Yes thank you Sissy, all okay with my first rads! Slightly uncomfortable keeping arms up for so long, but I think the actual rads were about 2x 12 seconds and 1 X 2 secs! They said I was unlikely to get any side effects in the first week. Bit tired after work today though! Brilliant to be back. Ellie.
I start rads 6th June. I'm also going back to work that week but only two days a week to start with. I've got 15 sessions all afternoons, which means I can fit it in round work
i need to go back to work as I desperately need routine and structure to my days. It's been so long. I'm a bit nervous about dipping my toes back in to the real world! I also hope that by then I feel better. I'm still very tired and lacking in energy after the last chemo. It's three weeks tomorrow since the last one and I thought I would be better than this by now.
Im also finding it hard to plan for the future. I have lots of things I want to do, but I'm scared to think too far ahead in case it all comes crashing down again! I'm not sure how to deal with the fear of it coming back or spreading. I am desperate to buy a horse as I have always had horses and having lost my old boy, was about to get one when I was diagnosed. I've seen a perfect horse for sale but the "fear" is holding me back. Part of me says just do it, but another part says that if I go ahead I might be tempting fate and everything will go wrong again. How are the rest of you coping with the aftermath of it all. I know it's early days so maybe I need to give it more time.
Glad you are going home Debbie. That's another hurdle crossed.
My nails are ok so far. Not painful in fact I stopped biting them through chemo so they are the best they have very been. Not expecting it to last though as I have read they can come off quite a long time after chemo has finished.
Take care everyone
I have just repainted my toe nails - I thought the worst was over but ink for nails it's just starting! My finger nails keep feeling sore but I can't see beneath the shellac - moment of truth on Friday when I have them Redone!
Ellie - hope all goes ok today - think you must be the first to start - look forward to hearing how it went. Don't know why I feel nervous about rads , don't think the attitude of the 'chief ' oncologist helped - said I was worried about it being Left side and effects on heart/ lungs - rather brusk ' we try to avoid it but does sometimes catch lung tissues and effects permanent '!!!!, not saying what of course, just really worries me - hope planning staff are a bit more 'caring'
My nails not looking good - feel very sore, middle section purple and end section a yellowy discoloured ( look a bit like nicotine stains on a smoker 😨- all ten fingernails same .
Hope everyone has a good day , best wishes Mechele
Delighted for you Debbie!
I start rads today! 4.15. I also go back to work today, just doing 11-3 this week.
That's excellent news Debbie, will be so nice for you to get home to your family and own bed. Don't know if you got much sleep, I never did - just so much going off. I've got my planning appt today at 11.30 ( have to go to Sheffield which can take 45/50 mins or 2 hrs - traffic dependant ). I start 1/6 to 21/6 , know some already had planning appt and start after me - sure there's some that start before me but can't remember who !
Youll be glad to get your drain out - hope you don't have long to wait to getting ' released' , so pleased you got that out of the way , best wishes Mechele X
I think everyone has been thinking of you. Let the emotions out, they will have been building up with the anticipation of your surgery. Make sure you take it easy during your recovery. Hope the drain is done with soon, I was forever forgetting I had one and would walk off and then go 'oh' once it had a gentle pull. Hope you managed to get hold of some nice food. Best wishes for a speedy recovery, it's nice to get home in your own bed. xxx
Hi Debbie, so pleased the surgery went ok and the anxieties/ unknown is always the worst . Hope you feeling a little better and that you get home tomorrow - as long as you are well enough of course. Have been thinking of you - with love, hugs and best wishes , Mechele X
Fiona, have you tried taking a nap earlier in the day and keeping it to no more than an hour? Or even half an hour at 6 if you are working? Ellie.
Morning all, my sleep pattern has changed so much, I've been feeling exhausted by 6pm every night, so I go to bed early, then wake up every 2 or 3 hours in the night, which is really annoying because I always used to sleep very well, does anyone else have this?
Pat least I seem to have plenty of energy in the mornings, I'm going to start exercising next week to try to build up some strength before my surgery, in 3 weeks.
Re nails, there does seem to be some evidence that keeping dark nail varnish on can save them, although it's not well documented. I have decided to keep putting dark nail varnish on for 4 months from my last chemo, and then after that I'm going to switch to OPI nail envy strengthened, which is clear. You put it in in layers each day, then after about 5 days take it off and start again. I think the only other thing we can do is wear gloves when doing anything which might damage them, and hope for the best!
debbie how are you doing? Will you stay in hospital for the weekend or go home? Thinking of you and hope that the surgery went well and that you are feeling OK. Fiona. XX
Fiona, I am not sure about your research - I think it's coming up with the wrong answers! We need a solution to this nail problem! I think the nails on both of my middle fingers are starting to lift and I don't like it.
That is fabulous news Debbie, I'm so glad that all went well. Take it easy and heal well. So sorry about your nails, I've been reading up on some of the threads about nails to try to work out the best thing to do and there doesn't seem to be any consistent tried and tested advice. I don't know whether the dark nail varnish is better than strengthener or whether either of them actually make any difference. Also read that a couple of people suddenly lost their nails 6 MONTHs after last chemo out of the blue - urghhh.
Kim I've been using Carbomer eye gel (on prescription) which I find really good for my dry eyes.
I had a great start to the day, walked the dog, out for lunch and crossing various things off my to do list. Then I got out of my car this afternoon and went round to the back seat to get my handbag out and somehow opened the car door and slammed it right into my face quite hard, it really hurt and I 've now got a black eye! Marvellous......
hope we everyone else is doing wel. Love to you all. Fiona XX
Claire, I'm 3 wks today - pushed myself to go on dog walk and was ok, walking upstairs is terrible - by the time I get 3/4 way up, I feel I'm nearly on 'all fours ' and muscles above knee hurt so much. My onc gave me my tabs on pre chemo review 3 wks ago and instructed to commence on 1st day of rads - 1st June - on Letrozole,
Debbie, that's excellent news, so pleased you ok and hope you get a fairly restfull night ( as far as you can in hospital ) sending lots of hugs and best wishes , Mechele X X X
My eyes are the same Kim and it's a pain. It ruins any make up I try to put on and makes the area around my eyes sore. I've got some artificial tears I had for my contact lenses so will try them.
like you Mechele I still feel shattered and my legs ache. I walked my dogs today and it was all I could do to get up a small slope! I was beginning to think it was something else, but it seems we all feel this way. I am looking forward to passing the three week mark and seeing how I feel then.
I still haven't heard from the onc about hormone tablets. I will phone the hospital if I don't hear soon. Have you heard anything Sissy?
Debbie I hope all went well. I've been thinking of you too.
love to all
Kept thinking of Debbie on and off throughout the day - do hope surgery went well and she ok .
Cassy - hope you feeling a little better today and also you Fiona - hope you remain hospital free and s/e not too bad .
How is everyone else feeling - don't know if everyone feels they should be getting a bit more 'back to normal' , I know I feel I should but I just continue to feel so tired, heavy legs etc etc - almost beginning to wonder if something is wrong, but probably isn't. Got planning appt for rads on Monday and appt for 3 different bone density scans ( ? got to change date as on a rads day and as yet, don't know times ) . Commence hormone therapy tabs on first day rads 1/6/- that should be fun . Sending best wishes Mechele .
Goid luck today Debbie. We're all here cheering you on through surgery. This time tomorrow it will be over!
Goid luck today Debbie. We're all here cheering you on through surgery. This time tomorrow it will be over!
Debbie, In your pocket tomorrow. Sure you will be fine, it will be great to get it over and done, another milestone passed.
Hope everyone else is feeling a bit better day by day. I'm struggling on day 6 now but managed to stay out of hospital so far and am taking it easy. Having my sister with me is a great support. Love to all. Fiona xx
I definately felt worse on the last one came down to earth with a huge bump after the first couple of days when I was so happy it was all over!! There are some people I'm honest with how I've been feeling - mainly those who like to tell me how bad their cold is!! But on the whole my standard reply is "I'm fine" too.
I can't say that I'm suffering, but I generally feel "meh' the whole time. Still got the metalic taste in my mouth and I'm slightly achey. The most annoying thing really is my tender fingernails - I can't open cans and tins with ring pulls without using something to help lever them open and opening packets is difficult too. I can't even scratch an itch! I'm generally feeling positive though - can't wait until I can get back to work! Phased return is planned for 22 June as I'm signed off until 21st. That's about a week after radiotherapy finishes, so I have time to enjoy not having to go to the hospital each day, but I'm sure I'll be bored and frustrated at being at home still!! I am concerned about the side effects of whichever hormone blocking tablet I'll be given - just hope that any of us due to have them don't suffer any!
Cassy, I hope you start to feel better soon xxx
Hi Cassy, I'm on day 17 after last T and I have also found this one tougher then any other cycles For the first time I have numb feet and heavy legs and I'm really tired. I also find walking tough as my legs ache and I'm out of breath. I did start to pick up,around day 10 but then overdid it and felt rough again I've been going to bed really early and sleeping so soundly that I haven't even heard my husband come up later!
I have to say that I am so pleased there is no more. I don't think my body could take it! I know I have been quite lucky in that my side effects have not been too bad but my goodness this has been a challenge!
T is definitely harder than FEC as it has so many side effects. I just hope to god I never ever have to do it again.
On a positive note i had my thin straggly hair trimmed today. She took off all the wispy bits and it looks better. The new hair us growing well so my thin patches are less obvious. It's nothing like my old hair but I'm glad I persevered with the cap.
Sissy I am thinking of having my eyebrows tinted too. I can feel them but they are so pale I can't see them. No sign of eyelashes yet but I've been told they take a bit longer. I am too impatient as its only just two weeks since the last chemo!
love to all
Ahh bless you Cassy - couldn't resist a reply - even on my worst days , when friends have tel to ask how I am , it's always ' I'm fine ' - my husband gets cross and asks why I don't just say how I feel !!! However, I'm sure people who haven't been on this journey , do find the 'tale of woe ', difficult to respond to , and probably get fed up of hearing it. That's one good aspect ( of which there are many ) of this forum , as we can say how we are feeling , knowing others have or are , feeling the same.
Feeling jealous this am 😊, son and family at Manchester airport awaiting 18 days in Orlando !!! . I'm tired today, had my ' munchkin' ( grand daughter Alexis aged 2 ) yesterday from 7 am until 5 pm 😨 Loved having her of course, but don't know where her energy comes from. Getting expert at building train tracks, ( my grandsons ) and delights in knocking 'mamars' train off the track ha ha . Do hope you start to feel better soon x
Cassy and Mechele - loads of sympathy winging its way to you through the airwaves! I'm day 23 now after last T and yesterday was significantly better.
The thing that hit me this week was how on earth did I summon up the strength to get through chemo? It made me feel really emotional. A bit like after you Survive an accident and realise you are still alive!
Aww thank you Mechele,
you have made me smile! I am just fed up of feeling rubbish...fed up of smiling and saying 'I am fine'...
I really don't know how you have managed your way through your chemo journey as I think you have had the worst of it. I know when you're in the thick of it, you have no choice but to muster on and find strength from somewhere...but you have had so many challenges, you have been an inspiration to the 'January starters'. I really do wish you well.
From, a now smiley, Cassy xxx