Oh Mishy, I’m so with you, I’m really struggling with all of this too, I know I should be feeling relieved, the Onocologist & Surgeon have sent me on my way, been told to expect a mammogram appt for April, will do another bone scan at some point & got Zolendronic infusion next month, but I can’t stop worrying & feel so blooming down all the time. I’ve had a backache since last Friday, you can imagine what’s going through my head!, think I’m going to have to phone BC nurse today it’s making me very miserable, but then I think I don’t want to hear any bad news, so should I bury my head? someone said it’s a bit like post traumatic stress syndrome after treatments, I’m beginning to think that’s right. I worked all through treatments when I could, for some sort of normal, that was for me, no other reason, because it wasn’t good being at home watching daytime TV & “thinking”!! The tiredness and aches get me all the time too, I want to feel how I felt before this all started, but don’t think that is going to happen somehow.
So, I too don’t want to be A Debbie Downer, but hope we can help each other with our honesty, it makes me feel a bit better knowing I’m not the only one with these feelings and I also know some have even more worries and for that I feel guilty moaning and hope you understand that I wish you well and that you get solutions and some peace from this dreadful thing we didn’t expect to have to deal with.
Anyway, positive note, I’m off for lunch out with a friend today, so keeping occupied, the housework is still waiting......
Love, hugs & hand holding to all xxxxxxx
I saw a lovely young lady from St George’s hospital, London. I had already drawn out my family tree to show BC trail and gave her a copy. She asked some questions about that, then why was I asking for test, what did I expect to get out of it and what might I do with results. We discussed the genes and various outcomes.
like most people, i didn’t know that everyone carries BRCA 1 and 2 with two parts in each one (one from mother and one from father). They actually protect us from breast, ovarian and prostate cancers. The problem comes when one gene changes or mutates and can no longer protect. If this happens you have about 90% chance of getting BC, 60% of ovarian and increased chance of prostate for men, can’t remember percentage. When they test it can be i) variant detected that is known to affect cancers, ii) no variant detected (normal result) or iii) variant detected but they don’t know if it is affecting the way the gene is working. This leaves you/them with a dilemma as they can’t be sure either way.
The BRCA 2 is the one that affects prostate .
If they think you’ve got a good chance of having it then they offer you test if you want it. I was given a form to go and get a blood test done. It takes 6-8 weeks.
Tatyana sorry about your unfortunate results. I know how you feel. Since they told me I have a liver lesion I am becoming an emotional wreck. Not confirmed as secondary yet. I’m having MRI next Friday to diagnose, but don’t know if it’s likely to be anything else. Oncologist did say it would be unlikely to grow with FEC T and was in a strange place for a met, but I don’t seem to get much luck with my diagnosis.
its hard to live with the thought of not getting over it. 😥I’m nearly a year in from diagnosis and had mentally thought it would take a year to get over. Now I feel like I’m back to square one with diagnosis, worry and tests, only now it’s more serious. xx
been to see oncologist again today for CT results. Not good news. I have a lesion in my liver and they don’t know what it is but it has grown there in the last 6 months. Oncologist says it is in an unusual place for a met as it’s right near the bile ducts, which also makes it very difficult to get at. Also says he would be surprised if a cancer has grown during the aggressive chemo I’ve had. Could be something else, don’t know yet. Got to have MRI to diagnose. Wish me luck xxx