Got the delights of bloods and oncologist's appointment later☹ and the sun is shining🌞 and I'll be stuck in hospital 🏥☹. Still can't get excited that Friday will be be my final chemo. I think I'm just too tired to care😪😪😴.
Will chat later. xxx
Just got back. I had mainly massage and acupressure on my feet and toes as they were still numb. They do feel much better but could have laid there all day! Mum isnt really aware of whats going on but sometimes she is. That's our point that on her good days she is still so isolated. Social services didnt ring me until yesterday morning and wanted to meet at 11 so dont think care home knew. We've decided that I will try to move mum next week and pay an extra 3 weeks. Just want this done now. I might try some reiki next time. Ive never had anything like this done before but if it makes me feel better I will go with it. Speak to you later x
Daisy, your mums situation sounds awful, is she fully aware of what's going on? Was the manager of the care home in on the appointment with social services?
I hope your holistic treatment went well this morning, what did you have done? Xxx
I'm really sorry to hear that your Mum's care home, I'm not sure it deserves the term 'care' from what you have told us, is being difficult. I would argue that the intention to move your mum was given a week ago since that is when you told them you had found somewhere else. I take it that if you moved your mum out regardless they would still want payment for the full period of notice. This situation couldn't have happened at a worse time especially when fatigue hits. Hopefully the holistic treatment tomorrow may help you see things in a better light. Sending you hugs❤❤❤❤❤❤
My left eyebrow is a bit like that Susie. I am really cross in that Social services came out today and agreed we need to move mum but then the care home have said they want 28 days notice so we may now lose the room even though we told them we had found somewhere a week ago. When we went this morning at 11 they had left mum in bed and everyone else was downstairs having a party. We could barely get in the room for equipment and all 3 of us had to stand round the bed trying to speak to my mum. How can you give notice if you havent got a room anyway. I am so annoyed and also feel really low and tearful but I think it is mainly due to lack of sleep and stress. Have my holistic treatment tomorrow morning whatever that might be so hopefully I will feel better tomorrow.
All very quiet today. Hope everybody is ok. I've been taking it fairly easy today after fatigue hit yet again yesterday😪😪😪. Even vaccume cleaned the house this morning in three stages.
On the hair growth front, or lack of it, my left hand eyebrow is now doing a re-enactment of the parting of the waves🌊 🌊. Thank goodness I kept going with the eye pencils🖍🖍🖍✏✏✏ And as for the blue/brown blob on my boob it looks like a map of India or Africa🌍🌏. It's got a name now, Lady Maud from Blott on the Landscape. I'll probably call it Maud for short😆😉🙂☺.
Thank you everyone for the anniversary messages.
Sonia glad to hear your latest Zoladex went without a hitch. When something goes wrong it does make you wary next time around. Don't blame you for not wanting any further surgery if you can avoid it.
Enjoy the rest of the day everyone. For those of you back at work I hope things aren't too stressful. xxxx .
Didn't realise how close you are to Ottery St Mary. A meet up would be great.
P S they're already setting up for Xmas🎄🎄🎉🎉🎆🎍🎍. Much too early!
Susie B xxx
Susie, Happy anniversary to you.
Otter st Mary’s is only about an hour from me, maybe one day we can meet there, as it’s in the middle for both of us. Xx
Just thought Susie it must be your wedding anniversary which is why you're out and about. Hope you have a fabulous time tonight. Happy Anniversary xxx
Just popped quickly for a quick catch up. Tiredness/fatigue seems to be hitting a few of us the moment along with its associated side effects😪😪😪😪😠😠😠😠😤😤.
Hubby and I went to a huge garden centre about a 45 min drive from us. You may know it Sonia, Otter Nurseries at Ottery St Mary. We bought a few bits there and had lunch. I came home absolutely cream crackered (knackered) 😪😪😴😴 and went to bed for a couple of hours🛌🏾. Anyway we're going out for a meal later so nothing to do except slap on a bit more make up and get changed.
Enjoy the rest of the evening. xxxxx
Daisydi, I am fed up with myself so the remedy has to be a walk.
Trainers on next and into the woods 🎄🌲🌳🌲🎄
Rosina I am super irritable too. Dont think a working environment would be great for me at the moment. My sister has told me so many times that my toenails are revolting, yeh they are but dont you think I know!!!!! Anyway last night I went back at her and she said she was only joking! So I cant take jokes anymore when it is chemo themed. Spoke to a bc nurse today about my bone scan and said that if my appt isnt until end of Nov I probably would have been on hormones for about 6 months before anyone checks and I dont think its good enough. She is going to ask my bc Professor if he will write a request out. Also been trying to chase Social services about a visit to my mum so we can move her and neither person dealing with her are in today. Also my own bc nurse wasnt in today, nor was she the last time I phoned so I am super grumpy ......
Crashed out on my bed.
Didn’t sleep well last night due to a police helicopter circling above us and the surrounding area for what seemed like ages. Hope they found whatever they were looking for 😬
Then woke up again at 2 am ( note to self: thermal vest when having hot flushes in the night is a BAD choice of sleeping garment 🤪).
Went to work and was very irritable (if another person tells me how my hair has grown back, how well I am doing - the cover teacher had this on repeat today ( Irish : you are doing well Miss! in front of the class) or how good I am looking I may just flip) but held it together ( although I did ask a colleague and friend if people expected me to lie on the floor with my legs in the air at any given moment 😂
Hi all, just the quickest of check ins.
I'm sat in the GP's waiting room with my Zoladex syringe, waiting for the nurse to get back from lunch so she can jab me
Depressingly that has given me enough time to read the side effects leaflet. Kind of wishing I hadn't!
Susie.... my rads planning appt took forever but mine seems to have been different to everyone else's as I had a cannula (which took them over an hour to get in due to my rubbish veins) plus a CT scan in one building then a different scan in a different building then a long chat with the rads nurse.
Will post properly over the next couple of days. Crazy busy at the mo
Love to all
I had my Zoladex injection today, no major bleed this time so who knows why I did last time. She did do it very closely to my belly button this time, so who knows if that makes a difference.
I then went to see orthopaedic about my arthritis in my wrists which had surprise surprise has deteriorated, it looks like I need an operation on both hands, I’ve asked for one last try with cortisone injections as I kind of want to get back to work and it’s 6 weeks in plaster each hand and then a month in splints. I never had an anaesthetic before last year, looks like I’m going make up for it now 🤪.
I hope your all keeping well.
Edinbird, I was tattooed and drawn on daily, don’t wear your best bras as it stains them 😬
Trixielady, I’m hoping to plan to get back to work in October, although the appointments are mounting up again for next month, so far I’ve managed to get them all on Mondays, which was my day off. I think I just need some normality back in my life, hopefully my body will allow me.
Hope the rest of you ladies are having a good day xx
Don't worry the pens aren't normal felt tip. My husband's work colleague found a particular moisturiser from Body Shop that removed them. Different colours were added at different times. I think my pre-planning appointment is a bit early too. Hopefully all will become clear on Thursday..
No idea how felt tip pen works since it would wash off! Or sweat off in my case! They didn’t say they were doing my armpit I asked but they said there’s nothing left there after the clearance so they need to go where the surgeon couldn’t. I’ll use the cream there anyway. I guess the examined me because my surgery was recent and so they wanted to check it was suitably healed.
Mine start on 23rd. It sounds really early for planning since you’ve not finished chemo but then I’m the wrong person to ask about that since I had a different order.
Thanks for getting back to me.
I signed the consent form when I saw the oncologist at my local hospital a couple of weeks ago. She went through the possible downsides of radiotherapy and informed me I would have 20 sessions, which included the boosters, on my bad boob, underarm, above my boob and the collar bone/neck area. She didn't look at my boob. On my referral form she informed them that my final chemo would be 20th Sept so I wasn't expecting to go to Taunton until after that date. Better for me in some ways as Paul is away for a few days from the 23rd. My son is around if I have any post chemo problems.
Don't know if they'll tattoo me or use felt tip pen dots which is what they did for one of my husband's work colleagues. I'll keep you posted. Have you got a start date yet or is that dependant on how well everything heals? Sorry if you've already said, chemo brain.
Take care and don't worry about off loading or being miserable on here. I go to some very dark places in the week or so after TC chemo when I am utterly exhausted so you are definitely not alone on that score. I recently saw a local news item about a man with terminal lung cancer who was planning his funeral, he'd even painted his coffin! I took one look at how gaunt he was and thought "That's my future". If I saw it today I probably would bat an eyelid. Fatigue really is a terrible thing and there is very little you can do about it😪😪😪😪😪.
Susie B xxxx
Susie, my pre rads planning was an utter waste of time, I got lined up...tats done....lots of faffing and butting, probably took about half an hour in total, but when I actually went into my very first rads appointment a few days later , the machine caught my elbow, so had the the process re done....hopefully this won't be the case with you...
love the nd story! Quite an experience for your hubby, and a comforting one I should think....xx
I had two appointments Susie. First one with the registrar to explain how many sessions, and to sign the consent form and general look at my boob and any questions. Then planning I was in for only about 20 minutes as I had to wait a short while - I was laid out in the machine and they drew on me went through the breathing did the scan and tattooed the dots. And strangely that counted as session 1 of 20.
I don’t know if they’d tattoo you whilst still on chemo? Have you signed the consent forms yet?
Quick question. I have my pre radiotherapy appt on Thursday and wondered how long it may take and what do they do? The appt is just for me. Is this appt the one they tell about the breath holding, I'm a lefty. When do they mark you ready for the zapping. Did you just have one appt prior to rads? Sorry should have started with 'Quick questions'🤔🤔🤔
On the hair growth front my husband did ask recently if the straight hair on your head grows back curly does it have the opposite affect in the downstairs department (lady garden as some of you call it)?🤔😅😅😃😆.
Marlyn if my hair grows back like it did after FEC I'll be doing a double act with you at the circus🎪😃.
Leading on from the spooky/surreal chat my husband had the ultimate near death experience. He was involved in a freak sailing accident on the Solent in his late teens during November. A large wave hit them and they were all thrown overboard. Most of the group decided to swim for shore but Paul stayed with a girl as he was the strongest swimmer, she was the weakest. It was getting dark and they weren't rescued for several hours Strong tide and darkness didn't help. Anyway Paul ended up with hypothermia and his parents were told he wouldn't make it. Before he came to Paul recalls walking towards some gates but his dad was stood in front of them urging him to turn back. Paul is still here to tell the tale☺. The other strange thing was that whilst Paul was in the water his twin sister who was out with a friend at the pictures suddenly felt incredibly cold. Weird or what?
And with that I'll love you and leave you as I sit outside enjoying the sunshine🌞🌞🌞🌞xxx
i take 2 as soon as I get up ( with a litre of water) then it's done, I decided to take the 2 at once to save the faffing about.
Now, the bum fluff.....whilst having rads I met a lady who's hair came back with a vengeance....I mean literally...her face especially...a covering with downy blonde hair, she told me this could happen in rare cases (!) Of course I am now convinced this is what awaits me, I have (again) this morning waxed some other areas of my face....oh eck!!! All my hair is growing back....even my noo noo......everything....arms are getting pretty hairy too....Think I'll have to run away and join the circus at this rate! Xx
Hi daisydi, mine's not itchy, just a bit sore, that's why I know it's not eczema. Just using sudocrem at the moment. Will keep an eye on it though as I don't want it to become infected whilst still on chemo. May mention it when I see onc next Weds. xx
Hi Susie, Ive had so many different rashes I am now trying to think about the chemo one. I was put on Loratadine (antihistamine) to help with itching and you can get that from any pharmacy. Every time I stop it I revert back to being itchy so I am still taking it. Hopefully wont need it after this box. I have had so many creams I cant remember what was for what. Some were steroid creams which I didnt like using, there was a doublebase cream and an antibiotic cream when my ankle was really red, there was a 1% and 2% something then there was Rosina's recommendation for a little pot of something else( calendular or something like that). Sorry not being much help. If it is itchy I would definitely get antihistamines
Oops sorry Nettie!! There isn’t much football chat on here so I don’t know who people support! No one was expecting that were they? With most of our team injured and two keepers on the bench it was pretty amazing!
Husband must have preempted the curry as we assumed we’d eat the rest for breakfast but actually bought bacon when he went to the shop! So there is that. Had the usual sweaty night and everywhere stinks of curry from plenty of 💨 which is normal too! 😂 stretched my arm a bit in bed and it’s very sore around the joint today, so much so that it was difficult to get comfortable in most positions to sleep 😕
On the bumfluff chat, none here! Not noticed any unusual growth at all! Absolutely everything seems back to normal. My arms are certainly how they were before they had thinned out for sure. Had to buy some stinky cream for my armpit given I shouldn’t shave there now because of the lymphoedema risk and because the cord makes it super awkward too. And I have a full downstairs covering! The shorter bits on top of my head really started sticking up last night after I washed my hair. Will see what it’s like when I brush it might just need a little natural oil through it.
Still in bed now my arm isn’t so bad. Legs are a bit achy but I found a menopause website and it’s down to that apparently so I do feel better rather than thinking the T won’t leave me alone.
Edinbird, sorry about your take away meal. It seems as though it was pretty disgusting🤢☹. Chris is away this weekend so we really pushed the boat out and has an M&S £12 meal deal😀☺. Congrats to Norwich on their win against Man City. I'm a Southampton fan so won't be so chuffed if Norwich beat them.
Daisydi, I think I've acquired a strange rash similar to the one you had. I've got three patches, one on my shoulder blade, under my arm pit - not the operation side - and on my back. When the first patch appeared last week I thought it was caused by my new bra. It's definitely not eczema. Did you get any cream to put on it? Is it still there? Did it clear up by itself? Loving the chemo, it just keeps on giving☺☺😅😃😦😩😩☹. Sorry can't recall if anybody else got a rash or not.
Must get up now. Have a good day everybody. xxxxx
Marlyn, the post FEC bumfluff is so weird isn’t it? I haven’t had it on neck (could still appear though) but have have it on face, arms and legs. I ended up shaving it off my legs about 3 weeks ago and thankfully nothing has reappeared so hopefully your neck waxing will have sorted it for good. I still haven’t got any underarm hair and a bald fanjita. Maybe my body is being kind and concentrating all the regrowth efforts on my head. I flipping well hope so. Ps It is Sodium c.....drug you mentioned that they are looking at putting me on. Is this the one you have to sit up with and take twice a day?
Thanks for the glorious photos Susie. Your place looks so gorgeous, I may move in. Is that ok? 😁 xxx
Ps Edinbird, Manchester City are my team. You really deserved that win yesterday. City need to get their act together. Xx
Edinbird, what a barrying disappointment for you both. Takeaway sounded very yuk. I hope you haven’t had any follow on effect. X
Just grumpy now. And Norwich beat Man City so should be really happy! Grr. Going to bed now. And my legs still hurt 😒
Edinbird sorry about your takeaway. I just cooked a lovely steak and really enjoyed it. Have Indian tomorrow ....
Lovely pics Susie. My garden is shameful this year. Just cant be bothered
Can't recall seeing 'The appearance of fine fluffy hair may occur on the face or neck ' in any of the side effects literature. Perhaps we should report it and get it added. Just had to deal with it the once after FEC, then TC stopped anything else growing, for now. Do I need to get the scarves out Marlyn?
Some flowers for all of you.
Thank you ladies, hubby is painting the bathroom but we did have tea cakes for lunch to celebrate...
It would appear I am growing a very hairy neck (?) it's fine and fluffy but there....so this morning I waxed my neck ( never thought I would ever write that sentence) but it's left me looking like someone has tried to strangle me, even mum in law said....what on earth have you been doing? Felt like saying it was auto erotic thingy!!! 🤣
Anyhoo......Rubi needs walking and I need to move my bottom......xxxxxx
Hi everyone from a very warm and sunny Somerset 🌡☀️☀️☀️🌞.
I've loved all the recent chat. It's almost as though we're sat around a huge table letting the talk flow freely from one topic to another. And to think it only started with Daisydi asking " Why September weddings?". Will have to share some of our (me and Paul) spooky moments sometime. As for marriage, Paul's Dad told him not to get too involved with me as there were plenty of females in the RAF. My father-in-law was fine in the end with our relationship. Unfortunately he passed away just before our 3rd wedding anniversary. Actually my dad and mother-in-law both passed away around our wedding anniversary.
Love the Harvest moon photos Daisydi. We saw it last night, quite spectacular.
Implausible, a meet up for coffee or something in London would be great. Perhaps we could arrange something nearer the time?
Sonia, I've got messenger on my phone now. Will send details later
Must go as this was only meant to be quick drop in. Will talk more later. Enjoy your day everyone.
Love to each and every one of you xxxxx
Morning lovely ladies
Nettienoo pleased to hear actually how you are dealing with this side of treatment still hard but like you said hopefully it will settle and become easier, my days are pretty similar xx
Thinking about you all with all the different issues you have, I know how difficult it is choosing the right care home does you mam not qualify for CHC its just not far when families need to be putting in the extra. Before running the Day Centre I'd worked in a few Nursing /Residential homes and once our funding was stopped returned to another Nursing /Residential home only to find out whilst I've been off its changed back to Residential only due to lack of nursing staff, I think I think i probably won't be back at work until early next year, seeing the surgeon again on 26 September for uplifting on good side. I still don't think I could cope with returning to work and be able to give 100% thinking about standing down yet again its far to stressful and the days are long but I find it absolutely wonderful and used to get a great deal of job satisfaction xx
Hi Sonia, I did go back to sleep after 2 hours of being online. When are you thinking of going back to work? I am going to speak to my GP about a phased return. I know I need a nap in the afternoons so I'll probably opt to come home by lunchtime. I just don't want to build up too quickly and then end up feeling rubbish.
Seaside, it’s horrid when you can’t sleep, especially when your brain won’t rest. Hopefully you managed to get back off to sleep.
Mare you able to do phase return, but I know what you mean about worrying about going back, it’s definitely on my mind now xxx
Well it's the middle of the night and I'm wide awake.
Popped into school today and that always sends my mind whirring. I am hoping to return to work after half term but not sure how many hours I'll cope with in the beginning. Rosina, dropping a day sounds good if that is an option. I often wonder how I'll ever cope with full time hours again.
As for September weddings, mine was going to be in August but then it would have meant that a lot of people couldn't make it due to being on holiday so we opted for September instead. We were only 21 at the time but had been together since we were 16. We met at school during our A levels after I had just moved to MK.
I haven't experienced anything which would suggest former lives, etc but have had premonitions via my dreams.
Really need to try and get back to sleep now. This is what worries me about returning to work as I seem to have at least 2 or 3 nights a week where I am awake for hours. The other night I only slept for 3 hours in total. Not good. I went to the cinema the following day and slept my way through most of the Lion King.
Hope you all have a good Saturday. I'll try not to spend most of mine asleep although at this rate I might have to.