Can I check something with you, please? You mention that you're having 8 cycles and that the dose is slightly lower. Have they actually told you that? I thought that was the case, the same dose of drugs but spread over 8 rather than 6, but then the nurses told me that it's not a lower dose just two extra cycles at full strength, just to be safe. I asked the oncologist consultant and he confirmed it.
Also, my hair sounds like yours. It's stopped falling out, I haven't shaved it as I thought it would all disappear and now my head looks like an 80 year man's. I think I might have to take the clippers to it but I was scared of getting any cuts. Living in a world of fear!!
Other than looking like an antique testicle, I can't complain so far.
Sadly itchy scalp is a sign that your hair is going to shed. For me, that started about day 20, just before second cycle.
I didn't suffer from mouth ulcers, but had like a furry tongue, and it was the same time each cycle, about day 10, and only lasted a couple of days . I'm sure other ladies will come along soon and give you some tips. But I just wanted to reassure that that it soon passes.
Thank you for the welcome.
Yes surgery went well. It was a strange few weeks recovering from the op knowing that I would be putting my body through chemo. Almost undoing all the goood work!
Hope you enjoy Norway
Sunflower Jo x
I’m new to this forum but I’m due to start chemo on Monday 30th July. I only had the phone call on Friday telling me about Monday, oh well less time to worry about it! Due to have 6 sessions.
I’ve already had surgery, lumpectomy and full node clearance. In someways I just want to get started but in other ways feeling extremely anxious and worried about what the next few months will bring.
I think I will also look at joining the August forum as I will only be a couple of days outside the start of the month.
i am sure I will talk to you all again soon x
Hi Georgie Gee, good luck for next week, here's hoping it's not too horrific! See you on the next thread 😁
Keep strong everyone 💪💪💪 this too shall pass!
Katluan, I start chemo on 2nd August so one day behind you! Scarey isn't it!
I have a stoma too, except mine is permanent. So we have a bit in common.
Like you, I think I will be joining the August starters.
Stay well; you never know....... we may not have any S E's..... lol!
Georgie Gee xx
It's been a wee while so I thought I'd drop by again and wave hello to all you July ladies, keep it up girls, it's a means to an end and doesn't last forever, at least that's what I'm telling myself and I haven't even started yet! All systems go day for me is 1st Aug so I guess I'll be lurking on the next thread too....
So, yesterday was the pre chemo talk & tour, thankfully no surprises as I was wary of an 'omg I hadn't thought of that' moment, lots of light reading to take home to while away an hour or three though haha. The chemo nurse was lovely and was able to reassure me about a couple of the possible se's I was concerned about - thanks to a careless driver I currently have a stoma caused by constipation arising from complications so reading that constipation could occur had me a little bit frazzled not to mention the other end of the scale, believe me having the trots when you poo into a bag is not delightful!!! The nurse reassured me that they were aware and could give me 'stuff' in advance to combat either, phew! Now that concern has been alleviated I can just relax and go with the flow 😂
Ta for the travel insurance info Karen942, no1 daughter wants to take me to Morocco next year for my birthday so it's good to know it won't break the bank 👌 Sorry to hear your 50th wasn't a big affair but 60 is the new 50 doncha know so get planning hehe
I'm glad my daughters are all grown up now (youngest was 21on Tues) and seem to be taking everything in their stride but I have to say that the comments from those of you with younger children make me feel that they are a testament to their mums and you should all be very proud of your youngsters 😊
35 degrees today and my hair has been wet for most of it, I'm "almost" looking forward to having a cooler head; online purchases have been turning up so I have a variety of pretty headgear sitting on the side, I'm fairly sure I'll come to loathe them!
Dutchie I hope your first treatment went ok, did you try the cold cap? How was it?
Ice cream retention? I'm using that at work tomorrow lol. Mind you it's so bloomin' hot out there it's a race to eat it before it's just a creamy puddle in my lap, albeit an enjoyable race haha.
Working/driving after treatment, coping with fatigue and other se's..... all tips gratefully received cos I'm planning to take as little time off as possible (I only get paid when I work unfortunately). ....and obviously I'd like things to remain as normal as I can, I know I know, optimistic right?
I talk a lot, seems that doesn't change when I type lol.
Keep cool ladies, I'll check in again after my first round altho it's possible <sarcastic voice> that I may not be so chipper next time 🙃
Ps sorry for waffling on a bit
Just checking in!
Day 6 of FEC-T Cycle #2 and all's well.
I still feel exactly the same as I did before any poison. Only balder. And fatter. So, I guess not the same at all then? But nothing bad, and that's good. I had swollen ankles a couple of days last week and I've put on 2kg. The nurses told me it's water retention but it's not. It's ice cream retention, I can't get it down me quick enough. Solero exotics. Farmfoods bargain choc ices. Ben & Jerry peanut butter on offer in Morrisons. Lidl Madagscan vanilla. The ultimate - Mackies Scottish dairy vanilla.
I've had a couple of short and disturbed nights' sleep, but hasn't everyone? It could be the post-poison steroids but the heat is not helping.
I'm managing to do as many steps as before, 20k on Sunday, 10k before work this morning with the dog. I'm working 9-5 - what a way to make a living! - five days a week (poison day excepted). Not enough though to cancel all that bloody ice cream. I'm going to freeze my gym membership and subscribe to Les Mills On Demand at home on the telly. When it cools down!
My head is not totally bald yet, it's covered in 'bum fluff', still holding on to some of it. I haven't plucked up courage to go naked at home when anyone is in, I'm just not ready yet. I'm wearing scarves and bandanas and my head is boiling.
I'm trying not to tempt fate by thinking this is going okay so far. I know it's a fragile thread and can snap at any time and I'm only just into the second cycle. However, the nurses called me yesterday to see how I was after the weekend and they said they didn't know who was more surprised by how well I'm doing, them or me. I have, obviously, had the same thought as others - does this mean it's not working? The loss of my hair is showing something's working though. I hope.
I can see varying degrees of SE's being experienced by you all. I hope you're all doing okay.
We can do this.
I am also a July starter: Wednesday July 25 will be the start of my PCT Pertuzumab. My treatment will take place in Amsterdam. Will try the cold cap and also started the 48 hrs before fasting (to be continued until 24hrs following the chemo). This should make side effects more manageable or so I hope.
Will keep you posted, good luck to all 🍀🍀🍀
@Kip @Karen942 I was just about to post a note to the same effect -- a quote from Hunter S. Thompson that I refer to when I'm feeling down:
“Good news is rare these days, and every glittering ounce of it should be cherished and hoarded and worshipped and fondled like a priceless diamond.”
I rewrite it slightly in my version, to "Good news can be rare these days..."
It helped ensure that I experienced the joy of the butterfly that floated up to our kitchen window as I was washing up the breakfast dishes, and just seemed to hang out with me for a few moments before flitting away.
p.s. Do *not* google to learn more about him or the context in which he wrote it: Gonzo was a dark dude. Take this glittering sentence and let the rest be.)
@Karen942 -- Excellent to hear that the insurance link was helpful! Keeping that bookmark handy. Travel insurance for the US is a nightmare (naturally, as the US healthcare system is a nightmare); last year it cost me a bundle for a 3-week trip because I'd had a pulmonary embolism, even though I was still on anticoagulants for it. Not looking forward to pricing my next visit to my parents, whenever I can manage it.
Drink lots of water today! (Reminding myself, too.)