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July 2017

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Re: July 2017

Hi ladies! Carole, how lovely to meet up with the other ladies. Enjoy the rest of your break.

Happy birthday to Ella -- I can't believe a year has gone by! Michelle, I hope you are having a lovely day with your lovely granddaughter.

Angela, good luck with your scan but it's too soon to worry about it yet!! A Halloween weekend sounds like a great idea. As the weather gets cooler, those hot flushes will be a blessing. Ha ha. Not! Meanwhile I'm feeling the cold, I've never minded it but nowadays I'm really nesh!

We're hoping to get down to Devon the weekend after next to see our granddaughter, who will soon be four. We're planning to take the campervan. So fingers crossed for the weather and also for my bloods, because I don't want this Friday's chemo to be delayed!
Love to all of you, Missa,Shi and the gang, good luck with your treatments and don't forget to have fun.xxx
Member

Re: July 2017

How great Carole. And I always think it’s nice to put a face to the people we’ve grown to know online. It was lovely when I met Michelle at radiotherapy.
Yous have both got nice things to look forward to today. 😀 enjoy yourselves ,and the rest of your holiday Carole.. Xxx
Member

Re: July 2017

Hi ladies

I’m away for a week and today I am meeting up with three other pink ladies from our Facebook support group, in Bath.  Be lovely to meet some of the people who went through it together. 

 

Have a a good day everyone. xx

Member

Re: July 2017

Thsnks Angela having a little tea party when her mam and dad are finished work i have her today so we are going to the soft play xx
I hope everything goes well with your scan, and sending positive vibes in the meantime oih Halloween at Bamburgh will be lovely my Aunt is there atm for her 60th she says the weather is lovely xx
Member

Re: July 2017

Morning Michelle. Can’t believe it’s Ella’s birthday already. 😳 hope yous have a lovely day. 🎉🎂
We should all be able to go away whenever we want I think. Hubby would disagree. 😂 I love seahouses. We’re thinking of popping up for Halloween weekend. The caravan site always have a good fancy dress party and our miles wants to visit bamburgh castle again. Also our year passes into Alnwick castle are still valid so it’s a shame not to make the most of them.
We should definitely meet for a coffee some time.
I love cooking as well. Keeps me away from shopping. 😂
Let us know how your scans go. My first ct since starting this new regime is in about 4 weeks. 😳

Missa how are you? I’ve everything crossed that your treatment is working.

Tatyana, Carole, Kimi, shi, I hoping you’re all good and enjoying this crisp weather. Im a sun worshipper but have to say this year the cold is a bit of a relief with these hot flushes. I’d say I have about 30 per day. 😳😳😳
Xxx
Member

Re: July 2017

Hi ladies what a beautiful morning it is today
Missa how are you lovely i hope things gave settled a little for you and if you have started treatment that its SE are kind when we last spoke you were talking about treatments just wanted to send you a big hug and positive vibes
Tatanya i hope you had a fab time at your freinds it does you the world of good getting away from it all sometimes i was lying awake for hours last night just thinking about things (i get like this from time to time) and thought to myself i need another break away Scotland was lovely but i made tge mistake of trying to cram loads in to a short time resulting in beibg knackered anything from the relaxing break it was meant to be so i thought once my plan is in place for neuro stuff (i have 2 more scans next week before they can decide) i will be having a few days away at Seahouses all you can do there is relax its nit commercial enough to do anything else just how i like it ny gial will be to walk tge beach from Seahouses to Bamburgh Castle you cannot beat the view as the castle approaches you its beautiful fir now im going to enjoy some Autumn walks Missa i hope your lovely OH is putting your new wheels to good use and you can enjoy Autumn too its lovely and sunny in Newcastle i hope it is everywhere else, so you can all enjoy nice walks out or some time in Garden relaxing
Angela we should meet up some time for a cuppa if you are up to it thanks for the recipe tips bye tge way i kove cooking atm its really akk i can do mind you my son or oh has to chop all veg and open cans etc due to my hands
Carole hope your appointment went well and you are nit having too much pain in your foot and ankle kimi hey if you read this hi i hope life is treating you well and all is good
Suoer excited my lovely Ella is a year old tomorrow cannot believe it where has the year gone so much has happened in such a short time
👭💪💃👍💖♀️
Shi Community Champion
Community Champion

Re: July 2017

Hi tatyana 😘😘😘just in 🤪🤪🤪Shi land most of the time and working and shopping in fact a lot of shopping 💃🏻💃🏻💃🏻🤪🤪🤪🤪💃🏻💃🏻💃🏻💃🏻😁😁😁how are you beautiful have you managed a weekend away? 😘😘😘💕💕✨✨✨Shi xx
Member

Re: July 2017

How are you doing Shi? Hope you are enjoying life!
Shi Community Champion
Community Champion

Re: July 2017

❤️❤️❤️❤️❤️Ftf, tatyana and mishy ❤️❤️❤️❤️ it’s nearly a year since you beautiful amazing ladies looked after us girls on oct17 thread, just wanted to say thank you again for being so amazing and inspirational 😘😘you give us 💪💪💪💪to keep fighting 😘😘😘💕💕💕✨✨✨✨Shi xx
Member

Re: July 2017

Thanks for the tip Michelle. 👍
I love a dinner just not the clearing up. 😀
Enjoy your day. Xxx
Member

Re: July 2017

Jamie Oliver makes a cracking fool proof Yorkshire pudding got my tips off him apparently if you don't dribble the batter between puddings they rise better!!!
Im only cooking for 3 if us today probably will take some for my mam later best get the chicken in fir a late dinner xxx enjoy your family lunch everyone xxx
Member

Re: July 2017

Good morning tatyana. How great that you’re enjoying a few days away in your camper van. It’ll be lovely to catch up with your old friend.

I’d love to grow old but wouldn’t want to be in a care home. And dementia would be my greatest fear.
However, I think it’s only natural for us to think why can some grow old and others not.
When I went for my mammogram last yr and was diagnosed with bc there was a lady there who was 100. She was complaining that at her age she shouldn’t have to go through the anxiety. As it turned out she didn’t have it and I did. The look on my husband’s face when she came out of her appointment with a massive smile on her face and I’d just been given the bad news. 😳

It’s niot that we wished the poor women any ill, but we wouldn’t be human if we didn’t think why me and not her. I know that’s unfair, but still, it did cross our minds. Life isn’t fair is it. It’s as simple as that.

How absolutely terrible for those young men Michelle. There is always someone worse off isn’t there. I feel I’m being robbed of my future some days but I’ve had double the life they have. I hope they’re both okay in the end.
My dad has been dead over two years now and I still often have bad days. Especially Sundays as he died on a Sunday. And of course there’s on less place at the table.
Anyway, I’m being ever so dreary. I’m going to cheer myself by having a Yorkshire pudding and get ready for the family to arrive in an hour. And the sun is shining here so I think today will be a good day.

Love Angela. Xxx
Member

Re: July 2017

Tatanya enjoy visiting your friend i love campervans!!! Even in tge rain i love a caravan!
Was feeling very sentimental yesterday about my dad and just found iut about someone i knows daughters boyfriend only 22 he and his twin were both diagnosed with testicular cancer 18months ago ge had op to remove his and his brother eent through treatment etc well the poor lad has got it back after a tear in remission poor las thought he was done with it and i couldn't help but feel why oh why and yes my nana is in a care home too with late stage alzheimers shes had a great life but although shes comfortable and well in herself uts just not her anymore i hope i never came across as spiteful towards the elderly I don't mean it!!!!! There are some real characters in my nanas home and their dementia seems to have created brand new persona's my nana however is just lying there in her silent world how i miss her bolshyness
Very cold out so today im going to make a chicken dinner
Love to you all xx
Member

Re: July 2017

Angela and Michelle, I'd love to give both of you a big hug right now! If it's any consolation, the thing about envying older people doesn't stop when you get older!! I'm 64 and in recent months I've sometimes had to struggle with my feelings around my parents who are 95. They are in a care home now and both suffering from various ailments and slow dementia, it's a very sad thing to see and there's nothing anyone can do, they are well looked after and relatively comfortable. But until well into their 90s they lived a very happy and independent life. So now when they complain- quite justifiably- about how awful things are, I can't help thinking about the 30 years of good life that they had after retiring, which I'm not going to get... I wouldn't wish dementia on anyone, but I don't think my own situation is much better thank you! And then of course I feel mean for having that thought.

But thoughts are just thoughts. More to the point, right now we're in Cambridgeshire in the campervan in the pouring rain, looking forward to lunch with my oldest friend who I havent seen for a year!
Love and hugs to all, and love also to all our grandchildren!
Member

Re: July 2017

I agree with everything you’ve said Michelle. If we were speaking face to face I think we’d of had a big hug by now.
Cancer definitely makes us feel everything on a deeper level. Like I’ve said before; I’m living in technicolour now.
Xxx
Member

Re: July 2017

Angela you are one 💪 lady yoy really are knew it when we first spoke on here you enjoy being granny i bet your kids a really proud of you i know mine are of me the don't tell me but every so often they will send me a little message text ir card to remind me 😍😍😍
Member

Re: July 2017

Your trwins were def meant to be me too mam to Holly at 19 who gave me my little Ella and i don't mind a bit being a Granma at 47 i don't care what other people say my mam was granny when i had Holly and she was young too, age doesn't define us love does i say and have buckets loads of love left in me in fact sometimes when i look at my little family i get really emotional which is something i never experienced before any of this happened although i had moments of love for them and pride now its different
Eeh im getting all emosh thinking about it 😍😍😍😍😍
Yeah i certainly look at life a whole lot differently nowadays xx
Member

Re: July 2017

Hi Michelle.
I totally get the jealous thing when seeing old people. I first felt that when my dad dropped dead at 69. Watching old couples holding hands and thinking why them and not my Mam and dad. 🤔
Now I see people in their 50s and think lucky you. Will I get there? In fact I had a bad day last week where I thought ‘do I really need to buy anti wrinkle cream anymore if my face isn’t going to get any older’. 😳
I gave myself a hard slap after that thought and moved on. 🙄
It is the loveliest thing in the world when a little person loves you. I’m granny. People always say how can you be a granny you’re so young. At 44 I am a young granny, but a very very grateful one.
When I had my twins at 16 I thought ‘have I wasted my life’. Now I know it was meant to be.
Anyway, on a brighter note, let’s all enjoy what’s left of the good (ish) weather. My garden has had a haircut today and is looking rather splendid. Xxxx
Member

Re: July 2017

The wind is harsh isn't it been shopping today for Ellas birthday presents well the rest of them, i was bloody knackered when i got back i just don't seem to have the stamina any more!!
Ah a bet rbe funeral was a sad occasion but wow 99 i don't know why but ever since diagnosis I feel a twinge of envy when i see real oldies celebrating a long life and feel how unjust it is that some people are able to do that when orhers aren't then i feel spiteful for thinking like that good on her i bet some of her stories were fantastic and yeah you right living in the olden days with fashions and breakthroughs in technology things we take for granted we're not even around it seems surreal doesn't it im pleased you had a close relationship with her irs lovely to have someone in your life like that i miss having grandparents its a special relationship i love being a Granma its totally different to being a mam 💖
I think i might go in the garden tomorrow for a little potter before the weather changes and get it ready for winter nit that i can do much atm so frustrating this neck thing i literally need someone to do nearly everything little thing couldn't even carry shopping bags which i part of the experience u think 😂😂
Anyway i need to stop my winging Angela use your persuasive charm and plan that next break 👍
Member

Re: July 2017

Morning ladies.
I’ve hope you’ve all had a good week.
Hi Michelle. I’ve been to Macmillan at my local hospital, but not maggies as it’s just too far away.
It’s lovely that you and your Mam are donating to the fete. It’ll be lovely.
I’m not enjoying this windy weather, although the bitterness in the wind does help with my hot flushes. 😀 there’s always a bright side.
Pleased you had a nice time in Scotland. I’m starting the get itchy feet for a holiday. I just need to do a bit of arm twisting first I think.
I was at an old neighbours funeral yesterday. It was a sad day, she was such a lovely lady and like a nana to me. She was 99. 😳 what a long life. Seeing photos of her when she was young it was hard to get my head around what they were wearing. She was alive in the OLDEN days.
We’ve not got much on this weekend. A bit of tree trimming and the family for dinner tomorrow.
I hope everyone is doing well. It’s appointment after appointment for me next week. Xxx
Member

Re: July 2017

Hi ladies just checking in on you all hoping everyone is OK and had a good week
Enjoyed Scotland but was pleased to get home before the gales hit!!!!
Angela i don't k ow if you are aware but the Maggies based in Freeman hospital grounds has a secondary bc support group i don't know if its your thing or not but I thought i would mention it
They are having a xmas fete 24 November so my mam has been making cards gift boxes etc to help raise some funds im going to make a hamper for the raffle i will be attending as they got me through some tough times during my chemo days when i lost dad and im eternally grateful to them for that, i don't attend now as i feel im ok without it but will continue to support them and attend events lije that
Hope everyone isn't too badly effected by the wind im off to take izzy for a walk before it gets up again xxx
Member

Re: July 2017

Hoping you have a lovely time in Scotland Michelle. Isn’t it just great to get away for a few days.
I LOVE holidays. My hubby isn’t so keen. He’d rather stay at home.
He’s not a very willing masseuse either Carole. I make him do it bless him 😂

I’m coping well with the meds Michelle. Won’t find out if they’re doing their job until 3 month scan which is about 6 weeks off. Sure the fear monster will try and creep back in as that approaches. 🙃
Until then I’m staying positive. 👍

I’m hand holding back. Xxxx
Member

Re: July 2017

Thanks Angela I will look at that one.  With my chemo brain I just couldn’t face trying to sort a potted history of the last five years where I’ve learched from one hospital to another.  

I’m not sure I could get husband to massage my feet as he would want me to return the favour with his bad feet! Yuk!, never liked his feet 🤣

Member

Re: July 2017

Carole enjoy your trip im going to Scotland for a few days tomorrow Angela hsve a lovely day out with your mam and daughters its quite nice out but chilly but sunny
Missa hope you are feeling a little better today and yeah fab news about the trial immunotherapy im have every faith you will be in the group that receives it and the her status as Angela says opens up possibilities for othe drugs which you may not have benefit from before i hope yiu have ordered that pillow!! Tatanya you toi lovely have a good weekend im not sure how weather is going to fair up but hopefully you will get some time in your garden and Kimi hi too haven't heard from you in a while hope all is good
Angela how you doing on your treatment i hope its going well xx take care ladies as always got your hands 👭👭👭
Member

Re: July 2017

Morning Carole.
Your holiday sounds absolutely lovely. Just watching the weather and apparently temperatures are on the rise. 🌞
Apparently insurewith was set up by someone with bc and is very good so maybe something for you to look into for next year.
A lot of secondary ladies use it. I spoke to one lady in the chemo ward who has all sorts of ailments as well as liver and bone mets and she paid around £105 for insurance with them for a holiday to lanzarote.

Hoping you find the perfect pair of comfy shoes. My husband has been rubbing my foot while we watch telly on a night and it seems to be working. 😳😳
Totally shocked; it isn’t half as bad as it was. Xxx
Member

Re: July 2017

Have a good day out x
Member

Re: July 2017

Missy that’s great having a friend donate that to you.  I think you need a TV in the bedroom and a goose down pillow. As Angela says get the occupational therapist to provide lots of free aids to help you in the house.  If you are on immunotherapy there are very good things coming out of that, even cures according to the news.

as Angela says maybe HER drugs will help too. 

 

I’m off to buy comfy shoes today.  GP doesn’t know if it’s Letrozole side effect or plantar fasciitis or something but suggests comfy supportive shoes amongst other things.  Something else to make me look old 😕👞👞👟

 

i wanted to holiday abroad this year but insurance is just too complicated as I’ve had lots of other health problems in last five years and they want details of everything 😩.  So I have organised a bit of a trip for our last week holiday of the year.  We are going  to Windsor to see the castle etc for one night, then beautiful Bath for three nights, where I’m meeting a few chemo buddies, then on to my favourite spiritual home St Ives for three nights.  Can’t wait. 😀🏰🕍🏖🚙💜

Member

Re: July 2017

Morning ladies.
Missa you have some very generous friends which speaks volumes about how well liked you are. 😀
Hoping social services have sent in an occupational therapist to sort out your equipment.
A telly in the bedroom sounds like a great idea. I’m enjoying better call Saul on Netflix at the minute. Also a thumbs up for peaky blinders.
I had a read about your trial. Sounds good. It is an immunotherapy drug so 🤞 you’re on it. Bloody brilliant news about your breathing. 😀😀😀
When I was first diagnosed with liver mets they biopsied to see if the cancer receptors had changed. Apparently they do in around 30% of cases.
This could hopefully be beneficial to you as you’d become eligible for other drugs. 🤔
Hoping everyone else is good today.
I’m off out for lunch this afternoon with my mam and two daughters. Happy days. 😀
Member

Re: July 2017

Missa that is interesting about the her 2 does that mean you may benefit from herceptin now? Im pleased the maggies are contacting re the aids and adaptions to your house it will make things so much easier for you getting about im pleased to hear that your pain is settling a little and you are persuasive enough to get a tv in bedroom are you watching anything giod at the moment i have been watching box sets on Netflix my son has an account so i got an amazon fire stick so we can use it too im currently re running Peaky Blinders which i have to say i could watch over and never get tired of it fab programme also got into the Crown decided to see what all the fuss was about its really good its hard to imagine prince Philip in his younger days but i reckon the guy who plays him Matt thingy from Dr Who has got it spot on!!!!!
That was lovely of your friend to give you that voucher treat yourself to seem really nice pillows i love the goose down ones expensive but i love them x
Very good to hear they are keeping you on the trial too xx
Take care xxx
Member

Re: July 2017

Hi all, how are you doing today?
An interesting appointment today with my clinical trial nurse and a random onc covering for the head of the trial. They did a biopsy of my groin nodes as part of the pre-trial testing and the results have shown that I now have small amounts of HER cancer cells mixed in with the triple negative cancer cells. Apparently it can mutate into a different type. I was worried about them pulling me off the trial but they're continuing as is for now.
Still in pain but it's bearable. Interestingly the little wheeze I had when I breathed in deeply seems to have gone, which is hopefully a good sign for my lungs.
Got in touch with social services as Maggie centre advised me that they're responsible for stuff like wheelchair ramps and bath lifts as really starting to struggle to get in and out of the bath. Husband been washing my hair with my head over the bath and I've been doing a sink wash but not the same as a proper shower. I feel the same age as my gran and she's almost 70...
Friend donating a £300 amazon voucher she won in work to me so we can spend it on something nice. Husband trying to persuade me to get a TV for the bedroom. I've said no since he moved in with me years ago but given the amount of time I'm spending in bed atm I'm softening to the idea although I might insist on some new pillows and a cup holder for the wheelchair 😂
Shi Community Champion
Community Champion

Re: July 2017

Patricia prijatel not Patricia privately 🤣😂🤣🤣sorry text gremlins about ladies 💕💕✨✨Shi xx
Shi Community Champion
Community Champion

Re: July 2017

Missa ❤️❤️❤️😘😘😘🤞🤞🤞🤞the trial is success 🙏🙏🙏🙏 M D Anderson in USA have been making great strides for tn and also Patricia privately who is a tn survivor has a good blog for info 😘😘😘hi tatyana how lovely you spent some time with grandson, they are sunshine for the soul aren’t they😘😘 I was in a shopping centre and there was a car in there, someone’s little boy snook in the car and tooted the horn 😂🤣😂🤣😂it echoed really loud round the shopping centre, the mum looked so embarrassed as she took him out and away from the car with everyone watching and the little boy was just laughing his head off 😂🤣😂🤣😂🤣children’s laughter there is nothing that sounds as beautiful is there 😘😘😘💕💕💕✨✨✨Shi xx
Member

Re: July 2017

Missa lovely to hear the news of your little neice who is arriving soon what a lovely name lily and a wedding is always guaranteed to make you happy isn't it!!! I echo the girls re the trial im sending you loads of positive vibes you are a 💪 lass and enjoy your nee soon to be Auntie Missa status bye the way can i also say your husband is an absolute gem where did you find him!!! Seriously though Missa i have told you before he sounds so wonderful and he is your rock so enjoy your, you him and the cat cuddles on the sofa
Michele 👭
Member

Re: July 2017

Missa I’m pleased you have a new baby and a big wedding to look forward to. A positive focus is good and I pray you will be around for a long while yet and watch Lily grow up. How old are you? Is immunotherapy an option for you?
Have a good Sunday everyone.
Member

Re: July 2017

Morning missa.
It’s great that you have things to look forward to. We have to try and enjoy every day so this disease takes as little as possible from us.
I’m not religious but I’m asking the universe to please let this clinical trial work for you. Don’t give up.
I’m also on the American inspire site where there’s a lot posted about clinical trials and I know some of these are having success with TN ladies. I’m not giving up hope that yours will work for you. You’re such a positive young woman with a good sense of humour and I’m sure this is helping you through the tough days.
Hang in there and try to take some pleasure from every day. Scary as they can be.
P.S. your husband sounds fantastic, you definitely picked a good one. Xxxxx
Member

Re: July 2017

Missa, I'm so glad you have some good stuff to look forward to, a wedding and a new neice! And Lily is such a beautiful name. You sound so positive in spite of all the cr*p that this horrible disease is throwing at you. I know how hard it can be, so well done you! Every happy moment feels like a victory, even if it's someone else's happy moment!
Member

Re: July 2017

Thanks for the kind words ladies.
I've been liaising with the macmillan palliative BC nurse who is a whizz with pain relief apparently. She's tweaked my meds a few times and aside from a couple of really bad days I can tolerate some discomfort. They had me on oramorph but it made me really spacey so switched to oxynorm. They're both opiate based and whilst they do work for pain, they don't half mess with my digestive system!
It's been chucking it down all day here so just had a sofa day with the cat and husband. I really don't know what I'd do without him. I need help getting dressed, getting out of bed and in and out of the bath. He's doing all the cooking and housework too. Luckily he's self employed so can do this but the measly as hell DWP will only pay him £280 A MONTH for 140 hours of caring. £2 an hour. Isn't it a joke?
I guess I'm lucky only having a very small bust. I lost 23lbs between Jan and July this year (the majority I'm going to say deliberately) so my silicone boob is now too big so I'm sticking with my knitted knocker. Although I've mostly given up wearing a bra since the underband digs into my rather tender ribs at the moment.
Somewhat relatedly, I did get rather drunk at a house party a couple of months ago and decided all my closest friends needed to see my scar and so just unhooked my bra and whipped my top up 😂 luckily we're a very tight knit group and everyone was very supportive!
I don't know if it's of any use to anyone but I'm on the Impassion132 trial at the Christie.
Tatyana, sorry to hear about the picc, your poor veins are having a hell of a time. They've insisted on a port for me since the trial requires a whole host of additional blood tests and I'm down to one arm owing to the lymphodema. I refused the final blood test after I'd had treatment last week. Bless her, the nurse was so lovely and she tried her best but it just wasn't happening and I was miserable and in pain so just went home. I hope they'll replace your picc with a port ASAP. They look so much simpler.
So for some good news, my second niece is due on the 5th Nov and I am determined to cling on until then to meet her. Me and my husband said if we chose to have kids and had a girl we'd call her Lilth Rose, Lily for short. I don't know if I ever told my sister this but my niece is going to be called Lily. My sister got engaged too, was meant to be a long engagement but they've brought the wedding forward to 24th Nov this year so I can be there. Lots of good stuff to look forward to.
Member

Re: July 2017

Well girls i hace a ff to g on my good boob and naughty boob is a ee to f so i now call them little and large and yes the after effects of treatment even as a tn lady with no extra drugs my neck thing according to my neuro doc could have been made worse by the radio therapy his words and wants to check density of my bones after a chemical menopause my gift from chemo!!!!
Heres to scarfes floaty tops wonky titties and oh dodgy hair haha enjoy the weekend everyone xxx
Member

Re: July 2017

That is big Carole. 😳 the rest of the women in my family are f cups so I suppose I’m lucky. 😀
Here’s hoping your get your diep soon. 👍 x
Member

Re: July 2017

I’m a 38dd, or I was when I had two!  Going to ask the plastic surgeon to reduce me down to no bigger than a C.  Weirdly I kind of resent my big droopy surviving boob because I have to match up to it.

Member

Re: July 2017

Yes Carole. The effects of bc treatment are lasting. I know what you mean about the boob. I’m having the most terrible hot flushes and this massive silicone thing stuffed in my bra is doing me no favours. 34D. 😳 And I really miss having two. 🙁
I guess that’s another thing I just have to put up with. 🙄
Haha. I definitely think we can cope with a few swear words tatyana. And I think we probably say a few more than other people, even if they are under our breath. 😀
Member

Re: July 2017

Carole, I'm with you with the big prints and long scarves -- so glad the weather is a bit cooler and I can wear nice drapey scarves or long cardies without getting boiling hot! Nobody tells you how uncomfortable a falsie is.  I'm still very sore in that area (swollen glands etc due to secondaries and also inflammation from the chemo sometimes) so I can only cope with a softie. No matter how many different bras I try, I can never find anything that is comfy all day. I honestly wish I'd asked them to do a boob reduction on my good side at the same time, so I wasn't so lopsided and could just go bra-less all the time! Hey-ho.

Member

Re: July 2017

Angela, I think we can cope with more than a few rude words after all we've been through, don't you?!! ;-)

Carole and Mishy, totally understand your feelings, I had 15 good years after my first diagnosis and all that time it was at the back of my mind somewhere that it might come back. Having said that, as time goes on you do worry about it less, and it honestly does help you to enjoy life more, because unlike most people, we genuinely understand that hey, we're not here forever, only for now!

So Carole, enjoy your celebrations, and Mishy enjoy your lovely granddaughter.  How quickly a year has past, surely she was only just born a few weeks ago! Saw my six-year-old grandson last week, such a boost to the spirits getting a guided tour from him of his favourite playground, complete with descriptions of what you can do in the sandpit, the pirate ship, etc!

All the best to everyone, with and without secondaries, hang on in there and enjoy the sunshine...which we just had a very brief glimpse of here, even though it's only just stopped raining!

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Re: July 2017

Angela you’re right it is a **bleep**ty disease. Even without the secondaries we are left with many problems. I’m seeing GP on Monday to see if I should stop letrozole for a few weeks and see if it helps my many side effects like my feet. People don’t understand that and say well you wouldn’t stop taking it. They think it gives me a guarantee of keeping cancer free and have no idea how bad I feel sometimes. Well I probably will continue with it for the extra percentage it’s adds to my chances but I’d like to know how many of my side effects are due to it.
Also I have a bad sore at the moment at my mx site because the surgeon left a load of folded skin after removing rejected expander and with the silicone prosthesis it gets very little airflow. But nobody understands that I am hoping for Diep recon. They just say you wouldn’t know I’d had a mx. Well I would with the lopsided, different sized uncomfortable false boob. So now I’m walking around as a uniboober to let the sore heel. Thank God for flowery shirts and long scarves x
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Re: July 2017

Maybe you ladies wouldn’t of been able to cope with a word that is similar to poo. 🙄😂
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Re: July 2017

Oh. No swearing then. 😂
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Re: July 2017

Ps. That was supposed to say **bleep**TY disease.
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Re: July 2017

Morning Carole and Michelle.
I totally understand your anxiety. I was the same before my secondary diagnosis. People used to say ‘so have you been given the all clear now’ as if that’s what really happens and then that’s the end of that.

There’s so much people don’t know about bc. One of my friends couldn’t get his head around the fact that it was in my liver. He said that’s not possible, it’s BREAST cancer.
I think the absolute truth about this **bleep**ty disease would shock most people.
Anyway, enough doom and gloom. Yes, let’s all hopefully get outside today and enjoy some nature and sunshine. And obviously in my case I’m sure that will include a glass or two or three of wine. 🙄
Making the most of my liver while it’s still working well. 😀🥂
🥂🥂🥂🥂 to your hubby Carole. Hope yous have a wonderful weekend. Xxx
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Re: July 2017

Sorry Missa not Mussa xxx
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Re: July 2017

Carole thats exactly how i feel i hope you are well apart from your foot and hope you have a fab time at the theatre and your hubby has a lovely birthday sorry for the rant before ladies it just gets to me for all if you it really does you are all such 💪👭
Hopefully the sun will come back out today and we can all get iut and enjoy it Mussa you will be able to get out and about so much now apparently we are having an Indian summer this month i hope so as it was chucking it down yesterday in Newcastle 😂seeing my little Grandaughter today always guaranteed to make me smile that one!!! I cannot believe she will be one in a few weeks 😨