Mishy ❤️❤️❤️😘😘❤️❤️❤️😘😘😘you are always in my thoughts beautiful, glad your onc is keeping close eye on you. Hope you’ve been having lots and lots of hugs with your Ella Bella 😘😘😘 always 👭👭👭for you and bit of we go together from the musical grease on the jukebox for you 🤪🤪🤪what bappa lulls a what bam boo 🤪🤪🤪love you 💕💕💕✨✨✨✨Shi xx
Shi thanks for your support and 👭💖
Hi everyone just thought I'd let you know that I am doing OK not on a treatment plan as yet on watchful waiting my onc has arranged another ct scan for end of this month with review on 4th April so still feeling in no mans land atm
I hope everyone is well thank you so much for the well wishes xxx 💖👭
❤️
Mishy sending you ❤️❤️❤️Darling and 👭👭👭hope your chest infection has cleared and they can get you a plan in place 😘😘hope you’ve had some lovely time with Ella Bella in this glorious 🌞 😘😘💕💕✨✨Shi xx
That is a good idea, take a small break form instagram and snapchat. If you're really strugling of doing that, use a special tool which allows to control the content and time you're spending in a social media. Here is a link to their homepage.
Mishy and ftf 👩🎨👩🎨👩🎨👩🎨🤺🤺🤺💣💣💣💣 mishy, your dads guarding you and Ella earth angel is your light. As I’m typing this the cancer research Uk ad has just been on saying together we will beat cancer, now there’s a sign if ever there was one 🙏💕💕✨✨✨Shi xx
Hi Angela thanks for your words of wisdom 😊 yes you and me both with accident findings that's what's pissing me off the most that there weren't any red flag symptoms for us how would we have known?
Anyway woke up today feeling more determined and positive I've got one shot at this and I'm going to bloody well get it right now more yes sir no sir thanks very much sir its my life and I'm going to leave no stone unturned 👍sending you all 👭💖
I totally know what you’re going though Michelle. I’m going through it too. 🙃
We have to have hope. I’m here if you need anyone to talk to. DM me on twitter any time.
We honestly don’t know what’s on the horizon with treatments. I’ve got a gut feeling we’re going to be here for a long while yet.
Xxxxx 😘😘
@Mishy18 wrote:Shi thank you for the 💖 I logged on tonight to send 💖 to you all
Still don't think I'm getting used to my sbc diagnosis my chest infection is gone now so feeling like I was before no symptoms to even suggest there were mets in my lungs trust me to have them in both I don't see my onc for another 2 weeks and feeling really 😳 abandoned and left to get on with it of course my mind keeps going to terrible places and I have to keep reminding myself to snap out of it it just feels so different this time around it's the kind of feeling that's very hard to describe like I'm having a nightmare and it's not really real sorry for the offloading ladies probably not what you all want to hear especially on valentines day just want to have my app so I can get some clarity and know I'm not being just hung out to dry 😨😨😨
My onc is very good at his job but I feel like I was my own doctor and if it wasn't for my gut feeling where would I be when the red flag symptoms finally appeared probably with a lot less treatment options that's for sure it just makes me mad that we are not offered some time of screening after treatment ends
On a much lighter and brighter note my little angel Ella came today with my valentine made at nursery she's is sleeping over on Monday which I can't wait for cuddles and bedtime stories it's half term next week so will be spending time with her and Holly doing lots of lovely things 💖
Shi thank you for the 💖 I logged on tonight to send 💖 to you all
Still don't think I'm getting used to my sbc diagnosis my chest infection is gone now so feeling like I was before no symptoms to even suggest there were mets in my lungs trust me to have them in both I don't see my onc for another 2 weeks and feeling really 😳 abandoned and left to get on with it of course my mind keeps going to terrible places and I have to keep reminding myself to snap out of it it just feels so different this time around it's the kind of feeling that's very hard to describe like I'm having a nightmare and it's not really real sorry for the offloading ladies probably not what you all want to hear especially on valentines day just want to have my app so I can get some clarity and know I'm not being just hung out to dry 😨😨😨
My onc is very good at his job but I feel like I was my own doctor and if it wasn't for my gut feeling where would I be when the red flag symptoms finally appeared probably with a lot less treatment options that's for sure it just makes me mad that we are not offered some time of screening after treatment ends
On a much lighter and brighter note my little angel Ella came today with my valentine made at nursery she's is sleeping over on Monday which I can't wait for cuddles and bedtime stories it's half term next week so will be spending time with her and Holly doing lots of lovely things 💖
Mishy ❤️❤️❤️Sending you ❤️❤️❤️💕💕😘✨✨Shi xx
Sorry to hear that Carole. I can imagine your disappointment. I’m sure your anxiety levels have been pretty high too. Hopefully it won’t be too long before they can fit you in. 🙏🙏🙏🤞🤞🤞 xxx
I’ve had a call today from the hospital to cancel my Diep tomorrow. They’ve got a trauma case that can’t wait. I’m devastated 😥
Hi Michelle. Four weeks seems like a long time to have to wait. 😳 I don’t think they understand the torture of not knowing what’s going on. Makes me mad. It’s like cruel torture making us wait for answers. Our brains manage to come up with all sorts of terrors when we’re in no mans land. Keep busy.
Keswick was lovely as usual. Xxx 💪
hoping everyone else is doing well. Xxx
😘😘😘mishy 👭👭👭our gold hot pant have magic unicorn elastic mishy ✨✨✨✨glad your maggies are being a great support mishy while you are waiting for plan ❤️❤️focus on the light of Ella Bella ✨✨✨✨she is your light mishy ✨✨✨✨love you 💕💕✨✨✨Shi xx
Angela I'm over the moon for you absolutely brilliant news enjoy Keswick and don't forget to make the wish 👍👭😚
Ladies thanks for all your kindness and support I'm still very 😳 waiting in no man's land till my onc appointment on 28th 4 more weeks of not knowing what lies ahead 😳 thank God for Maggies I'm seeing a counselling lady they arranged it when I got diagnosis to support me in the meantime and they have asked me to attend the sbc support group on Wed as they feel meeting other people in the same position might be beneficial to me but for now I'm just about managing to not let the dark thoughts take over
Oct girls thanks for the hotpants need all the help I can get I know things will be better when I digest it all properly and have an actual plan in place but for now sending you all my 💖
Hi ftf, enjoy Keswick and go to magic wishing well and have a coin in there for everyone 😘😘enjoy being in the mountains 🏔 😘😘💕💕✨✨Shi xx
Thanks ladies. 😀 it’s such a relief. First thing that’s worked since diagnosis. 😳 was starting to think nothing would. Phew.
In Keswick now to brush off the fear and celebrate the good news while it’s here. X
Great news Angela x
FTf 👍👍👍😁😁😁that’s great news darling 😘😘😘 pleased you are responding to cape ❤️❤️Keep 💪🏻💪🏻💪🏻💪🏻As I know you will and 👭👭👭👭grab hold of mishy18 gold hot pants us oct17 girlies she look after are holiding onto her tight 👭👭👭👭Tatiana sending you big hugs and love too and all the beautiful amazing July girls ❤️❤️You 💕💕✨✨✨shi xx
Just had results of first ct since starting cape. I’m stable Mable with some shrinkage. 💃💃💃💃🥂🥂🥂😀😀😀
hope everyone else is doing well? Xxx
Mishy, lovely to hear from you xx It must be such a shock for you and your family and quite understandable that you need some time away from here to get your head around it all and to be with your family. Just want you to know that even although you won't be on the forum for a while we will all be thinking of you and sending our love xx
Dear Mishy,
I am thinking if you need a second opinion from another radiologist or other professionals.
The thought came from the various interpretion/comment from 3 different radiologistt for my lung shadow appeared on 3 CT scans which were followed by a chest x-ray, for which no shadow was found in my lung.
The 1st scan was referred by my family doctor who was also a very senior doctor in the emergency room. He let me to look at the original copy of CT scan result with radiologist comment. It was commented the leison on sternum consistent with metastasis. The 2.5 cm neoplastic nature tissue in my lung suspicious of cancer. No plural fluid was found. But, my family doctor said the sternum leison should be cancer but he didn't know what was that in the lung.
The 2nd scan which was referred by my previous oncologist and done before bone biopsy. She is green in the field.She did not let me to look at the CT scan result (probably don't want to touch a patient (me) nerve. She said cancer from sternum spreaded to lung. I challenged her how she knew w/o any biopsy and she said they follow pathologist and radiologist comment She could only give my treatment plan after bone biopsy came out then she could only know what type of BC this time (triple positive, same to my first diagnosis or changed)
The 3rd scan which was referred by my current oncologist and done after 4th session chemo. He has 10+ years experience and is also a professor. He sad the image on my lung is a scar from tuberculosis. He asked if I had this disease when I was young.
Different person has different interpretation. To me, if any doubt ,get a second opinion does not loose anything on the baseline treatment should not be postponed. We are racing with a bomb.
PS.
i was not offered a lung biopsy though requested.
I am touching on the wood, no obvious lung symptom except several times breathlessness at the beginning when feeling sick before any testing/scan.
Mishy
I have only just seen your post, oh my darling I am so sorry and just wanted to send you all my love, hugs and positive vibes.
Helena xxxxx
MIshy....so sorry to hear your news....sending you lots of love & positive vibes...early diagnosis has gotta be a good thing 😘😘
Hi Mishy,
I'm so sorry to hear your news and sending you love and hugs xx I'm thinking of you xx
So sorry to hear this Michelle. I can only imagine how you must be feeling as I was being tested for exactly the same thing over Christmas. Are they sure at this stage, with them being so small, that they are actually mets? I had a lung nodule at the start on CT, but it disappeared with chemo, so I don’t know if it was a met or just a nodule. My sister, who has had two BCs and colon, gone to st 4 liver, has about 5 lung nodules but they haven’t changed in 4 years, so they think they are not mets. She has just had her check ups today and is clear on cancer except for 1 8mm tumour in her liver. She was on palliative chemo 3 1/2 years ago but has had 3 liver ops since then and is feeling great now.
If it is mets at least they’ve found it really early xx
Hi Lovely Ladies and Happy New Year.
Sounds as though we all had a good Christmas, can’t believe the amount of work it all took and now it’s all done, decs are back in their boxes and back in the loft, does make the house look tidy eh?
So pleased with the good news stories, long may it continue, Angela, you are amazing, so pleased your new meds’ are working and with more in the arsenal, go get ‘em girl. & Mishy & Carole, thank goodness results are good, although all this worry does nothing for our wellbeing. Hope you’re recuperating well Helena, and Shi, I’m with you next Christmas, going with the easy version, too much work for it to be demolished in minutes! My x-ray came back clear, still have the discomfort under my ribs, but reading about your experiences think I’ll have to put it down to rad damage, just wish there was more aftercare in my area.
We had a couple of days in the New Forest just before New Year, lovely seeing the ponies and donkeys roaming free, Mark, my OH now wants to live there!
Back at work now, managed to fall backwards off a chair shutting the waiting room window yesterday, hurt my bum (it’s got plenty of padding!) and banged my head and worst of all my jaw hurts, must have clenched my teeth, suppose I work in the right place (dentists) if I need something done. I find I still get quite tired, thank goodness it’s only three days, but it does give me some normality, hope I don’t always have to rely on that, don’t want to work forever!
Anyway, onwards and upwards Lovely Ladies, look after yourselves, as usual thank you all for being here, good luck with appointments etc, holding hands very tightly still.
Love Kim xxxx