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July 2019 chemo starting

Member

Re: July 2019 chemo starting

Hi Lucylump, 

I’ve been on Herceptin, Perjeta and Docetaxol, along with Carboplatin from the start of my treatment andnoticed an almost immediate reduction in my huge lump. Herceptin and Perjeta are wonder drugs.

good luck xxx

Member

Re: July 2019 chemo starting

So....yesterday I was in a panic because tooth chipped and I was worried dental work would delay treatment which is due tomorrow. Managed to get lovely dentist to fix it so all good. Then had pre treatment phone call from Hospital...they had forgotten I need an echocardiogram before starting herceptin so I now have to go for that tomorrow instead and go in for treatment for six hours on Friday (Perjeta and Herceptin) and then back again on Monday for doxetacel. Will get there in the end. In meantime have extra day of food tasting good so fully plan to make the most of it! Hope you are all ok. Xx

Member

Re: July 2019 chemo starting

Hi LucyLump 

 

I've written a reply to you in our Feb 19 forum. 

 

Susie B xx  

Member

Re: July 2019 chemo starting

Hello Lucylump

I’m sorry to hear that your result hasn’t been more definitive. Can understand your disappointment,  but  the next lot of treatment will do the job and zap it good and proper ! 

Sending you a hug .... 

best wishes to all you July ladies ... keep on keeping on ! Xx

AWW
Member

Re: July 2019 chemo starting

Hi LucyLump, 

Sorry to read this, I can imagine how you feeling, please keep strong and be hopeful, we will all beat this.

I am sending big hugs your way. 

Cheers xxx

Member

Re: July 2019 chemo starting

Just received letter from my Breast Cancer Surgeon to say the ultra sound showed no significant reduction in the size of my tumour. He did say this is often the case and that he wanted to reassure me that reduction is often seen with the more targeted drugs (herceptin and Perjeta in the second) half of treatment. Still disappointing though. Xx

Member

Re: July 2019 chemo starting

Mmm that was a bit annoying. Radiology lady said she couldn't tell me the results of the scan because the images had to be compared to to the last ones which were done on a different machine. Will have to wait until next week to find out. Arghh....Xx

Member

Re: July 2019 chemo starting

Hi Lucylump

I think I will phone the park and see if I can also use their blue badge area cos as u said by the time I walk to the office to get a scooter I will be exhausted!

Good luck with your scan today xx

Member

Re: July 2019 chemo starting

Hello LucyLump ! 

I just want to wish you good luck for your scan today .. I’ll be thinking of you and sending positive vibes 👍🏻😊

I agree about the blue badge spaces , I could have done with one the other day when calling into a store .. but somehow we muster up the energy from somewhere 🤔

Sending good wishes out to all you July ladies .. we’re  getting there xx

Member

Re: July 2019 chemo starting

Hi Kaytee, I think hiring a wheelchair is a good idea. Most big places including big shops have them you can borrow too. I know what you mean about the tiredness and really wish that we could get temporary blue badges to use in our bad weeks. I was going to go to an agricultural show a few weeks ago and I contacted them in advance and explained that if I walked from the back of the car park I would have no energy left for the show and could they please let me in the blue badge parking area. They said yes. In fact on the day I was too tired to go but I do think asking in these situations is well worth a try. I have my mid way scan this afternoon. Bit scared! Was thinking lump was changing but now not so sure. Xx

Member

Re: July 2019 chemo starting

Hi ladies

I have had my 3rd round, no sickness for the first time but did have emend and something else ( not so good on the bottom, but things moving now, hurrah!! ;-) )

I have been very tired, but finding getting to sleep difficult and if I get woken up I cant always get back to sleep easily 

 I love Iona and mull too, so will try a walk around there tonight ........ ;-)

Going to try to take the kids out for the day on Wednesday ,zoo or something, thinking about hiring a wheelchair cos walking is exhausting but feel unsure about it. Slight embarrassment and partial not wanting to give in to it but I think it's better than total wearing myself out?

Night All xx

Member

Re: July 2019 chemo starting

LucyLump,

Thank you, thank you, thank you!!! I will try these tonight, you are a life saver!!! Xx

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Member

Re: July 2019 chemo starting

Hi Flower, lovely to hear from you. I am so sorry you have been having such a bad time with infections. Coping with insomnia is really hard. There is nothing worse than tossing and turning and getting frustrated about not being able to sleep and the more frustrated you get the less likely you are to actually sleep. If you google insomnia it will give you all sorts of ideas from clinical psychology including most commonly telling you to get up and go and do something really boring. I am a clinical psychologist and I think that most of the time in our current situation we are too tired to actually do this! I was lucky enough to be trained by Colin Espie who is a world sleep expert and one of the most useful pieces of advice he ever gave me was to 'tell yourself it doesn't matter if I am not asleep relaxing in bed is just as good'. If I am having difficulty sleeping (and I am just now) I tell myself this and even though it sounds odd it actually does help. The other thing I do is 'go on journeys in my head'. I like going to Iona so I imagine myself walking up the slip way off the ferry trying to remember as much detail as I can of what is there as I 'walk' round the island or I imagine myself walking up a shopping street in a city trying to remember what order the shops come in. These things can help distract you from the frustration of not being asleep and that can make it more likely that you will actually get back to sleep quicker. 

 

We are all doing so well getting through this. Sending hugs to you all. Xx

 

 

 

Member

Re: July 2019 chemo starting

Hi Dot and everyone,

 

Sorry, I haven’t been here a while. I had manny issues in my past 3 rounds including severe allergic reactions from cycle 1 which finally got sorted Smiley Happy. I also went to back to work which feels great but takes up lots of energy. 

I am currently battling with a bad throat infection and I am on antibiotics. Hopefully it will get sorted soon as well. Smiley Happy

 

I am so proud of all of us kicking ass.

 

Dot, I am in Carboplatin+Paclitaxel+ Herceptin+Perjeta since the beginning, and have another 3 rounds to go from the same before saying bye to Carboplatin and Paclitaxel. I start to take Claritin  a day before chemo and continue for another 8 days for joint paint and it worked perfectly so far. I think it is good for both Paclitaxel and Neulasta induced joint paint however I started to take it because of the Neulasta. 

I love the grapes as well!!! Smiley Happy 

Paclitaxel was/is difficult for me as I am hypersensitive to it but we still try to push it through with an extended course of steroid which is not the greatest to my body but at least I can cope. 

Is anyone battling with insomnia? It’s been pretty bad since the beginning, and it is killing me. Had sleeping pills but they sometimes work, sometimes don’t, and even if they do, I am up in every 2-3hours. Anyone advice would be greatly appreciated! Smiley Wink

Love you all and thinking of you 

xx

 

Shi Community Champion
Community Champion

Re: July 2019 chemo starting

😘😘pace yourselves ❤️❤️ you are ticking them off nicely 👏👏👏give yourselves a little celebration treat each one, a new lippy or whatever the steroid induced shopping has you doing 👍👍💕💕✨✨Shi xx

Member

Re: July 2019 chemo starting

Yay! Silverpixie no sickness. So pleased for you. I am sure they will give you emend next time too. Tiredness for me after FEC2 was worse than after FEC1. Xx

Member

Re: July 2019 chemo starting

Hello all!

well here I am Day 3 and no sickness ! Yay!! Had the emend tabs and so far it’s worked . Feel washed out but that’s to be expected ... hope I get the same for last FEC in Sept . Hope your all ok .. good luck for those with chemo this week .. how do you all remember the questions for oncologist? I get home and think l never said this or that ? Or can I blame chemo brain 🙄

anyway we’re all trying our best to get through and your support on here is so appreciated xx

Member

Re: July 2019 chemo starting

Hi Lucylump

All moving freely at the mo, thank you :-) lol. Glad you are doing ok fingers crossed that continues. I am hoping round 3 will be better. Have oncology appointment tomorrow so will hopefully get more sickness drugs and then chemo on Tuesday.

Best wishes everyone xx

Member

Re: July 2019 chemo starting

Dot I was just looking through the other months threads and there are several lovely ladies on the June thread having Paclitaxel. It may be helpful dropping in there too. Good Luck tomorrow Silverpixe. We will all be thinking of you. Aww I think I am doing better this time than I was after chemo 2. I may be speaking too soon but I think being half way helps plus it is the FEC done. I hate that pink stuff and the pink wee that follows it! Kaytee hope you have found something to drink and that you have done a poo! Shi I love all your posts. You are a star helpful us all and cheering us all up. Xx

Member

Re: July 2019 chemo starting

Thanks for that reassurance Lucylump... I couldn’t see how I was going to get through another round with being sick all the time :-( I don’t feel quite so anxious now about Monday 🤞glad your getting through ok .. it’s not something we would  wish  on an enemy is it ☹️ Onwards ladies ! xx 

Shi Community Champion
Community Champion

Re: July 2019 chemo starting

👏👏👏👏yehhh Lucy lump did a 💩💃🏻💃🏻🕺🕺💃🏻💃🏻💃🏻It’s such a great feeling isn’t it Lucy 👍👍we used to celebrate too 😂🤣😂🤣😂try starting the senokot or whatever you are on day 4 after chemo unless you are on T then it could be hurricanes bum bum time and you’ll need Imodium 👍💕💕✨✨Shi xx

Member

Re: July 2019 chemo starting

Silverpixie emend makes the world of difference. First chemo I was sick everywhere and was worried I was would kill the dog if she got to it before I managed to clean it up. 2nd and 3rd chemo on Emend no sickness at all. Felt a bit nauseous at 4am both times but no actual sickness. Dot if no one on this thread is getting paclitaxel it may be worth asking on one of earlier months threads to see if they have any advice. I know some people are taking antihistamines for pain but I am not sure if this is for the pain following the pegfilgristam injections or for other pain as well. Kaytee I also had constipation after chemo 2 partly my own fault because I never took the Senna they gave me quick enough. Did a little dance when I finally did a poo! Things we do. Also had a friend round who didn't want to come in incase she gave me an infection and discussed it very loudly on the doorstep so all my neighbours know about it as well which will give them something to talk about, especially those who haven't actually bothered asking why I haven't been going out to work since May 10th! Xx

 

Member

Re: July 2019 chemo starting

Glad you enjoyed the grapes 🍇 I bought myself one of those little insulated packed- lunch bags with a freezer block in it. Kept them frozen for ages. 

My hips are killing me today!!! I thought it was the herceptin that caused it but it must be the paclitaxel. Anyone else had joint pain due to paclitaxel?

Member

Re: July 2019 chemo starting

Hello all

Hope everyone is ok ... I’m due my 2nd chemo on Monday as well  , Aww. Have been given Emend to take this time,  so hope it’s a smoother ride than last time . I’m going to try the frozen grapes .. anything for an easier life! x

Member

Re: July 2019 chemo starting

Hi, 

 

I am doing not too bad after chemo yesterday. 3rd one so happy to be half way. Kaytee I found chemo 2 harder than chemo 1 and a friend of mine who went through this 7 years ago also said she found chemo 2 and 5 the hardest. Did you get better sickness meds? I was changed on to Emend and it made a big difference. I also have been finding it difficult to drink water and can't stand drinking out of plastic drinks bottles. I have managed to find this pear and elderflower cordial though made by Robinsons for grown-ups and it is OK. I have been diluting it with sparkling water (which I found in a glass bottle) from the fridge and that has helped too. Once both bottles of my sparkling water are empty I will fill them up with tap water and put them in the fridge too. Other people have mentioned finding lime juice ok. I tried that but went off it after 2 days. It's odd how tastes change literally hour to hour. Frozen grapes are lovely. My unit was running late though so by the time I got in 2 hours late they were soggy grapes but still nice. Xx

AWW
Member

Re: July 2019 chemo starting

Thank you Dot70 for explaining to me, i will definitely try that for my next cycle on Monday.

How are you doing LucyLump, hope you coping after your chemo yesterday. 

 

Cheers xxx 

Member

Re: July 2019 chemo starting

Hi ladies

The frozen grapes sound great. I will get some ready for Tuesday . 

My last chemo has been ok but still suffered sickness on the first night, so much that I phoned the help number at 3am to see if I could take more anti sickness drugs. I felt less sick the next day but my stomach was delecate for the first week and I have had a lot of constipation (sorry too much info) and been very tired.  Have had a few migraines but not as bad as before (touch wood).

I am not looking forward to my next chemo on Tuesday,  it doesn't seem like its 3 weeks already and I don't feel 100% recovered but at least that's half way through.

 

I really struggle with drinking in the first week, I can't stand the taste of water and I know I need to drink but it's really hard to make myself drink. Any suggestions?

 

Hope your chemo was ok yesterday lucylump and best wishes to everyone xx

Member

Re: July 2019 chemo starting

Grapes are meant to be a super food in fighting cancer, particularly red grapes as they contain more reseveratrol. Also, by sucking on cold things during chemo it's meant to have a similar effect to cold capping so reduces side effects in mouth so hopefully no sores. And they taste gorgeous!!! 

https://www.aicr.org/foods-that-fight-cancer/foodsthatfightcancer_grapes_and_grape_juice.html#


@AWW wrote:

Hi LucyLump, 

All the best with your chemo this afternoon. 

Please what does frozen grapes help with?

Cheers.. 


 

Member

Re: July 2019 chemo starting

Enjoy your frozen grapes 🍇 Tasty and refreshing and keeps your mouth cool so hopefully no ulcers. What's not to like? Hope your treatment goes well.

I'm a teacher so was told to stay well away from school! Just soooooo frustrating because I've already been off 3 months since I had my mastectomy in May and I was hoping to be back in work October half term. I am now already a month behind schedule as missed so many chemos. Probably looking at a January return at this rate. 

AWW
Member

Re: July 2019 chemo starting

Hi LucyLump, 

All the best with your chemo this afternoon. 

Please what does frozen grapes help with?

Cheers.. 

Member

Re: July 2019 chemo starting

Oh Dot it is a long haul for you but you will get there. Work is a difficult issue. Part of me misses it but part of me actually enjoys not working on the good days. Taking my frozen grapes with me this afternoon. They are gorgeous. Xx

Member

Re: July 2019 chemo starting

Hi Lucy,

I should have been half way through my 12 sessions today but I'm only 2/12 now. Hey ho! Just delays going back to work. Why am I even worried about that? 

Member

Re: July 2019 chemo starting

So pleased for you Dot! I am back tomorrow for chemo 3. Looking forward to being half way. Hope everyone is OK. Xx

Member

Re: July 2019 chemo starting

Thank you. 

Frozen red grapes are gorgeous 😁 and soooooo refreshing. Enjoy!


@BOD2019 wrote:

Frozen pineapple works too. Now trying grapes. Thanks.  

I take clarity daily or rather supermarket loratadine which is the same drug but cheaper. I knocked it off last cycle and had bone pain. Don’t know how it works  

Hope your liver stays good x


 

Member

Re: July 2019 chemo starting

Frozen pineapple works too. Now trying grapes. Thanks.  

I take clarity daily or rather supermarket loratadine which is the same drug but cheaper. I knocked it off last cycle and had bone pain. Don’t know how it works  

Hope your liver stays good x

Member

Re: July 2019 chemo starting

We do long forward to being poisoned don’t we. Well done x

Member

Re: July 2019 chemo starting

I had chemo today after missing the last 4!!! Never been so happy to be given some toxins!!!

Member

Re: July 2019 chemo starting

That is fantastic Bod. Thank you! Xx

Member

Re: July 2019 chemo starting

Hi LucyLump and all, 

I have had 2 cycles of Taxotel, Carboplatin, Herceptin and Perjeta for HER2 tumour and I felt my lump stop growing after the 1st treatment and shrinking rapidly thereafter. It’s at least half the size it was 6 weeks ago. I have my 3rd treatment tomorrow and hope I won’t be able to feel it soon. Good luck with your treatments. 

Member

Re: July 2019 chemo starting

Thank you so much Susie. That is really helpful. I am Her2+ and have my 3rd FEC hopefully this Thursday. I will then get my scan shortly after that. Then it should be T plus Herceptin and Perjeta X 3 followed by operation including lymph node clearance and then rads. It sounds a lot but time is whizzing past quickly. In the meantime on my better days I can actually say I am enjoying not being at work! Xx

Member

Re: July 2019 chemo starting

Hi LucyLump

 

Just popped in from the February 19 group and saw your post. Trust me, you're not imaginning your lump shrinking☺. I noticed a change after my first round of FEC and a scan after my second indeed showed that it had shrunk and eventually went from 21mm down to 6mm.  I'm TNBC which was only confirmed after surgery. My original biopsy back in December was inconclusive for HER2 pos/neg. I'm on a trial so had 4 rounds of FEC, randomised, followed by lumpectomy and full ANC back in June. I have just had the second of 4 rounds of TC as the FEC didn't destroy all the cancer cells in my nodes. The TC will clear any cells that may have escaped. Next stop rads. We're a chatty group so pop in any time for a chat or to ask any questions. Someone will always get back any of you. This is a journey none of us wanted to be on but we will get through it.❤❤❤❤❤        

Member

Re: July 2019 chemo starting

I hope I am not imagining this but....it honestly feels like boob lump has reduced in size over the last 2 days. Until a couple of days ago I was thinking no change or worse still bigger but today definitely different. Lymph node feels the same but still it is making me hopeful. Day 17 after FEC 2. Xx

Member

Re: July 2019 chemo starting

So sorry your chemo is delayed again Dot but so pleased there is no cancer in your liver. That is a relief. Hopefully they can get those levels down soon for you so you can get going with chemo soon too. Xx

AWW
Member

Re: July 2019 chemo starting

Dot70 sorry for the chemo delay again but yehhhhh to no cancer found in liver.

Hold tight hun, it will surely rain Smiley Happy 

Member

Re: July 2019 chemo starting

No chemo again today as liver levels still up.
Got results of my liver scan this morning and it shows no cancer. 😁
Does show I have one large gallstone though: 3.5cm but it's mobile. They not sure whether it's that that's causing my ALT level to increase. Being referred to gastro department. It never rains!! Really hoping this is sorted soon so I can carry on with my chemo. Xx

Member

Re: July 2019 chemo starting

No chemo again today as liver levels still up.
Got results of my liver scan this morning and it shows no cancer. 😁
Does show I have one large gallstone though: 3.5cm but it's mobile. They not sure whether it's that that's causing my ALT level to increase. Being referred to gastro department. It never rains!! Xx

Kip Community Champion
Community Champion

Re: July 2019 chemo starting

Hi Lucy lump,   I had steroids for three days after chemo with Fec but it changed with the T part and I had 6 a day for 6 days starting the day before chemo.  I found on Fec I took a big dip in mood and energy about 1-2 days after coming off them. But picked up quickly and on T not so much so.   Its hard getting used to all the drugs but I kept a diary to help me remember and to look back on on the next cycle.  I was also advised to take them no later than lunch time as you get a steroid buzz and it effects your sleep,  so took them at breakfast and lunch 

Member

Re: July 2019 chemo starting

Hi Lucylump, 

I also have 3 days of steroids but starting 24 hours before treatment. I’ve had 2 rounds so far and each time I went from full of energy to very low and tired when I came off then. This time I felt more nauseous so am having Emend anti sickness next week. 

Best wishes everyone 

Member

Re: July 2019 chemo starting

Morning Lovely Ladies, 

 

Sorry not been in touch. Am now on day 11 after second FEC and beginning to feel a bit more like me. From day 3 it totally wiped me out with overwhelming tiredness so have been mostly in bed. The first couple of days were Ok thanks to the new sickness meds which made a massive difference so at least that bit was loads better. My taste buds are definitely going now and seem to change throughout the day as in in the morning something will taste awful but by the afternoon it is ok or vice versa. Annoyingly I went and bought what I liked eating after FEC 1 and then discovered I no longer like it. Also had a bit of a problem with constipation. My fault for not taking the Senna they gave me at the hospital when they told me to. Sorted it eventually with the Senna and tinned prunes - thank goodness. Yesterday I tried to go out shopping but ended up sitting in the car but on the plus side I discovered that coffee frappacinos tasted awesome (at least they did then). Am getting my food delivered by Sainsbury's who have some delivery slots that only cost 50p which is well worth it. Any energy better used on other things than in a supermarket. 

 

Last night I had bone pain and wondered if it was from the pegfilgristam injection which I had a week ago. Seemed a long delay before the bone pain kicked in. I read on another thread that antihistamines help so took one and I have no pain this morning so maybe that worked. 

 

I was wanting to ask about steroids. At the hospital they give me steroids for 3 days starting the morning after each cycle. Is that what everyone gets or are some hospitals giving out more? I am not a big fan of steroids but am wondering if they help with the tiredness in which case I would ask I think for a few more days. 

 

Am so sorry to hear so many of you are having such a difficult time with chemo delayed and infections. Hope things get back on track for you soon. Thinking of you all and sending hugs. Xx

Shi Community Champion
Community Champion

Re: July 2019 chemo starting

Hi remember to book your look good feel better sessions with your local Macmillan 💕💕✨✨Shi xx