Hi Daisy, The rag rug sounds great. I love reusing things to make useful things. Your daughter sounds brilliant 🌟
My temp went up again this afternoon to 38 but had been ok since I think. Just going off to try and get some sleep now and see if things are better again tomorrow. Xx
Hows your temp now Tracy? Hope you are starting to feel better.
Love Daisy xxx
Hope everyone is doing ok xxx
Im just using all odd Tshirts that we no longer wear. I brought one of the pegs that u use to push it through but found it was just as easy to use finger ! I used the rug matting as i couldnt find any sacking which they used to use orginally.
My daughter is very much the eco warrier in our house so nothing doesnt get reused in some way or another ! .She has been busy making old pallet into beautiful planters. She has also made some lovely dream catchers out of cardboard packaging and coloured string.
Pintrest is a fantastic place for all ideas. I love anything thats a bit quirky and different.
Yes home made is always best . I must admit i love homemade Apple pie and custard ! My 15 yr old son is the baker in our house he makes a fab lemon drizzle . Mine are like pancakes !
Yes we are ploughing forward now and have come a long way since January. Keep going forwards not long till we get chemo done and get to the op !
Love Daisy xxx
Thanks for your good wishes everyone xx
Daisy - Rag rugs are lovely 😊 What design are you making? I have a collection of photos of them on Pinterest as one day I’d like to make one. Are you using strips of old clothes to make it?
I know what you mean. I would love to walk the dog again. But we’re all getting there.
Bet the pies were yummy. Home made always better xx
Hope Everyone else is keeping well and managing to keep ok in this lockdown.
I never thought i would miss going to the shops so much or taking the dog for a walk !
Im currently making a rag rug for my daughter to take to university just trying to keep occupied ! ( not that im very crafy really but it passes the time ) .Also made some pies yesterday too.
Love Daisy xxx
Hope you are soon feeling better and temp stays down so u can get back home Asap. Hope you are being entertained by the music man too !
Love Daisy xxx
Morning. I slept and felt fine earlier in the night. Still have a slight temp this morning but hope it’s still going in the right direction. Xx
Hi Artycart 🤞🤞 neutrophils keep up as you are heading into nadir bit of cycle so they will be keeping very close eye on you ❤️ Looking forward to joining you celebrating with a bit of up town funk 💃🏻💃🏻🕺🕺💃🏻💃🏻 That was one of our favourite tunes back on the oct17 thread 💃🏻💃🏻🕺🕺💃🏻💃🏻 We were the party train 😁 hope you are managing to get food down 👍 keep having a walk if you can even if just to loo and back 👍 sending 👭💕💕✨✨Shi xx
No they don’t know. I had a sore throat and mouth but no other symptoms apart from the temp. My neutrophils were 1.3 and up to 1.5 but they are worried when I stop the filgrastim they will drop again as this is day 7 today. I think they will be keeping me in over the weekend to make sure things don’t go downhill again.
Artycart ❤️ Have you asked what your neutrophil count is? Are you day 7 then in your cycle? Great tune 💃🏻💃🏻🕺🕺💃🏻💃🏻 Bit of uptown funk 😁👍 Chemo jukebox will be ready to play it 💃🏻💃🏻🕺🕺💃🏻💃🏻 Whoop whoop keep your fluids up ❤️💕💕✨✨Shi xx
Hi Shi, I’m on a 21 day cycle. Two weeks today till my next one if things carry on as planned.
I’m going to dance round the kitchen to Bruno Mars Uptown Funk when I get better xx
Thanks Daisy, I’ve still had temp all day. I’m slightly hopeful that maybe it’s not coming back this time as it’s over 4 hours since my last paracetamol and still feeling ok 🤞 xx
Sending big hugs to everyone xx
How are you feeling now ? Hope your temp has come down and you are feeling better.
Second what Shi says get ready to dance around the kitchen ?
Sending you a big hug
Hi Artycart 😁 hope the meds are kicking in 🤞🤞are you on 21 day cycle I’m not sure what everyone’s on with the covid-19. And if so what day are you now in the cycle? Just remember they have seen it all before and will know what to do 👍 it’s just a bit pants when you just want to be home ❤️ Have you picked a tune yet for celebration kitchen dance? Sending 👭💕💕✨✨Shi xx
Hubby bought the little man a switch just before lockdown but I know it was secretly for him!!!! I’m already planning to steal the iPad for surgery and just face the fall out from it........
keeping fingers crossed for you xx
They don’t know what is causing it at the moment. I think the strong antibiotic was expected to work and now it’s a mystery.
I don’t have any mags but I’ve got books and I’ve also got Animal Crossing to play as I treated myself to that help get through the self isolation 😂 One of the pharmacists asked me yesterday if I had been stealing my kids Nintendo and I had to explain nope!
Hope you’re feeling better today Xx
Ah so sorry to hear that.
do they know what’s causing it?
big bugs and hope they get to the bottom of things soon.
Hope you have plenty of trashy mags to keep you entertained x
Unfortunately even with a strong antibiotic I’m still spiking a temperature which is quite scary. Hoping they can get this sorted out soon xx
Thank you. I did wonder how it all works with radiotherapy /reconstruction. To be honest dont know how i will feel either. At the moment all i feel is get it out !!! There is always time to decide at a later date. Will just be glad not to keep going for chemo and hopefully ??may have a bit energy which would be good !!!
Hope u have a good evening
Take care everyone too
So glad you are being entertained while in hospital at least that passes the time and hopefully cheers u up.
Hopefully with iv antibiotics your temp will come down by tomorrow.
Well done on keep eating your very brave with bran flakes . They are crunchy the best of time !
Glad ur WBC has gone up a bit. How many chemo have u got left ? Just keep thinking not long till surgery now . Did they give you steroids to take at home after your EC treatment? Im going discuss it with staff next time as i feel that may be causing the reaction with my face swelling even though they are supposed to work the other way !!
Hope you get some rest tonight .
Love Daisy xxx
Hope you start to feel better soon Artycart. It’s so rubbish when you can’t (or don’t want to) eat. Life’s hard enough as it is without being denied the joys of chocolate and cake!!! Hopefully the IV antibiotics will start to work soon
Daisy, it will be 4 weeks exactly between last chemo and surgery. They’ve said I’ll almost certainly have radiotherapy but no more than that in terms of plans at the moment. They won’t do immediate reconstruction because of the radiotherapy so he’ll refer me straight away for reconstruction with a view that will be about 12 months (think that’s standard rather than because of COVID). I have no idea of reconstruction options yet....or whether in a years time I’ll be a very happy uniboober and decide not to have it anyway. Kind of feel like I won’t want more surgery in a years time but it’s a long way off at the moment
Glad u are feeling better and able to go for a little walk too and enjoyed the sunshine .
That was the plan with me too back in January but havent seen the breast consultant since. Or the breast care nurse I wondered how long the wait is from finishing chemo to surgery. Hope u dont mind me asking but did they offer reconstruction surgery ? I was just wondering if there may be a delay due to Covid 19. It all seems a minefield to navigate but we will get there ! . Will u have to have radiotherapy too ?
Love Daisy xxxx
Glad to hear you’re feeling a bit better now. Hope that you’re on the way back up from your last Docetaxel now xx
Hello Daisy, My temp had gone up again without paracetamol to 38.7. They’ve given me some paracetamol now so feeling a bit perkier. Cheered up also by one of the other patients whose family sent in his mouth organ. He played beautifully lots of lovely tunes.
Ive been forcing myself to eat even though it hurts. Chose bran flakes for breakfast ouch!
Good to hear your white blood count is improving. Mine has gone up marginally which is at least one thing.
I had four EC rounds. The last one was the worst but nothing compared to this!
Thanks Daisy. Took some anti-diarrhoea and feeling better this evening. Also went out for a little walk up the street. Not far but makes a massive difference for the little fella!!!
They’ve not really given any options. Full single mastectomy and full lymph node clearance. I did ask about double but they said nope and I don’t meet criteria for genetic testing. I haven’t really questioned it much to be honest although probably should do.....
Thanks Shi xxx
Glad you have got a date for surgery . That will be another step completed back on the rd to full recovery .
Hope your diarrhoea subsides too and you can get some rest. Must be Difficult with a 3 year old !
When it comes to deciding on surgery are they good at discussing your options etc ?
Love Daisy xxx
Sorry to hear your mouth is so sore . I find the filgrastim injections make me feel unwell too. They make all my joints ache and just generally feel yuk. Hope your temp has started to come down with the iv antibiotics. Hope you have been able to eat and drink today too. It must be so difficult too not having visitors like normal . Sending you a virtual hug xxx
Ive just rang unit to ask about my bloods . The white count has increased but my magnesium has dropped now so have got to go to get prescription from unit tomorrow. Hopefully bloods will be ok for next chemo on Wed.
How many cycles of EC did you have ?
Hope you get some rest this evening
Daisy D 👍 fantastic news 👍 thomaschix are you going to be home same day or are you overnight? Are you having a drain? 😘💕💕✨✨Shi xx
Great to hear you have your date for surgery! And sorry that the Docetaxel is making you feel so unwell xx
I’m hating Docetaxel too! The filgrastim injections have been making me feel so achy and ill and my mouth is so sore! Not happy that I’ve still got two more of these to go but has to be done.
They’re going to give me IV antibiotics now as the oral ones don’t seem to be working. Sure this has got to work!
With paracetamols I don’t feel too bad but my temp is still up without them so not sure if I can get home today.
Very good news that your genetic test is negative. It’s such a relief to know it won’t affect your children or their children 🤗
Fingers crossed your blood count is improving and you can get on with things soon xx
Daisy, that’s great news and fingers crossed for the bloods so you can keep going!!!!
Artycart, sorry to hear you’ve been poorly. I’ve HATED docetaxol (particularly compared to FEC). Yucky mouth (I also used fluconazole and difflam....didn’t find the nystatin helped much), everything tastes crap and the diarrhoea has been horrendous (currently lying on the bed not able to work which is unheard of for me). I’m a week post treatment so hoping it’ll start getting better but apparently the diarrhoea could be the herceptin/pertuzamab which needs to continue for a year.....god I hope not!!!!!
Got a date for my surgery (3 weeks today) so onto the next step now....
hope everyone else is doing ok x
How are you feeling now ? Hope your temperature has come down and you are starting to feel better to get back home. Hope u enjoyed the sewing Bee too.
My gene test has come back Negative im really pleased as was worried about it for my children .
Just been to hospital for bloods and awaiting the results of the White blood count . Hope its coming back up so i can have round 6 on wed .
Sending you best wishes
Love Daisy xxx
That’s it Artycart you get thinking about the celebration tune you’ll pick so everyone can celebrate you getting home with you 👍 I know I think it was day 4-5 of my casa nhs stint when mai7 told me to have a look at them it gives you a giggle if nothing else, that and you will never look at mars bar, flake and Maltese’s the same again 😂🤣😂🤣sending 👭🤞keep safe 💕💕✨✨Shi xx
Hi Shi, I am using saline mouthwashes after eating and Nystatin drops. Still no diarrhoea and wow! Those cakes! Haha!
Imagine getting that for your birthday 🎁
I’m still feeling very achy and sore all over. Hope this gets better soon. Temperature and throat don’t feel quite so bad today so fingers crossed things are improving.
Looking forward to being able to dance round my kitchen again soon xx
Artycart is it fluconzole they have you on or are you on drops or something else? T can be different on everyone but think a lot of us broke the speed of sound as it gushes out your bum, not great but true, although I have know of a few get bunged up on t too, so just keep juggling the balls 👍👍 and for a giggle google Bristol stool chart cakes and you can see inventive cakes that med students make 🤣😂🤣 sending 👭 it can be pants being in casa nhs but everyone is ready to celebrate you getting home and you pick the tune you want everyone to have a boogie round their kitchens to in celebration of you getting home 👭💕💕✨✨Shi xx
Happy birthday Vasanthy! What a great present to have finished chemo! Perhaps you cd plan how you will celebrate next year?
enjoy the great sewing bee Artycart 😊 hope you get out of hospital soon.
sorry you are fed up Carisma- it is such a long tough journey but then returning to normal life is also daunting afterwards- I am already thinking about what I will miss about the time off- when I started the journey all I wanted was to go back to normal life! 🤷♀️
Daisy- it sounds like you are having a really rough ride with chemo- everyone is different and I don’t think anyone knows why people react differently. I do hope the filgrastim does the trick and you aren’t allergic to it. If not I am sure the docs will have some other strategies to try.
I am doing ok, eyebrows and eyelashes finally going after 4 weeks of paclitaxel ☹️ Also got a few nerve tingles. I am trying to visualise a future healthy me- it’s meant to help 🤞🏻
best wishes to all including everyone I haven’t mentioned.
Hope you can manage some food even if its not the best tasting .Hope you get some rest
Enjoy the sewing bee !
Let us know how you are and sending lots of love
Thanks Shi 😊 They’re giving me mouthwashes and anti fungal medicine. Managing to eat though the food is not great! I’ve never tasted such a disgusting jelly! Though that may be down to my ruined taste buds...
Have asked for laxatives but they are concerned that I’m more likely to get diarrhoea so have to be careful.
Looking forward To watching The Great British Sewing Bee at 9pm so that will keep me entertained 😃
Thanks everyone for your good wishes and wishing you all the best too xx
Artycart even if you don’t feel like food while in casa nhs try and get some down you ❤️ And keep your fluids up, t can either give you hurricane bum which is quicker than usain bolts 100 or it will give you bitty block so have Imodium and senokot at the ready for either scenario ❤️ Keep safe 👍👭💕💕✨✨Shi xx
Hope your headache goes and that the antibiotics kick in soon and you start to feel better so you can get back home.
Yes not long now till all this will be done and we can plough through the surgery
Sending you lots of love and wishing you lots of rest and a settled night.
Love Daisy xxx
Thank you everyone. It’s horrible being in hospital but when you’re feeling ill it’s the best place to be.
I’m still feeling achy and headachy and sometimes hot but I hope the antibiotics will now get to work. They didn’t give me anything until long after they got the results of the covid swab which was unfortunate.
I am desperate to get this chemo over with as I’m sure we all are and this is probably the toughest part but we’re all nearly there now xx
Virtual Hugs to us all as we need them now so much but can’t really have them at the moment xx
so sorry to hear you are in hospital but glad your covid screen was neg. How are you feeling now ? Im sending you lots of get well wishes and positive thoughts to keep ploughing on through this Chemo.
Happy Birthday and fantastic news to finish your chemo.
So glad your second round wasnt as bad for you. Totally get what u mean about feeling fed up. Sending you a big hug and hope tomorrow is a better day. I also get tightness in chest and throat too. It must be a strange feeling in thinking about going back to work following going through this harsh treatment. I must admit that im missing my work and colleagues . Never apologise for how u feel . We all understand as we make our way through this bumpy road. Ive felt really low of late too and just cant wait for the operation and to feel better.
Hope you are ok and sending you best wishes.
Thank you for all your kind words and support.It really does help.
Hope you are doing ok and got a date for surgery.
Sorry if ive missed anyone out . Had rough week again as my WBC has dropped to 0.02. Started back on injections and got to have repeat bloods tomorrow. Just so tired all the time too. Is this normal ?????
Sending you all lots of love
Thanks Shi xx Just need to get the temperature sorted out so getting some antibiotics. Hope to get out tomorrow. Docetaxel is a whole new ball game for me. Tracy xx
❤️Artcarty 👭 great news you are covid-19 clear 👍 hope you get back home soon 🤞🤞 keep safe 💕💕✨✨Shi xx
Happy birthday Vasanthy and well done on finishing your chemo.
My second round of docetaxol was marginally kinder than the first, still have the muscle spasms but at least I have the painkillers to deal with them this time round. I also seem to have, not exactly difficulty breathing, but being very aware of my breathing and tightness round my chest if I move.
Also feeling quite down today, I'm really fed up of the same 4 walls and no likelihood of that changing any time soon. I am looking forward to my last chemo with some trepidation as to what next. I still don't know if I will be having radiotherapy or not. My thoughts are also returning to work. If I was returning to the office it would be daunting enough after 7 months away but working from home and trying to get up to speed without people around me is a whole other ball game.
I hope everyone else is doing well and apologise for my negativity - I should just be grateful to have got through this!