Hi weeburd and miss green
thanks for your reply’s . Yes I have applied to the moving forward course although it’s a 56 mile journey I’m looking forward to it . Have any of you still got reflux . Mine is so bad that I’m eliminating food and it’s not making a difference. Haven’t drunk tea for nearly a week only water and camomile tea (yuk) . My Gp has put me on esomperazole 40mg twice day but after 2 weeks it’s not working. I rang the chemo unit who said to ring gp and I also rang radio unit as I had radio to neck area to see if it’s related but was told yes but then told no . Just wondered if others having problems .?
Hi everyone - really happy to report that I had WLE and node clearance a fortnight ago and today I got results that there were clear margins so it is all out! It’s my birthday today as well so it feels like the best birthday present ever 😁 Still have radiotherapy, herceptin injections and some other drugs for 7-10 years but today feels like a huge step in my journey.
Hope you are all keeping well , and wishing you all good luck for the future and thank you all for the support over the last 6 months. Xxx
Hi all - looks like we are all still having a few issues.Hope your drain came out yesterday Bibi.Sending big hugs to you Miss Green.Must be nice to finish rads Wee Burd.The thought of moving forward and going back to work is daunting😕
I ended up going back to theatre on the 24th to clear a large heamatoma behind my temporary implant.Drain number 2 came out last Fri and all dressings off yesterday so hopefully on the mend now.Still very tender especially under my arm pit although scar stops atleast 2 inches away.Been told this is probably nerve damage where they took the lymph glands out.
Bibi like you I am finding the exercises a bit tricky to do.Dont want to over do it as don't want to induce another heamatoma or seroma. Going to Spain Sunday ( daughter is bridesmaid) - don t fancy going in to Spanish hospital for drainage! Managed to get insurance😀
Some good news - hair is growing back - have about 1.5cm on the top.Eye brows have all of a sudden started to appear and have a few tiny eyelashes!Oh and pubic hairs- they seem to be winning the race currently.So glad the chemo bit is behind me 😁
I have been referred for rads Bibi but not yet heard.I anticipate a 1-2 week wait for onc appt.Then 2-3 weeks before date for 'planning'.Then 2 weeks before start of treatment.Therefore mid to late Sept( Portsmouth hospitals).
Maybe back to work end of August.??(I work at the hospital- planning to have the treatments whilst at work/ just after shifts depending on how it effects me.
Thinking of you all xxx
Miss Green, so sorry to hear that the doctors misadvised you. Hope they have a firm plan worked out for you by Friday. Hopefully there is something they can do that doesn't prolong the treatment for too much longer. Sending hugs and wishing you luck.
Bibi, hope you are recovering well and get a chance to enjoy the wedding at the weekend. Keep persevering with the exercises, they really do help!
I finished radiotherapy treatment today, so no more trips to Glasgow for a while. They have advised that the after effects will probably peak in about 7 - 10 days' time. I have invited some friends round for a celebratory afternoon tea on 10th Aug, so I just hope I haven't been overly optimistic about my energy levels by then!
Off to visit my parents tomorrow - and to celebrate their diamond wedding anniversary with them. Looking forward to the break.
I have signed up for the Breast Cancer Care Moving Forward Course starting on 9th August which I hope will be interesting and informative. I need to think about getting back to work and I'm hoping the course will have a few pointers about coping with that!
Keep well everyone x
Oh Miss Green - the emotional up and downs of these pieces of information are so hard and draining - I am sending you hugs 🤗 and hope you are bearing up and they are able to offer a good plan for you 🤞xxx
Morning everyone - glad to hear your good news Miss Green - must be such a relief for you.
How are you coping with the radiotherapy WeeBurd? At least the hot weather has gone now but the daily trek must be wearing - not looking forward to that.
Macneech hope you are continuing to recover and initial problems after op are easing. Have you had results and dates for radiotherapy yet?
After always being told I would be having a mastectomy - when the chemo finished and I saw surgeon again it was a different (one due to illness of previous one) after much discussion of chemo results ( very good response) and initial diagnosis and much soul searching I was advised I could have a WLE instead . Date for op was delayed a week so went off to the Welsh Coast to enjoy the beautiful weather, but I had it last Thursday- 26th so am just recovering. Drain a bit uncomfortable but 🤞out today when I visit hospital for check up, feeling bruised but much better than I thought I would. Next big step is getting results and hearing the words ‘ clear margins’ so just distracting myself from that- got a family wedding next weekend and looking forward to catching up with everyone plus hoping can get my outfit on! Doing the arm exercises but some a bit painful atm . Take care everyone and continue to enjoy life. xxx
Brilliant news Miss Green. Good luck Bibi for your surgery this week.I had a right mastectomy and axillary clearance last Tues and frustratingly had a slight blip.Felt brilliant the afternoon following surgery but I managed to block my drain overnight,had a very low blood pressure and grew a HH size boob.I had a B size temporary implant! Been home since last Thurs but have still been really wobbly with low HB ( been put on iron),Felt like bad chemo days!
Oops - thought this bit would be easy and maybe had too higher expectations.
Saw consultant yesterday - pressure dressing off which was a relief but drain still draining.Back to see him tomorrow- threatening to aspirate blood clot/ fluid if it hasn't gone down 😕
Oh well - I know things will get better.On to the final hurdle ( rads) come Sept then hopefully done.
Hair definitely coming - very fluffy on the top of my head.!!
Again - good luck Bibi - try not to sleep on your drain!😁
I asked today about the nail varnish when I was in to get my herceptin - the answers varied from 3 - 4 - 6 weeks! Looking on the internet, I couldn't see anyhting specific to answer this - only that any discolouration should go away in a few months. I am now 3 weeks on from my last dose and was thinking of giving my nails a breather when the current polish starts to chip which will probably be within the next 2 or 3 days. One of the nurses suggested cleaning it off at night and reapplying during the day but that sounds like more effort than I can be bothered with!
Hi everyone - I’ve been lucky with nails , just one or two splitting at the ends - I’ve been wearing dark nail varnish which I hate so don’t know whether that helped - have taken it off now as I am nearly 4 weeks post chemo now and hoping any effects from light have passed.
Hope your op goes well Macneech and you make a good recovery.
My op is July 19th so hoping we will get a little break away next week for a few days after hubby has finished a work contract and in between heart scan and pre-op. I’m fancying a walk on the beach to lift my spirits and steady the nerves.
I am starting to feel my energy levels return and have been trying some exercise, done a couple of swims and did yoga in the garden last night with my yoga teacher - first time since Jan - really enjoyed the stretch. Trying to build myself up before op, am eating much better and 🤞am slowly starting to lose a bit of the chemo weight gain. Hope you all continue to recover well and good luck with whatever is next for you xx
Hi everyone,good to read that most of us are gradually coming out the other side of chemo.I am beginning to feel nearly normal at last although my legs still feel like tonne weights and numb when I get moving and am now in a continuous hot flush! - could be something to do with the weather!
I have managed to hold onto my nails so far but the tenderness is still there.The nail tips rather than the cuticle seem to look weaker ( yellow and fibrous)which is weird as I thought the damage should show from about half way down.
Hair is growing but far too slowly and so patchy😕.Lots of new grey!( Can't brave going wigless yet).
I did have post chemo bloods but am due to have surgery next - pre op tomorrow then mastectomy and axillary clearance next Tues.Any advice greatly received!!
So need to get away - so glad you had a great weekend Miss Green!
Planning to get to south of Spain ( daughter is maid of honour for her best friend ) - will be 4 weeks post surgery?!?
No swimming in the pool for me I don't think - just dangling my feet xx
Ah Wee Burd that is so good that you got to finish - hoping you get through the recovery from it in time for your choir - that’s something to look forward to.
Had my last T last Thursday and am just about over the sicky feeling but also suffering from the dreaded diarrhoea and am very fatigued - got up this morning feeling full of energy - went on a tiny walk with dog and had to have a lie down 😂 legs are like lead. So realise I need to be more realistic in my plans for the days and build up slowly - had great plans today but mostly slept and read.
Have appointment to see surgeon next week so trying to build up for being prepared for that.
The weight gain is a pain isn’t it? In the grand scheme of cancer things I know it’s not but helping to feel good is not helped by it. I have 2 family weddings in August and bought outfits earlier in the year - dreading trying them on now 😱 so am going to focus on good nutrition and gentle exercise for next month and hopefully they will still fit. I find after Docetaxol and steroids Imreally crave carbs - which obviously doesn’t help but am hoping I am through the worst of that now and can get back,to some healthy colourful food.
Take care everyone and good luck with next stage - whatever that is for you xxx
Hi everyone had last T last tues thought I was over things but wham today it hit me . Think it’s the steroids wearing off . I was that bad after going for my Hickman line flush etc I had to go back to bed. Eyes so blurry and really wobbly.
roll on the end of mouth. Got horrible mouth changes nails hurt back ache and so tired.
How is everyone else..? Iffel that this thread has come to its end of life now as everyone seems to be moving on. Just wanted to say thankyou for all your support and good health to everyone xx
Sorry to hear of your delay WeeBurd, fingers crossed it’s dealt with quickly but it sounds as if you are getting great care and attention from your health professionals. It must be frustrating, especially when so near the finishing post. I still have 2 weekly sessions to go and veins are hanging on in there so i’ll pop in to the forum now and then.
Steroids have kicked in again so back to prowling the garden in the middle of the night to try and tire myself out so I can get back to sleep, although surprisingly i’m never tired in the morning when I get up for work so no rest for the wicked. I think my boss is slightly confused how I keep turning up each day apart from the treatment days and still carrying on as normal.
Congrats to everyone ending this stage of treatment it’s amazing how we all cope with this process especially after those briefing sessions where all the possible side effects are gone through in such detail you’d be forgiven for locking the door and hiding under the duvet until it was all over.
Take care and i’m sure you’ll get to that final treatment, maybe just a little later but in the meantime enjoy the view of the Ochills.
Last Docetaxol done today - felt quite emotional leaving the unit - they have been an amazing support during this **bleep** time. Will still see them after the surgery as I am having herceptin injections too Macneech - have 14 to do as have had 4 lots whilst having the Docetaxol. Also having mastectomy and axillary clearance - said it would be 4-6 weeks from now so will be expecting appointments soon-also interested in any advice on that.
will then be having the radiotherapy. So still a long way to go but feeling like I’ve reached a big milestone today - still got to get over it mind - usually have a good a couple of days first whilst the steroids are in system so will try and enjoy the good weather - although having a new boiler tomorrow as that very annoyingly conked out just before we went on holiday- currently boiling water in kettle and having showers with bucket and jug standing in bath - oh joy !
Sending you hugs Wee Burd and hoping the infection hasn’t stopped your last treatment - I think the thought of it being delayed could be quite upsettting when you e had it mind this is the end - but you will get there so take care.
Thank you all for the support on this journey that we are all getting to the end of - hope we will still continue through the rest of the treatments it would be good to hear how everyone is doing. I will probably look on the surgery threads for some tips and advice so may see you over there as well- well done everyone for getting this far and take care for the rest of the journey xxxxxxx