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June 2018 Chemo Starters

SallyG63
Member

Re: June 2018 Chemo Starters

Maybe I was just given them with from the first chemo because I'm diabetic. I checked my blood results and they all within the normal range (though they have dropped after). As a diabetic I'm supposedly more prone to infections but in the last 8 years since I was diagnosed I've had about 6 days off sick. I don't get ill so though the figures say one thing, my immune system seems to be pretty robust. I'd not had a single day off in my current job until my first operation, the mastectomy.

I'm more concerned about the steroids because they do me no good whatsoever.

Aside from that, roast dinner cooking, doing loads of extra veg so I can have it for my lunch at work tomorrow, counting down till England kick off!

Enjoy your Sunday people

Sally
JacqB
Member

Re: June 2018 Chemo Starters

Hi
I was prescribed the injections for chemo round two as I developed neutropenia after my first chemo and was admitted for four days IV antibiotics . They boost white blood cell production in the bone marrow. Happily no neutropenia this time! 😊
Jencat
Member

Re: June 2018 Chemo Starters

Morning ladies Smiley Happy Hope you've got lots of sunshine wherever you are, I'm in Kent and it's lovely here today!

I had to have 5 injections with FEC and 7 with T (although I negotiated with my onc to only have 5 with chemos 5&6!) I think I read on one of the threads that it depends on which hospital trust you're with and that some don't do them. I think they must be relatively new too as my friend had bc 6 years ago and under the same hospital as me and she wasn't offered them x

LJ
Member

Re: June 2018 Chemo Starters

I'm another one having injections - and I'm ER and HER2 + and not menopausal (sadly!)

 

I injected for the first time last night and had a bit of backache overnight - not sure if that was SE, imagination or the dog sneaking on the bed 😂

 

Fingers crossed for a good day here, both on the football and SE front 🤞🏻

 

LJ

ktk
Member

Re: June 2018 Chemo Starters

I had a lovely day at my college reunion yesterday. I didn’t feel too good in the morning but was determined to go. So I took one of the emergency anti sickness pills and it seemed to do the trick. After s nice lunch we had a tour of the college and then sat in the quad enjoying drinks and nibbles (mine were non alcoholic!). I didn’t stay for the evening meal etc and was exhausted when I got home, but so glad I went.

I don’t know why some get filgistrim injection and others don’t. Maybe because of the chemo regime, or being TN or post menopausal? Who knows?

Lazy day reading in the shade I think. BBQ for tea. Have a lovely day ladies. X
cdc1811
Member

Re: June 2018 Chemo Starters

Hi Sally
Must be difficult having to control your diabetes whilst dealing with the chemotherapy too. Also tough when you’re not sleeping properly. It’s good you were able to get to the shops and see your daughter. I’m not sure why some people get injections and some people don’t. I wonder if it depends on the blood test results. I haven’t been told I need them yet. Hope you can get a good nights sleep tonight.
Enjoy the football tomorrow!
cdc
SallyG63
Member

Re: June 2018 Chemo Starters

Hi,

I went to my daughters and then week a weekly shop. My husband noticed I'm a bit slower cos he got up the stairs first at my daughters flat and in the two years she's lived there, that's never happened. I'm a bit tired but the day after chemo I wake up at even more silly o clock than normal so have been awake since 4 am, apart from a 20 minute doze a couple of hours ago. Partly tiredness caused by by blood sugar being completely out of control because of the steroids even after I took more than double my meal time insulin and added an extra lot lunchtime. I might ask them next time if I can skip them. Why do we take them? Ive also in my diabetic confusion taken my first filgrastim injection tonight instead of tomorrow. I had it in my head to do it in the evening and not the morning and just got it out of the fridge and did it after I ate my dinner (no loss of appetite here). Last time I was taking them first thing in the mornings soon as I got up so it's only 10 hours early. Should be ok.

Everyone ready for the England game tomorrow? Don't forget, 4-0.

Have a good evening.

Sally
cdc1811
Member

Re: June 2018 Chemo Starters

Hope everyone has managed to get out and about today even for a short while.  

Meeting up for a 30year college reunion lunchtime drink sounds amazing ktk!  I really enjoyed catching up with some old school friends to celebrate our 50th birthdays(!) in March.  All those shared memories.  It was the following week that I noticed a change in texture in my right breast.  Such is life.  

 

I made sure I had a rest this afternoon which meant I was able to go out with my family in the early evening.  I think realising when I need to be conserving energy will help me get through the treatment.  Really haven’t felt much nausea today which is great.  Also felt brighter and less emotionally drained.  I’m not having injections as yet.  I’m still not able to eat much in the evenings but as long as I have a good breakfast and lunch I figure I’m getting enough nutrition.  Is anyone else having difficulties with loss of appetite?  I met someone who said they had no appetite at all once they were on the taxol.  

 

Looking forward to going out to celebrate OH’s birthday tomorrow with an early lunch.  He’s taking some time off on Tuesday as we’re going to see my oncologist and I should be getting results from the CT, bone scans etc... just hope there are no more nasty surprises.

 

Sending a warm welcome to those joining us on the June chemo thread.  Of course no one would wish to be here but I have found it helpful to be in contact with those going through similar experiences.  Huge thanks to all of you.

 

cdc xxx

 

LJ
Member

Re: June 2018 Chemo Starters

Well after a couple of days feeling very sleepy, I fee much brighter today and am attempting some baking for the football tomorrow!  No other SE's though just the sleepiness so long may that continue. Last day of anti sickness mess today, but first day of injections this evening 😱

 

My patio is just in the shade now, so I'll take some crafting outside and enjoy the air I think!

 

Hugs ladies, hope your days are going well xxx

 

LJ

RedRose
Member

Re: June 2018 Chemo Starters

Good morning all, sorry didn’t post yesterday, spent most of it at the hospital. Yes they said they got all of it in the left breast and this is the “mop up” and the radiation. Fertility found my womb lining was too thick so have referred me for a hystoscope. Yesterday had welcome to chemo and was told that I will be having a canular in my right hand even though fertility clinic said vein in hand collapsed on them and they hand to use forearm, I told chemo nurse but she wasn’t concerned. Said they use baby needles for it. Oncologist in afternoon which was more confusing as I had to tell his registra what was there for! Had zolodek injection have anti sickness tablet for Wednesday. Apparently will have steroids and more injections to administer after first session. Hystroscope was booked for 3rd but having to be change to end of cycle 1. So much info!!! Hope all you ladies are doing well this sunny morning and are doing something nice, off out to do some chemo shopping for me (thermometer and mouthwash, etc) and some treating of my step daughter, then an afternoon in the garden xx
Kip
Community Champion
Community Champion

Re: June 2018 Chemo Starters

Hello Kellp, glad you have found us!  Keep chatting and let us know how you are doing big hugs Kip xx

 

ktk
Member

Re: June 2018 Chemo Starters

Morning all! Nice to hear from you KellP. Glad you are staying positive. I too will move to Taxol after three FEC so I am really interested to read your experiences.

It is another beautiful day. What has everyone got planned? The only meds I have today are the lovely injections, but I do have emergency anti sickness if I need them. Yesterday was the first day I felt almost normal. I ate well and stayed awake all day. Didn’t do much though as even a little bit of housework tired me out.

It is my 30 year college reunion this weekend. I have now ducked out of the evening events as I just can’t stay awake that late, but I am going to meet up for a lunchtime drink (none for me with the injection meds!) so that will be nice. Need to slap on the factor 50!!

Have a good day ladies 😎x
SallyG63
Member

Re: June 2018 Chemo Starters

Morning Kell,

The lady I mentioned is on the Taxol too( I'll move to that after 2 more EC) and with cold capping she's kept(after 5) all her hair and has been side effect free, even when she forgotten to take the antisickness meds. Fingers crossed you'll fare as well. Good luck.

Sally
KellP
Member

Re: June 2018 Chemo Starters

Hi.started weekly pacletaxol treatment yesterday following my diagnosis of secondary bc in lungs and bones this month... never had bc before so this has been a bit of a roller coaster of emotions and little time to digest the huge amount of information but I am getting there and have a great support network.
As far as my first treatment goes it wasn't to bad and so far i feel ok. I am under no illusion that this can and most probably will change but I am trying to stay positive and hopeful.
I also decided to give the cold cap a go as well. As with all the posts I have read it was the first 10 mins that were a bit tricky but it truly did get better and was bearable after that and you can unplug for those all important but tricky trips to the ladies.
I have read lots of posts in the forums and I can hand on heart say they have all helped me feel less anxious and provide real experiences you don't get from reading all the very factual printed stuff you get given.
This my first post so hopefully I have done it right when I hit the button.
Next treatment booked for the 2nd July fingers crossed.
Thanks for reading
KellP

Kip
Community Champion
Community Champion

Re: June 2018 Chemo Starters

Well done Sally!   Another one done!

SallyG63
Member

Re: June 2018 Chemo Starters

Shhhhhhh

I don't do SEs. Don't jinx me 😮
ktk
Member

Re: June 2018 Chemo Starters

So glad you have had a good experience at last Sally. Have a good rest st home. Hope the SEs are bearable. X
SallyG63
Member

Re: June 2018 Chemo Starters

Well, after a rocky start I'm home. Got out at 2.30 which is an hour earlier than last time. They weren't very busy today though. Only a few early birds having chemo. Lots coming in and out for the picc line flushes. Next time I have physio the afternoon before so I'll get the bloods done then and should be straight off at 9.30 the next morning for chemo.

Saw the same lady I saw last time who was on number 5 of T. Still no side effects or any hair loss. She is cold capping but with T it only stays on for 20 minutes after rather than the 90 for EC cutting the appointment time right down.

I have to say the cold cap was much easier second time, the brain freeze bit only lasted 5 minutes and was nowhere near as severe as the first time.

Canula straight in and everything so straightforward and quick.

Sally
Kip
Community Champion
Community Champion

Re: June 2018 Chemo Starters

Hi Ladies,  glad to hear everyone is doing ok.   I haven't got any injections to have, not until I start the T part of treatment, not looking forward to them tho.  I have 10 days of antibiotics to take every FEC though. 

Sally - what a cock up with the bloods.. my chemo nurse booked my blood tests for me whilst she was doing my chemo, so I have them 2 days before each chemo session.  I've just been to have my MUGA heart scan, painless but had to have one injection then go away for 20 minutes and then have the nuclear injection and then the scan.  Only took 10 minutes for the scan, another result to pick up next week eek!

CDC its good your daughter is asking questions, I am thinking of taking my daughter (13) to one of the chemo sessions, she just wants to see the room not necessarily stay throughout so might suggest grandma comes too and takes her out once she is satisfied.  I think they need to process everything in their minds don't they.

As for the hair, mine is definately on its way...if I pull it handfuls come out, not noticeable as yet but will be soon I reckon.. the big shave will come soon.. OH says he will be glad when its gone as I keep showing him bits that are falling out.  Not sure how I feel about it, was very teary when I first noticed, but hoping it will be relief once its out and I am not awaiting for it.

I know what you mean about seeing chemo ladies everywhere I do too, I wonder if we just didn't notice them before?

 

ktk
Member

Re: June 2018 Chemo Starters

🤬
SallyG63
Member

Re: June 2018 Chemo Starters

Ffs! Had bloods done on way in early at 9am. Got to chemo unit and she said they tried to contact me yesterday...no missed calls or voicemail. About bloods. Said I just had done and was told because it's this morning I'll have to wait 2/3 hours for the results. Last time I was told having them done on the day was fine. If they'd have said I'd have got my husband to bring me when he picked me up from station after work yesterday! So I'm here now and probably won't get out till 4/5. My husband will have to delay going to work and we'll lose money yet again because of this.

I
SallyG63
Member

Re: June 2018 Chemo Starters

Yes you can. I took codeine which maybe was why I passed out.
ktk
Member

Re: June 2018 Chemo Starters

Thanks Sally. I’ll look forward to that. Second injection today. Can you take paracetamol or ibuprofen for the bone ache? Good luck today x
SallyG63
Member

Re: June 2018 Chemo Starters

Ktk,

Morning. I overslept so it'll be a power walk to the hospital when Ive had my breakfast. Off for cycle 2 today. Hopefully it'll be as easy as cycle one.

Kyk, the injections are the filgrastim. Are you having them? I had them trouble free for a week them BAM, last Saturday hit with bone pain so bad in hips and back it was like being in labour again. It went by Sunday but it wasn't good so if they say I need them again I'm going to suggest having a couple of days less.

Have a good day everyone.
ktk
Member

Re: June 2018 Chemo Starters

Morning all. Looks like another beautiful day!

Lisa, I am TN too. They have got rid of your cancer through surgery and now the chemo will catch any stray cells lurking elsewhere. Trust the process and try not to worry.

CDC the Picc procedure is easy. It is done in a sideward and the nurse gowns up. They use ultrasound to find s good vein in your upper inner arm. Then inject a local (small sting only). You don’t even notice (or see because of the sterile drapes) the line going in. They measure you to get the right length and you have an X-ray to make sure it is in the right place. I genuinely haven’t felt it at all.

Now ladies, is there a big secret about the injections you need from day three, or doesn’t everyone have them?

Have a good day. Kxx
cdc1811
Member

Re: June 2018 Chemo Starters

Hi all and hello Lisa

Kip your children sound so caring. I think my daughter was expecting me to be bald by now. She and her best friend looked almost disappointed when I picked her up from school!! Interestingly she told me that she talked to her teacher as she was feeling confused about me having chemotherapy and wondered if she had any advice. Her teacher gave her a hug and said her own Mum had had chemotherapy when she’dd had breast cancer and 81 years old now.
Every day I’ve gone for a little walk to the park I have passed someone obviously having chemo. 3 people in a variety of head gear and as my Mum said they’re just the people who aren’t wearing wigs. B***dy cancer just seems to be on my radar now!

I had a good day until I overdid it by walking to my daughter’s school and back again. Have hardly been able to keep my eyes open since but forced myself to get up and watch a bit of telli. It’s encouraging to hear that the SE pass as the week/weeks go on. I got a brochure from Breast Cance Care called ‘Breast cancer and losing your hair’ or some,thing like that Embolorry. It has sections on how to tie scarves in different ways. I imagine YouTube might have some useful videos too. Hope the physio went well.
ktk and LJ -I’ve just noticed bruising all along the back of my hand where one of the nurses tried to put the first canula in on Tuesday but failed so will definitely be asking about a PICC line when I see my oncologist next Tuesday. How did you find he procedure to have it put in?

On a different note have people still got dressings on? My wounds are so much better and no longer oozing. I’d love to be able to shower properly but not sure if I can leave my wounds dressing free or not. Has anyone been given any advice? it’s nearly a month since my re-excision so hoping that my wound healing issues are nearly behind me.
Well I’m feeling very tired again so I’m off back to bed. Wishing everyone a good night. Xxx
Kip
Community Champion
Community Champion

Re: June 2018 Chemo Starters

Hi all and welcome Lisa, I have also had one Fec and am day 11 now and feeling fine, first ,4-5 days a bit nauseas but take the pills they give you and they will help.  Hair is starting to go today, just strands at a time so not noticeable yet, had some tears when I noticed but my children said don't worry it means its working!  Bless em!! 

embolorry .- I was wondering when other hair would go, just had to shave legs again!!  

I haven't been offered a picc line as yet??  No mention.  Have heart scan tomorrow, more needles!  

Glad everyone is doing ok and don't worry Lisa you'll get through, just keep talking and we'll help each other, take care XX kip

Embolorry
Member

Re: June 2018 Chemo Starters

Afternoon all,
Glad to hear everyone seems to be doing well.
Think I am on day 19 now, and apart from runny nose, feel back to my normal self.
Hair is falling out (in all areas😱), and so don’t think I am going to bother with the cold cap again on Monday, but will seee how I feel on the day.
Had physio today (for the cording I have after the op) and feel positive about the next cycle of chemo (had a bit of Therapy yesterday).
Plan to google ‘tying headscarfs’ tonight invade I need to wear one to work tomorrow.......
Sending love to all,
Xxx
LJ
Member

Re: June 2018 Chemo Starters

Hello Lisa and welcome along. 

 

Another one to recommend a PICC, particularly if you hate needles. I had my first session of FEC yesterday and the line was great, much less stressful.  

 

Today I've been sleepy with a slight headache, but slept well and temp was normal. Taken all the mess and the sickness has kept away. 🤞🏻 For that to last. 

 

Enjoying fresh air air from the open patio doors and a bit of sitting in the shade, sure that helps!

 

LJ

RedRose
Member

Re: June 2018 Chemo Starters

Hi ktk, yes had results. good margins none vascular and none in nodes. Triple negative 👎 so genes testing because on my age. I’m hoping I won’t be that bad on it but in my head I have worked it up I think. Xx
ktk
Member

Re: June 2018 Chemo Starters

Hi Lisa Marie and welcome to the club no one wants to be in!! Glad you are through your surgery, well done. Have you had the results yet? As far as chemo goes, the actual doing it is fine. If your oncologist suggests a PICC line then that will save a cannula every time. I’ve only had one session of fec so far, on Tuesday. It gave me a bad headache, but the multitude of drugs stopped me being sick at least. It is all doable. Just ask and or moan if you like!! X
RedRose
Member

Re: June 2018 Chemo Starters

Good afternoon all. Not sure if doing this right but will give it a go. Recently diagnosis with grade 3 stage 1 breast cancer. Had WLE and SNB, egg collection and now facing next step 27th June fec-t chemo 3 x fec 3 x t. Any advice for a first timer? Not looking forward to it as hate needles. 😰 xx
ktk
Member

Re: June 2018 Chemo Starters

I wasn’t really given a choice about the Picc and there has never been a problem getting needles in my veins. I would insist cdc. Are you seeing your oncologist before the next chemo? Ask him/her.

I managed about half an hour in the garden before I felt completely wiped out. Now sitting in the semi shade. I know I shouldn’t be in any sun but it is so hard to resist the gentle warmth. Enjoying telling OH what to do in the garden as it is usually left to me!! Hey, another perk!

Just found out that my niece, who works for Max Factor, does the LGFG sessions in her area. I never knew!
cdc1811
Member

Re: June 2018 Chemo Starters

Great tip Kip.  I’ll get some boiled sweets to see if they help.  

Jencat it’s interesting how each hospital is different with regards to PICC lines and even down to individual staff.  We’ll see what they say next cycle,  One nurse told me she was arranging for me to have one but the other seemed adamant I should persevere  with the cannula and just drink more?!

Jencat
Member

Re: June 2018 Chemo Starters

My hospital didn't give me any choice about having a PICC line cdc, I was just told I was having one! x

Kip
Community Champion
Community Champion

Re: June 2018 Chemo Starters

Yes I had a funny taste, still not quite gone, hard to explain, bit metallic and like its burnt? I suck sweets and it goes off.
cdc1811
Member

Re: June 2018 Chemo Starters

Just got the weirdest taste sensation in my mouth. Wondering if it’s the metallic taste I’ve read about but it just happened without me eating anything. Anyone else experiencing this?
Kip
Community Champion
Community Champion

Re: June 2018 Chemo Starters

Hi CDC, I heard of the LGFB course through the Macmillan centre at my hospital.   If you google it on line you will find the website and you just call them and they book you in to a local one to you.  Macmillam offer a similar thing but the lady volunteer whispered in my ear "Go on the LGFB one as you get lots of free makeup and products"... so that swayed me!  Glad you are feeling ok today.

cdc1811
Member

Re: June 2018 Chemo Starters

Hi all

 

Sorry about the hair Kip.  I was told to expect mine to start going in about 10 days after my first session.  Contemplating having my head shaved beforehand too but don’t know if I can face it.  How did you find out about the LGFB course?  It’s good you have that to look forward to but such a shame you have to wait such a long time.  Hope Connie is ready soon!  I wasn’t thinking I’d get a wig but since I’ve been offered a free one at the hospital I went to choose some styles which the lady will order in for me to See if any appeal.  I suppose it’s good to have another head covering option.  

 

Fly fishing!! Might have to take a look ktk.  My OH would love to do that too. I’ve just found out that the hospital have sessions of complimentary therapies on Mondays.  I could do with a massage!  I’m feeling pretty ok but feel like I need some pampering.

 

Really interesting to hear people’s experiences re PICC lines.  The senior nurse who gave me a brief pre-chemo rundown on Tuesday thought it would be a good idea but I got the feeling that the lady who eventually managed to get the cannula in thought I was being a wuss! She just said they were having difficulty because I hadn’t drunk enough. OMG! I was swimming in water and tea so I don’t know how she could think that.  I think I’ll request one before my next cycle.  The picc covers are amazing! So many different patterns.

 

I feel ok today now that I’ve worked out when to take my meds effectively.  Feel a bit headachy but thankfully  no nausea as yet.  I know it’s very early days but chemo feels manageable at the moment.  Hope it stays that way.

 

Enjoy the sunshine (in the shade!) everyone. Xxx

 

 

Kip
Community Champion
Community Champion

Re: June 2018 Chemo Starters

Yay ladies, glad to hear you are all feeling positive this morning and not suffering too much.   Interesting to know about the fly fishing.. who would have thought?  I booked my LGFB course yesterday, can't get me in until August, but I guess thats something to look forward to, in my area it takes place at a  fab new spa so that should be nice, I will definately be in need of some advise face/head wise by then... Woke up this morning to find that when I run my fingers through my hair there are definately more strands coming out, nothing noticeable but definately more... must admit found that quite upsetting just another reality check that this is really happening.. especially since i feel pretty good at the moment.  Just hoping I can put off the shave until Connie the wig is ready.. gulp.   I keep telling myself that it just proves the chemo is doing its job... positive thoughts.. not easy when the tears are lurking... oh well day 12 today and another day ticked off.

Take care, enjoy the sunshine.. typically beautiful when I can't sit in it.. remember the Factor 50!  Kip xx

SallyG63
Member

Re: June 2018 Chemo Starters

Morning,

Looks like I'm not the only one up early.

I'm just arriving at Waterloo East!

Have a good day all.

Sallt
ktk
Member

Re: June 2018 Chemo Starters

Moerninng all. Beautiful mid summers day sunrise! Glad it went well LJ. Hope you got some sleep. I had a very lazy day yesterday. Didn’t feel like doing anything but have woken up better today, thinking about pottering about the garden before the weeds take over and maybe pop to the shops.

I am surprised they didn’t suggest a Picc line for you cdc. It took about half an our all in all to insert. It doesn’t hurt or restrict your are movement at all. The district nurse comes once a week to flush it out and will take the bloods before my next chemo. Or I can go to my local GP surgery and get the nurses to do it.

These are the Picc sleeves https://www.etsy.com/uk/shop/AyaCovers?ref=listing-shop2-all-items-count#items

Did you know you can have free fly fishing lessons because of BC?! I’ve booked a session for 1st July. I’ll let you know how it goes!

Hugs to all xx
Jencat
Member

Re: June 2018 Chemo Starters

cdc, the PICC line is definitely worth considering if you had a problem having the canula put in yesterday as it can be more difficult finding a vein the more chemo's we have xx

cdc1811
Member

Re: June 2018 Chemo Starters

Well done LJ! Especially bearing the cold cap for so long! Interesting about the PICC line. I’m seriously considering it as they had trouble putting in the cannula yesterday and it took a few attempts to get one in properly. Rather painful! Glad you’ve had no SEs as yet. Hope that continues. My anti sickness meds seem to be doing the trick but I’ve very little appetite. Hope you can get a good nights sleep xxx
Kip
Community Champion
Community Champion

Re: June 2018 Chemo Starters

Well done LJ thatscthe first one done, now out your feet up, hope you have a good night x

LJ
Member

Re: June 2018 Chemo Starters

Well that's the first one done done!  

 

Long day, cold cap didn't go on until 11.30, drugs were finished by 2.30 and then cold cap stayed on for another 90 mins or so. With the warming up it was 5pm before we left.  It's true about the cold cap - get through the first 10/15 mins with gritted teeth and then the rest is bearable. TBH I found the downward pressure on my glasses worse than the cold, feel like I'll never get the nose dents outs!   All in all it went well, no reactions, no funny feelings. Home now, first set of steroids taken (guess sleeping might be an issue) and also anti-sickness.  Have an easy evening planned. 

 

Ref the PICC line - surprising how quickly I've got used to it. At the moment I've got a proper tubi-grip bandage on which feels more secure. I bought a shower cover from Boots which did the job this morning. And of course there was no faffing trying to find a vein. I'm happy with it now. 

 

Oh. And you'll all be glad to know I'm not pregnant 😂😂😂

 

Catch up soon ladies - big hugs xxx

 

LJ

SallyG63
Member

Re: June 2018 Chemo Starters

See I was adamant I didn't want a picc line because I really can't be doing with spending any more time at the hospital than I really have to. It's bad enough having to see the oncologist every couple of weeks for 5 minutes! (and they've still not come back to let me know if they can do telephone reviews) The ANC surgery has messed up my left arm enough so Im not going to have anything that stops me using my right as normal.
Jencat
Member

Re: June 2018 Chemo Starters

cdc, I'm from the Oct thread and had a PICC line. At first I thought it was going to be a pain having to go back to the hospital weekly to have it flushed, but actually I found it reassuring to see the nurses and chat about anything I was worried about.

I bought a plastic sleeve from Boots for showering, I think it was about £5.

Sorry you're not feeling too good. I was lucky and wasn't sick at all during chemo (I wore sea sickness bands during it and for a few days afterwards, don't know if they helped or whether it was just a coincidence) but I did feel a bit queasy a few times and found ginger biscuits helped. I think others have had ginger tea x

Linda Corinne
Member

Re: June 2018 Chemo Starters

Cdc i have a picc line as was having 4 fec and that can cause problems to your vein.it will be left in until end of chemo. Once you get used to using the cover to shower its fine.best advice is look online as the leaflet doesnt explain it well so i got the dressing etc wet although people take the the dressing off when showering apparently. I have to get it flushed every week by a nurse whos not at the hospital.am just waiting to see her now before going to work.went to work yesterday day 7. You can use cling film instead of cover but its hard to put on yourself so i use the cover now in the shower. I do like baths though so miss them as not tried a bath yet but you could have one and just keep your arm out of the water. Also dont carry anything heavy or do yoga etc with a picc line. X
Kip
Community Champion
Community Champion

Re: June 2018 Chemo Starters

Well done CDC and KTK and good luck to LJ for today.  Welcome to the Chemo Boot Camp!!  The foggy head was something I had too, although not too bad but on Day 6 I took a paracetamol and it went after that (my nurse said to take temp before taking paracetamol).  As for the nausea, I took the anti sickness as instructed even if I felt ok, the first 3 days I felt nauseaous like pregnancy but was ok eating, helped to keep eating actually.  After that I only needed 1 of the "as and when" sickness tablets a day for a couple of days and haven't needed them since, hopefully you'll feel like me by day 6/7 and back to normal.  I have found it better to get up eat some breakfast and then wait a while before taking my tablets just in case I was sick and brought them back up again.  I have to take antibiotics now for 10 days and I can't take them with anything with milk so have my cuppa and breakfast by 8 then take them at 10am.  Its a lot to remember isn't it.  Also I had steroids which the nurse said to take morning and noon so that my sleep wasn't interrupted and that seems to have worked so far and have slept really well, which I think helps.   My mouth started to feel sore (not dry but as if it was burnt) by day 6 so helpline suggested salt water mouthwash or cordysl mouthwash, also the Biotene mouthwash and toothpaste is good too, I have alternated between them as I felt I needed and its ok now, not quite right but taste buds in tact so thats good!   My new SE is thrush (Down below) but helpline organised a prescription and getting sorted now, ring them for anything, they are great!  Hope you all have restful days, take a few days to just chill, read a book, sleep, watch tv and try to get a little walk, that seemed to help with the headache too.

Take care.. Kip xx