Hi Deano xx are you able to join the Facebook group? Didn’t want you being missed out.
Debi I didn’t get a seroma so can’t help, I barely drained anything after my clearance and don’t bleed much in general! 😬
I had a seroma the size of a grapefruit it was huge and I had it drained at least 3 times over 2 weeks. It will keep filling up when draining it and they can last up to 3 months they told me. Mine went down after 3 wks after I went in the hot tub and I think the warm water massaging my arm helped with the bubbles - I’m not suggesting you do thiis but Keep doing the arm excercise especially stretching your arm. It is horrible but don’t worry it will go and your body will redrain the fluid it just takes time and patience and try not to worry darlin you’ve been through a lot and nearly there- I worried like mad and thought I’d never be right again but you will ❤️❤️
Firstly you may have noticed we haven't posted on here for a while. Don't worry, we haven't disbanded, It's just that we have decided to set up a group through Facebook Messenger so we can communicate more easily and it will be helpful if we want to arrange meet ups and things. There is a link in one of the posts further down.
In answer to you question I had full ANC back in June and didn't have a drain, my surgeon's preference. After about 7 days I soon had to contend with a tennis ball rather than a golf ball and had drained on day 10 when like you it became too painful. It filled up again and I had it drained again after 7 days. It was fine after that but my bc nurse assured me that if swelled again not to worry, she'd be more than happy to drain it again. Your body will soon learn to adapt without the lymph nodes. There are some excellent videos on YouTube showing you how to do lymphatic massage and there is one produced by Cancer Research UK that demonstrates an exercise routine to help ward off lymphodeama. In the meantime keep doing the arm excercises your hospital has provided you with..
Are you due to have radiotherapy next? I will be starting mine on 21st Oct, 20 session over 4 weeks.
I'll be popping onto this site every now and then so if you have any more questions or just want to chat post here and I'll get back to you. I'll probable pop into the radiotherapy feed aswell.
In the meantime I'll pass your question onto the Feb group and I'm sure they'll tell you about their own experiences. Oh incase you're wondering, there is a large gap between my surgery and rads as I am on a trial (ROSCO) so my treatment was 4 rounds of FEC, lumpectomy and ANC, 4 rounds of TC, which I completed a week ago, then rads.
Take care Susie B xx
Did anyone on this thread suffer from a seroma after surgery? If so how long did it take to disappear? and did you have to keep having it drained? Also how big was it?
I have had my seroma drained twice already and it has filled again. It is quite large and its under my arm so i can't put my arm down straight. I know everyone is different but i just wanted to get an idea of how normal this is.
love the photos Ocean21.
This is to let you know that I am going to unsubscribe from the forum ( as of now) and just stick with the messenger chat group.
What with work etc keeping up with 2 sets of chat/posts is beyond me 🤪
Good to know that Ocean21 is Ony.
So the mystery remains: Perdita who are you?
Have a good day all.
Ocean, the fruit and juice looks lovely. I would love to tick into it all.
Have you requested to join the group chat, trying to work out who Ony and Perdita are ??
Beautiful photos as always☺. Wish our grapes were as plentiful as yours🍇🍇🍇. Going to the press with your fruit seems ideal. Had a quick listen to the story set in Provence and will listen tonight as hubby is away at the moment. Narrated by Stephen Fry, bonus. I'm hooked already🤗🤗. xx
Hi Ocean, that sounds so idyllic being able to take your fruit to be pressed. You’ve certainly got a good stock there. X
Last pic was the bottles of juice we got from some apples and pears we took to be pressed.Proper country living antics.
The juice tastes lovely.
On the disrupted sleep front. I discovered last night that on YouTube you can get bedtime stories for adults. Sounds a bit weird but they’re designed to send you to sleep. Some have been put up by the people who created the ‘Calm’ app.
SusieB one of the stories is about going through the south of France so you might like that one.
Also, has anyone tried melatonin ?Again it’s for disrupted sleep, sometimes travellers use it for jet lag.Over here you you can buy it on amazon France or get it in the shops. I know in the U.K. it’s prescription only but it might be worth a try.
They've got lots of meditation for getting to sleep on YouTube too so give that a go if your mind us always racing and/or on alert.
Some pics for you. Included some of produce we get from the garden.
Found the Feb Warriors messenger group thank you. Sent a message but not sure if it went or not. Will get some lessons from my son at some point 👨💻😃😃. He's the expert. Like Daisydi, to a certain extent, I've set the account up under the name I use on here which is actually my real name (Susan). Friends and family know me by my middle name Lesley which I hate. Professionals and formal contacts, docs, dentists, bank staff, solicitors, etc call me Sue or Susan. When I joined this group I decided I would finally use the name Sue/Susie with my new found friends. My mum will not be amused😒😒😕. When I left school/college I was going to go with Sue, then at my first day in the office I came across 3 people I knew so Lesley kinda stuck☹. Made childbirth interesting. Midwife, that's it Sue you're doing really well. Hubby, you're doing brilliantly Les. Confusing or what🤔!? Will explain the reasoning one day. If or when we meet I'll try not to ignore you when you call me Sue.
On the final TC front it's hit me really hard this time especially with the fatigue. And I'm a grass widow for a few days😩☹☹. Chris, my son, is going to have to step up and actually do something for a change. On the weather front it's been pretty wet🌧🌧🌫🌫 but there is a bit of warming sunshine⛅⛅🌤 at the moment.☺☺ xxxx
Trixielady are you able to join the backup group set up in messenger for when the forum is playing up? X
Somehow managed to set up Facebook account despite chemo brain😩😩 and intense fatigue😪😪😪😪. Thanks for finding me. Need to find the group next perhaps when I'm less tired. Guess that'll be in 3 to 4 weeks the way I'm feeling at the moment. 😩😩😩😩😴😴😪😆😆.
Your friend's hair looks amazing.
Susie, I hope I’ve added the right Susie to the group 😂😂 it looks like you in your photo 😘
lovely to to hear from you Seaside, sounds like you’ve been busy, boat should be ready for next March all being good, as long as hubby does my jobs around the house as well 😂😂😂
Been meaning to reply since Weds. Oooops. In answer to your question the girl in the boat incident did survive. The charity shop work seems a great idea. At least you'll be doing it because you want to, not because you have to. No pressure. On the baby front I was in the 'If I have one I have one. If I don't I don't' brigade. We, me and hubby, were of the same opinion luckily. When I told my mum how I felt she accused me of having a selfish attitude - she wanted to be a Gran. I don't think she's ever said the same to my unmarried brother. A meet up in London for a coffee and a hug would be fab. xxx
Hello lovely ladies,
Good to hear from you, Ocean. Well done for getting through the rads. Good grief, you had a lot of sessions! Thank you for the beautiful photos.
Edinbird, I hope the next sessions of rads are easier for you. I totally sympathise on the lack of sleep. It's still affecting me as well. Sounds like you've done everything possible to get some decent sleep but to no avail. Maybe cooler nights will help? Fingers crossed.
Sonia, your hubby's new boat looks awesome. When will you get to try it out? I'll have a go at getting onto the mesenger group. Couldn't get the app to work last time.
How are you feeling after your trip to Cardiff, Marlyn? Did you manage to keep looking attentive even when your mind went a wandering? I find myself doing the nodding and smiling thing quite often and then suddenly thinking, what did they just say? Not good!
How was your soup, Rosina? I made courgette soup last week and it was delicious. Even my hubby enjoyed it and he normally avoids veg if he can.
Daisy, I hope things go smoothly with your Mum's move. As for taking loratidine, I started taking clarytin last week as I was fed up with constant niggly aches, itches, sores, etc. Not sure if it's helping but I am sure to start rattling soon with all the medication I'm taking.
Susie, hope you're enjoying being picc line free. Must be a relief after all this time.
Well, I'm feeling the effects of a busy weekend. Had 3 lots of visitors on Saturday, followed by ice hockey (they lost 😑) and then a trip to Caister/Norwich yesterday to take daughter back to uni. It was lovely to walk along the beach and we even saw some seals playing in the waves. Made my day 😊
Been over to see a friend this morning and we went for a short walk.
Really need a nap now.
Hope everyone else is having a good day.
Edinbird. Glad it all went well, I’m still at the trial appointment still waiting after 50mins to say I’m not doing it 🤪🤪🤪
Love the boat. Just imagining gently bobbing up and down in it in a Greek bay somewhere🛥🏖😎. Sorry but the messenger link hasn't worked for me☹. It's probably me doing something wrong. I have set up a messenger account, just hope I did it right. Seriously thinking of re-opening Facebook account and hope my mum doesn't want to be a friend again. xxx
Thanks Susie xx
All done although they didn’t have my cream ready for me and I had to have a fourth tattoo. It was worse than planning my hand went numb so quickly and my arm ached more too, even though I took painkillers this time. They said I did well but I just felt like crying laid there. They said I’ll have longer sessions for a few days as they have to take pictures as well as do the treatment and then it’s a longer one once a week after that.
Waiting in the trials area now, turns out I don’t need to see the heart trial nurse so I’ll be on the pills for at least another three weeks and that means another blood test then too. Quite fed up to be honest just want to get home. Glad I wasn’t working today.
Hope everyone is ok today xx
Thinking of you as you start radiotherapy. I'll be counting the sessions down as each one completed will bring me closer to my starting date, 21st Oct.
Take care and don't fall asleep on the bus😴🚍 xx
Love that boat Sonia. I'm not taking sleeping pills but then Im not sleeping properly either and am not sure about going down that road. I think once we have moved mum hopefully my mind will settle down a bit. I am thinking of starting the Loratadine again as I have read that it can help with general aches and pains and I always have itchy skin from one thing or another. Edinbird I always have to have my feet out of bed but they are not burning so much since I have had the acupressure treatment. I spend all night taking the quilt off and then putting it back on and I get up exhausted!
Nice to hear from you Ocean. Hope your skin starts to heal soon. I still have a very small bit on the underside of my boob but it happened weeks after rads and I think it was a different bra just irritating the skin and then it all blistered. Ive just left it alone and it is getting better.
The link goes to the right place for me Sonia xx
I tried my prescription sleeping pill on Thursday and it was no better than the over the counter ones 😞 yesterday I was at an event at Maggie’s all day which included exercise, then I walked 6 miles home. Was knackered but couldn’t get comfy so had two codeine one otc pill one Nytol and also used lavender pillow spray and magnesium spray. And still all that didn’t work! Was relaxing and probably dozing on and off for 90 minutes then my big toes started burning! Had to move and get an ibuprofen, putting my feet out of the duvet helped but then I woke again about 2 hours later and was awake at least half an hour, and woke again at some point completely drenched in sweat! So I just don’t know what else to do. I stayed in bed all morning and when I came down at lunchtime I felt really woozy so went back up, probably only slept about 45 minutes though. Feel wobbly now too so going to have a bath, my last for a month and then try and get comfy again. No chance I’m taking any pills tonight as I need to be up at about 6.45 for rads and I’ll feel totally rotten on the bus!
Hope everyone else is having a more enjoyable Sunday xx
Ocean and all this is the link to the messenger group I hope if I’ve done it right xx https://m.me/join/AbYfhjDB5YS9XKYs
Lovely to hear from you, I know what you mean about the colour after rads, I only had 15, my skin peeled off after, so I’m back to matching colour again,
Well we’ve had an eventful weekend, hubby bought another boat
Boys and toys, apparently you can never have enough boats🤪🤪
Are of you ladies taking sleeping tablets? It’s beginning to take its toll. I think everyone would like me to get a little more sleep and be a little less snappy.
I am defiantly coming off the aspirin trial, as couldn’t deal With pain in my hands. That will be fun telling them tomorrow, I’ve also got oncology on Thursday so hoping I get dates for operations and things, I can live in hope.
I had a friend contact me this weekend, she has just been diagnosed with BC, and as we all know her world has just turned upside down. I’m glad I’m at this end now, not starting the journey.
Hope everyone has had a good weekend xxx
Lovely to hear from you Ocean21. Gosh 34 rads blasts, it must have felt as though it would never end. I'll be having 20 starting on 21st Oct. Hope your skin heals soon. The different coloured boobs made me smile😊, sorry. As for my hair it is growing back fairly well and thick. Not sure about the curls though. As for the colour I've had it dyed for years so may go blond with some pink as a fingers up to cancer then go darker again with high-lights. Beautiful photos, I think we've all been missing them. As for changing attitudes or how we look at things now I know I'll have a different outlook on life from now on. Firstly "I'll do that sometime in the future" is already changing to "I'm doing that next", hence my trip to Iceland to see the Northern Lights which I have been putting off for years..
Take care. xxxxx
I love figs to eat fresh off the tree ! Thanks for the photos Ocean21 and good to hear from you. Currently cooking a Courgette, Feta and Mint soup.
Ocean, lovely to hear from you!! And thank you for the fab photos, just lovely.....it's good to catch up with all your news, 34 sessions.....wow! That was a right blasting you had....
i totally understand about " changing" I have too, I think we all have.....take care love....onwards and upwards....❤️❤️❤️
Morning beautiful ones,
I’ve finally caught up with all the posts.
Finished my rads on Thursday. I was overjoyed. 34 sessions. Energy wise I had a couple of days where things caught up with me but I put that down to having early morning sessions and then coming home and eating porridge. Daft as it sounds carbs can really give me a hard time. Have to really watch my intake because if not I feel as if I’ve been hit by a truck. Can do nothing else but sleep. Once I’ve woken up I have something sweet to drink and I’m fine. Simple unassuming porridge is like a cosh for me which sucks as I love it.
Anyway, aside from the couple of days rads were a breeze really. Skin wise all was well until I had the boosters. 8 in all and I’m discovering the joys of radiation burns. Got them on my neck, collar bone back above my right shoulder. The skin next to my scar hasn’t fared well because of friction from my bra and seams in clothes. You couldn’t play guess which boob has been treated with me because I’ve got one caramel coloured one and one ebony one so it’s bloomin’ obvious!
My finger and toenails are really discoloured, that started happening just at the end of chemo and continued. I keep them covered up because they look horrendous . However, even though a number of times I thought I’d loose them I seem to have held on to them and the discolouration is slowly growing out.
My eyelashes are growing back not much happening on the eyebrow front. I was drawing them in but since the end of rads I haven’t bothered although I may today as I’m going to the village tea dance.
My daughter and daughter in law tell me that having no eye brows or bleached eyebrows is a fashion thing at the moment.
So my lovelies we can rebrand our eyebrowless stays as a chemo fashion statement !
My hair has started to grow back,it seems quite white. The regrowth has been quite patchy and was worrying that my crown wasn’t filling up but slowly it seems to be. As for my fanjita / noo noo thankfully I’m getting some growth back there. Hated the bare look.
Don’t know about you but coming towards the end of rads I had this feeling of stepping into the unknown. I know things are all gone now but it almost feels like I have to relearn to trust my body again. I’m a very changed person ,for the better I think. Some of the rubbish from my partner that I was letting go for the sake of peace I simply won’t anymore. His behaviour most of this year hasn’t been particularly helpful but I’m dealing with it and like many men he’s having a hard time being called out on it.
Before this bc business I’m the one you’d call if you needed to do battle. I’d take on other people’s stuff because I could and they knew and I knew I’d get the results required. But I have been doing some honest self- reflection about why I was helping everyone but no one ever thinks that it would be nice if they could sort out something for me.It was / is “wish I could be like you,you’re always so strong”. One of the reasons I’m so happy living in France is that it’s not so easy for people to ask me to do stuff for them now. I’m determined now not to have the stress levels I carried before bc. It’s simply , not healthy and it’s not fair especially when you look back and see that most of the stress you were dealing with wasn’t yours! So, I’ve changed.
Im filled with gratitude for getting through treatment, for being able to access the expertise ,medication and equipment that has helped me. I wake up and give thanks for the day. How many people around the world aren’t as fortunate to have had the care we’ve. I’m less tolerant now of people constantly moaning and never being able to see a blessing. My fella can be like that and not only is it draining it’s stressful and as I’ve said from now on I’m having none of it.
SusieB great news on the end of chemo. Sure your rads will be fine. They’ve clued you in on the skincare so that’s great. I must say I think the colour of your hair regrowth us lovely. I’d funk it up and accent the silvers.
Rosina ,glad to hear that you’re easing into work.
Belated anniversary greetings to all who celebrated them.
Daisydi great to hear the good news about your mum. It must be a relief for you.
Sonia28, glad to see you did bleed with this latest injection. Hope they can find non surgical support to help with your hands. Thanks for setting up the Messenger group ,will join up later today so look out for me. I’ll message you my number for the WhatsApp group too.
MBJ so sorry to hear about your heart health but let’s hope that going forward you have much better cardiology care that the standard that you had in on oncology.
Implausible, you’re looking fab. Super jealous that your eyebrows are back.
Nettienoo, love your hair ,your grey crop suits you , really shows off your lovely eye colour.Hope your break in Amsterdam isn’t too tiring.
Edinbird , apart from your rubbish take away (!) you sound less stressed which is wonderful.
Trixielady SeasideSar , Delano hope that you’re all good.
Marlyn , your nails look lovely. Those colours were a great choice. My nails look so discoloured now that I’ve made a promise to myself to really indulge them when the discolouration goes.
Hope I’ve not missed anyone out. If I have , forgive me but rest assured I think of you all .
Right get ready for the flurry of pics . Have a great day everyone of you gorgeous women.
Freedom from the PICC line indeed. About to have a shower without the cumbersome cover, but will keep the area covered where the line went in with a waterproof plaster. Up next is rads starting on 21st Oct. The final week may be a little emotional as that coinsides with the week a year ago when I had my mammogram, the call back phone call and biopsies☹😟😢. Will try to focus on the fact that that will be the end of my treatment and I can look forward to my trip to London a year after my diagnosis.
I hope the numbness and tingling in your fingers subsides. It must be pretty frustrating. xx.
Hi Suzie B
Thanks for the encouragement. The cardiologist did say it should improve. As you know I have not had very good care here in Wales. I have had no scans if any kind and no follow up at all since the 11th March when I decided to stop chemo. The cardiologist is writing to the oncologist so it will be interesting to see if they even bother to get in touch with me. I am very disappointed in the care all through my chemotherapy nightmare as you know. I have at last been given a face to face meeting with senior managers about my terrible care when I was in hospital. You seem to have been really well looked after thank goodness. Take care xx
Onwards and upwards now our Susie, I bet having the picc line gone is pure freedom....
We have all had our different journeys on the cancer trip, I find it fascinating how our treatments have differed....no one size fits all......it feels like we've gone into battle and now emerging, some of us are more battered than others, I'm still shocked and saddened at how that one cycle knocked the stuffing out of our mbj, who could have predicted that!
I love how we still check on eachother, we don't need to post everyday but we all know and understand we all close ranks for each other , if we have a man down we go back for them....we truly are a band of sisters. I'm proud and honoured to have gone into battle with you all, we didn't want to but we had no choice. All for one and one for all!! ❤️❤️❤️❤️❤️❤️
Still Can't believe I've had final chemo. Maybe it'll sink in when I don't have to go in for PICC care next week. Still need to do final blood test for trials people in about three weeks then I can think about rads. Dropping a day from work makes absolute sense. I was not a happy bunny when I reluctantly chose redundancy in 2012 but glad of it now. I took on most of the household chores, we shared whilst I was working, and treat that as my part-time job. I even make sure I have lunch and tea breaks 🍳🍲🥗🌯🍵☕☺.
Well done for the deep breath and bollocks to that!!
Thanks for the ❤❤❤. Much appreciated. Pop in for chat when you feel ready. Take care.
Susie B xxxxx
No appologies required. We all have our quiet times and talk when we feel ready. You've got so much to think about at the moment. Hope the increased meds help. There's an article on the BBC news app today about a woman who went into heart failure around 2 years or so after bc treatment. She was on holiday in Canada at the time and heart function had dropped to 6%. An astute specialist asked her to squeeze her hand if she had been given the red stuff during chemo. We all know what that is. Anyway meds got her up to 12%, enough for her to get home and carry on with treatment in the UK. Meds and excersise/physio etc improved her health. As I am on a trial I have had 3 heart scans and will have a final one in 5 years. I will also be having annual check ups covering just about everything, physical and mental health, this is on top of the normal NHS checks. On the trial I have a final blood test 3 weeks after my final chemo💉☹.
Glad to hear you're enjoying the Rock Choir. ❤❤❤
I'm just a bit older than you at 62 and my mum is 88 in November hence possible good guess☺. I'm not feeling too bad at the moment, just the steroids causing sleep deprivation😪😪😫😫😩😩. Last night I was either awake or in dream mode, weird. Not looking forward to next week as that is when I know fatigue will kick in. Hubby is away for a couple of days so my son may want to keep his distance as he may be at the receiving end of one of my rants 😠😠😠👹👹 and 💩💩💩 mood. xxx
Hi Susie yes I was thinking of a picture board. We already have a very small one and some random pics but a bigger one might be a good idea. She was 88 this year so not a bad guess! I did start a photo album/life story when she first went into care but I found it too upsetting. May dig it out and try to continue. Hope you are feeling ok x
MBJ good to hear from you and lets hope the drugs do the trick. I bet your garden will look amazing once your hubby has finished with it.
Hope everyone has a great weekend xxx
Excellent news about your Mum's move to a new home😊. What a difference a week can make. I couldn't believe what you had been told at her current home when you told them you were moving her out. Almost seemed like emotional blackmail, and I could almost hear the violin heartstrings playing in the background 🎼🎻🎻🎻🎻.🎶🎶🎶🎶😭😭. As for putting new things in her room have you thought of adding a picture board or photo album of pictures of bygone years. I don't know if you've said but I'm guessing your mum is around 80 or 90 years old. Perhaps photos depicting the 40s, 50s and 60s fashion, transport, shops, food items, the list could go on, may trigger past memories and maybe some conversations about those times. xxx
Sorry I have been off grid for a while it's been hard to get my head around what's happening to me. I saw my cardiologist yesterday he has doubled my medication and if medication does not improve my heart function I think I will need a pacemaker. Hard to believe that one dose of chemo has done so much damage and also probably no use at preventing any cancer comeback. I had lots of blood tests and a chest x-ray yesterday and I have to have a heart MRI. Met some previous work colleagues for lunch today. I nearly did not go as I am fed up of telling people bad news. When I got home neighbours I have never met had left flowers for me with my husband who chats to them. Very thoughtful but upset me to think people think I am so sick. They have moved in to live in a grant amex with their son who is the managing director of Swansea City football team (I don't know him either).
I can see that you are all doing well and moving on with your lives. You have all been so strong and coped remarkably well with all that has been thrown at you.
I went back to my Rock Choir last night which I enjoyed. I have been told to carry on as normal but obviously it's hard when you know your heart is pretty crap. My husband is getting on with the garden and had ten ton of top soil today he was like a 🐖 in 💩. Does not take much to make him happy obviously. Hope you all have a good weekend x
Well done Susie for finishing chemotherapy 🌸🌸🌸
Congratulations to your sporty son Sonia28, he must be very disciplined and dedicated.
Thanks for the good wishes Seasidesar, I enjoy my work and give it my all , hence why 4 days makes sense as I will do stuff from home . When I was FT work seeped into my weekend so it was more like a 7 day working week 🤪
Today , I had to call HR as I was still on sick pay !!!! so they have to fix this pronto.
Daisydi so pleased for you and your mum.
Nettinoo enjoy Amsterdam.
This was another reason I decided to drop a day if this bc returns 5, 10 , 15 or 20 years down the line I don’t want to have spent all my good days at work!!!!
Today I had a parent that had requested an appointment to see me and then they never showed up ( or called to say they couldn’t make it).
Initially that made me cross. Then it was BIG BREATH and count to 10 and say ‘bollocks to that ‘.