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February 2020 Chemo Starters

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Re: February 2020 Chemo Starters

 

 

 Thank you - I had a phone call earlier to ask me come in tomorrow at 1.00pm.   I will be glad to have the first session under my belt.  

I hope I'll be as relaxed tomorrow night.  

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Re: February 2020 Chemo Starters


@Carisma wrote:

I had previously posted in the January surgery thread but then I forgot my password and even trying to think what it could be seemed like too much of an effort Smiley Embarassed.  However, I am now starting FEC T chemo on Tuesday 19 Feb so was motivated to remember, as there is a wealth of info and support available on these threads.

 

I am apprehensive but, possibly stupidly, not too anxious at this stage.  I am not cold capping, for various reasons, so debating whether or not I should cut my hair shorter now (it's pretty short anyway) or just wait until it falls out.  I would consider whether to even bother with a wig, and just make do with hats/scarves if it wasn't for my daughter's wedding right at the end of my chemo treatment.

 

I just want to start it now as the sooner its started the sooner it is done.  

 

 


@carisma Hope it goes ok for you tomorrow x

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Re: February 2020 Chemo Starters

Hi Daisy,

I had just turned 50 in November so hadn’t had any routine mammograms either. Tnbc seems to affect people at a younger age so it’s a shame we don’t get mammograms starting earlier in life. I don’t have much pain apart from occasional little stabbing pains. I will get a wig as everyone has told me how amazing they are nowadays but will also wear hats etc. I have been told I will have two courses of chemo to begin with of 12 weeks each - every three weeks and I will be undergoing treatment for about a year including surgery and possible chemo tablets etc. It’s so strange how you do just get on with it though. Good luck with your chemo tomorrow and keep us updated how you are getting on xxx

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Re: February 2020 Chemo Starters

Hi Tracy 

Im glad you have got your husband to sit with you as although its not painful it does help if u have some one to chat to pass the time. 

My children are doing ok just wish they didnt have the worry ive got a son 15  and daughter 18  whos due to go to university in Sept . My daughter has been to chemo sessions with me .

I totally understand the shock as it was much the same for me . I was told by numerous consultant that my pain was chostocondrotis and the mamogram was only done to rule everything out . ( im 48 so not been called for mamogram before).so was not expecting to be facing this. The pain is what causes me the most difficulty as i cant be independent like normal. The tumour is pressing  on nerve in my chest. So hopefully the chemo will start to work and shrink it so they can operate.  

Although i havent lost my hair as yet it has become very dry. I have been this morning to be fitted for a wig. I find the thought of losing my hair very difficult but i was surprised how realistic the wigs are. My son didnt even notice it was a wig when i got home as i tried to get on that looked like my own hair .

My next chemo is tomorrow which will be my 3rd one.  

Best wishes

Daisy 

 

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Re: February 2020 Chemo Starters

Hi Daisy,

My husband is off work so he will take me but I’m hoping once I know what to expect that I will drive myself. I was first seen at the beginning of December and told after MRI that I had DCIS which was pre cancerous. A week later they said it was TNBC and had the oncologist waiting outside the door. Quite a shock after being told it would just need surgery. My lump is quite big so that scares me too because it has been there for quite a while and I didn’t notice. I’ve just found out my chemo starts this Friday. It will be good to know something is happening at last and hope that it shrinks the tumour so I can have surgery.

Thank you for the advice! How are you children coping? Mine have left home but they are both finding it tough I think. 
Best wishes xx Tracy

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Re: February 2020 Chemo Starters

Fab...thanks ShiHeartSmiley Very Happy

Sx

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Re: February 2020 Chemo Starters

Hi Daisy D,

 

i had my mastectomy first then the chemo.

i had 12 weekly Paclitaxel and Carboplatin every 3 weeks again for 12 weeks.

if i can offer any advice or answer any questions please ask.

good luck n stay strong..  mini mad xx 💖💖

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Re: February 2020 Chemo Starters

Hi Tracey

Thanks for replying . Its all so scary isnt it. I feel like its all happening to someone else . The chemo so far is going ok. Ive had a few issues but feel that it was a reaction to  a fentanyl pain medication  patch rather than the chemo.  ( im getting chest pain due to tunour pressing on a node . I was misdiagnosed for 3 months as having chostocondrotis, )

My chemo is on a weekly basis at present  on Tuesdays. The side effects i have had are stomach cramps and sore throat. 

Take something to keep you occupied as there is a lot of pre med drugs  prior to chemotherapy drugs . I have taken a blanket too as sometimes feel that if can have a bit of a nap it passes time.

The chemo nurses are very good and will address any issues  or worries that you have.

I am prone to migraines so i asked for a strong anti sickness med. So far i havent experience any headache or nausea.  I have felt tired following chemo and need to rest.  I find this very difficult as ive got 2 children and im usually being mum taxi ! 

Do you have someone to support you to your appt ? 

Best wishes and lots of love 

Daisy xxx

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Re: February 2020 Chemo Starters

Hi Daisy D,

ive also been diagnosed with triple negative and will be going straight to chemo starting this week. They have said i will be having EC every three weeks with possibly something else too but they haven’t told me a lot more than that!

I feel like this bit is so scary because everything is so unknown. How are you finding the chemo so far? Best wishes

Tracy xx

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Re: February 2020 Chemo Starters

Hi Mini mad

I have been diagnosed with triple negative breast cancer too. .Are u having chemo first then surgery ? . I started on weekly pacitaxel with every 3 week carboplatin.  Then it  changes to EC.  Just wondered if your regime was similar to mine. 

My 3rd chemo is on Tuesday 

Lots of best wishes 

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Re: February 2020 Chemo Starters

Thanks for telling me like it is... will brace myself! Thanks, Daisydi

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Re: February 2020 Chemo Starters

Hi Fe2020 sorry to say it is cold.  In fact you do get icicles on your head but they soon thaw out.  A small price to pay and all that ...

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Re: February 2020 Chemo Starters

Hi for hair growth After you’ve finished chemo and rads, lush shampoo bar that looks like a red dot think it was called new. Sunny isle extra dark Jamaican black castor oil (rub in scalp leave for hour) then shampoo off (even when you’ve no hair if you don’t cold cap) I’ve known others get great results with fast and planteur39. But all after chemo and rads, don’t want anything interacting with treatments ❤️ Just a quick one while I remember when you start to get your tiny hairs back on your face you can look like a little fluffy duck, don’t be tempted to immac off, it soon settles and is ok. Eyebrows and lashes were back within few weeks all ok too, just remember as soon as the lashes start to grow back, get that mascara on it helps train the new lashes to curl ❤️💕💕✨✨Shi xx

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Re: February 2020 Chemo Starters

Hair today 16th Feb.Hair today 16th Feb.

 

Hair in Oct 19Hair in Oct 19

Crap selfies but this is the difference in hair growth. I was on a trial which involved 4 rounds of FEC, which caused some significant hair loss and ended in April, lumpectomy and ANC, 4 rounds of TC followed by 20 sessions of radiotherapy. I didn't lose any hair with TC which I completed mid Sept. Don't lose heart any of you if you do lose it it will grow back, promise.

 

Susie B xx

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Re: February 2020 Chemo Starters

Thanks, Daisydi

appreciate your kind advice so quick. I do hear make sure it’s pulled down and fitted properly! Have lined up for a weave for extensions. They say after a 30% loss so will see when that is... 

how do you manage with the cold cap? Is it cold all during session? Said it will b a long first treatment as they will monitor how I respond to each drug... Happy to hear you didn’t lose all your hair!!! Good for you x

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Re: February 2020 Chemo Starters

Hi Ju72

 

I'm from the February 19 group, the same as Daisydi. Regarding a thermometer I bought a digital one from my local chemist that gives you an immediate reading after putting it in your ear. They are more reliable than the ones you place in your mouth and inexpensive. Remember if you need to take paracetamol for pain relief check your temperature beforehand as it can reduce your temperature. As for the cold cap, definitely persevere with it. I did lose around 50% to 60% of my hair but that was preferable to losing it all. I did have a couple of wigs that I wore when I went out partly because of the bald patches and partly because I didn't want to out out with grey hair. A year on my hair is thick and chemo curly. I've had some coloured highlites put in and hoping my hairdresser will give me a full all over colour next week. I love the sound of your wig 😊. Have fun with it and wear it.

 

Susie B xx

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Re: February 2020 Chemo Starters

Hi 

I'm at long last about to start my chemo at the end of feb 🤞. I'm going to try the cold cap , as the thought of losing my hair is upsetting. But if it happens then it happens. I've already got a funky wig to wear , purple and turquoise its very loud . Haha 

Just wondered if anyone could recommend a reliable thermometer ? 

It's great reading everyones positive comments gives me hope for when my treatment starts. 😶

 

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Re: February 2020 Chemo Starters

Hi Vas 

Might be a silly question (not knowing your age/circumstances) but could it be related to your time of the month? I had first chemo on 30th Jan and my boobs are sooooo sore but definitely related to time of the month for me

just a thought?!

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Re: February 2020 Chemo Starters

Hi all I had my first chemo on 4th feb and I am experiencing pain in my breasts. And I am having this thought that it is spreading Smiley Sad

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Re: February 2020 Chemo Starters

Hi fe2020 as I mentioned earlier I started chemo this time last year.  I think each department vary in their approach to the cold cap but my chemo nurses dampened my hair and applied conditioner before each cap went on.  My hair was thick and I did lose some but probably kept about 60% but I could not bear the prospect of being bald and was really stressy about it.  Make sure the cap is pulled down tight especially on the crown which is the most common area to thin out, also take a hair band to protect your forehead. I also had some long layers put in my shoulder length hair but Im not sure if that really made any difference. I was provided with a wig but it is still in its bag as I never used it.  Good luck x

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Re: February 2020 Chemo Starters

Hi Carol and all February 2020 group,

 

Hello. My first post as I join the Feb2020 club. What a roller coaster! Have my first of chemo FEC-T this week. Agree, having hot flashes already so nothing new!

 
Lots of reading as desperate to know as much as possible before I start. Having found lump end November, diagnosed in December, surgery delayed 4 hours before on the day as secondary area suspected and lymph node sent for biopsy. Tested positive which lead to CT scan, bone scan - panic while while awaiting results but finally diagnosis complete. Surgery (mastectomy and reconstructive) in January and now chemo to start with 6 cycles followed by radiation.

 

Any tips on how to prepare and wear freeze cap? Do you wet your hair prior? My hair v thick! 

Appreciate all the past and present posts to help during this time of uncharted waters! As others have said, I worry more for those closest who are impacted just as much. Very strange to have to go through all this medical treatment while feeling fine. It has slowed me down mentally / professionally as I step back from work and I do worry a lot, not sleeping  through the night as long but otherwise I don’t feel physically sick. Hope to be more physical with walks and yoga and slowing down enough to enjoy every day so much more.

First chemo this week. Acutely  sensitive to anything going on within! If only we had listened a bit more earlier you think you may have caught it earlier.

 

Wishing each and everyone the strength and positive energy as we journey through this disease 💖 I take much strength from medicine today which has taken the fear out of diagnosis. If anything, it has given me much empathy and made me a kinder person. Thanks to all who share during this time and since to offer wors of advice and experience  💕

 

 

 

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Re: February 2020 Chemo Starters

Hi Carisma

i don’t think it’s stupid not to be anxious. The more positive you can be the better (although that’s easier said than done at times!)

Hope it all goes smoothly for you on Tuesday and that the side effects following are minimal!

 

xx

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Re: February 2020 Chemo Starters

I had previously posted in the January surgery thread but then I forgot my password and even trying to think what it could be seemed like too much of an effort Smiley Embarassed.  However, I am now starting FEC T chemo on Tuesday 19 Feb so was motivated to remember, as there is a wealth of info and support available on these threads.

 

I am apprehensive but, possibly stupidly, not too anxious at this stage.  I am not cold capping, for various reasons, so debating whether or not I should cut my hair shorter now (it's pretty short anyway) or just wait until it falls out.  I would consider whether to even bother with a wig, and just make do with hats/scarves if it wasn't for my daughter's wedding right at the end of my chemo treatment.

 

I just want to start it now as the sooner its started the sooner it is done.  

 

 

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Re: February 2020 Chemo Starters

Hi Sara,

I have to admit that now my hair is short I like it so much I’m going to be even more sad when it starts thinning! And you’re right...people will have to tell you it looks great. The poor hairdresser was more upset about cutting it off than I was. I just want to get on with the chemo now and feel like something is being done to stop things getting worse than they already are. Good luck with your cut on Friday and with everything else to come xxx T

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Re: February 2020 Chemo Starters

Hi Artycart, I am getting there thank you.  I had 3xFEC and 3x Docetaxol followed by 20 radiotherapy sessions and I am now on Anastrazole as my bc was hormone positive and I am just about to start zolendronic acid infusions to try and keep my bones safe.  The new hair that has grown is rocking little curls but at least it is growing.  Its all doable but challenging.  I walked my dogs most days even during chemo and I really think that did help.  I used to drive home after chemo, wash all the conditioner off my hair and then take the dogs out ...

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Re: February 2020 Chemo Starters

That’s great advice about taking own make up to look good session. I’m booked on in a couple of weeks so will remember to take my own stuff

 

hair definitely starting to come out more today but thankfully no major chunks yet!

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Re: February 2020 Chemo Starters

Thanks ShiHeart...would be great to hear hair regrowth tips!

 

I'm planning to book my look good, feel good session next weekSmiley Happy

 

Sx

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Re: February 2020 Chemo Starters

❤️ Fantastic so many of you are donating your hair ❤️ we’ve tips and tricks for when treatments finished for helping hair growth ❤️ have you managed to book your look good feel better sessions ❤️ even if you are not a make up person it’s worth going ❤️ like I’ve said before take your own bag of make up too in case what you get in your bag you are unable to use, so you can still enjoy the session ❤️💕💕✨✨Shi xx

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Re: February 2020 Chemo Starters

Hey

Hey Tracy

Good to hear you found cutting your hair a positive experience...I'm having mine done on Friday, all the long locks are coming off and like you will be donating hair. Part of me feels anxious but another part feels empowered that I can create whatever look I want (and let's face it people kinda have to tell you that you look great 😂😂) I've had long dark hair for about 20yrs....time for a change I think!

Good luck to all you cold capping ladies🤞😘
Sara x 
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Re: February 2020 Chemo Starters

Hi Daisydi, Thank you for sharing your cold cap experience. It’s all a big mystery to me at this point but I am due to start chemo at the beginning of the week so I’m sure I’ll learn quickly. How are you now and did you have any other treatment after chemo? Xx Artycart

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Re: February 2020 Chemo Starters

Hi ladies, just a message to say this time last year I was just starting my chemo journey.  I cold-capped all the way through and am so pleased I did.  I had thick hair and although it did thin out you would never have known.  In fact people that saw me didnt even know I was having chemo.  I got a wig just in case but it is still in its bag as I could never get it on over my hair anyway.  I used Simple shampoo and conditioner, let my hair dry naturally and was very gentle with it.   I took paracetemol just before my chemo session just in case and put the cold cap over dampened and conditioned hair.  It meant so much to me to keep the bulk of my hair but it is a worrying time not knowing whether it is going to go or not so good luck.  I just wanted to let you know that the cold cap does work and even if you get bald patches you can still use the cap but with a theatre cap under it to protect the bald bits.

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Re: February 2020 Chemo Starters

❤️Artycart ❤️ good luck with cold cap 👍 the people from my oct17 thread kept going with cold cap even though they thinned a bit but they definitely were pleased they kept on with it 👍 wonderful news you are donating your hair ❤️ 💕💕✨✨Shi xx

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Re: February 2020 Chemo Starters

Same here. Mines a bob and wig is just a bit longer. Glad I decided to cold cap but equally if it doesn’t work and I lose lots I’m happy to scarf and wig

 

when is your first treatment?

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Re: February 2020 Chemo Starters

I am now rocking a collar length bob which is just a wee bit longer at the front. I am going to try cold capping so if it thins but doesn’t all go it should be easier to manage I hope. I’ll probably go for a similar length wig so it’s an easier transition if I decide to wear it. I’ve told my hairdresser I’ll be back to get her to shave my head if needs be...xx

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Re: February 2020 Chemo Starters

Hey Tracy, that’s amazing to have it cut off to donate it. Always nice when a little bit of good can come from this horrible situation!

i tried on a lush red bob but just didn’t feel like “me” and brown made me look so washed out! Funny how different hair styles make you look so different!

they did have some pink and purple wigs but nothing crazy outrageous!

how short is your hair now?

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Re: February 2020 Chemo Starters

Hey Thomaschix,

Sounds cool. I’m thinking of going for something different too... always been dark brown but blonde would be interesting for a change...but then nobody will recognise me!  I’ve just got home from the hairdressers having had 9 - 10” cut off and intending to donate my two wee plaits. Poor hairdresser didn’t enjoy having to cut it off but I feel good about it now it’s done xx PS Do they even have really funky wigs when you go to get one? Tracy xx

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Re: February 2020 Chemo Starters

Sorry to disappoint Ladies but went for a very simple ash blonde wig with a fringe (which I’ve never had before so little bit different!!)

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Re: February 2020 Chemo Starters

Hey T

 

Yeah this is deffo the best group...you made the right choiceSmiley Wink

 

The cold capping thing does seem like a lot of effort and I know for a fact I wouldn't stick to it....good on those that have the discipline though.

 

I reckon you could totally rock the purple afro lookSmiley LOL....pictures welcome!

 

Sx

 

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Re: February 2020 Chemo Starters

Hi Sara

Ive been browsing lots of groups but this one really sounded lovely so thought it was time to join!

Im already getting excited at the financial savings from not having to shave or imaac!!! 
i gave lots of thought to the cold cap too and agonised for ages but decided to give it a go and keep my fingers crossed. I’ve been pretty bad at “sticking to the rules” tho and continue to wash, blow dry and straighten my hair with the view that if it falls out I’ll embrace it and rock a head scarf!!! Take my hat off to you for braving the shave but love the idea of having lots of different wigs for every occasion and outfit. Going to get my wig tomorrow and trying to decide between a pink Mohawk and a purple Afro 😉

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Re: February 2020 Chemo Starters

Hey Thomaschix

 

Pleased you've found the group (I think we can forgive that you're a Jan starterSmiley LOL) It's been massively helpful for me over the past few monthsHeart

 

Hope the cold capping works out for you (love the pick!) how true about the lady garden...and the legs and armpits, silver lining and allSmiley Happy

 

Sara xx

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Re: February 2020 Chemo Starters

Morning all

So, technically not a feb starter as first treatment was 30th Jan but hope you don’t mind me gatecrashing!! Diagnosed with her2 +ve invasive ductal bc which has spread to lymph nodes so having 6 cycles of FEC-T with herceptin too from cycle 4. One treatment in and thankfully been quite lucky with side effects but starting to notice hair shredding around my ears (day 15) (and from my lady garden which I’m not complaining about). Used cold cap which was ok but felt a bit claustrophobic. Next treatment in a week so see what that brings.....

really glad to have found this group to share support and experience with xx

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Re: February 2020 Chemo Starters

Hi all

Started treatment this week, herceptin on Wednesday and first Paclitaxel yesterday, so far so good. The only difference I've felt so far is tired from the antihistamine. I will be having a picc line fitted next week as I've got 12 weekly sessions and only 1 arm to use with fairly small veins. I thought long and hard about cold capping, I have long dark hair halfway down my back and tbh I do rather like it😊. After reading lots of stories from others I've decided not to do it, I think a combination of all the different treatments I'll be having will cause thinning so I'm gonna go bald and brave 🏋️‍♀️😁(I shall be having some fun with wigs though, as many colours and styles as my bank account will allow😁💃) I really love the idea of donating my hair to the little Princes trust, it makes me feel better to know I  could maybe help a girl who is struggling with hair loss..it's difficult to contemplate at the age of 49, I can't begin to think how tough it must be for teenagers and young women.  I've started reading a brilliant book for anyone who is interested it's called the "Biology of Belief" by Bruce H Lipton, I've found it massively empowering. Great to read posts from other ladies going through similar experiences..I'll.keep sharing mine❤😘xxx

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Re: February 2020 Chemo Starters

Hi Artycart. 
PICC line is fine. Only had it in a week but most of the time I don’t notice it.  It has been sore a couple of times but settles quickly. I had surgery to clear lymph nodes on left side so they don’t want to use that arm for bloods/chemo. Having the PICC will cause less stress on the veins in my right arm. Often it took a couple of goes to get bloods and that was when they had two arms to try. For me it made sense to have it. There are disadvantages too. I do have to go once a week to have it redressed. You can use your arm normally but they won’t let me play tennis.

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Re: February 2020 Chemo Starters

Hi caead,

I don’t know yet if I will have a PICC line but since I am having a long course of chemo maybe I will get one too. Is it uncomfortable? I will have my first cycle on Monday or Tuesday next week. I’m going to try the cold cap too but my hair is pretty long so I think having a bit cut off will help. I’m going to ask if it would be suitable to be donated as I would feel it hadn’t been wasted and was helping someone else xx

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Re: February 2020 Chemo Starters

Hi caead,

 

I've just seen you post. I also cold capped and had a PICC line. The hospital should be able to prescribe a waterproof cover for you to wear when you have a shower. It's rather cumbersome as it is for protecting plaster castes but it does keep the line dry. You can also buy covers on line. I bought a much more compact one which I used during a short holiday and continued to use until my PICC line was finally removed. I was on a trial so had it in for7 months. As for cold capping I did lose quite a lot of hair, resulting in 4 bald patches and general thinning so I did wear a wig and bandanas. The good thing is that my hair has all come back thick and healthy. Some of the girls in our group kept their hair long and didn't lose too much hair. The only downside is that the new hair came back curly, chemo curls, so the hair doesn't lie flat. Hope this helps. If you or anyone has any questions or want any tips just post on our thread and someone will get back to. We all chat on Facebook Messenger now but have recently started back on here so our thread should be easier to find.

 

Susie B, February 19 Chemo Starters xx

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Re: February 2020 Chemo Starters

Hi everyone

Starting chemo in next couple of weeks, 6 rounds of FEC-T

Look forward to chatting to you all x 

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Re: February 2020 Chemo Starters

Hi Artycart,

Hair is what I am currently thinking about too. I am only a few days in to first cycle and I did the cold cap. I have shoulder length hair and fingers crossed I can keep it. However, the part for me is washing it. With the picc line in one arm and trying not to get that wet, I’ve thought about shorter ( but still able to pull back) just for ease. I think I am going to wait until next cycle so I don’t rush into anything and I can see how effective cold cap is. If you know it is definitely going to go then I can understand how taking control by cutting it helps. 

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Re: February 2020 Chemo Starters

Hi artycat

 

i did a military cut and I find it easy to wear all my scarfs and no worries also when my hair starts falling Smiley LOL

 

 

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Re: February 2020 Chemo Starters

Artycart you could donate your hair to little princes trust they make wigs for children and give them away free ❤️Turn a negative into a positive 👍 I went to bob from long and gave my hair to little princes trust, it was me deciding what happened to my hair, gave me bit of control back. Suew from oct17 with me and her sister did a sponsored head shave to raise funds for cancer research, it’s your choice lovely you always do what’s right for you. Meesh on oct17 thread with me cut her hair to short bob before she cold capped and did well with it, so hope this helps you and anyone reading with your choice ❤️ My hair started shedding about day 16 after first fec then I buzzed it to grade 1, by day 10 after 2nd fec my hair was gone. Everyone is different though and hair can go at different rate. Always discuss with your units to get their guidance too 😘💕💕✨✨Shi xx

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Re: February 2020 Chemo Starters

Hello Everyone,

how are you all getting on with things? I have seen my oncologist today and I will be starting on Monday or Tuesday next week. Visited my local Maggie’s Centre and found it so calming and with loads of help and it really made me and my other half feel better. I had my bone scan today so hoping for some positives from that. I have had varying suggestions about my hair. Some have said to leave it long and others have said I should cut it before chemo starts. Anyone have any advice on this? T x