Oh dear, being sore anywhere down below is awful. I had thrush down below on first cycle, gp prescribed canasten cream and pill, that sorted it out. This time around seems to be ok down there! I wonder if the toxic chemical coming out (both areas down below) can irritate and make it sore? I also find I am constipated for a few days and have to strain (good job we are friends on here isn't it!! - tmi) and get sore, it usually seems to go once the toxins are through. Feeling good today, only slight metal mouth taste so making the most of this week before cycle 3 begins again next week... Does anyone constantly have dreams about chemo? I always seem to dream about it.. can't escape even in sleep!!!
It's still soooo hot here at the moment, would love some rain, the garden lawn is all but gone, only the weeds remain steadfast and green.
On another subject entirely but one which I could use some input from people who are not associated with this in the slighest. I have been made aware by my daughter of another girl in her year who is posting very disturbing things on social media... photos of her crying in her room, suicide references, self harming references etc. Other kids are then replying to her, some of which are not nice at all. I am aware that she is moving schools over the summer but don't know why, just guessing she is having problems there. My daughter doesn't really know her well and I only slightly know the parents. I have rung the school this moring and am expecting a call back from Safe Guarding officer so that I can make them aware...have I done the right thing? I have battled with this for a week or so and just feel that if she did do something to herself and I had known ( along with several other children on this flippin' app) I would never live with myself. Any thoughts?
Had a hectic day (daughter’s piano exam stress!) but just wanted to say I hope everyone has a restful night and few SEs, I feel as if some of my stubbly hair is growing but there are other parts where it is gone completely. My daughter is going to miss it when it’s all gone as she likes rubbing her hand against it! I’ve stopped googling about treatments at the mo. I was scaring myself too Kip. I’m just trying to plod on a day at a time, I realised today just what a difference it has made having one day of steroids rather than 3 after treatment. At this time last cycle I was literally suicidal. I had a grim few days after my second dose and actually vomited and felt extremely nauseous but even that seems to have subsided now I actually went out for a meal with my family this evening. Food wasn’t great but there was a nice atmosphere - EXCEPT the music in the background on loop, One of the songs was called ‘Wasn’t expecting that’ and the ending totally freaked me out! Still I suppose there are inevitably going to be triggers which are upsetting and they are not always avoidable. In the end my OH and I just had to laugh at how inappropriate it was. Shi I went to the Ritz for afternoon tea years ago and it was awful so in my opinion you didn’t miss much.
I’m also hoping to meet up with friends this week and visiting The Haven in Fulham. Going to try and arrange some pampering. I like the idea of learning what things I should be eating/avoiding too, ill let you know how I get on especially if it’s convenient for anyone else. I think they also have a place in Hereford.
hugs to everyone
Hi thanks Shi just having a panic moment there ! Guess just have to wait and see what Dr Batnan brings.
Juju, hi glad you are battling on, it must be tough going weekly.. I'm next in on 23rd at 2pm are you there then? I'm doing ok thanks plodding on with chemo boot camp,
Thanks for advice 're stubble heads, another panic moment wondering it's normal or chemo gone wrong or just plain wishful thinking for hair growth!
Brain in overdrive tonight... must try to switch off
Night night ladies kip xx
Hi ladies, just been forward reading about T part of chemo and scared myself! Must remember that were some horror stories regarding FEC too.. still got one of those to get through as yet. Anyone out there had T? Shi did you? I think I am trying to wish away the weeks ... 74 days til last one... hopefully.
Has anyone not cold capping still got stubble on head, mine seems to be growing, now worrying chemo out working?
@JacqB I'm still between cycle 1 and cycle 2, next seeing the oncologist on Wed 18 July, with cycle 2 scheduled for PM Fri 20 July, bloods permitting. During rounds, the onco -- who happened to be the same one for my first pre-chemo appointment -- told me to be sure whoever I saw on the 18th is aware of the admission.
My guess is that they may give me more filgrastim injections to take (I had 5 on the first 5 days of cycle 1, plus 2 during my time in hospital isolation). I'll report back on Wednesday.
So sorry you've experience such rubbish Lisa. Hope you've managed some sleep and can think about how to take it forward.
Coming out of the other side of my cycle two fog now. Just sleepiness and lack of concentration fortunately but not welcome nonetheless! Just had a bit of drama with nearly passing out in the chair 🙄 Temp was 37.4 dropping to 37.1 within ten mins. Phoned the helpline who didn't have a lot of help beyond upping fluids and being careful. Getting a bit anxious about lack of 'movement' if you see what I mean, nothing since Thursday 🙄 Wouldn't normally worry, but everything's heightened with all this isn't it!
have good days ladies x
The NICE guidelines for treating breast cancer specifically mention the need to improve training for consultants in communicating diagnosis news, and I imagine this would also include how any pre-diagnosis physical examination is framed. Making a report to PALS will help ensure doctors and nurses get adequate training. It's not something that comes naturally to everyone.
I was lucky. Even though the lump that got me to my breast clinic looked benign (the radiographer rated it U3/M3, "probably benign," based on its appearance), and my consultant told me that on the day, he also was clear that they were doing a biopsy in case it wasn't benign -- that this was a possibility. He also explained that they'd seen microcalcifications in the other breast that they were concerned about. He didn't give me the BIRADS rating for that breast, but in retrospect, it was probably M4, "suspicious," as he said there was a chance I wouldn't need to see him again, should the biopsy results come back as benign. (The tumors themselves couldn't be seen on ultrasound.) Looking back on the initial conversation, I am sure my surgeon had training in patient communication -- both pre-diagnosis and diagnosis. He did think my anomalies would turn out to be benign, and the incidence of BC for the population at large means the odds were on the side of benign, too, but he made clear that they could only really know once they had the biopsy results. It can be done better -- and should be.
Dear Lisa, i hope you've managed some sleep. What a cock up the whole process has been for you. PALS is definitely the way to go, my mum in law has had to write to them before and they did respond and helped out. It does seem as if telling us at initial clinic appt that all is benign is standard which is shocking. I was referred with a lump which the consultant examined and then told my OH and I "it's benign it's a cyst" just pop off for a mammogram... I skipped of full if relief and left my hubby sitting in another dept only to have mammogram then an ultrasound at which the sonagrapher said "It looks suspicious" then did a biopsy. I then had to sit in the waiting room on my own before being sent back to clinic in tears where OH was happily expecting to pop off home all ok again. We then waited to see same consultant who on seeing me in tears said "oh it wasn't a cyst then" I said "no" and his retort was "so why are you crying"? Beggars belief doesn't it. I have been treated well since but it shoulnt be handled like this. Make sure you write down all that happens and keep notes at appt. As the other ladies have said bc is tough but the other issues on top are doubly difficult.... we are here for you to let off steam take care xxx
Oh Lisa What a shocking time you’ve been having! I’m so sorry you’re having to deal with all this ineptitude and insensitivity. I can totally understand your frustration and anger. If you can face it I would approach PALS to make a complaint and get them to investigate. It’s horrendous that your letter stated the wrong procedure. What is going on??? We are all going through such an emotional rollercoaster and you have this added stress. It’s b****y unfair. I do so hope you can switch off just for a bit and relax over the weekend. Thinking of you xxx
Omg Lisa... definite reason for anger! That is terrible just being in that place waiting for any appointment is hard enough without chemo in your system and added worry about fertility. You should complain and ensure you have copies of all notes letters etc. What I have learnt from all this is you do have to keep asking for clarification of things and always have to chase up appointments and procedures which is awful at this time we need someone doing all the decisions and organising for us. If he can't make himself clearly understood he should be double checking what is said is correct. Poor you... vent away to us and try to unwind in the bubbles
Hi all, i thought i had posted yesterdsy but it seems to be missing, loving all the photos, everyone looks fab.
Cdc I hope you've controlled the sickness now, i have definitely felt nausea for longer this time around, mouth still feels burnt too. I had horrible morning sickness during pregnancy and my chemo nurse said there is a link.
My chemo brain is a nightmare.. keep forgetting words. I've still got my head stubble too which seems to be growing... now panicking chemo not working! Underarm hair gone tho.
Dud anyone join Ellie's Friends? My friend just won a manicure n pedicure!
Loving the photos Lisa and Sally.
Thanks for all the great suggestions with regards to nausea. I’m trying to work out when to take what and it seems to work for a while but my oncologist did say the steroids do work with the anti nausea meds to make them more effective so maybe only having one day of steroids and none during chemo itself is making them less effective. Thankfully I know the sticky feeling won’t last. I didn’t realise Queasy Pops are American Reddi. My sister in law sent a parcel from a company called Not Another Bunch of Flowers which contained a beautiful little bag and the lollipops as well as some Burts Bees skin creams. So thoughtful. Just wondering if anyone else who has been nauseous had really bad morning sickness? Wondering if that part of my brain is super sensitive as I felt so grim through a lot of my pregnancy.
We had Trumps helicopters circling over Highbury last night, this morning and then again this evening. It’s ridiculous! Really rather sinister. Why did they need to fly over so many times? Would have loved to be on the march but just wasn’t up to it.
Anyway off for another nap. Have a good evening everyone. Xx
Morning Sally, you look great and happy, don’t knock yourself. Your hair seems to be holding up well will the cold cap. I decided against it because I’m such a cold person anyway and the length of time it added to my chemo day, so my short style so to speak won’t be here long. How are you finding the cold cap? Ice cream brain freeze? Headaches? Always wondered what it was like even though my personal preference was just fec it xx
Did I do it right? Are all 3 photos on? OH just raised his sleepy head and said I though I could hear your phone tapping. When I told him I was on the forum he said get the picture on and show them how beautiful and brave you are 😊 and turned over and went back to sleep. So I’m sat he grinning from ear to ear listening to him snore 😂 xxx