62283members
327911posts
cancel
Showing results for 
Search instead for 
Did you mean: 

February 2019 chemo starters

Member

Re: February 2019 chemo starters

Hi Edinbird, I have got some lorazepan or something which I was prescribed at the beginning after surgery.  I may take half tonight and see what happens ...  I am also having sweats,sore legs and hips and sore boob where I have some new blisters underneath.  Nothing major but just annoying.  I did loads of hoovering yesterday and cut the grass the day before and my arm really hurts too so I am taking painkillers before bed.  Regarding the CT planning I dont think you need a cannula, I'm sure I didnt have one

Member

Re: February 2019 chemo starters

Aw Daisy you know I know all about the sleep woes... I’m pleased to say that I’m over a week free from the sleeping pills! Maybe it was learning the cancer was all gone, maybe it was finally being able to take something for my sweats (which I feel have reduced but not gone away by any means). I feel a lot better although the last couple of days I have struggled a bit to get up. My legs have been aching on and off. Have you done the tire yourself out that my oncologist suggested? Can you push an extra dog walk and really knacker yourself out? The meds that Marlyn said about might help, he did say that I might need emergency hard stuff just to get one good night under my belt and break the cycle but I seem to be getting better.

 

So I have my CT planning on Monday! Glad I said I could take any last minute cancellation. Hopefully that means I start by the end of the week after. Feeling happy about that. And the appointment for the scan is at 4.30 so I have all day to drink for the cannula! 😁

Member

Re: February 2019 chemo starters

Thanks girls for your messages of support.   Trouble is I dont know who to phone as I dont seem to be under anyone's care but I will leave it till Monday and if things dont improve I will get on to BC team.  I dont really want to go down the route of taking even more drugs.  I have never been a tablet taker as they always make me feel rotten in one way or another.   My friend who had bc last year and is on Anastrazole says she is always tired but at the weekend she can sleep for 12 hours, if only .....  I have just had a really long walk and even went on the beach but it nearly killed me walking on the soft sand but I did it and the dogs really enjoyed splashing in the sea.  Hopefully that will do the trick for tonight x

Member

Re: February 2019 chemo starters

Hi daisydi 

 

I understand exactly how you feel having been deprived of sleep after my last two chemo sessions and enduring the effects of fatigue.. It makes you feel absolutely miserable, almost to the point of depression, and you're in pain on top of that. Can you speak to your doctor or is there a breast care nurse, support worker or similar that you can speak to? The meds Marlyn has suggested may help. It's trying to establish if lack of sleep is leading to other problems or other problems are leading to a lack of sleep. You've endured so much during this year but you will get through this. As hubby says 'Another wet nappy in the cycle of life'. 

Take care. Sending you special hugs 💕💕💞💝💝❤❤ 

Member

Re: February 2019 chemo starters

Daisy, we are all behind you, not that helps when your tired and everything hurts. Hopefully you can get to see your GP. Big hugs 💕💕

 

Well I’m in the car on the way to Portsmouth. Hopefully the carpal tunnel will behave itself to allow me to sleep a little tonight( I can live in hope) 

 

I’m keeping updated with everyone, replying is a little difficult due to my hands xx 

Member

Re: February 2019 chemo starters

Daisydi, yes sweetheart, it sounds like you need some extra help with sleep if it’s making you feel so down. Not sleeping has such a detrimental effect on everything else in life, I’m sure if you can get a few good sleeps in, the world will seem much better. Please speak to your gp.

I wish I could come and give you a cuddle. Xxx

Member

Re: February 2019 chemo starters

Oh daisy, sleep deprivation is just horrible, you get to the point where you're dreading going to bed, it sets off a cycle of stress and anxiety....I wonder if your doctor would prescribe some amitriptyline , it's a mild antidepressant but aides sleep, almost all my residents are on it and my mother in law swears by it, why not ask the receptionist for a telephone consultation? Whenever I ask I get a call back on the same day, worth trying if you already haven't? Xxxxx

Member

Re: February 2019 chemo starters

Morning!  I am still feeling so miserable as yet again I have no sleep.  I dont think I can do this ...

Member

Re: February 2019 chemo starters

Yes, nettienoo...chase it up, and use that peed off tone too.....I had op in January and had a review in July ....I'm so thankful that my care team are on top of everything, I used to get upset at all the NHS letters plopping through my letter box...with various appointments...but much rather that than the added worry of chasing things up myself.

I have already got my appointment for my first mammogram in January 2020....

 

Sounds like we all need some TLC, what a rough old ride....love you all xxxx

Member

Re: February 2019 chemo starters

Hugs and love for all this morning needed.

Bit barryed off myself as I’ve realised that back in January when I last saw the surgeon, I was told I needed to be seen for a follow up from my op in 6 months. It’s now September and have had no appt. also I’m probably due a mammogram soon as was diagnosed last October but have heard nothing. Bearing in mind I only had a mammogram last year because I chased it up (they had dropped me off the recall list by mistake!!!!), thank god I did, and I’m pretty sure I have capsular constriction going on in the reconstructed boob, I’m fuming that yet again I appear to have been “forgotten”. Not a happy bunny. I will be making phone calls later and just hope I can keep “the edge” out of my voice. 🤬. 

On a positive note, I’m going out this evening with friends and really looking forward to it. Drinks and a curry. 😀. I hope everyone manages to have some fun this weekend, even if it’s just curling up on a sofa with a gin! 

Ps. My son is back from working in Gulf of Mexico as he still hasn’t been able to move into the apt in Bristol yet. It’s lovely to have him here. Xxx

Member

Re: February 2019 chemo starters

Hi everyone 

 

Well on a positive note I feel a little more awake this morning so fingers crossed🤞🤞 the fatigue is slowly lifting. Plan to finish Tesco (on-line) shop and walk Dibley this morning then it's off for PICC care this afternoon. 

 

I feel so blessed that we have each other to help get us through this journey that none of us ever wanted to be on or even contemplated being on.

 

Love to each and every one of you ❤❤❤❤.

 

Susie B xxx 

Member

Re: February 2019 chemo starters

Hi MBJ

 

My thoughts are with you. Gentle (virtual) hugs coming your way ❤❤❤❤❤.

 

Susie B xx

Member

Re: February 2019 chemo starters

Sarah, I’m having the injections, not sure about side effects, think possibly the hot flushes but they have continued since chemo and aches and pains but again not stopped since chemo. My main problem was the bleed and bruising last time, and boy do they hurt. I had my first 2 at the hospital, next one a gp had to stress them it needs to be done every 4 weeks without fail, so have an appointment. I’m not 100% they will have the injections ready for me, we will see on the 16th.

 

The nurse got back to me I have to stop taking the  exemestane, and I will get an appointment with a specialist nurse to see what they can replace it with within the week.  2 hours later I got a call back to say your seeing your oncologist on the 26th so you won’t see anyone until then. So I queried about not taking anything for 3 weeks and she said that will be fine, then mentioned the carpel tunnel may not stop😩😩😩😩

 

Edinbird, I had rads in the same place, I only had 15 ( think as had mastectomy) I ended up with some redness and sore bits but the cream they gave me worked wonders. 

 

Daisy, rant all the way that’s what we’re here for. 

 

Got to go now ladies as fingers have gone numb and arm aches, do hope this carpel tunnel does one !!!!! 

 

 

Member

Re: February 2019 chemo starters

Hi everyone 

 

I think we're all in need of a group hug ❤❤❤❤❤❤❤❤❤👩‍👧‍👧👩‍👧‍👧👩‍👧‍👧👩‍👧‍👧👩‍👧‍👧 as some of us seem pretty fed up, peed off, angry, frustrated, of low mood, you name it, we're feeling it☹☹☹😩😩.

Mine's only a minor gripe, unlike some of you, but hubby told me tonight he would have to cancel the leave he booked off for our wedding anniversary. It doesn't seem much but after the year we've had I was looking forward to a bit of 'us time' and I know he really needs some time off as he is exhausted too.  I know he's worried about me and hates to see me having chemo and stuff. He never really switches off from work either. I even asked him to play the 'cancer card' and for once was actually serous about it.     

 

Maybe tomorrow will seem a little better 🤞🤞🤞🤞🤞🤞. 

Member

Re: February 2019 chemo starters

Try not to stress.  It really doesn't help.

 

Easier said than done, I know.

Member

Re: February 2019 chemo starters

Sarah at least you are getting zolendric acid which takes care of  your bones and also helps prevent bone mets.  The way I am feeling at the moment I am so stressed I'll probably grow another tumour before they get to sort me out!

Member

Re: February 2019 chemo starters

You rant away!

 

I've never had any kind of scans.  Bone or otherwise.  I don't get why some people get scans and some don't.  

 

I'm fed up too.  Let's all be fed up together.

Member

Re: February 2019 chemo starters

Sarah its so infuriating isn't it when the plan changes.  I've been taking my Anastrazole for a month now and I am so peed off that no-one is bothering to monitor me, check my bones, give me zolendric acid etc.  I have had zero support from anyone, have no follow ups and just being left to get on with it.  I am furious that I wont have a baseline scan to check the state of my bones before they get ruined.  Ive got 2 broken teeth too where the fillings fell out and the bits of teeth around them have broken.  They dont bother me either and I would rather leave them alone but I doubt if anyone will bother about them. I am also furious that my GP surgery sat on a letter written in April stating that I should be prescribed hormones when chemo finished.  Nobody bothered to tell me.  I am so angry at the moment and I hate everyone.  Cant visit my mum as I cant stand the excuses that keep being given about her being left in her room alone, have had no contact from the manager about a meeting.   And now the treatment is finished I am supposed to feel back to normal.  Yeh right!  Sorry rant over!

Member

Re: February 2019 chemo starters

6 monthly checks- not monthly 🤪

Member

Re: February 2019 chemo starters

Hi Edinbird,

 I had exactly the same as Daisydi re. rads. 

Apart from a red blotch ( that will go away - Doctor said so today in my review) right on my collar bone, every thing was fine . No problems with swallowing and even the fatigue wasn’t as bad as I was expecting.

Compared to chemo , I would have rads any day!

 I am still using my R2 lotion (am and pm) and my boob is fine.

The R1 is basically a cooling gel so if you don’t get it I would say that aloe Vera gel applied straight after radiation will work just as well . I enjoyed using both R1/R2 products .Still have plenty so still using them.

End of treatment review went well today. I will get called back in December for a mammogram and then it’s monthly checks for 5 years.

Doc. said I was very lucky to have an oestrogen driven ‘lazy’ cancer. 

Tamoxifen is now blocking the oestrogen so basically just ‘go and enjoy your life ‘ was the message given.

Re. Diet I was told I could eat everything in moderation. They were very pro the daily walking and also weight bearing exercises to maintain bone health.

Back in school tomorrow and looking forward to it.

Hugs to all, deep breath.

Rosina

 

Member

Re: February 2019 chemo starters

Hi all

 

Edinbird I had the same rads, 3 weeks all over (right up to the neck, never had any problems with swallowing), and then a week of boosts to the tumour site.

 

I just came out of my onco appt and he asked me how I got on with rads and I said to him that it was a doddle.  So here's hoping it's a doddle for you (and Susie) too x

 

Bit deflated after my appt actually.  On the plus side he gave everything a good poke and prod and is happy at how I'm healing up / losing weight / generally looking healthy.

 

But after being told before that my bloods indicated that I am post menopausal, hence anastrazole only (which I wasn't too worried about), he has now decided that the bloods weren't 100 percent definitive, and that he would rather treat me as peri menopausal, which means monthly zoladex implant injections for 3 to 4 years, as well as the anastrazole.

 

Not only a pain in the butt as it has to be done at the GP (and my GP is literally impossible to get an appointment at, I've not managed to see them for over 2 years despite occasionally trying.  Even when I first found my lump I had to go to a different surgery to see a GP to get referred because my GP wouldn't see me), but also the side effects sound pretty nasty.  Are any of the rest of us on zoladex?  I think maybe Sonia may have mentioned it before?  

 

Also, apparently I have bloods this Monday and my first zoledronic acid infusion Tuesday.  Which was the first I'd heard of it.  Haven't had a call or a letter.  And I have some important work meetings Tuesday morning which I'm now going to have to change.

 

Plus he wants me to go back to the dentist AGAIN as I've seen two, one who said I had to have 2 old dead teeth at the back of my mouth taken out before zoledronic (they have been dead for 10 years and I've had zero bother from them), the other who said that taking them out could cause more bother than leaving them be, so I should leave them be.  Now the doc wants a third opinion but I'm running out of dentists!!!  I really don't want them taken out unless it is 100 percent necessary so I think I might just insist.  But of course he has now scared me with tales of "necrotic jaw disease" or words to that effect and I don't know who to believe....

 

All in all, a big palaver.

 

Think im going to go to bed, watch a couple of episodes of Lost and not think about it all for a bit....

 

 

Member

Re: February 2019 chemo starters

Hi Edinbird 

 

A very quick pop in. My radiotherapy is going to be the same as your's. Thanks for the heads up about possible problems with swallowing. I think I'll be prescribed cream too, again not R1 and R2.  

 

Susie B xx

Member

Re: February 2019 chemo starters

Hi Edinbird all systems go then.  I had 20, 5 boosts and 15 to breast and collar bone.  I had no issues with my throat but had/still have a nasty radiation burn by my neck which is caused when you put arms up and a crease forms in the skin and the radiation bounces around as it doesn't know where to go but then I have a big neck and extra chin so you'll probably be fine.  You're spoilt up there getting creams given.  I spent a fortune on creams and gel.

Glad you got your boiler fixed.  I must get mine serviced before winter sets in. 

Hope everyone else ok x

Member

Re: February 2019 chemo starters

Hi all xx

 

Hope everyone is coping today. Had my radiotherapy registrar appointment, signed the consent forms so got to wait for the scan now. Around 2 weeks although I said I was up for a last minute cancellation since I can just walk round there in 10 mins! So hopefully I get bumped up. Having 20 which includes 4 boosts, breast and collar bone/neck area. Did anyone’s go that high? They said I could have trouble swallowing when it catches my trachea. Wonderful. I showed her my range of movement and she thinks I’ll be fine with the scan.

 

So let my boss know and want to just crack on now. Won’t get any choice in time of day as those who have a way to travel get that, but it’s all between 9 and 5 so nothing is going to be too much trouble. I get given two creams too! Not the R1 and R2, a steroid and emollient. Will need to buy some gentle shower gel though as we just have weird and wonderful at the moment.

 

I’ve asked for a referral to occ health to see if I can keep reduced hours during rads rather than going off sick but will see what they say. A colleague has been asked to help me do my new job when I start back which is great but I feel sorry for her since she’s one of the other managers and didn’t get the job. She assures me she’s getting compensated for it but I still feel a bit awkward about it. At least I’m getting the support.

 

The boiler is working again the man returned and the system was completely full of air. It was fine when he had done that and the hot water is on now so fingers crossed it stays that way. Just want a good night’s sleep now. Lots of love to everyone but especially Marie, I hope the new meds aren’t causing any issues xx

Member

Re: February 2019 chemo starters

Oh Marie you sound utterly defeated and I don't blame you Smiley Sad

 

I just want to get in the car and drive to Wales and give you the biggest (gentle) squish!!

 

Really, really hope this turns out to be less scary and more manageable than it currently seems xx  and bugger about the cruise Smiley Sad Smiley Sad Smiley Sad  There will be other cruises (I know that doesn't help AT ALL.  I'm still bitter about missing my American trip in March!)

 

So much love to you xxx

MBJ
Member

Re: February 2019 chemo starters

Hello Girls

Thank you for all of your kind thoughts. Yes the consultant (who I have not seen yet) said I could not go on my cruise. Just taken my new medication this morning. I think I am still in shock to be honest. Just when I was beginning to feel my husband and I could have a life I feel devastated that I can't see that anymore. I know I have to find a way to deal with this and I will well I will have to doing have a choice. How many bloody diseases does one woman need!

Member

Re: February 2019 chemo starters

MBJ so sorry to hear about your news I can understand how shocking the news and the way it was delivered was but bear in mind just like cancer heart failure to can be treated, depending on the stages if treated properly,  My father in law has been in heart failure for year's and many of the people I have looked after were also in heart failure and still do ok with the right treatment and support. I know you're probably sick of people giving their 2 penith. Have they actually said that you can't GO on your cruise?? because if they haven't maybe you should and just make sure you've update your insurance, finger's crossed that it isn't actually as bad as it sounds, sending you a hug xxx

Member

Re: February 2019 chemo starters

Marie I have now had time to digest your news.  Whereabouts are you going on your cruise?  When I went on one some years ago there was a fabulous medical team and doctor on board.  As Rosina's H1 says probably many people on the cruise will have health issues of one kind or another and if there is no flying involved I would be inclined to go as you will have medication and you are not seeing cardiologist for a couple of weeks.  I completely understand your hesitation though.  Hopefully they will get you sorted with some pills.  Thinking of you x

Member

Re: February 2019 chemo starters

MJB, 

That's S H I T !!!  after all that you've gone through. hopefully the medication will keep it under control.

Like the others said we are all here for you. Sending cyber hugs xx

Member

Re: February 2019 chemo starters

Hi MBJ ,

I have read all the other posts and now feel able to quote H1 further .

He is very direct in his mode of speech :

‘1) Half the people on the cruise will be on meds for heart failure.’

’2) Cardiologists are exceptionally good at talking to their patients in a way that totally terrifies them’.

He actually was quite irritated when he was talking to me. I think he sees a lot of patients that have come to him in a state over a diagnosis that has been given to them totally insensitively.

I guess in his line of work as a dentist,  he has to be informed of health issues and it seems that there are quite a few practitioners out there who really don’t have a clue as to how to give feedback with freaking out the patient.

Rosina

 

Member

Re: February 2019 chemo starters

Dear MBJ,

 

How much more bad news can one person take? I am so sorry and totally understand that you will still be in shock. We are all here for you every step of the way.

 

Big hugs,

 

Sar xxx

Member

Re: February 2019 chemo starters

Hi ladies.  I've just got on the train at Paddington for my journey home and popped on the forum for a quick catch up.

 

Marie I'm so sorry to read your news Smiley Sad

 

All I can hope is that, if they thought it was appropriate to give you this news over the phone, and not call you in to talk in person for a fortnight, that you must be at the less serious end of the spectrum of heart failure.

 

I had a quick google (which I'm sure you have done yourself!) and found something about stages, from 1 to 4, with the seriousness of the condition raising through the stages.  Did they tell you what stage you are?

 

Along with the other ladies, I would be tempted to say sod it and go on the cruise, but that is entirely up to your own comfort zone.  I know all this started with a heart issue on your last holiday so I can imagine that might put you off a little.

 

Hopefully this can all be kept under control with medication, that isn't too side effecty.

 

I've had to take blood pressure medication every day for the last 10 years or so, and will have to continue taking it for ever.  But it is genuinely no bother.  Fingers crossed your heart meds will fall in the same camp.

 

Hope you get some official reassurance soon xx

Member

Re: February 2019 chemo starters

I was coming on to rant that the boiler has promptly broken again but I couldn’t care less now. Sending the biggest hugs to Wales, surely there is someone you can speak to sooner than two weeks? Us of course but someone who can give you more information. You’re getting drugs straight away they’re not leaving you with nothing. If there is anything whatsoever we can do just let us know 💕

Member

Re: February 2019 chemo starters

Marie, what a shock for you darling and how callous for them not to tell you in person. I’m sure a chat with the cardiologist will make you feel less terrified as Marlyn has said. There will be a plan of action put in place and you will cope although I know you aren’t thinking that way at the moment. We all love you and are here for you. Xxxx

Member

Re: February 2019 chemo starters

Hi MBJ

 

I'm with H1, go on that cruise🚢. You could have already been on your way and missed that phone call. My friend's brother, around 65 yrs old, was diagnosed with heart failure years ago and still travels to France every year.

xxxx

Member

Re: February 2019 chemo starters

Mjb...utter crap news my love, as if you haven't had enough already. I'm hoping a proper chat with the cardiologist will settle things for you....please keep us updated? We're all here for you, you can't feel it but I'm holding your hand love xxxxx

Member

Re: February 2019 chemo starters

Oh MBJ, I can't even begin to tell you how sorry I am to hear your news. To be told over the phone as well, words fail me. 

Stay strong. 💪💪💪❤❤❤❤❤❤❤❤

 

Susie xxxxx 

Member

Re: February 2019 chemo starters

Sending you hugs MBJ.

Rosina 🌸🌸🌸

PS H1 on this end says ‘go on that cruise’ . There are drugs for heart failure. 

Member

Re: February 2019 chemo starters

Oh MJB I am truly sorry.  What an awful year it has been for you.  I dont know what to say.  Big hugs for now. xxxx

MBJ
Member

Re: February 2019 chemo starters

Girls

I have just had some really bad news my cardiology results came back and I have heart failure, believe it or not I was told this over the phone. I can't go on my cruise on Friday but have to wait two weeks to see the consultant. Have to start on two drugs tomorrow. I just don't know how much bad news one person can get in less than a year and try to pick themselves up and try to have a life. I may as well go and stand on the white line at least that would be quick. Sorry girls but as you can imaging I am devastated but I think still in shock too.

Member

Re: February 2019 chemo starters

Now there are too many posts for me to remember!  Sarah you look fantastic.  I think the short hair really suits you.  I am pleased to say that I have cut my long curly lashes, took me ages and only poked myself in the eye twice.  I then could get some mascara on.  They are still too short and the mascara went on like eyeliner but there is progress.  I now cant decide whether to shave my legs as they are now hairy but the hairs are fair and soft but there are a lot of them.  Will have to think about that one.

Nice to hear from you Seaside Sar, sounds like you are really on the up and getting on with life and I love your cat.  One of my cats always gets on my bed when I have just put fresh sheets on and plonks his bum on my lovely clean sheet.

Susie glad you are managing to get out with the Dibley.  I am convinced it makes you feel better.

Rosina well done for going back to work and I am pleased you are enjoying it.  I cant wait to go swimming as soon as my skin heals.   Nettie glad you like your goodies.  Nice treat for you.  I cant remember anything else.  Speak later x

Member

Re: February 2019 chemo starters

Maryln Im dreading that happening.  I have Accord  and pray they dont keep changing it.  I can only get one at a time xx

Member

Re: February 2019 chemo starters

Well, how is everyone.

Seasidesar, you are absolutely right.

As I didn’t get out by 1 pm today ( it was 3 pm with another 7.45 start) I told them that as I was going to the Hospital tomorrow I would not be coming in at all. They were absolutely fine with this. Schools are notorious for having a never ending list of jobs that need doing .

 I did meet my lovely class. We did our first yoga session ( on mats, on the floor) and the feedback was unanimously positive.

The cover teacher was a bit baffled as to why I was there  at all so I had to explain the ‘phasing in ‘ process.

Implausible to repeat what the others have said you really do look fabulous. I bet some of the weight gain was fluid retention ( at least this is what my oncologist had prepared me for).

Sonia28 and Edinbird, I do hope you get a good nights sleep with reduced aches and pains.

SusieB what a stunning colour Dibley is.

Same goes for Seasidesar ‘s cat .

 I am feeling very positive.

Pedicure booked for tomorrow afternoon.

Keep up the pampering Nettinoo 🌸🌸🌸🌸

Member

Re: February 2019 chemo starters

84BAF841-F747-43F3-9A85-D1E6236B0BA1.jpegThe foundation is too pale and made me look anaemic and the blusher made me look like Aunt Sally but that was probably my rubbish technique. I’m not used to powder blush. Apart from that I will use a lot of the items......result. Well worth the train/taxi both ways. X

 

Member

Re: February 2019 chemo starters

I always love a Dibley pic. He is gorgeous. Implausible you are looking really amazing chick. I need to start getting serious with my diet. I have only one pair of jeans I can still do up. 😬 It all went a bit to pot at my daughter’s. I was eating haribo and Freddie frog biscuits etc. 🐷. 

So sorry there is a lot of aches and pains going on my darlings. I have the odd pains in my wrists and ankles and sometimes knees and toes at the moment. I am putting it down to the Anastrazole. It’s still early days with it so I am hoping things settle down given time. I’ve been too tired to catch up with the posts I’ve missed but will catch up with them this evening so I know how you are all faring. MBJ did I spot that you no longer have to wear heart monitor? Laters folk........xxxx

Member

Re: February 2019 chemo starters

Hi everyone 

 

Let's see how much I can write before I join Edinbird, not literally of course, and fall asleep on the sofa🛋😴😴😴. I don't feel quite so exhausted today so that's a step in the right direction➡️. Didn't realise until I took Dibley for his walk this morning that I think he sensed that not all was well with me on Monday and Tuesday. His owners often say the that would make an excellent therapy dog. Anyway on his walk today he trotted proudly along just ahead of me as he normally does. Monday and Tuesday he walked closely by my side at a very slow, sedate pace. A real gentleman. 

 

Happy to know your boiler has been fixed Edinbird, especially as the cooler weather is approaching.

 

Seaside Sar, the lake photo is making me jealous. There's a small lake in Yeovil but I'm not fit to drive at the moment plus I don't think Dibley would fit in my Micra🐕🚗. Loving your cat's attitude. Why do housework when you can watch me having a cat nap.

The counselling sessions sound good. I don't think there's anything like that here in Yeovil as it's only a small town. I think there is a day's session at some point and there is a dedicated team at the hospital you can contact at any time. You can talk on the phone or arrange to go in and speak to someone face to face. They are also the ones who contact you after certain events, part way though and after chemo, following surgery, etc to check up on your mental aswell as physical wellbeing.  

 

Right I'm going to have a little rest now. It's strange, my eyes are tired but my brain is buzzing so perhaps I won't fall asleep. I hope not as I want another decent night tonight🛌🏾😴😴😴.   xxxx

  

Member

Re: February 2019 chemo starters

Boiler is sorted, valve was knackered. Didn’t take long to mend so hopefully won’t cost too much. Needs servicing too soon!

 

So I’m a bit sleepy now having got up early but the man didn’t come immediately which was annoying. Could just go back to bed but I mustn’t! I guess I could snooze on the sofa... 😴

Member

Re: February 2019 chemo starters

Hi Implausible 

 

Dibley is totally chilled as you can see.

Loving the photos from Hyde Park. We've been there several times in recent years, both for the Xmas Market and to walk around the whole lot, at least that's what it felt like at the time🚶‍♀️🚶‍♀️🚶‍♂️🚶‍♂️😪😪. 

Gosh!! What a difference a few weeks make. Goes to show just how much of a toll on our bodies chemo, steroids, lack of exercise and all those carbs - cheese toasties in my case - make. Hope you take this as a massive compliment but you look soooooo different from the after chemo photo. Also the short hair really suits your face. Now don't go upsetting the ladies who ride the other bus/bat for the other side😭😭😭.

 

 

  • 15676026666101843983450.jpgDibley doing what he does best15676028430501297732904.jpgHe does move somtimes15676029345161305229818.jpgAnd even vvacates his bed
Member

Re: February 2019 chemo starters

Hi Marlyn 

 

My hubby's on meds for high BP and the brand changes more often than I change my clothes👗👙👚👠👡👒 (thought that might be more polite than something else). Guess they buy and supply whatever is available or cheapest. Read the information leaflets, so long as they aren't as long as War and Peace, and I'm sure you'll be reassured🤞🤞🤞  

Member

Re: February 2019 chemo starters

Hey everyone, 

 

Just been for my last counselling session. I feel like I'm definitely on the up, despite suffering from side effects which I think are from Herceptin. 

 

Managed a walk around the lake. Love watching the ducks and swans.

 

20190902_113922.jpg

 

 

Went to my Bosom Pals support group last night and the surgeon who did my ANC was there. I thanked her for being so attentive (she came to check on me twice after my op and she phoned my husband to let him know how it had gone). She was so grateful and pleased to see how well I am doing. She did a talk to the group about all the surgery options, reconstruction, nipple tatttoos and all the latest technology. It was really interesting. She asked me if I would be willing to speak to other patients when they have their next info session at the hospital. I said I would be very happy to do this if it helps in any way.

 

Going to aqua again tonight. Really grateful that I can get back in the swimming pool after such a long break.

 

Sounds like some of you are getting back into using gym memberships too. I never froze mine so have stupidly being paying for doing nothing all this time. Never mind, I will make up for it now.

 

Was about to put clean sheets on my bed but Missy had other ideas!

 

20190904_093005.jpg

 

 

How are you lot doing?

 

Sarah, don't take this the wrong way but you look like a different person in today's photo compared to your last chemo one. What an amazing difference! Hope you're enjoying your day in London. I have written the MK/Swindon games on my calendar. Very exciting!

 

Rosina, make sure you take it easy and stick to a phased return. It must be nice to be back but all too easy to overdo things. Your 8/8/8 schedule sounds good.

 

Edinbird, I hope the boiler has been sorted. What a pain! 

 

Sonia, I'm sorry you're suffering. It's so hard to move on with these SEs lingering, isn't it? Sounds like you're very busy for the next few weekends as well. Hope you feel better and able to enjoy your travels up and down the country.

 

Nice to hear from you, Nettienoo. Hope you enjoy the LGFB session and that you don't come away with scary eyebrows and the like. Post some pics if you're happy with the makeover. 😊

 

Hope everyone else is having a good day.

 

Sar xxx