62978members
331085posts
cancel
Showing results for 
Search instead for 
Did you mean: 

July 2019 chemo starting

Member

Re: July 2019 chemo starting

Hi Mini, the ones I had were called filgrastin. They stimulate the bone marrow to produce more white blood cells in order to reduce the risk of us getting an infection. The chemotherapy reduces our white blood cells and these injections try to make up for it (at least I think so!). Xx

Member

Re: July 2019 chemo starting

Hello Lucylump,

 

Do you mind if iask you what the tummy injections are called n what do they do ??

thanks. Mini mad xx

Member

Re: July 2019 chemo starting

Hi Kenny1970, of course we won't throw you off. We are all lovely on here! Sorry to hear you have been having such an awful time. Your description sounds very like how it was for me a couple of weeks ago. I too was thinking how on earth can I do this. The sickness/ nausea though did wear off though after the first day. I slept loads for the next 5 days and then on day 6 felt so much better. I have my second chemo next week and am now thinking 'bring it on'. Hopefully it will be like this for you too but if not phone the cancer helpline number. They can give you better nausea tablets and apparently they have some which work really really well so if you are still feeling sick give them a phone and see what they can do to help. Yeah I know what you mean about the injections. I told them there was no way I could do them to myself so they agreed to send round the community nurse to do them for me every day. Next time they are swapping them for a one off injection instead of the 7. Apparently it does the same job but is more expensive so they don't routinely use it. Worth asking for though for anyone who finds injections difficult. Hope your sinus pain gets better soon and you have a better night tonight. Xx

Member

Re: July 2019 chemo starting

Hi

 

I had my first chemotherapy session yesterday I was the same it went ok and then I got this bag and what the hell are these injections about? No one told me about them! Last night we difficult feeling nauseous and restless quite emotional thinking how the hell will I get through the next 4/5 months? Today I felt very very tired felt better after breakfast but then made the mistake going out for a few hours without eating felt crap nauseous, fatigue emotional. Had some lunch felt better lay down and recharged. It just comes over you oh and had sinus’s pain to add to my hot sweets as on the menopause but can’t take anything as my cancer was hormone based!

Moan over xx

Member

Re: July 2019 chemo starting

Hi

i think I have just pressed the wrong bloody button and reported a post! I am so sorry!

i really don’t know what I am doing my apologies.

i wanted to add onto the July Chemotherapy start dates but you will probably throw me off now!

Had my first session yesterday but crappy worst last night and today very tired feeling nauseous and emotional.

xx

Member

Re: July 2019 chemo starting

Good Luck today LMC. We are all thinking of you. I took a magazine with me, snack food and water. It took about 3 hours and the actual process was no problem at all. It knocked me for about 6 days afterwards but now I feel back to my old self so all good. Really sorry to hear you are having migraines and awful stomach acid Kaytee. Hope it sorts gets better soon. I also got a new mattress and I love it! I love the idea of your kids doing the haircut. That could be lots of fun! It will grow back again and I have already told my hairdresser she can dye mine pink when it does. By the way one other odd thing.....have also been getting really intense cravings (bizarrely like being pregnant) for tuna wraps and chips! Xx

Member

Re: July 2019 chemo starting

Hi Lucy 

Sorry to hear your hair is going but I loved your positive response. Xx

I am getting my kids to cut my hair off at the weekend as I thought it would be less scary for them to see it happening and have a laugh about it rather than just suddenly mums bold ! 

Member

Re: July 2019 chemo starting

Hi all

Glad to read everyone is progressing as well as can be expected with their chemo.

I had my first one last Tuesday and apart from being sick that night and generally not feeling well I was ok until Saturday when I got a really bad migraine which I just couldn't shift. I ended up ringing the help desk for advice in the end on Sunday morning . Not much they can do tho so just keep taking tablets :-(

Feel a bit better today but have developed a really bad acid stomach every time I swallow.  It's quite painful. Anyone else had this?

Anyway had a new mattress delivered this morning so hopefully that will help with the insomnia!

Best wishes everyone x

Member

Re: July 2019 chemo starting

That’s great. I’m dreading the side effects. First chemo today and to say I’m scared is an understatement. Any tips of what to take with me? Xx

Member

Re: July 2019 chemo starting

Day 14 - hair definitely falling out otherwise all good. Telling myself hair falling out shows that chemo is working and that those nasty fast growing cells are being zapped. Hope you are all managing ok. Xx

Member

Re: July 2019 chemo starting

Love the frozen grape idea! Xx

Member

Re: July 2019 chemo starting

Just been reading that claritin somehow helps with the joint pain that is caused by herceptin and chemo. I'm paranoid about doing harm so I'll double check that tomorrow when I go for bloods.

Another article suggested freezing red grapes to eat while having chemo treatment as they cool your mouth to prevent ulcers and they also have anti cancer properties if eaten regularly. I'm off to freeze my grapes ready for cycle 2 on Wednesday...

Member

Re: July 2019 chemo starting

Hi, i had my first chemo on Friday, hip and leg pains started this morning. Not too bad but was told to expect them. I am on docetaxel and carboplatin. Luckily no nausea either as yet

Member

Re: July 2019 chemo starting

Hip pains went but are now back with a vengeance. Trying to go for a walk each day in hope it keeps me supple. Feel like an old woman though!!! Anyone else had hip/pelvis/leg pain? 

 

Community Champion

Re: July 2019 chemo starting

Hi LMC88

 

I had a PICC line put in prior to starting chemo (I'm from the Oct 18 starters) 

- it was straight forward.. i had a local anaesthetic, the line is then inserted into your arm, I had an x-ray to make sure it was in the right place and then a dressing is put over it! You do have to have the line flushed once a week and the dressing changed but the District Nurse came to my house to do that! Some ladies have to go to the chemo unit for this! You would also need a waterproof cover for when you're showering!

It was much easier having the PICC line for chemo..have bloods taken from it..I had antibiotics through mine and even a blood transfusion! Far easier that needles in dodgy veins! 

Best wishes to you all...hope all goes well with your treatment x 💕💕

Member

Re: July 2019 chemo starting

Hi Dot, welcome to our group. Hope your pains go away soon for you. Xx

Member

Re: July 2019 chemo starting

Hi, I've just registered but have been reading these forums for a while for nuggets of advice. Started chemo and herceptin last Wednesday 10th July. Having 12 weekly paclitaxel. Thought I was doing ok and feeling rather pleased no sickness or other side effects but I have now developed the most horrendous pains in my hips!!! Think this may be due to herceptin?? Hoping paracetamol kick in soon....

AWW
Member

Re: July 2019 chemo starting

Hi everyone,

 

Glad to know we are all making progress and coping well with Chemo. 

So far so good for me too, I have had no sleep or fatigue issues, taste bud fine, just headache once in a while but I do suffer from migraine so am not surprised.

Last night I started feeling shoulder and back pains up till now, (I don't know if it is chemo related) so I am taking paracetamol to help with that.

 

Other than that everything else is good. 

 

Shi Community Champion
Community Champion

Re: July 2019 chemo starting

Sorry Kilmarn got changed to Kilmarnock 🤔pesky auto text gremlins xx

Shi Community Champion
Community Champion

Re: July 2019 chemo starting

Well done Kilmarnock 👍flower hows your heart rate? Might be idea to use the nurse facility on here. Great news no brca gene, we’re you triple negative bc? If so Patricia prijatel’s book surviving triple negative bc is very good and I found it helpful. Also tn survivors Shannon Doherty and robin Roberts in USA have inspired me ❤️Lucylump you are doing great, you all are 👍👍💕💕✨✨Shi xx

Member

Re: July 2019 chemo starting

Kaytee, Aww and Crochet-Helly hope you are all managing Ok too. Xx

Member

Re: July 2019 chemo starting

Yay well done Kilmaron for getting started as well. That is great news. Flower fantastic news too about your tests. Hope you can sleep better soon. So pleased your temperature is staying ok as well and LMC you will be started soon too. I am afraid I don't know about Picc lines either. Hope you all have a good day. Xx

Member

Re: July 2019 chemo starting

Hi LucyLump,

 

Getting out and about, that's fantastic! Heart

I am happy to hear that your sleeping pattern returned to normal, it gives me hope that I will be fine sleep wise in a couple of days. HeartSmiley Happy

Member

Re: July 2019 chemo starting

Hi LMC88,

 

So good to hear from you and I am glad that all goes smoothly with your recovery. Smiley Happy

I do not know much about PICC, I got a port, sorry. I heard that inserting a PICC does not require surgery but I could be wrong?

Take care Heart

xx

Member

Re: July 2019 chemo starting

Hi everyone,

i had my first chemo TC yesterday. Took over two hours to get cannula in as veins were not performing. I am trying the cool cap and it was really not so bad.it did add 90 minutes onto session at end though. Feeling fine this morning so far, lots of drugs and injections to look forward to now.hopefully they will keep nausea and infection at bay. Glad to be reading everyone else is doing ok or getting over their problems.

hope the weekend is king to us xx

Member

Re: July 2019 chemo starting

Dear Shi and LucyLump, I will definitely do, thank you for reassuring me that it is the right thing to do. No paracetamol since yesterday  evening, my temperature is normal and this morning (apart  from the usual 2-5pm insomnia) I feel much better. I have to catch up on sleep for sure  so I will nap whenever I can. One thing, maybe it is odd that I mention it, but my heart rate is low. I genetically have a low blood pressure  and my heart rate was always low due to exercising 5x/week. I haven't  seen the gym since end of May and now my resting  heart rate in the morning and at bed time  is lower than ever, around 58. Otherwise  I feel fine. Should I worry about this?

I forgot to mention  that my genetic test for BRCA1 and BRCA2 came back  negative. Smiley Happy

 

How is everyone feeling this morning?

Xx

Highlighted
Member

Re: July 2019 chemo starting

Hi all 

hopefully things are getting back on track and starting chemo in the next 2 weeks. 

Quick question, has anyone had a PICC line fitted? 

Flower hope you are feeling better soon ❤️

Xx

Shi Community Champion
Community Champion

Re: July 2019 chemo starting

Flower ❤️Please watch your temp like a hawk and even with no temp if you don’t feel right get to a&E over the weekend show them your rapid response card and tell them you are on chemo ❤️You can’t be of a mindset oh’ll i’ll Have a paracetamol and see in an hour or so, not during chemo and your units would rather you ring them to double check things because it helps them keep you safe during chemo ❤️💕💕✨✨Shi xx

Member

Re: July 2019 chemo starting

Oh my goodness Flower you are having to cope with so many things. I really hope that throat infection doesn't get worse. Being on a drip for a few days does not sound good. I am still doing well. Managed to take the dog to the vet this morning (she is fine too) and also do a bit of shopping. Sleep wise mine has returned to normal for me too. Hope you can sleep better tonight. Hi everyone else. Thinking of you all. Xx

Member

Re: July 2019 chemo starting

Hi Shi and LucyLump,

 

I called them up yesterday and I had an appointment today. My chemo doctor gave medication for the flush/rash, as my neck and chest were still quite bad. Probably the numbing pain has nothing to do with any infections, it is probably a side effect of Taxotere that should be better by Wednesday. She made an appointment for me with the ENT doc. He said that my ears are clear, but I have a throat infection. He said it is a mild one and he can not give anything for it now, it should be sorted by itself by mid next week. If not and I will get feverish, I need to be on antibiotic drips for a couple of days. Fingers crossed that this is not going to happen. 

My bad luck that one of my fillings fell out yesterday while I was flossing so I had to see my dentist today. (I went to see him a week before chemo for a chek u and everything was good.) Luckily she is close by to the hospital and she was free to fix it. Smiley Happy Altogether it was a better day than yesterday, I spent 5 hours out of the house by myself going to the hospital and to the dentist, and I managed to have a nice lunch as well. I was wrecked when I got home and needed a long nap. Yesterday night I was up from 3am-5am for no reason, ugh... Anyone experiencing partial insomnia or is it just my broken sleeping pattern? 

 

Shi, you are so right, there is no such thing as 'trivial infection' during chemo, thank you for your advice.

 

LucyLump, how are you doing today? 

xx

 

Shi Community Champion
Community Champion

Re: July 2019 chemo starting

Flower have you rung your rapid response number? Best to check with them if not, any kind of infection ‘ no matter how trivial’ you might think it is cannot be treated as ‘triviak’ During chemo, please keep safe ❤️💕💕✨✨Shi xx

Member

Re: July 2019 chemo starting

Oh Flower an ear infection is really bad luck. Hope your gp can sort that for you asap. Don't wait till tomorrow to see them if you don't have to. LMC we will all have our fingers crossed for you starting next week. One weird thing.... have developed an absolute aversion to the smell of soap. Spent part of this morning searching Tesco.com for unscented ones! Also noticed that lack of appetite earlier in the week has resulted in 6lbs weight loss. Could be a bonus but I suspect I will make up for it soon! Xx

Member

Re: July 2019 chemo starting

Hi Everyone,

 

So, I think I developed an ear infection. I have a numbing jaw and headache all day but it started with my ear yesterday so I really think it is coming from there. I have stuffed ear, a little but consistent pain like when you are having an ear infection. My rash is coming and going, and I had a bit temperature today although it stayed under 37.5 so I wasn't that worried. I am going to see my doc tomorrow to get it sorted. Couldn't really nap today due to my ears, but I have managed an hour nap in the afternoon. LucyLump, I am so happy it is over for you for this cycle, well done! Smiley Happy

AWW, I hope you are doing ok.

Keep up, everyone, we are always getting one step closer. Smiley Happy

xx

 

Member

Re: July 2019 chemo starting

Hi LMC,

 

So glad that it got sorted and you are recovering well.

xx

Member

Re: July 2019 chemo starting

Glad you are feeling better Lucy Lump and good luck and fingers crossed for everyone going through all this at the moment. 

I should have been starting chemo today but due to the infection I’m not 🙄 going for my stitches out tmoro so hopefully my surgeon happy with everything. I have my appointment with oncology next Wednesday so 🤞🏼🤞🏼🤞🏼

Member

Re: July 2019 chemo starting

Morning everyone.Hope you all managed to sleep OK. Am celebrating having my first cup of coffee in a week. I know coffee is not the best but it is making me happy. Earlier in the week I was thinking I couldn't imagine going through this 5 more times but am now thinking bring it on, get this done so all good. I didn't see much improvement over days 1-6 but yesterday I felt so much better. Definitely sleeping is a good plan too. It helps make the worst time go quicker. Thinking of you all. LMC hope that infection is getting sorted for you so you can get started too. Xx

Member

Re: July 2019 chemo starting

Hi LucyLump,

 

I am so happy to hear that you are feeling better. The night was completely fine but today I'm definitely not feeling so well. Funny mild numbing pressure in the head/jaws, mild stomach pain on and off, dizziness, rash coming and going although they are not itchy at all they are just hot. I got the one-off injection,  I think this is the one you will get maybe next time. No bone/muscle pain yet. Smiley Happy I know everyone is different but I feel I am on the same path as you regarding the side effects, so I assume I will spend lots of time in bed in the next 3-4 days?

Well done, you!!! We can definitely do this!

xx

Member

Re: July 2019 chemo starting

Well done Flower79! I wimped out and am currently waiting for community nurse to come and do injection number 6 for me. Really looking forward to having 2 weeks off them. There must be different while blood cell boosters. Mine is filmagrastin and definitely have had no bone pain at all with it. Hope you don't get bone pain either. Presumably though if you do they can switch to a different med for next time. I am apparently getting a one off injection next time instead of 7. Does the same job (I checked) but not given automatically as it costs more. Definitely feeling less tired today - yay! We can do this! Xx

Member

Re: July 2019 chemo starting

Hi LucyLump and all fellow fighters,

 

Today was not too shabby. I had some mild nausea on and off from the afternoon, and I developed a skin reaction like flush and some rash on my chest, face and upper arm but it went away by the evening so nothing serious. I drunk lots of water and eat as usual, however, my nausea is worst after a meal. I had two really long naps, and it helped me to stay active during the rest of the day. My taste buds seemed ok today, they didn't get worst, but my mouth is getting really dry so I rinse as often as I can. I administered Neulasta this evening, I hope I will be lucky, and the bone/muscle pain won't be too bad.

 

How is everyone else doing?

xx

Member

Re: July 2019 chemo starting

Morning. Hope you are all coping ok today.


@LucyLump wrote:

Well done Flower and everyone else. I have not had any bone pain at all or loss of taste buds. Sickness and nausea first night then complete exhaustion. Not much appetite but eating little bits here and there. I don’t think the filmagrastin injections have helped so looking forward to last one on Thursday. Think they can make you tired too. Xx



Xx

Member

Re: July 2019 chemo starting

Well done Flower and everyone else. I have not had any bone pain at all or loss of taste buds. Sickness and nausea first night then complete exhaustion. Not much appetite but eating little bits here and there. I don’t think the filmagrastin injections have helped so looking forward to last one on Thursday. Think they can make you tired too. Xx

Member

Re: July 2019 chemo starting

Hi All,

 

Everything went smoothly today with my first chemo session. It was a long day and apart from feeling pretty tired, it's all good so far. For dinner, I had my fav Japanese ramen and the soup tasted bitter. I never thought that taste buds will start to play their game so soon. Other foods still taste kinda ok but I assume they will start to taste bad very soon. 

LucyLump, I can totally feel the all day/night sleep will get me as well. Do you have any bone/muscle pain? How is your nausea?

I am rooting for all of us. It's a good feeling that the first one is done. One step closer, yay!!!

xx

Member

Re: July 2019 chemo starting

Kaytee, it was my hospital that issued the wig voucher, not Macmillan, so definitely worth asking about when you're there next x

Community Champion

Re: July 2019 chemo starting

Kaytee...

 

My Oncologist gave me a voucher... from my hospital I was allowed up to £200 but you can add to that if you wanted! 

Different hospitals allow different amounts towards the wig.. I know some are a lot less than £200 -it came with a list of local suppliers who accept the NHS voucher 

It would be worth asking about it x 👩🏼

 

Member

Re: July 2019 chemo starting

Hi Kaytee, the voucher I got would cover the cost. There were a few more expensive ones made from real hair but plenty of choice of others. I got my voucher from my breast cancer nurse. Xx

Member

Re: July 2019 chemo starting

Hi annabel

When u say voucher is that money of or does it cover the full cost?

 

I don't think we have a Macmillan office at my hospital but I will email them and ask . Thanks for the suggestions xx

Member

Re: July 2019 chemo starting

Thanks everyone for your best wishes. Its lovely to have the extra support. 

Hi Susan thanks for letting me know how well you got on with the cold cap, pleased it went so well for you. I suffer from headaches and migraines so when they said there is possibility of increased risk I thought no thanks! I also have an hour commute to the cancer centre and and hour back so am considering using the mobile unit which is in walking distance (pre cancer walking distance anyway!!) And it's not an option on the lorry anyway.

Good luck all xx

Member

Re: July 2019 chemo starting


@Kaytee wrote:

Hi ladies

I should be having first chemo this afternoon. Waiting for blood test results as I have a cold but was advised yesterday that if it's just a cold will continue with the chemo.

I hope it goes ahead so I can start to move on but slightly nervous of the unknown now.

I have decided not to cold cap as increased risk of headaches  is something I would rather avoid 

Had meeting at the hospital wig lady yesterday was very surprised at the price for a basic one £75 plus!!  

Anyway best wishes everyone xx


Hi I am almost at the end of chemo and I just wanted to say it might be worth reconsidering cold cap . I have retained about 90 per cent of my hair and have met other women on ward exactly same . It is clear most ladies do not  go for this and I wonder why ... never once had a headache just 10 mins of discomfort which two paracetamol  make minimal . Yes you are on ward twice as long but for me the fact I kept my hair made it all worth it . 

Community Champion

Re: July 2019 chemo starting

Hi Ladies... 

I'm from the Oct 18 starters! (That seems like a long time ago!!!)

 

Kaytee...

Did you not get a voucher for your wig from your oncologist?

When I started my treatment I was given a voucher and a list of the salon's that accept them! 

I know different trusts offer different amounts but it would be worth asking about the voucher! 👩🏼

 

Best wishes to you all with your treatment and recovery...

stay strong Ladies! 💪🏻💗🌸👙 xx

Member

Re: July 2019 chemo starting

Hi everyone, hope you are Ok and hope you get started today Kaytee too. I have been sleeping pretty much all day and night for the past 4 days. Hopefully better soon. Each day though is one step closer to the end of our treatment and are cells are being zapped in the process. I am sorry you don't all get wigs. I am in Scotland and got a prescription to go and get one fitted and ordered from a hairdresser in town. I have decided though to just go for a scarf anyway. Look after yourselves. Thank you those who have been through this already for popping in to see us. It is really appreciated. Xx