Jesus I look fat there.
That's after taking most of my hair off pre chemo and going back to a pre husb and style.
3 cycles done with the cold cap and it's still there, a tiny bit thinner, but noticeable only to me.
Good morning ladies, so how do you get a photo on here. Yesterday I braved the shave as I could not take the shedding anymore. Luckily it’s not as bad as I thought and I must admit I am quite relieved. One of my best friends is a hairdresser so last night us 4 ladies sat with a few glasses of 🍷 other half had his 🍺 and we did it. Emotional but cleansing, I had my heart set on it looking normal for my step sons birthday party on Sunday as I didn’t want anything reminding him of cancer then, it’s his day. But sadly it wasn’t meant to be. Hope all you ladies are ok this morning? I’m feeling ok, pretty normal, must be the insomnia is back lol. Oncologist appointment later on today too, so we will see how I am progressing and see what he say about the supposed golfers elbow xxx
Thanks for the advice. Here is me for those who haven’t stalked me on FB. Quite honestly I know I won’t wear a wig and I am finding being bald very liberating. I do have some scarves but I think I am wearing them more for others than myself so I don’t bother! Need to keep the sun off though and will have to cover up when it gets cold!
Thanks for the encouraging words. My OH has said he’s probably used to it more than me because I only see myself in the mirror and as I don’t wear a scarf or hat indoors he and my daughter and my Mum all say the same even after a couple of days. I showed my bald photos to a couple of the Mums and Dads at school and they were all so complimentary and supportive. I’m happy for you to show you my photos on here and I also googled photos online before I went for the shave. My hair started coming out very quickly once I noticed the first few strands were loose. I found it itchy so the shave was worth it for me. Even the stubble is coming out now! I think there is a certain comfort in having a variety of head coverings including a wig but for me I think my allergy to certain materials will mean I wouldn’t wear mine anyway because the webbing inside really irritates my skin and makes it very uncomfortable. How are others getting on with their wigs?
I was also thinking of attending tomorrow’s protest but I know it would be madness as I’m so fatigued at the moment and after coming back from my daughter’s school I hit the hay for over 2 hours. My Californian cousins keep me updated on all the regulations Trump has overturned, particularly with regards to wildlife and the environment as they work in the area of conservation. They are truly frightened that he has so much power. His racist rhetoric is hideous too
One question to the board: It would be daft for me to go to the Trump protest in London tomorrow afternoon, right? I'm still in my WBC trough, and though I'm on the antibiotics after my fever/neutropenia episode last weekend, those aren't going to stop the viruses...
@Kip & @cdc -- y'all look amazingly terrific. So inspiring -- especially as I lost my first clump of hair last night, about 10 minutes after the final whistle, a bit of lost lion's mane, no doubt (though I'm mixing my genders and nationalities). I've been prepping my OH for the shave, but I can tell he's dreading it, more so than I am.
I can't decide about getting a wig. My hairdresser had arranged an appointment for us, but then I landed in hospital and we had to cancel it. Do I rebook or just wait and see how I take to scarves and beanies? Do any of you think you'll wear your wig at all? (I'm thinking I wouldn't in summer, but come October...)
Hope the SEs and headaches -- literal and figurative -- ease off for those having them, and stay away from those blessed to be avoiding them thus far in your cycle 2s.
If you're on your mobile, scroll down to the bottom of the page, where there should be an option to 'view full site', as highlighted below:
You'll then be able to post a picture by clicking the symbol in the toolbar as cdc1811 mentioned. When on a mobile we do recommend using the mobile version for best user experience - the full site is best accessed on your desktop.
Helena at Breast Cancer Care
Wow CDC you look great!! Love the photos and glad the SEs are calming down. I think I am on the other side now, still had a bit of nausea yesterday but took the pills and it helped. KTK glad you got your chemo done, albeit a long day. My Onc was nice but didn't really give me much info, and doesn't want to see me until after 1st T, which isn't until August (end of I think).
Its easy to post photos... you click on the insert image link about (one like mountain landscape) and upload them from your files, (I am on a PC, so not sure if this is the same for laptop or tablet) I'm not sure if you have to tick the "public album" box, I did because I had seen somewhere where photos cannot be seen because they were private. It will be great to see everyone rocking their new looks, I love to see what headwear everyone has chosen, such a variety. I received another one today in the post (more on line shopping I'd forgotten about) which is really soft cotton and has elastic at the back which and short tails which look already tied, very comfy!
There’s a photo button in the menu at the top of the comments box next to a link option looks like a black silhouette of a mountain with a sun. I just clicked on that and was able to download form my photo library. Think I did it on my iPad but might work on the phone too. I’m enjoying seeing people’s photos. The fashion show was amazing- the kids had worked so hard but now I’m shatters so off for a nap. Hope you are doing ok today. Xxx
Hope you’ve been feeling better as the day has gone one Sally and that you continue to improve.
Kip you’re an inspiration. You really looks so wonderful in all your guises, pretty in pink, beautiful bald and wonderful in a wig! How do you post your photos on here. Happy to do the same and show everyone it’s really not so bad. In fact I’m enjoying trying out different styles of scarves and headwear. I loved how you dealt with the ladies in the shop. I don’t mind people telling me about cancer stories BUT ionly if they have a positive ending!! What were they think8ng??
i really do think you look fab and pleased to hear the twanging worked!
Well here we are... in all my baldie glory (also one with my wig and one a la Mrs Mop.. no wonder I scared the village!) but embracing the baldiness for what its worth, for those of you facing the shave shortly... don't be scared if I can go out looking like this we all can.... Kip xx
Hi all, well the "twanging" worked, gave it a good massage and a few twangs and "pop" it cracked and disappeared, I'll definately try the door frame exercises but as Im quite small not sure I can reach the door frame
Last night I braved the village and shops with only a head scarf, today I've been in to our local bakers and the ladies in there tried their best not to stare and in the end I thought..."sod this" and just told them why I was wearing a pirate style bandana... they couldn't hide their embarrassment quick enough... so just to make them squirm a bit more I whipped it off and flashed the baldie! Liberating and very naughty but such fun! Isn't it funny what people say when faced with your telling them you have breast cancer? One of the ladies thought it would be helpful to react by saying "Oh I lost my sister last year at 58 to breast cancer"?????***!*!*!*!*! How is that helping me? Oh well she probably meant well, although she followed it up with "and I lost a brother and my husband has lost 2".... not the best shopping experience ever, next time I'll go dressed as a very scary skinhead and see what she thinks
Good luck to cycle 2-ers today, hope the SEs are kind, I'm going to try to upload a baldie photo for you all to see, not very tech minded though so it may not work...
It's coming home..
Hi Kip How did the twanging go?! Successful I hope. I haven’t had any cording as yet but I’ve also hear if I get it I should try stretching the arm as lbs much as possible till I hear a sound of it breaking! Sound painful. It’s definitely worth asking your team about other med options. I was told by the head of the Maggies Centre who used to be a senior Chemo nurse, that I should continue taking anti-nausea med even when I wasn’t feeling nauseous.
How is everyone doing today? I’m trying out some new meds and fewer steroids this week. From today I now have to take two before I eat and two when I eat for a number of days as well as trying just one day of steroids. Unfortunately, the meds they gave me at the hospital were not too effective and I ended up vomiting 3 times and feeling very grim yesterday evening., My temperature is also hovering around the 36 degree mark which is low for me. Chemo hotline said to try and get some sleep and see if the side effects lessen. Thankfully I had the best nights sleep I’ve had in ages and feel considerably better today. Going to take it easy tho I’ll also try a little walk at some point.
Ive got two more AC before I start my 4 x Taxol. I’m intrigued/worried as to how my hair will grow back. Bizarrely when the hairdresser shaved off the last bits for me we noticed that ithe hair was considerably darker since stating the chemo so I’m wondering if it will grow back dark brown. I’m usually blondish especially when I’ve been in the sun.
Ktk what a catch! You’re becoming an expert! Love seeing the photos.
Take care everyone. Will have a proper read through of everyone’s posts at some point but feeling a little weary even though I o ky got up half an hour ago! Definitely planning on a restful day.
Just a quickie to say Good luck for Cycle 2tomorrow LJ and ktk! Best wishes to you and everyone on the thread xxx
Gosh so much has happened to so many in the last few days. Glad to hear everything's starting to sort itself out.
Cycle two for me tomorrow. Saw the oncologist yesterday, she was happy with my lack of side effects and doesn't want to see me again until just before cycle four when I start Taxol. Bloods also taken yesterday so fingers crossed they're all fine. Am losing some hair now - not loads, certainly not clumps, you certainly can't tell yet. More fingers crossed that the cold cap continues to help. Am going to the hairdresser on Thursday, just a small trim I think as I can't have colour, but will be interesting to see if she can feel any difference.
Oh well, best start pulling things together for the morning. See you on the other side!
Glad you are out Sally! Well done CDC for getting through cycle 2 and for everyone ticking off another day on the chemo train! I've spoken to my BCN about the cording, she has told me to lie on my bed with my arm over my head hanging off the bed and then "twang the cord until it pops!"... sounds wonderful.. if that doesn't work she will get me some physio. So after shower tonight I will be twanging.. ooo er missus!!
Sorry can't remember who posted that some ladies have grown hair whilst on T.. that's a positive in this bleak world if nothing else.... although am starting to worry just what type of hair I may get back.. any will be better than I guess... hopefully curls....???
Have a good evening, now off out for a walk to blow away the sickly feeling that is still persisting on and off, might have to see if I can swap nausea meds... although saying that I haven't taken any today... perhaps thats why but just like to take as little as possible if I can... probably not what I should be doing.