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January 2021 Chemo Starters

779 REPLIES 779
Gelbel
Member

Re: Nearly done!

Hello everyone

So lovely to read you are all (expect for @tennisgirl ) reaching or have reached the end of your chemo. Let's hope the next steps are less cruel on you all.

I've just done Pax #4 of 9. So I'm saying I'll be done next month. Then rads, Biphosphonate tablets for 3 years and hormone tablets for 10.

Massive update on me... well it is massive for me. Last evening, I took my wig off after being out and about all day and changed into comfies and caught a sight of my bounce.
I'd do cartwheels if I could. 🤸‍♀️🤸‍♂️🤸‍♀️ Since yesterday am I only had a 4"x2" patch of dark fluff appear on my right side halfway between my ear and the top of my head. And if that was not enough, I've a 5 o'clock shadow round patch on the back.

So happy - could even feel the back hair lying on the pillows last night.

And it grew a bit overnight.👊

So light at the end of the tunnel in lots of ways.

I hope everyone is enjoying the weekend and baby steps of coming out of lockdown. 🤗

Love AnGELa x

donkeywoman
Member

Re: Nearly done!

Hello all

@Lewy2803 that's great, that you managed a weekend away - just what the Dr ordered! And you are right, we still all have lots to come, in various ways. 

Thanks @Mumboo - it does feel as though life is starting to come back - albeit in a slightly weird way. I'm not feeling particularly emotional about it, but did cry quite a bit during 'The Dog House' (about rescue dogs)! @tennisgirl hope your chat with your team before next treatment is helpful. I found mine responsive and, even though my bloods were generally ok (ish), they did reduce my dose a bit when I said that some of the side effects were problematic for me. 

Hope everyone is enjoying the weekend, in spite of the weather (though the sun is currently shining here in Derbyshire). xx

Lewy2803
Member

Re: Nearly done!

Good luck this week @tennisgirl - all the BC stuff going on as well as elections! Were the injections the bone marrow ones? I absolutely hate them and only start to feel better once I have finished them each cycle. 

We managed to get away to the sea side this weekend and despite the changeable weather it has been just the R&R we both needed. The end of chemo brings the start of another phase for lots of us, whether that be start of radiotherapy, breast surgery or simply a return to work - they are all major emotional events so we must make sure we keep supporting each other on here. 

loads of love everyone xx

tennisgirl
Member

Re: Nearly done!

Hi there! Good to hear the end is nigh for you.

My second cycle begins Wed and my pre appt is Tue so will discuss the previous side effects and injections then. Had bloods done yesterday. I will try to endure the cool cap like last time.

Have to admit I am getting a but nervous about side effects etc - if they get worse as time goes on, and also when / if hair will come out more quickly - at the moment there are quite a few odd bits in strands.

Big week here as I am standing in the Holyrood elections as a list candidate so it’s going to be busy / nerve wracking!

Mumboo
Member

Re: Nearly done!

Hi ladies, 

It's been a little while since i've written. No reason, just the joys of chemo reducing me to a blob on the sofa, with an eyemask! 😂 

I've had my final chemo just over a week ago, so am beginning to emerge from the initial fug of the first week! Got radiotherapy booked to start 20th May,  along with Anastrozole (for 10 years). Then done. Woohoo! 

Hope you've managed to get your daytrip to the coast @FlorrieBee?  Gorgeous sunshine here today!  So you're right there with @Lewy2803 & just one more to go. 🎉While i think of it, you asked about dose of Docetaxol.. Mine was 180gm. 

My eyes are terrible too. Constantly watery, especially after waking up. Blurry too. Hope clears up soon!! 

Well done on your socialising @Gelbel!  But it really is so tiring isn't it! I haven't managed any big groups yet, still just one on one, but after a few hours of chatting i'm completely pooped! Good to hear you've got plans for visitors @donkeywoman.  I'm looking forward to having people in the house again but it does mean i'll have to keep on top of the cleaning a bit more! 😂

Have you managed to get your injections reduced @tennisgirl?  And an apt for a pre-chemo chat before your next round?  I'd always have a phone call with the consultant 2 days before, with a quick trip to hospital for bloods too. 

Not sure if any of you have done this, but there's a website called Www.littlelifts.org.uk which is specifically aimed at those with breast cancer. It sends you a gorgeous little box of goodies for if you're going through either chemo or radiotherapy. Doesn't cost anything. I've just received mine in the post today & it's lovely!  Herbal teabags, bit of chocolate, body creams, eyemasks...Such a lovely, thoughtful treat. 

Hope anyone i haven't mentioned is doing ok. Lots of love & hugs to you all. 

Xx

FlorrieBee
Member

Re: Nearly done!

Thanks @donkeywoman I hadn't thought of the lack of lashes but that does make sense, it can't help can it and I've always had pretty sensitive eyes to begin with. Uuugh to the oral thrush, such a pain and hope it clears quickly for you but glad to hear things pretty good otherwise 😊 I have a sore mouth again, I don't actually have any ulcers this time but my whole mouth feels sore so being a little picky with what I eat and drink, nothing tastes nice anyway so hoping it won't last long.

Sunny morning here, or at least I assume it is as I can see some brightness peaking round the blind, I'm still in bed! I'm so slow in the mornings at the moment! 🐢🐌

Hope today is a kind one to all of you lovely ladies 😍 xx

donkeywoman
Member

Re: Nearly done!

Hello everyone

@FlorrieBee before I forget (chemo brain hasn't passed yet, guess it will be replaced by menopause brain!) - my eyes are much more blurry too. I'm just waiting to have my second covid jab and then I'm going back to the optician. Mine water a lot too - presumably due to lack of eyelashes and eyebrows... but they also feel gritty and it's definitely harder to focus. It is really good to have finished chemo - not long for you now too. I have started putting in dates to meet up with people and even have folk to stay (not til June of course). You're right, it does feel a bit weird to be planning 'normal' stuff. I'm going back to work in a couple of weeks, so I'm thinking that will make me feel that I'm on the way back to my life a bit... Glad your last round wasn't as bad, although it still sounds hard, with pain and nausea. I've not noticed anything since the Herceptin jab on Monday. I do have oral thrush back again - my GP says it will be because my gut flora is so diminished by chemo. I've got Fluconazole for a week and then he suggests I get some of those little Yakult pots. I did notice I had a bad taste still, but didn't check my tongue. So I probably didn't catch it very quickly this time. But it's small fry in comparison! 

Hope everyone is coping okay? xx

FlorrieBee
Member

Re: Nearly done!

Ah I bet it feels so good @donkeywoman to have the chemo phase behind you, so pleased for you. 😊 Do keep us posted on progress with just the Herceptin and anything that throws up.  Small steps to normality must feel very positive but i can't help feeling will also be a little strange for us all as we all adjust to more 'new normals'. Have you got any exciting plans ahead? If I'm feeling like it, we're considering a day trip to the coast at the weekend, might get excited about fish and chips by the sea! 😘 

So last round of Docetaxel not as severe thank goodness, hoping no other nasties are going to crop up between now and last chemo in a couple of weeks! Bad pain over the weekend that has eased off now, just tired and keeping on top of nausea.  Question for you all, have any of you had problems with your eyes? I'm about 12 months overdue for an eye test. I only wear glasses for reading and computer work but I seem to be continually having to adjust my eyes as they are blurry or watery. I'm thinking maybe it should now be safe to go and get my eye test and some new glasses, has anyone else been?

How's everyone doing? Do hope everyone is getting through ok, what ever stage you are all at, anyone due to have treatment this week? Erin, how are you doing and have you had your first Docetaxel now?  Belinda, mumboo, pesto, how are you doing now, everyone else?  I know lewy and I are both approaching last chemo in couple of weeks, then surgery in coming weeks and months, anyone else? Still good to hear how everyone else is getting through when you all feel up to it, trials, tribulations, any tips. Wet day here today so a good excuse for a lazy day and hope the garden will benefit as it is really dry so it should get a good water! Take it easy everyone ☺ xx

donkeywoman
Member

Re: Nearly done!

Yes, I had a face to face or a phone call the day before chemo, to check how my blood results were and to talk about any issues. This is when they prescribe the chemo and take home meds. Do you have an appointment? If not, you can always give the consultant's secretary a call to check x

tennisgirl
Member

Re: Nearly done!

Hi

My next chemo is a week on Wed so hoping I will have a pre assessment to discuss how the last one went etc - is this usual?

 

 

donkeywoman
Member

Re: Nearly done!

Evening all, you are right @Lewy2803 , it has gone quiet on here. I must admit that I've been on the forum less the last couple of weeks. I think that life has just become a little busier as lockdown eases and I can get out and about a little more. Friday was the first day that it really felt as though I had finished chemo, as I would have been going that day for next treatment. It was so good not to go! I'm at the hospital tomorrow for the Herceptin (Tratsuzomab) injection and back on Tuesday for my prosthetic boob fitting... It feels a lot easier than before and I'm hoping that Herceptin will allow me to carry on with my life okay. @Lewy2803 that's great, one more to go - hope this one isn't too bad and you can soon start to get on, though I know you have more surgery to come. @FlorrieBee hope that this round is kinder to you and, if not, that you have plenty of meds to help. 

How is everyone else? @tennisgirl - any luck with getting your injections changed? and @Erin 35 hope things are going as well as possible.

All the best to everyone xx

FlorrieBee
Member

Re: Nearly done!

@Lewy2803 round 5 done is a good feeling I bet!? Very pleased your pics line behaved, thank goodness!  One more round, we can do this! 

I'm hoping it is quiet here as everyone maybe enjoying the weather, maybe some of you have plans now as restrictions have eased a little. It supposed to be nice over the next few days, hopefully that will give everyone a little lift. 🌞

Good luck today for treatment and I hope those who have had treatment in the last few days are doing ok. I had my second Docetaxel Monday and have actually had an ok few days, very tired.  It was Friday night that the bone and back pain steamrollered me last time, really hoping that I don't get a repeat! I have got the painkillers at the ready though and will just take to my bed if I need to, think a lazy few days for me.

How is everyone doing? Take care of yourselves and hope the weekend is a decent one all round, sending big hugs 😊 xx

Lewy2803
Member

Nearly done!

Wow chat on here is really tailoring off, I assume as we are finishing our treatment. It would be good to keep supporting each other during the next phases for everyone. 


I'm just home from #5 so one more to go. Such a good feeling! Thankfully my PICC line held up.  How is everyone doing? 

Mumboo and Florreebee had treatment this week and know Belinda is tomorrow. donkey woman is now onto Herceptin only ?

tennis girl how are your feeling this week? Are the injections you speak of the filgrastim? I hate them!

How’s everyone else? Erin, Gelbel, Pesto and anyone else I’ve forgotten. Sorry am typing on my phone so can’t look back to check names! Hope you’re are all ok!

tennisgirl
Member

Re: G-CSF injections

Thanks! If they can do it after in one shot that would be far better. I am a nightmare lol x

Erin 35
Member

Re: G-CSF injections

Hi @tennisgirl  I had a lot of back pain on the 7 day injections and mine was reduced to a single injection 48hrs after chemo. It’s definitely a lot easier to bare! Might be worth a mention to your team! Xx

aqua76
Member

Re: G-CSF injections

Jumping in from November starters here

im not sure why there are different ones, and if it depends on ur chemo type but my GCSF injection was only a single one that I took 24 hours after my chemo 

I would definitely ask your oncologist if you are suffering with it afterwards. 
I also remember reading Liz O’Riordans cancer blog and she had similar issues with the injection. Can’t remember how she resolved but she definitely got something changed and it helped her

x

tennisgirl
Member

G-CSF injections

Hi

I am 6 injections in doing the G-CSF? Injections following 1st chemo - husband has been doing them for me as I am really needle phobic. Until now it has not been pleasant and a bit stingy but bearable. We have been alternating injection sites.

Tonight though it was painful and stingy straight away. Hubby said I was tense but I didn’t think that was it. I am freaking out now because of it. Does anyone know why this has to be given daily for 7 days and if I can ask the consultant to just have one jag after chemo for it? This is my worst nightmare 😔

Gelbel
Member

Re: January 2021 Chemo Starters

Sunday socialising was lovely, if tiring. I threw the girls out after 4 hours. I can't believe how quickly the time went. I was beginning to flag. Bkess them, they cleared all their rubbish, packed the chairs up etc.to save me a job. A colleague said today that she saw pals over the weekend after shielding for the best part of a year and was absolutely cream crackered too - so it might not have been wholey chemo tiredness. I slept 11 hours solid. 🦥

I did nothing yesterday as I was a teeny tiny bit whoozy. Mmm, it makes me wonder if my body thought: "Pah, you were well enough to work you shirker" and decided to pay me back as I feel really quite whoozy today. I had a telephone check-up and they're going to check me over on Friday as I've very mild neuropathy. My tips of my fingers feel like I've trimmed very long nails - though I've not cut them. Hubby offers me his shirt buttons to make sure I'm dexterous. 

Question - not to be read if you're eating! If you get bunged from chemo, do you find you feel more chemo fog/brained/whoozy? I ask as I have been (or not been - until early pm) this cycle and am not feeling good today. Though I picked up a bit afterwards. I could make a case for this looking back at my notes - especially  EC #2 when I was very whoozy from day 3 and didn't go properly for a good few days after the actual chemo. Nurse said could be likely - toxicity not worked its way out etc.

Be interesting to know. I'll keep on top of that in future.

If I'm feeling up for it tomorrow, a few of us are meeting for our tea in a beer garden straight after work. Mind you, if it goes as chilly as it is tonight I will not be going. Gosh it's dropped.

I hope everyone is feeling as good as possible. 🤗

Please excuse any typos - awful time thinking how to type what I want to say!

Love AnGELa x

FlorrieBee
Member

Re: January 2021 Chemo Starters

@Glad you had a good weekend @Lewy2803 I'm really thinking about booking something before surgery in June.  Bet it felt good to be away and have a little normality, but hope they sort your picc line tomorrow.  Thanks for advising your dose on the Docetaxel, think mine was about 164, but I didn't know if this was normal, or whether the Onco had lowered it as they reduced my FEC by 25% due to side affects.

Hope everyone gets a decent week ahead, take care and hugs to all. xx

Lewy2803
Member

Re: January 2021 Chemo Starters

Hi @Erin 35  i am so very sorry for your loss, such a shock at a time when you and your dad are at your lowest. Please take care of yourself. Biggest hug to you xxxx

ive felt well this week ahead of #5 on Thursday and hubby and I even managed a weekend away this weekend. It was so lovely and the sun was out. But boy am I tired now. Just as we arrived at my holiday home my PICC Line arm felt quite heavy and on investigation, I have a tender lump under the skin a couple of cm after the insertion. It’s remained tender over the weekend but hasn’t got bigger. I have a flush and bloods tomorrow so will ask the nurse but has anyone else had this? 

re docetaxil mine has ranged from first dose of 164 and the last couple have been 132. The onco adjusts mine each month dependent on how the side effects have been. For me it has mainly been joint aches (incl lower back like period pain) and tiredness. I don’t often feel too nauseous luckily. 
Good luck everyone for the week ahead. Loads of love xxx

FlorrieBee
Member

Re: January 2021 Chemo Starters

Oh @Erin 35 what a terribly sad and difficult time for you, I am so sorry to hear of your loss.  Sending you a big virtual hug.  There are no words but I hope you have some close family and friends to support and help you through these awful times, and also to support you with your Dad.  I know it's tricky when you have so much going on, but try and be kind to yourself too, have plenty of downtime and take any help offered.

Re Docetaxel, I am on chemo #5 tomorrow, it is the second Docetaxel for me.  As everyone says, we all react differently and some have minimal side affects.  For me, I was not too bad until day 5 when the steroids and injections finished, I then had chronic back ache, sore hips, pelvis and legs.  The pain was pretty bad and although I was taking cocodamol, it did not keep on top of it.  Lasted 5-6 days (I sort of hibernated for that time) and then eased off.  I didn't get to speak to the Oncologist on Friday, it was a nurse practitioner instead, she didn't seem too worried about it and really only suggested extra painkillers.  As I take cocodamol, I am also going to try Ibuprofen in between these if I need them and hope that keeps on top of it.  You may not get any of this, but maybe stock up on painkillers just in case.  I also take senna and laxido as at least 3 of the meds I take cause constipation.  Good luck for this week, will be thinking of you.

@donkeywoman A birthday to celebrate and some socialising equals a little normality, what a treat! 😊 Hopefully things continue along that theme for you.  It will definitely be interesting to see how you get on with the Herceptin alone, I am sure for those of us that will get to that point in the coming weeks and months, everyone is hoping the side affects are minimal compared to the chemo, fingers crossed for you.

@Gelbel And some socialising for you too, must feel so good.  Hope you had a lovely time.  We had my youngest's 18th last week.  It was a very quiet affair, both of the Nan's came over and we had lunch and birthday cake in the garden, so it did feel like a little celebration.  Hoping he can celebrate properly with friends during the summer.

Random question for you all... anyone have any idea of what the normal/average dose is for Docetaxel every three weeks?

How's everyone else doing?  Hope those that have had treatment are doing okay and resting up, good luck to those having treatment this week, look after yourselves.  xx

donkeywoman
Member

Re: January 2021 Chemo Starters

Hello everyone, 

@Erin 35 I am so sorry to hear about your Mum - what an awful loss and also unexpected. Nothing we can say on here will really help, but just remember that we will be thinking of you. My mum also died unexpectedly (many years ago) and I remember that it took some getting over. It sounds as though yours was also young, as she was working with you. It sounds as though you had a wonderful relationship, which, though lovely, will make the loss even harder to take, I would think. Take as good care of yourself as you can. In terms of Docetaxel, as @Mumboo says, it is very different for different people. I had no problems with the infusions, and probably my worst side effect was fatigue. I did have issues with constipation and was too slow to realise. @Mumboo seems to have got more organised than me, so good tips there. I felt better once i stopped pushing myself in the first week. I did lots of lie ins, watching easy tv and napping. There seems to be a real 'aura' around Docetaxel and, although it is hard on your body, it doesn't have to be too awful... We are all so different. But your team will want you to do well, so they will tweak things as needed. All the best.

I've been a bit quiet on here the last few days - I have been feeling well and it's been my birthday which has been lovely, I've seen a few folk and been very spoilt with gifts, flowers etc. Wow, I find socialising exhausting! The unit of blood definitely helped, though I still have a lump on my hand, so I think the infusion may have finished off the veins in my left hand. I'm lucky that they made it through chemo...  Hope you have a lovely time with your pals, @Gelbel  - it's so much easier having people in the garden than meeting somewhere! 

So this week would be my chemo week, so it will be quite weird when Friday comes, I think. I'm still having a blood test on Wedensday and a phone appointment on Friday. Then first lone herceptin jab on Monday, when I guess I will find out if it has its own side effects for me.

@tennisgirl - sounds as though chemo is hitting home, maybe not too surprising, but still hard. Hope you can be gentle with yourself and rest well. Sorry, no advice re hair as I didn't cold cap. But mine is starting to grow back - I have a little furry covering...

Hope everyone is managing as well as possible and being able to enjoy the light and sun, even if it's from the sofa.

All the best xx

Mumboo
Member

Re: January 2021 Chemo Starters

@Erin 35 I am so very sorry for your heartbreaking loss. There are no words. 💖 Sending you & your family much love & strength. 

I'm due my 3rd & last Docetaxol this week. As with everything on this journey, everyone's experience is different but i can give you advice based on mine.

I had absolutely no problems with the infusion. Nurse keeps a close eye on you at your first one, just in case of a reaction. Infusion only took about an hour,  made longer because i'm still having cold cap though. 

I found that it really bunged me up & made me extremely uncomfortable when trying to go to the loo. So the 2nd round i really focussed on the constipation side of things & it helped massively. I took Senekot for 3 nights starting on the day of chemo. I also took dulcosate (prescribed by Onc Dr) for several days too. My Onc explained that one of them softens the stool & the other makes it want to come out!  Sorry if too much info!  Absolutely keep up the fluids. Drink at least 2L a day, every day. 

I got body aches started on Day 4, so immediately started to take cocodamol regularly. (The first round i left it too long & had to take codeine, which then made my constipation worse!) This lasted for several days, but the trick is to keep on top of it if you can, with the tablets...keeping an eye on your bowels, just in case you need another Senekot/dulcosate. This all worked so much better. 

Pineapple juice was lovely & sour sweets were also a nice treat. Anything that cuts through the nasty taste in mouth, if you do get that. 

Keep on top of oral hygiene as much as you can too.

Basically, as always,  if you feel any side effects at all, speak to your Onc team straight away so that you can get on top of them. I put up with stuff & that just made it worse.

You can do this. 💪 Sending you much love & strength. Be thinking of you on Tuesday. 😘

Xx

 

Shi
Community Champion
Community Champion

Re: January 2021 Chemo Starters

❤️Erin, so sorry to hear of the loss of your mum ❤️ the shock of sudden passing can feel like you are in a plastic bubble and everything else is just carrying on around you ❤️ sending much ❤️ to you and family. Docetaxol can make your bum a bit loose so Imodium on standby and upping carbs worked for lots of us, Epsom salt baths helped too ❤️ docetaxol saw off any remaining brows and lashes and too. When you are having infusion if you suddenly feel hot and you chest starts to feel tight when you breath, shout the nurses,  they will stop infusion and sort it out, just giving you heads up on this in case it happens so you know what to do. It’s happened to lots of us on docetaxol and some people have even had the person next to them flake out on it, I just wanted you to know because if you don’t it can be 😳😳 but your team sorts it 👭 again sending much ❤️💕💕Shi xx

Gelbel
Member

Re: January 2021 Chemo Starters

@Erin 35 I have no words. What an absolutely horrendously upsetting event to cap the BC and family situations you are in.

Many, many condolences to you and your family.

Sending you love and hugs. 🤗

Angela x

Erin 35
Member

Re: January 2021 Chemo Starters

Hi ladies. I hope you’re all feeling well and treatment is being kind to you! @Belinda_F sorry I didn’t reply last week. You are so kind always thinking of others! 

I have to apologise again for being M.I.A but my chemo journey has been on hold for a while. My Mum passed away unexpectedly from a heart attack on 31st March and I’m completely broken. She was my best friend - I’m a teacher and she was my Teaching Assistant, so we spent every day together before the pandemic. I miss her so much! My Dad is also battling cancer so I’ve been caring for him the last few weeks. Honestly, this year has been so horrific. 
I should be on cycle 5 next week but I’ll be having round 4, my first Docetaxel, on Tuesday. How have you ladies found it? Any advice? 
Sending love to you all!

Erin Xx

tennisgirl
Member

Re: January 2021 Chemo Starters

Hi

I think I crashed and burned yesterday and today - I think it actually dawned on me chemo has started. I have no energy, and paranoid about everything which I think could be something. Also it hit me that whilst I was ‘ok’ with the idea of hair loss etc - i am really not. The nurse said only wash my hair every 5 days - It is day 3 and absolutely horrendous - you could fry chips on my hair. Terrified to use anything on it.

I know it will get better but this past 24 hrs has been tough. Any hair cleaning tips that won’t help it to fall out would be appreciated - I cold capped the first session.

Gelbel
Member

Re: January 2021 Chemo Starters

Hello everyone

I hope you are all feeling as well as possible after your recent cycles and enjoying the wonderful weather. @tennisgirl how are you managing?

I'm 👌 today after Pax #2. Same 167mg dise @Belinda_F 

Woke up at 1am, saw 5am but then it was 7am. No feeling whatsoever in my tum so I've not taken the anti-nausea tablets. I will take an indigestion tablet later as I had awful heartburn in the night. Don't even feel whoozy. I did have a good chemo brain incident - tried to push the toast in the marmalade jar. And sucked the spoon used to stir the coffee thinking I was drinking it! 🤦

All my May appointments are in the afternoon. Didn't like that yesterday - felt like a condemned man waiting for the final knock on the door. My pulse and BP were off the scale. Made my veins easy to get to though! Will see if I can change but it does mean me and hubby can go out for lunch beforehand. Messes up the day before bloods too as the phone check-ups are late pm. If I can't change the appointments I'll ask if she can book the bloods a week in advance.

I've set up the garden for a socially distanced visit from the girls tomorrow. No way could I last a few hours sitting in the park without a wee. 🤭 Least here its comfy chairs and I have layers to hand if it gets chilly  Everything sorted for keeping the downstairs loo as clean/germ free as possible if anyone needs to visit. For once I'm not going OTT with food - they can have a bag of Hula Hoops each and an individual wrapped madeline - found a bag hiding that needs using PDQ. 

Rather looking forward to it.

Here's wishing you all lovely things to look forward to. 🤗

Love AnGELa x

FlorrieBee
Member

Re: January 2021 Chemo Starters

Great news on the scan @Belinda_F and hope you have been feeling better today? I have been tired but a decent few days otherwise and think I'm all set for no.5 in Monday, bloods this morning and call with Oncologist tomorrow. Not sure where we will go and of May, early June but even if it is just a few days out it will be special! A trip to the coast is a definite one, longing for some sea air and fish and chips! 😜 Our dogs are due to have haircuts tomorrow (aren't they lucky having hair to cut!😂) so think I am going to go with hub so we can grab a take out coffee, so that's an outing to look forward to for now! Just thinking about the hair thing, compared to when I had my long hair i am now super quick in the shower and actually enjoy the shower on my scalp so I guess that is a positive 😊

How's everyone else doing? Pleased to hear round1 went ok for tennisgirl, hope it is still going ok for you.  Hope everyone is managing to enjoy a little sun 🌞 Hugs all round xx

Gelbel
Member

Re: January 2021 Chemo Starters

Hi @tennisgirl Lots of fluids helps to keep the vein open.

I'm off to get my bloods done at lunchtime - nurse booked them for me so I don't have to hang around tomorrow. Do a bit of click and collecting on the way there/home.

I hope everyone is having a good a day as possible. It's still cold despite blazing sun - washing's drying though. 

Love AnGELa x

tennisgirl
Member

Re: January 2021 Chemo Starters

Thank you so much. No mention of a Picc line as they thought veins were ok but will keep it in mind. Anything we can do to keep our veins in good condition?

 

 

Lewy2803
Member

Re: January 2021 Chemo Starters

So pleased @tennisgirl @that you didn’t find it too bad. Have your asked about a PICC line? Don’t forget to keep a detailed diary of all your side effects so you can plan better for cycle 2. 
I got my period too just after my first round but haven’t had one since. 
we are all here for you xx

Gelbel
Member

Re: January 2021 Chemo Starters

Way to go @tennisgirl. Lots of 🤞 for continued minimal side effects. Glad you have everything to hand to help out. Don't forget to get plenty of fluids down you.

Never TMI. Aren't our bodies amazing things?!

Hope you have a good night's sleep. 🤗

Love AnGELa x

tennisgirl
Member

Re: January 2021 Chemo Starters

Hi all, thanks for your support so far.

So finally had my first chemo session and it was not half as bad as expected, nurses were brilliant, lunch was lovely and managed to endure the cold cap.

Got home about 3 hrs and starting to feel a little bit woozy and light headed but have my anti nausea pills, bands, and ginger sweets to take. Maybe too much info but my period decided to arrive today with mega cramp and bit of a headache so that added to the fun.

Genuinely getting the cannula in and out was fine. I am really squeamish so they covered it with gauze cos there was like 3 tubes lol so that helped me.

So will see how it goes there on in. 5 more to go! Take care x

Belinda_F
Member

Re: January 2021 Chemo Starters

hello guys!!! oh god @Lewy2803 what a nuisance!!!! I have terrible problems getting 'bloods back' and also have had the loosener drugs... I do hope it's OK next time! mine was...they're only good when they work these things aren't they! 

@Gelbel your massage, 😂 bet they had a little giggle too didn't they? chemo brain is so a thing!!! (I want a massage....) sorry you had post steroid slump, but very glad it wasn't as bad as before... I too have shocking flushing on my face! first few, I flushed couple of days then it went but last time I came up in rash/spots on my face... lots and lots. Not sore or anything but not fab being spotty at my age lol. They've now given me some anti histamines and they seem to be helping. 

@FlorrieBee how are you doing? I do hope you're in that time during treatments when you're feeling 👌 that's funny you should mention that gap between treatment and op, I too have that end of May and into June. I CANNOT WAIT!!!!! will get out of London for sure... sea, hills, countryside... you? what will you do? just to have a break from the hospital visits will be bliss won't it! 

and @tennisgirl is your first treatment this week, what day? be so thinking of you... it's the start of the finish of treatment ~we're here for you x. 

talking of which.... our super lovely @donkeywoman has now had last chemo and transfusion. Monday was it? beyond super congrats DW!!!! I'm so over the moon delighted you've finished. now, and can look to the future bc and treatment free!!!! woo-hoo.!!!! how are you doing and feeling? what a feeling it must be... but odd too perhaps... after such a long haul, a difficult haul... send news when you can Xx 

I'm exhausted now... have felt super tired last couple of days...my bloods are down or the effects of taxol are cumulative like EC... just so exhausted...oh! I do have news, silly me, had a scan yesterday and tumor still shrinking, now only 3mm...good news... 

sending big big hugs guys, have good sleeps, and peaceful dreams. Xx 

FlorrieBee
Member

Re: January 2021 Chemo Starters

Fingers crossed @Lewy2803 that everything remains fine with your picc line, especially when there's not long to go.  Sounds like you had a bit of a day yesterday! I'm hoping my viens are going to hold up too, as I've had a cannula so far, so fingers crossed 🤞 

Hope everyone else is doing okay, maybe enjoying a little sunshine? 🌞 Xx

Gelbel
Member

Re: January 2021 Chemo Starters

Must be the day for going out and about @Lewy2803 I hope your picc behaves itself.

I felt a bit rough with steroid withdraw yesterday but no where near as bad as for EC - not even when I took half measures at home. Perfectly do-able once a week. Did ask the nurse who called about a little reduction but she said wait to see how I am after Pax cycle 2 as I was red/flushed/slightly rashy over the weekend. My mouth off taste has changed - 
sea-water mixed with gone off milk. Yuk. Need to dig out the jelly bean sours!

Want a giggle?

Had some physio this am as got cording in my operated arm. It was amazing to see an new face - 2 as there was a student. What has my life become?! 
It was wonderful - even better than a foot rub. At one stage I was like a cat having a chin tickle - purring and nearly dribbling. Wow - someone massaging me. They and a couple of exercises every hour should sort it out in a few days. Not helped with a few classic cases of chemo brain:
Me: "Bra off too?"
 
Physio: "Yes please"
 
Me 20 seconds later: "Ready" with bra still on
 
Physio: "Lie on your back"
 
Me: "Is that looking at the ceiling?"

😳🤣

Good luck to everyone have their next cycle in the next few days. 🤗

Love AnGELA x

Lewy2803
Member

Re: January 2021 Chemo Starters

Hi, how’s everyone doing?

I had an exciting day out today as when I went for my PICC line flush they realised it was blocked. 6 flushes later, still no movement so off to a dif hospital to have some drugs injected which thankfully worked. It’s only got to last another 5 weeks.... fingers crossed. 
I know Tennisgirl is having treatment this week and Belinda on Friday - anyone else?

Gelbel
Member

Re: January 2021 Chemo Starters

Thanks for asking @Belinda_F. I'm ok... with an ish.  Seem fine post (should be by now) steroids. I slept OK last night. No need for anti-nausea pills after a couple of 'just in case ones' on Friday night and yesterday morning. I am a little bit windy - or as hubby says the field of sheep (from EC indigestion) have gone to be replaced by a tiny frog following me around. 😲🤣

Had a little walk to the local shop yesterday but was a bit breathless. I know some of it is down to struggling with the never ending dripping nose when out in the very cold. Some has to be low red blood cells - the insides of my eyes are very pale, I look like I have white eye liner on and my lips are a bit pale.

Last week I had a blotchy face - we have recently changed fabric conditioner and the washing stuff I like to use for bedding. I'm not usually allergic to stuff but who knows what changes chemo decides to make on you? It could've been that or I had quite a few days with make up on. It was less noticeable on Friday yet was back yesterday and I was quite flushed in my face and chest late yesterday afternoon and evening. It's wasn't itchy at all. All gone except the blotches this am.

Duly noted for my telephone check up on Tuesday. If it returns and/or itches I will call the team before that. I've been using very mild face/body stuff since yesterday's 3S's. Well 2S's as no shaving needed! We have tons of Benadryl if needed - hubby has to take for prickly heat caused by the sun. And of course, sometimes it's a bit mind over matter!

I need to remember I had a Biphosphanate infusion too.

Thanks to my calcium and vit D tablets,  my nails are very long so I need to trim them before I can check my dexterity doing up and undoing shirt buttons. A good side effect of those tablets is my hair is growing - not all over but the ones that are there are about 1" long. I've the tiniest fringe - could nearly do a 70s skinhead style.

And chemo brain rambling obviously!

Thanks for the heads up on the first dose load - I'll ask about that if it's not mentioned on Tuesday's call. Overall, loving waking up feeling 'normal' (think EC week 3) on Pax... long may that continue. 🤞

My thoughts are to do reduced hours this week as I do feel up to working. See how it goes and do 5-6 hours max. I've only got 3 1/2 days as I'm seeing the BC physio on Tuesday am due to some cording my ANC arm that won't shift with the post op exercises. I'm also thinking of getting my bloods done Thursday as I am not a hang around for an hour type before chemo (plus the pharmacy wait) on Friday.

I'm hoping for a little walk around the park with a pal later, though the weather looks to get wet/snowy from 1pm. Bit like yesterday - 3 hours of sleet and snow that settled for a while.

I'll take a look at that book too @Mumboo - sounds really interesting. It's so difficult to explain chemo and it's effects to others. This is why this forum has been a godsend to me.

Massive 👏 to those of you with just a few or two cycles left. I'm happy to say 8 which is really 2.66 full doses. 😜

Happy Sunday everyone - may you have a comfortable, warm day.

Love AnGELa x

 

FlorrieBee
Member

Re: January 2021 Chemo Starters

Yes @Belinda_F two left, yippee! No5 one week tomorrow, I think that will be an amazing point to reach knowing just one left to go. That said, I will be a little anxious about the horrible side affects, but hopefully will be slightly better prepared so they may be more manageable, fingers crossed. 🤞 Good luck with your scan tomorrow. 

Lovely seeing the garden springing to life, we have a couple of small magnolia trees that have looked so pretty but now going over. One of them is in a large tub so we moved it to outside the lounge doors so I could see it even when stuck indoors, lovely. Another little goal I have set for myself, we have some woods nearby that have stunning bluebells each year, bit of a trek to get to them but hoping I will feel like it once they are out. Love being outdoors, has a real feel good factor for me!

I'm already thinking about the gap between May and June, between chemo and surgery, may be possible to at least fit in a couple of day trips to the coast (couple of hours away), would love a bit of sea air and fish and chips by the sea! Don't really want to be there though with hundreds of others. How's everyone else feeling about making plans? Great to have things to look forward to but we obviously need to be comfortable doing it.

Thanks @Mumboo for the book recommendation, I've ordered it from Amazon, love that the proceeds go to charities including this wonderful site, so will look forward to reading it this week.

Hope it is a gentle Sunday for you all xx

Belinda_F
Member

Re: January 2021 Chemo Starters

Hi guys, how's you all doing? I hope you've managed gentle weekends feeling as OK as possible. 

@Gelbel how you doing post first pax? think you're possibly on a loading dose first one, it might be lower next week? I do hope you've been feeling OK? it took a few treatments my end to iron out my side effects, although as said, they weren't a patch on those from EC.

@

@Mumboo thank you for the book recommendation! I'll look it up, and blog too. I've read a few blogs, I'll post them later, which I've found very helpful, isn't it comforting to read yourself almost on the pages. what in particular resonated for you? 

@donkeywoman oh no re not knowing where you were in hospital!!! chemo brain had kicked it there hadn't it... although I wonder too, you're very near end of treatment... maybe your brain is computing this and is already putting the hospital behind it? blocking it out? that must've been quite odd though... but you're not alone... I literally don't know where I am in my own home sometimes! my brain is mash sometimes... 

@Lewy2803 two more to go, wow!!!!! you're on countdown now...? I've got 6 weeklys left and thought I'd start countdown at 4...

@FlorrieBee does that mean you too have 2 left? how are you doing today? I hope you managed to get in the garden? any energy I have I'm out there... love gardening and pottering out there. it's seen me thru some very difficult times and is hugely therapeutic for me. is it starting to bloom now yours? but all sympathy being very active usually and not being able to keep up the pace. you will again... but it's hard isn't it. I was getting so puffed doing the smallest walks, made me cry... 

I'm doing well this weekend, nausea only slight, belly bad but not unmanageable... had echo last week and whilst my heart has improved, it's not got worse. seeing Dr Wed this week, and got ultrasound tomorrow which is always a bit nerve racking. 

just wondering how Erin and pesto are? got the usual irritations trying to tag I'm afraid. 

sending hugs for a restful Sunday guys. sun's out, woo-hoo! x

Mumboo
Member

Re: January 2021 Chemo Starters

Morning ladies, 

Hope you're all doing ok & managing to cope with all these side effects. 😘

Just a quick message to recommend a book that i have just finished. 

It's called "Tea & Chemo"  by Jackie Buxton. 

I bought it as i started chemo but just didn't feel i wanted to read anything about side effects while i was living them, so i left it sat on my shelf. For some reason i picked it up the other day & i read it in 24 hours! Could not put it down!  It's as though it was all my thoughts written down in black & white!

The author was diagnosed primary breast cancer & would write blogs all the way through her treatment. This book is pretty much a combination of her blogs. 

I didn't find it depressing in the slightest. It also had lots of links & websites for help & guidance, should you need anything. Very inspiring read. 

Anyway,  book nerd finished! 😂

Hope you all manage to enjoy a bit of sunshine & fresh air today. 🌻☀️ 😘Xx 

 

FlorrieBee
Member

Re: January 2021 Chemo Starters

Good that they are checking @Lewy2803 as always better to play it safe, does seem to take ages for the results.  Fingers crossed for you! xx

Lewy2803
Member

Re: January 2021 Chemo Starters

hi @FlorrieBee i have a family history of BC and prostate cancer through my fathers line so they wanted to test. they still think it is unlikely especially as I am HER2+ but worth knowing if anything for my children's sake. it takes ages for them to contact you in the first place and then once the test is done - 12 weeks for result!

FlorrieBee
Member

Re: January 2021 Chemo Starters

Hi @Lewy2803 yes we are pretty much same stage in our treatment. It took until day 11 to feel better with the Docetaxel and Herceptin but thankfully I also got out for a walk yesterday, made me feel so much better! I absolutely hate been inactive, I was relatively fit and healthy prior to all of this, cycling is one of my main hobbies and I am really missing my bike. Have certainly not had the energy for that so my walks will have to do for now. I did a 100km ride for Prostate Cancer at the end of last summer, so will have to think about doing something in the future for this wonderful Breast care now site, it will be something to aim for and work towards once through all of this. Good to have goals and all that! 😊🤞 Do you mind me asking Lewy, what made them decide to test for the BRCa, or do they do that automatically in your area? My Oncologist gave me a form for gene testing and I haven't heard yet if they think it's necessary to do. 

Hope all goes well for yours and you are able to use that info to help decide on surgery.

Windsor must be a beautiful area to live. I imagine everyone being very saddened, but what a remarkable life and legacy he leaves.

How's everyone else doing today? Hope it will be a kind weekend for you all xx

Lewy2803
Member

Re: January 2021 Chemo Starters

Hi everyone  - just catching up with all your messages  I’m doing well after #4 last week and managed a nice walk yesterday . Great to think only two more to go ... but then Herceptin for a year. I think we are at the same stage @Florrie
one piece of news is that I’m waiting for the results of the BRCa test which will effect the surgery I have post chemo. For some reason it takes 3 months to get the result?!!! Weird  

@Gelbel I have to present in my job too and I know there is no way I could do that at the moment so wigs off to you! I love doing it though and can’t wait for more normal times (for me and the world) when those presentations can start again.

I live in Windsor ..... it’s very somber at the moment. I think his death has effected people much more than they ever thought possible. I met him a few times and he was inspirational. But what a legacy he has left with all his charity work. 

love to everyone  hope yesterday went ok @@Belinda_

 

Gelbel
Member

Re: January 2021 Chemo Starters

Hello everyone,

I hope you are all nice and warm. It's been so cold up here. Not at all comfortable hanging around for training  to end and then, filming some of the rugby guys on Wednesday evening. I think lockdown's made me a wimp - I even had to put a bobble on over my wig. And we know how hot they are! I suppose chemo made me a bit susceptible to the cold.

@donkeywoman I had my first Pax today. @Belinda_F the dose was 167 mg in about 550 ml.

My appointment was 15:45. I was called at 11:30 to ask where I was- no one had told me/no letter to say it'd changed to 11:00. Thank gawd it was my pal who called as I was a bit rude about the admin. 🙊 I got there at 12:30.

I had the same 8mg steroids but.... #DrumRoll none to take home. 👊 The lovely nurse put it in so slowly too. So hopefully much less reaction all round. 🤞 I had IV Piriton that I wasn't expecting. I didn't have a sickness brick nor anything via IV. I also had Biphosphanate.

I left at 16:20.

Apart from weeing for England - all the above fluids plus 2 flushes. I felt OK - good enough to drive home. Another 👍

I did feel slightly queasy an hour ago so dropped a Metoclopramide. Having said that I've not eaten much. I don't have anything to eat until 12pm on normal working days so quaffed a quick sarnie before I left for the appointment. My team at work were having a virtual leaving do for our head of department. I did join the chat for a while. Lucky people were all quaffing cocktails - even the girls in the USA. 😲 I shared a photo of my NHS cuppa and biscuits. 🤭

I did a food order in a rush last night as I saw Waitrose had delivery slots and I couldn't be bothered to go to Aldi... so I've a biryani. #ReachesForTheIndigestionTablets

Thank you everyone for your lovely comments about my presenting. 😳 Honestly it wasn't much, I'm used to them albeit until now with my own hair and right boob. 🤣 I don't mind them. When I was on EC my 3rd week was always BAU so, apart from the fact I had to do it with a wig on and falsie, it was almost a bit of reality for me. It helped that some of the guys recently saw me wigged up on calls. 

I hope everyone else who had chemo this week is as warm and comfortable and safe as possible.🤗 I'm sorry I can't remember who has what when - my brain just can't compute it. 🤯 ☁️ 

I wish you all the weekend you wish yourselves. I want to give the Queen a hug, poor love. 😥 

Love AnGELa x 

 

 

donkeywoman
Member

Re: January 2021 Chemo Starters

Hi all

@FlorrieBee  and @Mumboo  I'm with you on the admiration that anyone ( @Gelbel for example) could stand up and speak to people - today I went to the hospital for a blood test and forgot where to go! I go there all the time, but just stood in the corridor feeling lost until someone helped me out. Oh dear... Hope you managed to get your walk in @FlorrieBee ? I've been trying to up my steps (from a low start) daily, but today I'm too tired so will get back to that tomorrow. Excellent activities for the girls @Mumboo ! Just another week of holidays...?

@tennisgirl glad you are able to move on and chemo will get going. I also have a lot of weight to lose and was doing okay before BC struck. But I have actually lost a bit over chemo, not deliberately, presumably just because my appetite has been so rubbish.. I'm sure a dietician will be helpful and there are various threads on here too. I decided to not think about losing or gaining weight during chemo and just get through it. 

@Belinda_F hope today's chemo is going/has gone smoothly? And @Gelbel sorry, I have forgotten when you start your new regime - fingers crossed it goes okay 

Hope everyone else is doing as okay as possible and can soon enjoy the spring. Love the sound of local orchards. xx

FlorrieBee
Member

Re: January 2021 Chemo Starters

Thanks @Mumboo I have been better this last couple of days. Still achey, tired, heady but all manageable. It's really strange as I thought I was sort of doing ok, then day 5 it hit me like a ton of bricks. 😱 I actually thought I had put my back out it was so painful, but pain in lots of places. I take cocodamol but like you have to balance those with other meds and was conscious of not taking too many. I guess next time I know what to expect and will be better prepared.

I don't know about everyone else, but I am so relieved when I hear that some of you on here are reaching the end of this chemo phase, you see, we can do it ladies and we are all getting there week by week! 💛🎉 @donkeywoman has finished this bit, hope you are feeling better now and all set for bloods? @Belinda_F good luck for today, hope all goes well @Mumboo last one in two weeks, it has to feel good that the chequered flag is in sight?!? 🏁 Realise we are all at different phases with further treatment but I am sincerely hoping that following surgery in June, the 13 months of Herceptin are totally doable compared to this chemo. As rubbish as this last round was, I only have two more to get through, so I think I've got this! 💪

What I have been missing for the last week is my walks. Just have not felt well enough, or had the energy but determined to get out today. It makes me feel so much better on every level of I can. The area we live in has lots of orchards, they are going to look absolutely gorgeous when they blossom and that is definitely a good incentive to get out, really uplifting! 🌼🌸🌼

Everyone has their own little wins, some days I think getting out of bed and making it downstairs as a win, today I want it to be a 30 minute walk so well see how that goes 😂 Full of admiration for those of you with young children, what a balancing act that must be and @gelbel, standing up to present, not sure i could even present to my husband and teenagers what's for supper tonight let alone stand in a room full of people, just wow!

Anyhow, I've rambled long enough! How is everyone doing, pesto, erin, lewy? It's been quiet on here, I hope some of you have had a little normality and been doing other things, but for those not feeling great, take it easy.  I don't seem to be able to tag now and there are lots of you I've not mentioned but good luck to anyone having treatment in the coming days and hope the weekend is a kind one 😊 xx

Mumboo
Member

Re: January 2021 Chemo Starters

Hi ladies, 

@tennisgirl firstly..well done on losing 12lb prior to diagnosis!  That's fab! I can totally understand why you're concerned about any possible weight gain during treatment. It's another one of the fears we all have, i think.  Definitely speak to a dietician. This is the time to take all the help that's on offer! 

I'm super impressed @Gelbel with your being able to stand in front of a load of people & give a talk! Absolutely brilliant! My chemo brain means I struggle to have a conversation using all the right words sometimes! I often end up just pointing or doing some weird charades! 😂 Best of luck with your first pax treatment today. Hope all goes well. 😘

@FlorrieBee how's your aches & pains now following your Docetaxol?  I'm a week into my 2nd Docetaxol & have coped so much better this time! I took cocodamol as soon as i felt first twinges & made sure i had it 3-4 times through out the day. Did that for a few days. So much more manageable. Apparently epsom salts is also really helpful, but i'm not a bath girl so i didn't try it.

Juggling the treatment for side effects is quite tricky. I found that both the chemo & the pain relief made me constipated, so had to factor in meds for that too! Combination of Senekot & dulcosate & lots of fluids meant it was so much better this time. It's a constant juggle though isn't it!! I have just one more left, in 2 weeks time. 🎉 

Hope all you other ladies are ok & anyone juggling kids & chemo.. I feel your pain! Got another week of the Easter hols & we've already resorted to making robots out of cardboard boxes (which my 8 year old sits in every night to watch tv.. 🤦‍♀️) & roman centurian helmets from Easter egg boxes!  😂 

Sending you all lots of love 😘

Xx