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January chemo starters ?

RosieH
Member

Re: January chemo starters ?

Morning ladies...

well this is all a joy. Was doing wonderful and then got a temp 38.2. Straight in to A&E which was horrifying mostly because I know them all there. 

Im a 46 year old Paramedic and I recently landed my dream job as a practioner at a Gp practice but before that I worked as a Paramedic in A&E and seeing all my colleagues yesterday when I felt so vulnerable wasn’t my best. I know it’s sounds a bit strange but I’m quite private and it was like being on parade. 

So ive got 2 children in their 20’s who are awesome my son lives in Barcelona but my daughter is just up the road with her boyfriend who’s also a paramedic  and a lovely husband who yes you’ve guessed it is also a Paramedic. My mum also died in an RTC, she was on her way back from her appointment where they had just told her she was over breast cancer!  It’s so strange how it all works out. I do feel for you Jamesy loosing someone in Trauma is a horrible horrible thing to deal with. You sound strong but I can guess some of what you’ve been through. 

My tumour is 7cm Lobular in my left breast with the twin nodes they removed showing cancer so Chemo then surgery for me. Not sure if anyone else who has still got their tumour is getting a reaction to the chemo but my boob is literally like rock and very tender, like the little b@st@rd is all angry, they did tell me there maybe a reaction. 

 

So so I digress I am now on the ward playing the please let me go home waiting game...xx

DizzyBrummie
Member

Re: January chemo starters ?

Oh and I cold cap too. Still have hair and it’s not too bad. I don’t take pain killers when I have it, i get a few ice cream headache twinges and then it’s all ok. Managed to sleep through my last 2 doses due to anti sickness medicine se if drowsiness 😳
DizzyBrummie
Member

Re: January chemo starters ?

Hi, I’m just popping in from the October thread. Saw a lot of posts about nausea. I get sick at the drop of a hat, buses, drink, fair rides, pregnancy all do for me. I told my onc and they made sure I got lots of anti sick meds. I tried to limit what I took in the first cycle but ended up feeling sick until day 17!! Onc told me to keep on top of taking them to prevent nausea kicking in. The cycles have now been better each time. I’m cycle 5 FEC of 6 and back to eating like a pig 😁.

Also, my earlier cycles knocked me for 6, in bed fir a week, but with my last two I’ve been up and about and lots more active. After cycle 2 I didn’t think I could cope with more thinking they’d get worse but they seem to have gotten easier. Keeping my fingers crossed for the rest of this and my last one.

Good luck ladies, you can do this x
marie78
Member

Re: January chemo starters ?

Crazytimes2017. I used the cold cap for my first FEC, I took paracetamol half hour before, don’t know if it helped but it wasn’t a painful experience for me just uncomfortable. Good luck for tomorrow. Xx
marie78
Member

Re: January chemo starters ?

Hi Jamesy46, yea they sent me home with a goody bag but they weren’t working unfortunately. I think once I was sick they wouldn’t stay in my system (I’m guessing). I feel much better today, even with no sleep.
Aliand, I will definitely ask them to tweak them next time. I was really scared about the operations as I had never even stayed in hospital before but they were genuinely a lot easier than this chemo process!
Also agree that stress could play a factor, even if it literally brings it to the surface.
Already feel welcome here, thank you. X
Crazytimes2017
Member

Re: January chemo starters ?

Starting my TCH chemo tomorrow peeps... Gonna brave the cold cap for my first time and see how bearable it is xx wish me luck peeps...will check in tomorrow xx
Starfire9
Member

Re: January chemo starters ?

O gosh. Stay strong. I am suffering like you and don’t know how I’ll do more of the same. I really hope you get some sleep x

Phinou
Member

Re: January chemo starters ?

Hi all,

 

I started my first round of EC on Friday. Friday afternoon and night were awfull. I have been really poorly all the weekend.Nausea so nearly unable to eat and in a lot of pain, with the blood buring on my veins, bruises hurting and feeling feverish even though I have no temperature. I can sleep only 2 to 3 hours at a time before my symptoms wake me up. I am supposed to have 8 rounds of chemo. I am not sure how I will survive this.

I went to A&E today, and got some pain killer and anti-sickness medication. I am now feeling better now, but really tired as I didn't manage to rest because of the side effects.

Aliand
Member

Re: January chemo starters ?

Hi all
FEC I had the injections filgrastim I was convinced they were giving me nasty headaches but then the last 3 I was fine ?!? So no idea really but I wanted to persevere with them. Your having a hard regime to start with. From what I know FEC is easier to manage so that maybe while we are getting out at the moment - wait til our regimen changes !
It’s hard not to compare yourself to others but the nurses really re-enforced to me how everyone’s body reacts differently to these drugs so don’t be dispondent. Also I’m fat 12 so way ahead now.
I was encouraged to keep a diary of symptoms so that when I have my next dose they can Taylor the meds they give me to suit what I’m suffering.

It must be really hard without help around, almost all the friends I had around me were made through school mums. Your daughter has probably not been in school long enough for you to have formed friends yet but it will happen. Don’t be afraid to tell people about your diagnosis as you may find that lots of other mums may be more than happy to help and support you and your daughter through this. You may even make friends due to this - how weird does that sound ! But bad things often bring the best out in people. So if someone on the playground says how are you - try being honest “I’ve had a much better day today, felt so sick all week after my chemo” or something like that. So many of us can name other people we know who have survived a cancer diagnosis and if it was another Mum I bet you’d offer help.
Must be so hard to decide about the aux clearance. I have no choice full mastectomy and six clearance to follow chemo. I think it’s easier having no choice. One of my best friends has a muscle wasting disease MND it’s been really hard watching her deteriorate over the last 12 years but I’d still rather have my breast cancer than her MND. I’ve got hope. Though I feel bad that I can’t take her out for a while, she’s very disabled and needs lifting and feeding so I can’t do that for a while.

Jamesy, oh my you’ve had it tough, loosing your husband like that must have been horrible. So glad you’ve got your daughters for support.
I can’t say mines stress related I’ve not been through anything like what you and FEC have. My dad died last year with bladder cancer and he had severe altzhimers but his death was a relief if I’m honest. I had done a lot to care for him but I don’t think it’s paid its price on me.
Don’t be too frightened. You might be ok and if not keep a diary and tell the nurses before your next treatment.


I’m 45 I have a 6cm tumour in my left breast. But it’s also spread within the breast (hence full mastectomy) and to 1 node (hence node clearance) I’m oestrogen positive her negative. Will have radiotherapy too. So lots of treatment. I’m having 8 lots of chemo most people seem to have 6 I don’t know why I’m having more. I don’t really ask much, or look things up I just tend to go with what’s recommended.

We can all do this though, it’s one step at a time. Don’t worry any further than the next day. Take 1 treatment at a time. Give yourself a treat after each chemo. A guilt free reward for getting through it. We deserve it.
Life craps on good people but I do believe that life’s crap brings out the best in most people. No journey is all rubbish. We will get bright moments in between. I feel great st the moment. If I could choose my next chemo to be this week instead of next I would. Bring it on I’m going to smash this (in between feeling like death warmed up 😝)

Love this place and all your lovely girls x
Jamesy46
Member

Re: January chemo starters ?

FEC I totally believe that about stress , we had a good life and a happy one , and Jim went to Scotland with his brother and was killed just as they reached Scotland , that was a massive massive thing to go through with my girls , 2016 my mom was diagnosed with BC and she does last April , my life has been so sad for the last three years , our daughters ( daddies girls ) and my grandchildren are the only thing that has kept me going , so in October when diagnosed I was like ‘why me ‘ !!! But I’m over that and I will not let this bloody thing beat me or put me under xxxx positive thinking , I’ve got a lot of living to do yet x
Starfire9
Member

Re: January chemo starters ?

Bless you Jamesy46. Thanks for sharing. You sound very strong! I think it helps to know why we are being subjected to this x I forgot I am Her 2 - er and pr pos. Proof my brain has gone wrong. Speak soon and take care. X

 I know this is out there but I really think that stress and sadness brought this all on.

Jamesy46
Member

Re: January chemo starters ?

Fec ! Love the name x
I don’t start till the end of the month having FEC-T but I’ve had my Hickman fitted and asked loads of questions on unit , they said I will be sent home with anti sickness stuff , domperignon or something that sounds like champagne and will tweak if needed , is there anyone you can call tomorrow and get some anti sickness stuff?
More on me :
Grade 2 32mm found on mammogram , 2 WLE done , snb done but no lymph nodes positive xHER2+ so that’s why have to have chemo as originally thought rads now it’s both
Im 55 a widow , hubby killed in RTC in 2014. Four grown up daughters and 7 grandchildren , I live on my own so it’s scary when there’s no one to ask even a daft question x kids are fab so will be there almost everyday if I need them x
We can do this ladies and by sharing our side effects and experiences we can help each other immensely , I have already learnt so much off the forums x
Starfire9
Member

Re: January chemo starters ?

Hi again, lost track of what’s going on with everyone but you all seem to be okay from what my brain can take in...it’s a bit foggy. I can’t believe that some of you are managing to get out of the house x

 

I’ve been in bed all day following sickness attack last night that left my shaking for ages. I’m worse it appears after the bone marrow injection I have in the evening. Is anyone else having these injections...

to prevent me being Nutrepenic. 

 

Yes I had TAX followed straight away by Carboplatin. The thought of it again makes me panic. 

 

What meds can you recommend to ask for. What is this EMEND I’ve heard mentioned.

 

best x

 

abit of background on me.

 

Im 48 with a five year old daughter and a husband. I’ve kept this low key so no one near to help apart from my lovely neighbour. I lost my Mum suddenly to brain cancer whilst pregnant and she would have been an absolute trooper with me now. My dad on the other hand is a disappointment having remarried and moved on instantly and can’t even offer to walk our dogs or help out at all. His new wife has taken everything and doesn’t allow him near us.

i had a Grade 1 17mm Cancer removed by WLE (two operations) but the tumour showed vascular invasion and cancer deposits 2.2 mil (just positive) were found in one of my two Sentinel Nodes. They’ve offered me AUX clearance but have yet to decide as I have a muscle wasting disease and mobility issues and rely on my left arm etc. I’m hoping chemo will blast my nodes. That’s why I’m having Tax and Carboplatin as opposed to FEC because of my muscles and risk to heart.

Aliand
Member

Re: January chemo starters ?

Oh Marie that sounds awful you poor thing. It’s fine to be a stalker by the way.
I was sick on day 1 but just queasy after that. They’ve told me that they will change my anti sickness next time around. My friend who was awful with her day 1 and 2 much like you was given a different anti sickness the next time and was never sick again she said it was like a miracle. So be assured it’s highly likely that you won’t go through this again.
My mastectomy and auxiliary clearance will happen after chemo must say I find the idea of that more daunting than the chemo ! So well done on getting that out of the way x hope your day improves. Just take it easy you will get over this I promise xxx
Jamesy46
Member

Re: January chemo starters ?

Hi Marie , did they not send you home with any meds for sickness or were they just not working x
marie78
Member

Re: January chemo starters ?

Hi, I thought I should ‘show my face’ as I feel like a stalker. I had mastectomy in right Breast end of October and full lymph node clearance due to one ‘dodgy’ one found initially 4 weeks later: I am now on Day 4 of my first FEC-T cycle. First night home I was very sick and all day the following day sick every half hour until my GP finally agreed to come and give me an anti sickness injection (after a lot of fuss and a phone call from the Chemo dept!). Day 3 I felt queasy but wasn’t sick and very delicate. A bit like the day after the night before! Today I feel the same. An also struggling to get to sleep. Xx
RosieH
Member

Re: January chemo starters ?

Thanks Dealdoh...so you’re clearly on breast cancer round 2! Blimey!! Hats off to you all brave ladies. Fec you’re in my thoughts xxx

Dealdoh
Member

Re: January chemo starters ?

I love that you ladies can make me laugh on here.  So glad I wasn’t standing in that queue Rosie. 

I asked about your surgery as I had a double mastectomy in November and because there was evidence of spread into left axillary nodes I had total axillary clearance on that side.  I had already had total right axillary clearance following a WLE on the 16 years ago.  I know lymphoedema is always a concern but you just have to adjust and be careful.  Ive managed perfectly well for the last sixteen years.  It is now slightly more problematical as the potential is for lymphoedema in both arms, so unless it is an emergency, blood will need to be taken from somewhere else (usually feet) and blood pressure on the leg.  I have already bought a couple of lymphoedema medic alert bands, just in case for any reason I can’t warn people off!

Jamesy46
Member

Re: January chemo starters ?

Reading all these posts is filing me with confidence , I’m also going to keep a diary , I live in my own , but my daughters are near if I need them , I was totally dreading starting treatment but these posts are lifting my spirits ladies , and all the tips I’m writing down too xxxx thankyou x
Unicorngirlmummy
Member

Re: January chemo starters ?

Hello, I’m a December chemo but just reading the posts on here. FEC...love the name!! 😂 You’re really struggling ☹️ Please, please call your unit, if you’ve a picc they can give you something IV or even an injection to help with your nausea. Your oncologist will definitely adjust your meds as you’ve been so ill. I had chemo last year too & the first cycle they sent me to a&e as I was vomiting so much. The second cycle they added akynseo which you take an hour before chemo & I didn’t vomit again! Still felt nauseous & had to take anti sickness tablets but that tablet is great! As the other ladies have said, you will start to feel better soon but please don’t suffer xx
RosieH
Member

Re: January chemo starters ?

Hi Dealdoh...yes that’s what they’ve said which is a bit of a bummer but not the end of the world!!

im guessing having it post Chemo means at least I can’t get cellulitis when my immune system bows out.

Well done Tracey on the trip out...I’m with you dealdoh on the feeling a bit fraudy especially reading Fec’s reattion. I’m wondering if it’s because I’ve started with the T and not the FEC. 

Fec you’ve got a baby too bless you, bloody disease doesn’t discriminate does it...hopefully by Monday you may have settled a bit. 

I just popped out to do a few bits but unfortunately my tummy is a bit rumbley shall we say which is resulting in a certain aroma...I may not feel too bad but I’m not entirely sure the same could be said for anyone in the M&S queue behind me!!! Xx

Tracy12059
Member

Re: January chemo starters ?

FEC in hell you are really suffering bless you. Sounds absolutely awful. Have you called to see if they can give you any alternative anti sickness meds? Was that the first docetaxel for you?
RosieH - yes I managed to get to the park for an hour with my sister and her children. Was lovely for my little one. Yes it’s hard work with youngsters but it also gives you something to focus on. I’m staying with my parents at the moment as my hubby works abroad and isn’t due home until next Thursday. They are absolutely fab but it breaks my heart 💔 that they are watching me go thorough this. I’m also 45 and so used to being active and independent so this has really clipped my wings.
Aliand - yes I want to try and get out walking as much as I can just to keep me active and give me a focus. Fingers crossed I can continue to do so.
Love to you all ladies xx 💪💖
Dealdoh
Member

Re: January chemo starters ?

Hi Ladies

 

Im day 2 and so far so good.  Slept well last night and while I woke with a headache it was only mild.  Trying to drink loads and taking my medication like a good girl.  Feeling a bit of a fraud at the moment, as I seem to have got off very lightly but waiting for the s@#*t to happen. 

hugs for those who are not faring so well and Aliand thanks for the positive words as usual.  

Rosie when you talk about radical do you mean mastectomy and total axillary clearance.

Aliand
Member

Re: January chemo starters ?

FEC as a friend told me, dont worry in a few days you will feel so much better, I hung onto that and believe me it was true. I'm keeping a diary of how I feel everyday, they suggested I did and I think it will be god to look back on.

I'm on different treatment to you but on day 4 I was suffering from headaches, murky brain, lethergy, and horrible constipation. Day 5 it was lifting and by day 6 I was almost back to normal. Took to about day 7 for tastes to be more normal though water is only just tasting better as of yesterday. I'm now day 11 and I'm totally back to myself, housework and taxi driver. The only thing I'm not doing is mixing with others. DH is so worried about me picking anything up as theres so much flu around and some of it isnt covered by the flu vaccine and also pneumonias that are landing healthy people in ITU. So amazon and ASOS are my best friends and I send my teenage kids or friends out to get what I need.

 

The other advise my friend gave me is when people offer to help use them. People want to help and feel good that they have done something for you. If you keep saying no some will stop asking. If youve people offering to do school run take it up. If people will take your daughter to play after school say yes please. Don't think you have to do this on your own you don't. And this is coming from the woman who used to bend over backward trying to do things for other people but NEVER asking for anything from anyone unless I was absolutely desperate. I'm learning.

 

Tracy12059 hope you got to the park, my daily walk is a lifesaver getting out and about.

 

 

There is light at the end of the tunnel with each cycle. I much less worried about my second dose. In fact I'd have it this week if I could. Get them over and done with, it's going to be a long 24 weeks !

 

Keep in touch girls and keep smiling xx

Starfire9
Member

Re: January chemo starters ?

Hi RosieH,

 

thank god for my husband who is doing everything for my daughter who is 5.

 

real test starts for me on Monday when he goes back to work!

 

Let me me know how you are tomorrow x

RosieH
Member

Re: January chemo starters ?

Crikey Fec...bless you. Only day two over here. 

Tracey I feel for you Mummies so much. Mine are grown although I’m only 46 and it’s hard to watch their pain. 

To be looking after babies must be so so...I don’t know the word but my thoughts are with you xxx

Starfire9
Member

Re: January chemo starters ?

Day 2: steroid red face

Day 3: Vomitting, stomach cramps, nauseous

Day 4: Nauseous, exhausted, pain in bones from injections...so bad!

 

 

Diet of biscuit, greek yoghurt with Manuka, soup and plain bread.

 

anyone else on day 4?

Tracy12059
Member

Re: January chemo starters ?

RosieH that’s fab news!
I feel exactly the same. The bright red face and neck are apparently a side effect of the steroids - I called the oncology unit yesterday to double check. I feel almost flu like today - my hips and lower legs ache! I’ve got a slightly fuzzy head too but once I get some fluids inside me that seems to lift they feeling . I also woke up in the night with a horrific taste in my mouth and a sore tongue 😛. I think I’m a day ahead of you so will keep you up to date. Hope you have a good day - I’m going to try and take my little boy to the park for an hour - fingers crossed!!! Hugs 💖
RosieH
Member

Re: January chemo starters ?

Hi ladies

First T down and feeling ok. Not like I want to go dancing ok but not horrific. Strange taste in my mouth and very red cheeks!! Found out yesterday all organs and bones are clear but my Sentinal nodes were positive for cancer. Apparently no change in treatment but when I have surgery it will be a radical!

However back to Chemo and one day at a time it felt awesome to get started on the treatment...hope all you other ladies are doing ok? Xxx

Jamesy46
Member

Re: January chemo starters ?

What’s everyone’s hickmans like? I must if turned on to side in night and I’ve dressing had moved and the stitches on the exit side were exposed , so I’ve just wanged another dressing over it ,no bleeding but was worried about the air getting to them , it looks ok so may ring Monday morning and tell them as I’m not due back till Friday for a flush
Dealdoh
Member

Re: January chemo starters ?

Ahh Jamesy that made laugh - you sound like a woman after my own heart.  The nurse said it depends on the type of chemo and maybe the way it is administered by I got the impression I was good to go if I wanted to after the three days. Aaparently alcohol doesn’t react well with the antisickness stuff. 

Aliand, the nurse said the injections affect the white cell producing bits of the body and mentioned the long bones and hips.  I still miss the nursing but I wouldn’t go bac as it is now.  I think having been a nurse has helped prepare me a bit for this.  Would you say the same.?

off to bed now to try and catch up on some zzzzs.  Night all - hope it is a good one x

Aliand
Member

Re: January chemo starters ?

Is everyone on 6 cycles over 18 weeks. I’m being given 8 cycles over 34 weeks. I’ve 1 lymph node involved and there’s evidence of spread within the one breast so I’m assuming that’s why. Must ask.
Dealdoh I was a nurse once upon a time too.
I thought the injections were giving me headaches but the last 3 I didn’t get a headache so ?
Jamesy46
Member

Re: January chemo starters ?

I can cope with that I thought you meant the whole 18 weeks , swoon
Dealdoh
Member

Re: January chemo starters ?

Thanks Aliand, the cake was good, left over from my birthday on Wednesday and I’m keeping my fingers crossed.  I’m not particularly worried about giving the injections (was a nurse in a previous life) just the possible aches and pains.

Sorry Jamesy.  One of the chemo nurses told me no alcohol for 48hours post chemo and another nurse said no alcohol while taking the anti sickness medication (so three days I guess).

Jamesy46
Member

Re: January chemo starters ?

Oh no ! Can i not have a glass of wine !!!!
Tracy12059
Member

Re: January chemo starters ?

Hi FEC
If the drugs they have given you aren’t working then yes definitely request it and the domperidone which reminds me of champagne!!! So far they have worked for me although I know it’s still early days! I’ve felt a bit under the weather today with a fuzzy head, extreme tiredness and feeling like I’m jet lagged. I also woke up with a bright red face which apparently is a side effect of the steroids! I looked like I’d been on holiday and forgot my sun cream!
Hope your feeling better this evening xxx
Starfire9
Member

Re: January chemo starters ?

Kirstyp86 how are you feeling? x

Aliand
Member

Re: January chemo starters ?

Well done Deldoah the battle has commenced. Glad it all went well let’s hope you sail through the next week. If not don’t worry it won’t last x
I had filgrastim injections and they were very easy to give.

You’ve not spoiled it with chocolate cake / that’s a well deserved treat x
Dealdoh
Member

Re: January chemo starters ?

Well first one down - yayyy. All went well and feeling ok at the moment.  I have the same medication as you Fec, hope it works.  My hubby made me an omelette when we got in from the hospital,and then I spoiled it by having some chocolate cake.  I hope that wasnt a mistake!,trying to drink plenty but oh my I would love a glass of wine but I do know that that is a no no.

 

Was also given the GCSF injections, which I have to self administer for five days starting on day five. Yuk

 

Glad and to hear that your tooth is feeling better Aliand

 

onwards and upwards ladies x

Theresa47
Member

Re: January chemo starters ?

Hi there, i hope you and your mum are doing ok? What is the Alice  band for with the cold cap?


@Confuseddaughter wrote:
Hi everyone...

I've been bit quiet on here for a while but mum starts the second part of her journey this week so thought via me, she could be part of this. Lumpsectory done back in November, lovely Christmas now time to start!

Tomorrow she has her first dose of herceptin so it's a good few hours at the hospital tomorrow we are told for observation, then Thursday starts chemo, as she is her2+.

Bit surreal that this day we knew was coming is here... mum is having paclitaxel weekly for 12 weeks and herceptin every three weeks.

We have been following everyones great tips and support, mum has been taking the manuka honey since diagnosis. We got it from holland and barrett, the 24+ one, highest concentration, it's a bit pricey at £55 but they have a penny sale on so you get two large pots for £55 which helps and she has a spoon a day! My sister dad and I have all had a cold the last month and mums the only one who hasn't! Think we need to start taking it!

Lots of deliveries in the post this week, paxman shampoo and conditioner, hair nets for sleeping in, silk pillowcases which are meant to be better for the scalp, eyebrow stamps (!), wide comb,

@Confuseddaughter wrote:
Hi everyone...

I've been bit quiet on here for a while but mum starts the second part of her journey this week so thought via me, she could be part of this. Lumpsectory done back in November, lovely Christmas now time to start!

Tomorrow she has her first dose of herceptin so it's a good few hours at the hospital tomorrow we are told for observation, then Thursday starts chemo, as she is her2+.

Bit surreal that this day we knew was coming is here... mum is having paclitaxel weekly for 12 weeks and herceptin every three weeks.

We have been following everyones great tips and support, mum has been taking the manuka honey since diagnosis. We got it from holland and barrett, the 24+ one, highest concentration, it's a bit pricey at £55 but they have a penny sale on so you get two large pots for £55 which helps and she has a spoon a day! My sister dad and I have all had a cold the last month and mums the only one who hasn't! Think we need to start taking it!

Lots of deliveries in the post this week, paxman shampoo and conditioner, hair nets for sleeping in, silk pillowcases which are meant to be better for the scalp, eyebrow stamps (!), wide comb,Alice bands for the cold cap and have been told that whatever you do reg the cold cap, just make sure it fits right!

I know I'm not going through this myself but have been there every step with my mum and am always reading everything posted on here, it helps. Was thinking this morning, of all the emotions felt the last few months more so at the time of diagnosis, feel like they are resurfacing a bit and try to not get upset but we are ready for this now. Also will show mum the responses and comments from everyone so she knows she's not the only one! (She's not too technological!)

Thinking of you all and here's to the next few months. Reassuring knowing you are all out there going through similar experience and I think when mum goes to the ward Thursday she will see that herself.

Take care everyone and if starting, sending you hugs and support

Xxxxxx



I know I'm not going through this myself but have been there every step with my mum and am always reading everything posted on here, it helps. Was thinking this morning, of all the emotions felt the last few months more so at the time of diagnosis, feel like they are resurfacing a bit and try to not get upset but we are ready for this now. Also will show mum the responses and comments from everyone so she knows she's not the only one! (She's not too technological!)

Thinking of you all and here's to the next few months. Reassuring knowing you are all out there going through similar experience and I think when mum goes to the ward Thursday she will see that herself.

Take care everyone and if starting, sending you hugs and support

Xxxxxx

@Confuseddaughter wrote:
Hi everyone...

I've been bit quiet on here for a while but mum starts the second part of her journey this week so thought via me, she could be part of this. Lumpsectory done back in November, lovely Christmas now time to start!

Tomorrow she has her first dose of herceptin so it's a good few hours at the hospital tomorrow we are told for observation, then Thursday starts chemo, as she is her2+.

Bit surreal that this day we knew was coming is here... mum is having paclitaxel weekly for 12 weeks and herceptin every three weeks.

We have been following everyones great tips and support, mum has been taking the manuka honey since diagnosis. We got it from holland and barrett, the 24+ one, highest concentration, it's a bit pricey at £55 but they have a penny sale on so you get two large pots for £55 which helps and she has a spoon a day! My sister dad and I have all had a cold the last month and mums the only one who hasn't! Think we need to start taking it!

Lots of deliveries in the post this week, paxman shampoo and conditioner, hair nets for sleeping in, silk pillowcases which are meant to be better for the scalp, eyebrow stamps (!), wide comb,Alice bands for the cold cap and have been told that whatever you do reg the cold cap, just make sure it fits right!

I know I'm not going through this myself but have been there every step with my mum and am always reading everything posted on here, it helps. Was thinking this morning, of all the emotions felt the last few months more so at the time of diagnosis, feel like they are resurfacing a bit and try to not get upset but we are ready for this now. Also will show mum the responses and comments from everyone so she knows she's not the only one! (She's not too technological!)

Thinking of you all and here's to the next few months. Reassuring knowing you are all out there going through similar experience and I think when mum goes to the ward Thursday she will see that herself.

Take care everyone and if starting, sending you hugs and support

Xxxxxx



Xx

Starfire9
Member

Re: January chemo starters ?

My meds for sickness are, Ondansetron x 3 per day, metoclopramide x3 per day and dexamethasone before the day, on the day and after. It’s calmed a bit but still feel yuk. Should I request Emend? 

Crazytimes2017
Member

Re: January chemo starters ?

Had my Hickman line in yesterday. Bit sore today but not too bad. All set for chemo on Monday. Just want to get on with it now.
Got some hats and scarves through but gonna cold cap too and see how it goes.
Jamesy46
Member

Re: January chemo starters ?

Glad your all doing ok ! Fec I hope your sickness calms down ,
After my breakdown yesterday I went to chemo unit to get line flushed , first time and I was a bit anxious but the staff were lovely and answered loads of questions for me so put my mind at rest x
Hickman was bleeding last night but I rang and they said it was normal , loads better today
Got my appt for next week to get Wendy wig !
Tracy12059
Member

Re: January chemo starters ?

Hi FEC

What anti sickness meds have they given you? I have had some that I had to take a day before the chemo started, the day of the chemo and this morning as well as Emend orally before the chemo started then Introveneosuly and sent home with one for today and one for tomorrow then been sent home with domperidone for 5 days or as long as I feel I need them. So far so good on the sickness front although I have had a few tummy cramps. I’m trying to eat light small meals but also drinking loads of water (2 litres of I can) tonflush it through. Hope you soon feel better - nothing worse xxx 😢
Aliand
Member

Re: January chemo starters ?

So sorry you are all feeling so sick it's just the pits isnt it, but it won't last I promise. My nausea lasted several days but I only vomited a day. The awful taste in my mouth coupled with the nausea gave me no appetite at all but I made myself eat small amounts. I think nutrition is really important to repair all the damage done by the chemo so I'd suggest you try to eat small amounts of healthy food, maybe soup for example. I found muller yoghurts a lifesaver as they tasted ok and the coolness and smoothness was really great. Also keep an eye on your bowels I got really constipated with the anti sickness meds - another reason to eat and drink.

 

My tooth is sooooooo much better today, though I'm taking regular brufen as well as the antibiotics and my temp was 37.3 this morning so I hope I'm not brewing something. Cant believe I'm not more tired actually.

 

 

I've been online looking at scarves, thinking the hair will probably go next week and I've a couple of things but want to be prepared. Not heard anything from the wig guy yet.

 

Time for my daily constitutional sending you all hugs xxx

 

Starfire9
Member

Re: January chemo starters ?

I had a conversation with the doctor who gave me some other anti sickness meds. Seems to have calmed down 65% but still have tummy cramps, can anyone recommend what or if I should eat IF I get hungry. Thanks. I’m in such a state. How is everyone else today x

Dealdoh
Member

Re: January chemo starters ?

Hi Tracy.  Finally managed to drift off at just gone five. Glad to hear your night wasn’t too bad and hope your day is the same.   I’m thinking it must be that much more difficult when you are trying to deal with this AND you have a young family.  At least it is just my hubby and I at home, our daughter is married and lives with her hubby and 9 month old about an hour away and our son emigrated to Canada in October of last year (😢).

i will let you know how it goes.

Fec - are the anti sickness pills helping?

Starfire9
Member

Re: January chemo starters ?

Morning,

 

hope per you are all coping. Bad night for me... awake at 4am with vomiting and stomach cramps. Went off for a bit but now back again. Have taken my anti-sickness meds too. Xx

 

Starfire9
Member

Re: January chemo starters ?

Morning,

 

hope per you are all coping. Bad night for me... awake at 4am with vomiting and stomach cramps. Went off for a bit but now back again. Have taken my anti-sickness meds too. Xx

Tracy12059
Member

Re: January chemo starters ?

Morning dealdoh
Hope you managed to get some rest. My wound was really tender too and it turned out I was allergic to the dressing and had blisters starting to form. They still went ahead with the chemo and the stitch in my neck has to come out on Monday. The remaining 7 around the actual port are to be taken out at my next chemo session on the 1st February.

I had a fairly good night waking on and off and took another anti sickness. Have woke this morning with a slight fuzzy headache but nothing to serious at all. Will be getting back into the fluids straight away to keep trying to flush it all through me. Going to walk my little boy to school for a bit of exercise then chill out.
I hope today goes well for you and you come away feeling a lot more relaxed 😎. Please let me know later how you get on. We can kick the butt of this - strong 💪 women xxx 💖