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July 2019 chemo starting

Shi Community Champion
Community Champion

Re: July 2019 chemo starting

Kaytee just check with your unit if Scotland is one week after your last chemo and follow their guidance ❤️ They might tell you to have idea of where nearest trusts are while you are away just to be safe ❤️ 💕💕✨✨Shi xx

Member

Re: July 2019 chemo starting

Hi ladies

Iam on day 4 from docetaxel.

Taste buds defo on way out, lucylump I am also finding milk ok at the moment but I really have to focus and tell myself to drink something.

Starting to get achy legs now, but nurses said that's good cos it means the injections are working,  so I am trying to remember that!!

Right now my worst issue is still to do with my bottom, have had a poo, but have really painful piles (sorry for the too much info :-) )

 

Last year before all this started I booked a family holiday in Scotland, 10 of us. It's now coming around and I am unsure if I should go. It's a week after my (hopefully) last chemo. I know I will not be able to do much but I love Scotland and am hoping I will just be able to sit and watch the dear etc.

I guess I will have to wait and see how I feel that week, but I am reluctant to admit defeat yet!

What do you think, is this unreasonable?

Best wishes everyone x

AWW
Member

Re: July 2019 chemo starting

Hi LucyLump, 

I am day 2 after docetaxel and taste buds already gone, went all emotional yesterday just because nothing taste nice, lol.

Last docetaxel completely knocked me out, I was really poorly so though am still kind of OK for now am really anxious because it's still early days.

Can't wait to put all these behind us. We are getting there Smiley Happy 

 

Member

Re: July 2019 chemo starting

Morning everyone, hope you are all ok. Am on day 6 after 2nd docetaxel and a bit spaced out but otherwise managing ok. Last one with you Flower 79 on 18 October. Will be so good to get this out of the way even though there is operation and radiotherapy etc to come. Finding it really difficult again getting something ok to drink. Oddly todays OK thing is milk with strawberry nesquick! Really strange. I would not drink this normally but drinking anything is important so this has to do. Can't tolerate water, sprite or coffee any more.  So looking forward to taste buds and most importantly hair coming back again. How is everyone getting on with their nails? Mine seem reasonably strong just now and I haven't put any nail varnish on them but am wondering if I should. Am moisturising hands and nails in hope this will help. Eyelashes still seem to be there but eyebrows virtually nonexistent. Thinking of you all and sending hugs. Xx

Member

Re: July 2019 chemo starting

Morning Helly and all ,

I’m glad you’re feeling positive today after your drug changes for the next chemo. I had my 4th yesterday( doxcetral and Herceptin )   and like you am waiting for the side effects to kick as I feel sure they will !  Don’t the steroids leave you wired 😂I feel I could tackle all sorts but I think that’s not a good idea just yet ! 

Im on 80% dose because of my experience with excess vomiting on round 1 and they have decided to keep me at that level for now . As long as it works long term that’s fine with me .. like you its preventive as my cancer hadn’t spread although stage 3 . 

Im just thankful to have got this far and have to say that regular input from you ladies has helped me along no end .. best wishes and hugs to all .. we ARE getting there ! xx

 

Member

Re: July 2019 chemo starting

Good morning all, 

 

Bit quiet here in our chat, I hope that means you are all ok? How are you all coping?

 

I had my oncology review mon and had a few meds swapped around to see if I can cope better for round 5 still maintaining the high docetaxel dose, I can have it reduced by 20% for the final one if it doesn't work.

 

They have swapped me to the one off white blood cell jab instead of the 7 day one, going to start cocodamols tonight and have been given a supply of nystatin, fluconazol and laxido!

 

I had 5th chemo yesterday which was uneventful, just how i like it so final one planned for 23rd oct if bloods hold out. 

 

Lymphodema clinic today and then radiotherapy planning next week too.

 

Feeling much more positive and settled this time round... or maybe thats the steroids.....

 

Thinking of you all

Helly xx

Kip Community Champion
Community Champion

Re: July 2019 chemo starting

Oh yes I agree with Shi,  I used to suck ice lollies during Fec and T chemo, the nurses told me to and the hospital had a supply in the fridge.   It should help prevent the burnt mouth feeling.    I also used to use cooled boiled salt water regularly during the day, especially after eating and a teaspoon of good quality manuka honey everyday and let it sit on your tongue for a bit, that's supposed to have an antiseptic quality too.

Kip

x

Shi Community Champion
Community Champion

Re: July 2019 chemo starting

I used to suck ice lollies during chemo fec, that might help. Please discuss with your team, they could prescribe you something more than just the difflam 😘hope you get this sorted ❤️💕💕✨✨Shi xx

Member

Re: July 2019 chemo starting

Hi All, 

 

Not sure if this has been discussed but anyone having issues with their mouth? I’m on my 4/6 EC and each time my mouth is so dry my tongue hurts feels like it’s been burnt and my lips are really dry with sores in the corner. 

Ive been given Diflam I drink plenty, Vaseline my lips but still not great. 

 

Any tips would be really grateful! 

 

Thank you 

 

xx

Member

Re: July 2019 chemo starting

Hi everyone,

 

I hope everyone is doing ok so far. I just had my 5th round of Herceptin, Docetaxel, Perjeta and Carboplatin yesterday and I will ha e my last round of these four on October 18th. Same day as you, LucyLump! Smiley Happy I am still having my allergic reactions for Docetaxol even with premedication, medication during the chemo session when they have to stop for a while until the symptoms get sorted, and with an extended course of steroids. I had bad dried mouth during the first 3 rounds but the man it got much milder. When my taste buds are on strike, toast with butter on it, Feta cheese, olives and hard boiled eggs are still have a good taste. And ginger tea Smiley Happy 

I had my surgery first so when I am done in October with this cocktail, I will start my radiation and continue to have more 12 cycles but only Perjeta and Herceptin. They say the side effects of those are much milder, and I am really looking forward to it Smiley Happy

 

Time flies indeed, in July the end of this part seemed so far away, but we are getting there ladies!!! I know I did not write very often but I was following your conversations. You are all rock stars! Keep it up, not much to go now. Smiley Happy 

 

 

Member

Re: July 2019 chemo starting

Hi Lucylump,

I have my last Herceptin, Perjeta, Docetaxol and Carboplatin due on 13th October. The rest of my treatment seems to be the same as yours. Good luck x

Member

Re: July 2019 chemo starting

Hi everyone, hope you are all doing Ok and getting stronger ready for the next round. I had my Herceptin and Perjeta yesterday luckily this time without a bad reaction and I go back on Monday for the next docetaxel. The plan is for my last one to be on 18 October. Back in May October seemed so far away but time has flown really. Can't believe we are nearly there already. I haven't seen my oncologist since July but have clinic calls by phone from oncology nurses. So far they seem to be OK though. Next plan is operation approximately 6 weeks after last chemo and then radiotherapy and herceptin for 12 more sessions. What a long haul it is for all of us. Thinking of you all. Xx

Member

Re: July 2019 chemo starting

Hello everyone!

 

Been reading your updates, hope you are all looking after yourselves as best you can!

 

After 2 further visits to GP for treatment for oral thrush and then for hot flushes, nightsweats (menopausal symptoms already and Im only 39) and restless legs I'm beginning to feel more myself (GP gave me amitriptyline 10mg and I have had 2 lovely nights sleep).

 

I think my next session is weds but have an oncology review on monday - have along list of questions to see if we can come up with a plan to manage the pain better and be prepared for the next session.

 

Has anyone else had a review yet? I had my surgery already and also have radiotherapy planning booked for early october?

 

Thinking of you all

 

Helly

Member

Re: July 2019 chemo starting

Hello ladies

I hope everyone is starting to get over most of the side effects now.

My taste has pretty much returned to normal and skin is starting to heal. My main problem is still going to the toilet!!

My eyes are very sticky and have a headache this morning but still feel better than I have for last 2.5 weeks!

Next chemo is next Tuesday, really worried about it after this time but keep thinking only 2 (hopefully) to go and maybe it wont be as bad? Fingers crossed! 

Best wishes everyone xx

Member

Re: July 2019 chemo starting

Totally agree Silver Pixie. I can't eat anything sweet either apart from the fruity bit of fruit corner yoghurts. Will try out chicken gravy as well! Xx

 

 

Member

Re: July 2019 chemo starting

Morning LucyLump ,

hope you’re feeling better now , and able enjoy the next chemo free days... that’s what I’m doing  this week .

Taste is funny isn’t it? I can’t bear chocolate or tea and have developed a complete aversion to what I call manufactured sugar .. I’ve been eating hard pears and hard nectarines so they’re not fully ripe and sweet ! But my favourite is chicken gravy!! 

We are getting through this and will get to the end somehow , giving each other strength and support along the way . 

Best wishes to all xx

Member

Re: July 2019 chemo starting

Morning everyone. Hope that for those of you in pain it is easing off. How are you all coping with the loss of taste? So far for me Fruit Corner Yoghurts taste OK but not sure about anything else. Chocolate and coffee taste disgusting! Sending hugs to everyone. Xx

Member

Re: July 2019 chemo starting

Hi,

i had my last Docetaxel and Carboplatin on Friday. It has totally tired me out. Doctor gave me Gabapentine for pains in legs and spine which helped, I can take Paracetamol on top if needed.

I used the cold cap for the 4 sessions and it has saved my hair, although with a couple of bald patches. I meet with Radiologist on 27th to discuss the next stage of treatment.

when this all started back in February, I couldn’t have imagined what was ahead or how to deal with it but we do , don’t we.

Thinking of everyone

Member

Re: July 2019 chemo starting

Hi Everyone, I am so sorry to hear you have all been in such pain. I really hope it is easing off for you now. I have been totally wiped out for several days being sick. Docetaxol is affecting me differently from everyone else for some reason. I was fine until Saturday then really sick until yesterday. Not what I expected and I am not sure if the sickness was due to the chemo, antibiotics, immodium or a combination of all 3. I have also been dehydrated. Finding it really difficult drinking anything over the past few days. Today thankfully I seem so far at least to be able to drink water so keeping going to try and top up again. Still feel awful and worried about next docetaxol already due next Friday but at least after that it will be only one left. We will all get there. Thank you so much to all of you for all your support. Sending hugs. Xx

AWW
Member

Re: July 2019 chemo starting

Hi Kip, 

Thank you for this, it helps lifts ones spirit up and help us keep fighting. 


@Kip wrote:

Hello ladies, sorry to hear some of your are struggling at the moment.  That switch over from one type of chemo to another does seem to hit us hard.  I had 3 x Fec and then 3 x Docetaxol and the first T was so hard, I got neutropenia, oral thrush, etc etc.  My ONC said it is often because your body is used to FEC and then wham something new happens.  I did find that rounds 2 and 3 were better and I was better prepared, just took everything they gave me before anything happened!   On a plus note my hair did start to grow back on T.  I also got the aches and pains, caused by the injections too, took painkillers when it got really bad and hot water bottle.   I had the sore nails as well, felt like I had jammed them in the car door.  I never lost any nails, luckily, but they did look a sight, ridges, yellowing and brittle, but 1 year later and they are all back to normal, didn't take long, just kept nail polish on them and nobody knew!. I also got numb tingly thumbs, if you get this mention it to your ONC as it can get worse and they may need to adjust the amount of chemo you are getting.  Mine recovered once I had stopped chemo (about 3-4 months later) and its all ok now.

Hang in there ladies, keep ticking of the days!  On Monday I will be 1 year since last docetaxol...you'll soon be there too.

 

Kip

xx


 

Kip Community Champion
Community Champion

Re: July 2019 chemo starting

Hello ladies, sorry to hear some of your are struggling at the moment.  That switch over from one type of chemo to another does seem to hit us hard.  I had 3 x Fec and then 3 x Docetaxol and the first T was so hard, I got neutropenia, oral thrush, etc etc.  My ONC said it is often because your body is used to FEC and then wham something new happens.  I did find that rounds 2 and 3 were better and I was better prepared, just took everything they gave me before anything happened!   On a plus note my hair did start to grow back on T.  I also got the aches and pains, caused by the injections too, took painkillers when it got really bad and hot water bottle.   I had the sore nails as well, felt like I had jammed them in the car door.  I never lost any nails, luckily, but they did look a sight, ridges, yellowing and brittle, but 1 year later and they are all back to normal, didn't take long, just kept nail polish on them and nobody knew!. I also got numb tingly thumbs, if you get this mention it to your ONC as it can get worse and they may need to adjust the amount of chemo you are getting.  Mine recovered once I had stopped chemo (about 3-4 months later) and its all ok now.

Hang in there ladies, keep ticking of the days!  On Monday I will be 1 year since last docetaxol...you'll soon be there too.

 

Kip

xx

AWW
Member

Re: July 2019 chemo starting

Thanks Jencat, 

I have just realised the medication that I was given at the hospital wasn't co codamol, so I have been taking this medication thinking it was co codamol, no wonder am not getting any better.

Called the hospital now and they said Co codamol was missed out at the pharmacy. Thank God for my GP, they are having some prescribed for me right away.

 

I have an appointment with oncology on Thursday, I have loads to complain about. 

Member

Re: July 2019 chemo starting

Thanks Jencat. I’ll be having a chat about it tomorrow I think if they struggle with my veins again. 

AWW I’ve had lots of different ones from Claratyn to Boots own. Just the one a day ones. Hope it helps 😊

Member

Re: July 2019 chemo starting

Hi AWW,

I found the first Docetaxel really hard like you and I also had a lot of bone pain. I ended up with an out of hours doctor coming to see me, who prescribed liquid morphine, which did help. My 2nd and 3rd chemos with T were a lot better though, so hopefully that will be the same for you. I don't know if that was because my body had adjusted to the different chemo (I was on FEC for my first 3 chemos) or because I persuaded my onc to reduce the number of injections I had to have after chemo x

AWW
Member

Re: July 2019 chemo starting

Hi LMC88, 

 

Please what anti-histamine do you take? , I am having terrible bone and joints pain.

I started Docetaxel last week Wednesday and it has completely knocked me out, I have had chest pains, flu like pains, mouth and throat sore, diarrhoea, headache just everything, it's been terrible. 

Member

Re: July 2019 chemo starting

Hi LMC88,

I'm from the Oct'17 group and I just wanted to reassure you about the PICC line procedure. When I had mine fitted, I couldn't see what was being done-I had to lie on a bed and was covered up and also I didn't feel anything. When I had my line fitted my daughter was allowed in the room with me, which I think helped x

Member

Re: July 2019 chemo starting

Hi Kaytee 

 

I had a poorly fingernail I just soaked with salt water seemed to help. Also for poorly mouth I tired all sorts but basically drinking lots of water with ice was the best solution. 

Bone and joint aches - I’m on my 4th out of 6 EC chemo tmoro, it was the injections you take which gave me really bad pains the first time. But I read about taking anti histamines and it’s actually helped. I had none of that pain since. 

Im struggling with running out of good veins. My arm has hurt since the last one seems like a pulling pain which is weird. I am petrified of needles so the thought of more prodding and poking for the cannula tomorrow makes me feel sick. I am thinking about a PICC line but again the thought of the procedure gives me palpitations. 

 

Good Luck to everyone on you’re journey. Xxx

Member

Re: July 2019 chemo starting

Hi crochet helly

Know exactly how u are feeling

 I also thought maybe I was getting away with it but gentle joint pain on Friday turned into more aches on Saturday.  All of my joints ach.  Also had bad mouth and neck so feeling pretty sorry for myself today.

I have been using paracetamol and ibuprofen and think it's a bit better today *fingers crossed*

My fingernails are also hurting like they are bruised, anyone else had that?

Hope you guys are feeling a bit better today xx

Member

Re: July 2019 chemo starting

 

Hi Crochet-Helly

sorry to hear that Doxacetel is giving you such a rough ride.. hope you feel better today and the painkillers are helping to ease it . 

That’s my next stop having just done FEC with mixed reactions . Can understand the tiredness .. it just zaps you doesnt it? We’ll get through this somehow ! 👍😊 x 

 

Member

Re: July 2019 chemo starting

Hello ladies

 

After getting off very lightly with the EC, Docetaxel is making up for things!!

 

Had my first dose weds which went well, then started to feel some joint pain on friday, ended up at the out of hours GP saturday with the pain and am on Naproxen, Cocodamol and oramorph - and I can still feel the aches, like really bad flu and even my teeth hurt, no signs of infection luckily.

 

Im taking it easy in bed and hubby looking after me, cant taste anything either. Nothing I can do about it apart from go with the ride so thats what I am doing, hopefully will ease off over the next few days.

 

Hope you are all coping?

 

 

 

 

 

 

 

Member

Re: July 2019 chemo starting

Hi lucylump

Definitely got achy hip area like period pains. Have for a couple of days now but not too bad. Took some senna yesterday so waiting for that to kick in. 

Hope your drs appt was ok yesterday and good news that at although the lump is not smaller it seems to be starting to change xx

Member

Re: July 2019 chemo starting

Hi Kaytee and Crochet-Helly, I was just wondering if you are feeling the bone pain/flu like symptoms from the docetaxel yet? I'm not and am wondering if they are still coming. Thinking of everyone else on here too. Hope you are all ok. Xx

 

Member

Re: July 2019 chemo starting

Hi Kaytee, am doing OK. Soft poo yesterday but nothing today though so now wondering if I too need Senna. Will decide later on I think. I do have a UTI though which has not responded to antibiotics so going back to GP this afternoon as need it sorted. Have not had any bad effects yet from the docetaxel. Am assuming they are still coming :-(. I saw my breast surgeon this morning. Lump has not changed in size but it is less prominent so I was happy with that. Xx

 

Member

Re: July 2019 chemo starting

Hi lucylump

How you doing today?

Still no movement here so senna tonight I think.

It does make me laugh how easy it is to talk about my bowel movements ( or lack of)lol

Xx

Member

Re: July 2019 chemo starting

Oh my word Kaytee that is exactly what I was wondering myself! Don't think I will take the Senna just incase but no diarrhoea so far. Thank goodness. Xx Update.....definitely no need for the Senna with me!

Member

Re: July 2019 chemo starting

Hi lucylump

Glad you are well enough to day to make cottage pie, that's one of my favourite meals :-)

Not sure now whether to take a senna to night to pre empt usual constipation or if that might induce diarrhoea ? Lol

Best wishes everyone xx

Highlighted
Member

Re: July 2019 chemo starting

Hi Kaytee, I am doing fine today. Reading back on other posts it takes a few days before the side effects of docetaxel kick in so I have been making the most of it and been up early making a cottage pie for later in the week. No constipation or diarrhoea yet. Have also been using mouthwash in hope it will help reduce the sore mouth bit. Fingers crossed! Xx

Member

Re: July 2019 chemo starting

Morning all

Had first docetaxel yesterday, it took 5 attempts to get blood on Monday as my veins are so bad but they managed to get the cannula in on only third attempt! Lol. Luckily I am ok with needles so wasn't to tramatic. The actual chemo went in easy and feel ok this morning,  fingers crossed that will continue but have been prescribed both constipation tablets and diarrhoea tablets so guess I have at least one on those to look forward to :-)

 

How are you feeling to day Lucy lump?

 

Sorry to hear your emotions are all over the place at the moment as Lucy lump said it's such a roller coaster.  Most of my neibours have been great, offering help etc but thetes not much anyone else can really do to help.

Always hear to talk if you need to x

 

Best wishes everyone xx

Member

Re: July 2019 chemo starting

Hi Crochet-Helly, 

 

I am so sorry you are having a difficult time with emotions. I am sure we can all relate to that and that it is perfectly normal in our circumstances. It is the biggest roller-coaster of emotions most of us have ever been on and we all want it to stop! You are half way there with your chemo now though which has to be good. I had my first docetaxel on Monday and so far I am ok and I think Kaytee was having hers today. 

 

I have a VERY small number of family members and sometimes I think that is a major advantage! My neighbours though have been rubbish! It is obvious I haven't been to work since May 10th. It is also obvious my hair has fallen out and that I get taxis which most of them should guess are to hospital. Have they asked....no! They asked other people but not one has asked me what is wrong and if they can help. They have even come to my house to pick up parcels which I take in for them because I am here and even then they grab the parcels and leg it! Mmm just tells you more about people. On a positive side though some of my friends have been fantastic. My very best friend who I met in my first week at University 34 years ago has been amazing. She can't help in a practical way because she lives over 300 miles away but she said that if I had to do something hard she would do something hard with me and she decided that she would do a 10K. She has never been an exercise fan so this has been really hard for her. When I started my chemo she started running from literally nothing and last week she ran her first 5K park run. I am so proud of her. She has also signed up for a 10K and let me choose the charity she will be running for. I chose Cancer Research Uk and asked her to pick a second charity as well because we are both in this together. 

 

Well done for decorating your room and doing your blankets. That is fantastic. I have done nothing any where near as impressive. Xx

Member

Re: July 2019 chemo starting

Hello ladies

 

Pleased to read that your are all keeping as well as you can, although I have been following you I have not felt up to writing but your virtual support has helped me immensely.

 

I have had 3 EC's now and have my first (of 3) T (docetaxel) tomorrow so have started the steriods as prescribed today and nurse managed to get my bloods today in her first try which pleased me immensely.

 

Have been coping well with the side effects myself so far, the taste changes are annoying, vein pain in my arms is tolerable, hair loss is what it is altho eyebrows and lashes are still hanging on in there!! I have been struggling more with 'staying strong' and 'keeping positive', I think its just the out of controlness, feeling angry that I'm going through this and then feeling guilty that my chemo is precautionary so I should be grateful, and feeling sad for my family who have to ride this roller coaster with me. I fear that I am going to upset family before the chemo is done as Im getting increasingly upset when everyone sends good luck messages on the day before chemo - it just makes me think more about the needles which I hate, I would prefer if they could just send me a supportive emoji instead - no words needed, but dont feel like I can tell them as I don't want to upset anyone. Does any one else experience this or is it just me?

 

On a positive note, over the last 9 weeks, on my good days I have managed to completely redecorate a room and make 3 crochet blankets which has really helped me to focus on the here and now and forget the chemo for a while.

 

Sending positiveness to you all xx

 

 

Member

Re: July 2019 chemo starting

Hi lovely ladies hope you are all ok and Kaytee hope your docetaxel goes ok today too. I had my first one yesterday with no problems which was a relief after Friday. I found out today that my local leisure centre does free Move More session with gym classes run by MacMillan so have signed up for it. I am guessing these are held in other areas too so thought I would mention it incase any of you are interested. Thinking of you all. Xx

Member

Re: July 2019 chemo starting

Hi SusieB and minimad 

thank you both  for your helpful replies . Worth bearing in mind if it’s a problem getting a cannula in on Wed ... it may be the answer ! Hope your continuing treatment goes well too .

Enjoying my last couple of ‘ normal ‘ days before Chemo World again 👍🏻😂

Member

Re: July 2019 chemo starting

Hi SilverPixie

 

I've popped in from the February group and saw your post about a PICC line. I've had one in since February. It took me a couple of weeks to get used to it and now it is just part of me. It's even got a name, Klingon. The only downside is having to have it flushed through and checked every week, but that only takes a few minutes. Like mini mad, on chemo week bloods are taken and line care done on Wednesday ready for chemo session on the Friday. I'm on a trial  (chemo, surgery, chemo, rads) incase you are wondering why my line has been in for so long. Oh, you can't go swimming and the line needs to be kept dry when showering but you'll be supplied with a cover. On the plus side, no more painful cannulas,  no needles for bloods and antibiotics can be pushed through the line if necessary, hopefully you won't need the last one. 

 

Susie  B  xxx

 

Member

Re: July 2019 chemo starting

Hi SilverPixie,

 

ive jumped in from The June chemo thread...   you mentioned PICC lines.... i had one as i was having my Paclitaxel every week for 12 weeks....im not good with cannulas in my hand ( they could only use one and it was getting sore )

i used to have my picc line flushed and dressing changed and then my bloods taken on a wednesday and had my treatment every friday.

if i can offer anymore advice please just ask.   Mini mad xx 💖

Member

Re: July 2019 chemo starting

Thank you so much for your messages ladies. I have had sore veins too in my fore arms. I mentioned it to the nurse just before my 3rd treatment of FEC. She said that she wasn't surprised and that this is really common with FEC but didn't do anything about it. 3 weeks on though I have to say the pains are much better - hardly noticeable so hopefully you will find that too. Kaytee I have my first doxetaxel on Monday. We can compare notes next week! Silver Pixie your exercise class sounds great. Xx

Member

Re: July 2019 chemo starting

Hi LucyLump, 

I’m sorry to hear you had a reaction to the Perjeta but glad the nurses sorted it out quickly and effectively, ( though it must’ve been scary at the time 😳 ) and you are ok today.  I think I am one dose behind you, so when you say six weeks till your last one , it makes mine seem possible!

 

I’m halfway through on the next one Kaytee and like you,  have sore veins , in so don’t know how they’ll manage that . Does anyone have a PICC line and how does that impact on your week with reg checks and cleans? 

I went to a post surgery exercise class yesterday ..20 ladies there ... and we had a good laugh trying to get balls up walls ! So nice to have support both here and in other groups . 

Sending you all best wishes .. we can do this ! xxx

Member

Re: July 2019 chemo starting

Hi LucyLump,

 

I was sorry to hear that you had an allergic reaction but glad that is got sorted quickly. I am not sure if I mentioned but I had a bad allergic reaction for Docetaxel since he first round which they try to sort which is premedication which is high dose of steroids. It worked in well till my 4th round yesterday, when I had a moderate allergic reaction 3x during getting Docetaxel ( had no issue with Herceptin, Perjeta and Carbolatin), they handled it well but after the third one they stopped it. So at the end I got around 15% less Docetaxel than I usually get. I hope they figure out something for the last 2 sessions. 

Same as you, I can’t believe I am only 6 weeks away if getting through the tough part of the chemo, even if I have another 12 cycles of only Herceptin+Perjeta to go. They say the side effects or hose two are much milder and it really seems that Docetaxel is the one that gets me. 

 

How is everyone doing? I wish all of your lovely ladies strength, we will get there!!!

xx

Member

Re: July 2019 chemo starting

Hi Lucylump

Sorry to see you had a reaction but glad they sorted it and you are feeling better today. Bet that was scary but sounds like the nurses were great (as usual in my experience). I had a weird reaction to mine last time, a bad stinging sensation in my arm and they were quick to sort it.

I was surprised and pleased by your note of 6 weeks to go. I'm still only half way through but 6 weeks sounds do able :-)

I have my next one on Tuesday. I am going straight into docetaxel, it my  first on this so hoping not to have to many side effects but I am worried about the veins in my hand, they are still bruised and sore from last time. I have a meeting with the specialist on Monday so will discuss with him.

Best wishes everyone xx

Member

Re: July 2019 chemo starting

Morning lovely ladies, hope you are all ok. Yesterday I had Herceptin and Perjeta and I go back on Monday for the Doxetaxel. Herceptin went fine but I had a reaction to the Perjeta whilst it was going in. Temperature went bonkers - really high - but I was freezing cold and shaking uncontrollably. They gave me antihistamines, paracetamol and steroids I think which calmed it all down and today I feel fine. Thank goodness. Was a bit scary although nurses were great and obviously seen it all before. Think I panicked a bit and got worried they would not give me the Perjeta again but nurses said they would probably give me the antihistamines etc in advance to prevent it happening so fingers crossed. I already have my next chemo date on 27 September. Can't believe that means if all goes to plan last chemo is six weeks yesterday. We are getting through this. Sending hugs to you all. Xx

Member

Re: July 2019 chemo starting

Thank you so much Bod. I am really hoping it will zap these cells. And hoping everyone else's cells are being well and truly zapped too! Xx