time for a few more months yet, and then I will go on a big underwear buying spree in November! 😄
Hopefully I'll have lost some more weight by then too so I'll actually look half decent in them too! 😄
Oh that's a point - I've now lost 13lb since I finished chemo. Nearly a stone down. Go me!!! 1 stone 9lb to go to get back to my previous weight.
I start back at the gym tomorrow (I will be in that pool first thing in the morning!!!), so that will help.
Daidydi, really glad to hear that yesterday's rads sesh was a lot easier. Here's hoping they carry on like that.
Ocean, glad to hear you are surviving the heat over there on the mainland. I was thinking if you last week when it got really hot here as I know it is even more so there!
Also good that they are finally pulling their finger out with your rads. The first session can be a bit of a faff but hopefully after that you will settle into a rhythm with it, and before you know it it will all be over. Definitely use that free taxi.
My sis just got home from this year's WOMAD, she said it was great as ever. It would be great if you and Rosina go next year. I would pop down for the day to see you both (if they do day tickets?) as it is not far from where I live. Don't know that I'd fancy the whole weekend though....
Ooooh we just passed 6000 posts!!!!
Oh one more bit of news from me, my youngest passed his driving theory test yesterday, first attempt too, so he is delighted with that. He will be driving before I know it! (Which will be handy as it means I won't have to be his taxi any more 🙂 )
Right, I think I had better get out of bed 🙂
I started a HUGE sort out of my arts and crafts supplies yesterday as I have a ton of stuff I know I'll never use and my craft corner looks like a particularly untidy branch of Hobbycraft 🙂 Going to sell some bits and give a lot away, and then hopefully have more space to actually use the bits I keep. That's the plan.
But it is going to be one of those jobs, I can already tell, where you get 2 days in and you are sat on the floor surrounded with mountains of cr*p and you wish you had never started 😄
Going back in , wish me luck! If you never hear from me again, I was probably crushed under a falling pile of patterned papers and beads....
Catch everyone later, love to all
Daisydi glad to hear rads went much better yesterday and your scan is getting arranged hopefully they'll also change some of your late appointments fingers crossed for you xx
Ocean21,pleased your rads are in hand at least getting a taxi will take the stress of parking away and driving there and back away. I really love the photos beautiful colours. It will be lovely for you to have your son and grandson stay (unfortunately I have no grandchildren yet) xx
Sonia28, Nettienoo, Marlyn, Sar, Implausible, SusieB, MBJ, Edinbird, Rosina, think about you all the time ladies, never heard from Stargazer1 and Sandra lately hope all is well xx Lovely support still from the other forum xx
Beautiful photos of flowers as always Ocean21🌺🌻🌼🌼☺. Glad they've sorted out the rads for you. Onwards and upwards as they say. Take care, Susie B xx.
Hey lovely ones,
The fierce hot weather we had a few days ago has cooled down a bit and we’ve actually had some rain. Don’t think we’ll get through summer without a ban of some kind.
The sunflowers in the fields are are completely frazzled already and they’re really tough plants.
Sarah, well done on finishing your rads. Great news about your skin too. I’m hoping my will cope with it. Hoping also that I miss the fatigue too.My first session is on Thursday morning. My son and grandchildren arrive on the 10th for 2 weeks so I really don’t want to be knackered while they’re here.
You post some fab photos of the art that you see. The scale detail of artwork is stunning.
MBJ , your landscaping is really taking shape. I’m sure it’s going to look beautiful when it’s done. Shame about the tarmac,but, it’ll last a good while and by the time you’ve driven over it a few times the hardness of the colour will get knocked back a bit. Id love to get our drive sorted but it’d cost a small fortune so I’ll leave that for my lottery win:) That blush pink on you hair looks lovely, great contrast with your eye colour.I hope that you keep doing it.
Edinbird, sorry to hear about your bestie but as others have mentioned focus on yourself now. Doesn’t mean that you care any less for him but you do seem to pour a lot of energy into him. Time to use some of that on yourself.
Daisydi, your travels for your rads sound draining. Not surprised that your energy stores are in your boots. The radiologist gave me a form that allows me to get a taxi to take me to me session and bring me back. Its about a 45 minute drive from our house to the department. It’s covered by my healthcare so It’ll be interesting to see how it works.
Susieb , cardboard dinners . I remember them! My tastebud were completely knocked out during chemo. They’re much better since finishing thank goodness. Funnily enough like you , I found any meaty fleshy food tasted horrid.
Rosina, if we lived closer to each other I’d join you on your walks and trips. Definitely be up for going to WOMAD by the way. Went years ago with my eldest when he was a baby , he’s now 32
After chasing the radiotherapy dept and getting nowhere, I contacted the nurse coordinator in the oncology dept to see if she could find out what was going on. I should have started having rads this this week and all the secretaries kept telling me was that my file wasn’t ready.
The oncology nurse said that the truth is the radiotherapy dept is well behind with appointments. She had a meeting with them on Friday obvs you can’t have oncology patients waiting until whenever radiotherapy get their act together. She rang me early Friday evening and said radiotherapy would ring at the end of this week to give me a start date next week .
As I was worried about not starting a month after chemo like I’d been told she’d checked with the oncologists and they said it’s fine to wait up to weeks before starting rads. Naturally, I relaxed then out if the blue late this morning I get a phone call ‘ can you come in today to start to have your first session?’ Honest to goodness,how ridiculous is that. The oncology nurse did warn me that they sometimes they ring one day for you to start treatment the next. I didn’t even get that !
I couldn’t go today as I’d made appointments with a builder and heating engineer to come to the house . Other half doesn’t speak French so I had to be here. Anyway , Thursday it is. I’m a bit anxious, I guess it’s a new thing and I just have to get into the routine of it.
Right , bed time. Some photos for you.
Im done and home. Much better tonight. quickest its been for treatment so I feel much better now. Still want to try and change some of the late ones though. Spoke to breast care team today and they are sorting my DEXA scan and said I should really start on the Anastrazole so will get prescription tomorrow hopefully. Much go and cream up now. Thanks for all your support and MJB your hair does look fab xxx
Rocking the new look MBJ,
thanks for the hugs SusieB.
I asked H1 again about the 3rd ingredient for acidifying soil and he said ‘peat’ . The wood clippings are very important though. Off to walk, feed the ducks and eat some blueberries. A friend came round this afternoon and H1 made sure she was fed and watered, as I said practical. I do appreciate this.
Re. the hiking in Dartmoor it is a guided group of 6 of us.
Sorry I forgot to say you can crop your photos on your phone if you go into edit mode, mine then save in edited photos in my file. I have to do this every time I post one.
Firstly thanks for liking my hair. Susie B the colour I used washes out and has no bleach in it so hopefully won't harm my new hair. Will be a while before I use anything more harsh if ever to be honest. As for the bras I think you might find that you will need to wear a good support if you have had your lymph nodes cleared as I find that's where I get most of the swelling and discomfort on my bra line under my arm, the firmer bra seems to keep it in control a bit more. But of course this might also be due to me having an implant.
Hope you are all having a reasonable day. I am off out in a bit to take Isabel (granddaughter) to have her nails done, we are all off to an engagement party on Friday and my sister is having a big party on Saturday for her Pearl anniversary, retirement and birthday WAW.
Firstly quick post surgery/chemo update. My swelling from surgery has definitely reduced since I can now wear my normal size 34c post surgery bra without an extender☺ and my size 36 ones are are at the smallest they can go. Just wondering when I can wear my normal bras again🤔. As for any lasting chemo effects, food still doesn't taste quite normal but otherwise everything else seems to have settled down☺ until the next round☹. I went out for a walk around our village yesterday and took some photos on my phone. Unfortunately I can't post them as they are too big - I forgot to reduce the number of pixels - so I'll try again when the weather improves. Didn't feel as tired following my walk as I did 11 days after FEC. Hubby has suggested taking me to Iceland, the country not the shop Implausible😅😅, when all this is over with the aim of seeing the Nothern Lights. I've today been looking at the website of the company we've used in the past and ordered a brochure for inspiration. Talking of holidays I've also taken out a new multi trip policy. Our current one expires next month. I used one of the brokers recommended by Macmillan. They came up with fairly reasonable quotes and the questions asked online weren't too bad so it wasn't quite as traumatic as I was expecting. That's enough about me. Onto the posts.
Daisydi sending you ❤❤❤❤❤ as you sound as though you could do with a few. All that travelling, having rads and getting home late is bound to reduce you, and let's face it, any one of us to tears. I know I was feeling guilty about my hubby driving me when it comes to my rad sessions but as I hear how tiring it can be I'm not so bad now.
Love the hair colour MBJ. Might try that before I commit to something a little more permanent in pink once all this nonsense is over and I can start to colour my hair again, which won't be for ages yet😭😭.
Rosina, hugs coming your way too❤❤❤❤❤. This Barrying bc seems to catch us out emotionally when we least expect it. Wise advice from the nurses about doing the things you enjoy. As for couples counselling I don't think many men would contemplate it. I think it's in our nature to talk about anything and everything but men don't seem to be so open. From what I glean from what my hubby tells me there are 3 of them whose wives have been diagnosed with bc, one recently diagnosed and the one who passed away last year (not bc related) and me. They will ask after the wives but not ask each other directly how they're (the men) coping. Men, in general, just don't seem to talk about personal stuff. Glad your Tamoxifen meds have been sorted.
Hope all of you out there having a rough time at the moment see some improvement soon. Think of each and everyone of you in this Feb group all the time. We will get off this rollercoaster eventually and enjoy a ride on the Lazy River. xxxxxxx
We used L'ORÉAL Colo Rista this is light pink lasts a few washed but just bought medium wear now as it looks brighter. But I did not need all the tube as not enough locks yet. Easy to do just squeeze the tube and rub it in. Isabel knew to put vaseline on my forehead and around my neck though. 15 year olds know all the beauty tricks.😃
This is aimed mainly at you but girls I hope it cheers you up. My granddaughter gave me a colour makeover yesterday. It's lighter than we thought but I like it!
totally empathize with you on the crying.
I am on rad #6 (today) yesterday when the radiologists (lovely girls) asked me how I was I welled up and told them my life history !!! They were excellent, didn't leave yesterday till 1pm (more off loading at the Macmillan Cancer Centre). I didn't feel like posting as it was all too much.
Much better today , a better night's sleep - I am sleeping in our spare room, nurses checked in with me again today. I was told to do things that I enjoy, spend about 30 minutes per day on school prep and continue to prioritise myself as even though it does not look like radiotherapy has an impact on the body it does.
In my review today , I discovered that I should have started on tamoxifen 3 weeks post last chemo.
So I got my tablets today and have taken one. H1 has been warned that I could get even more emotional so he thinks its best that he does not talk to me at all 🙂
I did suggest couples counselling but he is not having any of it. He does practical.
Re. driving I have driven myself up today and yesterday. Twice last week, 1 bus, 1 with H1.
It's OK Daisydi, hang in there on the rollercoaster (I HATE rollercoasters). We are all with you.
I can imagine how relentless having radiotherapy every day is. It was a big factor for me when deciding between a lumpectomy or mastectomy as I did not need it with the mastectomy choice. When I had to make up my mind it was only 6 months since I had cared for my 93 year old mother in law who had had radiotherapy for a cancer in her neck. They kept her in hospital for eight weeks for daily treatment. At her age it was cruel, and I think she would have been better off spending her last few months at home. Which never happened. So I made a decision mainly from the heart rather than head. But whatever we choose has its sideffects. The implant is not the most comfortable thing to live with. Why anyone would have them for vanity I will never know. Hope you feel better now. Get some ready meals from M and S in for after treatment and bu..er the cooking.
Hi Trixielady, I have 17 sessions left! I am not a good passenger in a car as I get car sick so I thought I would be better driving myself if I was able to. I will go on for as long as I can manage. I am currently chasing up my DEXA scan before I start those hormone tablets.
Love to all x
Morning lovely ladies
Daisydi, I feel for you its still so emotional and obviously the rads carry side effects having a good cry really helps , is there no chance of any company to make the visits easier how many apps do you have left?? Xx go girl you can do it xx
Implausible how it going with your rads?? Xx
can totally empathise with you on the emotional front, although rads is nothing like chemo I found it unrelenting....it all just builds and builds.....in the first week I managed to drive myself twice...after that I just didn't have it in me, driving needs too much concentration and I wasn't capable.....I would sit there in a zombie state.....on the last day ( had to go in twice) I cried all the way home......
do you have anyone that can drive you? Xxx
So Ive had my 3rd rads. Left home about 5.20 and got back just before 9 and then had to cook dinner! Was on table for about 40mins again. They had trouble setting me up. Different room, different machine. They were running 40 mins late which I was told doesnt happen for the evening appts. Lets see what today brings appt is a bit earlier at 5.45, yesterday it was 6.30. I am driving myself and not sure if I will be able to continue if I get too tired. Sarah would you have been able to drive yourself every day? When I came out last night I was texting my sister to let her know I was leaving, walked into a wooden post, got to my car and then couldnt find the ticket. Thought I must have dropped it when I hit the post so went back and luckily found it on the floor. I was laughing with 2 ladies who were watching me then I burst into tears and ended up crying all the way home. Dont know what is happening to me. I am an emotional wreck!
The immunotherapy trial sounds promising Edinburd. I don't think I could have done that because I had surgery before chemo and I responded well. (I was meant to have 8 at first, but it was reduced to 6) I suppose they can't just tell us to take asprin as a matter of course yet, but as you say, you don't want to take a placebo if there's a chance of asprin making a difference xx
I have had the one infusion, I felt flu like for less than 24 hrs a fine after that. Then every 6 months for 3 years.
I have just started the aspirin trial, I was told it have to be started within 6 weeks of my radiotherapy finishing.
Well I feel the tiredness has kicked in, I’m with you Sarah with the difference between the chemo fatigue and chemo tiredness, I slept for an hour this afternoon, and yesterday haven’t done that in a long time.
Only one more to go, I’m slightly red on my scar line, but no broken skin.
I have been reading but we are up and down to the caravan so signal isn’t great, I can read as it loads but then I move the phone and not enough signal to reply 😂 kids hate it 🤪🤪
I can’t get back on the site to catch up with everyone, it keeps taking me back to our first posts.
I’ll try again later,
i did remember Sarah asking what weekend feel
like as not working, they are different as hubby is around, i still look forward to them, it’s strange being off with the kids this year.
hope your all keeping well xx
I’ve been offered the aspirin one and C-TRAK where they monitor your blood for DNA from your lump and if they find any you might be randomised into having an immunotherapy drug every three weeks by IV for a year. You need to have not had a complete response to chemo for that one unless there are samples they hold from biopsy. I won’t go onto them until I finish all the rest of my treatment so I’m not sure why it was too late for aspirin for you since it seems you start that trial after treatment? If I can do both I’m minded to do the monitoring period for aspirin and then pull out as there is a chance you’ll get the placebo and if there is any chance of aspirin helping I’d rather have it since there’s so little else for us. I know that’s not especially fair but bottom line TN is nasty and I’ve got to think of myself.
Hi Edinbird, it sounds like your dad had horrible side effects after the infusions. Personally I've found them to be ok.
No, I wasn't offered any trials. I did mention the asprin trial, but that was near the end of my treatment and my onc said it was too late to do it and she didn't suggest anything else. I don't know if that was also because of my age-I was 58 when I finished chemo. Zoldronic Acid was the only thing that was offered to me. What trials have you been offered?
I thought I was going to be monitored more, but my onc discharged me when I saw her in Dec, so now I just have the yearly mammogram and check up with the consultant.,which I've got next month xx
Re the bone stuff - my dad had infusions for osteopenia. The first one gave him flu symptoms for about 6 weeks! He only needed three infusions though and the other two were much better. No idea if he was offered tablets he never said.
Jencat are there any trials you can do? I’ve been offered two once my surgery, rads and oral chemo are finished. Seems forever away... but I’ll gladly take whatever they can give me for TN
I know Marlyn, I'd rather that they didn't give us a choice!
Assume Clodronate is the same as Zoldronic? Taking the tablets for 3 years is quite a long time. I was told I could only have Zoldronic for 3 years, but if you were told 5, I might enquire about that as I'd rather have it for longer if it's possible-I'm TN, so the Zoldronic Acid is the only thing I can have post-treatment. Someone else I know as had it-not for cancer, but a problem with her bones and she was also told only 3 years, but i can't remember why.
I suppose if you'd prefer to have the infusion, you've got nothing to lose if you can revert back to the tablets if you don't get on with them xx
the tablets are clodronate....2 tablets everyday for 3 years....the nurse told me the infusion would be every 6 months for 5 years...she said it was absolutely up to me but it would be easier to stop the tablets if they didn't agree with me....and when she said if it was her she would be opting for the tablets first...I thought...well so will I then! But I'm now having a fe think.....oh eck!
Marlyn, did the nurse say why you were going to have tablets rather than having the infusion? I'd not heard of the tablets before and wondering if there's any advantage to taking them daily rather than the 6 monthly infusion that I have xx
yes i can, the nurse wanted me to go on the tablets first saying if I couldn't get on with them I could stop immediately have a wee break then infuse....xx
I think you're right Marlyn, the tablets do sound a bit more of a palaver! I'd probably forget to take them half of the time!
The infusion itself only takes about 30mins and then a quick line flush afterwards. If you changed to the infusion, but didn't get on with it, could you change back to the tablets? xxx
Hi Susie, yes I have been reading your posts and so sorry to hear that you've got more chemo to go and surgery still to come. Thank you for your sympathy re mammogram. I've got to wait until I see my consultant on the 20th before I get the results! I must admit I am feeling a bit more anxious about it this year!
When I was told I had TN bc in June '17 I hadn't even heard of it and the two consultants I saw didn't make a big thing about it being TN. It was only my oncologist who seemed a bit more doom and gloom about the TN diagnosis.
However on a positive note, my daughter works with a lady who had TN over 6 years ago and is fine and I've friend who had it about 10 years ago, so I try to remember that when I have a wobble! xx
Am leaving in a minute for number 3. I will ask them today. Not looking forward to it. Im hot and tired ...
yes, I had one during rads....found out I was osteopenia .....said I would be getting another in the next couple of months....
i must admit...the more I ponder it the more appealing infusion sounds....I'm going to be ruled by tablet taking! Just about remember my anastrozole at 7 pm.....
im surprised you haven't had you density scan yet, you need a bench mark at least...xxx
Maryln my friend has the infusions and has no trouble with it. That is what I will opt for whenever they decide to offer it to me. By the way did you have a DEXA scan before you started on the hormones to measure bone density? I have not been offered one although they want me to start Anastrazole now which I am resisting at the minute.
Thank you jencat,
that all sounds promising, the tablet are twice a day and to be honest seem a bit of a faff..i.e. Taking on an empty stomach keeping upright for at least an hour then taking another one in the afternoon (!) imagine going away and having to factor it in? Along with the hormone inhibitors..... the thought of going in and getting it out the way is rather appealing! Xxx
Hi Jencat, thanks for getting in touch re being TN and supplying me with some extra information . Like you I haven't got the BRCA1 or 2 gene either. Don't worry I haven't googled anything since my diagnosis last December. I don't know if you've read any of my posts but it's less than 2 weeks since it was confirmed I was TN. Original biopsies couldn't confirm and my tumour was checked both here and overseas before being confirmed so it's only recently that I've looked into TN. My onco hasn't mentioned bone meds yet but I will be asking at my meeting with him next week. Zolodronic acid is what I'm minded to ask for. As I'm on the ROSCO trial I'm continuing with chemo, 4 rounds of CT, before surgery I had 4 rounds of FEC which shrunk my Gremlin but wasn't so good at destroying the cells in my lymph nodes. I had full ANC which was always on the cards along with a lumpectomy.
2nd mammogram the day before your 60th I can sympathise with you on that one. I spent my 62nd birthday last December sweating on my biopsy results that were due 2 days later.
All the Best, Susie xx
Hi Marlyn, yes of course. I wasn't offered a choice, so I don't know how the infusions compare to the tablets. The infusions have been fine and I haven't felt any side effects, apart from the last one where I did feel a bit achy afterwards. To be fair though I had it only 10 days after my Dad died, so I think I was already tired and run down before I had them, so it might not have been the infusion at all. The only downside I've found is that I have to go to the chemo unit to have them, which makes me feel a bit emotional. On the plus side, you have to have a blood test a couple of days before you have them,which could be a bit of a pain, but I find it quite reassuring to know I'm still being checked.
You do have to have regular dental check ups as it can affect your jaw, but when I had to see a consultant at the hospital about my teeth, he said that it was better to look at the bigger picture and to have the Zoldronic Acid xxx
can I ask how you're getting on with the infusions? I've opted for the tablets twice a day....but am now actually considering the infusions just to get them out the way xxx
Hi Susie B, I'm from the Oct'17 group. I'm TN and like you, don't fit any of the usual criteria for why I had that type of breast cancer. I also haven't got the BRCA1 or 2 gene. I haven't googled it because I was told the information is now out of date. My oncologist said that the risk of recurrence is higher in years 2&3 and by year 5 the risk of recurrence is the same as other bc's, but the good news is that by year 8 the risk of it recurring is low. I've got my 2nd mammogram since diagnosis next week, the day before my 60th birthday!
I'm having Zoldronic Acid infusions every 6mths for 3 years (I had 3 every other chemo and I've had 3 so far independently-I have to go back to the chemo unit for them) I don't know if your onc has mentioned them to you, but they are bone strengtheners and help to stop bc spreading to the bones. and they're for post-menopausal women x
Loads to catch up on since I was interupted mid-post by the offer of an ice cream🍦 from my hubby.
Deano, great news regarding your post surgery results. I didn't think to ask if I was cancer free but the surgeon and my bc nurse both explained that everything was out and that continuing with chemo CT and rads were both an insurance policy and part of my trial. I wouldn't have minded seeing what was responsible for making 2019 such a 💩 year but my Gremlin and nodes are currently spread around between an NHS laboratory in the UK, Prof. Bartlett's laboratory in Canada, and Edinburgh. My blood samples are held in Cambridge and Edinburgh universities. For me the overriding factor was discovering 9 nodes were positive and that I was highly likely to be triple neg which for me took the wind out of my sails so I couldn't take in that Gremlin and his family had been evicted. Totally understand your initial reaction.
Edinbird, sorry you're having such a tough time at the moment. I know you probably don't want to hear this but please, please, please start to put yourself first. There are times throughout our lives when, much as we love our friends and family we have put their issues to one side and deal with them at a later date when we are strong enough to cope. Lecture over. xx
Daisydi, I'm the same as you in that I don't want to read or know too much, so I just keep to the information within the Breast Cancer Care website. I do know the chances of recurrence during the first 5 years is higher than the other b cancers then it reduces. I also know statically my chances of being trip neg were pretty low, I'm not black, I'm not under 40 and most definitely not pre-menopausal, but that was the final conclusion. So basically even with odds in my favour it didn't help. As you say there is nothing we can do about it and just accept that we will all respond differently to our treatment plans both now and in the future.
Rosina your Biography of Cancer book sounds intriguing. Sorry things don't seem to be going to plan regarding a trip to Norwich. A break in a Boutique hotel is the kind we go for. So, are you going camping and walking by yourself?
Implausible thanks for the warning regarding off the cuff comments to medical staff about putting on weight and diet. I won't mention cheese toasties and pizza again🧀🍕🍕😃. Loving the photos of the Bristol artwork. The one of Greta is a very good likeness. My favourite has to be the girl and tiger.
Trixielady good to hear from you and that things are improving and going well for you.
Right, that's it for now. My tummy is telling me it wants food so I'm going to have some freshly picked lettuce and tomatoes with whatever is lurking in the fridge. Love to you all xxxxx