Hi Missaconitum, I would ask your medical team or GP before taking anything extra. They can give you something that doesn't affect your chemo drugs. I'm like Mishy, just went with the flow. Woke up, cup of herbal sleepy tea (yuck) read, went to sleep again. Had lavender pillow spray which made it all smell lovely, but don't know if that really helped in early days. Most useful was Pilates relaxation techniques - I found the local Maggies centre offered classes. Very helpful not only with sleep but stress. Hope you get some sleep. X
Mishy, pop into Macmillan on ground floor. They have great Fairtrade headscarves and the volunteers will show you how to tie different styles - and give you a bobble to make little artistic bits! I'm wearing the pretty scarf with straw hats over the top. Feel quite glam - very different for me! 💝X
Hi all you lovely ladies,
I started my FEC-T on 30 June, so I'm hoping I can stretch a point and join the July group! A brief history: My first diagnosis was in June 2002, I had a lumpectomy, radiotherapy, 2 yrs zoladex, 5 yrs Tamoxifen and 5 yrs Letrozole. Job done.
Then in May 2017 I got a whole new diagnosis: Same boob, same place, new primary with entirely different characteristics from the first one. So here we go again!
This time I'm triple-negative (so a special hello to Karen on this thread -- nice to meet you!), and the plan is 6 cycles of FEC-T (3 of each), followed by mastectomy. Well, it's nice to have something to look forward to at the end of my chemo!
Well, my first chemo made me very sick; but they added Emend to the package for my second session (which was Friday 21st) and it made all the difference. So I want to say to anyone out there who's suffering from nausea, do say yes to any additional meds that they might offer you!
First time round I ended up in A&E twice -- once from the nausea, the second time because I fainted due to random low blood pressure (scenes of high drama in the village hall car park). Second time round, I'm keeping my fingers crossed, but I'm avoiding the drama-queen action so far. Felt very washed out & feeble for several days (not helped by the fact that it was our wedding anniversary on Wednesday), but I've perked up a lot now. Just wanted to say, it's lovely to have discovered this thread and the wonderful supportive message from all you people.
Now I'm going back to watching YouTube videos on all the different ways to tie a scarf!
i had my first round of FEC-T on the 19th Jiuly, and on the 20th I was hospitalised with severe headache and vomiting. The headache started just after the chemo was finished and got progressively worse as the day went on. I was admitted the next day and given IV morphine and fluids for 3 days, has anyone else had this problem I am due my next round on the 9th August and dreading it
First chemotherapy session this morning. EC, all your posts have been really helpful, I feel more prepared than I did. Terrified but prepared !
Hello to the new ladies that have joined us. It's great to know that you've found our comments and shared stories useful. I think between us we have a whole heap of experiences that can really help see us through treatment so welcome aboard!
Mishy18, sorry to hear you've been going through it. Hospital admissions are what we all want to avoid but when it happens, just take comfort in knowing you're in the best place. Your docs sound like they know what they're doing so hopefully things will settle down.
Ive woken up this morning with more hair on my pillow than I would like to acknowledge. Turbans at the ready!
Ladies, dipping in here re temps. I had a very thorough pre chemo assessment including excellent advice re temps. Onco nurse advised me to buy as good a digital thermometer as I could afford. ( Got one on line in sale) To take my temp morning when I woke , and night before I went to bed, and to record temps. I also was given a sheet with side effects detailed on it, including temps and the dreaded rigors which happens in extremes. The body convulses and shakes to get rid of the heat . You need to get to the hospital asap( 1 hour) if that happens before the body goes into shut down.
The advice I was given has really been invaluable as each time I phoned the alert number I was asked when I last took my temperature . So far I have been hospitalised after each of the first three chemos. Unfortunately I have also suffered rigor with a temp of 39.9. So the message here really is use the thermometer! X
Mishy, I know exactly how you feel. X. I felt such a wuss too, ending up in hospital overnight just 24 hrs after having the first treatment! What was that all about?? The second time wasn't funny either. That was three days in hospital. My Onco reduced the dosage to help me tolerate it better. I tried to fight the decision, saying I was sure I could manage, that I needed the full dosage to make sure it didn't come back. He explained that he was helping me, that this treatment we are all enduring is adjuvant (additional) that the tumour has gone along with the cancer. Belt and braces he said. After the third admission he told me the risks outweighed the benefits , and that I could do one more and then that was it! He said four was enough, and Mishy, I have to believe him. So, you aren't a wuss, you have to listen to what your Onco says. As I realised, they want successful outcomes for you, so a reduced dosage is good and you will get there. In the meantime rest and let your body recover. All the best. 💋🍀
Hi ladies I have been following you from a distance and also found all your comments helpful.l am er +her+grade 3 2cm have had a lumpectomy and started chemo a week last Friday. Fec
l had a cold last week and a bit of a cough but was at work and felt fine. Friday l read a few forums and one about bleeding gums and taking temperatures. I didn't think l had a temperature but took mine just to be sure and discovered it was 38.1 rang the hospital and was admitted. So want to say thanks for making me think to do this and also to Let others know that it is not always obvious when you have a temperature so check just in case.
also I have read about some finding that the tummy injection stings. Mine have been fine had home but when they gave it to me in hospital it really did sting. The only difference l could see was that the chemo nurse told me once the injection is in to slowly push in fluid whilst the nurse did it really quickly. If you are having trouble might be something to think about?
Has any one else had low immune system how quickly did you recover and do you know if you have had this once are you more susceptible to it in the next round? My cough has almost gone as was given intravenous anti biotics but can't go home yet as my levels have gone down. Hoping they go up tomorrow so l can to go home but really can't complain as l feel well.
Been lurking for a while soaking up all the wisdom on all the forums during my time since diagnosis and surgery.
Well my Oncotype score was 29 and I've been advised to have FEC x6 starting on 19th July.
I've been so inspired by you ladies and all of your stories and advice have given me strength and reminded me i'm not alone.
My week has been a mix. I had 6 inches cut from my hair this week (didn't like it), but also had my wig appointment which was actually good. NHS in Scotland is very generous and I got an incredible and quite expensive wig which looks super natural so thats one less thing to worry about.
My big downer this week is my pre-chemo dental. I had cosmetic work done qutie a few years ago (had very Esther Rantzen/horse teeth) and I was told this week that one of my front teeth wasn't done correctly and that the dodgy work has created a gap under my tooth which is an easy route for infection (even though its not infected now). I have to have one of my front teeth removed completely and will have to wear a denture until my treatment is finished. I'm 41 for gods sake!! This just feels like the last straw. I will be bald, swollen and toothless like a giant baby. /rant over
Keep your chin up ladies and keep ploughing through it. I appreciate each and every one of you.
Hi ladies I hope you all are welll and the treatment hasn't been too bad for everyone upto now?
it's been a funny and stressful week for me it started off as positive I decide to brave the shave and shave my hair off before I start loosing it completely what better way to do this is for charity. Was nervous of how it would look but it wasn't as bad as I thought it would look. everyone said it suited me which was a bonus, I was laughing while it was being done on the plus side I raised £250 for Macmillan and £250 for christies which I am well happy as I raised that within a week. Felt so good about it and to give something back for the great care I have received while going though treatment.
Then yesterday i was told my job was being made redundant and that I wasn't chosen for the new job roll, I knew about this a few weeks ago but this just confirmed I hadn't got the new position if timing couldn't of been any better right now kick me while I'm down that's for sure. The stress hasn't done me that good if I am completely honest try not to show it as my mum will worry as her health isn't always that great.
Then today I went for my third session of chemo after the drug was just getting into my system though the line in my chest It first starts off with me feeling dissoranted and then a really strong taste into my mouth. I had tummy pains then developed breathless and difficult breathing and my blood pressure went really high. then it made my face go bright red it was awful as I didn't know what was happening i was scared. Good thing my mum was their to let the nurses know about what was happening, they reacted right away to give me drugs etc react against this. I was told I couldntcarry on with the chemo drug today because of this as only 6 mg of the chemo drug was put into my system and my body to react to quickly against it. I was then checked over by a dr and I was allowed to go home a few hours later once my breathing got back to normal and my obs were taken on regular intervals. I did have a reaction towards the chemo drug over the weekend but it had died down within a few days of taking piritol and e45cream to get rid of the rash and pimples which appeared on my face, chest, neck and back. So when my body realised what was going into it today must of thought I'm not having that again. Only could happen to me was told they can either sort out what to give with my next chemo session so I can keep taking the same one or change it to something completely different, as I have 10 more to go yet with the herceptin every three weeks.
has any other of you ladies had the same reaction to the paxitaxal drug at all? Hope I've spelt it correctly.
sorry for the long message just needed to get all this off my chest as I don't think all he stress I've been in this week has helped the situation today at all.
Thanks clare 😊
Hi people I am new to forum, i started chemo on 5th July FEC T into my second week have had mastectomy, Have finished my tablets ,then felt a bit sick a couple of days after so took sickness pill. My mouth feels like the bottom of a fish tank and my eyes are sore have lost my taste buds but that's it. I've got my wig ready for when my hair starts to fall out luckily that won't be till after our daughters wedding next Friday.Its nice to know there are people out there. Xxx
Mishy, poor you. Are you doing temps am and pm? I keep a little diary - day of cycle, temps, symptoms, foods etc. It's helped to chart similar symptoms for each cycle, so I can see when I am lowest and prepare, and when I am on the up. Just climb into bed, girl, and call in the troops. You can't battle chemo fatigue as it is so different to just being tired . Thinking of you. Big hugs. X
Having a really tearful day my first one
havent used the forum before I have my second chemotherapy on Tuesday
day 16 for me I'm sure I will feel brighter tomorrow
Hi all, I've been reading loads of posts on here and thought I'd join in the July chemo. Appointment with oncologist yesterday after WLE and SNB in May. ER+, HER2+, clear nodes and chemo starting 20th July, FEC-T 6 cycles and herceptin. Not had a lot of time to think about it but feeling ok about it too. Reading all these posts are helping get organised as not had much info at all. nurse did say she would post some stuff out so here's hoping I get it before 10am next Thursday! xx
Mishy, bleeding is not good. Phone up and check. The wounds won't heal with chemo and you don't need any infections! Are you using a baby toothbrush? It's much softer and won't scratch. I've got aloe vera toothpaste from H&B, plus Manuka honey 15+, So far no ulcers - 🍀. X
Mishy18 just popping in from May thread, I had really bad bleeding gums on first chemo and had to buy a children toothbrush I metioned this at my next review and I was given a mouthwash called Benzydamine which you use for 7 days and I have had no bleeding since then and have been using my normal toothbrush.