62219members
327549posts
cancel
Showing results for 
Search instead for 
Did you mean: 

July 2017

Member

Re: July 2017

Carole, that's great news about your liver! What a relief! It's a shame you can't have the implant, but I hope the diep solution will work for you. I knew from the start that a recon was impossible because of the nature of my cancer with inflammatory elements affecting the skin, which was already weak from rads 15 years previously, would you believe! The poor surgeon who did my Mx confessed afterwards (or maybe boasted!) that it was really difficult to stitch me back up!!
Good luck with whatever you choose to do, and hey, cancer free! How good that sounds!
Member

Re: July 2017

Michelle and Carole how brilliant that it’s good news for you both. Time to relax now.

Hopefully the lymphodema will clear up Michelle. 🤞

Carole I’m having a diep. I need to put a little bit of weight on and then hopefully I’ll be ready for the waiting list. I’ve got a fair amount of excess skin from having twins, so can’t wait to have a flat stomach.

I know it’s a more gruelling process than an implant but much better in the long term I think. X
Member

Re: July 2017

Mishy I’m so pleased you had good news on your boob.  Hope the lymphodema is soon better.

 

i too had good news tonight.  My liver lesions are fat deposits.  The original ones have shrunk almost to the point of disappearing and I have a small new one.  It’s the first time I could really say I’m cancer free. 

 

On the not so good side i saw my breast surgeon yesterday and he says my skin is too weak, due to rads, to have an implant reconstruction.  So my choice is limited to a tissue recon such as DIEP or nothing.  

Member

Re: July 2017

Ah thanks Tatanya yeah its doable and im definitely not going to fret over it how are you Tatanya hope you are still good on the Cape and its doable for you how did the haircut go i haven't been brave enough yet but its starting to get on my nerves i feel bad saying that now i have hair and think back to when i had none it was rubbish xxx
Member

Re: July 2017

Mishy, I'm so happy to hear this, you must be so relieved! Of course the lymphoedema is a nuisance, but not the worst! Now relax and enjoy yourself! xx
Member

Re: July 2017

Evening ladies just thought id pop on to let you know that my boob worry is nothing sinister its a breast lymphodema which is basically build up of oedema due to rads he explained the orangey peel thickening in skin is due to the fluid under skin causing the follicles to look prominent im being referred to the lymphodema clinic for now i just have to be careful in terms of lifting too heavy things but he said its not the worst case he has seen just thought i would let you ladies know Carole i hope you are OK thinking about you xxx
Shi Community Champion
Community Champion

Re: July 2017

Ftf, zante is glorious if you get up to alykinas go to the mill bar near the beach and say hi to Julie the owner, she’s lovely and the do a banging greak night 💃🏻💃🏻💃🏻🕺🕺💃🏻💃🏻💃🏻Ooopppa 😁😁😁😁💕💕💕✨✨✨Shi xx
Member

Re: July 2017

Good morning ladies.

Kimi I’m so relieved for you. My bc nurse says oncologists scan whenever there is even a minute possibility something could be cancer. She says it’s to cover their own backs. I absolutely agree that a bit of reassurance goes a long way. I find I have to seek it out rather than just being given it freely.

I’ve decided to put my scan on hold until after my holiday. I just really need to go away without any worry hanging over me. I don’t think getting the scan a cpl of weeks later will make any difference to my physical health but it will certainly help my mental health.

Tatyana, great that you’re off to Greece for a week. It’ll be my first time to zante on the 24th. Can’t wait.
I’m not religious, so I’m asking the universe to keep those meds working for you. 👍👍👍

Michelle, I’ll keep everything crossed for your scan. My mastectomy skin is still changing. Still hurts when I lie on that side for any amount of time as well. I’m sure it’ll be nothing. It takes such a long time for our bodies to fully recover from what they’ve been through. I think some changes are to be expected. Doesn’t help when you’re worrying yourself sick though.

Carole, I’m sending positive vibes over to you. You’ve had a scare before and it turned out okay. Here’s hoping they’re just being extra cautious.

Shi, I hope everything is going well for you.

Miserable weather here today, so indoors drinking gallons of tea listening to Cerys on radio 6.
Hoping the sun gets out later so I can swap the tea for a glass of wine and a nice plate of Italian spezzatino alfresco.
Xxx
Member

Re: July 2017

Kimi forgot to say as well how pleased i am for you that it turned out to be scarring what an absolute relief whst an awful experience for your 1st mammo take care xx
Member

Re: July 2017

Ooh my typos were terrible in that post 😨
Member

Re: July 2017

Carole i sincerely hope everything is ok with rhe MRI i will be keeping everything crossed for you its awful when you are waiting for something like that the anxiety is terrible i remember it too well from diagnosis and now feeling it again for my appointment this Wed coming i keep trying to forget about it till then but cant im so worried about it as i have an orange peel area of thickening on breast too 😨 Kimi what an awful time for you too it really doesn't matter what people say when you feel like that does it, i don't think anyone really understands unless they have been through it themselves
Tatanya i am so pleased you are having a holiday between treatment you aee so positive and unbelievably 💪 i hope they keep you on the easy chemo!!! Your attitude is definitely the best one to have about enjoying everything the sun has been lovely fir lifting iur spirits i think im currently having a cuopa in garden listening to the birds and deciding what to do today!! Im trying very hard to distract myself till Wednesday
Angela hoping you are ok and feeling positive about 1st Mammo app its definitely the one i think we must all dread the first one but don't let it spoil your holiday you know what they say about no news and all that! !!
Ladies have a lovely day i will keep you posted how i get on 💖
Member

Re: July 2017

Hi ladies
Well done Kim and Shi on your food results.
Angela I hope you are doing well and good luck for Monday.
I’ve got my MRI on Monday 14th for
Liver lesions. Getting terrible stress headaches in the meantime 😬
Shi Community Champion
Community Champion

Re: July 2017

Tatyana beautiful lady 😘😘everything 🤞🤞🤞🤞and also a 💃🏻💃🏻🕺🕺🕺💃🏻💃🏻💃🏻💃🏻And ✨✨✨✨✨for your results darling. How lovely you’ve got a week in Greece 🌿🌿🍈🍈🍈🇬🇷🇬🇷🇬🇷Enjoy as I know you will 😘😘😘💕💕✨✨✨Shi xx
Member

Re: July 2017

Kimi,so glad it turned out ok for you. And you too, Shi! It seems everyone gets these scares now and then, it's just something we have to learn to live with!
Kimi, unfortunately I don't get a reprieve from the chemo, I just stay on it until it stops working --which I'll find out after my next scan in a couple of weeks! If it's not working we'll switch to another chemo, which will be IV instead of tablets, so it will interfere with life a lot more! So keep everything crossed for me.
Meanwhile we're off to Greece for a week's holiday, somehow managed to squeeze it in between hospital appointments!
Have a good weekend everyone, and good luck to Mishy, Angela, Carole, and anyone else who is in worryland!
Shi Community Champion
Community Champion

Re: July 2017

Kimi, brilliant news everything ok my lovely 👍👍👍😘😘😘 bit of a 😳😳a couple of weeks ago but got ultrasound and checked out and all ok thanks 😘🤞🤞🤞💕💕💕✨✨✨for everyone with appointments big ❤️❤️❤️To everyone Shi xx
Member

Re: July 2017

Hi Girls. Well, I worried myself silly, turned into “pushy Pauline” & couldn’t stop crying with my BC nurse, who was brilliant & got me a scan appt same week as phone call from Consultant who told me about unclear mammogram. Thank goodness it was fine, scar tissue apparently, but what a week, my husband & I were complete wrecks in scanning room, BC nurse even came with us, bless her. I do think these Consultants should walk in our shoes & think about how they deliver news, a bit of reassurance would go a long way, I know they walk in fear of being sued, but there must be a way of not frightening the pants off us.
Glad your feeling ok on treatment Tatyana, & it will be done soon & you can enjoy the summer. Carole, you know we’ve got everything crossed for you & you get good results & soon & you too Mishy, one of the girls on our group said she was told to buy a wallpaper seam roller & use that to massage her boob, I’m thinking of getting one. Good luck on 14th Feelthefear, be good to go on holiday without it hanging over you, don’t think they are very speedy with results though, usually a couple of weeks. Hope all ok with you Shi?
I’m off to Portugal again in June for a week, it’ll be the first holiday without treatment/results or imminent appt looming, hope I can relax this time.
Enjoy the nice weather, thinking of you all & still holding hands.
Much love. Xxx
Member

Re: July 2017

Carole im sorry about your ct results im keeping everything crossed for you 💖 Angela yeah 1st mammo coming up is daunting mine is due around same time as you i had to poke them in back so to speak as i discovered by accident yesterday after call from bcn that my request card had gone walk abouts screening were blaming bcs secretary so i rang her today and as it turns out the request had been sent out and disappeared!! She was very helpful and within 15 minutes rang me back to say it was sorted and should be having it in June as they have a back log at least i have a clinic appointment which has been arranged by bcn and im sure if they are concerned i will have an ultrasound or something 😨
So yes a few of us are in worryland again but hopefully we will al be alright
Carole big hugs for you i will be thinking of you Tatanya wise words from you lovely to hear from you take care ladies we are expecting sunshine this Bank Holiday weekend so enjoy xxxx
Member

Re: July 2017

Hi Carole, sorry to hear you didn't get the results you wanted. Fingers crossed, it may turn out to be nothing. But even if it is something, they've got treatments lined up for whatever happens. And we're here for you. Meanwhile enjoy the precious sunshine.
It's true that waiting and worrying seems to be our new normal. I wonder will we ever get used to it? I've got a scan in a couple of weeks after which we decide whether I stay on this nice easy chemo or switch to another. I'm trying to just enjoy this time and let the future be what it will!
Love and hugs to everyone.xx
Member

Re: July 2017

Morning Carole.

Sorry to hear that you’re in the waiting game again as well.
Given that there are only a few of us on this July thread, and one of us is always waiting for uncertain results, I think this is probably our new normal.

I think we just have to try and assume everything is fine, unless we’re told it’s definitely not, or we’d worry ourselves to death. 😳
On a brighter note, enjoy the rest of your break and maybe a lovely glass of Somerset cider in the sunshine. 🌞
Member

Re: July 2017

Hi ladies
I’ve not been able to reply on here for a while but hopefully working again now. I see some of us are still having issues and worrying about appointments and send hugs to you all.
I’ve just got my 3 months on CT results on liver and not what I wanted. They seem to have found another suspect area. Got to have another MRI as soon as possible.
I’m enjoying a week in Somerset at the moment xx
Member

Re: July 2017

Hey ladies. I hope everyone is doing well.

Kimi, sorry you’re in that horrible waiting/worrying place yet again. I’m sure it’ll be nothing. Like tatyana says, they’ll be being extra cautious with our past.
I’ve got my first mamo on May 14th.
The fear monster is creeping in already. I go away for two weeks on May 24 and I’m even considering changing my appointment to when I get back so I can enjoy my holiday without any bad news or uncertainty hanging over me. 😳
It’s bloody awful this merry go round we seem to be on.
Tatyana, it’s good that you’re feeling well on the treatment.
michelle, hope you’re doing well and your boob issues are nothing. No the wonder we’ve got dodgy bits and bobs on our boobs and non boobs. We’ve been hacked and burnt to bits. 🙄
I hope you got sorted with your meds Shi.

Here’s hoping we will all be enjoying some lovely sunshine soon. Apparently there’s a heatwave coming mid month. Wouldn’t that be fantastic.

Take care everyone. Xxx

Member

Re: July 2017

Hi Kimi,sorry to hear you're in worryland again. It's pretty common for mammos to be unclear when you've had surgery in that area, I would guess they are just being careful, which is good. Fingers crossed for you. You sound like you are doing really well, it's great to hear from people getting on with their lives. And yes short hair is great! Having mine properly cut tomorrow for the first time since chemo, quite nervous about it!!
Member

Re: July 2017

Kimi lovely to hear from you, i am keeping everything crossed for you re the ultrasound my mammo is due soon, am waiting for app for some breast isdues (some swelling and pitting) bcn wants me to come to clinic to be checked i hope your daughter is ok she must have got a fright and you but im sure it will be post treatment stuff sending you big hugs
As you said we may not come on as often but still here for each other
July ladies sending you all my 💖 and best wishes xxx
Member

Re: July 2017

Hello Lovely Friends. Glad all seems to going well for you all at the moment. I’m doing ok, had bad back & tummy pains, scan was all clear & think with help of an osteopath is slowly improving. Had my second Zolendronic infusion & apart from tired was ok after it, was told it’s only the first one that makes you feel rough, & it seemed to be true. Got results of my mammogram today, unclear result so now got to have an ultrasound, had a meltdown earlier & my daughter phoned Mamillan helpline bless her, what a lovely lady on the phone, told me it’s not unheard of & can be scar tissue from lumpectomy, but started the worry yet again & here we go again with more worrying & waiting. Have ditched the wig & have found short hair quite liberating, doesn’t get in your face when the wind blows or frizzy when it rains, don’t think I’ll ever have it too long again. Good luck to you all & hope it’s still onwards & upwards, & whilst we’re not on this forum so much now, still here holding hands. Much love to you all. Xxx
Shi Community Champion
Community Champion

Re: July 2017

Tatyana 😘😘😘glad to hear you are feeling quite well on the new chemo 😘😘😘 the 🌞🌞🌞🌞has been glorious I hope everyone’s 😎😎😎😎enjoyed it 💕💕✨✨Shi xx
Member

Re: July 2017

Tatanya lovely to hear from you i hope the treatment is doing its stuff but glad to hear that you are doing ok your last post was very heartfelt and inspiring thank you x ladies hi just checking in hope you are well Angela hope you enjoyed your family celebrations my own were good last week sons 21st first time in a long time i felt so happy it was lovely to get all the family together really enjoyed my time at Seahouses and Bamburgh it was just what the doctor ordered went for long beach walks relaxed and just enjoyed being there its a place we like to visit x
Member

Re: July 2017

Hi Angela, sorry for late reply, only just seen yours as I'm not on here so much at the moment. I'm doing ok, not sure yet whether the new chemo is working but I'm feeling quite well on it so that's good! So glad to hear you are not feeling the fear too often now. I love what you said about things being in technicolour. There's some lovely technicolour sunshine outside my window just now! xx
Member

Re: July 2017

 
Member

Re: July 2017

Hi tatyana.
It’s lovey to hear from you. What a great post.
You’re absolutely right, that in some ways things will be better. They are. The good things in my life are in technicolour now and the rubbish things barley get a thought. I still get moments where I’m terrified, but not very often.
How are you? Xxx
Member

Re: July 2017

Pressed the wrong button and posted before I'd finished!
Angela and Mishy, you both should give yourselves a big hug for coming so far and for putting so much of your precious energy into caring for others, bless you. Anniversaries, scans etc are always a hard time. And yes, you're allowed to cry and to still be scared sometimes! You can never go back to life as it was BC (before cancer!), but in many ways it will be better, and you will definitely appreciate the good things more.

I had 15 years before my recurrence (which was nearly a year ago and to quote the great Elton John, I'm still standing!), and I can honestly say that I lived in a different way and got more out of my life than I would've done pre cancer. Because I finally grasped how precious life is. Not that I was living some kind of perfect happy life, but I had more courage to do the important things and not take anything for granted.
You are two very brave ladies, like so many others on here, and you'll keep on coming through!
And now please let's have some proper spring weather, it's what we all need.🌷🌷🌷
Member

Re: July 2017


Just popped in to see how all you guys are doing.
Member

Re: July 2017

You’re welcome shi. Good luck. 👍 x
Shi Community Champion
Community Champion

Re: July 2017

Thanks ftf 😘😘💕💕✨✨shi xx
Shi Community Champion
Community Champion

Re: July 2017

Ftf, I’ve pmd you 💕💕✨✨shi xx
Member

Re: July 2017

It will be Angela you seem like me the one who holds it together and always strong and there for everyone.. But we are still human with feelings and sometimes we need a little TLC!!! Take care and speak soon xxx
Member

Re: July 2017

It will be Angela you seem like me the one who holds it together and always strong and there for everyone.. But we are still human with feelings and sometimes we need a little TLC!!! Take care and speak soon xxx
Member

Re: July 2017

Thanks Michelle. I think it’s just an emotional time. I’ve just cried imagining you pretending you’d been to the town while having the cancer monster at your door.
If I cry tonight I think some of it will be relief. It seems absolutely crazy that a year has passed and we’ve been through so much. I suppose we were off our heads for quite a bit of it, so no wonder it went quickly. 😀
And my dad wouldn’t want me being morose either. X
Member

Re: July 2017

Ah Angela bless you i know how you feel re your dad anniversarys and significant dates do get to us im like you try to hide anxiety from others then certain apps or dates trigger it on the whole i keep it under wraps the aches and pains must be something we all get after this you are young Angela so don't blame you for feeling like that im slightly older at nearly 47 but feeling like an old lady sometimes its my sons 21st next wed a year to the day i was at one stop clinic biopsy scans and being told sorry it looks suspicious try not to think about it til results back i remember walking iut with ive got cancer in my head then pretending i had been to town after work xx Angela i hope you can enjoy your meal if you need to cry, have a cry you are bound to feel it today sending you my 💖
Member

Re: July 2017

P.s. forgot to add; Michelle, I know it’s easier said than done,, but I chose to ignore statistics. I once put my stats into the nhs predict tool. Off the top of my head it gave me just over a 60% chance of being around in ten years. That’s just not good enough for me. Unless I get hit by a bus I’ll bloody well be here.

None of these stats take into account things like age, general health, over all wellbeing and a millions others things that make us all unique. X
Member

Re: July 2017

Oh, and my period seems to have returned today. 😳 an unwanted cancerversary gift I suppose
Member

Re: July 2017

Yeah Carole, I agree it’s probably impossible to ever feel like we did pre cancer. Sometimes I almost feel like I’m pretending things are normal. Everyone around me seems to think everything’s normal again. I try to keep any anxiety to myself.

Michelle, I’m with you on the memory loss. I’ve still got chemo brain. Starting to think this is the new normal. Also have aches and pains since treatment finished. I couldn’t get to the end of the hokey cokey with my grandson the other day I was absolutely knackered. I’m 43 and feel old.
It’s my sort of cancerversary today. The day I was told my boob and lymph nodes looked highly suspicious but that I was in safe hands. 😳
Also the 2 year anniversary of the day my dad just dropped down dead at 69.
The family are all going out for a meal tonight. I’m going to try my best not to get drunk and cry. X
Member

Re: July 2017

Thanks for the heads up on that Carole i suppose stress would make total sense given what we have all been through!!! Im pleased its not painful procedure!!!!
Member

Re: July 2017

Hi Mishy
Just those got I’d let you know I had an endoscopy a couple of years ago for really bad indigestion and chest pain/upper abdominal pains. I’d been very stressed because of another medical issue and taking ibuprofen for it. I didn’t feel or know anything about endoscopy. I opted for throat spray and tranquilising drug. Mine was diagnosed as gastritis. Took omeprazole, lansoprazole and ranitidine for ages and changed diet and it eventually got better. No alcohol for a year or so because it made it much worse. I still have to be careful with diet and alcohol and can’t take anti inflammatories, but otherwise ok now.
You will probably find yours is also down to stress and possibly taking NSAIDs.
Member

Re: July 2017

Angela Carole good to hear from you both Carole i had a bone scan for same thing was all clear must be quite common rib pain my onc said its off rads still get shooting pains under arm and in boob having an endoscopy in a couple of weeks plagued with tge indegestion etc since chemo started but thry feel its unrelated but needs investigating im hoping everything is ok with that interesting about the gastro resistant asprin apparently there is a trial for TN called add asprin but my onc won't let me take part due to my stomach issues i really wanted to do it too as i have no other drugs to take just have to hope everything worked well i may try those asprin anyway I've othing to lose!! Does anyone find they get conflicting info from different professionals, my onc told me slightly different outcomes to surgeon he said i was over 50 % in my favour not to get a recurrence yet surgeon said 80% in my favour quite a drop it really at first it shook me up and thought its this stupid bloody TN status, not what i wanted to hear at my follow up sent my anxiety levels through the roof, although he did say after 3 years the odds keep getting higher then after 5 year's its very good odds!!! Just starting to feel ok again, So im bloody pleased there's no breast related apps till my mammo which is soon 😨 I hope your diep reconstruction is ok you both Angela that is a bit of a 💩 having to put weight on isn't it!! You already have both already been through the ringer so its a shame you have to wait for surgery but im sure you will love your new boob

Tatanya missa and everyone hope you are all good sending you 💖 bye for now girls i will def enjoy Bamburgh xxx
Member

Re: July 2017

Hi ladies

it’s hard to go back to pre  cancer normal, because we no longer feel normal. So many body changes and new aches and pains, not to mention anxiety over mets.  I just had a bone scan for back and rib pain  but got the all clear. 

Feel the fear I’m hoping to go for DIEP option too but not seen my Breast surgeon yet to discuss.  I’m using it as an excuse not to diet and eat cake 😀

Member

Re: July 2017

Happy Easter ladies.

I think we’re just trying to regain some sense of normal now. Wow Michelle, no appointments for a year. I’ve got my reconstruction to look forward to (diep) so it’s still all go for me. Apparently I need to put a bit of weight on to make a new boob. I never thought I’d find myself in that position.

Miss a, I get my cbd oil from a shop in town. It’s the type that sell bongs etc. It’s 4000% for £40. I take 3 drops under my tongue ever day. The aspirin are the gastro resistant ones 75mg.
I don’t think we’ve got anything to lose by giving them a go. At the very least my hot flushes are much better when taking the oil.
I hope everyone is doing well.
Michelle, hope you have a lovely time in bamburgh. We spend a lot of time there. X
Member

Re: July 2017

Hello ladies hope you are well and enjoying life haven't been on in a while trying hard to move on a little had follow up with onc wants to see me in a year wow no more apps for a while just the dreaded 1st mammo and cancerversary looming starting to feel a lot better in general i can still get tired easily and my memory is rediculous 🤔 but on the whole feeling much better have a weekend away at Bamburgh coming up so i hope the weather improves!!! im hoping the quietness on the thread means good things with you all 😊 wishing you all a very happy Easter 🐣💖 to you all 💖
Member

Re: July 2017

Hello all, sorry it's been so long since I last posted. I've been very much trying to focus on getting on with my life after treatment. I finished radiotherapy on 8th Feb and I was fortunate to get away with just one bit of patchy skin under my armpit.
Started with lymphodema though which has set me back a bit. I saw the nurse who gave me a compression sleeve and glove and we're just seeing how things go.
Seeing the radiotherapy consultant next week, presumably to check everything is healing okay. I'm hoping he'll tell me there's no evidence of the disease but I'm assuming you have a scan before they tell you that? I don't really know, I might ring my BC nurse tomorrow.
Fab news Mishy and Carole! Really chuffed for both of you!
FeelTheFear where do you get your cbd oil and what strength do you use? I looked into it but they can't give any advice in case of being sued for giving medical advice without a licence or something. Thinking about starting baby aspirin too.
Did my will and funeral plan this week as I didn't have one and Amnesty International are offering free will writing throughout March. Now I own my flat (finally completed in Feb!) I thought it best to have one. Bit grim doing a funeral plan at 31 but at least I've made my wishes known.
Went to Marrakech for my birthday at the end of Feb, managed to avoid the 'beast from the east' at least.
Hope you're all doing okay and have a great weekend 😊
Member

Re: July 2017

Thank you Tatanya i definitely feel a slight shift in my thoughts and feelings im definitely a little better than i was a few weeks back, but its like you Kimi and everyone else says our feelings are just that and sometimes no matter how much you try to not give into them sometimes you can't help it 😊
Its lovely to be able to come on here and share and yes you truly are all a lovely bunch... Keep on smiling ladies spring is on its way new life and all that 😊
Member

Re: July 2017

Kimi and Mishy,
Big hugs to you both. I can honestly say, from my first round of the big beast, that it does get easier. A time will come when it's not on your mind all day every day. It's always there, but I really believe you can learn to use that knowledge to help you to truly appreciate the good things in life-- such as the lovely friends we've made here.
Don't ever say that you"should" be feeling this or that. Your feelings are just that, feelings, there's no right and wrong, and there isn't a pecking order: She's worse off than me so I shouldn't feel so bad???!!! It's not like that. We can all share these feelings and understand better than anyone outside BC World, and it doesn't matter what each person's outcome is. We're in it together!
❤️❤️❤️