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January 2023 chemo starters

16 REPLIES 16
heartbreak
Member

Re: January 2023 chemo starters

Hi Barrett Allie 

mis there a gene mutation for Estrogen 

beatriz9364
Member

Re: January 2023 chemo starters

Hi, My name is Bea. 36yrs old. I just started on Jan 11. My treatment is 6 rounds, one every three weeks. Surgery and then immunotherapy for a few more months.  I can't wait for Dec 2023 to get here already and this to be over. My tumor they told me is highly treatable and assured me I will be cured.

After the first session (Wed) I felt fine for a few days until Sunday. I think that what bothered the most was the bone pain that comes from the Neulasta shot. Fortunately it lasted about 48hrs.

Has anyone heard about Enterade? I just bought two cases to try them for the next session. 

https://enterade.com/

I found the product by myself doing research. It pissed me off that there are products out there made so that cancer patients can have better quality of life while undergoing treatment and doctors don't say or are not aware of these.

barrett.allie
Member

Re: January 2023 chemo starters

Yes we can!!

I am sorry you’re feeling sick. When is your next treatment?

 

Hope you are feeling better now! Sending hugs.

WTAF
Member

Re: January 2023 chemo starters

Hi Barrett.allie 

 

January 12th was my start date too. Hope it went ok for you. I was fine for the first couple of days afterwards but have been feeling a bit 🤢 since then. Nothing unbearable, just an upset stomach, lack of appetite and insomnia. I definitely feel it wearing off a bit now though. 

We can do this, and hopefully encourage each other through it 👊

 

 

barrett.allie
Member

Re: January 2023 chemo starters

Hi ladies!

I too started chemo Jan., Jan. 12th to be precise :). I’m stateside. Receiving 4 rounds of AC (doxorubicin hydrochloride (Adriamycin) and cyclophosphamide) every 2 weeks then on to Pacitaxol (T) for 12 rounds weekly. Followed by surgery and possible radiation. Still undecided on double mastectomy as i can contribute this highjacker to a gene mutation who feeds primarily on Estrogen, HER-. 

I am 41, young in the cancer world so they are treating things aggressively.  Very active, overall healthy besides this nonsense.

Hoping to follow this process with others! Is this the official area for January starters?

 

hope all are well 🙂 

D74
Member

Re: January 2023 chemo starters

Thank you Geri003,

yes our chemo cycles sound similar. I have had my surgery now for chemo then radiotherapy. 
thank you for your advice and wishes x

WTAF
Member

Re: January 2023 chemo starters


I’ve now received my treatment plan and have my first round of chemo on 12th Jan - 6 in total, every 3 weeks. My drugs are Docetaxel, Carboplatin, Trastuzumab and Pertuzumab. My tumour is BIG but thankfully still stage 2 and they tell me they’re very optimistic that it’s curable. I’ve freaked myself out reading about all the possible side effects. Also the leaflet for Trastuzumab and Pertuzumab says I’ll initially have it with my chemo, and then every 3 weeks for one year. I don’t recall that last bit being mentioned to me. My plan as I recall (although my head was spinning at all the information) was the 6 doses of chemo, and then masectomy. Trying to get prepared in advance, but this is all a bit of a nightmare….. 

Geri033
Member

Re: January 2023 chemo starters

Hello @D74 🙂

I have a similar regimen as you I think...3xEC (Epirubicin and Cyclophosphamode) followed by 3 cycles of Docetaxel with Phesgo injections (my cancer is HER2+). Then surgery, hoping for lumpectomy if chemo does its job or mastectomy, and radiations afterwards.

Highly curable, but with high propensity of coming back, hence the sledgehammer approach to treatment.

Try cold capping if you can. If your hair still falls, it seems to protect your hair follicles and help with regrowth at the end of treatment.

Just relax, you will be fine. One day at a time is a good way to manage the first cycle.

check your temperature especially during second week after chemo and call hospital straight away if you feel a chill and temp goes up. Please do not wait, you are not wasting their time, they are here for you 😊.

Sending you good vibes and hugs 🥰

Shi
Community Champion
Community Champion

Re: January 2023 chemo starters

WTAF ❤️ I found taking a notebook in with me to all appointments and writing my questions diene and their answers very helpful, there can be a lot of information to digest and also it prevented me from leaving not asking all the questions I’d got buzzing round my head. Just a suggestion, it worked for me and helped me feel a bit more in control instead of the feeling of being chucked out the plane with no parachute which can be how it can feel when receiving a breast cancer diagnosis ❤️ hope that helps 💕💕Shi xx

D74
Member

Re: January 2023 chemo starters

Thank you so much. It will be 6 cycles 

  • Epirubicin
  • Cyclophosphamide
  • Docetaxel

grateful for any tips/advice 

D xx

D74
Member

Re: January 2023 chemo starters

Sending hugs to you. I would try and speak to your breast care specialist nurse as I have found mine so helpful. It definitely helps to talk things through and I have found Maggies amazing if you are in the UK. 
take care D x

WTAF
Member

Re: January 2023 chemo starters

Hi, I have my first appt with my oncologist tomorrow (29th) but have been told I’ll be starting chemo early in the new year (possibly next week), and thereafter a mastectomy. I can’t remember what the timescales I was told over the phone were - I was too busy trying not to faint at the news! Still reeling from it - aged 51, very fit, teetotal, not overweight, and generally classed as the healthy one in my workplace and amongst family and friends! Again, I can’t remember exactly what I was told other than it’s classed as early stage, highly treatable and we’re going for a cure. You’d think that would be good news but if I’ve seen one person mention that they’ve had a recurrence, I feel like I’ve seen a million. Terrified of debilitating side effects as I help care for my elderly parents (my dad is in very poor health) and I see them every day and take my dad to all his hospital appts. I see the occasional person say they didn’t suffer too badly at all, but then there are numerous stories of infections, strokes, and frequent visits to A&E and protracted hospital stays! Help! 

Kay0987
Member

Re: January 2023 chemo starters

I did four rounds of T/C. I'm in the states and it's the common treatment for node negative cancer here. Are you in the states, too? At any rate, it's quite doable with the proper medications to manage side effects. Not fun but those four sessions go by quickly and then you're done and can recover.

vdblinder
Member

Re: January 2023 chemo starters

Hello, I just found out I’ll be starting my chemotherapy TC on 1/5.  I’m so scared but only have 4 rounds so I’ll take it.  Sending prayers.

Shi
Community Champion
Community Champion

Re: January 2023 chemo starters

D74 sorry you find yourself on here, ❤️ do read through previous chemo threads too. Get your teeth checked before chemo tell them you are starting chemo and they will fit you in. Do get a thermometer to take your temperature during chemo. Do you know which type of chemo you are having and how many? If you share which you are having other will be able to pop on with tips and help ❤️ remember your treatments are tailored specifically for you, it’s never a one size fits all ❤️ get a look good feel better session booked through your local Macmillan if you want to, if you are not good capping as your trust about a wig voucher if you want. If you are not coldcapping a silk pillowcase is gentler on head too and please you might think about donating your hair to little Princess trust who make wigs for children if you wanted to, lots of us over the years sent ours before we started chemo ❤️ do everything your way in your own time ❤️💕💕Shi xx

Jill1998
Community Champion

Re: January 2023 chemo starters

Hi Dawn , welcome to the forum . I think the moderators will start an official thread for people starting chemo in January soon but hopefully people will be along to chat who are starting chemo in near future too .
@Shi can you share your wisdom about starting chemo ? X

D74
Member

January 2023 chemo starters

Hi is anyone starting chemo in January 2023? Any tips/advice are welcomed 💜 thank you, Dawn x