Thank you kind ladie and Shi I might ring them tomorrow about maybe some reflexology or something. Moomoo you are so right it’s hard to know where you got fit any more bursts of emotion in!!
I know I never realised at the start of this that getting over it was almost as hard as getting through it...lots of love to all this Sunday morning xx
Hi Shocked and Rosie,
So sorry that you are both feeling low. We have all been through so much but hopefully as our hair grows back we will feel more like our old selves again. Love and hugs to both of you.
Love those puppies Rosie.
Hi Rosie and Shocked, just wanted to let you know that I'm thinking of you both and to reiterate what Michelle has said xx
Shocked your post just set me off...I lay there last night with my mans hair, fake boobs, no nipples and hot flush and couldn’t have felt less like a woman if I tried. On a good note I took with dread my first Tamoxifen and actually woke up feeling better than usual! So feeling a little more positive today...sending you huge hugs xxx
So after all the horror of the chemo not working and you might need more or you might need Zoladex and other drugs I can’t pronounce I am back to Tamoxifen! Onco says she thought about it and it offers the best protection for my peri menopausal state...so now I’m with you Shocked apart from Radiotherapy and Tamoxifen that’s me done until 14th December 2018...which is strangely exactly 1 year since I was diagnosed. As I left I wanted to burst into tears and I have no idea why...x
Starfire...I had my BT which showed I am back to pre menopause, I see the onco tomorrow for my treatment plan.
Shocked saw the pics of your skin on WhatsApp, it looks so sore. My left over chemo issue is dodgy bowels. Skin seems ok but I did get a really sore heal after 7 hours of surgery. Have to moisturise like crazy nowadays though.
Aliand, no point saying don’t worry. Remember my chemo had a rubbish response but the Onco was far less concerned than me (or so she appeared to be) You will be so flipping relieved when you get to surgery.
This thing just goes on and on...
Shi I forgot this the other day
Wow starfire - I am having a hot flush every half hour at the moment which is not at all pleasant and is not helping with sleeping so I’m shattered but was told to expect the flushes on tamoxifen so it’s even more confusing as it’s a sign of the menopause as well. I’m not seeing the consultant for 6 months now so may ask my go to check my bloods - my gp is a little concerned they’ve done no blood tests since I had my last chemo round so wants to do a full blood count next week anyway so I may as well ask if they could check my hormones as well.
Not happy to report I’m experiencing some new little joys thanks to chemo - my skin has been thinning throughout and my hands have been the worst but I never thought too much about the soles of my feet - so now I can’t walk on my heels the skin has all split on the bottom of my feet - now have even more creams prescribed😖😖😖There’s me thinking great I can start getting a bit more healthy after not moving far from the sofa for 6 months now I can’t even put my feet on the floor and I’m not flexible enough for walking on my hands 😆
I know that feeling Aliand! I've got a 2 week wait now till I get the results of my PET scan 😕
And I want to tell you not to worry about the lump but we know that's easier said than done, especially after what we've already been through 💪 xxx
Had 6th rad today feeling ok but my scar is a bit sore. Using lots Aloe Vera to cool things down.
Free day tomorrow going to visit family which means another 2 hour journey but it will be nice to see everyone again.
Shared my taxi today which was great having someone else to chat to other than the driver. Turns out her husband knows mine and they have played together in the same band.
Hi Shi..rheumatologist was an poor example of the NHS, after so many brilliant doctors she was shocking.
Too many reasons to mention but she did agree to give me the injection I wanted which has always worked well although she wanted to start me on immunosuppressant medication...I politely declined pointing out I felt I’d been poisoned enough for 1 year.
Amy how’d the scan go? Got everything crossed for you
Fel how’s it going with you? Xxx
You’ll be glad to get that done and dusted then Amy and hope all goes well.
Yeah, I will be glad to finish the rads. The round trip is not particularly long, only 40 mile round trip (not like Fel’s marathon journey) and the staff have been great and super efficient - it’s just a bit tedious. I know I shouldn’t complain but ........... he’ll, why not! 😖🤪
Lost nail number 3 at the weekend. I’m pretty sure the rest will follow. It is really quite difficult not having nails. Oooo, I’m a moaning minney today😏
I am post surgery. When they did surgery they could only take 9 lymph nodes otherwise may have damaged a major vessel, and 8 of the 9 had cancer. So they are worried there might still be some remaining cancer cells and that is why I'm having the Pertuzumab. If the PET scan shows nothing then I'll be able to stop that and get picc line removed. I'll still be having Herceptin but that can be given as an injection ☺
Nice one Dealdoh, I'm sure you'll be glad to have that done and not have to go to the hospital everyday!
I've got a PET scan tomorrow, get results on the 28th then we'll know what's what. Hopefully it's all clear so I can get my picc line out! In the meantime I'm still getting over the effects of chemo but working 3 - 4 hrs everyday 👍
10th session of radiotherapy and apart from slight discolouration of skin round treated area, all well. How is everyone else doing?
Amy that’s awesome well done...and your knitted knockers are brilliant 😀🏃🏻♀️
Aliand it was Zoladex you had I think, I feel like that all the time at the moment. Joints are so so sore. I do have some weird autoimmune palendromic rheumatism thing which went away with chemo and no immune system but is back with a vengeance but I’m sure some of it is post chemo and dodgy ovaries. Seeing the rheumatologist tomorrow see if I can score a steroid injection.
i wondered the same about removing ovaries. I’m going to ask the Onco. Not sure if anyone else had a Lobular tumour but apparently they can spread to the ovaries too...
Anyway back to coo over the new puppies, so nice to have something so lovely and positive xx
First run (it was more of a walk/run) in about 2 months this morning! Slowly getting back to normal and feeling good 😊
Amy they look fab - great idea yet half fillet is heavy enough
Shi - some of the other ladies mentioned starfire has been posting on the rads thread.
Just wondering if you've all heard of Knitted Knockers (I know, lol right?!)? My bcn suggested them when I mentioned that I found my chicken fillet quite heavy. They are a charity so knit them for free, you can order from their website, search knitted knockers UK. Mine came today so haven't trialled them yet, the pink one is for swimming 👍🏊♀️🐟
Went down to Exeter again today for my 4th treatment and all 3 machines were down so I was sent home.
Really frustrating after such a long journey and I now have an appointment on one of my free days at 7pm in the evening. Luckily the taxi drivers who take me are all great and very patient. Hopefully machines will be fixed for my trip tomorrow.
My taste has come back at last although I had to persevere with the red wine and chocolate!
I drive to my rads, about 25 minutes each way and haven’t had any problems. Feel bad for you tho Fel cos that is a bit of a trek to do on a daily basis. Eight down, seven to go 🙂
Aliand is that your SNB then surgery?
My taste came back but I can’t drink coffee anymore without feeling sick and my bowels are still a bit sensitive!!!
Fel that’s a huge journey for your Rads...xxx