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July 2019 chemo starting

Member

Re: July 2019 chemo starting

Good luck Kaytee, thinking of you. I am waiting for a heart scan at moment as my ECG before op showed up something .😩 never away from the hospital these days.

let us know how you get on today

Shi Community Champion
Community Champion

Re: July 2019 chemo starting

Hi kaytee, your Macmillan center at your unit usually have pre loved wigs that you can have and you make a donation for it. ❤️For this afternoon and keep the fluids flowing when you get home ❤️💕💕✨✨Shi xx

Member

Re: July 2019 chemo starting

Hi ladies

I should be having first chemo this afternoon. Waiting for blood test results as I have a cold but was advised yesterday that if it's just a cold will continue with the chemo.

I hope it goes ahead so I can start to move on but slightly nervous of the unknown now.

I have decided not to cold cap as increased risk of headaches  is something I would rather avoid 

Had meeting at the hospital wig lady yesterday was very surprised at the price for a basic one £75 plus!!  

Anyway best wishes everyone xx

AWW
Member

Re: July 2019 chemo starting

Hi Flower79 

 

So far so good, not feeling any different yet except for the last part of chemo when I started feeling strange in my head and sudden running nose but after 30mins or so it disappeared, so I was kept in for another 30mins for observation after which I was discharged. 

Came back home, ate, slept and so far feeling alright. 

I pray it continues to go well. 

I will be thinking of you tomorrow, hope all goes well for you too. 

 

Cheers xxx

 

NB: I didn't use the cold cap. 

Member

Re: July 2019 chemo starting

Thank you, everyone is so friendly on this chat thingy

Member

Re: July 2019 chemo starting

Thank you so much Flower79. Well done everyone. We will get there. Xx

Member

Re: July 2019 chemo starting

Hi Kilmaron,

 

Yes, well said! We will get through this together! After Friday you can tick off one, yay! Good luck, I hope everything goes smoothly for you.

xx



 

Member

Re: July 2019 chemo starting

Hi LucyLump,

 

I am glad to hear that you are feeling better. I am sure that the worst part is over now for the next 3 weeks, and you will feel much better day by day. 

xx

Member

Re: July 2019 chemo starting

Hi AWW,

 

I was thinking of you today, I hope everything went smoothly and you are at home resting. I had my info session with the nurse and the nutritionist, and by the time I could have started my first chemo session, there was not enough time left. I will have it tomorrow morning. 

Well done you, one less to go!!! I hope you can have a good sleep.

xx

Member

Re: July 2019 chemo starting

Thank you for the cold cap advise. I will try to keep at it. Nurses have said to get through first 15 minutes then i will be numbed and not feel it so much. I have heat pads and plenty fleeces looked out

AWW
Member

Re: July 2019 chemo starting

Thank you Flower79.

I am at the hospital now, due to start 11am.

Best of luck to you too. 

 

Member

Re: July 2019 chemo starting

Glad you're feeling a bit better this morning Lucy x

Member

Re: July 2019 chemo starting

Hi everyone, lots of good luck for those of you starting this week and thank you Daisydi for popping in to see us. I have slept most of the past 2 days but feel slightly better this morning. Trying to continue drinking as much as I can. Xx

Member

Re: July 2019 chemo starting

Hi just popped over from the Feb thread.  I had my last chemo 4 weeks ago.  I had 3xFEC and 3xT.  Just to let you know that I cold capped all the way through and still have a full head of hair.  I have shed a bit but you would never know.  I have no bald patches.  Just make sure the cap is really tight and pulled right down onto your head.  Lots of people seem to get bald patches on the top of their head but this is purely because the cap is not pulled down or tight enough.  It is uncomfortable but worth it if like me you are terrified of losing your hair.  My hair was always soaking wet with loads of conditioner on it.  I used the smallest cap and I wouldn't say I had a small head but by doing that it was really tight.  Please pop over to the Feb thread if you have any questions.  Good luck x

Member

Re: July 2019 chemo starting

Hi everyone,

I am starting my chemo this Friday,12th. There is so much to take in and remember, my head is so full of information and I think I am only remembering about a quarter of what Oncologist told me. I am going to try the Cold Cap. I am Triple Negative so chemo and radiotherapy for me. I wish all those starting before me this week much much luck and we will all get through this xx

Member

Re: July 2019 chemo starting

Hi LucyLump,

 

Than you so much for your encouraging words! How have you been doing so far? I am starting my journey tomorrow, wish me luck! AWW, good luck to you for tomorrow!!! We can do this.

xx

Member

Re: July 2019 chemo starting

Oh no LMC so sorry you are in hospital. Hope that infection gets sorted soon for you. What an awful time you are having. Thank you Shi will definitely look up the Unicorn! Xx

Shi Community Champion
Community Champion

Re: July 2019 chemo starting

Lucylump 😁no pink poo 😂🤣😂🤣😂you need to google the unicorn squatting potty 😁😁that’ll make you 🤣😂🤣😂💕✨✨✨Shi xx

Member

Re: July 2019 chemo starting

Hi LucyLump, 

in hospital at the moment. I have an infection went to see surgeon on Monday and he operated Tuesday cleaning the implant and removed some puss 🤮 on strong antibiotics at the moment through a IV and 🤞🏼🤞🏼 Seems to be looking a lot better. He wants me to stay in over the weekend as a precaution and hopefully go home Monday with oral antibiotics. 

Not what I wanted as it will set chemo back but I definitely need to be well enough to go through chemo anyway so 🤞🏼🙏🏼🤞🏼🙏🏼 Infection free very soon. 

Good luck to everyone starting chemo soon and fab news with the side effects not too bad for you 

 

xx

Member

Re: July 2019 chemo starting

Hi Flower, so pleased you have joined us. Side effects so far are bearable but wee has turned orange which is a bit disconcerting! Wow being in Korea must be an experience. Hope they do give you the anti sickness pills. Will be thinking of you and Aww on Monday and I think Kaytee on Tuesday. LMC hope you are ok too. Xx

Member

Re: July 2019 chemo starting

Hi AWW and LucyLamp,

 

I am too ER and Her2 positive and will be on Carboplatin+ Taxetere+ Herceptin for 6 cycles and then only on Herceptin for another 12 cycles. I had a lumpectomy and lymph node removal both sides (yeah, I know, both sides at 39 with no family history), I am stage 2A.

AWW, I will start my first cycle on Monday, July 8th as well. I had my chemo port done yesterday, and it wasn't as painless as I expected it will be but I am happy it is done. I live in Korea working here. The health care is great but they are not a big fan of pain management - way different than in the states or in Europe.

I am pretty anxious about my first chemo session, I hope there will be no allergic reaction and that the side effects will be tolerable.

LucyLump, I hope you are feeling a bit better today.

xx

Member

Re: July 2019 chemo starting

Feeling not too bad this morning. Ended up being very sick 9.30pm. It comes out pink too like the wee. Then got paranoid about cleaning it up perfectly in case the dog got it! Felt nauseous until about 5.30am probably because I had sicked up the anti-sickness pill earlier. After that though slept till 8.30 and now feeling loads better. Looking forward to seeing if first poo is pink too! Xx Update: disappointingly poo is not pink.

Shi Community Champion
Community Champion

Re: July 2019 chemo starting

👍Lucy 😘😘now keep the water flowing 😘I was as needle phobic too but soon injecting those jabs alternative sides of my belly button like a trooper, used a antiseptic swab on skin first (just to make sure everything nice and clean and then again after) grab a bit of belly with one hand, stick it in, plunge down and voila done 😁 once you get 1st one done you’ll be pah, easy peats lemon squeeze 😁👍👍💕💕✨✨Shi xx

AWW
Member

Re: July 2019 chemo starting

Glad all is going well for you, hope it continues to go well for you, will be having my first on Monday so it's reassuring to know yours went well.

 

Member

Re: July 2019 chemo starting

Glad u have got the first one out of the way and it's not too bad so far.

I hadn't heard about injections! Not looking forward to that :-(

Hope you don't get too many side effects .

Xx

Member

Re: July 2019 chemo starting

Hi Ladies, I am just back home from first chemo! All went well. It was honestly nothing to worry about. It did take 3 hours but the actual process was totally fine. Only thing that bothered me was the package of goodies you get to take home.....anti sickness pills OK, steroids to boost the anti sickness pills too OK.......injections to boost white blood cell production for me to do myself NOT OK. I explained that I was really worried about injecting myself though and they were fine about that and are sending a district nurse out to do it for me. First one tomorrow late afternoon. Feeling good so far. Xx

Community Champion

Re: July 2019 chemo starting

Hi there, I was a May 2017 chemo starter and did 8 rounds of FEC-T and I still have my bounce so it’s all doable.  Keep hydrated and regular temperature checking.  Here’s my story which you may find helpful:  http://lifeafterlola.com

Best wishes xxx

Shi Community Champion
Community Champion

Re: July 2019 chemo starting

Few others I checked with my onc with before chemo and told to keep off till after chemo were green tea/matcha powder, turmeric, black cumin seed oil, soft cheeses, no friendly bacteria stuff either, but please speak to your units and get their specialist advise directly ❤️Hope that helps 💕💕✨✨Shi xx

AWW
Member

Re: July 2019 chemo starting

Hi LucyLump, thanks for your kind words, I hope all goes well for you tomorrow, will be thinking about you.

Do let us know how you get on. 

Cheers xxx

Member

Re: July 2019 chemo starting

Thank you Jencat and thank you for reminding me about the travel sickness bands too. I will put them in my bag before I forget. Xx

 

Member

Re: July 2019 chemo starting

I hope your chemo goes okay tomorrow Lucy and as you say, it will be worth it in the end xx

Member

Re: July 2019 chemo starting

Hi everyone, just to add to the foods to avoid, I was told no grapefruit-I think it can interfere with the chemo drugs.

Also, I found wearing travel sickness bands whilst I had chemo and for a few days afterwards helped with sickness-I wasn't sick at all xx

Member

Re: July 2019 chemo starting

Hi AWW, welcome as well. It is a scary thought but I keep telling myself many people go through this and all the teams helping us know what they are doing. Will be worth it in the end to zap those nasty cells. I am alsoHER2+ and having first of session of FEC-T tomorrow. Xx

AWW
Member

Re: July 2019 chemo starting

Hi all, 

Also starting chemo 8th July. 

I had right breast mastectomy, ER positive and Her2 positive so will be on FEC-T 6 cycles and Herceptin 12 months.

Feeling anxious at the moment. 

Member

Re: July 2019 chemo starting

Hi Helly, Welcome to our group. My first chemo is tomorrow at 2pm. I am trying not to think about it! I will be having operation later follow by radio or more chemo I think. Xx

Member

Re: July 2019 chemo starting

Hello everyone

 

I'm going to be joining you on this chemo journey - my first cycle is 10th July.

 

I had lumpectomy and sentinal node removal on 13th June, grade 3, stage 1 confirmed.

Oncotype score came back at 22, and as I'm 39 there is a clear benefit to chemo, then onto radio and followed up with tamoxifen. 

 

Nice to meet you all

 

Helly x

 

 

 

 

Member

Re: July 2019 chemo starting

Hi Kaytee, I am guessing that it is to do with risk of food poisoning but could be wrong. No one at the hospital has told me anything to avoid but on some of the other threads people have been given lists. I think pate was on there too. Xx

Member

Re: July 2019 chemo starting

Hi ladies

Just catching up on your posts and I have been making lists of things to get but I hadn't even thought about things to avoid. So apart from blue cheese and Chinese ( why is this?)

Is there anything else to be avoided?

Thanks xx

Member

Re: July 2019 chemo starting

Wow thank you so much everyone. You are all giving me so much hope. MacDonalds, Pizza etc balanced with fruit and vegetables sounds quite doable! Xx

Member

Re: July 2019 chemo starting

Lucy, I had a McDonalds most weeks after I'd had my line flush-I don't even like them that much normally! x

Member

Re: July 2019 chemo starting

Hi July team,

 

I started on 20th June, EC and aside from being quite exhausted days 4 and 5 it hasn't been too bad. I was worried about nausea and taste changes, so every day I am not getting those effects I am celebrating it. I had pizza the other day with parma ham which I ate with pleasure Smiley Happy I also had a banana, yoghurt an chocolate smoothie made at home during the weekend - this is from a Macmillan recommended cookbook . So make the most of those domino's -just balance them with broccoli and veggies some other time!

 

I also have a PICC line and even though it IS there, you can get by.

 

Big hugs to you all xxx 

Shi Community Champion
Community Champion

Re: July 2019 chemo starting

😁steak and kidney pie, chips and beans every Tuesday and the dominos every Friday, you do what you gotta do to get through chemo 😁 wash all salads and veg though 👍💕💕✨✨Shi xx

Member

Re: July 2019 chemo starting

Shi that is hilarious. Please don't tell my daughter! Xx

Shi Community Champion
Community Champion

Re: July 2019 chemo starting

Hi Lucy lump, I had dominos mighty meaty stuffed crust every Friday during chemo 👍big massive one and polished the lot off every time 😁

Member

Re: July 2019 chemo starting

Hi LMC, I am having FEC-T plus Perjeta and Herceptin. Not being able to eat Chinese takeaway is a pain but just think how many we will be owed at the end of this. My daughter is not going to be happy at the reduction in dominoes pizza being delivered to my house either! Xx

Member

Re: July 2019 chemo starting

Hi Lucy Lump. 

Really hope you enjoyed your blue cheese, I’ve read quite a few things we aren’t allowed to eat such as Chinese takeaway, heartbroken about that one 😂

Good luck to you and Kaytee on your first lot of chemo! Which chemo is it you both are having? 

Xx

Member

Re: July 2019 chemo starting

Hi Kaytee and LMC88, 

 

So sorry to hear about your infection LMC. We are willing those antibiotics to work for you. I haven't had surgery yet. Am having the chemo first and surgery after that. Kaytee I will be thinking of you on Tuesday. I have spent the last few days rushing round doing everything I can just incase I feel ill and eating everything I won't be able to eat like blue cheese! 

 

Xx

 

 

Member

Re: July 2019 chemo starting

Hi Kaytee

Thank you for to reply 😀

hopefully the antibiotics will work overnight and I can carry on with the rest of the treatment as planned. Don’t want to be getting an infection whilst having chemo 

 

xx

Highlighted
Member

Re: July 2019 chemo starting

Hi lmc88

Sorry to hear you have an infection.

I had a masectomy and node clearance but my wounds have healed without complications so I can't comment on Infection but I remember my surgeon did say that I had to be completely healed before I started chemo as it will effect how the body can repair. 

Hope this helps

Xx

Member

Re: July 2019 chemo starting

Hi ladies. 

Quick question, has anyone already had surgery? 

Ive had mastectomy with immediate reconstruction and lymph node removal, however I have an infection ☹️

My surgeon has put me on antibiotics but if the infection doesn’t clear I’m having to go back down to surgery for him to flush it all out and put a drain back in. 

I can’t seem to find any threads about something similar to this. 

Im worried if I do end up having the surgery my chemo will be delayed until I’m healed. 

 

Thanks 

xx