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July 2017

Member

Re: July 2017

Hi ladies
Missa I’m sorry you are having such pain and problems. I can’t imagine how you are coping emotionally and physically. Make sure you get out in that wheelchair and enjoy the sun, trees, flowers etc. So good for the spirit to be out with nature.

Tatyana that is a pain having the PICC again. I was so grateful for mine during chemo but oh so glad to have it taken out. Wouldn’t want one again! I agree with Angela perhaps the port would be better and less limiting.

I know I’m lucky not to have secondaries (that I know of) but it is always there in my mind and I still find planning the future is hard and don’t know what to say when people ask if I’m all over the cancer. I feel like I’m tempting fate if I make out that I’m cured but on the other hand don’t want to believe that it could possibly come back. We just have to live for the moment and hope for the best.
Hope you all have a good weekend. My husband’s birthday today so we are off to the theatre tonight and family round tomorrow xx
Member

Re: July 2017

Morning ladies Tatanya good to hear from you sorry about the picc line how frustrating Angela hi i will look you up on Twitter today!! Reading through the recent posts from all of you has made me feel so frustrated i can't believe that a trial offered for secondries would have a placebo i know they have do obviously do the trial but surely they should make shre if you have multiple mets they would make sure the drug is given when i finished my treatments i practically begged my onc if there were any trials iht the for TN prevention trials could i go on but not, i agree too tgey are so flippant to suggest that they think you are cured when actually thats not quite often the case my family think I'm negative when i say i have cine ti terms with the possibility that mine will come back it may nit also, i know so many who have and it it rubbish to think that still in 2018 this happens thank god for this forum and everyone on jt, its a scary **bleep**ty cruel disease i truly hope as research advances they can offer more i am just pleased to hear that you are all tolerating the drugs Missa hope you are feeling a little better today sweetie fir now kadies 💖👭
Member

Re: July 2017

It’s good that at least they’re open to the idea tatyana. I really hope you manage to get one. The pic lines seem awful. Another one of the crappy things we have to bear. Xxx
Member

Re: July 2017

I asked about a port and in theory they would do it, but apparently you have to wait ten days for the implant to heal before you can get chemo, and they didn't want to delay anymore at the moment. Maybe when I've finished my planned six cycles of gemcarbo ( this is number four), depending on what's next!! It does sound like a good idea, I met a lady on the ward who showed me hers and was thrilled with it!
Member

Re: July 2017

Morning tatyana.

Good you could have your chemo but sorry to hear about the pic line. 🙁 could you not have a port? I’m not 100% sure but it seems the in America this is the standard now. A pic line can effect holiday insurance? And as you say things like swimming.
My veins are also knackered. I absolutely dread getting bloods taken now. You’d of thought I’d stuck an orange up my arm the last time my gp took it.

About the 60 to 70% who are apparently cured. 🤔. As most women who get bc are over 50 most of them just die of something else before the cancer wakes up. I’m not sure I believe anyone is actually cured.
Here’s hoping that these TIL and immunotherapy trials can actually bring an end to this disgusting disease.
I think if more people knew the actual true figures then more money would be put into secondary treatments. Here’s hoping. 🙄 xxx
Member

Re: July 2017

Hi Angela, yes thanks my bloods were fine so I got my treatment, but a reduced dose in the hope of not hitting the blood so hard next time. I'm happy with that, if having a smaller dose means it doesn't keep getting postponed!

What I'm less happy about is that they've finally given up on my veins after repeated trouble with cannulas and this time some of the chemo fluid started leaking from my poor leaky vein, you can't have that! So they sent me straight down to ultrasound to have a picc line put in, then I came back and got what was left of my chemo dose!

I was hoping to avoid a picc this time cos it's just a hassle, no swimming (but I wasn't swimming anyway because of infection risk with my feeble neuts), an awkward shower sleeve which I hate with a passion, and an extra weekly trip to get it flushed. But hey, at least I'm spared all those needless needles!

I so agree with you about the lack of attention to secondaries and especially TN. After my first cancer diagnosis I eventually figured out that what they were really saying is that it may never be cured, only if you are lucky you'll die quietly of something else in old age before it has time to get you! But I don't mean to be too pessimistic, because of course for 70% of people it never does come back!

Member

Re: July 2017

Morning ladies.

Missa I wish I could give you a hug so I’m sending a virtual one and crossing everything that this clinical trial works for you. I hate that you may be on a placebo. I understand the need for this sometimes to eliminate the power of mind possibility but for secondary patients it just seems like too much of a gamble.
They say 30 to 40% of ladies with primary bc will go on to develop mets (nobody tells us that) yet only around 3% of government funding for bc goes into secondary research.
It’s absolutely shocking that there aren’t more treatments available. And much much more needs to be done for tn ladies. It makes me so angry.
Sorry for the rant. When I get my head around my new situation I’m going to start campaigning or something. Haven’t decided what, but feel I need to be doing something rather than just sitting back complaining.
On a nicer note, the wheelchair, what a great thing for your friends to do and what a lovely uncle you have. I’m hoping the cape works wonders for you.
Michelle I’m on Twitter. Stupid long name
Angelao56980027
Good to hear from you tatyana. Hoping your bloods were good this week.
Good to hear from you too shi. Hoping we all have a lovely weekend. Xxxx
Member

Re: July 2017

Missa, so sorry you are having such a hard time. Do press them on the pain relief. Who's looking after this side of things for you? Sometimes the GP is good at pain management, or else the Macmillan nurses can help. Don't be shy about asking anyone and everyone until you find something that works. And fingers crossed for the cape, I know some people have had very good results and minimal SEs.
How lovely your friends are to get you the wheelchair, and your uncle for fundraising. Aren't people amazing! Sending love.
Shi Community Champion
Community Champion

Re: July 2017

Missa❤️❤️❤️Sorry beautiful that you are in pain, have you spoken to your team to see if you can have any painkillers/morphine? That’s a beautiful thing that your friends have done with the gift ❤️❤️And positive news about the clinical trial 👍👍you will be monitored closely won’t you even if you are on the placebo? I take cbd oil and black cumin seed oil as a tn, have you tried either of these? 👭👭👭we ❤️❤️❤️You and always here for you 💕💕💕Shi xx
Member

Re: July 2017

Re the trial missa why do you nit find out which group you are in and are there no others with guaranteed treatment i know that there are different trials going on but don't know if it is in different trusts and certain criteria to get them xxx
Member

Re: July 2017

Hiya Missa do not apologise for feeling weepy you are having such a tough time atm and i cannot begin to imagine how it can be affecting you so you must be kind to yourself , your freinds gesture is a reminder of just how lovely some people can be how lovely they did this for you so you can get out and about with your family im nit in Facebook Missa but know that the group is meant to be a fab one im nit in WhatsApp either i know some of the girls i met at the maggies and hospital are but i am on twitter if you are on that ir any of you July girls
The soine pain i can empathise with you a little on that and don't have mets its so bloody frustrating knowing thst my lovely July girls are going through this its so unfair i want you all to know i hold your hands wherever you are sending you 👭👭💖💖 and positive vibes xxx
Member

Re: July 2017

Hi ladies,
Well I'm back on the chemo wagon. Tablet based capecitabine this time. I also just scraped my way onto a clinical trial for metastatic TNBC. Only a 50% chance of getting it or the placebo but we'll have to see I guess.
Doesn't seem to be as bad as the tax/carbo or the EC fortunately but the secondaries themselves are causing no end of pain. I'm on slow release oxycodone to help with the hip/leg/spine pain but I'll be honest, it's getting worse and quickly. Guts are in chaos from the handfuls of pills I take daily and I wheeze when I breathe in from the lung mets. Sorry kinda been a rough week so feeling pretty low about it all.
Friends pooled together and bought me an all black, easy to manœuvre wheelchair, I couldn't stop crying when they gave it to me.
Mishy are you in the TNBC warrior group on fb?
My uncle did a 100 mile bike ride for the Christie and raised £771 which I'm pretty chuffed about.
I hope you're all as well as you can be and although I don't post often, you ladies are often in my thoughts. We started this journey together and although we met through awful circumstances I'm so pleased to have met you.
Member

Re: July 2017

Hi Tatanya thanks i feel better now i know that the wheels are in motion it was definitely a tear jerker wasn't it but a lovely film i am sending you 💃💃💃💃💃💃💃💃💃💃💃💃💃💃💃💃💃💃💃💃💃💃 this fot Thursday no delays fingers crossed when you want to get it done and pleased you are ok in between treatments is it in cycles like the chemo you were in last time??? I think you are a real trouper all if you having to do his actually
Enjoy looking around your freinds house and the day ojt of course its going to be lovely weather again so we need to make the most if it xxx
Member

Re: July 2017

Hi everyone, Mishy I hope your pain is under control, it's not fair to have to go through all this, but at least it sounds like they have a plan. I also cried buckets in Mamma Mia 2 and so did hubby! Loved it. Angela and Carole, hope you are doing ok too. Kimi you sound busy busy busy, but at least some of it is fun! I'm still on gemcarbo and having treatment postponed almost every time but am ok in between ( please do your best blood dance for me on Thursday!). Off to see some old friends today in their new (old) house in Wiltshire, don't you just love looking around people's houses! Big hugs to you all.xxx
Member

Re: July 2017

Not letting the anxiety monster take over and i remember someone along time ago telling me pain is a controlled emotion i know when your distracted you don't notice it as much haha and yours is probably just different not any less than mine if you know what I mean i hope you have a brilliant time at the beer garden its definitely the right weather for it and bloody why not eh!!!! Cheers 👍🍺
Speak soon xx
Member

Re: July 2017

What a carry on Michelle. When will we get some peace. 🙄
At least they seem to be keeping a close eye on you. You’ll just have to try and switch off from it until you’re next scan is due. And hopefully you’ll manage the pain.
Whenever I mention pain I just seem to be brushed off. Like it’s not really important given the circumstances. I’m not in bad pain like you mind, but shouldn’t be feeling like this at 44.
Anyway, my daughter is just about to do my gel nails. Getting myself prepped to go for a few drinks in a beer garden then a curry later. That doesn’t sound like too bad of a Sunday does it. 😀
Member

Re: July 2017

Thsnks for those positive vibes Angela was ok have to ahave a couple more mris of neck in different positions to check how much the cord is compromised when moving going to ct brain too probably ruling out all other options for symptoms will see me in 8 weeks with further results and plan, if i get worse in meantime though he says i have to get in touch and they would admit mel told me of red flag symptoms to be aware of but i think if im careful etc i should be fine till i see him next oh the joys!!!
Its been lovely hasn't it bet your enjoying the sun too xx
Member

Re: July 2017

Morning ladies. Hoping you’re all enjoying the lovely weather.
Just popping in to see how your appointment went Michelle? Sending you positive vibes and a hug. Xxx
I hope everyone else is doing well. Xxx
Member

Re: July 2017

Hi Kimi you sound very busy!!! But great to hear you are doing well a Cornwall trip will be lovely going to have a cracking September according to the weather forecast im off to Scotland on 14th for 4 days Loch lomand hope my doc lets me go, i got a call yesterday from neuro he has brought my app forward wants to see me Saturday after looking atm my mri at least im going to know whats going on but 😨 about surgery promised myself i wouldn't be doing that again unless it was bc recurrence related and i had to but its a have to situation with this too!!!
Angela how are things with new treatment hope you are feeling OK with it Missa how are you getting on im hoping things are improving for you with treatments Tatanya you too Carole
Hows you too good luck with the appointment for your diep x this sunshine is lovely after the rain for those of us not at work it means extra garden or day out time xx
Went to see mamma mia with daughter last night cried my eyes out its a hanky job near the end its a bit cheesy and at the start cringy in places but soon picked up pace it has a better story thsn the first one
Ladies for niw 💖💪👭
Member

Re: July 2017

Hi Lovlies.

How are you all doing?

Did they manage to start your treatment Missa? Hope they’re getting it underway for you, goodness knows what mischief you & that wheelchair will get into if not, more smuggling! Seriously though, I hope you’re on “the road” again, need to get on with it for you.

You too, Mishy, Tatyana & Ftf, hope you’re all getting somewhere with treatments, claims etc, & good luck at EG Carole, you’ll be in good hands there, I’ll visit if you’re there longer enough! 

My foot is slightly improved, but still limping, & not really doing much exercise, maybe I need to do the push through pain thing, but I won’t be able to walk the next day!  that Onc from Marsden said it was nothing to do with meds, well, strange how a few of us are affected!

My son finally exchanged contracts on his new flat yesterday, & moves in in a couple of weeks on his 25th birthday, not impressed with that, but I think that’s a nice birthday present, trip to Ikea for me on Sunday.

Daughter back from girlie holiday to Majorca, had a fab time but bit low again, but she disappeared out last night quite chirpy so hopefully a date, not allowed to ask! Fingers crossed though, don’t need a 30 year old blocking the bathroom for too long.

My husband & I are off to Cornwall in a couple of weeks for a few days break, hopefully summer will return, I still have my Mum’s ashes to sort out, last year was busy!!! My Dad’s are in the Church in Tintagel, so she will be joining him. We’ll get that done soonest & hopefully then a few days of nice weather and chilling.

Work is very tiring, we’re a very busy sedation clinic & I’m doing extra days as we’re in process of training two new staff members, but stops the overthinking, just asleep on sofa by 7pm, but so’s the old man, so hey, that’s me, him & our elderly cat snoring & missing Eastenders!

Day off today & still in bed, I wake up feeling as though I’ve not been asleep, are you all still suffering with the tiredness, I did think it would start to be better by now, must get showered in a minute, going to look at this new flat and the supermarket calls, again!

Lots of love and luck

Still holding and squeezing hands together.

love Kim xxx

 

Member

Re: July 2017

Good to hear from you Kimi.
It sounds like you’re living life full throttle again. 😀
Our kids always keep us on our toes don’t they, doesn’t matter how old they are.
I spoke to my onco on Friday about my painful right foot. He just said it’s a very common side effect of letrozole and that I should start jogging again. I stopped as it was just too painful.
Apparently if I push past the pain and continue exercising it might improve. 🤔
Hope everyone is having a good weekend. 🌧🌈
Member

Re: July 2017

Hi kimi good to hear from you the onc at the Marsden doesn't really sound like he gets it he should have been a little more empathic you haven't exactly just had a bout of fku!! To add although im not on hormone blocking drugs but do get that they will come with SE as most if not all do so he shouldn't be so flippant
Good to hear that you are back at work i crave some normality atm take care and speak soon xxx
Member

Re: July 2017

Hi Kim
Family keeping you busy then. Don’t like the sound of Stavros the consultant. He should try it. My oncologist is very nice but I do feel they lose interest in our side effects and just say “it’s the chemo/rads/letrozole. At least mine suggested a break from letrozole and maybe try tamoxifen. He said side effects shouldn’t be bad enough to
Change your life style. Hahahahahahahaha 🤣🤣🤣. Who’s he trying to kid?
Member

Re: July 2017

Kim, lovely to hear from you! My goodness you have been having a hectic time. What a nightmare with your daughter, sounds like she's MUCH better off without him.
It's a shame that you didn't get to discuss your symptoms properly, you have every right to talk things through with the so-called experts. They may know a lot about cancer treatments and drugs, but they sometimes seem to have very little understanding of what goes on in our brains and emotions.
It's great that you are back at work, to have something "normal" to occupy you and no doubt give you all sorts of other things to worry about, because that's what work does. And it's what we do...we worry! Sending you lots of love and hugs, and for your family too.🌷🌷🌷
Member

Re: July 2017

Hi Lovely Ladies.

I just thought I’d drop in & say Hi, and give everyone a huge hug & hand hold squeeze.

I know I don’t come on here very often now, but I do think of you all a lot & have a quick read to see how you are all getting on.  I am in awe of how some of you girls are coping with all that you are going through, I know there’s not much choice, but you are bloody amazing, my constant anxiety is hard enough for me, that & like Carole constant pain in my left foot which makes me walk with a limp, by the way Carole, the stand in Consultant from The Marsden (Greek man, couldn’t understand much) I saw a couple of weeks ago said “stop blaming the Letrozole” & basically told me to go & get on with my life!!! Not the reassurance I was looking for & never did get to discuss any symptoms I wanted to, so on I worry! 

I do hope the treatments you girls are getting work wonders, and without too many horrible side effects, I don’t read up on too much information, not good for me, but bits and pieces I have read they do seem to have things in the armoury nowadays for secondaries, so I’ve got everything crossed for you, together with op’s that things improve for you all and soon.

Daughter moved in with boyfriend, never did care much for him, they lasted 5 weeks & now she’s back home, my husband, son & myself had to move her & her furniture out in about 3 hours whilst he was at work, that was a fun day, not! Our son is about to move into his own flat, if it ever exchanges contracts, today apparently, been hearing that for 3 weeks!, something to do with “help to buy” & address confirmation?!?! My house & garage look like Big Yellow Storage, saves doing too much housework though!

I’m back at work 3 days a week now, got to say it does really help to keep me busy & stop the anxiety, don’t give up looking for work, ladies of our age are the hardest working & most reliable, so you never know, you might find something, but of course I know I live in the busy South & there is more work here, but good luck to those of you looking. 

Please look after yourselves, loads of love, luck and hugs, your wonderful attitudes will see you through girls, you are amazing, remember.

 

Kim xxx

Member

Re: July 2017

Missa just to also add i hope your scans are ok sending you lots of positive vibes and 👭 take care lovely xx
Member

Re: July 2017

Missa hi lovely i love the rebel in you using your chair to sneak in the cans 👍😂😂😂 just to echo the others i hope the rads zap the piece if 💩 and give you some relief i hear they are good at that loving your positive attitude too missa but what a busy week you have had glad you got to your festival
Your husband is a 🌟 he is definitely a keeper 💖
My app has come through with neurosurgeon 2nd October so not to long to wait the pills they have put me on make me feel a bit spaced out but have definitely helped with the pain
The strangest thing about this is that i cant walk in a strange line i feel a little wobbly like if you are drunk and my arms and hands keep going numb 😨 such a weird sensation i had been blaming it on chemo thought it was the neuropathy getting worse!!!
Any enough of my moaning hope you ladies have a good weekend and Missa sending you a big virtual hug for next weeks rads 👭🤗
Carole great to see you are doing ok but sorry about your foot good luck with the recon app xxx July ladies
Member

Re: July 2017

Missa, lovely to hear from you. Sorry about your mobility issues, that's a really tough one. I've got plenty of aches and pains and can't walk as far as I used to (definitely not uphill!) but it's nothing serious as yet. I do hope the radiotherapy gives you some of your freedom back, I know it can do this sometimes and you deserve some good luck.
Thanks for a great laugh, I'm picturing you and your mates extracting cans of lovely cold beer from the hidden recesses of your wheelchair. Well, if you've got to use the flipping thing, you might as well put it to good use!
Member

Re: July 2017

Oh Missa, I feel for you. I know what you mean about mobility although I’m not in your league at all. I can put up with the joint aches and pains but the foot pain really hinders mobility.
I do hope the rads work quickly and you’re back on your feet soon.

Angela my reflexologist said yesterday that my foot is a bit swollen with fluid where it hurts. She didn’t know why though. Lymph fluid? Inflammation?
Member

Re: July 2017

Hi missa.
Thanks for giving me a laugh this morning. Your wheelchair idea was brilliant. 😂😂🍺🍺🍺

What a week you’ve had. 😳 sending you a million positive vibes that you get some positive news out of these scans etc. Here’s hoping you get the rads asap and they zap these little b******s quick.
I’ve certainly heard of ladies not being able to walk and the rads getting them quickly back on their feet. 👍👍👍💪💪💪
I’ve spoken to my bc nurse and she’s also been brilliant. She’s sorting out my PIP with Macmillan and trying to get me a poor diagnosis so I can get my life insurance. Isn’t it surreal that this is what I’m hoping for. 😂 although I’ve got absolutely no intention of going anywhere fast. We could really do with the money so I’m taking it with a pinch of salt.
Xxx
Member

Re: July 2017

Hello lovely ladies, thanks for asking about me.

I'm okay, still having a million and one appointments while they determine how extensive the damage is. Had a radioactive bone scan, brain MRI and biopsy of my pelvis this week alone 😖 I'm shattered!

Treatment due to start in September although they're talking about starting rads next week as I can hardly walk due to the pelvic tumour.

Was at a metal festival last weekend and spent most of it wheelchair bound. Had loads of fun and my friends all took turns wheeling me about. We figured out we could sneak beer into the arena if we put it under the cushion I was sat on. I was smuggling in 8 cans at a time 😂

Regarding PIP, any of you secondary ladies should apply for it. I saw the benefits advisor at the Maggie centre and she liaised with my breast care nurse and they filled out a form which gets your claim fast tracked. She also got me a blue badge and a £500 Macmillan grant. Going to get her some flowers or chocolates, she's been absolutely amazing.

Admittedly, I am struggling a lot at the moment. My husband has to help me dress and get in and out of the bath. We get taxis everywhere, I can't even manage the walk to the bus stop. That's really getting me down, and it scares me how fast my walking has deteriorated. I can deal with the cancer but the mobility issues are soul destroying 😔
Member

Re: July 2017

Hey Carole. Good to hear from you.
Isn’t it strange this right foot thing. 😳
I’ve had to stop jogging. There’s no chance of me coming off letrozole so I suppose I’ll have to put up with it. I’m literally limping.
Maybe another brand might help. I’m on teva. Xxx
Member

Re: July 2017

Hello ladies

Just checking in to say hello. Sounds like you are all getting on with life and enjoying holidays and grandchildren. Hugs to those of you dealing with secondaries and more treatments.

I’m chugging along with letrozole side effects including very sore right foot. Oncologist suggests I come off letrozole for four weeks and if that cures my side effects then go onto Tamoxifen. I’d rather stay with letrozole if I can as I think it has the best results and I really do not want a new set of side effects from tamoxifen. We’ll see. It’s just my foot that I can’t tolerate forever.
I’m off to east grinstead in September the talk about Diep recon 🤔.
Take care everyone xx
Member

Re: July 2017

Yes this group feels like a bunch of old friends who've been through a lot together, and I feel I can drift away for a while and come back and it still feels the same. I think it's good to have a break sometimes and concentrate on other stuff, but it's priceless to know that the love and support is still here. Big hugs to all the group, Yorkshire folk or not!
Member

Re: July 2017

You’re right Michelle, we have all helped each other. I’m trying to wean myself off the forums. I can get totally obsessed sometimes (especially now).

I’ll always check into this thread now and again though. Just in case one of us needs a friend who understands.
We’ve been through a lot together. I’ve said it before but I mean it; I feel as if I know everyone of our little group.
By the way; my grandad was also a Yorkshire man. Salt of the earth. 😀 xxx
Member

Re: July 2017

Tatanya hello lovely to hear from you i love Yorkshire too my Grandad was from Swaledale a proper Yorkshire man i haven't been in such a long time you have reminded me of that!! Im pleased the SE are ok Tatanya just a pain your blood is playing up heres a blood dance 💃💃💃💃 we haven't been doing that much lately have we don't blame you for having a little break from forum it sometimes does us good i find i like to check in on you all you are all never to far from my thoughts as you all helped me through as i hope i did too 👭
Member

Re: July 2017

Morning tatyana. Lovely to hear from you.

Great that you managed to get away. I love the dales. Keld is one of my favourite places ever. We used to camp there a lot when the children were young.
So pleased that your chemo seems to be working. 🤞😀😀😀🥂
I know what you mean about other appointments slipping by thanks to bc appointments. I haven’t been to the dentist in just over a year. 😳

Here’s hoping you’ll see the grandchildren soon and thank goodness for Facebook, even if it is just to see our loved ones having fun without us. 😀 xxxx
Member

Re: July 2017

You should also get PIP Michelle. It’s not means tested so won’t take into account your redundancy.

I’ve called my bc nurse about it and she’s been brilliant. She’s emailed my local Macmillan advisor for a home visit and also spoke to my oncologist.
I can’t say it’s not a bit depressing knowing I’ll probably never work again. I was looking forward to getting back to it so I understand how you feel.
We’ll just have to use our free time having lovely times instead. 😀
And yes, we just cut our cloth. A little bit extra to do nice things is always a bonus though. 🌞
With a bit of luck you’ll get some lovely autumn sunshine will in Scotland. I love Northumberland too. Just what’s needed to blow the cobwebs away.
On that note; we’re going back Halloween weekend so looking forward to that. 😀

Here’s to a great weekend for both of us. Xxx
Member

Re: July 2017

Hi everyone, I've been away from the forums for a while, just catching up. Angela, I'm so glad your treatment is going ok so far and I adore your positive attitude. You are so strong, lady! Great to hear about you and Michelle enjoying your lovely grandkids. Haven't seen either of mine for a while but I can see from Facebook that they're having a great time on holiday in Devon and Cornwall!

Missa, how's it going with you? I hope you are getting your brain round all this stuff and hanging on in there.

I'm on the third round of gemcarbo, got a scan next week, results the week after. I'm pretty sure it's working at least to some extent, but it will be good to hear the official version. It's a manageable chemo, but it does mess around with my blood so treatment dates have had to be delayed a couple of times. Which is quite frustrating when you try to plan fun things and practical things for the good week, and then it moves! I can't tell you how often I've had to cancel my eye test which is way overdue!

We had a fab week in the Yorkshire dales a couple of weeks ago, lovely weather, less hot than down south which was a great relief! Such a beautiful part of the country. So many sheep!

Hope you ladies are all doing well and sending lots of love.
Member

Re: July 2017

Really pleased to hear you had a good holiday ive booked 4 days away in Scotland in September couldn't get anything for Seahouses full!!! Im going with my aunt for a couple of nights in Apri so i might have to have a run up just for tge odd day out i love it there
I bet you enjoyed the grandson i love spending time with our Ella had some lovely days out with her plessy woods the coast and sruff
Pleased your treatment is going well and you are not having too many SE its sounds like a good treatment you are having which is what you want to kick this twat into touch 💪
I would still try for pip honestly Angela you are unable to work and lots if other ladies on here i see get it also a lady i met at maggies who had bowel cancer with some mets got it i know the forns can be daunting but welfate rights would fill it in for you they would come to you and go through your med stuff etc xx pleased you are going to do your ins thing too you have paid into it, i got my critical illness when diagnosed didn't think i would but ss i was locally advanced i got it really helped me abd still is my redundancy isn't great but its going to pay some bills and help me out
Don't know now about work either i imagine i will have to have surgery on my spine to stop the myelopathy progressing but when i don't know it could be a watch and wait situation but im limited physically what i can do now doc says heavy lifting catrying shopping bending stooping repetitive neck movements are all to be avoided as they could cause further problems i know it will be sorted out so im not worrying just bloody frustrated as my plan for looking for a new job are out of window now
So i will live off redundancy cut my cloth so to speak
One thing having had bc taught me is life is for living and having less money is not something im going to dwell on or the neck thing i am continuing to enjoy what i have riches or none!!!
Sending you virtual hugs and 👭 💖 to you all
Member

Re: July 2017

P.s. yes my treatment is going well. Apart from joint pain, but I had that on tamoxifen anyway. My right foot is giving me particular problems. And hot flushes are back with vengeance. Nothing else to complain about at the minute though. My wbc was slightly low at my last blood test but apparently that’s to be expected on palbociclib. All in all I can’t complain. 🤞
Member

Re: July 2017

Hi Michelle.
Good to hear from you. Our week away was glorious. We never stopped (keeping a 4yr old busy) but it was so lovely to not think about bc every waking minute. Also 😍 to wake up to my lovely little Miles every morning. It was very hard handing him back to his Mam. 🙄
Have you managed to book anything? I’ve heard that the sun is set to return soon and should stay around until we’ll into October. 🤞🤞🤞
Sorry to hear about your myelopathy. 😳
At least you know what’s been causing your problems and it can be dealt with. 👍💪
Re PIP; im going to try and get my life insurance under the terminal rules. Im sure I’ve got a lot longer than 12 months left but who knows! Others have managed to claim theirs so I’m going to give it a try. It would pay for all sorts including any private treatment I might want. 🤞

Tatyana, I hope you managed to get away and that your neuts are keeping themselves in check.

Carole, hoping you’re well. 🌞

Missa; how are you getting on? There’s so much to take in. Sending you virtual hugs and hand holding.
Hoping your treatment is going well. You’re not alone in this. 💪💪💪
Member

Re: July 2017

Oh Angela re the pip contact welfare rights im sure they will advise you differently they have someone who is macmillan trained but specifically help people living with cancer claim xxxx
Member

Re: July 2017

Hi everyone Angela hope you enjoyed your holiday x how are you getting on i do hope everything is going well atm and treatment has been ok for you if you are already started
Missa how you doing lovely sending u 👭 and 💖Tatanya hiya too sending you 💖 Carole glad you are getting on with work and stuff
For me been made redundant now had a mri for pain and few other symptoms came back i have a neurosurgery referral scan has picked up sone stuff in my cervical spine which is causing early stage myelopathy basically some of vertebrate my c spine is indenting in spinal cord causing neuro symptoms probably needing surgery nothing i can't cope with and definitely not complaining but have been informed definitely can't work with this going on incase it is made worse and end up with permanent disability just going to have to make my redundancy last longer than i first thought
Well it looks as though our summer is over girls just over a week ago we were complaining about the lack of rain now it wont bloody stop 🌧️
Take care all of my lovely fellow July girls keep 💪 👭👭👭
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Re: July 2017

World 🙄🙄🙄
Member

Re: July 2017

Morning Michelle.
Thanks for you support. X

We’ve got family who have a caravan in warren caravan park (bamburgh) so we often hire one next to them. There’s an outdoor pool as well so great for my grandson. I’m not great with caravans mind and will be eating out. I’ve got OCD when it comes to cleanliness and even though the caravans are nipping, the thought of strangers using the equipment before me wipes me out. 🙄 crackers eh!
My brother is home for a few weeks (he lives in Spain) and is coming with us so it should be lovely.

Next time you’re there you should try eating at the apple inn in lucker. It’s great.
A break does us the world of good doesn’t it. Doesn’t matter how far afield we go, just getting away from everything makes the work of difference. Xxx
Member

Re: July 2017

Missa sorry about my typos yesterday post i hope it made sense what i was saying i hope everything went well at your meeting yesterday and you have a plan in place keep your chin up be kind to yourself and remember how strong you are been thinking about you i hope you are feeling a little better after the last few days xxxx
Member

Re: July 2017

Angela i forgot to say enjoy Seahouses with the grandson i get what you mean about being a, Gran now shes my world that little girl absolutely love her!! 💖 i was planning on taking a trip there myself as i can't really afford to do much else but i love it tbere anyway where are you staying i fancy staying in the Bamburgh castle inn on the harbour front i have been looking at some b and bs for availability i stayed in Gun Rock the last time I was there the views are something else over looking the sea tbh anywhere would be good aa long aa i can get something i couldn't really plan any that with the work stuff going on but niw i know i really beed a break of some description and with the lovely weather we have had Seahouses is the perfect place have a lovely time x I do hope the immunotherapy will be available for all you second ladies you deserve the best and really from the bottom my heart i am here if you ever want a chat 👭👭👭💖
Member

Re: July 2017

Angela fab to hear you have a really good treatment plan in place love your proactive attitude its brilliant and probably the best way to approach your diagnosis the anxiety with me more comes from the having to have tests which before they wouldn't have done them!! I have a feeling its from my old neck problems getting worse with age!!! Carole i think looking for a new job is always a daunting thought im dreading having to do it all again it would be lovely to not have to work but that's just not real life just couldn't afford it im getting some redundancy which will tide us over but definitely not permanent Angela i def think you should apply for something i would imagine that you have hospital apps etc and the treatment which might make you feel tired etc just a suggestion it might be worth contacting the DWP xxxx
Member

Re: July 2017

Missac so sorry that hear of your mets. It’s a cruel disease when all you want is a bit of pre BC normality. Hope you get good news today for your treatment. I bet you’re already exhausted from tests and anxiety.
Mishy I’m just carrying on with the work at present although nearly told the boss where he could stick it last week. Rather be retired but can’t afford it and I’d never be able to get another job now. Good luck with the scan, sure it will be good.
Tatyana and Angela I hope you’re doing ok. I think of you all, often xxx