I’ve had no appetite either ktk but did feel better once I’d taken my meds and was able to have a very small bowl of porridge and fruit. Hope your headache subsides. I’m going to do some PICC research. Like the idea of no canulars and the funky covers. Do you have to heave yours checked my a district nurse each week? Have a restful day Xxx
Sorry to hear of your PiCC line dramas. I have been offered one and they told me there are waterproof sleeves you can buy to use whilst you are showering. I am weighing up the idea so will be interested o see how you fins yours LJ. The thought of no more canulars is very appealing!., Best of luck for today.
i slept ok but haven woken up with a headache, absolutely no appetite and feeling decidedly queasy.
How did you fare ktk?
hoping antisickness meds will help.
Any recommendations for a light breakfast? Just the thought of eating or drinking anything makes my stomach turn.
Hioe everyone else is nearing up. Take care and hugs to all.
Glad to hear you've survived day one KTK and CDC - hope you have a good night's rest and tomorrow continues well.
The bleeding stopped with with extra pressure on the PICC and I managed to sleep without lying on it! Imagine if you me and MrLJ fighting with a roll of cling film at 5.15am trying to waterproof me sufficiently to go in the shower!!! There has to be a better way!
So tomorrow is my D-Day - 9am will see me donning the cold cap so it'll be shoulders back and best foot forward. See you the other side!
Well done Ktk one done!! Weird sitting back at home waiting for something to happen isn't it. Get ready for weird cravings!! Cdc I hope you got your chemo eventually, poor you all that waiting but at least they fed and watered you. I've bought my wig although haven't got it home as it needs adjusting for a proper fit, very pleased with it just hope it's ready before the hair goes! After missing my long hair I ended up getting a short one... Never thought I would. Sleep well everyone
Good luck for today CDC and KTK, I am sure that Shi is steadying the plane for your boarding and you'll soon be jetting across to the island with the rest of us! CDC - I can't believe the problems you have had with getting these appointments sorted, I thought mine was a pickle. Still not convinced that not having had my CT scan prior to chemo is a good idea but onco's don't seem worried so just have to go with it, I've still not got an appt for that yet but I will be seeing Onc team on 27 June for follow up appt from first chemo so hopefully can ask all the questions then. I'll be thinking of you all today, I'm day 9 now and feelling pretty good, sleeping well, sore mouth not as bad now (Cordysyll was recommened by the help line) and still have taste buds so hopefully you'll have the same experience and just a few days of yuckiness and then some good days too. My hair's still there, discovered the tingling is some spots on my scalp, seem to be turning into a teenager again.. if only I had the face of one! Oh one new side effect today is bit of thrush down below... GP issuing a prescription for something for that, I'm definately making use of the helpline this week, I think its just panicking about everything but hey its our health at stake and they are so lovely I have decided to check anything and everything with them.
Fingers crossed everyone has a good day today...Kip xxx
Gosh CDC that all sounds a bit of a pickle 🤔 Hope tomorrow sorts itself out one way or the other.
Had my PICC line fitted this afternoon. The procedure itself was painless and didn't take too long. Bit disappointed it had to go in my left arm (my dominant hand), but they said because I'd lymph nodes out (only four 🙄) they couldn't put it in my right. Feel all a bit unco-ordinated. It's bleeding still, but the advice I was given when I rang the unit was to try and put more pressure on it and keep an eye on it. So I've tightened the bandage and crossed my fingers.
Roll on Wednesday, patience is starting to wear thin!
I have signed the consent form and the chemo ward sister has asked me to bring in my own copy. Not sure why the oncologist hasn’t given them the original?! The wounds have healed sufficiently according to the surgeon but I will certainly ask the opinion of those on the chemo ward itself. Even my surgeon seemed exasperated by everything that’s gone on and phoned the oncologist who said it was Ok to go ahead. Does the oncologist usually do a physical examination? Oh well will see what tomorrow brings but I will certainly consider asking them to delay if I feel I have been given insufficient information.
Hi Ladies, Loving the ice cream post Em, anything that takes your mind of things has to be good. I hate ice cream but found myself craving some the other day... weird!
CDC - Glad you allowed yourself some angy/down time, its hard being positive isn't it, my weekend has been emotional too. I keep a diary for my chemo, the nurse said it was useful to see a pattern in any side effects, I write my temperatures and the times I took my pills too as I can't remember half the time! At my hopsital you can pop into the chemo unit any time, I just wandered in the week before my chemo and the nurses showed me around, I am sure they'll do that for you too, it does help to take away the scariness when you know what it looks like.
Miss P - sorry to hear about your side effects, are you on the first cycle? Is it FEC? My head is itchy and sore too, day 8 - so keep expecting something to happen, I am hoping that once its gone I can move on from the waiting for it to go and get used to being bald, I'm getting my wigs tomorrow in readiness and have some little soft hats to wear but still dreading it... if only they could invent a chemo that didn't cause hair loss I think we would cope so much better!
I am now going to have some Manuka honey, tastes nice if nothing else. Feeling pretty well today, still have slight sore tongue but otherwise ok.
Have a good day girls. Kip
Hi everyone Sounds like a bit of a mixed bag with regards to side effects and emotions today. Glad everyone is feeling a bit better now. Have to be honest and admit my day was a bit of a right off as I just felt so low. Father’s Day is still hard going as it’s only the second one since my Dad died and my family has just had so much to deal with in the last couple of years and now we’re all having to come to terms with my diagnosis. I also had an overwhelming sense of anger that I’ve been under the High Risk Family screening at my hospital for 8 years and my tumours still weren’t picked up earlier as I am ‘mammographically occult’ due to dense breast tissue and now I have to deal with all this b***y treatment. I know I’m just wallowing in self-pity and I’m sure I’ll pick myself up soon but I need to allow myself to be this way sometimes and not relentlessly positive- it’s just too exhausting. What is the thinking behind the Manuka honey? I’m willing to try anything that might help. Is anyone keeping a ‘chemo diary’? My OH and I were wondering if there is an Ap you can use to track side effects etc... Is this the sort of thing I’d have found out at a Pre-chemo meeting? Hoping to be able to pop in to the department between appointments tomorrow so I at least know where I am going on Tuesday (if I get the ok to start) and what the chemo rooms looks like. Best Wishes to all.
Had an rough week this, woke in the middle of the night on Wednesday it felt like my heart was trying to jump out of my chest. Monitoring via my Apple Watch I was beating upwards to 98 beats per minute, this then combined with joint ache was awful. I took some pain killers and rode it out, very emotional that day also. Spent Thursday resting, woke up Friday and decided to wash my hair as my scalp was itching. I started to gently comb it out and realised that my shedding was not normal shedding. So made the decision to shave it off, then promptly broke down when my twin brother rang me crying (I’d sent my immediate family a picture of my new look). Hoping that next week will be better...
Hi, had to post as sat here and just realised I no longer have “chemo fuzzy head”. Yayyyy. Just slight sore mouth. Is anyone else taking manuka honey whilst having chemo.., have read good reports about it but wasn’t sure
Sorry to hear you've both had some difficult days Sally and Kip but glad you've come through them.
Had my chemo nurse appointment this morning which was useful - helped cement a few things in my mind and plenty of chance to ask questions. Was also fitted for my cold cap. (I will also have the injections.)
Has anyone else had to take a wee sample along with them on chemo day for a pregnancy test? 😱 Apparently it's protocol for anyone under 55 and despite me being adamant I'm not pregnant I have to have it 🙄
Bought some bits and bobs today, toiletries for my hospital bag, wide toothed comb, soft toothbrush, hair net that kind of things. Also ordered a silk pillowcase to reduce friction on my hair. Not much longer now.
Kip, just to be on the safe side, make sure you take your temperature before you take anything just to check it's not high because once you've taken something it will bring your temperature down x
It might be worth asking about the injection times when you next have chemo Sally, but I was told evening so the pain wasn't so bad because you were asleep. Can't remember if the hospital told me about taking it out of the fridge half an hour before it was needed or one of the girls on the Oct thread.
I know the injections are to help us, but I think my symptoms seemed worse once I'd had them! I mentioned it to my onc and she said it was just a coincidence, but I'm not so sure! She said I could cut down from 7 to 5, if my white cell count was ok on the 5th cycle (I'd only had 5 injections cycles 1-3) and fortunately it was and the 6th cycle, she said I could just have 5 anyway. I think my expectations must have been lowered during chemo, but I remember feeling really chuffed with myself that I'd persuaded my onc to let me have 2 less injections!
I think the injections must be a fairly new thing, my friend had bc 6 years ago, treated at the same hospital as me and didn't have them.
Glad to hear you're not having any other side effects x
Morning I havent been given any injections with my Fec so guess I'm not having them. Glad the pain didn't last too long Sally. I'm on day 7 now, had emotional day yesterday, overcome with fear, anger and dispair and couldn't shake it until a friend came over and took my kind mindm off tuings it builds up I guess. my soni left school in Friday and I feel we should be . celebrating nbut instead I feel I'm just counting days between chemo, appointments. As for side effectsi have a bi of a sore mouth and had a banging headache yesterday. Can we take paracetamol? I rang the helpline for sore mouth advice and she said salt water was best or to buy cordysl mouthwash. I've done both and it's ok now, still have taste buds too. First day of antibiotics which have to take for 10 days, does everyone get those? Noticed my head is starting to feel sore so guess the hair won't be around for long, dreading that bit more than inthoughI I would. Will brave the shave when it starts. Oh well 17 weeks left til end of chemo !!
Morning Sally and cdc, I'm from the Oct thread and finished chemo in Feb. I'm not sure that all the trusts give the injections, but I had to have 5 after each Fec and 7 after T-although I managed after the first dose of T to persuade my onc to only have 5 still as I think they made my bone pain worse. I don't know if you were told a time to have them Sally, but I was told evening so that you could sleep afterwards. Also, to take the injections out of the fridge about half an hour before you use them. Glad you're feeling ok today x