T1 day 12 (? we count the day it goes in yeah?) and although I feel better I wouldn't say I feel great, low energy and still not great taste which makes me feel a bit sick - anyone else still using anti-sickess this far along?
Be careful Jamesy, I found days 5 - 10 hardest!🐟
Aliand, I'm wondering if you're having a smaller dose of 4? Might explain your milder SE's, ooor maybe you are Wonder Woman?! They might reduce mine yet...woke up on Friday and my hands were red, swollen and painful so I went in to see the chemo nurses who all seemed to think it was related to the T and said I should take some pics to show onc on Thursday. Said she'd probably make some changes to the treatment plan 🤔
Wow Rosie, can't believe you're finished! And Dealdoh will be next 👍 You should have a read back from the beginning of this thread to see your journey, you should be so proud - we all should (I don't yet but I'm sure I will once I'm done!)
Shocked, I started to lose my brows and lashes while on EC so just waiting for the rest to depart. I'm already using brow products (L'oreal micro tattoo and brow pomade, both very good) and I've got my LGFB session on Tuesday, hopefully it's better than some other's experiences.
I haven't lost any feeling in my fingers thankfully, but that could change next time round considering the state of my hands already. I do have a bit of numbness in one of my heels tho 😕🐠
Jamesy hope things remain goo dish for you and you breeze through this round xx
MOAN ALERT My fingers are getting worse I can’t get pills out of.a blister pack now not sure if this is normal they are prickly but there is a lack of feeling on the tips and the nails are sore I’m just constantly massaging with lots of hydromol on them in the hope I’ll get some feeling back - will phone the unit tomorrow just so they can make a note.
Mouth is virtually normal now just one blister left but my throat is still a little so so think there may still be a few sores left in my throat, typically everything will look fine by the time I see the Onc on Wed he’ll think I am just moaning at him again I just hope he will consider changing the dose.
Aliand that’s not fair re. hair.
Need a distraction today - hmmmm
Hi Mackneesh,I’m om taxol weekly for most of the summer.....I find day 1 and 2 are ok(don’t overdo stuff on day. 2 as I did and it was fatal...take it easy)
I find I’m queasy most of the time, but not sick, was advised to graze on tiny snacks all the time and that does seem to work...was given drugs which would help, but then can’t drive so have mostly avoided those.
Sore mouth - this comes in on day 3, but I use mouthwash given to my by the hospital now and rinse mouth every time I have eaten food and at bedtime.
bowels, yes tendency to get constip, but I now do try to drink about three litres of water a day, intake 500 mls bottles with me and try to keep track...also I drink jugs of decaf tea rather than mugs,....just to keep count.and bran at breakfast seems to work..
sore fingers, dry skin, I use aveeno at least twice a day.
Someone mentioned losing eyebrows...hasn’t happened yet on taxol, but it did on Eribulin...I went to a macmillan...’look good feel better course’
these are run by beauty therapists, who give you a BIG bag of famous makes , makeup and demo exactly how to replace eyebrows with make up....really good session to do! All free.
Very best wishes to you Mackneesh and everyone else on Taxol or other....there are food guides for this drug which I posted before....they say,, no caffeine any source, for one thing -will see if I can find them
Shocked...Fec has stolen most of my eyebrows. I have some random stragglers. I bought real hair stick on ones!!!! Don’t rush and get them it looked like two caterpillars had taken up residence on my face!,
My hair started to grow back around the time of my second T.
Have no ladygarden hair, no leg hair but normal arm hair...what’s that all about!!!
Macneeth...T takes longer to kick in than FEC so make the most of day one and two...then use painkillers if you need them don’t just soldier on...take care of yourself xxx
Hello Jan ladies,I have popped over from the Feb chemo starters hoping for some top tips please.Done the Fec😁but due to start T soon.Survival advice greatly appreciated xxx
My nails hurt when I touch them at the moment so not actually sure whats going on there I daren't open tins etc for fear of pulling at them
Eyelashes are also thinning but my head hair isn't growing like the Onc said it would on T, maybe I'm a bit early for that - I was warned about the Uncle Fester look by one of the ladies from the Oct thread I think its still a bit weird looking in the mirror though.
Shocked, about 60% of my eyebrows and 50% of my eyelashes went quite soon after the first T. Luckily my eyebrows were thick to start with so i’ve still got enough to frame the face. I have an interest colour scheme going as my face is always very very slightly tan and where the head is bald looks white - makes it look like I have a super super short white shave. My nails are buggered unfortunately.
Woo hoo Dealdoh you’re hot on my heels!!!! The sun is shining and the end is in sight....
Michelle I’d just say the same as all the girls...in a few days you will start to surface and hopefully one week 2 and 3 you just carry on normalish life...the good part is you learn to absolutely love what it’s like to feel well.
Starfire...any news on your decision yet? Xxx
Well done Michelle on your first - you are on the road 1 ticked off the list xxx
Dealdoh - yayyyyy 1 more to go and you're done thats got to feel as if the end is in sight. Positive thinking - Second T is going to be a better experience for us all xx
Morning all. Second T down yesterday. Feeling ok so far, although start the dreaded injections later. One more cycle to go 🎉 🎊 🎉 on 27th April then hopefully that’s me done with chemo Yayyyyyyy
Well done Michelle, you’re now on the road and it gets shorter with each step you take x
Thanks Shocked, your experience sounds awful, it is very scary when you are told to avoid bugs and then are put in that situation. I'm sorry you have had such a sore mouth and throat, sounds really horrible, so glad its healing now for you x
Just catching up with all the posts as I have just come out of hospital too. Glad everyone seems to be improving now but sounds like a tough time for everyone. I had my first T on 29th and became very achy on the 3rd day and 4th day couldn't get out of bed all day, but by tea time I tried getting up and my husband helped me downstairs. Started to eat at the table but then came over all funny and nearly blacked out. Took temperature and it was 38.4 and triage said I had to come in. Blood count went down to 0.7 and was put on iv antibiotics. Woke me up in the night to say they had grown a very unusal bug in my blood and needed to see which specific antibiotic would treat it. Day 3 they said they needed to move me to oncology ward to keep a close eye on me and the porters came and got my bed and said we are heading for the long stay ward. They left me in a ward with 4 beds, 2 of which the patients were coughing badly. I got very upset and wandered off to find a nurse, turned out I was only on the long stay because thats where a bed was available and my blood count had actually come back up, so a little communication would have reassured me instead of panicked me, but I know how busy they are.
Rosie - we are all cheering you on through your last session, its the start of the end of this bumpy treatment for all of us so its great to see one of us complete chemo, and we will all be here right through to the end with you Aliand. My last should be the 8th May but as you say things can get delayed easily enough just hoping it isn't. We totally need to wait for you to catch up before we meet!!
I was only told to wear the stockings for 2 weeks oh dear I really should have known better- :S The shorts and surgical stocking look could be the next craze.
Aww Jamesy try to stay positive we all have everything crossed for you that T goes easy on you lovely . As Aliand said don't wait with the mouthcare my mouth deteriorated so quickly I literally woke up on day 4 (typically good friday so the unit was closed) with a tongue completely covered in ulcers and blisters on the insides of my cheeks so if you start now you might avoid any soreness. I have to say though I am really prone to mouth ulcers and throat infections (probably because attractively I breath though my mouth when sleeping) so my chemo nurse yesterday said that its the chemo taking advantage of my weaknesses. T apart from that has not been too bad sore finger tips but the aches and pains not as bad as I anticipated,
Rosie, we will all be doing a little happy dance for you as you finish, it's great that the finishers are starting, I think I'll be the last 30th May is the planned date of my 8th but it could change so easily and I suppose it's likely to get put back a week at some point.
I've realsied that I'll be wearing pressure stocking for the whole of the summer - oh great, why is it the little things are the things that annoy the most ?? Pressure stockings for those that dont know are long white thick tight socks that prevent blood clots, it's really really important that we wear them for 6 weeks after surgery. Don't skip them those who have surgery coming up, np point going through this hell only to end up with other problems ! So now hoping we dont have a heat wave or I will swealter ! Long baggy cotton pants for me it is then - another excuse to go shopping !!
Michelle honey, gosh that is horrid to have in the back of your mind but look how well we have managed and its not been without its problems there have been allergic reactions amongst us, but the efficient and dedicated hospital staff get us all through. Like Rosie said things have changed so much in 20 years
No idea if September will suit. My surgery is planned 19th July - well penciled in anyway, I will have rads in autumn but dont know when, how long after surgery do they do the rads ? Shi ? I'm not worried if I'm the only one not finished when we meet, it's probably impractical to wait for me to catch up.
Just taken dd out for lunch as the boys are off camping, still cant taste anything its so frustration.
Jamesey, start that mouth care now. My tip from a friend whose done this before was to keep mouth care going all the way through T even if just once a day. I followed that the day I started T and though its been sore and tingly so far I've not had any ulcers. I'm also eating pineapple. My se started day 3 but really have been quite mild in comparrison to everyone else on here it seems, I hope you take after me ! The sore nails started day 3 too but they are not too bad. I started taking brufen day 3 but not taken any for last 2 days, I'm achy but not too bad.
keeeeeeeep swimming x
Just realised Ive missed pages of forum somehow!!!
Shocked glad youre home lovely and I hope you got the McFlurry.
I live outside Peterborough and right near A1 and train station so happy to get anywhere really.
We could do like really early September as soon as kids go back...I did think August but so many ladies with little ones to think of.
Im open to anything really...
Heres a weird one, just been for my pre chemo apt for the last session!! Doc said right youll see radiology next probably after your surgery...I asked when I saw Oncology again and he said we will give you your Tamoxifen to start after surgery so we will see you in about 6 months!!! I wanted to say but whos going to make sure my cancer doesnt just come back!!
Then I realised this is it this is how it works!!!
Am ready for the last session now...sorry girls I know Im the first finished but I will still be here. Would miss everyone too much and life on the raft xxx
Hi Michelle, we have all worried about having the chemo and if you have “History”, on top of that, of course you will be more worried, but chemo treatment has changed soooo much since your aunt was treated and I believe it has improved hugely.
Glad things are on the up for you Shocked. September might not work for me as we are hoping to go to Canada to see my son around that time, but no definite arrangements made yet. I live in Kent by the way.
September sound good to me hopefully we will all past the finish line - where is central to us all then? my geography isnt the best who's furthest North, South, East and West??
CT abd Shocked sending you lots of healthy hugs...
Went to me LGFB yesterday and it was brilliant.
So nice to be in a room full of people that understood.
One lady in her sixties burst into tear about her lack of eyebrows and lashes. She started off so bright and funny then all this emotion burst out of her. Was very moving.
I didnt get a chance to offer her a ride on our raft!!
It the spirit of meeting up when life is calming shall I propose September as first date...thinking we should all be finished by then?
Any other suggestions greatfully received
Lots of love xx
Aliand - the mouth is a lot better it started healing pretty quickly one they started th IV antibiotics and a nurse from the chemo unit came down with some gelclair yesterday morning to use 4 times a day - A&E kept trying to give me chloroseptic but it was so painful I was in tears it was like pouring acid in my mouth.Still sticking to soup and ice cream at the moment.
My Onc is on holiday until next week so don't know what the plan will be for my next T the nurse mentioned maybe a reduced dose but said to just talk it through. She also said that the first T is normally the worst so if that is the case hopefully your remaining 3 will be gentle on you if you've not found this one too bad.
Shi - a little crazy is good for us we love it xxxx
Thought I'd share something I found amusing whilst in A&E - the idiot in the bed next to me was throwing things at nurses and verbally abusing them (its so unfair that the staff are subjected to that plus there was a little one in as well and it was taking them away from treating those of us that needed it) anyway they got security who managed to talk him down - what was so funny was that the nurse who he had abused then had to give the guy an enema (KARMA) - oh how he screamed, I hope she wasn't gentle with the no mark!!!!
we had to get away for a long weekend... one perk of not sleeping when you are staying opposite the sea xxx
hope you have a good day ladies xxx I think I can see some of you swimming out there,