it’s hard to go back to pre cancer normal, because we no longer feel normal. So many body changes and new aches and pains, not to mention anxiety over mets. I just had a bone scan for back and rib pain but got the all clear.
Feel the fear I’m hoping to go for DIEP option too but not seen my Breast surgeon yet to discuss. I’m using it as an excuse not to diet and eat cake 😀
Oh Mishy, I’m so with you, I’m really struggling with all of this too, I know I should be feeling relieved, the Onocologist & Surgeon have sent me on my way, been told to expect a mammogram appt for April, will do another bone scan at some point & got Zolendronic infusion next month, but I can’t stop worrying & feel so blooming down all the time. I’ve had a backache since last Friday, you can imagine what’s going through my head!, think I’m going to have to phone BC nurse today it’s making me very miserable, but then I think I don’t want to hear any bad news, so should I bury my head? someone said it’s a bit like post traumatic stress syndrome after treatments, I’m beginning to think that’s right. I worked all through treatments when I could, for some sort of normal, that was for me, no other reason, because it wasn’t good being at home watching daytime TV & “thinking”!! The tiredness and aches get me all the time too, I want to feel how I felt before this all started, but don’t think that is going to happen somehow.
So, I too don’t want to be A Debbie Downer, but hope we can help each other with our honesty, it makes me feel a bit better knowing I’m not the only one with these feelings and I also know some have even more worries and for that I feel guilty moaning and hope you understand that I wish you well and that you get solutions and some peace from this dreadful thing we didn’t expect to have to deal with.
Anyway, positive note, I’m off for lunch out with a friend today, so keeping occupied, the housework is still waiting......
Love, hugs & hand holding to all xxxxxxx
I saw a lovely young lady from St George’s hospital, London. I had already drawn out my family tree to show BC trail and gave her a copy. She asked some questions about that, then why was I asking for test, what did I expect to get out of it and what might I do with results. We discussed the genes and various outcomes.
like most people, i didn’t know that everyone carries BRCA 1 and 2 with two parts in each one (one from mother and one from father). They actually protect us from breast, ovarian and prostate cancers. The problem comes when one gene changes or mutates and can no longer protect. If this happens you have about 90% chance of getting BC, 60% of ovarian and increased chance of prostate for men, can’t remember percentage. When they test it can be i) variant detected that is known to affect cancers, ii) no variant detected (normal result) or iii) variant detected but they don’t know if it is affecting the way the gene is working. This leaves you/them with a dilemma as they can’t be sure either way.
The BRCA 2 is the one that affects prostate .
If they think you’ve got a good chance of having it then they offer you test if you want it. I was given a form to go and get a blood test done. It takes 6-8 weeks.