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January 2016 Chemo starters

Community Champion

Re: January 2016 Chemo starters

Hi 😊
Well I had been really pleased with how everything was going then last Sunday developed cellulitis in my lymphodema arm and I'm on a double course of antibiotics. It's improving but I'm annoyed mainly because as I can't wear my compression sleeve, my arm has swollen up again. I was doing so well too!! No idea how I got cellulitis. I know it's a complication you have to look out for and treat quickly when you have lymphodema but I'm at a loss as to how to prevent it happening again :/
Hopefully it'll. e all back to normal in a week or two tho Smiley Happy
Great to hear from you both, hope everyone else is doing well 😊 Xxx
Member

Re: January 2016 Chemo starters

All well here. I have been getting headaches that were getting worse and worse. I suddenly remembered that once before when I got headaches I cut out coffee and that stopped them. That was after I had convinced myself I had secondary cancer of the brain! I have had 3 days with no coffee and no headaches!! 

 

I too feel like I have a lot to look forward to! x

Member

Re: January 2016 Chemo starters

I went for my first mammogram last week.  Amazing that it's been a year since my surgery, the time seems to have passed so quickly.  I'm starting to feel much better.  Still a bit achy and more tired than I used to be, but definitely much better.  I had a lovely holiday in April with all the family, and am going to Portugal for a yoga retreat week with my sister in July.ad it's just so nice to have things to look forward to.  Hope everyone is doing well.  I still think of you all often and wonder how everyone is getting on.  Although I've been really busy and am feeling well, I do still think about cancer every day, and worry about recurrence, so I've been letting go of negative thoughts with lots of meditation and stuff.  It's pretty effective, life goes on!   Love to all, Fiona xx

Member

Re: January 2016 Chemo starters

Cassie I had a really bad run of colds until I took vitamin D - for me it was like a miracle cure! I stayed out of the sun last year so it makes sense. 

Member

Re: January 2016 Chemo starters

Such a super photo of you Cassy - and wow , signing up for 'Race for Life' , it really doesn't matter if you walk/ run - well done you . Everyone's 'fitness ' regimes puts me to shame at present, but hopefully after my op I will start to feel better and with more energy. It's lovely to hear how everyone is doing and send love and best wishes to all . Happy Easter everyone - wet here !!! , could do with some sun . 

Mechele x X 

Member

Re: January 2016 Chemo starters

Well, hello everyone! I decided to sign in and see if anyone has seen my message and low and behold messages! It is lovely to catch up and read how everyone is getting on, it has really made me smile...except for your message Mechele. I am so sorry to hear that once again you have had to go into hospital, I hope that things start to get better for you and that your surgery and recovery goes well.

 

I am taking Tamoxifen, I don't think it is really having any noticeable affect on me to be honest. Most of the time I feel pretty 'normal' but then I pick up an illness and wham, it knocks me for six! 

 

I too have signed up for 'Race for Life' (in Eastbourne in June). I am very overweight and have rubbish knees so I won't be running it, at best walking fast with a touch of jogging if I am lucky! I have bought a 'Breast Cancer Care' T-shirt to wear instead of buying a cancer research one.

 

I realise that it may sound silly, as I have never actually met any of you, but it is so good to see the messages on this thread and see how we are all doing despite our past shared experiences. Thank you all!

 

Love from Cassy xxx

 

 

Member

Re: January 2016 Chemo starters

Mechelle I don't believe your bad luck! Good luck with the op - hope you feel much better afterwards.  

Member

Re: January 2016 Chemo starters

So sorry to hear about that Mechele.  Sending you love and hugs.  Xxx

Community Champion

Re: January 2016 Chemo starters

Ah Mechele - sorry to hear that!! Hope you're all fixed soon and recover quickly xxx
Member

Re: January 2016 Chemo starters

Seems to have appeared now so will try again ! 

What a super photo Cassy and you're looking really well and hair growing . Mine is still quite short and the very tight curls after all the years of such straight hair, is taking some getting used to - not really complaining tho after no hair at all for so long.

Pleased to hear everyone seems to be doing ok - albeit some awaiting more surgery or having a few little problems - sending best wishes to all and thanks for the support over such a difficult year for us all. Apart from some problems with the dreaded Letrozole , some brands being awfull , a case of just acceptance and moving on. Nov/ Dec I started feeling unwell and so tired - felt something not right but didn't know what - you can imagine what went through my mind !!!! Briefly, it has been found that my left kidney is barely functioning and the ureter from kidney to bladder is blocked. Under Urology ( initially referred due to frequent UTI's , on the last one , passing what looked like Rose wine !! Had a severe kidney infection 2 weeks ago , husband thinking I'd got sepsis again and tel 999 - 5 nights in hospital . Due to have kidney and ureter removed I a few weeks and depending if open surgery , another 7-10 days stay. Fortunately NOT cancer related, so very pleased about that. Hopefully after the surgery, I will be able to 'move on'. Not happy about having to cancel our June holiday again, like last year , but could be worse.

Sending love and best wishes to all

Mechele X X X 

 

 

Member

Re: January 2016 Chemo starters

Have posted X 2 and for some strange reason didn't appear - hence a 'test' post !

Member

Re: January 2016 Chemo starters

Hi Elizabeth. Glad you worked out the effect Tamoxifen was having. I am on Anastrazole  and on the whole it is okay. I am sure the effects are different for everyone but here is what I have been experiencing:

 

hot flushes. I have a "chill ow" and find that combined with taking off a jumper / opening a window make things bearable. 

I am bruising easily, but am coping with that

aches and pains. Not coping so well with those! 

 

But it could stop the cancer coming back so I'm still going with it for the time being! 

Member

Re: January 2016 Chemo starters

Lovely picture Cassie! Good to see you looking so well. On the whole I agree with Claire and life is good! At other times I am getting very frustrated with the side effects of treatment, off to London to a matinee (fatigue prevents evenings!) today and going away to Suffolk for the weekend and it feels brilliant to be getting out there again. 

Community Champion

Re: January 2016 Chemo starters

I'm on Anastrozole, coming up to 8 weeks on it. Apart from one morning 10 days ago when i had the most alarming painful spasms in my back muscles - sorted it within a couple of hours by 2 Iboprofin - no noticable side effects at all but I appreciate it is early days. I'm doing stretching exercises and the BCC exercise DVD and lots of walking. I've got pre-exisiting arthritis in both hips but not severe, and that hasn't changed as yet either. I'd give it a go and see how you get on - not everyone suffers badly I understand, though some do of course. Good luck. xxx

Member

Re: January 2016 Chemo starters

Well done Kim with your fitness regime

🏃‍♀️ Elizabeth

Community Champion

Re: January 2016 Chemo starters

I'm on Anastrozole!
Community Champion

Re: January 2016 Chemo starters

Hi Elizabeth, I found it made my joints stiff and I was achey but I honestly don't really think about it much now. I think the fact that I walk regularly even if it's just the 10 min walk to school and back, has helped relieve the side effects. Hope it suits you better too Smiley Happy xxx
Member

Re: January 2016 Chemo starters

It Classy you look great.  Good to hear that you've been skiing again Clair.  I'm feeling really well now and I am just now starting to look to the future.  I finally finished herceptin a couple of weeks ago and now had the port removed.  I just want to get my other boob evened up and then I can draw a huge line over this period.  I have  gone through a very bad period since about November, I was tired, achy and weepy ALL the time which really isn't like me.  I had a light bulb moment in February and realised i have felt like this since taking tamoxifen.  I saw my onc and he told me to stop taking it.  I felt 100% better after a week and I now feel like I used to.  The onc has prescribed Anastrozole but I haven't started taking it yet because I feel a bit wary of it.  I think I will start this week but if i find SEs too much I am going to stop taking it. I would rather take the risk and have a quality of life.  Those of you who are on it how are you managing with hormone therapy?

 

elizabeth xx

Member

Re: January 2016 Chemo starters

Classy you look great.  Good to hear that you've been skiing again Clair.  I'm feeling really well now and I am just now starting to look to the future.  I finally finished herceptin a couple of weeks ago and now had the port removed.  I just want to get my other boob evened up and then I can draw a huge line over this period.  I have  gone through a very bad period since about November, I was tired, achy and weepy ALL the time which really isn't like me.  I had a light bulb moment in February and realised i have felt like this since taking tamoxifen.  I saw my onc and he told me to stop taking it.  I felt 100% better after a week and I now feel like I used to.  The onc has prescribed Anastrozole but I haven't started taking it yet because I feel a bit wary of it.  I think I will start this week but if i find SEs too much I am going to stop taking it. I would rather take the risk and have a quality of life.  Those of you who are on it how are you managing with hormone therapy?

 

elizabeth xx

Community Champion

Re: January 2016 Chemo starters

Hi Cassy and Claire, great to hear from you both!
I often look back and can't believe it's a year ago we were all suffering so badly. I'm doing well (I'm assuming!) Haven't seen an oncologist since June (I think) and my last appointment was rearranged from last week until 24 April. I was annoyed because I just wanted to go over a few niggles to set my mind at rest. I did go and see my GP though, and she's been great. It's mainly my achey hips which we're sure is an Anastrozole side effect but don't want to be missing something important! So I've had a blood test as a marker (how that works, I don't know) and I'm happier about that.
I've been walking loads more than I ever did, joined a running club to do their walk to run program which I have loved doing and started back at yoga which I'm sure helps with the Anastrozole aches and pains.
I'm doing the Race for Life in May - I really want to run it, but we'll see!
Wanted to post a photo but I can't seem to do it in my phone :/ My hair is back to how I have it 8 years ago before I started to grow it and I'm really happy to keep it that way now. If I had t lost it all, I don't think I would have been brave enough to go short again. It is dyed though - I just wasn't ready to be grey.
Have the best Easter everyone!!
Loads of love ❤️
Kim xxx
Community Champion

Re: January 2016 Chemo starters

Hi Cassy, 

good to hear from you and see you looking so well. Your hair looks great! Like you when I think back to this time last year and the side effects of the dreaded T I can hardly believe how far I've come! Wouldn't want to go back there!! 

Im fine. I've just been skiing and managed to ski all day everyday. It was one of the things I wanted to prove to myself I could still do post BC. It was great! 

I still struggle with the fear of it coming back. I couldn't bear to think of everything coming crashing down agsin, but at the moment life is good and I'm making the most of it! 

I hope everyone else is well. It's good to hear from other Jan 16 starters! 

Couldnt have got through it without you lovely ladies!

have a fab Easter everyone,

love

claire xxx

Member

Re: January 2016 Chemo starters

Hi everyone

 

Just thought I would drop in to say 'hello'.  I hope everyone is well and getting on with everything. 

It seems a little weird to think how we all were this time last year...

 

I seem to keep getting chest infections and have had cellulitis in my affected breast, although the cellulitis has cleared up now.

 

Hair is growing, a little wavier than it used to be and I have stuck with the grey Smiley Happy

 

Love from Cassy xxx

CB.jpg

Member

Re: January 2016 Chemo starters

Hi I thought I would stop by as I haven't looked in for a while.  I am feeling much better, still get really tired and I'm on a shorter fuse than I used to be but am improving all the time.  I've been back to hospital quite a few times to have things checked as I'm quite paranoid but everything's been fine.  I have developed quite painful sciatica which bothers me so I'm trying to exercise and stretch more.  Hope you are all doing well!  X

Community Champion

Re: January 2016 Chemo starters

Hi Mechele, I had one of ten nodes positive. I haven't had a full MRI. No scans in the pipeline for bc but I am having a CT of my stomach area to check to see if it's suitable for recon. I will be a bit nervous in case they find anything nasty. I don't think the Worry will ever go away completely. 

Sorry to hear about your friend Kim. I'm sure you will be a great support.

love to all,

claire xxxx

Community Champion

Re: January 2016 Chemo starters

Hi Mechele,
I had 2/9 nodes positive and was told beforehand (when the biopsy had found one was) that if there was 9 or over positive (I think it was 9!) then I would need a MRI scan to check that it hadn't spread further.
I have a friend who has now been diagnosed and having a double masectomy in the next few weeks - such a shock even though I know how common it is. I don't know if she'll need chemotherapy, but I'm guessing if she needs a double masectomy, then she will 😕 Awful time for her - as we all know too well!
Loads of love to you all xxx
Member

Re: January 2016 Chemo starters

Hi everyone , hope all doing ok and getting back to some form of normal life after such an eventful year. Just wondering - how many of you that had positive nodes plus BC had a full MRI done ? I didn't , but understand a lot did ??? Wishing well to all , with best wishes Mechele X X 

Community Champion

Re: January 2016 Chemo starters

Mine was Telford too but I think different consultants have different ways of doing things. My sister in law is with Telford too and the way her consultant did things was different to mine (she's not had her first mammogram yet, just other things)
Obviously I don't actually know, but maybe if there was something suspicious they'd have asked to see her sooner? Thinking of when I had my follow up appointments after the mammogram that found the cancer....
I have everything crossed for you both that it comes back normal xxx
Member

Re: January 2016 Chemo starters

Thanks for the replies. When my mum had her mammogram last week in Telford she was told to make an appointment with the consultant for the results in two weeks this is making me wonder if something was seen?
She's had 2 wle lymph node clearance, chemo rads and has 6 more herceptin to go and is doing great.
Community Champion

Re: January 2016 Chemo starters

Hi Wales88, I received my results by letter about 2 weeks after my mammogram too. Personally signed by my consultant which impressed me!!
I hope your mum is doing well 😊 The support I had from my daughter and son really helped me too (and my husband) I'm sure you've done a brilliant job too 😊
Kim xx
Member

Re: January 2016 Chemo starters

Hi Wales88 - I received my result of first mammogram by post about 2 weeks after having it done. Do hope your mum is doing ok and I'm sure you've been a brilliant support to her . X X 

Community Champion

Re: January 2016 Chemo starters

Hi can't comment as had double mx so no mammograms for me. I'm sure. One of the others will be along soon though. I hope your mum is doing well. My two sons were amazing when I was going through treatment and I couldn't have done it without them!
Claire xx
Member

Re: January 2016 Chemo starters

Hi I'm not Sure if I'm posting on the right thread as it's my first post. I've been following a lot of your stories this last year wich has helped so much in supporting my mum through treatment. I am just wondering how those of you who have had your first year mammos received your results? Is itby letter or appoitnment?
Member

Re: January 2016 Chemo starters

Aww bless you
No problem sweetie!! Xxx
Community Champion

Re: January 2016 Chemo starters

Hi Tina, this might seem daft, but I'm keeping mine as a kind of insurance policy of never needing them again!!
Xx
Member

Re: January 2016 Chemo starters

Hi again
Anyone got any old scarves they dont need any more? Pls message me xxx
Member

Re: January 2016 Chemo starters

Hi ladies
Im looking for donations of your lovey headwear. Anyone who can help please inbox me xx
Community Champion

Re: January 2016 Chemo starters

We started and finished on the same day Kim. Dates I won't ever forget!
You are so right Ellie. There was always someone here to pick us up when it got really bad and boy did I need everyone here at times!
I'm sorry to hear you haven't managed to shift your cold symptoms. It's always worrying after what we've all been through but better to get it checked out. I've had a lots of pain in my ribs and underarms lately and was getting very worried about if. Luckily it's got much better now and I think it was not helped by my constant coughing overchritmas and too much lifting after we moved. Let us know how you get on.
Lots of love
Claire xx
Community Champion

Re: January 2016 Chemo starters

Ellie, I have one more nail to get back to normal now - same as you, nail bed hasn't quite sorted itself out but I reckon give it another couple of months and it will be fine 😊
Sorry you're still feeling ill with colds, good luck for your test results xxx
Member

Re: January 2016 Chemo starters

I actually feel quite proud when I realise what we have all endured! It's so true that you were real life savers for me, when things hit rock bottom you always picked me up! 

 

I am STILL ill - I have had cold symptoms for 3 months without a day off now. I was back in hospital on Saturday having further tests but don't get the results until Friday. 

 

The good news is that my nails now look normal - I don't think the nail beds are quite as long as they were, but they don't look odd any more. 

 

 

Community Champion

Re: January 2016 Chemo starters

Same here! I've been going by it was a year ago yesterday because it was a Monday and tomorrow because that's the 18th! Either way, we were both on steroids today a year ago and attempting to drink masses of water! It was when I started snacking at night too - ritz crackers and almonds. I'm surprised I can still face eating them!
It was so good to compare notes and get support from you all each day - made a massive difference 😊
Xxx
Community Champion

Re: January 2016 Chemo starters

Hi Claire , lovely to hear from you! Hope you are keeping well and enjoying some lovely normality again!! Xx  

Community Champion

Re: January 2016 Chemo starters

Hello to all you lovely January 2016 ladies. It's a year tomorrow since my chemo started. I actually feel pretty sick when I remember it all. It was so hard! Couldn't have done it without the support from you all here. We definitely got through it all together.

lots of love to all of you and let's hope 2017 is happy and healthy for us all!

claire xxxxxx 

Member

Re: January 2016 Chemo starters

Hi all!

 

I haven't posted for ages, but it's really good to hear that everyone is doing so well - how different from this time last year....I remember trying to hold it together all over Xmas when all I could think about was starting chemo on Jan 5th - & hoovering the sitting room in tears because everything still hurt & I felt so exhausted & frightened...

12 months on & the curly grey hair is now dyed back to brown & getting straighter, joint pains with Letrozole, but taking it seems like a safety net.  I joined the gym after radio & have now dropped a dress size & swum the Channel (metaphorically of course, in warm swimming pool, over several weeks!) . I can recommend the free Swimfit app for motivation, & swimming for helping with the joint pains & for feeling positive & normal again! Also done a couple of free "MOOC" on line courses: Mindfulness, nutrition & exercise & genealogy, all of which have made me appreciate this new, different life.

Here's to a positive, healthy & enjoyable 2017, we've earned it!

Happy New Year to all! Xxx

Member

Re: January 2016 Chemo starters

Wishing everyone a very Happy New Year and good health of course. What a year it has been for us all and pleased 2016 is nearly over. I'm starting the 'Moving on' course next Friday - others seemed to feel it was beneficial . I'm doing ok , apart from some breathlessness, hoarse voice etc - it was suggested by once to have an endoscopy done, but when delivering Xmas gifts for granddaughters etc in Burton on Trent, my son in law suggested the same 😨 ( he's Consultant Anaesthetist at Burton ), still thinking about it !!! With many thanks to all throughout this last year - love and best wishes ,Mechele x x
Community Champion

Re: January 2016 Chemo starters

Happy New Year to you all too! 🎉
Saw my breast surgeon on Thursday for a check up and to see if I needed/wanted my implant changing. She's happy with it (although it does sit higher than my natural side and radiotherapy has hardened it) so it's up to me if I want further surgery. The longer I wait the better following radiotherapy, so l'll see her in a year's time. It's nice to know I have a year to decide!
So I'm sure we're going to be spending the first half of 2017 taking advantage of all of the occasions we missed last year due to the constraints of chemotherapy! I'm particularly looking forward to Mothers Day and Easter as I was feeling too rubbish to enjoy them!
Sending you all the very best for a happy and healthy 2017 xxx
Member

Re: January 2016 Chemo starters

Hi all,
So sorry I've been so quiet, I hope everyone is well and had a better Christmas this year.
Wow what a year we have all add and I couldn't of done it without all your support, you've been great.
Last year on New Years Eve I saw my oncologist and signed up for chemo, I then went to try wigs on!!! I remember at midnight crying because I didn't want 2016 to happen and here we are at the end of it. I'm so happy to be waving bye bye to this year. I do feel like I've become a stronger person though, I've learnt a lot.
Wishing you all a happy and healthy 2017.
Take care
Debbie xxxxxxx
Community Champion

Re: January 2016 Chemo starters

Happy New a Year to all the Jan 2016 starters. I'm very glad to see the back of 2016 and I hope everyone is well and celebrating and having a good time tonight. 

What a difference a year makes! 

Lots  of love to all. 

Claire xxxxxx

Member

Re: January 2016 Chemo starters

Very well said Casey!  A very Happy New Year to everyone.  Let's hope we all have a fantastic 2017 to make up for all the horrors we've survived in 2016.  We definitely do deserve it. XX

Member

Re: January 2016 Chemo starters

 
Member

Re: January 2016 Chemo starters

Hi everyone,

I hope you are all well and have enjoyed a good Christmas. Definitely much better than last year! Wishing everyone a much better 2017. 

Love from

Cassy xxx