interesting posts to catch up on.
Bonkers day today at work ( both support staff absent and various kiddies had wobbles) I ate my lunch when I got home at 5 pm.
Managed but seriously considering dropping a day instead of returning full time.
Went for a good walk to just re-calibrate as it was a glorious evening.
I too keep a very open mind. I also believe in premonitions and gut feelings .
I also have had dreams about events that have come to pass in the future.
Goodnight to all,
PS I can come up to London on a Saturday or Sunday. If I get round to dropping a day I hopefully will have another option ( hopefully I can get Monday’s). Let’s see.
Just caught up with the posts since I popped in for a quick read whilst I was at the hospital. Spooky reading😨👻👽👽😱. Don't have night mares.
Have a good evening xxxxx
wow ladies I am very open minded on this subject, I love hearing all the stories.
I meant to say the other day here is how you sign up to messenger without face book.
I love that! I'm defo open minded....I've a couple of experiences I just can't explain....I have a strong sense of " being looked after" I just know someone or something has my back......doesn't stop me from worrying though!
Wow Marlyn, that is pretty amazing. I do love to hear about these kind of experiences. In a slightly different vein...... In the 1980’s when my brother had a house in South East London, I wash washing my face in his bathroom one night and was tapped on the shoulder, turned around and was on my own. Turned back round to the basin and was tapped again. Never moved so quickly as i did out of that bathroom. I only told my husband at the time until my brother a year or so later told me that he thought the bathroom may be haunted as his little girl had run out of the bathroom crying and saying someone had pulled her plait while she was brushing her teeth. Spooky eh? I keep an open mind on all these matters. X😱👻 xxx
i do believe in past lives, without sounding like a complete fruit loop I think I was in the First World war, and in another life died drowning......also when we were young we had a family holiday in France and we all felt we had been there before, my sister and mum were even able to describe things in detail .....and later have these details confirmed when visiting them....it was all very odd and surreal...
another strange story was when my sister was about 10 she was playing on her own in our front room, she suddenly ran out screaming she had seen a man with shiny black boots black trousers with a red stripe down the sides , bright red coat and a big tall fuzzy black hat.....well....fast forward to 1985 , who was wearing that outfit in the same place my sister saw him? My hubby!! He was in his welsh guards uniform.......spooky or what?!
Edinbird, it makes me cross when they say you can refer yourself and then you can't. Hope it gets sorted soon.
Made me smile hearing all the reasons for why you all got married in September. we had to get married in July as football season finished, but be back from honeymoon in time for pre season training.
Well they have given me so Naproxen for my hands, magic wand isn't helping, I phone the trial team to asked if I can continue with the Aspirin Trial, they have said I can stay on the Naproxen for 2 weeks, but did I want to try paracetamol first, err i tried that first. I've just requested what will hopefully be my last sick not for a while, I want to try and get back to work in October, hopefully my hands would have settled by then..
Marilyn, you make me smile. I love your sense of humour, and who knows who we were in our last life, my youngest sister when she was younger used to talk about things she'd seen and done, which were accurate but she had never been to those places. She did out grow it, they say young minds are more susceptible.
Netti, I hope you manage to sort something out for your mum, It must be a real worry for you.
Rosina, hope your managing to juggle the work/home life balance.
Sarah, I love seeing all the street art, I will defiantly be looking out for it in the future, its no something I ever knew existed to that degree.
Seaside, i loved your photos, you look so happy, and looking good.
Trixie, Glad you had a lovely holiday, and i see you have brought back the weather, if only delayed for a while
Well my cohort are graduating today, feeling a little sad I'm not there but also feeling like I need to get my life back in order. I need to get back on track with the dieting, and exercise. I'm away again this weekend, but I'm feeling like I need to crack on with it all now.
Hope everyone has a good weekend xx
Nettie yes I did she was very kind, advised me of some relaxation workshops they run but they’re either at 11am or 1pm which is not wonderful when my rads are at 8.30am 🙄 I might stop for the 11am one but it’s so long to sit around waiting feeling like you’re in the way and still having to think about cancer because of where you are. She also mentioned a menopause clinic but whilst she said I can self refer I looked online and seemingly you can’t... so I need to call the doctors again and ask if I can be referred. More hassle.
Not at all Marlyn, I think I lived in an Anglo Saxon settlement as a boy in a previous life. I went to a re-enactment of an Anglo Saxon once and had this very strange feeling of being somewhere very similar as a boy. Weird eh?
Edinbird, did you have a chat with someone at Maggies? I haven’t been given any info about who I should speak to if I need to. Macmillan I suppose. I’m not surprised you are feeling down. It’s such a tough time for you. I hope you are able to do something nice this weekend. Xxxx
No need to apologise edinbird, this is our safe place.....I don't think anything could shock us anymore, I expect we've all changed somewhat.
We never had children, they just didn't happen for us, I look back and think maybe that was a good thing? I'll never know now....unless I wait until I'm 74 and go to India for fertility treatment ( like that silly woman in the news last week) I have to admit that the thought of child birth scares the hell out of me...perhaps I died in child birth in a former life? Now you all really do think I'm nuts!!! Lol 😝
Well I feel positively boring and sensible compared to you lot! We bought our first house after I saved for a deposit (I was working first as Graham was doing his PhD and I didn’t pay into a pension in my first couple of jobs - funny how things work out eh) and then said right we can get married now - we had been engaged 5 years when we did. So picked later in the year as it would be less busy and after our birthdays. We have been together almost 21 years. And I’ve never been pregnant never wanted to be and never will with cancer and menopause as it stands. Unless I was not to be in the child’s life I would never dream of bringing one into this world where there is an increased risk of leaving it without a mother and it having to watch me die! Sorry that’s so morbid, I’ve never been maternal but I would have some sense of responsibility.
Sorry to lower the tone! Fed up at the moment 😔
My mum in law is a staunch catholic but thank goodness we get on like a house on fire ( strange saying)!
In fact I'm taking her to see downton abbey in a bit..
Will you be on the clondrate? I'm in a routine with it now....I asked the nurse about going away and she said it doesn't hurt to miss some days...so that's a relief...
glad to hear your doi g ok....well....as ok as you can e with what you've been going through....xxxxx
Marlyn, my husband’s mother was deeply involved in the church when we met and wanted him to marry one of the nice young ladies from the church youth section who wore sensible shoes and no make up. She wasn’t happy I was an out and out atheist who wore low cut tops, skirts with side splits and high heels. She thought I was a floozy and still does. X
Daisydi, sorry to hear you aren’t sleeping with worrying about your mum’s situation. Fingers crossed things get sorted asap for you all. Xx
Hahaha, thanks for the giggles this morning my darlings. I think we all share a similar sense of humour and one reason we get on so well.
It will be 36 years married this year. Nick was 19 and I was 24. My mother in law viewed me as some kind of female predator....we have never got on. She said it wouldn’t last. Proved her wrong didn’t we? Imp, we crossed our fingers and hoped for the best back then so I could have been pregnant well before the wedding. Sheer luck that I wasn’t. 😂.
Trixielady, I’m doing ok my darling. Thank you for thinking of me. I’m generally feeling quite well apart from aching joints, reflux problems and fatigue. Some of this probably due to settling in to daily Anastrazole. Coming up to 3 weeks o. It now so hopefully things will improve. I’m seeing Onco in about 5 weeks so will see how things are by then. I’ll probably be starting on the Sodium c....? (Can’t recall name) too then.
I’m trying to build up my stamina but find if I have a busy day, I’m exhausted by teatime and just want my bed. I normally fight it and end up flat out on the sofa in the evening snoring until my husband forces me to wake up and go to bed. I am off to Amsterdam for the weekend 2 weeks today so desperately need to find more energy from somewhere. I’m out walking as much as possible with dogs and into town and back. I think I just need a bit more patience.
How are you doing and little Trixie? I bet she missed you when you were away. My son is here looking after our two when we go away but I will probably have to FaceTime them at some point and pretend I’m checking on my son’s wellbeing. 😂😂😂😂😂😂. Xxx
I know Susie, its an awful lot. My mum worked all her life and ok she gets a decent pension but it goes straight on her care. Ive been awake all night worrying again! If it was for the long term we couldnt do it but it will make us happy to be able to spend some quality time with her.
Implausible you naughty girl!
Edinbird, loved the Doctors and Nurses joke. Had me in stitches😆😆😆😃.
Daisydi, £200 a week extra is an awful lot. I often question why this kind of care can't be brought under the NHS as it is not a life style choice but the result of illness. I'm not an advocate of tax/national insurance increases but at least the burden of the cost of care would be spread around.
Marlyn, don't forget the Christmas Markets, lights and retail therapy🛍🛍🛍🛍 whilst you're in London.
Well I've got the joys of PICC care at 12:30 today. What else would I be doing on a Friday? Perhaps I'll do a bit of clothes shopping👖👕👚👠 first after I started a clear out earlier in the week
Have a good day everybody. xxxxx
His battalion was being posted to Germany.....I simply couldn't bare to be without him. Everyone said it wouldn't last......think we proved them all wrong by now. His mum wanted him to marry a " nice Welsh girl " he got one from slough instead! I tease her about that now!
September wedding? Briefly, Paul and I got together after just being friends in the office from Jan 76, started dating in the May, prior to hubby joinining the RAF in Aug. After seeing each other at weekends only or less, from Aug 76 to Mar 78 we decided enough was enough. So we figured 6 months would allow enough time to get things organised, hence a Sept wedding. Family thought we were too young to get married, I was 21, Paul was 20, but here we are about to celebrate our 41st wedding anniversary 💑.. .
Edinbird....I'm lolling out loud....good one 🤣
Implausible....if your in that there London in December would love to meet up! Got tickets to see only fools 4th, Christmas lunch 5th.....
goi g to jump on the anniversary band wagon....it's mine on sat....34 years wed....what can I say? I was a child bride! 🤣
I'll reply later properly but happy anniversary everyone! (Including Susie's coming up)
Must be the time of year for it as it was my 30th wedding anniversary a couple of days ago too (I was married 9/9/89), not that I celebrate mine much
As for London trips. I'm in London a lot, often work down there midweek, plus I could hop on a train easily pretty much any monday or Friday, so if any of you are ever there and want to meet up for a coffee, just yell.
And Edinbird.... I'm amused
Happy Anniversary to you both, unless i have it wrong its Seaside Sar 25th and Edinbird's 10th xxx
Seaside, congratulations to you and your husband on 25 years. You must have been schoolkids when you married as neither of you look old enough to be married that long. Xx
Sorry I’ve been sitting round feeling sorry for myself 😞
My nails are poop too, one nearly snapped halfway down a week ago and I filed it down and it’s been ok but it is split. You can see all the ridges from the docetaxel. No danger of them falling off but they have weak lines across them. Been meaning to paint them to try and strengthen them but haven’t been bothered and actually I don’t want a false sense of security on it. It’s on my right hand otherwise I would be stressing about it catching and bleeding on the bad side. You can see the ridges
It’s our 10th wedding anniversary today. Not doing anything in particular. He’s in the kitchen making some dinner.
I spoke to Sandra the other day but hadn’t got round to saying. She was happy for me to let you know what’s what. Veronica has had her rads and is now on Letrozole and Zoladex, but is having nightmares pretty much every night and Sandra herself is still struggling and suffering panic attacks 😕 she’s trying to finish her studies ASAP and has had no luck with job applications. She’s said she’s afraid of feeling a failure and coming on here to report that. I’ve told her that we are here to support and not judge and she should say hi when she’s ready. I sent her love from us all. And she sends us all big hugs 🤗
Just had a phone call to see if I can attend my radiotherapy planning session next Thursday, so things are moving forward. Husband's got to change his leave around, again, to drive me there. My car is booked in for it's MOT and service the same day, not that I would drive to Taunton anyway. So Monday day out with hubby to celebrate 41st wedding anniversary, Tuesday Tesco shop and goodness knows what else, Weds bloods and onc appt, Thurs Taunton, Friday chemo. What an exciting week awaits. ☺☺☺☹☹☹☹. xxxx
That made me chuckle😅😆😆😂. We're in London from the 9th returning home on the 12th so we just miss you. It would have been great to meet up. I did think about going up the week before but wanted to make sure I was ok after rads and didn't want to be there on my birthday (5th Dec) as we were there for my 60th which was pretty special. No we're not staying at the Ritz☹ but the Radisson Blu Hampshire. xxx
Love the nails Marlyn ( although for me this would be a long length).
Implausible: Can I second Nettinoo’s comment about a good beautician knowing how to use acrylic to fix a nail.
I once had a split thumb nail and the nail lady was able to fix it using acrylic ( it’s a powder that she then turned into a paste and it ‘cemented ‘ my split nail- it actually helped it to heal). She then put gel polish over that.
Fab photo Seasidesar, I think your hair looks great.
Official hours at school are Monday (2 .5)+Tuesday (4 ) + Wednesday ( 4) + Thursday 2.5 and Friday (7) = 20 hours.
However this doesn’t include the 30 minutes that I arrive earlier every day so it’s more like 22.5. So far so good.
Got my eyes tested today and I am getting an improved and more ‘with it’ pair of reading glasses.
Car passed its MOT so pleased about this too.
Can’t believe it’s Friday already tomorrow!!!
Edinbird , hope the sleeping is better.
I am usually in bed by 8.30 so that I can be up for 6 am.
MBJ, how are you?
Ocean21 - flower pics please.
Anything else : cinema tip off - the film adaptation of ‘The Goldfinch ‘ is soon to be released in the UK. The book was amazing :
Afternoon all, firstly congrats on your wedding anniversary Seaside Sar. You look lovely. Re nails it was acrylics my sister had not gel. They look good Maryln. As for my mum well we had to get social services involved as she gets a contribution towards her care and they have to do an assessment and they cant give me a date as she is not urgent as she is safe and already in care. The new home is £200 a week more than where she is at and they wont fund that so my sister and I will have to fund it but we feel that she deserves it for the last chapter in her life. So flippin expensive. We just now have to wait for the assessment and hope the home keeps the room for us but I have a funny feeling they wont as they wanted to move her next week. The senior carer is coming to meet my mum tomorrow morning and we really like her but it may be that we have to wait a bit longer. Social services said my mum cannot be hoisted onto a stair lift so until they agree to move her she is in isolation! More stress ....
Chemo brain strikes again!!!! Where did I get Piccadilly from? When you clearly wrote Leicester Square!!!!
Susie, when in Dec are you in London? We are there from the 3 4 5 ....staying at the hard rock hotel Marble Arch....are you staying at the ritz??? That's a special hotel in Piccadilly! Xx
Firstly congratulations Seaside Sar on your 25th wedding anniversary on Tuesday. You both look very happy. As an aside the tiles on the wall have taken me straight back to Istanbul. On the long hair/short hair preference have you thought of an inverted Bob, think that's what it's called but could be wrong. Anyway I had one for a while after I finished work. Basically it's long at the front and short at the back. Actually it might even be a graduated bob. Perhaps someone can help me out here, bloomin chemo brain😩😩😩.
Daisydi you seem a lot happier☺ now that you may have found a new home for your mum. Keeping my fingers crossed for you🤞. As for your own move to Norfolk it's surprising what events can occur to encourage us to make great leaps into the unknown.
I'm glad to know that I am not alone in saying the wrong words and being in complete denial of what I have said. My brain still thinks I've said the right word. I'll try not to challenge Paul next time I say fridge instead of oven or tell him it's pasta for dinner when I mean stir-fry. Mind you I haven't tried to put rubbish in the dishwasher yet, which is what my husband attempted to do the other day😅😆😆😃. What made it funnier was that he even asked me to move as I was stood in front of said dishwasher.
As for hair (bum fluff) appearing on people's faces, me too🦁. Mine actually unexpectedly arrived after FEC finished but disappeared after my 1st round of TC. Wonder if it'll come back? Hope not. As for everywhere else, no regrowth yet. My eyebrows and eye lashes are still hanging on, just. As for bags under my eyes I'm sure I could put a weekly shop on them🛍🛍🛍😀😀, especially after a week like last week. My nails seem to be ok. I've used dark varnish on my toe nails. A first for me as I've never had nail varnish on my toe nails before. It took a while for my husband to get used to it. I might do it again next year just for fun. Something good has to come out of this bc. I'm using Evonail on my finger nails.
Well I've booked our hotel for our trip up to London in December. We've been several times in recent years so if I'm too tired we won't feel as though we've missed out on things. Still intend to go to the Hyde Park Xmas Market, but will go on the Monday or Tuesday when it's not so busy. If we have to cancel, which I'm sure we won't, there's no penalty for cancellation and we've got until check in time to decide. Mind you it is a rather special hotel we use in Leicester Square.
Implausible excellent news regarding your holiday insurance. We were with Tescos but had to change insurance company as Tesco no longer do holiday insurance. As for our summerhouse we make use of it for as long as possible. The wardrobe make over is going well. Will definitely need some new tops when everything is sorted. I keep wondering why I've hung onto certain items. Hey ho!!
Right I've now got the Facebook messenger (message) app. Help what do I do with it now and how do I use it? Answers on a post card.
Well I think that's about it. Hopefully I've caught up with most of the gossip. Thinking of you both Edinbird and MBJ. Hope you are both receiving the help and support you want or need. Hope all is well with you Deano too. Let us know when you feel up to it.
Love to you all xxxx
What has been going on with this forum?? Couldn't get on here since Monday. Boo!
Love all the photos...nice hair (and lashes) Nettie, also Sarah, Marlyn (lovely nails), Susie and Sonia. Looking good!
Daisy, just want to send you a big hug. Also, Edinbird 💕
Rosina, hope you're having a good day at work. Don't let the little things bother you, although I can vouch for how annoying it is when things go walkabouts. How many hours/days are you doing now and how are you feeling?
Sarah, I did enjoy the hockey, thanks. The difference in quality is noticeable but the atmopshere made up for it. Looking forward to the weekend already.
I've had a busy week so far. Husband and I celebrated our silver wedding anniversary on Tuesday so we had a meal in a Turkish restaurant. It was very nice. Have also kept up the exercise routine with aqua, barre and a class called Sh'bam, which is basically dancing like mad. It hurt a bit so I'm not too sure I'll be booking that one again!
Going to a cancer and beyond talk this evening. Looking forward to hearing what they've got to say.
Out for another meal at the weekend, this time with parents and our children.
No wonder I need so much exercise with all this eating out!
Hope you're all having a good day.
fantastic! that's about the length/shape I want, I don't want claws
I might pop into one when I'm in town tomorrow, and get it done now if they accept walk ins, so I can see what it is like, and then get them done again in 3 weeks just before I jet off....
exciting times, I'm fed up of them being all raggedy and falling apart
It's covering up all kinds of brown/ white lines and imperfections.....she said it will even prevent my thumb nail splitting ( it's splitting halfway down)
All this talk of nails gave me the urge this morning to walk in a nail bar and get mine done, I've had gel nails which apparently will last me 3 weeks....will post a pic!
Not sure how I'd tell the difference between a good one and a rubbish one. I'll see if any of the far girlier-than-I ladies at work recommend a place....
Implausible you don’t need nails stuck on. They should be able to build you up a new nail with acrylic and then harden it under a lamp. I had it done when I lost a toe nail. The new nail just grew underneath. Go to a proper beauticians that does nails where they do all the filing etc purely by hand though not one of those cheap nail shops that have sprung up everywhere. Xx
Ah cool. I just wanted to know that it was possible before I walked into a nail place and they laughed me out of the shop
My sister bites her nails really short and has had gel nails stuck on. You can have them as long or short as you want but must admit I've never been near a nail parlour.
Rosina would that be a dispenser?
But if they do a gel polish they can't add any length, can they? Isn't that just like a normal polish but stronger/longer lasting? I don't want super long nails (talons as you called them ) but I don't want 4 nails only halfway grown....
I like your finger nails Implausible.
I have never had fake ( stick on talons) but I would recommend a manicure with a gel nail polish ( dries instantly, long lasting- the only faff is the removal as they have to wrap them up in foil and then scrub the gel off) they do last for 3 weeks though ( even longer but seeing the growth at the nail bed like a tide mark annoys me so I used to go for a nude colour like ‘bubble bath’ which made my nails look fabulous and grew out so that I didn’t even bother with a salon removal - I actually find it quite boring so I haven’t had a manicure in ages) .
I also remember having a short dark nail one Xmas ( gels again) in a very dark red called black dahlia that was stunning:
On the word front, last week I said ‘ What do you call the thingy in which you put sellotape so that you can easily find the end and pull it out ‘ 🤪
Oh that new room sounds like it will be so much better for your mum, Daisy. It really is such a worry isn't it.
My other half has been moving his nan from her previous retirement flat into a care home over the last couple of days. She really can't be on her own any more. It has all gone quite smoothly so fingers crossed so will yours.
One thing I forgot to mention earlier in my big post, and also a question.
The thing I forgot to mention was my nice surprise earlier with my travel insurance. Obviously they knew about my health issues this year as I claimed from them earlier re missing my American trip in March. But I thought I had better ring them just to see how things now work - I have an annual all countries policy, and I figured I would now need to either give them more money, or that they would cover everything other than breast cancer complications.
Anyway they asked me a few questions about my initial diagnosis and treatment to date, and then told me I am still fully covered at no extra cost.
I was rather chuffed with that!
So I can relax a bit about my trip to New York next month.
The question is about nails. Do any of you know anything about nail salon places? I've never set foot in one!
I've now lost 4 fingernails , but when they came off, they didn't leave naked fingertips, there were other nails underneath. I presume it is these new nails that are forcing the old ones loose. Very odd.
So anyway, now both my pointy fingers and both thumbs have super short nails like so:
(The one on the right).
I'd quite like nice nails for my New York trip. Does anyone know if they could glue (or whatever they do) fake nails over the top of these, or do they need a full length nail to work with?
And how long do the fake nails last?
I am so ignorant about girly stuff
Yes ditto that Nettie. I get terrible withdrawal symptoms from the Implausible Sarah. I didnt realise there was so much fantastic street art out there probably because I've never looked. Eew just noticed my hairy fingers again. I also have that soft downy hair on my face. We saw the manager at mum's care home today and told her of our concerns. There isnt a room available downstairs and not likely to be one for some time. She even commented that she didnt think it would be detrimental to my mum to move her at this stage. Anyway we then went to the new home and saw the available room and that clinched it for us. It was lovely and we can spend some good quality time with her for however long she may have left. Therefore we are going to move her as long as social services agree. They are going to put a new carpet in in a colour of our choice and we can actually put some nice things in there for her. It will be so much better as we will be so much more comfortable rather than being perched on a bed a long way away from her so we cant really interact with her. Not sure how long it will take but obviously the room is empty so they will be pushing for it to happen. My sister goes on holiday next Friday so I hope it doesnt happen while she is away as Im not sure I can do all that on my own. Not really sure how we are going to get her there but I'm sure someone will know. Even if she ends up staying in her room at least there are windows you can open and hustle and bustle outside the room so at least she will be able to hear life going on. I told the current manager that her room feels like a prison cell and makes me very unhappy and stressed. We could actually put flowers and plants in her new room and a big tv and some or her ornaments. My sister and I both feel very happy about our decision. Lets hope it does happen.
Think my sweats have improved. I do get the odd one but really not that bad but then its going to get hot again so maybe they will start up again. Just got one area under my boob to heal properly. Rather than blokes hankies I have been stuffing toilet roll along the crease. Did try kitchen roll but it was too rough. Have to go now and cook dinner. Speak later x