Morning ladies Hope you've got lots of sunshine wherever you are, I'm in Kent and it's lovely here today!
I had to have 5 injections with FEC and 7 with T (although I negotiated with my onc to only have 5 with chemos 5&6!) I think I read on one of the threads that it depends on which hospital trust you're with and that some don't do them. I think they must be relatively new too as my friend had bc 6 years ago and under the same hospital as me and she wasn't offered them x
I'm another one having injections - and I'm ER and HER2 + and not menopausal (sadly!)
I injected for the first time last night and had a bit of backache overnight - not sure if that was SE, imagination or the dog sneaking on the bed 😂
Fingers crossed for a good day here, both on the football and SE front 🤞🏻
Hope everyone has managed to get out and about today even for a short while.
Meeting up for a 30year college reunion lunchtime drink sounds amazing ktk! I really enjoyed catching up with some old school friends to celebrate our 50th birthdays(!) in March. All those shared memories. It was the following week that I noticed a change in texture in my right breast. Such is life.
I made sure I had a rest this afternoon which meant I was able to go out with my family in the early evening. I think realising when I need to be conserving energy will help me get through the treatment. Really haven’t felt much nausea today which is great. Also felt brighter and less emotionally drained. I’m not having injections as yet. I’m still not able to eat much in the evenings but as long as I have a good breakfast and lunch I figure I’m getting enough nutrition. Is anyone else having difficulties with loss of appetite? I met someone who said they had no appetite at all once they were on the taxol.
Looking forward to going out to celebrate OH’s birthday tomorrow with an early lunch. He’s taking some time off on Tuesday as we’re going to see my oncologist and I should be getting results from the CT, bone scans etc... just hope there are no more nasty surprises.
Sending a warm welcome to those joining us on the June chemo thread. Of course no one would wish to be here but I have found it helpful to be in contact with those going through similar experiences. Huge thanks to all of you.
Well after a couple of days feeling very sleepy, I fee much brighter today and am attempting some baking for the football tomorrow! No other SE's though just the sleepiness so long may that continue. Last day of anti sickness mess today, but first day of injections this evening 😱
My patio is just in the shade now, so I'll take some crafting outside and enjoy the air I think!
Hugs ladies, hope your days are going well xxx
Hi Ladies, glad to hear everyone is doing ok. I haven't got any injections to have, not until I start the T part of treatment, not looking forward to them tho. I have 10 days of antibiotics to take every FEC though.
Sally - what a cock up with the bloods.. my chemo nurse booked my blood tests for me whilst she was doing my chemo, so I have them 2 days before each chemo session. I've just been to have my MUGA heart scan, painless but had to have one injection then go away for 20 minutes and then have the nuclear injection and then the scan. Only took 10 minutes for the scan, another result to pick up next week eek!
CDC its good your daughter is asking questions, I am thinking of taking my daughter (13) to one of the chemo sessions, she just wants to see the room not necessarily stay throughout so might suggest grandma comes too and takes her out once she is satisfied. I think they need to process everything in their minds don't they.
As for the hair, mine is definately on its way...if I pull it handfuls come out, not noticeable as yet but will be soon I reckon.. the big shave will come soon.. OH says he will be glad when its gone as I keep showing him bits that are falling out. Not sure how I feel about it, was very teary when I first noticed, but hoping it will be relief once its out and I am not awaiting for it.
I know what you mean about seeing chemo ladies everywhere I do too, I wonder if we just didn't notice them before?
Hi all and welcome Lisa, I have also had one Fec and am day 11 now and feeling fine, first ,4-5 days a bit nauseas but take the pills they give you and they will help. Hair is starting to go today, just strands at a time so not noticeable yet, had some tears when I noticed but my children said don't worry it means its working! Bless em!!
embolorry .- I was wondering when other hair would go, just had to shave legs again!!
I haven't been offered a picc line as yet?? No mention. Have heart scan tomorrow, more needles!
Glad everyone is doing ok and don't worry Lisa you'll get through, just keep talking and we'll help each other, take care XX kip
Hello Lisa and welcome along.
Another one to recommend a PICC, particularly if you hate needles. I had my first session of FEC yesterday and the line was great, much less stressful.
Today I've been sleepy with a slight headache, but slept well and temp was normal. Taken all the mess and the sickness has kept away. 🤞🏻 For that to last.
Enjoying fresh air air from the open patio doors and a bit of sitting in the shade, sure that helps!
Great tip Kip. I’ll get some boiled sweets to see if they help.
Jencat it’s interesting how each hospital is different with regards to PICC lines and even down to individual staff. We’ll see what they say next cycle, One nurse told me she was arranging for me to have one but the other seemed adamant I should persevere with the cannula and just drink more?!
Hi CDC, I heard of the LGFB course through the Macmillan centre at my hospital. If you google it on line you will find the website and you just call them and they book you in to a local one to you. Macmillam offer a similar thing but the lady volunteer whispered in my ear "Go on the LGFB one as you get lots of free makeup and products"... so that swayed me! Glad you are feeling ok today.
Sorry about the hair Kip. I was told to expect mine to start going in about 10 days after my first session. Contemplating having my head shaved beforehand too but don’t know if I can face it. How did you find out about the LGFB course? It’s good you have that to look forward to but such a shame you have to wait such a long time. Hope Connie is ready soon! I wasn’t thinking I’d get a wig but since I’ve been offered a free one at the hospital I went to choose some styles which the lady will order in for me to See if any appeal. I suppose it’s good to have another head covering option.
Fly fishing!! Might have to take a look ktk. My OH would love to do that too. I’ve just found out that the hospital have sessions of complimentary therapies on Mondays. I could do with a massage! I’m feeling pretty ok but feel like I need some pampering.
Really interesting to hear people’s experiences re PICC lines. The senior nurse who gave me a brief pre-chemo rundown on Tuesday thought it would be a good idea but I got the feeling that the lady who eventually managed to get the cannula in thought I was being a wuss! She just said they were having difficulty because I hadn’t drunk enough. OMG! I was swimming in water and tea so I don’t know how she could think that. I think I’ll request one before my next cycle. The picc covers are amazing! So many different patterns.
I feel ok today now that I’ve worked out when to take my meds effectively. Feel a bit headachy but thankfully no nausea as yet. I know it’s very early days but chemo feels manageable at the moment. Hope it stays that way.
Enjoy the sunshine (in the shade!) everyone. Xxx
Yay ladies, glad to hear you are all feeling positive this morning and not suffering too much. Interesting to know about the fly fishing.. who would have thought? I booked my LGFB course yesterday, can't get me in until August, but I guess thats something to look forward to, in my area it takes place at a fab new spa so that should be nice, I will definately be in need of some advise face/head wise by then... Woke up this morning to find that when I run my fingers through my hair there are definately more strands coming out, nothing noticeable but definately more... must admit found that quite upsetting just another reality check that this is really happening.. especially since i feel pretty good at the moment. Just hoping I can put off the shave until Connie the wig is ready.. gulp. I keep telling myself that it just proves the chemo is doing its job... positive thoughts.. not easy when the tears are lurking... oh well day 12 today and another day ticked off.
Take care, enjoy the sunshine.. typically beautiful when I can't sit in it.. remember the Factor 50! Kip xx
cdc, the PICC line is definitely worth considering if you had a problem having the canula put in yesterday as it can be more difficult finding a vein the more chemo's we have xx
Well that's the first one done done!
Long day, cold cap didn't go on until 11.30, drugs were finished by 2.30 and then cold cap stayed on for another 90 mins or so. With the warming up it was 5pm before we left. It's true about the cold cap - get through the first 10/15 mins with gritted teeth and then the rest is bearable. TBH I found the downward pressure on my glasses worse than the cold, feel like I'll never get the nose dents outs! All in all it went well, no reactions, no funny feelings. Home now, first set of steroids taken (guess sleeping might be an issue) and also anti-sickness. Have an easy evening planned.
Ref the PICC line - surprising how quickly I've got used to it. At the moment I've got a proper tubi-grip bandage on which feels more secure. I bought a shower cover from Boots which did the job this morning. And of course there was no faffing trying to find a vein. I'm happy with it now.
Oh. And you'll all be glad to know I'm not pregnant 😂😂😂
Catch up soon ladies - big hugs xxx
cdc, I'm from the Oct thread and had a PICC line. At first I thought it was going to be a pain having to go back to the hospital weekly to have it flushed, but actually I found it reassuring to see the nurses and chat about anything I was worried about.
I bought a plastic sleeve from Boots for showering, I think it was about £5.
Sorry you're not feeling too good. I was lucky and wasn't sick at all during chemo (I wore sea sickness bands during it and for a few days afterwards, don't know if they helped or whether it was just a coincidence) but I did feel a bit queasy a few times and found ginger biscuits helped. I think others have had ginger tea x
Well done CDC and KTK and good luck to LJ for today. Welcome to the Chemo Boot Camp!! The foggy head was something I had too, although not too bad but on Day 6 I took a paracetamol and it went after that (my nurse said to take temp before taking paracetamol). As for the nausea, I took the anti sickness as instructed even if I felt ok, the first 3 days I felt nauseaous like pregnancy but was ok eating, helped to keep eating actually. After that I only needed 1 of the "as and when" sickness tablets a day for a couple of days and haven't needed them since, hopefully you'll feel like me by day 6/7 and back to normal. I have found it better to get up eat some breakfast and then wait a while before taking my tablets just in case I was sick and brought them back up again. I have to take antibiotics now for 10 days and I can't take them with anything with milk so have my cuppa and breakfast by 8 then take them at 10am. Its a lot to remember isn't it. Also I had steroids which the nurse said to take morning and noon so that my sleep wasn't interrupted and that seems to have worked so far and have slept really well, which I think helps. My mouth started to feel sore (not dry but as if it was burnt) by day 6 so helpline suggested salt water mouthwash or cordysl mouthwash, also the Biotene mouthwash and toothpaste is good too, I have alternated between them as I felt I needed and its ok now, not quite right but taste buds in tact so thats good! My new SE is thrush (Down below) but helpline organised a prescription and getting sorted now, ring them for anything, they are great! Hope you all have restful days, take a few days to just chill, read a book, sleep, watch tv and try to get a little walk, that seemed to help with the headache too.
Take care.. Kip xx