Glad your first cycle was ok. Mine was too and like you I just feel a bit fuzzy headed today. Didn't sleep at all last night, possibly because steroids taken at 3pm. I was very tired by 8pm but still couldn't sleep, but not unusual for me.
For the benefit of anyone not started yet, I'll give you a summary of my first of 6 FEC-T. Started off with choosing cold cap and then nurse sprayed a bit of water on my hair followed some lovely conditioner. Actually the same salon one I use at home, donated by someone to hospital. Then on with the cold cap as it needs to cool down for half hour before drugs start. Whilst waiting for this I had a saline drip connected to my PICC and was given steroid tablets and anti sickness. Nurse changed my PICC dressing which had been fitted 24 hours earlier and was getting very sore. At this point we discovered I'm allergic to the dressing and skin had gone red with a blister, burst by dressing removal. Painful having it cleaned but arm is much more comfortable with a sensitive dressing (looks like cling film).
Cold cap now ready and I'm coping with the cold easily. Worst part was the chin strap being tight and restrictive. Don't plan on eating your lunch wearing cold cap. It didn't have any bad effects on me, not even a headache and I sat in my tee shirt throughout.
The nurse sat with me and chatted whilst pushing the three drugs through. I didn't feel anything.
All done after an hour or so and then I had to wait a further 90 minutes of scalp cooling.
Cold cap does make it a much longer and more uncomfortable process, but not painful and no bad effects for me. If it works I'll keep on with it. If it doesn't I've got a wig and lots of headgear ready.
Good luck to everyone who has not started yet and don't worry it's not to bad.
i hope your first chemo session went well yesterday. It was my first one yesterday too and I had felt very apprehensive but it wasn't as bad as i had anticipated. Only 7 more cycles to go! I am feeling slightly fuzzy headed but ok at the moment- how about you?
I did try the cold cap (despite the fact that I am a migrane sufferer) - it was bearable but I'm undecided whether to continue with it or not. I have already ordered a gorgeous wig from a lovely lady based in London who i can definitely recommend.
I'm trying to keep everthing as normal as possible for my 4 children but it isn't always easy is it?
best wishes to everyone,
I start FEC chemo next Thursday 6th July and having PICC line in on the day before. Feeling quite apprehensive!
Good luck for your first one today Carol and yes I would love to join a Facebook group if you set one up, great idea!
Hugs to all
Is anyone interested in joining a Facebook closed group for July chemo starters. If so I will try and start one, unless someone else wants to do it.
Hi July starters,
I started FEC-T chemo on 23 June, and thought a postitive story from June might be useful here...
I am on day 5 and I think things aren't as bad as I'd led myself to believe. I managed the cold cap - the cold was OK, but the strap under my chin was tight! Very few side effects - day 4 I felt a bit fuzzy in the head, but very manageable. It's no worse than a bit of a hangover. I'm feeling a bit of a fraud!! People keep asking me how I am, and I'm feeling fine.
Good luck all!
Hi feel the fear
ive seen your posts over the months. Welcome to the July starters, although strictly I'm a June (30th).
Think I'm going to try cold cap, but I'll see how it goes.
Hi Clare, you have the same name and spelling as my daughter. I too start my chemo this Friday. Getting a PICC line fitted tomorrow. I'm having FEC-T, what are you having?
I'm eager to get on with the chemo, this has all been going on too long for my liking, but I'm not really totally recovered from surgery yet.
Hi Carol nice to meet you I start my chemo on Friday for twelve weeks so I fall on June and July group. I've decided not to use the cold cap if I'm going to loose my hair any way x