That’s great. I have been thinking of you and it was a delight to hear you’d got through it. It’s ok for us who have been through it saying you’ll be ok but now so ok when it’s your first treatment. Brilliant, the very best of luck. I was exactly the same, the tiredness or fatigue crept up on my after about 6 sessions but, nothing you can’t handle 👌 A massive well done @coki32 x
@Ruth1964 @I was able to take a friend I was that bad she had been through bc an chemo x next time I’ll be fine x feel pretty normal today been awake since about 3am think it was the steroid they gave me yesterday they told me not to take any after 1pm today so hopefully I sleep better tonight don’t feel sick I just feel like I want to lay down an do nothing prob makes a lot of sense to most of u xx
Brilliant @coki32 that is amazing, you’ve done it, over the first hurdle. In fact, you’re even better than me …. I couldn’t face having the cold cap. Well done, I know how anxious and worried you’ve been, as we all are, so pleased for you that all went ok. 👏👌
@coki32 I felt very tired and a little sicky the day after but nothing major. I felt really sick on day 4 but rang rapid response and they told me what additional anti sickness to ask the doctors for and that helped. I finished the steroids after 3 days. The injections did make me feel off the day after the first one. Achy, all in my shoulders and neck to touch and to move but that was better the day after luckily. I have had a cold and a heavy period too which didn’t help and make you feel abit rubbish anyway. Headache most of the way through but everything seems to have medication to help so just make sure you ring and ask them if you feel it’s too much. Other then the usuals side effects, nothing major which I am very grateful for xx
@coki32I was just about to put a message onto you 😊 brilliant, well done. So glad the first one is over for you. That’s exactly how I felt when I got back. Drunk without having gone to the party. Take it easy and be proud of yourself for getting through it. So daunting first time but now we know what to expect. I’m not feeling too bad thanks. Had my third injection tonight so only 2 to go. Luckily my daughter is a student nurse so it’s given her a chance to jab a real person. She’s loving it haha Let us know how you feel as you go along xx
@Ria1975 Hey guys I’ve been all done feel a little drunk which is fine came home scoffed lots of food x did the cold cap which was fine too sent home with lots of bits to take got to inject myself to boost white cells
Thank you for sharing did you have any side effects after your first round?
Its good to share how each are coping and tips how desl with things.
My first EC is 26th Feb. Abit nervous but reading all posts are so reasuring.
Thank you @Debster22that is super helpful and reassuring re cap and I’m glad you are doing ok after your first dose. My PICC line went in today. @Pengu1n it was fine. They were ever so reassuring. Unfortunately they couldn’t quite get it in on the unit so I was referred to radiology and they did it using the x ray machine as well as ultrasound (tough small veins apparently!) but I felt comfortable throughout so please don’t worry. Will check back in after my first treatment.
wishing everyone well and sending positive thoughts to you all x
Hi had my first EC cycle 2 weeks ago and opted for the cold cap. I was told to take a couple of paracetamol an hour before. I had to have the cap on for half hour before infusion and during which was another hour and then one and half hours after. I found the first 15 minutes intense but after that it was ok. PICC line procedure was painless I found as they give you an anaesthetic in your arm. This is great when you have your infusions and blood tests. My first EC cycle went ok didn’t feel anything and yes it is a relief to have first out the way. It is anxiety and build up waiting for the first one. Even though I was there for about 3 hours in total the time went quickly. Please message if I can offer anymore support or advice. good luck and big hugs 🤗
@coki32 How did your first chemo go, thinking of u and sending a big hug 🤗
It really is a steep learning curve. Totally out of the blue but no big announcements. Each appointment and conversation fed the creeping realization that what started as a routine mammogram was becoming a much more significant event. Thank goodness for routine mammograms though.
Thanks @Pengu1n good to hear there is someone on a similar plan (I had no idea before I was in the thick of it that treatments were so varied between individuals and there were so many different drugs). I’ll let you know how the PICC procedure goes. Keep positive, we can do this x
Your treatment plan sounds almost identical to mine. I am having 3 cycles of EC followed by 4 of placotaxel. I’m having PICC on Friday 25th and first chemo on Sat 26th. I know exactly what you mean about mixed feelings. I regularly sway from ‘let’s get this over and done with’ to ‘this can’t be happening’ and back again. Good luck next week, thousands get through this so why not us too. Keep posting please. It’s interesting to know how others are getting on.
this is my first post so apologies if it’s crashing on the thread out of sequence, I’m not at all IT savvy! Just wanted to say hello and thank you all for sharing everything you are experiencing it is so helpful. I was diagnosed in late November, had a lumpectomy and node clearance just before Christmas. I’ve been lurking in this thread for a week or so as my chemo start date looms closer. PICC line going in tomorrow and treatment starts Monday 21st. Am having 4 cycles of EC then 4 of placotaxel. Half terrified half just wanted to crack on and get it done. Aiming for every two weeks if all goes to plan. Will be trying the cold cap so any tips greatly appreciated.
wishing you all well with everything x
@Debster22 Wow that’s great your thread was very reassuring as was everyone else’s x I was gonna try cold cap as I’m terrified of losing my hair I’ve read alot of people putting take paracetamol before did u try that ? I’m so glad to keep coming on here an being reassured all the time thank u xx
i had my first EC cycle on 5th Feb so am now 10 days on. I thought I’d share how I’ve been feeling , although I know everyone is different. On the day the nurses are fab and reassuring. They answered any concerns I had and made me feel relaxed. The first few days after chemo I felt nauseous, light headed and had a headache but not too bad ( was told headache could have been from bald cap) I was very tired but overall as others have said not as bad as I had expected. After that I have improved with nausea feeling but have found I still feel tired after a few hours. I go for a walk every day just to get moving and the best advice I was given was listen to your body. If it says I’m aching go for a lie down. I have had intentions of going for a quick nap only to awake hrs later. I don’t set myself any goals and just take each day as it comes at the moment. now 10 days in and am feeling much more like me again. I have also had heartburn ❤️🔥 but got some medication from the hospital for this. I also tried the bald cap which so far has resulted in no hair loss. I am 50 and was relatively fit before chemo and working . Be kind to yourselves and big hugs to all starting chemo soon. If you have any questions I can help with or offer any support please let me know.
@Felixfelicis hi, I am a day behind you with the same chemo. I felt very tired yesterday then struggled to sleep last night. With all the drugs I suppose it’s inevitable but I can cope as long as the sickness isn’t too bad. Managing to keep that at bay. Hope you feel better soon. One down and out of the way xx
@coki32 I am so pleased that you have been given another date. I was quite anxious, it was the unknown but please rest assured that they explain everything as you go along every step of the way. I am feeling a little sicky at the minute but honestly now as bad as I had envisaged. I don’t feel myself at all but I really thought I would be in bed all day every day and that hasn’t been the case so far. I work Weds but if I ever make it up there around that time I will look out for you. Good luck for Thursday. You have this 😊 you can do it. Keep us updated on how you go xx
Yes i will be starting on 26th at the churchill, they have given me an early appointment 8am,
I keep reading all the posts as really unsure what to expect am hoping i can manage and not get really poorly being young i think it be ok keep telling my self that but really unsure. People i know who have been through it all didnt seem that bad.
Will private message you if you like
Good to know you’ve got the first one out of the way without much nausea. Im having my first EC on 26th and it’s the nausea/hangover feeling that I’m most concerned about. None of us know quite what to expect but I think sharing on here helps. Good luck all.
ps is anyone else going to the Churchill in Oxford?
How’s everyone feeling? I had my first chemo (EC) on Thursday and haven’t been too bad with nausea but the tiredness really kicked in yesterday. I’ve just slept for an hour and a half too and only got up because the phone went or I’d still be lying there. It was supposed to be a 10 minute lie down after I’d done the hoovering!
Is anyone else feeling so tired?
@Ria1975 @Oh I’m so glad it went well x I’ve got to go Thursday now they have gave me something to calm me down because I suffer with anxiety all this has made it worse x but the op never bothered me I think it’s like we all say the unknown side effects x I’m going to the getting started at maggies weds morning at 930 I think it will do me good
Mine starts on the 26th Feb. EC every 2 weeks 1.5hrs until April.
Stay strong can get through it, for me its the unknown of side effects could have how it will make me feel.
Hope your ok
My chemo starts on the 23rd Febuary, didn't feel real until now. Hope you're all doing ok.
Hi @coki32 it went well thanks. It was the evening by time I got started but that wasn’t too bad as it quite quiet. Feels like I have a hangover today without the party 😊 maggies is such a nice place to meet up with everyone x
@coki32 That would have been me 😊 dark hair for now. First chemo today and I wanted to visit with my husband so he had somewhere to go whilst he was waiting for me. They were just lovely. I will be happy if I know he has somewhere nice to be and they promised him plenty of tea.
Coki32 We called into maggies yesterday for the first time too. That wasn’t you on the way out as we came in about midday was it? They are amazing there xx 😊
Hi everyone I went to maggies at Nottingham city hospital yesterday it was really nice chilled out x they do a lot of courses etc worth going if u can xx
Thanks for checking up on me, Coki 🙂
I'm just home from the ward. Appointment was at 4pm, but they were not having a good day so I didn't start my bisphosphonates until nearly 5pm. Didn't help that it took 3 attempts to find a usable vein - that has definitely changed for the worse since the sepsis. While those were going, I got all the chat about the capecitabine, but turns out I won't start those until tomorrow morning. I foresee another less than great sleep; it's just putting things off!
I'm a little worried about forcing myself to take the tablets twice a day, especially if I'm feeling rubbish (which feels likely, post-bisphophs). It seems like a cruelty having to make that choice again and again and again, urgh. I'm also supposed to have the two doses 12 hours apart with a meal - which is not how I eat, so that'll be an interesting one to figure out o.O
I'm also less that convinced that the nurse's chat about near-normal life on these will be true; I've read a lot of stories on the forum. Still, wouldn't that be nice? One day at a time, I guess.
I'll be starting chemo in about 2/3wks time. I did receive a call saying they could book me in next week but I need to have a root canal first - getting that sorted tomorrow.
I was diagnosed with HER+ back in July, each time I went back...the news wasn't what I wanted to hear. four ops later...I'm now at chemo stage. I'm 51, a single mum and business woman with two online shops. I closed them at the end of November, the ongoing surgeries wiped me out. So now I have my second wind and need to get back to business but nope! Chemo time! I'm determined to carry on best I can. Take each day as it comes. If the truth be told...I am scared of the unknown but I know I need to crack on with this now and get it done.
I'm having my treatment in Truro, Headland Unit in Cornwall. Anyone else?
My treatment plan is 12 wks of Paclitaxel then 8wk (fortnightly) of EC. Then some sort of bone medicine for 3yrs. I'm already taking Anastrazole which I've found perfectly fine, the occasional hot flush and sore legs at the beginning but doing okay really.
I've been reading through all the threads here, sooo many amazing strong women here. I bow graciously to you all. You've all given me a lot of hope. I'm not one for forums but I'm going to try and connect with people more.
Sending you all a load of love, positive vibes and as much strength as I can muster.
We've got this!
Another one here (re)starting chemo tomorrow. Somehow I don't think I'll be sleeping much tonight - I'm so tense and fretting about it. Hard to believe that I'll be feeling so utterly rubbish in 24 hours or so 😞
@mel1989 Hi, I’ve just popped over from the October chemo thread. At your appointment we’re you given a telephone number for the nurse specialists? I’ve found them at my hospital to be excellent and they may be able to go back over the question you are asking. It’s so difficult taking everything in at the appointments with the oncologists isn’t it. I’m sure they would be happy to chat with you. If you don’t have a number perhaps telephone the chemo treatment unit at the hospital you are going to and ask if there is a specialist nurse you can speak to. I hope that helps.
Thank you for this.
I went to may appointment yestetday to find out about treatment plan
EC, Paclitaxel and Zoledronic
Every 2 weeks for 20 weeks think he said for 3 hours a time
First one will be on a Sat, havnt had dates yet blood was taken i think be first Sat March.
All seemed abit of a blur now and of course have questions one thing that hit my husband hard which you prob all dont want to thinki about as we arw all strong and will fit it but he has struggled mental health ect the consultant said can have treaments and chance of 30% survival of the 5yrs i think he may have heard wrong so if anyone has any info on this i cam share with him as this has really got to him that in 5 years i may not be here if treatment doesnt work i know so many people who have had breast cancer and got through it still now living there life fulliest years down the line. I knew we are all different, i know i can do it so string yes days will be hard but there will be good days too.
I am going to look through a wig style book today and choose several as i think hair loss is a side effect along eith others i may have.
Stay strong every one, we cab do this together!
I just got my biopsy results and it is ER/PR positive which is good but the tumor has reached my skin which is not so good. Tomorrow meeting the oncologist to confirm my treatment plan, the suggestion is to go through chemo first before surgery. So many questions running in my head now, thank you that this forum helps with some of them. Also how long after a chemo session will I feel tired and cant work? or do I need to take a long break from work? I really don't want to take a break but I don't know how will I be feeling.
@annie0000 I hope all goes well. I start mine on the 11th and feel exactly the same as you. Once it starts we can start to tick each one off. Good luck xx
@annie0000 I’m starting on the 9th Feb too. Dreading it in someways but also looking forward to getting started if that makes sense.
@Debster22 Thank u this is so reassurancing I felt like they wasn’t caring at all they didn’t even realise it was 1st 1 x I work in a school if I didn’t read up on new children an gave them peanut not realising they had a nut allergy that would be so wrong that’s how I felt at the hospital xx
Hi all hopefully I can answer a bit of all questions 😊 I had my first cycle of EC yesterday and all went well. The infusion was for an hour which was administered by the nurse. I didn’t feel a thing. ( I think it may be certain infusions administered by nurse not all)
I chose to have the bald cap which was on for half an hour before infusion, during and one and half hours after so I was there in total for about 3.5 hours. I found the first 20 mins of the bald cap very intense( absolutely freezing on head and pain above eyes) . However this soon passed and then it just fell slightly cold and no pain. Glad I bared with and will definitely have on next cycle.
I took IPAD (downloaded some series) and book to read and a few snacks and water. Didn’t end up using. I was sat with other patients and we ended up chatting which was nice and the time went so quickly. They came round with sandwiches, biscuits and hot or cold drinks but they say to take your own if you want. The nurses were really nice, calming and so helpful if you needed anything clarifying. It’s now nice to know what to expect next time.
when done I felt a little light headed and slight headache (maybe from bold cap) but took paracetamol and felt ok.
I have my injection to do for bone marrow today which I decided to bring home and do myself.
Hopefully this is a bit helpful and good lucK to all on your journey. I’ll post again in a few days and let you know how I’m feeling but if I can support in any way get in touch. Big hugs to all
il finish by off with a piccie of me digging my cold cap 🧢 lol
Yes, Herceptin causes heart damage. It’s why they do a baseline heart echo (by ultrasound) before you start it, so they can see how much damage it’s doing as the Herceptin progresses. I just had my echo today. Helpful ultrasound doctor. Why is your Herceptin only 18 weeks? I wish mine was. Also, I got a call from the so called breast cancer counsellor today. She was very negative and pessimistic about everything and even the nice breast care nurse today said “oh well of course you have to think about quality of life as well” which now has me convinced that my cancer is more serious than I thought. I get that they can’t guarantee anything, but really, they could be more positive! On the one hand they tell us to be positive and strong and then categorise all the possible side effects (horrendous).
Has anyone else refused steroids? I don’t want to take them.
@coki32 So sorry to hear your 1st day didn’t go to plan. Hope you feel better today and you get over the first hurdle. You can do it, you will be ok. Keep strong, honestly, you will do it and wonder what all the worry was about. Easy for me to say now but please believe me, I am the worse patient on this planet. Good luck, deep breaths and it will be done. 🍀