All well here. I have been getting headaches that were getting worse and worse. I suddenly remembered that once before when I got headaches I cut out coffee and that stopped them. That was after I had convinced myself I had secondary cancer of the brain! I have had 3 days with no coffee and no headaches!!
I too feel like I have a lot to look forward to! x
I went for my first mammogram last week. Amazing that it's been a year since my surgery, the time seems to have passed so quickly. I'm starting to feel much better. Still a bit achy and more tired than I used to be, but definitely much better. I had a lovely holiday in April with all the family, and am going to Portugal for a yoga retreat week with my sister in July.ad it's just so nice to have things to look forward to. Hope everyone is doing well. I still think of you all often and wonder how everyone is getting on. Although I've been really busy and am feeling well, I do still think about cancer every day, and worry about recurrence, so I've been letting go of negative thoughts with lots of meditation and stuff. It's pretty effective, life goes on! Love to all, Fiona xx
Cassie I had a really bad run of colds until I took vitamin D - for me it was like a miracle cure! I stayed out of the sun last year so it makes sense.
Such a super photo of you Cassy - and wow , signing up for 'Race for Life' , it really doesn't matter if you walk/ run - well done you . Everyone's 'fitness ' regimes puts me to shame at present, but hopefully after my op I will start to feel better and with more energy. It's lovely to hear how everyone is doing and send love and best wishes to all . Happy Easter everyone - wet here !!! , could do with some sun .
Mechele x X
Well, hello everyone! I decided to sign in and see if anyone has seen my message and low and behold messages! It is lovely to catch up and read how everyone is getting on, it has really made me smile...except for your message Mechele. I am so sorry to hear that once again you have had to go into hospital, I hope that things start to get better for you and that your surgery and recovery goes well.
I am taking Tamoxifen, I don't think it is really having any noticeable affect on me to be honest. Most of the time I feel pretty 'normal' but then I pick up an illness and wham, it knocks me for six!
I too have signed up for 'Race for Life' (in Eastbourne in June). I am very overweight and have rubbish knees so I won't be running it, at best walking fast with a touch of jogging if I am lucky! I have bought a 'Breast Cancer Care' T-shirt to wear instead of buying a cancer research one.
I realise that it may sound silly, as I have never actually met any of you, but it is so good to see the messages on this thread and see how we are all doing despite our past shared experiences. Thank you all!
Love from Cassy xxx
Seems to have appeared now so will try again !
What a super photo Cassy and you're looking really well and hair growing . Mine is still quite short and the very tight curls after all the years of such straight hair, is taking some getting used to - not really complaining tho after no hair at all for so long.
Pleased to hear everyone seems to be doing ok - albeit some awaiting more surgery or having a few little problems - sending best wishes to all and thanks for the support over such a difficult year for us all. Apart from some problems with the dreaded Letrozole , some brands being awfull , a case of just acceptance and moving on. Nov/ Dec I started feeling unwell and so tired - felt something not right but didn't know what - you can imagine what went through my mind !!!! Briefly, it has been found that my left kidney is barely functioning and the ureter from kidney to bladder is blocked. Under Urology ( initially referred due to frequent UTI's , on the last one , passing what looked like Rose wine !! Had a severe kidney infection 2 weeks ago , husband thinking I'd got sepsis again and tel 999 - 5 nights in hospital . Due to have kidney and ureter removed I a few weeks and depending if open surgery , another 7-10 days stay. Fortunately NOT cancer related, so very pleased about that. Hopefully after the surgery, I will be able to 'move on'. Not happy about having to cancel our June holiday again, like last year , but could be worse.
Sending love and best wishes to all
Mechele X X X
Hi Elizabeth. Glad you worked out the effect Tamoxifen was having. I am on Anastrazole and on the whole it is okay. I am sure the effects are different for everyone but here is what I have been experiencing:
hot flushes. I have a "chill ow" and find that combined with taking off a jumper / opening a window make things bearable.
I am bruising easily, but am coping with that
aches and pains. Not coping so well with those!
But it could stop the cancer coming back so I'm still going with it for the time being!
Lovely picture Cassie! Good to see you looking so well. On the whole I agree with Claire and life is good! At other times I am getting very frustrated with the side effects of treatment, off to London to a matinee (fatigue prevents evenings!) today and going away to Suffolk for the weekend and it feels brilliant to be getting out there again.
I'm on Anastrozole, coming up to 8 weeks on it. Apart from one morning 10 days ago when i had the most alarming painful spasms in my back muscles - sorted it within a couple of hours by 2 Iboprofin - no noticable side effects at all but I appreciate it is early days. I'm doing stretching exercises and the BCC exercise DVD and lots of walking. I've got pre-exisiting arthritis in both hips but not severe, and that hasn't changed as yet either. I'd give it a go and see how you get on - not everyone suffers badly I understand, though some do of course. Good luck. xxx
It Classy you look great. Good to hear that you've been skiing again Clair. I'm feeling really well now and I am just now starting to look to the future. I finally finished herceptin a couple of weeks ago and now had the port removed. I just want to get my other boob evened up and then I can draw a huge line over this period. I have gone through a very bad period since about November, I was tired, achy and weepy ALL the time which really isn't like me. I had a light bulb moment in February and realised i have felt like this since taking tamoxifen. I saw my onc and he told me to stop taking it. I felt 100% better after a week and I now feel like I used to. The onc has prescribed Anastrozole but I haven't started taking it yet because I feel a bit wary of it. I think I will start this week but if i find SEs too much I am going to stop taking it. I would rather take the risk and have a quality of life. Those of you who are on it how are you managing with hormone therapy?
Classy you look great. Good to hear that you've been skiing again Clair. I'm feeling really well now and I am just now starting to look to the future. I finally finished herceptin a couple of weeks ago and now had the port removed. I just want to get my other boob evened up and then I can draw a huge line over this period. I have gone through a very bad period since about November, I was tired, achy and weepy ALL the time which really isn't like me. I had a light bulb moment in February and realised i have felt like this since taking tamoxifen. I saw my onc and he told me to stop taking it. I felt 100% better after a week and I now feel like I used to. The onc has prescribed Anastrozole but I haven't started taking it yet because I feel a bit wary of it. I think I will start this week but if i find SEs too much I am going to stop taking it. I would rather take the risk and have a quality of life. Those of you who are on it how are you managing with hormone therapy?
good to hear from you and see you looking so well. Your hair looks great! Like you when I think back to this time last year and the side effects of the dreaded T I can hardly believe how far I've come! Wouldn't want to go back there!!
Im fine. I've just been skiing and managed to ski all day everyday. It was one of the things I wanted to prove to myself I could still do post BC. It was great!
I still struggle with the fear of it coming back. I couldn't bear to think of everything coming crashing down agsin, but at the moment life is good and I'm making the most of it!
I hope everyone else is well. It's good to hear from other Jan 16 starters!
Couldnt have got through it without you lovely ladies!
have a fab Easter everyone,
Just thought I would drop in to say 'hello'. I hope everyone is well and getting on with everything.
It seems a little weird to think how we all were this time last year...
I seem to keep getting chest infections and have had cellulitis in my affected breast, although the cellulitis has cleared up now.
Hair is growing, a little wavier than it used to be and I have stuck with the grey
Love from Cassy xxx
Hi I thought I would stop by as I haven't looked in for a while. I am feeling much better, still get really tired and I'm on a shorter fuse than I used to be but am improving all the time. I've been back to hospital quite a few times to have things checked as I'm quite paranoid but everything's been fine. I have developed quite painful sciatica which bothers me so I'm trying to exercise and stretch more. Hope you are all doing well! X
Hi Mechele, I had one of ten nodes positive. I haven't had a full MRI. No scans in the pipeline for bc but I am having a CT of my stomach area to check to see if it's suitable for recon. I will be a bit nervous in case they find anything nasty. I don't think the Worry will ever go away completely.
Sorry to hear about your friend Kim. I'm sure you will be a great support.
love to all,
Hi everyone , hope all doing ok and getting back to some form of normal life after such an eventful year. Just wondering - how many of you that had positive nodes plus BC had a full MRI done ? I didn't , but understand a lot did ??? Wishing well to all , with best wishes Mechele X X
Hi Wales88 - I received my result of first mammogram by post about 2 weeks after having it done. Do hope your mum is doing ok and I'm sure you've been a brilliant support to her . X X
I actually feel quite proud when I realise what we have all endured! It's so true that you were real life savers for me, when things hit rock bottom you always picked me up!
I am STILL ill - I have had cold symptoms for 3 months without a day off now. I was back in hospital on Saturday having further tests but don't get the results until Friday.
The good news is that my nails now look normal - I don't think the nail beds are quite as long as they were, but they don't look odd any more.
Hi Claire , lovely to hear from you! Hope you are keeping well and enjoying some lovely normality again!! Xx
Hello to all you lovely January 2016 ladies. It's a year tomorrow since my chemo started. I actually feel pretty sick when I remember it all. It was so hard! Couldn't have done it without the support from you all here. We definitely got through it all together.
lots of love to all of you and let's hope 2017 is happy and healthy for us all!
I haven't posted for ages, but it's really good to hear that everyone is doing so well - how different from this time last year....I remember trying to hold it together all over Xmas when all I could think about was starting chemo on Jan 5th - & hoovering the sitting room in tears because everything still hurt & I felt so exhausted & frightened...
12 months on & the curly grey hair is now dyed back to brown & getting straighter, joint pains with Letrozole, but taking it seems like a safety net. I joined the gym after radio & have now dropped a dress size & swum the Channel (metaphorically of course, in warm swimming pool, over several weeks!) . I can recommend the free Swimfit app for motivation, & swimming for helping with the joint pains & for feeling positive & normal again! Also done a couple of free "MOOC" on line courses: Mindfulness, nutrition & exercise & genealogy, all of which have made me appreciate this new, different life.
Here's to a positive, healthy & enjoyable 2017, we've earned it!
Happy New Year to all! Xxx
Happy New a Year to all the Jan 2016 starters. I'm very glad to see the back of 2016 and I hope everyone is well and celebrating and having a good time tonight.
What a difference a year makes!
Lots of love to all.
Very well said Casey! A very Happy New Year to everyone. Let's hope we all have a fantastic 2017 to make up for all the horrors we've survived in 2016. We definitely do deserve it. XX
I hope you are all well and have enjoyed a good Christmas. Definitely much better than last year! Wishing everyone a much better 2017.