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July 2019 chemo starting

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Re: July 2019 chemo starting

Thank you so much Shi and Strawberry this is awesome. Xx

 

Mountain Lion

“What’s it like to go through cancer treatment? It’s something like this:
One day, you’re minding your own business, you open the fridge to get some breakfast, and OH MY GOD THERE’S A MOUNTAIN LION IN YOUR FRIDGE.
Wait, what? How? Why is there a mountain lion in your fridge? NO TIME TO EXPLAIN. RUN! THE MOUNTAIN LION WILL KILL YOU! UNLESS YOU FIND SOMETHING EVEN MORE FEROCIOUS TO KILL IT FIRST!
So you take off running, and the mountain lion is right behind you. You know the only thing that can kill a mountain lion is a bear, and the only bear is on top of the mountain, so you better find that bear. You start running up the mountain in hopes of finding the bear. Your friends desperately want to help, but they are powerless against mountain lions, as mountain lions are godless killing machines. But they really want to help, so they’re cheering you on and bringing you paper cups of water and orange slices as you run up the mountain and yelling at the mountain lion - “GET LOST, MOUNTAIN LION, NO ONE LIKES YOU” - and you really appreciate the support, but the mountain lion is still coming.
Also, for some reason, there’s someone in the crowd who’s yelling “that’s not really a mountain lion, it’s a puma” and another person yelling “I read that mountain lions are allergic to kale, have you tried rubbing kale on it?”
As you’re running up the mountain, you see other people fleeing their own mountain lions. Some of the mountain lions seem comparatively wimpy - they’re half grown and only have three legs or whatever, and you think to yourself - why couldn’t I have gotten one of those mountain lions? But then you look over at the people who are fleeing mountain lions the size of a monster truck with huge prehistoric saber fangs, and you feel like an asshole for even thinking that - and besides, who in their right mind would want to fight a mountain lion, even a three-legged one?
Finally, the person closest to you, whose job it is to take care of you - maybe a parent or sibling or best friend or, in my case, my husband - comes barging out of the woods and jumps on the mountain lion, whaling on it and screaming “GODDAMMIT MOUNTAIN LION, STOP TRYING TO EAT MY WIFE,” and the mountain lion punches your husband right in the face. Now your husband (or whatever) is rolling around on the ground clutching his nose, and he’s bought you some time, but you still need to get to the top of the mountain.
Eventually you reach the top, finally, and the bear is there. Waiting. For both of you. You rush right up to the bear, and the bear rushes the mountain lion, but the bear has to go through you to get to the mountain lion, and in doing so, the bear TOTALLY KICKS YOUR ASS, but not before it also punches your husband in the face. And your husband is now staggering around with a black eye and bloody nose, and saying “can I get some help, I’ve been punched in the face by two apex predators and I think my nose is broken,” and all you can say is “I’M KIND OF BUSY IN CASE YOU HADN’T NOTICED I’M FIGHTING A MOUNTAIN LION.”
Then, IF YOU ARE LUCKY, the bear leaps on the mountain lion and they are locked in epic battle until finally the two of them roll off a cliff edge together, and the mountain lion is dead.
Maybe. You’re not sure - it fell off the cliff, but mountain lions are crafty. It could come back at any moment.
And all your friends come running up to you and say “that was amazing! You’re so brave, we’re so proud of you! You didn’t die! That must be a huge relief!”
Meanwhile, you blew out both your knees, you’re having an asthma attack, you twisted your ankle, and also you have been mauled by a bear. And everyone says “boy, you must be excited to walk down the mountain!” And all you can think as you stagger to your feet is “f*ck this mountain, I never wanted to climb it in the first place.” 

 
 
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Shi Community Champion
Community Champion

Re: July 2019 chemo starting

Just pace yourselves ❤️Focus on ringing those bells in your units (and those of you who don’t have one) we’ll 🛎🛎🛎on here for you. Now kylie gold hot pants on (the fantastic kylie a bc survivor herself) keep 👭👭of each other and you will get each other through safely 👍😁and always a ring your units. If you are on fec the red one will turn your pee pink till you flush it through, don’t 😲. If your pee does start to burn but you don’t have temp, phone the unit you’ll need antibiotics no self medicating during chemo and if you get thrush mouth get them to give you fluconzole don’t get fobbed off with drops 💪💪💪once you get first one out the way you’ll settle into routine and you will all 🥊🥊🥊🤸‍♂️🤸‍♂️🤸‍♂️Kick it’s ass. Try and find mountain lion story on the threads by strawberry, it’s inspirational ❤️💕💕✨✨Shi xx

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Re: July 2019 chemo starting

Thank you so much Shi, that’s really helpful. Will definitely add all these to my list as well. It is so good to hear from people who have done all this before. Xx

Member

Re: July 2019 chemo starting

Hi LMC88, thank you for joining us too. Hope your PICC line goes ok. I am sure I am not a great patient either and may also faint.....when I took my daughter to A&E with a cracked knee cap she was fine. I was lying on the floor! Still the nurses are well used to these kinds of things happening. I keep telling myself as well that many 1000s of people have done this before me. Gets a bit more scary though the closer it gets to Thursday. More shopping tomorrow including rubber gloves! Never used them before but apparently needed to protect hands when washing up! Will also get big water bottle. That’s a good idea. Read somewhere on here that some people like ice cold water on chemo so planning on freezing it half full the night before and topping it up before I leave. Xx

Member

Re: July 2019 chemo starting

Hi All! 

I too am starting chemo in July. 11th to be precise. I am having  PICC line fitted as I am terrible with needles. I am more scared of this than actually going through the chemo at the moment. I’m also scared of feeling the meds go through my body and may faint. I am going to be the nurses nightmare lol. 

Thanks for the tips on the shopping list I think I need to start mine and be more prepared. I have bought head scarfs and a huge water bottle but that’s about it. 

Hope your meeting goes well with the oncologist goes well Kaytee and big hugs for your first chemo LucyLump

 

Xx

 

Shi Community Champion
Community Champion

Re: July 2019 chemo starting

Few quick tips for shopping list for chemo, get some baby wipes and anosol cream and senokot/movicalthe steroids can make you have a bit of botty back up 😳nothing to worry about it’s just you don’t expect it. Oral hygiene is very important, see if they can give you difflam in your ‘goody bag’. Any problems with antisickness meds phone your units, they will tweak meds till they get right combo. I was on akynzeo and metochlopromide and no sickness or appetite loss. Think about sending your hair to little princes trust they make wigs for kids for free with cancer, can make you feel like taking control. Also you ask about a wig voucher at your trusts too also your Macmillan units have lots of preloved wigs too. Drink 2-3 litres of water a day and keep skin moisturised, chemo can dry it out. Hope that helps a bit and know we are all here 👭to help in any way we can. Just always ring your units with any concerns during chemo, they want you to ring them, then they can keep you safe ❤️💕💕✨✨Shi xx

Member

Re: July 2019 chemo starting

Hi Kaytee, it's good to hear from you. I hope your meeting with oncology on Monday goes OK. It is definitely a bit of a relief to finally know what the treatment is going to be. I am making the most of the last few days before it all starts. 

Member

Re: July 2019 chemo starting

Hi Lucylump

I am also due to start chemo in July. Have first meeting with oncology on Monday. 

Obviously not looking forward to starting but like you I am glad to be moving forward.

Member

July 2019 chemo starting

Hi, I was just wondering if anyone else is starting chemo next week? I was diagnosed in May and have first chemo session next Thursday (4 July). I am Her2+ and will be having Fec-T plus Herceptin and Perjeta. I saw the oncologist on Tuesday but can't actually remember everything she said (yes I should have written at least the important bits down!). Have been reading other months starters to get handy hints. What lovely people are on here. It is so great how everyone can support each other and I am certain this will help. In the meantime I am making myself a shopping list - thank you those from June. So far I am getting prunes, boiled sweets, a new thermometer, ice cube thingy and rocket ice lollies. Have also ordered 2 chemo scarves. Not doing cold cap - didn't sound too easy so think will manage with no hair and look forward to seeing how it grows back. Have also already told my hairdresser she can dye it pink when it does. Anyway I am looking forward to meeting some new friends on here. Being positive at least at the moment but expecting to get more anxious as Thursday gets closer. Am just so pleased the wait for biopsy results, CT scans etc is over. I just want to get on with it. We CAN do this together! Xx ps note to self....start drinking lots of water!