I hope you are all ok?
I finished Rads yesterday 21 in total and I have an appointment with the allergy specialist tomorrow to have a skin test for Anastrozole. I am allergic to Macrogol 3350 and 6000 following Chemo which is one of the compounds found in Anastrozole and also in Tax. Since the chemo has made me post menopausal I am trying these first before alternatives. Thankfully I won’t need Tamoxifen as it didn’t suit me and made me experience numbness etc. They have found a brand of Anastrozole that has Macrogol 400 and 600 in it so this is the one I will be tested on and if all alright I will have to take me first tablet in a hospital to see if I’m okay. Wish me luck. What a palava. 🤺
Lots of love to all xxxx
Hi Michelle, I haven’t been in your particular situation but I wish you well for the best possible outcome tomorrow xx
I didn't have any cysts show up on my CT scan, but I just want to wish you the best of luck for tomorrow and send you a hug xx
How have you found the rads Fel? I finished mine a week yesterday and all well so far apart from a bit of itchingx
Thanks Rosie for including me on you T-shirt makes me feel very special. Had rad 15 today 3 boosters and I'm finished on Friday.
Hi Aliand...I had major joint pains absolutely everywhere!! I took a Tramadol, 2 Paracetamol and a Naproxen to do that run Sunday!!!
Ive started taken a Naproxen at breakfast and I think it’s helping!!!
Shi and Fel this is for you because you missed it...
Hi, my post from yesterday doesn't seem to have worked
Anyway, Amy, sorry you have to wait longer... and Moomoo have a nice time away!
Shocked, I am the same, can't get into any of my jeans etc so wearing stretchy, baggy stuff xxx
Have a great break moomoo the weather is fab for you as well xx
Amy hope this week flies for you - waiting for results is rubbish xx
Just for the record, nothing exciting is happening today, I get my results next week - yes another whole week of waiting 😕
Shi, I will be joining Club Tropicana Thread. Saw this sign in Peterborough and wondered if you were touting for members?
Good luck Amyjb - hope all goes well. Still haven’t got nasal hair but at least my nose doesn’t drip anymore. My head hair is coming back but my eyebrow hair has continued to falll out and I have about three left on each side.
Big hugs for you moomoo and sorry you were feeling low today but yes it does feel so good when you realise that actually day by day you are physically getting a little stronger. I have started back playing badminton and got on my bike and cycled into town today, the first time since my surgery back in November. It felt great.
Aww Moomoo big hugs - it hits you once you finish active treatment doesn't it - weirdly I miss the control and safety of seeing the experts so regularly, as I write that I think I'm mad (obviously I don't miss the treatment) but its scary being on your own to deal with what happened - obviously you have friends and family around you but its not quite the same is it?
Amy good luck tomorrow lovely - let us know how you get on.
Hi Amy, good luck tomorrow with the results, let us know how it goes.
Fel...I’m trying to plot where we all are and the bast place to meet. Can you PM me your postcode and do you drive? Xxx
Hi amy, I'm from the Oct thread. I've had a couple of PET scans and CT scans-I'm not sure,but I think a PET scan is a bit more detailed than a CT scan
Hi Rosie, the PET scan is a bit like a CT scan, not sure exactly what the difference is, I'm not one for questions, I'm all "yes doctor, of course doctor, whatever you say doctor". They are looking for residual disease in my lymph nodes, hopefully none!!
Same here Shocked, you can't even see my regrowth yet! I'm still hairfree everywhere else as well, although I think my leg hair is starting to sprout. I would quite like my nose hair back, it's funny what you take for granted when it's not there anymore 😂
I had yesterday off work as I felt I needed a proper rest, and I spent a lot of it in bed which was nice, but I was still tired today. I'll be pleased to get my energy levels back to what they were pre-chemo 😥
😄 Rosie - I always feel better with my best wig and slap on and I'll be wearing my wigs for quite some time yet - my hair curremtly has a look of leopard print - I'm not kidding I have litlle black patches across my head its growing so unevenly - is that normal - maybe I should just embrace the look..
I'm getting the same emotions grateful to be here one moment then and absolute cow the next - I'm blaming the hormones (even though I've always been a bit of a grumpy mare)
Best cancer line ever...I’ve put some slap on and my best wig 😆😆😆made me chuckle Shocked.
Aliand I seem to have a selection of mini breakdowns evenly spread between elated to be alive and grumpy cow...
it was so lovely meeting Dealdoh...makes it even more important to meet all the rest of you x
Amy I might have missed a chunk...I know you’ve had the PET scan and you’re waiting for the plan but what exactly is the PET scan and why have you had to have it?
Day 5 of Tamoxifen and I’m doing ok, def more flushes but they are shorter I think xx
Paloma - I've got loads to lose and only just started but have to do something or buy a complete new wardrobe as nothing fits and I can't live in stretchy clothes forever (thank god for jeggings and oversized tops), plus I've no excuse as I've finished active treatment.
Well done losing weight Shocked. I'm still putting on and my tummy seems to have got bigger since starting the Tamoxifen, though it may have nothing to do with that
Aliand maybe you’re more level headed than me and you’ll get away with having a meltdown and your a long way down the road of your treatment 😘😘😘
I’ve put my slap on and best wig today and sorted some physio plus I’ve lost a bit of the weight I put on during chemo - nowhere near what I need to but it’s a start - positive steps and all that 🙂
I'm not literally having the breakdown yet - it's just being behind you all I can see what's coming, it's actually a benefit as when I cracked between my last 2 chemo's I thought - oh well this is normal everyone else has been through it. So I'm expecting another as I come to the end, but I've a lone way to go yet, SNB next week, then Mx & recon then radio, as the song goes
"The road is looooong, with a many a treatment to come" LOL
Waiting for taxi for rad 10 feeling ok so far but scar a bit sore even though I am lathering on E45 and Aloe Vera. Managed to get some of the Lush shampoo bar on the internet through the Lush site so it's now back in stock if anyone is still needing some.
Well rads done and dusted - what am I going to do with my days now (apart from hanging out at club Tropicana)?
I have found rads to be fine for anyone worried about it. Slightly tired one day when I didn’t drink enough and some discolouration of the skin (about the size of my hand). I am just using aqueous cream to moisturise and it seems to be doing the trick at the moment. Have had a few stabbing pains round the mx site but they have only lasted a couple of seconds.
One thing I have noticed over the last couple of days is that my face gets really flushed, I am putting this down to the anastrazole though.
Hair is coming through - bum fluff as I like to call it.
Hi Rosie, I haven't even started rads! Everything is up in the air until I get the results of my PET scan I had last week. So by Friday next week I'll have my plan sorted which should include rads. It's great you're not experiencing any SE's from the Tamoxifen, hope that continues 👍
Again thank you ladies, it’s so much easier when you know you’re not the only one feeling a bit...unusual!!!
im def going to see what they do at our local centre, the LGFB course there was brilliant.
Dealdoh that’s amazing last Rads now...mine starts on the 4th, 3 days into Tamoxifen now and feeling ok no obvious SE in fact physically I feel a little better.
Amy is that you done with Rads too? Xxx
Exactly Dealdoh, that's what I've been like - want to hurry up and get back to normal, guilty if I sit and frustrated when I do too much and end up feeling like cr*p! Yay last rads 👍
I think that is very true Rosie, and I don’t think any of us realised that getting over it would be as hard as going through it. We have had to fight on both a physical and mental front and to me, the chemo was a more physical battle, although mental strength was also required but now, the fight is more mental, although there is the physical aftermath to deal with. I find myself thinking that now the chemo is over, I should be getting back to how I was before and I am impatient to do so. I feel guilty if I sit and then get frustrated when I push myself but can’t manage to do stuff. I haven’t felt particularly emotional/tearful (yet) just pretty bolshy and p***ed off.
On the up side, last rad session tomorrow.
Hi Rosie, I'm from the Oct thread and finished rads last Tuesday. Felt really emotional when I finished-had a cry in the changing room afterwards and it wouldn't take much for me to have a cry now! It wasn't so much because it was the end of rads, but the end of treatment and all the rubbish inbetween! We have so much to deal with physically, but mentally it's just as difficult.
My YD and I went to a couple of workshops run by Macmillan on Thursday-aromatherapy and energy boosts and found them really enjoyable and calming, it's definitely worth finding out what your hospital have to offer.
I've also booked myself to have some counselling in a few weeks (also with Macmillan) as I think I'm going to find it difficult to go back to 'normality' and returning to work xx