Tracey I my onco said if they do Chemo first they like to start with the T then the FEC, Im wondering if thats any worse or easier as I havent read anyone else say theyve had it that way round.
I now cant wait to start...I have to stop seeing patients at work tomorrow in prep for next weeks Chemo which is making me a bit sad as I love my job but needs must I guess.
Dont know about you other ladies but all I can think is I want this bloody thing out of me!!!!
Oh and I forgot to say...... What will you be doing re. hairloss? I used scarves, so that is something to look into. A sleep hat is a must because it can make quite a mess and then keep your head warm xx
Sounds like you're all ready really organized!! When is your first cycle?
In terms of purchases, maybe some ibroprofen and something for constipation/diarrhea. You may not need them but always good to have some in the cupboard.
What I always advise before starting chemo, is to be prepared for that first week, when you may not be feeling up to much. Stock up the fridge, maybe get in some ready meals, get the washing and ironing done and then that way you can sit back and rest. Maybe get some box sets?! I found that the first week I struggled with fatigue. I felt perfectly fine, just quite happy to sit and watch the TV.
Do you have anyone to support you? If anyone offers help, then take it!
Hope this helps
Just popping in to say hi!
I had chemo in 2016, so please ask if you have any questions. I will always be around and will follow the thread. I'm happy for you to PM me if you wish. I may not always have the answers but I will probably know who has!
Best wishes for your chemo, and remember...... It won't be as bad as you think.
Thanks Rosie- one battle at a time is all we can do.
Mrs MG - thanks for letting us know about the chemo talk I will be reasy and armed with my 100 questions tomorrow - was going to go alone but think it may ne nest to take my hubby along so he knows whats coming, Did the nurse gude you on where to get a wig - not quite sure where to start with that?
From looking at the forum chats (I know its tailored to the patient) but most seem to be on FEC-T chemo for 6 cycles is that the norm (if there is one)??
Is anyone having their T first and then their FEC? I haven’t read anywhere about anyone else doing it that way.
shooked it’s so hard to say this just in typing and sound genuine but I am so sorry you’re having to deal with this and Parkinson’s that’s no mean feat.
Mrs MG good luck Wednesday will be thinking of you xxx
Hi, I also will start in January probably on the 12th. I have been diagnosed in December. I will have 4x EC and 4x T and then I will have a surgery. Then I am not sure if I will have radiotherapy. I am quite anxious and have a needle phobia, hopefully I will relax a bit when the treatment will start. I haven't cut my hair yet. I think I will wait until few days before. I am not sure if I am cutting them short, or shaving all off and use a wig from the beginning. I don't want to see my hair falling out. I think I will ask for a PICC line, I have a split opinion about it, and proably need to ask more questions about it.
Good luck everyone!
Hi ladies, just popping in to give some reassurance, if I can. Re hair loss - I always said I didn't care about losing my hair. My wig was fab and looked just like my own hair. However, and this just floored me, when it came to having the shave it was a different matter. I didn't take into account how hormonal I was with the chemo. I did take precautions by having my lovely hairdresser do it so it was more impersonal, and hubby held hand, the one without the very large glass of wine! 🍷 I was glad to get rid of it as it hurt at the roots as it died off, and I was sick of waking up with a hairball in my throat!!! On the plus side, I have an extremely lovely selection of hats and scarves which I will continue to wear. I've discovered a new, more adventurous me.
I found the chemo experience much much better than I could imagine. Obviously very scared, but put at ease by the nursing staff. The procedure was simple and painless. Obviously the side effects are different for everyone, even with the same chemo. Make sure you take all the drugs you are offered, especially the anti sickness ones. I was given Emend which was fab. I have a horror of being sick, so made sure I got the best there was at the very beginning. Won't say it was a walk in the park, but will say it was doable. Good luck on your journey, ladies. We'll be looking out for you and helping you along. 🍀 X
Hi MrsMG -
Can’t believe how quickly January has come around - good luck for tomorrow and Wed. Was the chemo talk a group session?
I've had an MRI with a contrast injection last month but it was to look at a tumour on my pituatory gland (don't ask I'm falling apart 🙂 )
I've been cancelling our trip we had booked for Easter to sunny FL this week as well as our Christmas trip - we have just sold our house out in sunny FL (because of other health issues - I was diagnosed with Parkinsons at the grand old age of 43 in May) and had a cruise booked as a consolation but I dont want to go on holiday until I know the cancer is gone. So glad 2017 is gone but I know we have a tough 6 months coming up.
Tracy - I know exactly where you are coming from re living with your parents - my mum is literally a 5 minute walk away and I know its that she loves me but I have had to tell her already that I will let her know when I need her - sounds really bad but sometimes you need a bit of you time.
perhaps we can go Happy June-ish 2018 onwards!!!!
Tracey you’ve got so much too deal with, little one and your husband away. It’s hard enough dealing with grown up children emotion.
Jamesy, I think your grandchildren probably won’t bat an eye, or think it’s cool but I am sorry you are living alone I hope your family are close.
Kirsty are you doing ok? I didn’t half feel better once I knew the plan...
and finally shocked I hope you’re doing ok and healing.
Just a top tip and it really depends on what floats your boat but there are some really good and very inspiring YouTube hair loss videos. One is a Vogue one and it certainly made me feel stronger.
Lots of love ladies and hears to us getting through this without any hitches xxx
As Rosie has already said we can be scared and get through this together. It must have been an emotional day for you and your hubby.
I still don't have a date to start chemo or what type I'm having but should get that on Wednesday. I'm freaking out a bit about the whole chemo and hair thing at the moment.
Lapland must have been so magical with your little lad - they grow so fast and so its fab you've had this time over Christmas - my lad is 13 so its not so magical anymore. We were supposed to fly out to Florida for 3 weeks but I had to cancel as my surgeon wanted to get my MX and reconstruction done before Christmas - she openly said it was so she could meet the targets set for them rather than urgency but at least its done,
its ok we can be terrified together. You start on the 11th I’m the 12th not sure when Shocked starts yet but I’m guess soon as she recovers from her mx.
Im freakishly worried about the hair thing, I know I should be concerned about the cancer but in my head it’s about feeling ill on chemo or loosing my hair!! Are you having surgery afterwards as well?
I think these threads are amazing because this cancer thing can feel quite a lonely old business xx
You are so right about every appointment being a step closer to the end of all of this. I am still uncomfortable after the mx but its mainly around where they took the nodes in the SNB so in my armpit more than my chest and its weird having a false boob attached - its going to take some getting used to I cannot wait to be able to sleep in a normal position again, The real kicker is that with most surgery you get to recover and thats it but with this its dreading the next stage.
Had a major wobble about my hair today - I know its the least of my worries but its a big thing.
it makes sense too me I couldn’t wait for my oncology as soon as I knew it was chemo first. Every appointment is like a step closer to the end of this awful nightmare.
You are you feeling post mx?
October ladies I’ve stalked your thread and it’s been so helpful. Amazing the different experiences everyone has...made me feel less alone xxx
October ladies - thanks for popping over and sharing. Bit too uncomfortable at the moment to prepare anything after mx but will be sure to get my other half to start preparing 😏
glad you have a plan and can still work - I'm unbearable at the moment as I don't know what's coming weirdly can't wait for my appointment with oncology so I know what the plan is.
Hi ladies saw the oncologist today and I’m having Fec-t but I’m having the t first!!! So seminal node next week and first chemo the following week!!Feel better for knowing when but very scared about the rest!! Trying to enjoy all the simple pleasures in life at the moment as I know I might not for a while!! Onco did say I could still work though just not my normal role because I’m a Paramedic practioner and I can’t see pt’s but I can workin the office which for me is a huge thing...2 weeks and it all starts. Who else has got dates? Xx
I was diagnosed with havibg breast cancer on the 13th December .. to say I'm terrified would be an understatement but I'm determined to stay positive abd best this.
All I know at the momen is that I have to have 6 chemo sessions ... possible surgery then 3 weeks of radiotherapy... I know nothing about chemo etc ... the cold cap scares the life out of me ... but hey ho I'll face it and do my best to keep a smile on m face. A letter arrived from the hospital this morning ... I have an outpatients appointment on Friday 5th January
Hello January ladies! I've just popped over from the October thread. The waiting is one of the hardest parts because you don't know what to expect and everyone feels like that. Plodding on is really all you can do. As Cassie has said try to get things like housework and some meals done so that you can just heat stuff up if you don't feel like doing much or even for your family to eat so you don't have to worry about feeding them. I would also say don't worry about calling your onc unit if you're suffering or worried about anything as they can adjust meds and tell you what to do rather than worrying yourself silly.
you will get lots of support from this forum but also lots of laughs too which help you get through this. Feel free to pop on other threads and ask if you've got questions, we're a friendly bunch.
i start in January, got my first appointment with Oncology Wednesday then senital node the next week then Chemo. I am so worried about it...xx
Hi MrsMG and Shocked - if you look back to the beginning of the threads you’re both feeling what we all felt before we started. What will happen, how will I feel, how long will it take and a dozen other questions. All I can say is I found it more scarey beforehand than when I actually got there. The staff are great and no question is silly. Try not to let your thoughts get the better of you and talk to your BCN about any fears. Do your best to enjoy Christmas with your family and friends rest up. Pop into any of the threads, we’re all members of the club nobody wants to join and support each other through the mire. Good Luck x
Hi MrsMG - not had any date as yet but just back from the hospital, had MX and SNB last week and now have the results so I will be starting chemo in the new year. Also very unsure what to expect like you.