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January 2016 Chemo starters

Sissylw1980
Member

Re: January 2016 Chemo starters

Hello all,

Cassie, I hope your chest infection clears up quickly, I was forever itching and wanting to move during rads!

Fiona, that's a good idea and would be fab if you could join us. Once we get a date we can make some arrangements.

I had my appointment with the consultant today, second mx is booked in for 11th August, I was hoping he'd also be able to tidy up my other mx as I have a slight 'dog ear' on the side of it, however he can't as you have to wait up to a year after rads have finished because the skin is sensitive. My skin is kind of okay at the moment, though you can see the large rectangle outline from where they've targeted the rads, also my arm pit is looking a bit red and sore. The problem is that since my ANC I've had no sensation in my arm pit so I can't feel if it's sore.

Easy Kent ladies, today Bcn Louise said they're setting up a new group for ladies with BC, apparently there's already one at K&C but they now want to set one up at whh, think he plan is that it'll meet on a monthly basis, think I'll join it as it's nice to chat with others. Love to all xx
Fif66
Member

Re: January 2016 Chemo starters

Evening all and hurrah for finishing Sissy, fabulous news, you're through the tunnel and back in the sunshine! We're all getting close now, can't wait until we all get there.

 

Daisy, it was nearly 4 weeks until I got my taste buds back too, I celebrated by going out to a lovely restaurant in Edinburgh and staying the night in a posh hotel, it was a real treat and well worth celebrating, that horrible taste is just a nasty memory now.  The downside is I've put on 4 lbs since finishing docetaxl lol, despite breast reduction surgery!  Must get back on track....

 

Spent nearly all day on the sofa today as I'm determined not to do too much while I recover.  It's really difficult for me to take it easy but I'm doing well.

 

Claire I'm sure your hair is perfectly lovely.

 

 If you East Kent ladies decide to meet up on a week day evening do let me know and I'd love to come and say hello.  Although I live in Scotland I work in London during the week (when I get back to work), and my mum and aunt are from Wye, where my aunt still lives so I could take the train to Ashford and pay her a visit too, which would be really nice.  XX

Cs66
Member

Re: January 2016 Chemo starters

I'm 5.45 tomorrow so may well see you Ellie I've got horrible brown wispy hair!! I'll keep a look out for you xxx

Ellieb
Member

Re: January 2016 Chemo starters

Hi Daisy - mine took a few weeks and isn't that so annoying?! But now absolutely fine - it will come back to normal! 

Ellieb
Member

Re: January 2016 Chemo starters

Claire I was back home by then! Tomorrow I am 5.15 but have a consultation before.

Cs66
Member

Re: January 2016 Chemo starters

Hi, I had a salty slimy taste in my mouth on T and absolutely no,sense of taste at all. It took about three weeks for taste to start to come back then gradually return to normal.
Claire xx
Daisy63
Member

Re: January 2016 Chemo starters

Hi ladies Feb starter here, has your taste buds kicked in yet, my last T was on the 2nd June my mouth still tastes bad. Bitter. 

 

 

Hope  your all doing well. 

 

X X X 

 

Pop78
Member

Re: January 2016 Chemo starters

Hi everyone, hope all doing ok and you are feeling a little better Fiona. Gosh, that's annoying having rad times changed - I was given a print out at the planning appt to show dates and times, every day 12.40, apart from Monday's which is 12.30, due to review with consultant prior to rads. Why is it that the second your hands are above your head holding the 'handles' etc you ALWAYS get an itch to face, ear, etc and desperate to scratch it!! On the ceiling above is 2 ceiling tiles that has a picture of daffodils / flowers and I try to focus my brain on counting the leaves etc as distraction. Think daffodils will remind me in the future . No 10 for me today .

Has anyone arranged travel insurance yet ? What company , much increase in cost ? ( hate to think what it's going to jump up to ) Can anyone give their experience please - Thankyou . Hope everyone has a good day .

Mechele X 

Cs66
Member

Re: January 2016 Chemo starters

I'm the same. I keep wondering if I've seen you. I'm at 5.05pm today. Xx
Ellieb
Member

Re: January 2016 Chemo starters

Hi Clare- I keep hoping to run into you at rads but don't know if I have yet! They change the times so much it's possible we haven't yet met. A reallynicelady smiled at me yesterday - I doubt it was you as that was gone 5pm! 

Cs66
Member

Re: January 2016 Chemo starters

Yay Sissy you've done it!! When I think back to how we all were at the start of this it's incredible to think we have got to the end of active treatment and survived some pretty tough times. It will be good not having to go to the hospital everyday! Nine rads  left for me now.

Have you got your tamoxifen yet? I've taken three so far and no side effects yet but I realise its early days. I'm pleased though that last week I went back on the Slimmimg world plan and I've dropped a few pounds already. It could be due to the steroids finally getting out of my system.

I hope you feel better Cassy. Chest infections are awful. Every time I get on the rads machine I get an itch or the urge to cough, so I can imagine  how hard it was for you to keep still! 

Have a good day everyone

claire xx

CassyB
Member

Re: January 2016 Chemo starters

It is good to read that everyone is doing so well. Fiona you have been really brave and coped very well, I think I would have gone to pieces! I hope your recovery goes smoothly from now.

 

I am feeling fed-up! After taking great care not to pick up any illnesses while having chemo, now almost 5 weeks after having my last chemo, I have a chest infection.  Felt pretty awful over the weekend and had to visit a walk in centre on Sunday morning to see a GP. I was prescribed 2 different types of antibiotics to make sure it goes. The radiotherapy today and the sessions at the back end of last week were difficult trying not to cough/move too much!

 

love to everybody,

from Cassy xxx

 

 

Sissylw1980
Member

Re: January 2016 Chemo starters

Hello all, sorry I haven't posted for a while, have been busy at work and going to rads etc, have been feeling very tired as well, it was nice to have the weekend off with no rads or work to go to!

Fiona, how are you doing? I'm glad to read that you're being looked after well and that everything went okay. Debbie, I hope you're recovering well from your operation and keeping up with your exercises, etc. Ellie, mechelle, Kim and Claire I hope rads are treating you well and you aren't too sore or too tired, Claire it was great to meet you last week, we need to organise our get together for us east Kent ladies.

I'm pleased to at that I finished my rads today and celebrated with a nice glass of champagne, it all feels a bit odd right now, I can't believe I've done it and my active treatment is over. Just have my mx in August, which I'm meeting Mr C about tomorrow so should get my op date. Felt a bit tearful today, took my rads team a tin of chocolates and a tin of biscuits as a thanks. I think they must get a lot of chocolate and sweet related gifts! Love to all xx
Fif66
Member

Re: January 2016 Chemo starters

Well done Claire that's great, did you walk it or did you run?  I just managed a short dog walk round the park today after getting out of hospital yesterday.  My husband cooked a fantastic Sunday dinner and my teenaged daughter did all the ironing so I felt really relaxed and looked after.  Had a good night's sleep but this morning I had weird vivid dreams about driving in dangerous car parks which was very peculiar as I've had no dreams at all for the last 6 months.

 

I have my appointment to get my results next Monday, then just have to do the radiation and hopefully that will be the end of the story.

 

Hope everyone else is staying cheerful, nearly there!  Fiona x

 

 

Pop78
Member

Re: January 2016 Chemo starters

Well done Claire, you really should be proud of yourself.

Isnt it so good to start feeling more normal 😊, despite eyelashes STILL dropping out - can't believe that when now 5 1/2 wks post chemo , or is it the joy of having had 6 of the tax.

Ellie, I've got seven to go, going a bit reddish but doesn't feel sore - is going very hard tho and when arm down by my side, feels like I've got a brick tucked under my armpit. Asked on Friday the dose of rads - having 43 Grays ( gy  )  divided into the 15 fractions, and have got a rads review today with Consultant Oncologist . Ahh sweetcorn , understand to be quite nutritious, but am allergic to it ( react with only 3-4 grains as tho having food poisoning !).

Wet, dark and damp day - forecast not the best . Best wishes to everyone , Mechele X X 

Ellieb
Member

Re: January 2016 Chemo starters

Claire you are amazing! I do t think I could have done it yet. 

 

i have a sore sore breast today and still 6 sessions to go 😞 the nipple area is going hard. I don't like it! 

 

Actually  managed to get the sweet corn planted out thank goodness. 

Kim555pink
Member

Re: January 2016 Chemo starters

Hi Claire - well done!! I can imagine how emotional it must have been for you, I found it emotional enough when I did it a few years back never imagining how I was going to be affected all these years later!
I took my first bisphosphonate tablet today to help repair and protect my bones from my hormone therapy tablets (Anastrozole) Its a once a week tablet and involves sitting upright for 30 minutes afterwards and not being able to eat or drink anything other than water for 30 mins too. Passed without any dramas and that's the last new medication I need to start taking now so I feel like another milestone has been passed!!
3 more rads for me now, still no soreness and everything is looking as it should!
Good luck with your return to work Claire, I have another week and 2 days to go!!
Xxx
Cs66
Member

Re: January 2016 Chemo starters

Hi All,

i hope everyone has had a good weekend and we are all getting stronger and further along the road to recovery.

i did the Race for Life today. I'm so pleased I was able to do it and have energy to spare,  as a couple of weeks ago I could barely walk up the stairs. Our bodies are incredible with what they can get through and recover from! I managed to raise over £600 and my school team have raised nearly 3k. It was so lovely that so many staff and children took part to support me. I managed to hold it together until I saw my husband and son at the end. It was an emotional day!

I also took my first tamoxifen  last night. I was reluctant but it's a way to make sure this damn disease never comes back. I definitely do not want my life turned upside down by it again. I find it scary to think long term in case I'm tempting fate! 

So back to work tomorrow and rads number 6 in the afternoon. No soreness yet. How is everyone else doing?

love to all

Claire xxxx

 

MummyBreenster
Member

Re: January 2016 Chemo starters

Great news Fiona, take it easy. Love and gentle hugs. Debbie xx
Pop78
Member

Re: January 2016 Chemo starters

That's excellent news Fiona and so pleased you're feeling much better. Hope your hubby is good at cooking Sunday dinner - Philip's cooking skill would be a sarnie or perhaps, under instruction , a boiled egg 😂 !!! 

Fif66
Member

Re: January 2016 Chemo starters

I'm feeling tons better today and have started the post surgery exercises.  The drains are still in, but should be coming out tomorrow and hopefully I'll be going home in time for Sunday dinner.  XX

Cs66
Member

Re: January 2016 Chemo starters

I hope you are feeling better today Fiona and are able to go home tomorrow. 

Love to all,

claire xxx

Kim555pink
Member

Re: January 2016 Chemo starters

Hair update! Got my husband to clipperthe new white whispy hair growth down to a grade 1 again to give the newest growth chance to catch up! Decided I'll keep doing this until my hair completely covers my scalp then I'll let it grow. Feels so good and less patchy now 😊 Going to be wearing the wig for a good few months I'm guessing!!!
Xxx
Kim555pink
Member

Re: January 2016 Chemo starters

Oh no! Sorry to hear that Fiona!! Relieved that you're in the mend tho 😊 Xxx
Pop78
Member

Re: January 2016 Chemo starters

Oh Fiona - so sorry to hear that , certainly a bit of a rough time. Do hope you start to recover and feel a bit better. Sending love and hugs X X Mechele 

Ellieb
Member

Re: January 2016 Chemo starters

Oh Fiona, you poor thing. Hoping it's steady progress now. 

Fif66
Member

Re: January 2016 Chemo starters

I am still in hospital as last night I suddenly developed a haematoma in the non-tumour breast and had to go back to theatre to be reopened up to stop the bleeding which was pouring out of the drain.  I also had to have a blood transfusion at 2am as I had lost so much.  I'm still feeling a bit wobbly and really tired after the 2 anaesthetics in 12 hours but am definitely on the mend now and think I will probably be able to go home on Sunday. I am happy to have passed another milestone, and despite the bruising, I can already see that the results look good!  Fiona x

MummyBreenster
Member

Re: January 2016 Chemo starters

Fiona- so pleased all went well, hope you had a good nights sleep. How are you feeling this morning? Take it easy and get lots of rest. Did you have reduction on your good side at the same time ad lumpectomy. It's 3 weeks now since my op and I'm doing ok, movement is good, I'm getting a bit bad at forgetting to do my excercises though! The hardest thing is stopping myself doing things once you start feeling a little better, difficult with 3 kids to look after!!!
Claire- so pleased to hear you being so happy, everything is on the up!! I know exactly how you feel about Tamoxifen, I got my prescription last Thursday and I haven't started taking them yet, I'm dreading any side effects, I know there might be non, but also the thought of taking them for 10 years!! When were you advised to start taking them? My BCN said to wait a week or two if i wanted, I think it is so many weeks after chemo that you are meant to take them.
D xx
Kim555pink
Member

Re: January 2016 Chemo starters

Claire, it's good to hear you're feeling happy and positive and I completely understand your reluctance to taking medication that might put you out of your positive mood!! I felt the same but I'm pleased to say I've had no side effects so far on mine Ive been taking for 2 weeks now - hopefully you'll be the same 😊
12 rads down, 3 to go!! I've had a different friend take me most days and it's felt more like a social occasion than a hospital appointment as Ive treated them to coffee and bacon or sausage bap on the way home at a local farm shop cafe. Think I'm actually going to miss it!!!
Bought a Fitbit which is encouraging me to go on long walks and generally move around rather than sit about and I think that has also contributed to my general mood of positivity and of course seeing an end to active treatment!
How are the rest of you feeling?
Fiona, I hope you had a restful night xxx
Cs66
Member

Re: January 2016 Chemo starters

I'm glad all went well Fina. I hope you managed to get a reasonable nights sleep.

i had a bit of a cathartic day yesterday. I was driving to rads and I had the radio on and I was singing along to the music when I suddenly realised I was feeling HAPPY and I was not constantly thinking and worrying about BC! 

All  through this vile experience I haven't felt like listening to or dancing and singing  along to music, but now I feel as if I can again. Ths week I have been at work, had good news from the oncologist and been signed off by the physiotherapist as they don't think I have lymphodema after all. Our house build is going well, and I feel as though the future is achievable and I will be there! Im going to look at a horse this afternoon too!

i haven't felt like this for a long time ( well since last September when I first went to the GP) and it's good!

on the other hand I still can't face taking my first tamoxifen. I hate taking medication and I'm scared of the side effects. I know I've got to and I will (eventually). I know I will have down days when the fear rises to the surface again, but I'm enjoying the way I'm feeling right now!

four rads down , eleven to go!

i hope everyone is ok

Claire xxxx 

Kim555pink
Member

Re: January 2016 Chemo starters

So pleased it's all gone well Fiona! Fingers crossed its a quiet night in A&E then!! Hope you do manage some sleep 😊 Take care xxx
Fif66
Member

Re: January 2016 Chemo starters

Hi all it went really well, what a relief.  I was last on the list, so they let me go home last night and come back in at 8am, then I had a wire put into my breast and attached to the titanium clip which had been put into the tumour in January.  Then I waited until 1pm to go to theatre.  My husband insisted on staying with me all morning, poor thing.  I got back to the ward for 6pm, with drains in, and new breasts, they look good!  Now going to try to get some sleep.  My room is right above the entrance to A&E so I'm guessing it could get a bit noisy later on tonight... Fiona. x

Kim555pink
Member

Re: January 2016 Chemo starters

Good luck today Fiona 😊 Xxx
Pop78
Member

Re: January 2016 Chemo starters

Hi everyone , everyone seem to be getting on with their treatment ok and we will all be looking forward to reaching the finishing line 😊.

Cassy - we are at the same stage - you will be on No 7 today like me, and I too have a fair trip to the hospital - the M18 /M1 is always so busy , with the usual roadworks than have been in operation for about 18 months and nothing much seems to change. I am beginning to colour up a bit, but am applying the Diprobase 3 times a day as instructed. Just hoping my energy levels start to improve , which are better than they were, but nowhere near as pre treatment . Finger nails getting darker, and neuropathy to feet improving. No real s/e from Letrozole as yet and hopefully it will remain that way. 

Sending best wishes to everyone , Mechele X 

 

Pop78
Member

Re: January 2016 Chemo starters

Fiona , will be thinking of you this morning, hope all goes well and early on the list ! The waiting is always the worst. Look forward to hearing how you are. Hugs and best wishes, Mechele .x 

Cs66
Member

Re: January 2016 Chemo starters

Good luck today Fiona. Thinking of you xxx
MummyBreenster
Member

Re: January 2016 Chemo starters

Thinking of you Fiona.💗💗💗
Elizabeth.p
Member

Re: January 2016 Chemo starters

Fiona hope all goes well tomorrow 👍

elizabeth x

CassyB
Member

Re: January 2016 Chemo starters

Hello everyone Smiley Happy

 

Just wanted to say that I do still read the posts every few days to see how everyone is getting on. Today will be my 6th out of 20 radiotherapy sessions, other than having my husband drive me the 1½ hour each way journey to Maidstone every day it is going well. I have noticed my arm is a little swollen, but feeling stronger and chirpier every day! I have returned to work part-time and feel like life is returning to some sort of normality.

 

Sissy and Ellie I have had neuropathy in my feet, numbness and a constant prickly feeling as well as very heavy legs, I havent spoke to anyone about it as I don't see my oncologist until 11th July. My fingernails aren't really bothering me now, although my toenails (especially big toes) are painful still. Ellie, I also start Tamoxifen the day after radiotherapy finishes.

 

Fiona, good luck for tomorrow.

 

From Cassy xxx

Kim555pink
Member

Re: January 2016 Chemo starters

Hi MrMunch, it's always good to hear positive comments from someone who's been through it all.  Cannot imagine having that much hair, but maybe I'll be commenting on Jan 2017 starters thread this time next year with similar news!!

I'm nearly 2 weeks into my hormone therapy tablets and no side effects to report still - taking that first tablet is always a big step!  I have my first bisphosophonate tablet to take on Sunday morning (to protect my bones) It's one tablet a week and I have to take it first thing, 30 mins before eating or drinking anything other than water, and have to sit upright for 15 mins (or might have been 30 mins) to ensure it goes quickly to my stomach!!  Got them on Friday, but decided against taking the first one on Sunday as we had a family meal and I didn't want to suffer any side effects while I was out!!  I guess once I've got over taking the first one, it will just become normality along with everything else that's thrown at us!

Good luck for surgery on Thursday Fiona, and hope everything goes smoothly when you go in tomorrow.

xxx 

Cs66
Member

Re: January 2016 Chemo starters

Thanks for that Mr Munch. It's good to hear from people well out the other side of treatment. Thanks for your comments re tamoxifen too. I picked up my first lot today and will take my first one later. Dreading side effects especially weight gain, so it's good to hear it doesn't happen to everybody.  Five inches of hair is fab! I miss my long hair so much! 

Lovely to meet you for real today Sissy. Nearly there with the rads. I'm two down now! It's all so quick compared to chemo and the staff are lovely!

good luck with surgery Fiona. We will all be thinking of you.

love to all

claire xxx

 

 

MrMunch1
Member

Re: January 2016 Chemo starters

Hi Ladies,

 

I hope you don't mind me popping on your thread.  I started FEC-T in January last year.  I had my last infusion on 2nd June 2015.  Last Radiotherapy 22nd July.  Groeshong line removed in July also. I guess some of you will be very near the end of treatment now. 

 

It is a distant memory and I now have 5 inches (yes, I said 5 inches) of thick curly hair. Went back to work, decided I needed a change, started a new job in February.  Absolutely no side effects from Tamoxifen.  Zero weight gain (this was something I was worried about).

 

Remember to do some fun things when you can, eat what you enjoy and I hope you to can be like I am, getting on with your lives.

 

Stay well.

 

All the best with comforting hugs.

 

XX

Fif66
Member

Re: January 2016 Chemo starters

Hi all, I've been feeling great, forgetting all about Cancer, was in London yesterday working hard and just getting on with things.  Trying to keep my mind off surgery.  I have to go into hospital Wednesday lunch time, and will have the surgery Thursday morning.  Trying not to think about it at all is my approach!  Plenty of time to do that afterwards.  Glad to hear that's rads seem to be pretty uneventful for everyone.  My nails still seem OK, and I haven't had neuropathy at all, don't know if I was just lucky or whether icing my hands and feet with freezer blocks during docetaxl helped.  Luckily I don't mind the cold.

 

Debbie, has is the recovery going?  How are you feeling now? 

 

Sorry to to hear about all the lymphedema issues, sounds really annoying with the non fitting sleeves and puffy fingers.  Hopefully it will be sorted out so that you have the right equipment!

 

Fiona x

Ellieb
Member

Re: January 2016 Chemo starters

I start my tablets the day after the radiotherapy finishes. 

 

Yes i I still have pains in my nails, but the clumsiness is fading now, and the heavy legs are improving at last. I am still struggling to touch cold things. 

Sissylw1980
Member

Re: January 2016 Chemo starters

Also, I keep forgetting to ask you all, have any of you had neuropathy as a side effect from the chemo? Xx
Sissylw1980
Member

Re: January 2016 Chemo starters

Well done for today to Claire, you'll soon get into a routine with it all, I just lay there on the machine and watch whatever they've put on the tv for the day whilst they shift me into position. Glad your meeting went well with Dr M as well. I don't know when I'm going to start my tablets, she didn't seem too fussed about a start date when I last saw her. It's good about your scan results, did you have one done privately after chemo? Xx
Tandy 4
Community Champion

Re: January 2016 Chemo starters

Feeling very disappointed as up to now not had any problems with communication! 

When had last apt post chemo was told I'd have bloods month after chemo to decide where I am?! Had period during second cycle nothing since. No menopause symptoms before chemo! Told new drug is from new research and better one but the info conflicts!! How have they decided I'm post? I've not got apt till 22nd.... I'll ring onc nurse again tomorrow!! Haven't brought meds with me so can't start anyway till Friday if I do get answers tomorrow??!? 

Cs66
Member

Re: January 2016 Chemo starters

Tina, I was told tamoxifen until bloods say I've had menopause. May have to have zoladex but they wil. Check bloods before that too. I have no idea where I am. I had a period just before chemo, one around cycle three and nothing since. Haven't had any menopause symptoms yet so god knows what's going on!
I was also told at least ten years of meds which will change from tamoxifen once they are sure I've been through the menopause. It's all very confusing!
Tina, I would go back to docs and ask for more clarification. Maybe they tested your blood when they did your chemo bloods.
Hope your rads going ok,
Claire xxxx
Kim555pink
Member

Re: January 2016 Chemo starters

Well done Claire, it's good to get started isn't it 😊
Tina, would your GP be able to help? Maybe s/he could hurry them along or at least explain what the different tablets/injections are for and how they help in your particular case.
Elizabeth I think the glove would be a good idea for me, I go back next week and I'll suggest it.
Xxx
Tandy 4
Community Champion

Re: January 2016 Chemo starters

Yay! Well done Claire. I've had number 13/19 today.

Very confused about meds!!!! Rang again today but nobody got back to me!! Hadn't heard anything so I rang the unit month after chemo. Was sent prescription in post for  EXEMESTANE ...... One a day, but says in info that these are usually given after being on tamoxifen 2/4 years and for post menopausal women. But I've not had any bloods to decide where I am menopausal wise!!?! Was told I'd have this month after chemo! Nope, just sent prescription.... Also given ZOLADEX ......info says, for pre menopausal women!? And I'm told one injection every 3 months though info says one a month!..... CONFUSED!! 

Worrying ive gone two months past chemo now and not started any medication!! I didn't want to start taking without getting answers!? Am I pre or post?!?! Xxx