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July 2017

Member

Re: July 2017

Miss a. I’m so sorry that you’re joining me and tatyana in the secondaries club.
I totally understand what emotions you are going through at the minute.
It’s an absolute roller coaster.
You’ll find support here on the secondary bone cancer thread. Everyone seems to hang out there.

I think you’ll be entitled to the new targeted therapies drugs as you can have them if it’s your first line of treatment following secondary diagnosis.
That means no chemo with a bit of luck. I’m on zoladex to shut down my ovaries and also letrozole and palbociclib which is apparently a game changer in terms of treatments.its clearing up bone, lung and liver mets for many people.
There are women living for years and years with secondaries now so please don’t think this is a death sentence.
It’s bloody horrible, but not the end.
You’ll also find lots of info on the American site inspire.com. I’ve joined their bc secondary boards.
They seem to trial treatments long before us in the U.K. so it can help you stay ahead of the game.
I’m 44 and DO plan on being around a long time.

Michelle, good to hear from you. I’m sure your scan will be okay. We have all sorts of aches and pains thanks to prior treatments and anxiety.
I agree about enjoying each day. Off to seahouses on Saturday for a week with the family and my gorgeous little grandson. 🌞🌞🌞 light of my life.

Not working is such a worry. The plan was for me to go back to work to help pay off the debt we’ve got into sorting out this house but obviously now it would be very difficult to find work. And to be honest I don’t feel up for it emotionally and I’m full of aches and pains which I think are due to the oestrogen blockers.
My husband has put paying into his pension on hold for two years to free up some money for bills.
He doesn’t retire till 65 and although I plan on living a lot more years yet I have to be honest that it’s unlikely I’ll live over 20 so he won’t need as much to retire on. I’ll be honest that broke my heart this morning.
Who knows, with a bit of luck these new immunotherapy drugs will be available to all secondary ladies in a few years time and we will just have to be short of a few pennies in retirement. 🤞
I rang Macmillan to see if I was entitled to PIP but they said as long as I can plan a journey myself and shower myself I won’t get a penny. 😳
They did send me a cheque for £400 though. I hope youve had yours. X
Member

Re: July 2017

Missa hi sending you 💖 for today, im really sorry to hear your news im sure your team will have a treatment plan ready for you it just sucks that after going through all the op treatments etc you are in this position hopefully the treatment won't be too harsh and the se will be more manageable for you i think its too easy to get complacent about things after treatment that we are cured im trying to be very realistic that this dies happen what a shock that must have been for you i hope you are being kind to yourself xx hats off to you for getting back to work and stuff i never got there ended up being made redundant (Friday) i could have gone on a ohased return but there wasn't going to be an to phase into at the end so i didn't go back im very frustrated and bored had an mri last night for my full spine inc neck as have been in a lot of pain and easily tired my gp ordered it not going to lie im a little anxious about it even though i had a clear bone scan in January x Angela hope you are well and a little further forward with your treatment plan, Tatanya you too i hope things are well with you both
Today is lovely so having a little grandma time today making memories is so special to me now i definitely feel like I have to make the most of everything these days 💖
Carole hiw are you doing with the work thing i found it really upsetting as i know i will probably struggle to get a job now as i don't think i could manage anything more than part time and physically although im walking alot its my neck and nerve type symptoms xx enjoy the lovely weather ladies wishing you the very best for today missa xx
Member

Re: July 2017

Hey lovely ladies, sorry for being quiet for so long. Been busy getting on with life! Back to work although in a new job. Done some travelling too which was good fun.
Unfortunately my last CT scan showed cancer in my liver, lungs and bones so I'm now stage 4. Not been the easiest few days really. Off to see the oncologist today to see what the plan is for treatment. I'm guessing chemo and radiotherapy but we'll see.
Walking with a stick at the moment owing to a suspected tumor pressing on the my sciatic nerve, that's been a lifestyle change and a half as I'm usually so active.
Member

Re: July 2017

My typos 😨
Member

Re: July 2017

Hi everyone Angela glad the biopsies were fine woah extra chunks you are definitely nit a wimp thats for sure i know what you mean though i would be the same i would have let them do anything if I thought it was going to benefit me, love the fact that we all using our gardens as almost therapy it really does work though you can lose yourself for hours deadheading weeding watering etc!!! Watched gardeners world last night tgey should prescribe it on the NHS as a stressbuster!!! I find it very relaxing my kids think im a geek 😂 Got the baby again today and tomorrow i would do it permanent if i could afford it but will look for work once redundancy is through our local Maggies are hosting a Charlotte Tilsbury pamper event next Thursday with brow bars etc only £10 per ticket with the proceeds going to Maggies going to go it should be a good night heres hoping this summer lasts with a little bit of rain to keep the garden happy Angela you could makr that piece of garden a project to distract you 😉
Tatanya gkad your neutrophils are behaving so you can crack on with the new drugs fingers crossed no se 💖👭 to you all x M x
Member

Re: July 2017

Morning ladies.
Tatyana, it’s brilliant that your neuts are back up. Isn’t it so random how they can change so quickly. I’ll be joining you in the blood results game in two weeks time.

Just to report the biopsy was no problem.
They were a bit surprised when I asked if they could take a few extra chunks. Apparently most people want it over as quickly as possible. 😂

I know what you mean about our poor gardens Michelle. Ours is in an absolute state. It’s the size of a small park complete with every tree and plant you can imagine (previous owners were very keen gardeners). We’re water metered so leaving the hosepipe on isn’t an option.
There’s also an enormous pit of despair where we cut out a 4 metre extension. 🙄
It’s overwhelming but it did keep me going last year. The hours I spent digging on chemo when the house was too unsafe to sit in. 😀X
Member

Re: July 2017

Hi Carole! No, I don't have the injections. It's possible I may have them at some point, but they try to avoid it, because in the long term it can make your own bone marrow "lazy" and you stop producing your own white blood cells. So I had the injections for my first line chemo, like a lot of us, but this time around they are hoping to let me recover naturally. We'll see how it goes!
Member

Re: July 2017

Do you have the GCSF injections
Member

Re: July 2017

Good news Tatyana

I remember being pleased when chemo could go
ahead 😩
Member

Re: July 2017

Hey all you lovely ladies, which of you have been secretly doing the neutrophils dance for me? Whoever it was, it worked! Last Friday I scored 1.08, so definitely no chemo for me. Today: 5.1, which is higher than before I started! So it's all systems go for my next dose this Friday. Having been sent home twice in a row, this is really good news!
I don't know how you guys all cope with the genetics stuff, I haven't had to worry about as I've no kids of my own, only my two lovely stepkids and step grandkids, who can't possibly inherit this horrible disease from me. I'm sending love and hugs to all of you and your families.
Member

Re: July 2017

Mishy pleased you got the all clear on BRCA. Yes I was more worried for daughter and grandkids. In a way BRCA would have been more straightforward for me. Could have just got second Mx and been done with. Instead we have to wait for new research. My daughter has also been told she can get screening from 40.
Member

Re: July 2017

Angela i know what you mean my genetics counsellor said just that i think when Holly goes back she will be in hrr mid 30s shes nearly 28 now its just not something you can totally dismiss is it i have drummed it in to her to be aware of any changes i think she will be, im really pleased you are being so positive about everything you have a really great treatment plan there and tge best attitude to get you through it, i hope this sun keeps shining for you as you have your spa day x 💖 for later 👭
Member

Re: July 2017

Thanks Tatanya hows things going for you i know you had a change of meds, i know you have had a lot of things to deal with and pleased you have a pension which will make things easier for you and you don't have to worry about it xx well the suns out after 2 days if cooler weather and rsin, it was definitely needed my garden was dry luckily my back garden in a gravel garden with lots of containers a few small trees it was my border at the back which has suffered the most which is normally a really shady area but thr plants were nit looking their best i love my garden it has kept me sane!!! No holiday for me this year just can't afford it might go to Seahouses for a night or two xx byr for now ladies speak soon x
Member

Re: July 2017

That’s great new Michelle. The only reason I was worried was for my daughters. Yes, they’ll get early screening, as will my cousin.
What’s worrying is that we probably do have a gene it’s just that they haven’t found it yet. One of my daughters is in her last year at uni studying genetics. Who knows, maybe she’ll find it for us. 😀

I’m not worried about the biopsy. I’m looking forward to finding out the results. No pain, no gain. 😀👍
Xxx
Member

Re: July 2017

Mishy, so pleased the test came back negative, you must've been so worried! Good luck with finding something part time and getting a good balance in your life. Hugs to all you lovely ladies.xx
Member

Re: July 2017

Hi Angela hi yeah im ok x sorry didn't post got the call back 6pm!! Braca is negative was really relieved as i really dreaded passing it on to my daughter and possibly Grandaughter however tgey have told me the same as you and Carole, interesting!!! They also will see Holly in about 5 years when she will be in her mid to see if there is any development in the screening process and with her permission tgey will contact her gp to get tge ball rolling for screening at 40 not 50 which is great i think Angela will they screen your daughter earlier??? I don't know about anyone else it was the fear of passing it on which worried me nit about myself i woukd have dealt with it like i have the bc took it in my stride just couldn't imagine how guilty i would have felt if my girls were at risk from braca
Thank you bith for thinking of me Angela good luck for the biopsies i know you as you say you are a machine i still remember you sitting on a bucket in a building site bang in the middle of chemo you've got this 👍👍👍👍 guve it a bit of 🖕🖕🖕🖕🖕 us Northerners are hard mother - - - - - - - 😂😂😂 here for you remember 👭👭
Carole Tatanya is stinks about the pension thing I don't blame you both for feeling cheated my aunt is in same position she was made redundant 6 months ago really struggling to find a decent job with part time hours and should have got her pension Oct so she's fuming
Me i bloody well hope i can find something too i will look for part time now balance my life out so to speak the alien could still knock on my door at some point so want a happier balanced kut life before it was stress stress and more stress lovely to hear from you Tatanya 💖
Member

Re: July 2017

Morning Michelle.

We didn’t hear back from you yesterday. Are you okay? Xxx
Member

Re: July 2017

No such luck, Carole! When I started my working life I expected to get my pension at 60. Some years later, they changed it to 65 in the name of equality, but because I was already a certain age they adjusted it pro rata, so it was supposed to be 64 for me. I had several years to adjust to that. But then came the second change of rules, where they are aiming for 67. Again, because of my age I get it phased in gradually. Ha ha. In practice I'll be 66 and two thirds!
I am lucky because I have quite a good pension from my work and also some savings from when I was freelance. So I'm ok really. But I feel really angry on.behalf of all those other women of my age, who never had the time or opportunity to make up the shortfall and basically got dumped in the you know what. It isn't right. Least of all for some of our friends on here, who don't have the choice to go on working anyway, because of the Alien.
Member

Re: July 2017

Tatyana the pension thing makes me so cross.  It’s about £37k the government is fiddling us out of and I have practically no private pension because I’ve never been in a company that would let me have one (except one where I got six years worth in).  All my life I’ve worked and expected to get a pension at 60 and now suddenly with a few years notice I have to wait another 6 years.  I just don’t feel capable of working another six years and have my doubts as to whether I’ll live to 66, let alone years beyond that to claim it. 

They also seem to forget that I started working full time at 16.  None of this further ed and gap years they do now, starting work into their 20s. 

My mum is 86 and will possibly outlive me and my sister who have both had cancer.  She’s never been referred to a hospital.  My dad on the other hand died of a heart attack at 66 having worked for the same company since he was 14.  So he got one year of pension.  Getting my state pension next January would have worked out just right for me.  As it is I don’t know how we will manage.  

Im surprised you have to wait till 66 if you are already 64. Thought you’d have qualified at 60 before the rule change.

Member

Re: July 2017

Can I join the grouse about pensions? I'm 64, but I have to wait till I'm 66 to get my pension. Hubby is 70 and has been drawing his for 5 years already. I worked just as many years as him, so how is that fair? I was pretty cross about it anyway, but now I don't even think I'll live long enough to get it at all! Although I'm obviously going to try my best, out of sheer pigheadedness!

Meanwhile my ancient dad with creeping dementia is very grateful to me for looking after his finances, and keeps saying"it's worth your while because it will all come to you in the end." Well, that's if there's any left from the care home fees... and even then, only if I outlive him, otherwise it will all go to my brother in Canada. I should say at this point that the pigheadedness thing runs in the family, so dad will probably be around until he's at least 104!!
Member

Re: July 2017

Haha, you’re not rubbing it in Carole, it just is what it is!! You should still be able to talk about yours.

And it’s absolutely disgraceful that the government decided to change the goalposts on pensions. 😡
Member

Re: July 2017

Sorry Angela, I didn’t mean to rub it in.  As you know, there’s a long way to go in the DIEP process, so fingers crossed. 

 

I’m sure nobody would employ me at my age and with my health record.  Doesn’t stop the government robbing me of 6 years of pension though, because they tell us everyone is living longer. 

 

Member

Re: July 2017

Morning ladies.

Michelle, hoping you get the answers you want from genetics. I was told the same as Carole. Probably a genetic gene for cancer somewhere but there isn’t a test for it yet.
I’m going to have genetic/ dna testing on this biopsy so I’ll be curious to find out what comes from that. They can pin point drugs to match you cancer variants now with this test.

I hope you can figure a way to stop working now Carole. Your boss sounds like an ***. You have enough on your plate without work stress.

I can’t belive that at 44 I don’t think anyone will want to employ me now either. 😳
It’s a lot to take in. Other people don’t understand what an absolute machine I am and that I’ll be around for a long time yet. 😂
They just hear secondary cancer and think ‘oh, her number must be up’

Maybe I’ll have to go back to working for myself. I used to write newsletters and press releases for charities and small businesses. That could be an option.
I wish I didn’t have to worry about it, but unless we win the lottery anytime soon I’ll have to sort something out.
I hope your diep prep goes well Carole. Mine couldn’t of turned out any worse. Ha. 🙄

Apparently there are a handful of surgeons who will consider recon for secondary ladies if you’ve been stable for a long time. 🤞🤞🤞

Let me know how you get on Michelle.
Xxxx
Member

Re: July 2017

I don’t know much about benefits, never having had any.   I could look into it.  I really don’t like my job.  My boss is an uncaring git. I just struggle with the fatigue and aches and pains.  I don’t think there is anyway I could get another job with my health history (including other things that have been going on 5 years) and my age.  I couldn’t do anything physical like shop work now as I’m just not up to it and with chemo brain etc I doubt I could do another office job. Wish they hadn’t moved my pension age!

 

with my BRCA test it came back normal, but they said I probably do have a dodgy gene somewhere, with my family history, but they don’t have enough info yet to test. If your test does come back as dodgy gene at least you will be able to deal with it.  Knowledge is power. 

Member

Re: July 2017

Carole why don't you try and get some help maybe tax credits to bump up your hubby's pay or maybe you could get esa if you are struggling i the 20hours i was devastated about my job made me feel really inadequate as i loved the job i did as it was very rewarding and physically i could manage it, i had a previous neck injury back in 2005 which resulted in cervical fusion spinal surgery which of course gives me a lot if pain as rhe years have rolled on coupled with some post treatment stuff im just physically not up to a physical demanding job which is what the are offering!!! So for now im going to have to sit it out and wait for redundancy carole then look for something part time yes this cancer business has turned out to be bloody expensive!!
Thank you for the message im currently a bag if nerves missed a call from the genetics late afternoon when at shops going to call me tomorrow think my results are back 😨😨😨😨
Member

Re: July 2017

Hi MIshy and Angela 

I'm sort of enjoying the weather, but I am struggling a bit with the heat, especially when working.  Also my garden is brown and straw like as we’ve not seen rain for about 6 weeks. 

Ive just got my info pack through from East Grinstead for DIEP reconstruction and waiting for first appointment with surgeon. The whole thing terrifies me but I don’t want to be a uniboober forever so I’ve got to look at the options, not that there seems to be many. 

I am getting tired of the Letrozole aches and pains and weight is creeping on although my surgeon says I don’t have much belly fat for making a matching boob.  From my angle there looks plenty, 🤔

 

 I am also coming  to the realisation that maybe I should give up work.  I’m 60 in January and struggling with working 20 hours  a week and everything else.  Trouble is that I won’t get state pension until I’m 66 and not sure we can live on just my husband’s pay. You are right Angela, cancer does cost a fortune one way and another. 

 

Good luck with the liver biopsy Angela. 

Good luck with the genetics test Mishy.  My test came back as normal BRCA.

Member

Re: July 2017

Ah glad you enjoyed the baby sitting i know what you mean about it tiring you out but its worth it isn't it bet you will be glad to get wed out the way i never realised the receptors could change? Thst is really important in terms of you getting the right drugs the money situation isn't great and the prospect of being unemployed isn't ine i would have thought this time last yesr i would be in but health is def more of a priority for me now i definitely don't want the stress as you say, i def think it was probably a contributing factor for me i think greif for my dad has slowed my recovery significantly for me as i never dealt with it at the time needed to get head down and in with treatment i have had to engage in counselling because of it all, on a nervous edge tonight missed my call from genetics my results are back 😨😨😨
Good luck for wed xxxx
Member

Re: July 2017

Hi Michelle.
I’m doing well. Loving the sunshine. Grandson slept last night and had me up before 5am so slightly knackered but worth it. 😍
Liver biopsy Wednesday to see if the receptors have changed. Can’t wait to get it out of the way. Oncologist appointment Friday at 9am then me and hubby are driving to west Auckland to a spar for a couple of days. It’s nothing fancy, a cheapy really, we’ve been a good few times before and it’s just nice to get away.
Really hoping I can swim by the weekend 🤞

Sounds like you’re still having a nightmare with work. Nothing is ever straight forward is it.
I’d be off for as long as possible if I were you. The less stress we have to encounter the absolute better.
Hopefully you’ll be able to continue claiming the esa.

It costs a fortune cancer. Instead of me going back to work this year as planned it now seems hubby will have to keep supporting me indefinitely. He obviously doesn’t mind, but trying to live on one wage with all of the expenses that cancer brings is a nightmare. 😳
Hope everyone else is doing well. Xxx
Member

Re: July 2017

Angela hi how are you doing xx hope you are enjoying the lovely sunny weather we have had the rain is here but all good as long as the sun comes out again tomorrow 😂😂🌞🌞 having Ella cuddles today
Tatanya hope you are managing your new drugs and they are ok in terms of SE are you enjoying the lovely summer too, its been fab l am still in work limbo land unfortunately they can offer an alternative post so looks like redundancy is on cards my gp and counsellor at maggies who has been fab says i should just stay on sick leave till they offer it as its unfair on me to phase me into work to then have nothing at the end of it, i think they have known this longer than they let in as when i was at meeting may about return the told me to stay off longer as it was quite heavy due to shortage of staff i think they have been hoping the board would review it so unfortunately for me still no job thank god i was entitled to some esa as my savings have dwindled
Carole kimi how you doing x
Member

Re: July 2017

Oh that's good.  Hope your treatment goes well with little side effects xx

Member

Re: July 2017

P.s.
Carole, thanks so much for the name of that surgeon. I’ve been in touch with him via email and he’s given me the names of two top surgeons closer to me in the north who he thinks would be prepared to operate.

Xxx
Member

Re: July 2017

Thanks ladies. 😀😀😀
Your messages of support really do mean a lot to me. Xxx
Shi Community Champion
Community Champion

Re: July 2017

Ftf ❤️❤️❤️😘😘😘glad they have good treatment plan in place for you, it sounds like they’ve seen this before so know exactly what to smack it in the goodies with 🤸‍♂️🤸‍♂️🤸‍♂️🥊🥊🥊🥊🥊don’t forget you’ve a bag of 💣💣💣💣from us Bccf girlies too to help blast the blighter out of you darling 👭👭👭👭😘😘😘💕💕💕✨✨✨shi xx
Member

Re: July 2017

Angela

Im pleased they have an optimistic treatment plan for you.  Fingers crossed everything goes well.

 

 Hope you enjoyed lunch out. xx

Member

Re: July 2017

Im so pleased to hear that they can do that for you fingers crossed for your biopsies have a lovely day with the hubby Angela 💖
Member

Re: July 2017

Thanks for thinking of me Michelle.
So it seems there are around 7 small spots on my liver. So zoladex to shut down my ovaries as I’m still having heavy periods so bursting with oestrogen inspite of tamoxifen.
Then I’m starting on Ibrance and Palbociclib. Hopefully this will get me into remission (apparently there’s a very high chance)
Then hopefully surgery to remove anything else.
Liver biopsy soon to check the cancer hasn’t changed it’s receptors.
I was gutted to have to go back to the chemo ward for my injection this morning, but considering everything I’m feeling pretty positive I can tackle this.
Onwards and upwards.

I’m hoping everyone else is doing well. Hubby has the day off so we’re going to walk into town for some lunch in the sunshine. 🌞 x
Member

Re: July 2017

Angela 💖💖💖💖 for today xxx
Member

Re: July 2017

i Don’t blame you for not going back to work. I wouldn’t either. Enjoy your granddaughter instead. 😍
Well I managed to prep a dinner and I’ve been for a run already. It’s bloody ironic that I’ve never been fitter in my life as I am now. 🙄
As for the chicken, I read somewhere that chicken oestrogen is exactly the same as human. 😳
No idea how correct that is mind. It’s put me off though. We used to eat loads of it. Not sure if that would effect you with you being tn though.

Hope you have a lovely Sunday. Xxx
Member

Re: July 2017

Sorry bout the spelling not got me glasses on haha!! Now going in garden before it gets too hot!
Member

Re: July 2017

Hi Angela clad sxan went ok its a shame you have to wait till Friday im keeping everything crossed its another beautiful day glad you're doing something nice Im like you with meat now my kot are sick of chicken dinners i rarely eat red meat now still waiting fir my braca results and my mammo i figure mammo must be ik as i haven't heard anything but still hoping the braca isn't positive git my Grandaughter all next week as daughter back to work i was supposed to be too but was having a few problems getting back tgen found out when i was going that im being made redundant but nit till bloody Oct so i can't look for anything else kr i won't get my redundancy so my doc said to stay on sick leave as its not positive for me to go back on phased hours to have nothing at the end of it
Enjoy your day and good luck for Friday 💖💪
Member

Re: July 2017

Thanks Michelle.
Scan was fine. The contrast didn’t make me feel sick this time so that’s a bonus. Results not until Friday. Back in the waiting game.
Hope your results have came back negative. 👍
I’ve got the family coming for dinner today so going to enjoy this sunshine with the grandchildren. 🌞
Nut roast for me as I’m terrified of eating meat pumped with oestrogen. X
Member

Re: July 2017

Angela been thinking about you today hope everything wenr went well keeping everything crossed for you 💖👭💪
Member

Re: July 2017

Predicted text monster is back that was meant to say good not food and Shi not ashi 😨
Member

Re: July 2017

Food glad you enjoyed it a bit of Northern 🖕 its nit your fault Angela its the bloody little piece of 💩, once scan etc is done you can get things nire settled and I'll keep everything crossed for you and op and tabletss would be great 👍 love Ahis little goody bag!!!!! Keep posting we will keep your pecker up 💖
Member

Re: July 2017

Thanks for all of the wonderful words of support ladies. And thanks for the goody bag shi, I love it. 😀
Michelle it’s my fault I didn’t have an earlier scan. I was supposed to have one after chemo but the wait between scan and appointment was six weeks. I was too anxious with the long wait. My oncologist said they weren’t really concerned about the tiny things that showed up on my original ct so it was fine to cancel my appointment.
Clearly, I made a mistake with that one. 😳
New ct is Saturday teatime. Hoping to have more answers early next week.
I’m just desperate to find out how much there is and to get a plan together. Apparently it’s very unusual to be in only the liver so they’ll be checking for further spread. 😳
P.s. I enjoyed your rant. 😀
Shi Community Champion
Community Champion

Re: July 2017

Mr Sinatra 🙄🙄predictive text gremlins 💕💕✨✨Shi xx
Shi Community Champion
Community Champion

Re: July 2017

Ftf, 😘😘😘❤️❤️❤️ I’m sorry to hear your news, have you got yourself on the cbd oil? Worth trying if you’ve not taken it. I’ve Just gone and got you new goody bag 🔫🔫🔫💣💣💣💣🤺🤺🤺🤼‍♀️🤼‍♀️🤼‍♀️🤸‍♂️🤸‍♂️🤸‍♂️🤸‍♂️Hope you manage to escape chemo this time and keep 💪💪💪💪and 😁😁😁like I know you will, there are great strides being made and your onc sounds great. Carole great news about your sister ❤️❤️Tatyana the Greek weather followed you back, 🌞🌞🌞mishy, hair is doing a bit of a mia farrow circa when she married mr Sumatra, and it just blooming wonderful to have hair 👍👍👍💕💕💕✨✨✨Shi xx
Member

Re: July 2017

The ladies on here have shown true resilience which you have bucket loads of Caroles sister is also a fantastic example of treatment available Angela its sounds aas though your onc has a treatment plan for you and potential for other things im sorry for the late reply just picked up thread before and was just shocked excuse my previous rant i was just so angry at the disease its a sneaky piece of 💩 again Angela im her if you need a 💖💖💖💖💖💪💪💪💪💪👭👭👭👭👭👭👭
Tatanya lovely how are you doing i see you had a change of chemo and still your 💪 as ever my friend we are all here for ine another i know we don't always post but i will be popping on to check in on you all!!
Carole hope you are well too and kimi sending you all my best wishes ☺️💖
Member

Re: July 2017

Oh Angela hun its not bloody fair, im so sorry to hear your news im absolutely gutted that day we met at radiotherapy we were both buzzing about coming to the end of treatments if you hadn't been having tge diep would you have even had this scan? Im furious with our trust the lack if scans after initial op then completion of treatment is just rediculous it needs changing if you need to talk im here hun im always a pm away xxx
This pissing disease makes me so angry but as tge other ladies have said today the treatment is excellent and you are a tough cookie sending you 💖💖💖💖💖💪💪💪💪💪👭👭👭👭👭👭👭
Member

Re: July 2017

I might feel like I need counselling in the future but for now I’m okay.
I think it helps that I’ve decided this is not a death sentence and there will be something out there to put me into NED and keep me there.
There have been some really big break throughs this year with these new targeted therapies.
Oncologist hasn’t ruled out maybe immunotherapy in the future either.
My bc nurse says she has ladies 10 years on and doing great and they didn’t have access to as many drugs so I’m hopeful. 🤞