Evening all and hurrah for finishing Sissy, fabulous news, you're through the tunnel and back in the sunshine! We're all getting close now, can't wait until we all get there.
Daisy, it was nearly 4 weeks until I got my taste buds back too, I celebrated by going out to a lovely restaurant in Edinburgh and staying the night in a posh hotel, it was a real treat and well worth celebrating, that horrible taste is just a nasty memory now. The downside is I've put on 4 lbs since finishing docetaxl lol, despite breast reduction surgery! Must get back on track....
Spent nearly all day on the sofa today as I'm determined not to do too much while I recover. It's really difficult for me to take it easy but I'm doing well.
Claire I'm sure your hair is perfectly lovely.
If you East Kent ladies decide to meet up on a week day evening do let me know and I'd love to come and say hello. Although I live in Scotland I work in London during the week (when I get back to work), and my mum and aunt are from Wye, where my aunt still lives so I could take the train to Ashford and pay her a visit too, which would be really nice. XX
I'm 5.45 tomorrow so may well see you Ellie I've got horrible brown wispy hair!! I'll keep a look out for you xxx
Hi Daisy - mine took a few weeks and isn't that so annoying?! But now absolutely fine - it will come back to normal!
Hi ladies Feb starter here, has your taste buds kicked in yet, my last T was on the 2nd June my mouth still tastes bad. Bitter.
Hope your all doing well.
X X X
Hi everyone, hope all doing ok and you are feeling a little better Fiona. Gosh, that's annoying having rad times changed - I was given a print out at the planning appt to show dates and times, every day 12.40, apart from Monday's which is 12.30, due to review with consultant prior to rads. Why is it that the second your hands are above your head holding the 'handles' etc you ALWAYS get an itch to face, ear, etc and desperate to scratch it!! On the ceiling above is 2 ceiling tiles that has a picture of daffodils / flowers and I try to focus my brain on counting the leaves etc as distraction. Think daffodils will remind me in the future . No 10 for me today .
Has anyone arranged travel insurance yet ? What company , much increase in cost ? ( hate to think what it's going to jump up to ) Can anyone give their experience please - Thankyou . Hope everyone has a good day .
Hi Clare- I keep hoping to run into you at rads but don't know if I have yet! They change the times so much it's possible we haven't yet met. A reallynicelady smiled at me yesterday - I doubt it was you as that was gone 5pm!
Yay Sissy you've done it!! When I think back to how we all were at the start of this it's incredible to think we have got to the end of active treatment and survived some pretty tough times. It will be good not having to go to the hospital everyday! Nine rads left for me now.
Have you got your tamoxifen yet? I've taken three so far and no side effects yet but I realise its early days. I'm pleased though that last week I went back on the Slimmimg world plan and I've dropped a few pounds already. It could be due to the steroids finally getting out of my system.
I hope you feel better Cassy. Chest infections are awful. Every time I get on the rads machine I get an itch or the urge to cough, so I can imagine how hard it was for you to keep still!
Have a good day everyone
It is good to read that everyone is doing so well. Fiona you have been really brave and coped very well, I think I would have gone to pieces! I hope your recovery goes smoothly from now.
I am feeling fed-up! After taking great care not to pick up any illnesses while having chemo, now almost 5 weeks after having my last chemo, I have a chest infection. Felt pretty awful over the weekend and had to visit a walk in centre on Sunday morning to see a GP. I was prescribed 2 different types of antibiotics to make sure it goes. The radiotherapy today and the sessions at the back end of last week were difficult trying not to cough/move too much!
love to everybody,
from Cassy xxx
Well done Claire that's great, did you walk it or did you run? I just managed a short dog walk round the park today after getting out of hospital yesterday. My husband cooked a fantastic Sunday dinner and my teenaged daughter did all the ironing so I felt really relaxed and looked after. Had a good night's sleep but this morning I had weird vivid dreams about driving in dangerous car parks which was very peculiar as I've had no dreams at all for the last 6 months.
I have my appointment to get my results next Monday, then just have to do the radiation and hopefully that will be the end of the story.
Hope everyone else is staying cheerful, nearly there! Fiona x
Well done Claire, you really should be proud of yourself.
Isnt it so good to start feeling more normal 😊, despite eyelashes STILL dropping out - can't believe that when now 5 1/2 wks post chemo , or is it the joy of having had 6 of the tax.
Ellie, I've got seven to go, going a bit reddish but doesn't feel sore - is going very hard tho and when arm down by my side, feels like I've got a brick tucked under my armpit. Asked on Friday the dose of rads - having 43 Grays ( gy ) divided into the 15 fractions, and have got a rads review today with Consultant Oncologist . Ahh sweetcorn , understand to be quite nutritious, but am allergic to it ( react with only 3-4 grains as tho having food poisoning !).
Wet, dark and damp day - forecast not the best . Best wishes to everyone , Mechele X X
Claire you are amazing! I do t think I could have done it yet.
i have a sore sore breast today and still 6 sessions to go 😞 the nipple area is going hard. I don't like it!
Actually managed to get the sweet corn planted out thank goodness.
i hope everyone has had a good weekend and we are all getting stronger and further along the road to recovery.
i did the Race for Life today. I'm so pleased I was able to do it and have energy to spare, as a couple of weeks ago I could barely walk up the stairs. Our bodies are incredible with what they can get through and recover from! I managed to raise over £600 and my school team have raised nearly 3k. It was so lovely that so many staff and children took part to support me. I managed to hold it together until I saw my husband and son at the end. It was an emotional day!
I also took my first tamoxifen last night. I was reluctant but it's a way to make sure this damn disease never comes back. I definitely do not want my life turned upside down by it again. I find it scary to think long term in case I'm tempting fate!
So back to work tomorrow and rads number 6 in the afternoon. No soreness yet. How is everyone else doing?
love to all
That's excellent news Fiona and so pleased you're feeling much better. Hope your hubby is good at cooking Sunday dinner - Philip's cooking skill would be a sarnie or perhaps, under instruction , a boiled egg 😂 !!!
I'm feeling tons better today and have started the post surgery exercises. The drains are still in, but should be coming out tomorrow and hopefully I'll be going home in time for Sunday dinner. XX
Oh Fiona - so sorry to hear that , certainly a bit of a rough time. Do hope you start to recover and feel a bit better. Sending love and hugs X X Mechele
I am still in hospital as last night I suddenly developed a haematoma in the non-tumour breast and had to go back to theatre to be reopened up to stop the bleeding which was pouring out of the drain. I also had to have a blood transfusion at 2am as I had lost so much. I'm still feeling a bit wobbly and really tired after the 2 anaesthetics in 12 hours but am definitely on the mend now and think I will probably be able to go home on Sunday. I am happy to have passed another milestone, and despite the bruising, I can already see that the results look good! Fiona x
I'm glad all went well Fina. I hope you managed to get a reasonable nights sleep.
i had a bit of a cathartic day yesterday. I was driving to rads and I had the radio on and I was singing along to the music when I suddenly realised I was feeling HAPPY and I was not constantly thinking and worrying about BC!
All through this vile experience I haven't felt like listening to or dancing and singing along to music, but now I feel as if I can again. Ths week I have been at work, had good news from the oncologist and been signed off by the physiotherapist as they don't think I have lymphodema after all. Our house build is going well, and I feel as though the future is achievable and I will be there! Im going to look at a horse this afternoon too!
i haven't felt like this for a long time ( well since last September when I first went to the GP) and it's good!
on the other hand I still can't face taking my first tamoxifen. I hate taking medication and I'm scared of the side effects. I know I've got to and I will (eventually). I know I will have down days when the fear rises to the surface again, but I'm enjoying the way I'm feeling right now!
four rads down , eleven to go!
i hope everyone is ok
Hi all it went really well, what a relief. I was last on the list, so they let me go home last night and come back in at 8am, then I had a wire put into my breast and attached to the titanium clip which had been put into the tumour in January. Then I waited until 1pm to go to theatre. My husband insisted on staying with me all morning, poor thing. I got back to the ward for 6pm, with drains in, and new breasts, they look good! Now going to try to get some sleep. My room is right above the entrance to A&E so I'm guessing it could get a bit noisy later on tonight... Fiona. x
Hi everyone , everyone seem to be getting on with their treatment ok and we will all be looking forward to reaching the finishing line 😊.
Cassy - we are at the same stage - you will be on No 7 today like me, and I too have a fair trip to the hospital - the M18 /M1 is always so busy , with the usual roadworks than have been in operation for about 18 months and nothing much seems to change. I am beginning to colour up a bit, but am applying the Diprobase 3 times a day as instructed. Just hoping my energy levels start to improve , which are better than they were, but nowhere near as pre treatment . Finger nails getting darker, and neuropathy to feet improving. No real s/e from Letrozole as yet and hopefully it will remain that way.
Sending best wishes to everyone , Mechele X
Fiona , will be thinking of you this morning, hope all goes well and early on the list ! The waiting is always the worst. Look forward to hearing how you are. Hugs and best wishes, Mechele .x
Just wanted to say that I do still read the posts every few days to see how everyone is getting on. Today will be my 6th out of 20 radiotherapy sessions, other than having my husband drive me the 1½ hour each way journey to Maidstone every day it is going well. I have noticed my arm is a little swollen, but feeling stronger and chirpier every day! I have returned to work part-time and feel like life is returning to some sort of normality.
Sissy and Ellie I have had neuropathy in my feet, numbness and a constant prickly feeling as well as very heavy legs, I havent spoke to anyone about it as I don't see my oncologist until 11th July. My fingernails aren't really bothering me now, although my toenails (especially big toes) are painful still. Ellie, I also start Tamoxifen the day after radiotherapy finishes.
Fiona, good luck for tomorrow.
From Cassy xxx
Hi MrMunch, it's always good to hear positive comments from someone who's been through it all. Cannot imagine having that much hair, but maybe I'll be commenting on Jan 2017 starters thread this time next year with similar news!!
I'm nearly 2 weeks into my hormone therapy tablets and no side effects to report still - taking that first tablet is always a big step! I have my first bisphosophonate tablet to take on Sunday morning (to protect my bones) It's one tablet a week and I have to take it first thing, 30 mins before eating or drinking anything other than water, and have to sit upright for 15 mins (or might have been 30 mins) to ensure it goes quickly to my stomach!! Got them on Friday, but decided against taking the first one on Sunday as we had a family meal and I didn't want to suffer any side effects while I was out!! I guess once I've got over taking the first one, it will just become normality along with everything else that's thrown at us!
Good luck for surgery on Thursday Fiona, and hope everything goes smoothly when you go in tomorrow.
Thanks for that Mr Munch. It's good to hear from people well out the other side of treatment. Thanks for your comments re tamoxifen too. I picked up my first lot today and will take my first one later. Dreading side effects especially weight gain, so it's good to hear it doesn't happen to everybody. Five inches of hair is fab! I miss my long hair so much!
Lovely to meet you for real today Sissy. Nearly there with the rads. I'm two down now! It's all so quick compared to chemo and the staff are lovely!
good luck with surgery Fiona. We will all be thinking of you.
love to all
I hope you don't mind me popping on your thread. I started FEC-T in January last year. I had my last infusion on 2nd June 2015. Last Radiotherapy 22nd July. Groeshong line removed in July also. I guess some of you will be very near the end of treatment now.
It is a distant memory and I now have 5 inches (yes, I said 5 inches) of thick curly hair. Went back to work, decided I needed a change, started a new job in February. Absolutely no side effects from Tamoxifen. Zero weight gain (this was something I was worried about).
Remember to do some fun things when you can, eat what you enjoy and I hope you to can be like I am, getting on with your lives.
All the best with comforting hugs.
Hi all, I've been feeling great, forgetting all about Cancer, was in London yesterday working hard and just getting on with things. Trying to keep my mind off surgery. I have to go into hospital Wednesday lunch time, and will have the surgery Thursday morning. Trying not to think about it at all is my approach! Plenty of time to do that afterwards. Glad to hear that's rads seem to be pretty uneventful for everyone. My nails still seem OK, and I haven't had neuropathy at all, don't know if I was just lucky or whether icing my hands and feet with freezer blocks during docetaxl helped. Luckily I don't mind the cold.
Debbie, has is the recovery going? How are you feeling now?
Sorry to to hear about all the lymphedema issues, sounds really annoying with the non fitting sleeves and puffy fingers. Hopefully it will be sorted out so that you have the right equipment!
I start my tablets the day after the radiotherapy finishes.
Yes i I still have pains in my nails, but the clumsiness is fading now, and the heavy legs are improving at last. I am still struggling to touch cold things.
Feeling very disappointed as up to now not had any problems with communication!
When had last apt post chemo was told I'd have bloods month after chemo to decide where I am?! Had period during second cycle nothing since. No menopause symptoms before chemo! Told new drug is from new research and better one but the info conflicts!! How have they decided I'm post? I've not got apt till 22nd.... I'll ring onc nurse again tomorrow!! Haven't brought meds with me so can't start anyway till Friday if I do get answers tomorrow??!?
Yay! Well done Claire. I've had number 13/19 today.
Very confused about meds!!!! Rang again today but nobody got back to me!! Hadn't heard anything so I rang the unit month after chemo. Was sent prescription in post for EXEMESTANE ...... One a day, but says in info that these are usually given after being on tamoxifen 2/4 years and for post menopausal women. But I've not had any bloods to decide where I am menopausal wise!!?! Was told I'd have this month after chemo! Nope, just sent prescription.... Also given ZOLADEX ......info says, for pre menopausal women!? And I'm told one injection every 3 months though info says one a month!..... CONFUSED!!
Worrying ive gone two months past chemo now and not started any medication!! I didn't want to start taking without getting answers!? Am I pre or post?!?! Xxx