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July 2020 chemo monthly starters

amyc
Member

Re: July 2020 chemo monthly starters

I was given a referral to the specialist cancer/psychology department through my hospital. I have had two sessions so far, via video call. It’s quite good because she has access to all my notes from the consultant and knew when I had missed a chemo etc. 

I have mostly sobbed through the sessions so far but she has given me some useful ideas and ways to look at things. Sort of how to reframe things in my head I guess. Nothing groundbreaking that I haven’t started thinking myself, but useful back up I suppose. 

(I think perhaps my referral came through more quickly because I have secondary cancer  and it was a bit of an unexpected diagnosis.) 

There are also online support groups via Breast Cancer Haven... that’s video chat too. I did one of those and it was quite helpful. Should do it again really. 

Kitkat23
Member

Re: July 2020 chemo monthly starters

Hi Claudia!

No...just chemo done by Nov! Then rads ??? end dec/ early jan....also having 6 monthly biphosphonate infusions For 3 years and letrozole for 5/years.

I took tamoxifen for 2 years after my last diagnosis (2018) but still ended up with a 7/8 ER+ BC This time, so hope I fare better on letrozole.

i had counselling through work ( I work for NHS ) with first diagnosis ( wasn’t really my thing, but defo give it a go as lots of people find it helpful) then had CBT through work with second diagnosis and also 1-2-1 stress management and mindfulness sessions ( which I found really helpful) ...occupational health have offered me all of these again but I just want to get on with treatment at moment.

 Take care x x 

Claudia3609
Member

Re: July 2020 chemo monthly starters

Hi kitkat 

Will you have then finished all treatment in November? I have chemo then op then radiotherapy so I'm looking at least March time. 

When you get nearer to having the EC drugs please let me know and I'll give you the low down on it (it hasn't been that bad to be honest although I'm dreading the next lot of chemo which is docetaxel. 

A lady who works with my husband is in remission for stomach cancer and said the best advice she could give me is to engage with a counsellor as this is a massive thing to go through so I thought it wouldn't hurt to speak to someone about my feelings and concerns. I got in touch with my local hospital who have put me on the waiting list 😬 so I may see if my work provides it as a benefit. Has anyone else engaged with a councillor? 

Kitkat23
Member

Re: July 2020 chemo monthly starters

Hi Nancy

Glad you feeling more yourself and good news that you can’t feel lump anymore....chemo doing it’s job! 
I am due 7th treatment next week and to be honest it’s flown by.....although still got to make it to end of November which does seem a fair way away ! 
take care x x

Nancy Blackett
Member

Re: July 2020 chemo monthly starters

Just checking in after a week of lying low. That was a tough gig! At one point my head hurt so much I burrowed into bad and stayed there for 18 hours. But it has passed and I am still here with just one more FEC to endure. The lumps aren’t palpable now which makes it worth it I think! 
Next week I have a review with oncology and the pre Herceptin heart scan. 
My brother is sending me a bunch of flowers each month and I realised that it is actually passing quite fast. Next bunch will be just before I start THP!

Hope my fellow travellers are coping with the ups and downs

NB

amyc
Member

Re: July 2020 chemo monthly starters

Crossed posts! Yes I’m doing ok thank you! 
Glad to hear you are too. My face rash almost completely cleared up, will be interesting to see if it comes back now after having treatment again.... 

amyc
Member

Re: July 2020 chemo monthly starters

Claudia I can only speak for myself but please don’t worry about sharing things that you think are not positive enough, I’m sure we will all do it at some point! It’s a rollercoaster ride for sure. 

I had a shaky start to my fifth paclitaxel this week... my temp and heart rate were up again so I ended up sitting in the corridor outside the chemo ward for an hour and half while various phone calls were made. They let me in and eventually and went ahead with treatment thank goodness. The hospital is close to where I live so I generally walk over there twenty minutes before my appt time. I think next week I will go earlier and sit outside the hospital to collect myself beforehand. I also remembered that my dad has issues with his heart rate (AF) so I might mention that next week. 

Got my scan date for my halfway check - it’s only three weeks away 😬😬😬😬😬

 

Hope everyone else is ok! 

 

Kitkat23
Member

Re: July 2020 chemo monthly starters

Hi Amyc

Just wanted to say Hi and hope that your treatment went ahead ok today.  

I had number 6 yesterday and feeling ok; was up until 5am wide awake as usual on the day of treatment, but no other side effects.

Hope you’re doing ok.

take good care x x

Kitkat23
Member

Re: July 2020 chemo monthly starters

Hi Claudia, glad you feeling reassured from your MRI scan; the worry demons take over don’t they and take you to dark places, I was the same waiting for CT scan results.

I have done 6 out of 12 paclitaxol and will move onto 2 weekly EC in October, so any tOp tips would be great! I think I’m going to find it harder than paclitaxol.

take good care x x 

Claudia3609
Member

Re: July 2020 chemo monthly starters

Hi ladies 

Sorry I have been quiet, I have been having lower back pain since day 5 of my injections and whilst it has eased it hasn't completely gone away. Cue the major anxiety thinking it had spread to my spine and I couldn't shake it off, I didn't want to bring all of that on what is a positive and supportive group. I had my mri scan on Monday to see how the tumour was going on and the results came in that it has only marginally decreased from 38mm to 35mm but there is no spread. Whilst it's a small shrinkage it is still 10% and this was more about resolving my spread anxieties which it has done so I'm relieved. Bloods on Friday and hopefully last EC chemo on Monday.. I'll be half way through treatment at that point.

I hope every one is well, 

Claudia xx

Heather77
Member

Re: July 2020 chemo monthly starters

hello again,

After chatting with the very helpful lady on Etsy, that link I sent you’d still see your PICC line through as it’s semi-transparent, but if you search her listings you can also get fully lined so you wouldn’t see it. That’s what I’ve gone for in the end. Will be nice not to see it all the time!

Great news about the anti-histamine Nancy! I know what you mean about the long haul, that hit us last cycle...
My kids have just been whisked away to static caravan for a few nights with my brother, it’s so weird already, so peaceful! I trimmed my daughters hair this morning and helped her pack all her fave things, got them some lunch, then I was exhausted! I intend to rest and when I feel like it watch some box sets and eat fruit - that’s what I’m craving. 
love
Heather xxx

Nancy Blackett
Member

Re: July 2020 chemo monthly starters

 Morning all. It seems the antihistamine is working as I am not so far getting pain from the injections. Thanks for the tip off! 
I love my PICC covers I have navy lavender and graffiti! 
Today I have a nice visitor from work who is a young nurse who asked to come and see me. I find I am choosing to allow the quieter introvert friends to come before the noisy chatty ones. 
@Heather77 you must be pleased to have got through FEC.

I am trudging along a bit now as I still have to get through surgery around Christmas then radiotherapy so have realised what a long slog this is going to be. 
At least I have nothing else to do apart from fight cancer. I cannot imagine the stresses of trying to home school and keep youngsters occupied - that drove me quite mad even when fighting fit! 
Have a nice weekend all. Keep cool 

NB

amyc
Member

Re: July 2020 chemo monthly starters

The nurse I saw this week thought my rash was more of a hypersensitivity to the sun cream I had been using as it’s in my face and chest. I’ve stopped it now and I think it’s slowly getting better. I will try Piriton if it doesn’t improve, thank you.

Thanks for the PICC cover idea, that’s brilliant. 

I also ordered a long sleeved rash vest for the beach/swimming. It will hopefully mean I can go in the water a little bit and feel it’s protected a bit more than I do now... 

Heather77
Member

Re: July 2020 chemo monthly starters

Enjoy Amy! 

have you tried Piriton for the face? Call the line to check of course, but really helped when I had a reaction on my face, made me much more comfortable xx

Heather77
Member

Re: July 2020 chemo monthly starters

Hi Tara,

glad you’re feeling ok, strawberry flan sounds amazing. Chemo unit sounded chaotic yesterday 😏 the nursing you receive makes a lot of difference doesn’t it? I’m thinking of requesting a transfer to another oncologist, as mine has been dire, a catalogue of errors the whole way through. As a result of the latest cock-up I spoke to another oncologist this week who was so fantastic and highlighted even more how removed and not ‘on it’ my guy has been, just adds to the stress as I had to chase for every appointment and at each stage. She immediately had it all in hand.

 

for all PICC line ladies, saw a girl with one of these in clinic yesterday, looked good - less medical think I’ll order a couple: https://www.etsy.com/uk/listing/832180139/picc-line-cover-freestyle-libre-sleeve?gpla=1&gao=1&&utm_s... 

💕

heather 

 

amyc
Member

Re: July 2020 chemo monthly starters

We are down in Kent at my mother in law’s for a few days, she has a swimming pool so we are trying to get my son to go in... he hates it! 

Still feel annoyed that my treatment this week was cancelled but it has meant I’ve felt better for this trip I suppose. I’m booked in for next week as usual so fingers crossed that will go more smoothly.

 

Tonight we are leaving Dylan with his granny and going to the pub for dinner - can’t wait! Would be better if I didn’t have a spotty rash all over my face, but you can’t have everything I suppose! 

Sorry to hear about your husband’s foot Tara, hope he gets better soon. 

Totally agree that it makes such a difference which nurse you get. Some of them are so kind and patient while others seem to be so busy and almost cross. I always like to have things explained to me, it’s so scary when you don’t understand what’s happening. I think I am learning to ask more questions. 

Hope everyone had some nice weekend plans. We’re going to an animal park tomorrow and then the beach on Sunday for fish and chips! 

ttyler
Community Champion

Re: July 2020 chemo monthly starters

Hi ladies,

I hope everyone is okay and enjoying the weather? It’s in between here, been raining this morning so took myself outside to let the rain fall on my head. Love the feeling makes me feel alive. It has warmed up now and sun is shining.

 I had a sudden surge of energy this morning so have cleaned the whole upstairs of the house. My feet are aching now though so gave just put them up and had a slice of strawberry  flan. Lovely!

Heather, it is so much better when people explain things to you and administer the drugs slowly. When I got to the unit yesterday there was a lot of nurses off sick only 3 on for the whole unit. Although everyone is lovely I did not feel that they explained the process to me very well. I also had a lady on her first chemo fir ovarian cancer sat next to me and an elderly man dat the other side that was quite ill. I didn’t most of the time shouting for these two patients, but it took my mind off things which helped. 
 The swimming in the sea sounds fab. I’d love to be able to swim again I used to be a competitive swimmer and miss it so much. Gives me time to think.

Nancy, the sailing sounds fab. I think we forget we are I’ll sometimes, especially on a good day and over fo things. I struggle because I hate sitting still.

 My mum is on her way over again, bless her heart. She is taking my eldest to goal keeper training tonight and if I feel okay I might go with her. Take my deck chair and enjoy the fresh air. I love watching my boys do sport.

 Hope you are all feeling as well as you can.

 Much love 💕 

Tara xxx

Heather77
Member

Re: July 2020 chemo monthly starters

Hello everyone

I had my 3rd round of FEC yesterday, had the most lovely, lovely nurse who took her time and looked after me so nicely ... it made SUCH a difference. She recommended a local trust who can offer support to my 8 year old, which I’ve struggled to get so far. I agree with the slower the better for administration, even if you’re there longer.
Tara, I was thinking of you as I was there yesterday, hoping it was going smoothly for you too. Really glad it went well and hope it continues to do so. This super duper nurse yesterday talked me through step by step what reactions can happen with Doxetaxol and what the response would be in each scenario, I felt better after that for next time. 
Nancy, love hearing about the sailing, And the telling off - hilarious! I swam in the sea With my brother twice this week and the feeling of lying back with my bald head fizzing in the sea was just the best. Made me feel so much better. Also, so so pleased for you about the lump shrinking ... what a good feeling that must be. 
Amy, I've had a chemo session delayed and know how psychologically it gets to you, and how it’s just so frustrating. It isn’t just you either, all your support gears up for it and you plan don’t you. Big hug and take it day by day.

hugs to everyone, I’m in bed having a rest and nice to think of everyone else at various stages. Keep going, we’ve got this xxx

Nancy Blackett
Member

Re: July 2020 chemo monthly starters

Glad to hear it went okay Tara and you are poddling through.

I am day 4 now round 2 FEC and am coming down off the steroid high which was fun! I spoke to a friend I haven’t heard of since school in 1976. And my SM support gang has acquired some famous endurance cyclists. The #invisiblepeloton!  I’m really enjoying being the centre of so much positive support messages cards gifts and flowers. It really lifts me when I’m struggling. But I am still doing the laundry and online shopping  and housework and looking after elderly parents at a distance. I want Mary Poppins to arrive. my grown up kids have been fab and come and mucked out the fridge just like I do for 87 year old granny. But the husband is trying his best and I will catch up later in the cycle I guess. And I might get out sailing again. I was In Trouble with the nurse last week after winching on the boat because it made my PICC line spurt !! 
onward and upward and hugs for those that need them
NB

NB

 

ttyler
Community Champion

Re: July 2020 chemo monthly starters

Hi KitKat,

 My mum is lovely, but from what I have heard everyone say we all have really supportive relatives, young and old, which is reassuring.

 Canada sounds fab, I would love to visit. I bet you really miss him when he goes back, but nice to have him here for support now.

 Sorry for any spelling errors.

 I’m off to bed now.

 Have sweet dreams all 

Love Tara xxx

Kitkat23
Member

Re: July 2020 chemo monthly starters

Hi Tara

Your Mum sounds lovely! Family really is the most important thing isn’t it.

Hope you cope ok on this new treatment....I’m dreading moving onto EC and I’ve still got another 7 weeks of paclitaxol! 

i drove to my Mums today with my eldest son, who is over from Canada for 7 weeks and We had a lovely day.  Very tired now tho.

Hope everyone else ok.

Good night all x x

ttyler
Community Champion

Re: July 2020 chemo monthly starters

Hello ladies,

 Got back from chemo at 3. Not too bad so far. No reaction thankfully! Felt sick on my walk out of the hospital and had to run to the loo, but went off as soon as it came on thank goodness. No sick! Thanks ladies fir all your helpful advice.

 I had a sleep this afternoon as felt really tired. When I woke up I felt really hungry. Just had some dinner and are watching emmerdale on catch up with the hubby.

 

 Sat here now wondering how I am going to fe over the next couple of days, bracing myself for the side effects.

 Sunshine, my mum came over and did a shop for us earlier. She washed and dried the clothes, cooked the kids tea and showered them so all good than you for caring it’s kind. She will stay over tomorrow too which helps out.

 

 Hope everyone else is feeling okay.

 Take care and stay safe.

 Love 💕 Tara xxx

sunshine1977
Member

Re: July 2020 chemo monthly starters

Hi Tara

I hope the Docetaxel went ok today, I’ve got number 3 tomorrow. I haven’t found it too bad to be honest, a few days where I’m really tired then I pick up again for week 2 and 3. I listen my taste buds first time round but didn’t so much 2nd time- we’ll see what happens this time! Sorry to hear about your husband, have you got people around who can help out? 

Hope everyone else is doing ok! It’s nearly another week done that we can tick off the calendar!! Xx

Shi
Community Champion
Community Champion

Re: July 2020 chemo monthly starters

👭Tara, think most of us got 😳going from fec to t, but it is ok ❤️ Just keep vigilant and if you suddenly feel hot or your chest feels tight call the nurses straight away, sometimes allergic reaction can happen on t, it happened on my 2nd t then I went back in fec for my 6th. Try thinking of it as another hurdle over and keep focused 💪💪 You are doing amazing 😁👍💕💕Shi xx

ttyler
Community Champion

Re: July 2020 chemo monthly starters

Hi Helen and other ladies

 I start Docetaxel tomorrow a little nervous about it too. I was done really quickly with my last round of fec and have felt a lot more sick this time. Think it is better when it is done more slowly.

 

my husband has just fallen down a set of ladders and damaged the ligaments in his foot. He has a Boot on and can’t drive for 6 weeks. It never rains it pours at the moment. At least we are alive 😝  

 The weather is really warm, my head is pouring of sweat. I hope everyone is doing okay  

lots of love Tara xxx

Helen111
Member

Re: July 2020 chemo monthly starters

Hi all, sorry to hear about your temp Amy, it’s not as if we like going for our sessions but to go and not have it must have been so frustrating, don’t blame you for being grumpy. 

Had my last (hopefully) EC yesterday, different nurse, super efficient and I was out in an hour, last time I was there for 4 hours. But have been really headachey and nauseous since, not sure if it was the speed or the heat.  On to Docetaxyl in September, not sure how that will be.

Hoping you are all managing to find some shade and rest xxx

Nancy Blackett
Member

Re: July 2020 chemo monthly starters

Yikes Amy that must have been a bit scary! I cycled in to my appointment and turned up boiling hot and lobster coloured. My temperature was up but the HCA on the door knows me well and took it again after I had cooled down a bit so I was allowed in. FEC was better this time as I had a very calm Portuguese nurse called Alex who infused everything slowly instead of whacking it in like last time. I will ask for him again. Home now feeling hungover again. 
Over half the FEC done now and the lump is disappearing.

We can do this!

Kitkat23
Member

Re: July 2020 chemo monthly starters

Hi Amyc 

Really sorry you had a high temp at your appt today.....any other time would just have to worry about our blood results....but with covid it means any temp or cough will delay our treatment too..... hope you have a better day tomoz and your little man has a good pirate day!! 

Take good care

X x

 

amyc
Member

Re: July 2020 chemo monthly starters

I am so grumpy tonight. Went to get my bloods done at lunchtime and they wouldn’t let me on the ward because I had a temperature. I felt absolutely fine although very hot because of the weather. They checked my blood pressure etc and said my heart rate was also high so whisked me off to a separate room miles away where they gave me IV antibiotics and fluids. They couldn’t find any reason for the temp but wanted to get on top of it. I have had a rash on my chest and face so that might be connected.

 

They took blood and did a Covid test and I should get results on Thursday. But it means my treatment this week is cancelled. I’m really cross about it. And I hate this thing of being told there’s something wrong when I feel absolutely fine. It’s so weird. And this weather is such hard work!

Letting myself have a grump tonight and will try and cheer up and make the most of my free day tomorrow. My little boy has pirate day at his childminder tomorrow so I have made him a skull and cross bones waistcoat with a parrot sewn on one shoulder. Getting him to wear that should be an interesting start to the day! 

Hope everyone else is doing ok. 

sunshine1977
Member

Re: July 2020 chemo monthly starters

Hi everyone

hope you are all well. 
NancyB- I hope the chemo went ok today.

Claudia- after my second chemo I also felt far more tired compared to after the first one. 
My third one is on Friday as long as bloods are ok. Trying to make the most of this week as I know next week I won’t be able to do very much!

Im getting a bit fed up of this weather now- I know we shouldn’t complain but this heat is a bit too extreme!! Looking forward to the thunder storms later in the week! 
Have a good rest of the week everyone

xx

Kitkat23
Member

Re: July 2020 chemo monthly starters

Hi everyone

hope everyone’s ok in this heat.....I’m in the north west and it’s bad enough...but even worse in the South! 

went out for a lovely meal with my eldest son and my daughter and partner last night....making use of the ‘eat out to help out government offer’.....Monday’s is my best day...as my chemo is every Tuesday.

Have booked another restaurant for next Monday....will take my 4 year old granddaughter as well as she cried last night when I picked my daughter up.

Far too hot for my wig so wearing nothing at home and turban Style beanies when out!.... my friend gave me a big bag of hers from last year when she was having treatment....and they are far nicer than any I would have bought myself!

just had my 5 th paclitaxol this morning....I always panic about my bloods but they were fine.....so that’s 7 more to go....wahey!.....before I start on the next chemo🙄
no weight loss today either....static 9st so all going in the right direction ( for now ).

Amy....your turn tomorrow number 5....hope it goes well will be thinking of you.

Claudia....glad you feeling ( a little) better....I am dreading going onto steroid tablets with EC.....it’s fine with paclitaxol....it’s just 8mg infusion before treatment...reduced to 4mg after 4th treatment ....so no horrible side effects.

Love to all you other July Ladies.....not forgetting Tara too!!

let us know how you all doing, if you want too, I love hearing everyone’s news!

x x x

Nancy Blackett
Member

Re: July 2020 chemo monthly starters

Claudia3609 I  hope the fog is clearing. I am about to set off for round 2 chemo. My hair has 90 percent gone and I look like a Gollum’s sister! I like my headgear though with matching mask. 
Who else has treatment this week? After this one I will only have one FEC left. It will pass... 

Claudia3609
Member

Re: July 2020 chemo monthly starters

Hi ladies, I'm just coming back from the chemo fog! I had my 2nd one last Monday, I was a lot more tired than expected but hubby is now back at work at 6am starts so had the kids to look after. Thankfully help arrived at the latter end of the week so was able to rest more. I didn't seem to get that annoying metallic taste this time which was a plus but I am seeming to suffer with the steroid injections this time I couldn't sleep for 2 nights with back pain but thankfully that is easing and I am up and about. Been for a walk today and yesterday and very low impact exercises (like for 10 minutes but it helps me) I've got an mri scan next Monday to see how things are going I am very nervous about it I keep thinking it's spread but I am trying (nit very well) not to worry about it xx

Helen111
Member

Re: July 2020 chemo monthly starters

Hi Tara, sending you a big hug, sounds like you are finding things especially tough at the moment, I find just when I feel I have got used to an aspect of this, something else rears it’s ugly head. Re. not wearing your wig, I have bought some hat/turban things from Simply Wigs and Annabandana, the bamboo ones feel really cool in this hot weather. But of course go without anything too, I am sure most people will understand and it is their problem if they don’t. And I am sure your husband loves you for who you are (I know you know that!)

Lots of love, Helen xxx

ttyler
Community Champion

Re: July 2020 chemo monthly starters

Hi ladies,

Thank you for your advice about the Docetaxel. Sorry not been in for a few days but have began to work myself up about having the chemo and needed to try and get my head around it.

 Butler it must have been so scary having the reaction, this is what I worry most about. I have to just hold my head up and get on with it.

 I have got to the point now ladies where I only wear a wig if I go to the hospital. It annoys my head and gives me headache. In this heat I much prefer to be bald. I have had to apologise a couple of times to the post man or delivery drivers when I have not had my wig on. Mind you when I think about it I should not have to apologise for loosing my hair due to fighting cancer. I have also put a lot of weight in and worry that my husband might not find me attractive but then again that’s his problem if that were the case not mine.

 Hope you all have a lovely day in the sunshine ☀️ it’s going to be another hot one! Xxx

Butler10
Member

Re: July 2020 chemo monthly starters

Hi heather77

Yes I'm doing ok. Chemo ward phoned me yesterday to check I was ok. And they changing me back to just 3 weekly chemo  so I now only hv 3 more chemo to go instead of lots of weekly onesx  still haveing the Carboplatin but never said what the new one is yet. Have a good weekend x

Nancy Blackett
Member

Re: July 2020 chemo monthly starters

Hi Heather and others.
My hair is falling out but the scalp sensation is most peculiar. Like a twisted plait pulling on the scalp or something. If I thought it would stop it I would get my head shaved but I suspect it would make no difference. I will just wait and see.

i am allergic to two of the PICC  dressings But seems to be okay with cosmopore. I am allergic to nickel so don’t have the little metal spike thing. I must be a sensitive soul! 

It’s been a quiet week this week. I wanted to do lots of things while I am well but seem to have wasted the opportunity.  Next chemo on Tuesday...

Heather77
Member

Re: July 2020 chemo monthly starters

Hugs to both of you, Butler and Kitkat xxx 

Butler, that must have been really scary, glad they reacted quickly and you’re ok, scary nevertheless. Hope you’re feeling ok now xxx


Kitkat, it’s a big deal losing your hair, a big adjustment. I feel a lot better about it a few weeks down the line and don’t mind answering the door or if someone (Selective about who!) FaceTimes me when I don’t have my wig on now. Give yourself time to get used to it. I found it useful spending a bit of time putting on make up or trying different looks with the wig or without. I didn’t fee feminine for a few day’s and that bothered me, but o don’t feel like that now. 

How is everyone else doing? Xxxx

Kitkat23
Member

Re: July 2020 chemo monthly starters

Ahhhh Butler 😳😳 that must have been such a shock.

if you are going to get a reaction it’s most often the 2nd one.

that happened to my friend last year on her 2nd one....she said she got pain in her back and chest then collapsed....they moved her onto nab paclitaxol ( abraxane) and she tolerated that one fine.... is the Onc going to contact you???
Bet that was really frightening...getting stabbed with adrenaline....it will make you nervous for the next one.....do you have other allergies??

im ok....my hair started coming out lots over last 24 hours so I have just shaved it all off....bit traumatic ( well a lot traumatic!) when I did it....but 2 hours later and it feels ok (ish) ....I didn’t realise how dark my roots were....after years n years of colour and highlights, you kind off forget what colour your hair actually is!

you take care Butler and let me know what your new treatment plan is

x x

Butler10
Member

Re: July 2020 chemo monthly starters

Hi kitkat 

Well that was a eventful afternoon   just got 10ml of paxitacil in me when I had a serve allergic reaction to it.  So now got try a different chemo next week.  Fingers crossed for what ever that one will be. I must say my nurse and rest of team reacted so quickly.  She said it was a good job she was still stood by me when it happened. Hope you are feeling ok.xx

Nancy Blackett
Member

Re: July 2020 chemo monthly starters

Sunshine that’s an uplifting thought! As my hair is falling out now I am thinking  when it grows back I will be recovering from cancer!

 

I had my CT scan yesterday and today the oncologist called and said it looked clear.  So this is definitely primary cancer even though I have a lymph node. I feel like a weight has lifted off me! 

I think I am not going back to work at all. I am a doctor and my surgeon told me I can’t work at all during treatment. I was going to retire in March 2021 so it looks like I have probably already done my last day. This is quite a shock but I can cope with the prospect of unlimited holiday! My colleagues don’t believe me but in my heart I know I have come to the end of my much loved career. Leave them wanting more! 


NB

Kitkat23
Member

Re: July 2020 chemo monthly starters

I’m having 12 Amy, before moving onto EC....well you doing good up to now !! ... one session at a time eh.

x x

sunshine1977
Member

Re: July 2020 chemo monthly starters

Hi everyone

Glad we all seem to be doing ok!

Im on docetaxel with cyclophosphamide and herceptin, I’ve had two rounds and two more to go. It’s not been as bad as I expected- I would say the tiredness has increased from round one to round two. I lost my taste buds first time, but second time I don’t seem to have lost them quite as bad. My worst day seems to be day five then I start picking up again- albeit quite slowly! 
I’m a teacher and my oncologist said he doesn’t let any of his teachers work during treatment. Even on a good day, there’s no way I would be able to teach a full day of lessons without having to take the next two days off to recover!! 

Nearly at the end of the week and we are all another week closer to finishing treatment!! 

Take care xx

amyc
Member

Re: July 2020 chemo monthly starters

Oh yes Kit Kat I saw that the other day and meant to say. I think you’re having fewer sessions though? I’m on 18 - just hope I can get through them all!

 

Hope you are feeling ok x 

Kitkat23
Member

Re: July 2020 chemo monthly starters

Hi Amy

Glad to see you having a better day...You are a day behind me! I had my 4th paclitaxol yesterday! They only do telephone Onc appts where I am....so I may never even get to meet mine.

Hope you carry on feeling well x x

Kitkat23
Member

Re: July 2020 chemo monthly starters

Hi Heather

Glad to see you feeling better this week.

Did they change your dressings?? I’ve gone from tegaderm to IV3000, and they are much less itchy for me.

ive decided not to go back to work until next spring or even summer....Im a Health Visitor so get NHS sick benefits....but it’s defo an individual choice and I know lots of people have no choice but to go back.   I took 6 months off when I had BC on other side in 2018 but I didn’t have chemo then.   I had a telephone appt with Occupation Health this morning and the doctor said at the end....’ok so I will contact you again near Christmas’.....so I don’t feel any pressure to go back and my Manager has been great.  Mine is not the sort of job you can pick up and put down though, so I would be forever handing over to colleagues and it wouldn’t be fair on the families I work with.  Some people like having that routine of work though, so there’s no right or wrongs.

Take good care x x

amyc
Member

Re: July 2020 chemo monthly starters

I forgot the most exciting thing! After my chemo this morning we went to the pub for lunch! It was really quiet and we sat in the garden and had burgers and I even had a small glass of wine 😎

Kitkat23
Member

Re: July 2020 chemo monthly starters

Hi Butler

4th chemo went good! 
you get a 2 minute steroid infusion( mine is dexamethasone) before the paclitaxol, but that’s it.... I usually have a good appetite for Tuesday Tea and can’t sleep until the early hours then on Wednesday I have a big red steroid face.  But then steroids seem to be out of my system, I sleep fine rest of week and eat normally.  Hope it’s same for you.

let us know how you get on x x

 

amyc
Member

Re: July 2020 chemo monthly starters

Hey everyone

I had my fourth weekly paclitaxel this morning and then a catch up with my oncologist. He is pleased with how it’s going and I won’t see him now until I have a scan halfway through my treatment (after 9 sessions).

The chemo was uneventful which was brilliant and such a relief. I told the nurse at the start that my goal was not to cry this week and I didn’t!!! (There were dramas with cannula and reactions the last two weeks, I’m not a baby, honestly!)

Also because of the onc appt my partner was able to come up to the ward so he got to see where I have treatment and sit with me for the last hour which I think he was pleased about. (I was running late so the dr decided to come and do my meeting in the chemo ward) 

I’m going to try and be a bit more gentle with myself the next few weeks, the heat last week absolutely knackered me out. Our local park has its water fountains on now so I can take my little boy over there and sit in the shade while he runs around. Otherwise it’s going to be hiding inside I think.

Hope everyone else is doing ok. Changing treatments sounds daunting but as you say hopefully just different rather than worse. It’s bonkers how it all seems to affect people so differently. 
I was interested in the question about work... I am self employed and have kind of paused everything but I think I could do with a bit more structure... something to think about.

take care everyone xxxx 

Heather77
Member

Re: July 2020 chemo monthly starters

Hi Tara

I'm a cycle behind you, having my last cycle of EC next Thursday and three weeks after that will start on Docetaxal/Carbo … so we'll be having some cycles together.  The side effects list was daunting wasn't it, but my chemo nurse said many people find the EC cycles harder.  It will be individual, as everything about cancer treatment seems to be and time will tell, but hopefully it's different rather than necessarily worse!  It is also hard when you've just got your head round what to expect with one lot of drugs and then have to go into the unknown again isn't it .. stepping out of a plane feeling again.

Heather x