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February 2019 chemo starters

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Re: February starters 2019 - yes, we rule!

Implausible, the actual " beam me up scotty " lasts only 3 minutes, the extra 20 mins is getting you lined up. Side effects are a red swollen painful boob, but they see you after a every week to chat about these and she did say sometimes the effects can be permanent! Great! Oh, the biowhatsits is bones is it? They probably come with barrying side effects too no doubt!! Grrrr xx

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Re: February starters 2019 - yes, we rule!

Thanks Implausible,

must add Cirenster to my places to visit.

 I have a ‘ thing ‘ about hares ever since discovering Jackie Morris ( children’s books illustrator).

Rosina Hare by Jackie Morris

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Re: February starters 2019 - yes, we rule!

Hi all

 

I’m starting to flag at work now …. It’s a long old day! I would sneak off early but the young lady who works for me is just finishing some work off that she wants me to check before it goes to the client, so I have to wait.
At least I can say hi to you lot while I’m hanging around….

 

Nettie I’m sorry about your delay ☹ I didn’t realise there were other things that could delay chemo – I thought it was all about those neutrophils…… bummer ☹ I guess white blood cell count is closely linked though. Hopefully all will be go go go for Monday.

 

Marlyn – good to hear that they are speeding ahead with your rads etc, the sooner it is all done the sooner your life can get back to normal. Did your doc tell you what side effects can b expected from radiotherapy if any? My cousin assures me that it is “a total doddle” and that the only annoying thing is having to go to the hospital every day for a month. But I’m sure there must be SOME side effects. Everything else seems to have them! And I’m right boob – so hopefully just normal breathing 😊

Was it bisphosphonate that they want you to go to a further meeting about? That’s the drug that prevents osteoporosis. I was supposed to be having that too but when I went for my dental check before chemo started, the dentist said I have 2 old dead teeth at the back of my mouth that need taking out. And while they are there I can’t have the bisphosphonate for some reason. So after all my cancer treatment is over I need to have those taken out, and then go back to the onco for the bisphosphonate. Or something.

 

Sonia if they are planning to use that PICC line still, I really hope they can at least sooth the swelling and soreness ☹

Rosina – the hare thing I because in 1971 during an archaeological dig, they found this lovely Roman mosaic in the town:

 

haremosaic.jpg


Cirencester was – as Corinium – the second biggest city in Roman Britain (after London) , so they looooove Roman stuff round here 😊 And the hare has become the unofficial symbol of the town because of the mosaic.


Daisy – I really don’t blame you for wanting to throw in the towel! Until they have figured out exactly what has caused you to react so badly, you are hardly going to be gleefully rushing to your next chemo appointment ☹ I really hope they can get you sorted.

 

I was hoping for a phone call from my oncologist so I could at least make an impassioned plea for a dose reduction on my next T (a week today if all goes to plan), given that I have had a rough old time with the first one. But instead he wants me to go and see him face to face – in Oxford which is an hour away (as he still can’t drive following breaking his foot playing football months ago!) – this Friday afternoon at 3pm. I’m a bit gutted as that was the only opportunity I had to go see the new Avengers movie!! I’ve been waiting to see it for weeeeeeks! But, never mind, needs must, and I do need to speak to the doc.

Hopefully I can squeeze the movie in next Monday afternoon after I have my bloods done…..

 

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Re: February starters 2019 - yes, we rule!

Oh daisy, I'm not surprised your wavering, it really does make you think seriously about it....it's when my oncologist said I was in danger of having permanent side effects....he took the decision off me thank god! I hope there's a good solution for you, surely there's only so much a body can take????? Xxxx

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Re: February starters 2019 - yes, we rule!

I think it's something todo with moving the heart? You hold you breath for a few seconds....you left? Xx

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Re: February starters 2019 - yes, we rule!

Just a quick drop in. Finally finished packing🐣👓🕶👕👖👗👙👝👠👡👞. Went to a local village pub for a spot of lunch. Tidied around house and garden. Watered plants and put extra food out for birds, don't know if we can trust Chris to do it.

Sonia28, hope you manage to keep the PICC line. They are so good when it comes to chemo and bloods. Mind you I wish I didn't have mine at the moment, it'll be a fashion parade of PICC line covers while I'm away☺.

Marlyn, why the special breathing  for the left boob when it comes to rads? Any ìdeas? Good to know things are moving ahead for you.

Love to you all xxx 

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Re: February starters 2019 - yes, we rule!

Hi all just a quick update.  Yes I have had an allergic reaction but they are not sure whether it is from T or Filgastrim.  Had blood done and am almost neutropenic. Now got to go tomorrow for repeat bloods but they alerted me to use red card if necessary. No wonder I feel ill. Now I am scared too.  I told them today that I am not sure I want any more.

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Re: February starters 2019 - yes, we rule!

Implausible,

why are hares a big thing in Cirenster ?

I love the blue one outside your office 🤗

Rosina

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Re: February starters 2019 - yes, we rule!

Marilyn, that all sounds like it’s full steam ahead. 

Implausible, your picture are lovely, glad your work day is going quickly. 

 

Well they have taken the orange orange metal bit off, and are hoping I can get my chemo through the PICC next week, but they think it will have to come out then and maybe cannula for last dose, I’m not sure as they couldn’t find my veins before any chemo. Well will wait and see. 

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Re: February starters 2019 - yes, we rule!

Nettienoo, fingers crossed for the heads up on Monday, like you say, we don't want delays...xx

 

ocean...ouchy! Xxx

 

well, it's all steam ahead for me, ct scan and tattoos Thursday morning, herceptin in the afternoon.

Then rads begin the following thurs ( they don't waste any time do they)? The rads chat took only 20 mins, all looks pretty straight forward, any of you left boob? There's special breathing you have to do...so that group took longer! 

Got appointment for 10th June for a bio phosphate clinic???? What the hell is this??? Anyone???

 

They want me to start my hormone inhibitors immediately but have told them I won't, I really need to be as well as I can be for the 4 and a half weeks of rads....if I'm suffering any side effects from the meds I think the rads will be pretty horrible experience....my decision is final....

 

didnt sleep a wink last night ....far too much whirling around in my head....so feeling really grotty today....hope I sleep tonight! 

 

Love you all xxxxx

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Re: February starters 2019 - yes, we rule!

Cirencester looks lovely. I’ll add it to my list of places I want to visit. 

Really fed up now. Had my bloods done earlier and my white blood cell count is too low for chemo to go ahead tomorrow. Neutrophils are ok so I suppose that’s good. Bloods being redone on Thursday and if improved will have chemo next Monday at 11. Keep everything crossed as I really don’t want anymore delays as it will put me being well enough to go to the Royal Opera House in July in jeopardy.  Xx

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Re: February starters 2019 - yes, we rule!

Oh Sonia that looks really soreSmiley Sad Smiley Sad Smiley Sad

 

Hope they can sort it!

 

As for me, I've had a very busy morning at work (just escaping now for a bit of a walk and to get a sandwich before heading back to the office) which suits me just fine as it makes the day go quickly.  Also it is lovely to use the maths side of my brain!  It doesn't get much of a workout sat at home.

 

As I work in lovely Cirencester, not ugly Swindon, my walk to Waitrose passes some pretty things.

 

Here you go:

20190507_135325-picsay.jpgRight next to my office

 

20190507_142148-picsay.jpgOur half pressure washed church

 

20190507_142218-picsay.jpgHares are a big thing in this town Smiley Happy

 

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Re: February starters 2019 - yes, we rule!

Oh Sonia28 you poor love. I do hope they get you sorted quickly.

To everyone with appts, work, visitors, aches and pains etc today, I wish you all a good a day as possible. 

Daisydi, how are you faring? I’ve been thinking about you. 

Love to you all you gorgeous people. Xxx

Ps I’ve had bloods done this morning so if I don’t get a phone call this afternoon it will be all systems go for chemo at 10am tomorrow. It should have been my first T but will now be FEC number 4. Xx

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Re: February starters 2019 - yes, we rule!

MJB, hope the royal visit goes well.xx 

Edinbird, hope work goes okay today.

 

presently sat in hospital while they wait to see if my PICC line is okay, swabs last week were okay but it has been oozing all week yuck D581A808-CF7F-45FC-B011-34A6D8D17E54.jpeg

The swelling in my legs have gone down so that’s good. Oh the joy of it all. 

 

Hope everyone else is well

 

MBJ
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Re: February starters 2019 - yes, we rule!

Morning ladies

Just waiting for my Royal visitors now, well that's how it feels. So stressful, I have a blister on my trigger finger from the Dyson oh heck blinking arthritic fingers. Could other half find the new mop heads oh no I went in the garage and there they were in a bag Infront of him, nothing changed there then!  House looks clean I hope and cats banished to utility room. Tesco cake though not enough energy to clean and cook. 

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Re: February starters 2019 - yes, we rule!

Morning Implausible and Edinbird,

 I have to make a move too. 

Driving to my Ayurvedic Lady this morning. She goes through everything with me so I feel it's like a counselling session with health and lifestyle thrown in as a plus.

Guess I am spending nothing at my hairdressers so she is my replacement ( and I don’t go every 6 weeks either!!!).

My mum nagged me to get a dyson after my node clearance ( my brother has one and he got one for her) so I did in the January sales and I love it ( the V8 animal) even though I have no pets.

Talking about nagging every phone started with : have you bought the hoover yet ? ( meaning the dyson) .

 I bought it to end the nagging 🤪

So pleases that I did. 

I when I told her I had and how good it was her answer was ‘ don’t preach to the converted’.

H1 also refers to her as ‘Google ‘

Hugs,

Rosina

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Re: February starters 2019 - yes, we rule!

Doh, I had missed Trixie's post.

 

Glad it went well!

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Re: February starters 2019 - yes, we rule!

Hi Edinbird 

I used to find it difficult to get motivated to go to work after any sort of break, so can understand  your trepidation of returning😕. On the positive side things would inevitably be ok and I'd come home thinking it wasn't so bad afterall☺. Just be careful of that sore tummy. Take care and try and have a good day. You can do it! xx

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Re: February starters 2019 - yes, we rule!

Morning everyone,

 

A quickie as this is my week in the office and I haven't even had a shower yet....better not be late!

 

Marlyn.....  do let us know all about radio....that's something I haven't even thought about yet!  I know I'm doing it every day in July, and that they are zapping both my boob and my armpit.  But beyond that,  I know nada

 

MBJ a good half of my local friends work for Dyson, thanks for keeping them in business Smiley Happy

Edinbird, also back in the office today.  Have a good one.  Love the nails. And the ceiling poop story Smiley Happy   I mean..... how???????? Smiley Very Happy
and I didn't realise brie was off limits.  Oops!!!

Oh I just saw your latest post.  Sorry you are feeling down.  I promise you will enjoy work once you get there.  I also was a little unsure before my first day back.  I was worried people would look strangely at me with my little cancer cap!  But they were just absorbed in work as usual and soon so was I.  It just felt like normality for a few hours.  Didn't even think about bc for a bit.  It was lovely!

 

Trixielady....  did your chemo happen?  Hope you are ok

 

Seaside.... lovely photos from your Mayday walk.  Isn't it wonderful to feel a bit more human again after the T assault!

 

Daisydi any improvement with the rashes?  I really hope so, you have suffered enough!

 

Nettie what a gorgeous birthday photo!!  You don't look anywhere near the age you claim to be!!  Glad you had a lovely time.  Pity about the sniffly grandsons but that just gives a good excuse for another birthday meal Smiley Happy

 

Rosina - more gorgeous walk photos.  And I am giggling at "doomsday" Smiley Happy

As for my energy levels, thanks for asking, I'm definitely nowhere near as "back to full strength" as I would have been on one of my FEC cycles, still a bit wobbly and quick to tire.  But I'm infinitely better than I was this time last week, so I'll take it.   T definitely hit me harder than FEC though.  Still hoping for a call from my onco so I can maybe negotiate a reduced dose next time....

 

Accordingly, after hitting my 10k steps on Saturday and Sunday, and knowing I have a tiring day in the office today, I designated bank holiday Monday a chill out day.  Never got out of my pyjamas yesterdaySmiley Happy  I did still somehow manage to rack up over 3000 steps on my Fitbit but I put that down to catching up on quite a lot of neglected housework in the morning.

Spent the afternoon working on my comic:
20190506_131049-picsay.jpg

 

20190506_174328-picsay.jpg

 

Love to all
Quick shower time!!

Sarah x

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Re: February starters 2019 - yes, we rule!

Ok Edinbird come on I'll swap places but i think you might end up sacked haha xx

You enjoy it really xx

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Re: February starters 2019 - yes, we rule!

Need to get up for work. I have an hour. I just want to stay in bed. I’m not that tired but I guess it’s just trepidation. It’s only for a few hours but I have no motivation. I don’t know what to wear. My lower abdomen is sore has been on and off for four days now. I could easily go back to sleep until lunchtime. Feel a bit fed up. I moan when I’m sat here isolated and now I can’t be bothered to go into civilisation. Want to see my friend this afternoon but he’s been incredibly quiet lately and I don’t know what is happening there either. Can someone else be me today and let me stay here?

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Re: February starters 2019 - yes, we rule!

Morning my beauties,

 

How are you all today?

 

Rosina, I'm not surprised you slept well after that walk. That was a long one. Looks good though.

 

Trixielady, glad you've managed to tick another one off. Hope you're feeling OK. I think the Herceptin for me is given via IV because it's slower so then if I have a reaction, they can monitor it more easily. I might have completely made that up though!  I will go onto injections once I've finished T.

 

Have a good day everyone.

 

Sar xxx

 

 

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Re: February starters 2019 - yes, we rule!

Morning ladies  can't believe I've just lost my post it took ages, it went something like this 

Sonia28 hope your ok? Xx

Chemo and 2nd herceptin went well x

Daisydi hope your infection is getting better ? Xx

Rosina pleased your walk went well with H1, Liz and the beautiful Betty xx

Nettienoo lovely hair, hope you had a wonderful meal and birthday? Xx

Implausible Bristol looked fantastic  you and your partner in crime looked lovely together bald loved the beards hahaxx

Edinbird you have been so lucky with the cold cap  your head bands look good xx

Seaside sar, 2nd injection still forgot to ask the difference between IV & Injections wasn't yours IV? Xx just seen you and hubby managed a lovely walk it looks fantastic xx

MBJ hope your company loved your home and your new Dyson done its duties well at that price it should haha xx I've got a shark and it always feels top heavy but good x

Susie enjoy your break away xx

Deano how are you doing? Xx

Ocean21 hows your beautiful garden and your lovely dogy? Not eating anything it shouldn't i hope?? Xx

Sandra, Veronica how you both doing? Xx

Marlyn hope your rads go well, is your herceptin injection or IV?? I haven't found out the difference yet and why ?? Xx

 

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Re: February starters 2019 - yes, we rule!

Morning Ladies,

 I have slept 10 hours straight after my walk yesterday ( the Complete Worth Way) Crawley to East Grinstead. 

I walked with my friend Liz, Betty her dog and H1 came too. We had a lovely lunch at the end and caught the bus back.

AECE8281-A4DA-439D-B703-F2FA4D4A87E4.jpegSign at the end of the trail in East Grinstead

43F8BEA4-4815-464C-AF69-3147A84A5DFC.jpegBetty dog was very well behaved

Seasidesar, you look like you had a lovely walk too.

Nettienoo, glad that you enjoyed your birthday. Looking very glamorous and 10 years younger!!

Edinbird I am sporting the ’cancery’ look as my bald patch is too large for a headband like yours to cover it , so my handyband has to be rolled out to full width.

My friend Liz also commented on my eye brows ( still there but not as bushy).

Oh well , I am booked in for the ‘Look Good Feel Better’ session in June - good timing 🤪

Trixielady did Chemotherapy go ahead?

Marlyn, that is a quick start for rads.

Susie B enjoy Aix.

My mum arrives next week Tuesday 14th and H1 is referring it to ‘Doomsday’ - they are both ‘ capricorns’ enough said.

Ocean21 how are you?

Sonia28, Daisydi and Deano ( horse lady) how are you all faring?

Implausible have your energy levels picked up?

 I was planning on seeing the film ‘Tolkien ‘ but my friend Liz who saw it told me to not bother as it’s a dud😐

https://www.theguardian.com/film/2019/may/05/tolkien-review-film-nicholas-hoult?CMP=Share_iOSApp_Oth...

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Re: February starters 2019 - yes, we rule!

Nettinoo, you look lovely. Glad you enjoyed yourself.

 

Trixielady, hope everything went well today. 

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Re: February starters 2019 - yes, we rule!

You look great, birthday girl!

 

Glad you had a good time. 😊

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Re: February starters 2019 - yes, we rule!

I had a lovely birthday thank you. I managed 3 courses and 2 glasses of Sauvignon Blanc and feel a right porky pig now! 🐽🐽🐽. My 2 grandsons were supposed to be at the meal but have both started with colds and couldn’t come so they were dropped off with their other Nannie. I’ve told them we will have another meal out when they are better so they don’t miss out. I was planning to do that anyway as my son is working on his survey ship off the coast of Norway at the moment so missed out today too. I do feel quite exhausted this evening with all the socialising so off to bed soon with a Horlicks. I’ll catch up with everyone properly tomorrow.

ps I hope chemo went ok today Trixielady. 

 

4F63ADDE-8503-4285-9A3D-ECD215745105.jpegWiggy and contact lenses today!

 

 

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Re: February starters 2019 - yes, we rule!

Hi everyone,

 

Hope you've all had a good day.

 

Trixielady, did chemo go ahead? How are you feeling?

 

Daisy, hope your rash/itching/swelling has eased a bit. Sounds so awful.

 

Marlyn, your rads chat got scheduled quickly. Very efficient. Let us know how you get on.

 

Edinbird, the headbands definitely don't look cancery. They look really good on you so wear them with pride. Good luck at work & coordinating your outfit, etc. I wouldn't have the energy so am totally in awe of you.

 

Susie, everything matching, a girl after my own heart. I've lost count of how many headscarves and hats I've got but even the nurses have started commenting that I seem to have one to match every outfit.

 

Well I went  for a very long walk today with my other half. We drove out to a nearby village, parked up and found a lovely riverside walk leading to fields with sheep and cows. We walked back along the high street and had a hot chocolate at one of the pubs. It was a lovely afternoon.

20190506_132632.jpgThe guardians of the gate. No way were they letting us through!

 

20190506_145327.jpg

 

20190506_131724.jpg

 

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Re: February starters 2019 - yes, we rule!

Hi everyone 

Quick catch up.

Implausible, don't you rock the new look☺. It really shows up your pretty blue eyes.

Nettienoo, your wig looks brilliant. Have fun with new hair styles with it.

Edinbird, your bands look ace and because you've got that lovely long hair they suit you and don't look cancery at all. Now me, with short, balding hair, would definitely look cancery. As for the nails I like the snoopy ones, but then I am a fan. As for the co-ordinated look, that's me too, hence the reason I've bought so many bandanas and PICC line covers. You should see what's going into my suitcase and we're only away for 5 nights ( 4  in Aix, 1 at Heathrow airport). As for the poor lady with the poop problem, that made me laugh🤣.

Enjoy the rest of the bank holiday weekend. All the best to all of you who have had or are having chemo this week. xxxxxxx

 

 

 

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Re: February starters 2019 - yes, we rule!

Thank you everyone for being so positive about my headbands... it’s just odd having them on. Need to decide whether to go headband or hat when I go into work tomorrow. I’ve not had to wear smart clothes since 13th February! Will have to get up early to work this all out!

 

I have blue nails now so could coordinate or not bother... I would always coordinate my outfits but now I have to include headwear, too much to consider!

 

163384A0-AC68-428E-BE6C-65623429F9C5.jpegSnoopy nails

 

B3648B4F-E561-4382-904A-1FEA33695939.jpegWoof!

 

 

For those feeling less good today, at least you are not the lady on one of my Facebook groups who had to get 💩 cleaned off the ceiling in hospital...! I don’t think any of us has been that explosive?! She was laughing about it so all good. I guess what else can you do 🤷🏻‍♀️

 

Time for burgers. Figured if I grill them to death in the George (Foreman grill) they’ll be fine but I would’ve normally have had Brie on them. Boo. Sainsbury’s was also taunting me at the weekend giving me a voucher for Brie. It’s good until the end of the month and by then I’ll only have one chemo left... maybe it’s meant to be a celebratory Brie depending on the use by date? We’ll see

MBJ
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Re: February starters 2019 - yes, we rule!

Hi Girls

Nettienoo the wig looks fantastic wish I had gone for real hair now. Implausable I agree the bald look and feel is much better than the bedraggled look. Mine is starting to sprout now white but with some dark bits for good measure. Daisydi and Deano I hope your side effects improve soon. Edinbird I love your headband and gosh you still have loads of hair, Marlyn good luck with the Radiologist tomorrow. Trixielady I hope you are doing ok with your next round. You girls have coped so well with so much crap that I feel like a wimp for having thrown in the towel so easily. 

I have been having a workout just bought a new cordless Dyson total clean. You won't believe the animal fur it has sucked up. Shameful. I blame my daughter for leaving her tow Moulting pests with me and buggering off to Abu Dhabi. I even sent her a photo of the full cleaner to prove how much they were moulting. 

Well now to tackle upstairs. I have tow visitors coming tomorrow morning my daughter's mother in law who is great and another friend who is a bit like asking the Queen to tea, and she has not seen the new house so I am sure a full tour will be expected. I think my good arm will be knackered after all this cleaning, but better not complain to hubby as the new Dyson cost£476 😂

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Re: February starters 2019 - yes, we rule!

Happy Birthday Nettienoo, have a great day Woman Very Happy

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Re: February starters 2019 - yes, we rule!

Happy birthday Dr evil!!!! Oh that did make me titter... xx

 

implausable....much prefer the skin head...and you do actually have a good shaped head xx

 

edinbird...you can't  beat a bit of elo...we saw them in Birmingham last October, my favourite is mr blue sky xx

 

Trixelady ...good luck today Hun....is this your first herceptin? Got mine on Thursday...xxx

 

daisy....I really do feel for you, hope it gets better soon xxx

 

well....I'm totally rock and roll....went to marks this morning and bought slippers and jimjams....cause that's just the way I roll! Mind you..it was very " peopley " out there ( has this always been the case? Or has the population increased since I began chemo)?  The amount of coughing and sneezing didn't impress me either....I was ducking and diving through marks like an sas soldier.....

 

Got rads chat tomorrow, so will let you all know how that goes....take care my beautiful sisters.....feel so sorry for all those enduring T....and thanking my lucky pants I don't have to.....I love you all xxxx

 

 

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Re: February starters 2019 - yes, we rule!

Best of luck Trixielady.....  how did your heart scan go the other day?  I presume it was all ok as you are back in the chemo chair?

 

And Edinbird, I'm totally not just saying this, but I don't think the headscarf looks remotely "cancery", not with all that hair!  Nobody in the street is going to look at you with all that hair still there and think anything like that.... as the assumption is always that cancer = bald.

 

It just looks different to your hubby because it isn't your usual look.....

 

And Daisy.....  if it was just a straight allergic reaction I think you would be getting more relief from the anti histamines by now Smiley Sad Smiley Sad  worth another call to 111?

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Re: February starters 2019 - yes, we rule!

Good luck Trixie hope the bloods are all fine xx

 

Funnily enough my feet were sore down the outsides... that’s joints...!

 

Heres the latest headband. This was the mystery band, a bit disappointed as I was hoping for something a bit out of my comfort zone and it’s another black and white one, so three of six are. Oh well. Husband has decided that they do look a little cancer patient-y, like me. Maybe it’s because it’s not what I’d normally wear but I’m starting to go off them a bit. They do the job. I guess I shouldn’t worry. Prefer my hats if I’m honest.

62009516-BF1C-49BD-9D1D-1ACBA39568F6.jpeg

 

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Re: February starters 2019 - yes, we rule!

Happy birthday Nettienoo hope you have a fantastic day xx

I'm sitting waiting for chemo and my herceptin hopefully bloods will be go so it can go ahead xx

Morning ladies hope your all ok xx

MBJ
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Re: February starters 2019 - yes, we rule!

Happy Birthday lovely Nettienoo.💝🎂🍾🥂🍹🎉🎁

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Re: February starters 2019 - yes, we rule!

Happy birthday Nettienoo! 🎂🍰🎁🎈🎉

 

Enjoy your lunch.

 

And here's a birthday song for you because I can't sing even though I've joined a choir 😂

 

https://youtu.be/L6BzCpNOZX0

 

 

 

 

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Re: February starters 2019 - yes, we rule!

Hang in there Daisydi,

drink lots ( 6 cups/ glasses of water with lemon - liver cleansing).

 I have developed dry skin around my mouth and definitely some eczema on my chin.

Eat easily digestible food ( veggie soup).

Rest as required.

 I have listened to the theme from ‘Chariots of Fire’ this morning.

Chariots of Fire - main theme

Hugs,

Rosina

 

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Re: February starters 2019 - yes, we rule!

Thanks for the birthday wishes peeps! I’m heading out for a family lunch later. It won’t be quite the alcohol fuelled manic socialising I do on most other birthdays but really looking forward to it all the same. 

Daisydi, I think you should ring for advice again if it’s getting worse and get a different GPs opinion. You can’t carry on suffering like this.  Xxxx

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Re: February starters 2019 - yes, we rule!

Hi Deano

So sorry to hear about the terrible side effects from T. I don't know which type of bc you have, ER, PR or HER2, but if FEC has reduced your lump it may be worth asking if you could stay on it. I don't know if you read my posts last week but I'm on a trial and after 4 rounds of FEC my Gremlim has shrunk from 21mm to 6mm, which pleased my onc  I'm HER2 (positive/negative inconclusive) and am now currently waiting to have surgery after our trip to France. The down side for me is that I will be having TC after surgery as it is part of the trial.  The other option is to see if the quantity of T could be reduced. Hopefully when you next see your onc you'll be able to make an informed decision. Take care and I hope you continue to feel better ❤❤❤ 

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Re: February starters 2019 - yes, we rule!

Morning all and a big Happy Birthday to you Nettie.  Hope you manage to have a fairly decent day.  As for me I have more spots on the other side of my neck and my neck is swollen. Still red and itchy and swollen everywhere else.  Totally pi...d off with this malarkey

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Re: February starters 2019 - yes, we rule!

Great post Implausible.

‘Moondragon’ love it.

Re. Side effects, yes my oncologist warned me about water retention ( swollen ankles etc) but so far I have avoided this ( Walking must help).

My period is 3 days late so I wondering whether it has been knocked on the head for good.

No I am not pregnant. 

House action ( or whatever the term was,  has reduced to monthly occurrence and both of us don’t have the will to leave our bed afterwards which is funny). 

I watched the ‘C word ‘ on Netflix yesterday which was good ( about why there isn’t more info given to the public  on Cancer prevention ).

Hope everyone has a good bank holiday 🌼

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Re: February starters 2019 - yes, we rule!

Good lord where do I start after that?!

 

Erm... happy birthday Nettie!! 💕🎉💐

 

Just about to get up have some food then off for my reflexology. I think I needed it more during T troubles but it will still be good. GDPR day is tomorrow but it’s just officers coming to clear out our files they are going to be horrified!! I think we just need a big skip... 

 

Marlyn I love ELO!! Went to see them in Glasgow two years ago 😁

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Re: February starters 2019 - yes, we rule!

Happy Birthday Nettienoo🎂🎂🍾🍾🍾🥂🎈🎈🎉🎉🎉🎁🎁💐. Have a good one! 

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Re: February starters 2019 - yes, we rule!

 

Morning all

 

Hope we are all feeling a little improved on this bank holiday morning.  One step at a time!

 

Daisy I'm glad to read that the anti histamines are already starting to tackle the itchiness.  Hopefully overnight they have worked their magic even more and you are starting to feel more comfortable?  It really sounds like quite the ordeal Smiley Sad Smiley Sad Smiley Sad

 

Edinbird you have reminded me I really need to sort my nails out too.  I read somewhere at the beginning of all this to just re paint your nails before each chemo session over the top of the previous nail varnish, because chemo nails don't cope well with nail varnish remover.  But after doing that since mid Feb my nails are a lumpy mess!  Half thick with multiple coats and half chipped off to the bare nail.  Given I am supposed to be interviewing a new starter tomorrow at work, I think I need to smarten up a bit!

 

And yes I think you are first up for cycle 5 Monday week, with me hot on your heels the next day, assuming neither of us have any delays....fingers crossed (can't believe I am keen to go back for more T given it has been so tough!  But just want to get to the finish line)

 

Enjoy your reflexology.  And as for G-bloody-DPR, that's my line of work.  My company spent the last 3 years or so advising our clients like Nestle and P&O and Goldsmiths etc etc on every tiny little detail and aspect of it.  So if you get stuck, ask away.  It isn't going to help that sleepiness of yours though!  It will just send you to sleep quicker Smiley Happy

 

Rosina I love wild garlic.  We have a ton of it here in Wiltshire.  When my kids were young we used to do geocaching with them - it was a way of getting them excited about walking as it meant they would get a prize of sorts for finding the hidden box - and so we spent a lot of time in the woods and this time of year was all about the smell of the garlic.

 

I went exploring yesterday to see what I could find within a reachable walking radius of my house, and ended up nosing about an old abandoned factory.  Well, more accurately, an old abandoned set of car parks as the actual factory building has been pulled down.  They covered a huge amount of ground, must have been parking for thousands of cars.  All overgrown now, what a waste of land.  But worth a look round for me as I found some nice old graffiti in there.

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20190505_165030-picsay.jpgFrom 2016 but still looks bright

 

20190505_164337-picsay.jpgNice dragon

 

So - still not as picturesque as your woodland by any stretch!!  But something sufficiently different for my walk that it made getting my steps more interesting than just the same old stroll round the block.

Sonia great pictures from the gymnastics meet.  Is your boy the taller of the two in the first pic? I'm assuming so as he is the one with the biggest smile in the second photo and you mentioned it. Great results.  You must be super proud.

Swollen ankles is a new one, is that yet another chemo symptom?  Gift that keeps on giving, as they say!! Hope they have settled down now.

Marlyn.....  I'm now imagining you flat out on top of one of the graves having a little nap with Jeff Lynne's multi layered harmonies swirling all around youSmiley Happy  I'm with you on the "woozy moments" though.  I have discovered that I can walk a fair way still, but not in one go.  I don't have the stamina for that any more.  Have to have regular sit downs or at least "stand still and lean on somethings" to get my breath back and stop my head from feeling spaced out.  But then I'm good to go again for another mile or so....

 

Nettie I talk to inanimate objects too.  And that started long before the chemo!  So don't worry, you're not alone Smiley Very Happy

 

Is it your birthday today??  Facebook just popped up to tell me it is.  Happy birthday!!!!!! 🎂

 

And I have also been doing my best Dr Evil impression since yesterday.  It's so much fun!  "One meeeeeelion dollars"   ha ha

 

Here's me without the beard.  I actually legit like being bald so much more than the wispy naff hair.  I wish I had just done this up front and not bothered with the cold cap at all.  But I guess I had to try it.

I've decided that Marvel's Moondragon is my new alter ego.  Although to be honest, I'm not convinced I could pull off that outfit with my current lopsided boobies! Smiley Very Happy20190505_194625-picsay.jpg

 

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And pass on my congrats to the pigeons! 

 

Love to all

 

Sarah x

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Re: February starters 2019 - yes, we rule!

Hi all! Thanks for all the lovely comments about my wig. I’ve called the real hair one Rosie and the synthetic one Cynthia and said goodnight to them before I came to bed. I think chemo is def making me lose the plot. 😂😂.

Deano sorry you’ve had a rough time with T. Hopefully if it can be reduced you’ll have a better experience next time eh? 

Daisydi. I’m glad the itching has improved a little. Just a thought but have you been on double steroids for T? As well as being ultra sensitive to FEC, I don’t cope very well with the steroids either and one of the side effects for me is a rather swollen Fooey for a few days. 

Implausible, you have a much nicer shaped head than me. You won’t regret the shave and as you’ve done some cold capping it should grow back quickly when the time comes. As for looking like a  villain you don’t at all but I obviously do as my husband keeps stroking my head and taking the p by doing the finger to lips thing like Dr Evil in the Austin Powers film.  Cheeky wotsit but it does make me giggle. 

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Rosina, I never knew wild garlic could look so pretty. 

SusieB, well what can I say? Bloody impressed with your stamina girl. 😉 There’s been no action in this household since bc reared it’s head (apart from 2 pigeons on my shed roof this afternoon). 😂 

Sonia, congrats to Danny and partner. You son is such a handsome boy. You probably came past Stafford on your way to and from Stoke. I would have waved if I’d known. 

Marlyn and Edinbird, pace yourself girls and don’t overdo things. I know it’s hard when you feel a little better and want to make up for lost time but listen to your body. 

I’m sad that T seems to be causing so many problems for all my lovelies. Big hugs all round. 

Love you all. Xxxxxx

 

 

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Re: February starters 2019 - yes, we rule!

Hi Implausable

you look great rocking the Sinead O’ Connor look. 

Yep I was at breaking point come thurs/ fri - definitely gonna ask for a much reduced dose and ask to take meds and injections earlier as by the recommended time it was to late with the thrush. I also used deep heat pads on offer in Morrison’s and stuck one on my back and this helped with my back ache and points to remember avoid sweet stuff as this didn’t help me either. This night mare will soon be over and hopefully we can laugh about it soon ( easier said than done I know but it will end) 

much love to everyone and those just had T give it a week it does get better 😍❤️👊

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Re: February starters 2019 - yes, we rule!

Oh Sonia seems like the T doesnt agree with you either.  We seem to be getting similar side effects.  Take care x

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Re: February starters 2019 - yes, we rule!

Sarah!! You look great! 😊