Hi Lal, Im from June chemo thread and have had 1 x T so far (having had 3 x FEC) and have to say the side effects are very different . I have had no sickness (which is good) but have had a horrible mouth for ages, tastes and feels slimy and most food tastes like carpet! Even marmite.. boo hoo... and I'm a lover. Another common SE seems to be bone pain, sometimes severe, although I haven't suffered with that ... yet.! Also constipation (seems to be caused by the extra steroids you get given) and/or diarrohear or asit is referred to "the T Trots" - again I haven't had that yet. Your fingernails/toenails can hurt to, like they've been jammed in a car door and you can get tingling pins and needles in them.. mine is minimal at present and I am day 18 of cycle 2. Other than that I feel pretty good this week, despite a stay in hospital last week due to neutropenia. I would say overall the side effects are not worse but definately different than FEC although as usual everyone is different and as always they do pass. Oh and a bonus.... my hair is growing back now FEC finished.. although have discovered hair growing on my toes too.... grrrrr
Hi ladies im from june chemo, and on cycke 4 of 6. Ive had terrible oral thrush this cycle and ulcers and slimy tongue, definitely speak to helpline/gp early on to get somethingn for it as i think i let it get bad before i did and paid the price.
Hello B, I'm also a June chemo starter and like many others always have a downer when I come of the steroids. Lots of tears and negativity which is hard to deal with but it does pass again after a couple of days, although the hubby usually pays the price at the time! I am on cycle 4 (my first T after 3 x FEC) and the steroids have been increased, 8 a day for three days (starting day before chemo) and then 4 a day for three days but some hospitals don't seem to give the extra ones? So who knows what will happen when all that lot comes out of my system and it is effecting my sleeping but the nurse said next cycle I can play around a bit with the coming off and ween them out slower if needs be. Hang in there, the days do pick up again, thats what gets me though.. big hugs
I had one lot given in a drip and then 3 days of 8mg first time around. Was suicidal 2 days after I finished taking them! Cycle 2 I had the drip again but reduced dose of 4 mg given by IV then just one day of 8mg. Was sick but didn’t experience a downer. Third time I had 4 mg in the IV then 2mg for three days, id seen a different oncologist who suggested I took them to stop the vomiting. It was the worst of both worlds. I was so sick but also felt a huge rage for about 2 days after I stopped taking them. I intend to ask if I can go without except for the IV when I have my last dose of AC on Tuesday. I’ve been told I have to have steroids on doxataxol as they prevent allergic reactions. Not sure how I’ll cope! I suppose it’s good to remember that the downer doesn’t last forever but I truly understand how difficult it is to bounce back. I hope you can have some really good days before your next cycle. Take Care xx
I’m from the August starters but just thought I would jump across to you guys to seek advice about my extremely sore scalp!
Im on day 15 of round 1 and my scalp is really sore, esp to touch but it just seems sore all the time. A bit like sun burn or a really sensitive skin.
My hair is still in tack but I think it has got a lot thinner and my centre parting seems to be a lot wider than it ever used to be, bit the hair loss isn’t really noticeable to others.
is the sore scalp a sign of a mass shedding of hair?
Any tips on easing the pain?
For those of you booked, or considering booking, or struggling to get booked on to the Look Good Feel Better sessions run in the Macmillan centres in our various hospitals ....
On Saturday, I went to the No.7 counter in my local Boots as I heard they offer make up services for those in our select club. I booked a slot for Tuesday at the till and received an email confirmation. I went yesterday and was looked after by a beautiful girl. I explained that while I still had eyebrows now, they might not stay the course and I wanted some advice on replicating them when they go.
I asked if she is involved in the LGFB sessions but she hasn't been able to get on the rota as the local co-ordinator here in Derby works in Boots (on the Clarins counter) and has lots of volunteers from the various cosmetic companies in the store. She explained that No.7 offer free no-pressure appointments, bookable online or in-store. If you feel self-conscious, they'll take you to a private area away from the central shop floor. She encouraged me to come back whenever I wanted, appointment or not. She couldn't be lovelier and there was no pressure to buy at all. She said she'd noticed me on Saturday but didn;t want to approach me as some people are very sensitive about it. I'd have been okay, happy even, but it's nice that they're so awake to it eh?
They have a handy gizmo that matches your skin tone to the most appropriate foundation colour and I have to say the base she used for me was possibly the nicest I've ever had on. Really nice, I'll be buying it later I think. I did buy some Eyelure eyebrow templates to use if they do go, just to give me a head start at getting a decent shape, only £3.
I've managed to get a LGFB session booked for October - it wasn't easy to get in, but that's another saga. So if you can't wait 6 months for an appointment, head to your local Boots. The girls all have MacMillan badges on.