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January 2016 Chemo starters

Community Champion

Re: January 2016 Chemo starters

Hi everyone,

How good to be a year on from facing the prospect of chemo! It was so hard but all of you  here helped me get through! I'm doing well, but have also had a horrible cold and cough which is just clearing up. I had an onc check up last week and all good ( hopefully it will stay that way!)

I hope everyone has a healthy, happy Christmas. We certainly deserve it after lasted year!

love to all,

Claire xxxx

Member

Re: January 2016 Chemo starters

Well done everyone - I think we are all moving on in our own ways! I have had a cold / variety of colds for 8 weeks now and am really sick of feeling ill again! Anyone else suffering from lowered immunity? Ellie. 

Community Champion

Re: January 2016 Chemo starters

And a very Happy Christmas to you all from me too!!
Celebrating this year with my new short dyed hair which I'm really pleased with!! The wig will be washed and put away in it's box, then I'll find somewhere to donate it in the new year.
I see there is a January 2017 thread started, so as well as dropping in on here, I'll be checking in with them from time to time too Smiley Happy
Lots of love to you all ❤️
Xxx
Member

Re: January 2016 Chemo starters

Just wanted to wish everyone a big Happy Christmas holiday.  I am finally starting to feel well again and more like myself.  I hope that everyone else is feeling happy and well and getting on with living life?  Do post an update from time to time, I'll never forget this year and all the help and support I found here.  I feel very very lucky!  XX

Community Champion

Re: January 2016 Chemo starters

Great newscKim  and Fiona, isn't it nice to be living normal life again! I've got a check up with the onc next week. Then hopefully no more hospitals for a while. It's a year today since my second mx and node clearance.    I think back and wonder how the hell I got through it all! 

Today im pacing as we I've into the new house we have built next Friday! I'll be sad to leave my current house as we built this one too, but I'll be closing the door on memories of days feeling so ill sat on the sofa during chemo!

i hope everyone is ok and looking forward to a much better Christmas then last year! 

Love

claire xxxxx

Community Champion

Re: January 2016 Chemo starters

That's good news Fiona 😊 Mine came back too, didn't understand the results but as they don't want to see me for 2 years I'm guessing it can't be too bad! (I have borderline thinning bones from a pre-existing condition) Mammogram came back clear too!! One year down 😃
Had my second proper haircut today, got a bit of a style going on now. Made an appointment to have it coloured on the 20th and that'll be the day I stop wearing my wig 😊
This time last year was my last day at work before I had my operation and then was off for the next 7 months!! I do feel great now, really positive - hope it lasts!
Lots of love to you all
Kim xxx
Member

Re: January 2016 Chemo starters

Finally got the nuclear bone scan result which was clear, hurrah!

 

I celebratied by joining the gym to motivate myself to keep doing gentle daily exercise: swimming, yoga and Pilates to stop the pain from getting any worse and hopefully get rid of it.

 

I've signed up for the moving on course as I still think about breast cancer at least twenty times every day!  It's been a strange year.  I'm looking forward to Christmas, but I'll be glad to see the back of 2016 for sure.

 

Hope everyone else is doing well and getting back to normal.  Lots of love, Fiona. X

Community Champion

Re: January 2016 Chemo starters

Hi everyone, 

good to hear from you Fiona. Fingers crossed all well for you with the bone scan. I also suffer a lot of hip and back pain but I had it for years before bc so I think it's just age!

The freak of spread is a tough one isn't it. I've just done the moving forward course (I'd recommend it if there's one near you) and the bc nurse who did a talk said that " most people with bc do not get recurrence or spread"  I've decided to try and adopt  that mindset and stop being so worried about it! It's not easy though!

i hope everyone is doing well and enjoying life post bc and treatment. I still shudder when I think back to a year ago. 

I see the plastic surgeon on Monday to start talking reconstruction! I'm still unsure about when or if I'll do it. 

Have a fab weekend everyone,

Claire xxxx

Member

Re: January 2016 Chemo starters

Hi everyone, I went for a check up yesterday.  Ended up having ultrasound on my scar area as there seemed to be a lump there, I had been ignoring it but the breast surgeon said best to check it out and biopsy if necessary.  The ultrasound person said it was completely fine so that's good.  I also had a bone scan yesterday (day of hospital visits getting everything done at once).  I had a radioactive injection then went back 2 hours later for a whole body photo which took 30 minutes of lying still with my legs and arms tied together to keep me still!  This is to rule out any cancer related cause of my hip and leg pain.  So fingers crossed.  I am not too worried as all the specialists seem to be relaxed about it but there is a question mark in the back of my mind.  And it will be nice to get all clear confirmed.... hope all going well for everyone else.  X

Community Champion

Re: January 2016 Chemo starters

It's hard around these anniversary times Kim as all the memories come flooding back. I'm  sure all will well for you this year though. One of the few upsides of a double mx is that won't have ever have a mammogram and the associated stress of results again! Just got to worry about recurrences!! 

Im glad you've had a good break. It's gone very quickly. I'm about to tackle some  school work ready for  next week. I'm not complaining though as I'm so pleased to be back to relative normality. I look back on a year ago and think how the hell did I get through all that!

love  to everyone,

Claire xxx

Community Champion

Re: January 2016 Chemo starters

Nothing quite prepares you for the letter inviting you for your first mammogram since diagnosis......
Mine came this morning (15 Nov - a year and 3 days after I was diagnosed) Wasn't upset - just opened it and I thought 'Oh crap!'
On the plus side, having a lovely half term decorating and found for nice autumnal walks as the weather is so nice here at the moment 😊🍃🍂🍁
Xxx
Member

Re: January 2016 Chemo starters

Happy birthday Claire! Hope you've had a great day. X🎂

Member

Re: January 2016 Chemo starters

Ps, Ellie.  How lovely to have met up with your first love.  I hope the spark ignites for you!  😉

Member

Re: January 2016 Chemo starters

Happy birthday Claire.  I hope you have done something nice.  It sounds as though you are all taking control of your health and wellbeing.  Keep it up!

 

Welcome Jilly sorry you are struggling.  Don't be too hard on yourself your body has been through so much. Our hormones are messed up.  I think I have a bit of chemo brain left too.  It is annoying and frustrating.  I had a very stupid accident a few weeks ago...forgot to put handbreak on car which resulted in me being crushed by the car 😬😩🙈 I have bruised my ribs and and back which has put my fitness plan back a few weeks.  It's a set back and I'm getting back on track now.   It sounds as though you would benefit from a moving on course, have you looked into them in your area?  I'm based in Hertfordshire btw, are you anywhere near me?  

 

Take care all and enjoy the break if you are off work.  Xx

 

 

Community Champion

Re: January 2016 Chemo starters

Same here! At work when I'm busy, it doesn't really cross my mind although my compression sleeve does serve as a reminder!
If I need to slow down I do, but if I sit for too long, seize up - it's hilarious to watch me stagger to my feet until my muscles have warmed up again!! So I try to keep moving and go on daily walks until my Fitbit tells me I've done my 10,000 steps!
Happy Birthday for tomorrow Claire 😊🎉
Xxx
Community Champion

Re: January 2016 Chemo starters

I agree. If I feel I need to slow down or stop and rest I do now! Xxx
Member

Re: January 2016 Chemo starters

Fiona I know what you mean. When I am at work I am totally engrossed. But I am accepting that pacing myself might be permanent. I've always quite liked afternoon naps but I just need them more now! 

Member

Re: January 2016 Chemo starters

Hi all, Ellie I was so pleased to hear all your news and that you're doing so well.  I'm still improving very slowly.  Went to 3 yoga classes this week which was great.  Also swam for over an hour on Thurs and had a walk every day.  Had kids off on half term so lots of activities.  I'm trying to relax and take it as easy as possible, but it's difficult.  I still feel exhausted every afternoon!

 

Jilly good to hear from you and welcome.  I live in Scotland and have just one local friend who was diagnosed with BC just after me (in January).  I don't think I'll ever bounce back to where I was before the diagnosis, but am definitely feeling a little better with each week that goes by.  When I'm busy at work I forget about it completely, which is nice!  Lots of love to you all and a huge Happy Birthday to Claire.  Hope you are celebrating in style.  I am planning to celebrate being 51 with a big party as my 50th was in the middle of chemo and I didn't feel like doing anything!  Fiona x

 

 

Member

Re: January 2016 Chemo starters

Hi Jilly,

 

I guess we all find this site when we need it! I know the symptoms you are describing! And I guess many of us do. She says whilst having a hot flush...

 

i am in Kent if that is of any help - you don't say where you are based. 

 

Although i I still feel really affected by many of the side effects of the chemo I am finding a way forward and am really starting to enjoy life again. 

 

I hope olé you find someone near to you.

 

ellie. 

Community Champion

Re: January 2016 Chemo starters

Hi Jilly, I was also diagnosed at the end of September last year. I finished chemo on 3rd may (same as Kim) and Rads on 24th June. I'm on tamoxifen now and (touch wood) have bounced back pretty well. I do ache a bit but just get on and work through it, it could be my age too!!! I'm 50 on Monday! Theee of us are from Kent and have all met up at the moving forward course. Where are you?
Treatment was awful, but everyone here helped me get through it! ,
Anniversaries are hard. This time last year I was in the operating theatre!
Lots of love,
Claire xx
Community Champion

Re: January 2016 Chemo starters

Hi Jilly,
Welcome to our group! We're not in here as much as we used to be - during chemotherapy we were quite often commenting daily!
I'm coming up to my first year anniversary - my actual diagnosis was 12 November and I'm expecting an appointment for my first mammogram to come through in a few weeks. I feel fine about it now, but I know I'll be in tears when I go into the room!
I had left breast masectomy with immediate reconstruction on 7 Dec, started chemotherapy 18 Jan and radiotherapy 25 May (I think) I'm on Anastrozole which gives me aching feet and hands at night and makes me seize up if I sit for too long, but I can cope with it. I'm also taking bisphosphonates along side it.
I'm from Shropshire and there's no one near to me, so I haven't met up with anyone here, but I chat regularly to 2 local ladies who were diagnosed a few months and a few weeks before me - we usually just compare hair length now, as one of them had triple negative so has no further tablets to take and the other is on herceptin.
Pretty sure I still have chemo brain too!
Sending you loads of love
Kim xxx
Member

Re: January 2016 Chemo starters

Hi everyone , I hope it's ok for me to join in , I haven,t really used this site much . My BC was diagnosed last September , so finished rads , chemo and had right mascetomany , I'm coming up to my 1st mammogram , I'm still not feeling great. Find it hard to sleep , feel very fidgety lots of bone pain and aches, also got the stupid chemo brain, which really does make me feel stupid sometimes X I wondered if you have a page on here as to where we are all located or any meet up that you have xx love and hugs to all xx 

Member

Re: January 2016 Chemo starters

Claire have a lovely afternoon! 

 

Kim - our course is 4 sessions 10-1. Hope you find a convenient one. When I booked my place it seemed a long time to wait but there's one woman on


@Kim555pink wrote:
Yes, that is good news Ellie, fingers crossed it all works out Smiley Happy
I'm going to look out for the Moving on course coming near me - think it will be a distance to travel though. Hopefully if there's one in Cardiff, I can catch the train and have a day out too!! Is it just one day, or a series of days?
Hope you have a great afternoon and meal Claire - Happy 21st to you son 😊🎉
Off to visit my sister in law bearing gifts (fushia pink V pillow from Not Another Bunch of Flowers, meals made from mince, and baby wipes and pain killers!! Was thinking practical!!)
Xxx


it who is 3 years since treatment and it still seems useful. 

 

Hope you and your gifts are appreciated! 

 

Ellie. 

Community Champion

Re: January 2016 Chemo starters

Yes, that is good news Ellie, fingers crossed it all works out Smiley Happy
I'm going to look out for the Moving on course coming near me - think it will be a distance to travel though. Hopefully if there's one in Cardiff, I can catch the train and have a day out too!! Is it just one day, or a series of days?
Hope you have a great afternoon and meal Claire - Happy 21st to you son 😊🎉
Off to visit my sister in law bearing gifts (fushia pink V pillow from Not Another Bunch of Flowers, meals made from mince, and baby wipes and pain killers!! Was thinking practical!!)
Xxx
Community Champion

Re: January 2016 Chemo starters

That's lovely news Ellie! I'm so pleased for you. It must have been so tough going through it on your own. You deserve to be happy. I really hope it all works out for you!
I think we are all doing so well considering we are only about 5 months post chemo and 3 post rads. I hope people still going through it see our comments and realise there is life after bc treAtment. It certainly didn't seem so at the time, but I remember reading positive post treatment comments and it helped me.
I was ticking off everyday as I got closer to the end of the nightmare!
I always say that with everything crossed as I have that lurking fear of it coming back! But that's something I've got to deal with!
My son is 21 today so we're off out later to celebrate!
Claire xx
Member

Re: January 2016 Chemo starters

I am getting a lot out of the moving forwards course too and brilliant to meet Sarah and Claire. There is stuff on it that I wish I had been told initially! 

 

I I think I need to share my exciting news. I have been divorced for 10 years now and although I had a sort of partner for a while he vanished the moment I had the cancer diagnosis. I have just met up with my childhood sweetheart and we have got on really well. I don't know if it will blossom into a relationship but it's looking hopeful at the moment! 

 

With th my new job as well it feels like a real time of moving on! 

 

Ellie.

Community Champion

Re: January 2016 Chemo starters

Hi Kim, glad to hear you are doing well and enjoying normal lfe again. I'm so sorry to hear about your sister in law. Hopefully she will have a less invasive course of treatment and with your support will get through it ok.
The anniversaries are hard. My first op was a year ago next Saturday. I know that will be a tough day. Thank goodness were all through it though. This time last year I was so petrified and felt I had no control over my life. It was so hard.
The moving forward course is good and it's lovely to meet Ellie and Sissy (Sarah) for real!
I hope everyone else is doing ok.
Lots of love,
Claire xxxx
Community Champion

Re: January 2016 Chemo starters

Hi everyone Smiley Happy

How was the Moving On course?  It's nice to think that the 3 of you managed to finally meet each other.

It's now a year ago since I was called back for further testing from my routine mamogram and the 12 November will be the anniversary of the day I was diagnosed.  I have a letter from the hospital to arrange an appointment, so I'm guessing it's for my yearly mamogram.  I'm not worried about it, but I'm quite sure that I'll be in tears when I approach the machine.  But I guess it will get easier from there.

I had my first visit to the hairdresser 3 weeks ago (don't think I posted that at the time).  It was so nice to feel pampered!  She spent nearly an hour trimming and chatting.  Still wearing my wig and have decided to carry on doing so until Christmas when I'll have had it cut a couple more times and then finally coloured.

Half term is approaching and I'm pleased to say I've managed a whole half term!! It's so good to be back at work Smiley Happy  I think I am so much more calmer and laid back than I used to be at work - just enjoying the company of the children rather than feeling the stress.

A couple of weeks ago my sister in law (Mark's sister) was also diagnosed with brest cancer, which has been a shock.  You kind of think that having it yourself means that your friends and relatives will be spared (law of averages) but it really isn't the case.  The good news (not that cancer is good news) is that they think it is stage 1 and she will have radiotherapy after her lumpectomy and not chemotherapy.  But as we know, things can change once they've analysed what they've removed.  I've just been cooking meals made from mince for her to put in the freezer to tide her over for the next 2 weeks as she has her operation on Thursday.  She lives just with her daughter who has just started a new job so it is going to be tough for her too.  

I hope you are all well and enjoying being able to get on with day to day life Smiley Happy

Lots of love Kim xxx

Member

Re: January 2016 Chemo starters

Hi Claire and Sissy, have you worked out where we have to go tomorrow? Ellie.

Member

Re: January 2016 Chemo starters

Hi all, the oncologist went well, it was a bit rushed because I had to go and pick up the children from school straight after and was late going in, but I managed to ask all the questions on my list. My next appointment is a check up with the plastic surgeon, and then just annual mammograms. That's it! I did ask him what he thought my risk of recurrence was, now that treatment is finished. He said 10%, which isn't great, but It's not that bad either. I want to know so that I can plan ahead with at least some Idea that I'll still be here for a few years..... I like to be prepared, even if it's being prepared for the worst. Hope that doesn't sound too grim. Hope you are all doing well and "moving on". XX
Member

Re: January 2016 Chemo starters

Hope the trip to the oncologist went well.

Ellie.

Community Champion

Re: January 2016 Chemo starters

Hello lovely January ladies,

so it's one year tomorrow since I was diagnosed and the nightmare unfolded. I'm sitting here with a glass of wine reflecting on all that happened to me. I find it very difficult to think too deeply about the day my life came crashing down and everything that followed as its all still so painful and raw. I think about myself a year ago and ask myself how the hell did I cope with everything that followed. At the start of it all I couldn't imagine ever getting to where I am now with life pretty much back to normal. I am so lucky to have got through it and hopefully have a long future ahead of me. I've got a new house to move into, two happy and healthy sons, a lovely husband, a job I love and a new horse. I am so grateful for all this.

Thank you to all the lovely ladies on this thread for all you did to support me through chemo.

love to all

Claire xxxxx

 

Member

Re: January 2016 Chemo starters

image.jpegI have also finally worked out how to add a photo!  Still feeling a bit up and down, but I think the trend is up.  Seeing my oncologist later this week, hopefully for the last time EVER.  Not sure how long it will take me to feel over this extended episode, what a year it has been.....  thanks so much to all of you fab ladies for helping me through it all.  It has made such a difference to have fellow travellers.  Lots of love. X

Community Champion

Re: January 2016 Chemo starters

Your hair looks great Ellie. I'm looking forward to seeing you for real at the moving forward course. Mine is very thick too and wavy. It was thick before but I don't know if it's because it's shorter it feel as if there is a lot there!
I'm on tamoxifen and luckily haven't suffered too much with side effects. I'm a bit achy in the morning but that could be old age!
Love to all.
Claire xx
Member

Re: January 2016 Chemo starters

I have the hot flushes Mechelle - boy! Dr suggested switching to all cotton sheets, cool pillow, avoiding red ine, chocolate, cheese and coffee and drinking sage tea.

 

I have the aches and pains too! I find the warmth helps and so whilst trying to keep cool I end up wearing socks! 

 

I can't believe how thick my hair is as I am sure it wasn't before! 

Community Champion

Re: January 2016 Chemo starters

Your hair is lovely and thick Ellie! I'm pretty sure I was grey before but have dyed it for years so it was no surprise to me!!
I'm on Anastrozole and have just started to take sodium chlodronate along side it to give protection from the cancer returning in my bones. The Anastrozole gives me stiff joints if I sit or lie for more than 20 mins and at night, pains in my feet and hands - particularly my left hand (which is also my lymphoedema arm) so much so that I can hardly move my fingers when I wake up. They're fine once I put them under warm water tho.
I'm feeling way more positive at the moment, so these side effects aren't bothering me at the moment!
Xxx
Member

Re: January 2016 Chemo starters

Hi Ellie, what a good photo - your hair looks quite thick too. It's strange how a few of us have this 'steely grey' colour- I wonder how many were grey prior to treatment. I had some grey, but having dyed it for several years, it's difficult to say to what extent !!! 

Re your post - I am on Letrozole and for the first 4-5 weeks had no s/e whatsoever . Then started with hot flashes, much worse than the flushes I'd had for numerous years, but nothing I can't cope with. I also had ' morning sickness/ nausea , oh boy !!! Re started Domperidome with ? slightly helped. On review with con onc, he suggested taking it at night( instead of a morning ) and that he didn't think it was due to the Letrozole !!!!!!!( does say tho on info ? nausea / vomiting). Saw GP as the nausea was getting me down and put me on Cyclizine- I take one at night with the Letrozole - problem solved , yehhh. Now 12 weeks since having the Dexa scan with no result as yet - need result for when I renew travel insurance at the beginning of November, so hopefully will come whilst on holiday. Hope you are feeling ok, love and best wishes to all. X X 

Member

Re: January 2016 Chemo starters

Could I ask if anyone else is on an aromatase inhibitor? 

Member

Re: January 2016 Chemo starters

image.jpegWorked out how to do it!!

Member

Re: January 2016 Chemo starters

Hi guys I've also jumped in from March group to check out your hair. Wow what a difference 2 months makes! You all look great xx
Community Champion

Re: January 2016 Chemo starters

Ah pleased you dropped in on us Smiley Happy Xx
Member

Re: January 2016 Chemo starters

Kim's colour I was referring too! Xx
Member

Re: January 2016 Chemo starters

Hi I'm jumping in from the March thread as Kim saw my post about my hair (or slow growth lack of it lol) and you all look amazing! If I can achieve the same growth as all of you in 2months time I'll be happy xx Colista xx
P.S if mine comes back your colour I won't be dying it as that's the colour I want....grey is soooo in right now! Yours looks fandabbydozey 💕
Community Champion

Re: January 2016 Chemo starters

Elizabeth, your hair looks great! Mine is very bushy and sticks up so I'm hoping as it grows and gets more weight it will lie flatter! Not moaning though I'm so pleased I  managed to hang on to it!

I saw my surgeon on Monday. All v good. Haven't got to go back for a year! I'm being referred to the plastic surgeon for recon and he said I mustnt lose any weight! I've never been particularly fat and they will need the weight I have put on to make new boobs! That's a result!! Although I hate feeling fat and untoned, so I'm trying ,y best to get as fit as possible!

Have a wonderful weekend. Happy holidays Cassy and Mechele,

claire xxx

Member

Re: January 2016 Chemo starters

Hi Mechele

 

My husband shopped arouind online and we used a company called GetGoing Travel Insurance. Obviously, it was like writing a book having to inform them of absolutely everything. But wasn't expensive, nothing like I had imagined.

 

xxx

Member

Re: January 2016 Chemo starters

Hi Elizabeth - lovely to hear that you're feeling so much better and your hair really does look lovely - probably be early spring before mine gets to that length . It's great seeing everyone's photos and being able to put a face to a name .

Wishing everyone a good weekend 

Mechele X 

Member

Re: January 2016 Chemo starters

image.jpeg This is me.  Like Claire I cold capped and didn't lose all of my hair. Had it properly coloured so grey roots covered now. It's a very funny texture now and there's lots of short sprouty bits between the longer hair.  I had it cut short during treatment and its great not having to blow dry or straighten it ...saves a lot of time.  

 

I am am feeling soooo much better now. My burn has healed and my boob no longer sore.  Got to start concentrating on getting fit and tackling the lymphoedema.  I have several sessions booked with a lymphoedema specialist nurse.  Been on tamoxifen for about 5 weeks now. Not noticed any side effects except had a few spots recently but that could be down to anything.  I saw the consultant a couple if weeks ago and she really put my mind at ease.  I have a lump in my boob that I was worried about and she was sure it's tissue but let me have an ultrasound scan anyway.  There is nothing there and I'm feeling really positive now (that could all change!).  

 

Cassy well done on your weight loss, I find losing weight the hardest thing in the world but I've got to start that too.  It's great seeing all your photos.  Take care everyone and keep well. 

Elizabeth. Xx

 

 

Community Champion

Re: January 2016 Chemo starters

Ellie, the only way I was able to post a photo was by using my iPad. Not sure why I can't using my iPhone as I've always thought an iPad was just a bigger iPhone!!
Member

Re: January 2016 Chemo starters

Well done Claire! Your hair looks really long to me! 

Ellie. 

Community Champion

Re: January 2016 Chemo starters

Hi everyone, it is lovely  to put faces to names after so long. I've attached a photo taken of me about a month ago showing my much shorter than it was pre bc cold cap hair! I have got used to it now but I'm looking forward to growing it again although it's going to take a while. It was just too thin and straggly not to cut! I'm surprised I'm not grey! 

I agree with what has been said before. I don't know how I would have got through chemo without you all. You were a lifeline for me! 

It's  so good to hear of everyone returning to normality, working and having holidays!

I've just bought a horse!!

Claire image.jpegxxx