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June 2018 Chemo Starters

Kip
Community Champion
Community Champion

Re: June 2018 Chemo Starters

Oh dear, being sore anywhere down below is awful.  I had thrush down below on first cycle, gp prescribed canasten cream and pill, that sorted it out.  This time around seems to be ok down there!   I wonder if the toxic chemical coming out (both areas down below) can irritate and make it sore?   I also find I am constipated for a few days and have to strain (good job we are friends on here isn't it!! - tmi) and get sore, it usually seems to go once the toxins are through.   Feeling good today, only slight metal mouth taste so making the most of this week before cycle 3 begins again next week... Does anyone constantly have dreams about chemo?  I always seem to dream about it.. can't escape even in sleep!!!

It's still soooo hot here at the moment, would love some rain, the garden lawn is all but gone, only the weeds remain steadfast and green.

On another subject entirely but one which I could use some input from people who are not associated with this in the slighest.   I have been made aware by my daughter of another girl in her year who is posting very disturbing things on social media... photos of her crying in her room, suicide references, self harming references etc.  Other kids are then replying to her, some of which are not nice at all.  I am aware that she is moving schools over the summer but don't know why, just guessing she is having problems there.  My daughter doesn't really know her well and I only slightly know the parents.  I have rung the school this moring and am expecting a call back from Safe Guarding officer so that I can make them aware...have I done the right thing?  I have battled with this for a week or so and just feel that if she did do something to herself and I had known ( along with several other children on this flippin' app) I would never live with myself.  Any thoughts? 

Kip xx

reddi
Member

Re: June 2018 Chemo Starters

Pain on peeing is a symptom. But I imagine being bare down under could make that tender skin irritable, too. If no sign of the other symptoms (NHS has a list at www.nhs.uk/conditions/urinary-tract-infections-utis), then it is probably the body balancing water intake.

I go to the loo all the time -- spent 75% of my admission for neutropenia drinking water and shuttling to the toilet.
ktk
Member

Re: June 2018 Chemo Starters

Thanks for the advice. It isn’t cystitis, more external irritation!! Sudacrem helps a bit!!
SallyG63
Member

Re: June 2018 Chemo Starters

I've never had a UTI in my life (not bad for a 55 year old) so I'm pretty certain mine is just the volume of water I'm drinking. I'd be more worried if I wasn't peeing loads I'm taking that much in ! 🙂
reddi
Member

Re: June 2018 Chemo Starters

On cranberry juice: if you can get unsweetened cranberry juice, that is much better. It doesn't taste nice -- I used to dilute it with water -- but the amount of sugar in cranberry cocktail juice (what is usually on offer) is like a smorgasbord for bacteria. Doesn't mean they'll eat it up, but if they do, it won't be much help. (I had a run of UTIs in my early 30s, and vividly recall this advice from my doc.)
cdc1811
Member

Re: June 2018 Chemo Starters

It’s encouraging to know I’m not the only one Sally! I’m wondering if it’s a form of cystitis or UTI ktk as I read others talking about it on another thread. Some people on chemo seem to get it and have associated pain and some just need to go to the loo all the time or both. I haven’t got the irritation this time but I’ve had it before and it’s horrendous so I feel for you. In the meantime I’m off to buy some cranberry juice as that’s supposed to help. You can also buy over the counter cystitis remedies but I’m not sure about doing that before consulting my onc. It might seem strange but I’m sure I read that Waitrose's own nappy cream is a wonder cream for relieving irritation and moisturising in general. Might be worth giving it a go. Do hope you can find something to ease your symptoms ktk I’m getting isolated bouts of nausea too and I’m taking the meds as and when. Seems to be helping. Hugs to everyone xx
SallyG63
Member

Re: June 2018 Chemo Starters

Sorry, I can't help there I'm afraid. Would vaseliine help to form a barrier?
ktk
Member

Re: June 2018 Chemo Starters

Ok. This might be too much info, so don’t read if you don’t want to! I am peeing loads, but it is quite uncomfortable. I am quite sore around my bottom and the pee is irritating. I have tried Sudacrem, but any further advice would be welcome!

Cooler today. Feel a bit nauseous this morning so will take a pill and give it time to work before I get going. Xxx
SallyG63
Member

Re: June 2018 Chemo Starters

I'm peeing for England. Like you I think it's the amount I'm drinking. A body can't hold on to that much water and must get rid I suppose.
cdc1811
Member

Re: June 2018 Chemo Starters

Oh I forgot to ask -is anyone having an issue with needing the loo a lot? I know I’m probalbu drinking more than usual but I seem to go the. 2minutes later it feels like my bladder is full again, it’s ather disconcerting and inconvenient.
cdc1811
Member

Re: June 2018 Chemo Starters

Hi all

 

Had a hectic day (daughter’s piano exam stress!) but just wanted to say I hope everyone has a restful night and few SEs,  I feel as if some of my stubbly hair is growing but there are other parts where it is gone completely.  My daughter is going to miss it when it’s all gone as she likes rubbing her hand against it!  I’ve stopped googling about treatments at the mo.  I was scaring myself too Kip.  I’m just trying to plod on a day at a time,  I realised today just what a difference it has made having one day of steroids rather than 3 after treatment. At this time last cycle I was literally suicidal.  I had a grim few days after my second dose and actually vomited and felt extremely nauseous but even that seems to have subsided now I actually went out for a meal with my family this evening.  Food wasn’t great but there was a nice atmosphere - EXCEPT the music in the background on loop,  One of the songs was called ‘Wasn’t expecting that’ and the ending totally freaked me out! Still I suppose there are inevitably going to be triggers which are upsetting and they are not always avoidable.  In the end my OH and I just had to laugh at how inappropriate it was.  Shi I went to the Ritz for afternoon tea years ago and it was awful so in my opinion you didn’t miss much. 

 

I’m also hoping to meet up with friends this week and visiting The Haven in Fulham.  Going  to try and arrange  some pampering.  I like the idea of learning what things I should be eating/avoiding too, ill let you know how I get on especially if it’s convenient for anyone else.  I think they also have a place in Hereford.

 

hugs to everyone

 

C xxx

Shi
Community Champion
Community Champion

Re: June 2018 Chemo Starters

kip 😘😘quite alright darling to have 😳😳moments we all have and our Oct 17 thread were on that rapid response phone at the slightest thing we all had bat phones installed that were like the commissionaires phone to batman, just keep focused and looking forward and get your meet up arranged it’ll give you all something to look forward to ❤️❤️But don’t try the ritz in London, they were not interested in our money when we tried to book there for our afternoon tea💕💕Shi xx
Kip
Community Champion
Community Champion

Re: June 2018 Chemo Starters

Hi thanks Shi just having  a panic moment there !  Guess just have  to wait and see what Dr Batnan brings.  

Juju, hi glad you are battling on, it must be tough going weekly..  I'm next in on 23rd at 2pm are you there then?  I'm doing ok thanks plodding on with chemo boot camp,

Thanks for advice 're stubble heads, another panic moment wondering it's normal or chemo gone wrong  or just plain wishful thinking for hair growth!  

Brain in overdrive tonight... must try to switch off 

Night night ladies kip xx

Shi
Community Champion
Community Champion

Re: June 2018 Chemo Starters

Kip, yes I did t too, everyone is different on t, some sail through, others get squinty botty, ie when you need to go you have to get to loo quick.. my 1st t went in fine, but on the 2nd one about 29 mins into infusion I suddenly went hot and my chest went tight, I shouted the nurses straight away and they stopped infusion and put a bag of something else through for an hour and then restarted the t at a slower pace and got it all in, but I was 😳😳😳 good and proper and I thought I’m not having that again, there is an alternative that other ladies like me had after that called abraxane this costs more which is why they start you with t first and no one reacted to the abraxane that I know of, I ended up back in fec for my 6th and was very happy to go back to the comfy armchair of fec. So please don’t google about t, you wil 😲😲😲😲yiusekf and it’s just what it is just be aware during infusion and remember ladies dr Chemo is having an extra batman dr who’s inside killing the joker that’s invaded our bodies, keep 💪💪💪💪you are all amazing and 🤸‍♀️🤸‍♀️🤸‍♀️🤸‍♀️Kicking it’s ass 💕💕shi xx
Jujustu3
Member

Re: June 2018 Chemo Starters

Hi ya Kip. Sorry havent been on here lately! Week 5 chemo tomoz, struggling a bit with nauseau at present. Not sure whether to take my anti sickness more regularly i.e every 8 hrs, but leaflet says max 5 days which aint much use when u having chemo every week? Will check with nurse again tomorrow, ive been taking them as and when. How are you and when u up Ipsw hospital again?
ktk
Member

Re: June 2018 Chemo Starters

Hi all. Day 4 cycle 2. Not been so bad this time. Up and about more, but very tired!! Went to a fab event organised by SWFFL Life Kitchen cookery demonstration. If you get a chance to go to a Life Kitchen event do go! Inspirational 😁.

LJ I take Macrogol to keep me regular. I got terrible constipation last time and ended up in a bad way!

Trying to organise a few days away next week before the schools break up. Xx
JacqB
Member

Re: June 2018 Chemo Starters

Hi Kip
I’ve still got a good covering of stubble with a few longer hairs coming through but these are not really attached!
As for the T, I’ve had three rounds and so far have found the side effects to be manageable. I have nothing to compare to as I’ve not had FEC. I have had two bouts of neutropenia so I would say check your temp regularly to be on the safe side.
Jacq x
JacqB
Member

Re: June 2018 Chemo Starters

Thank you reddi
All the best for next week
Jacq x
Kip
Community Champion
Community Champion

Re: June 2018 Chemo Starters

Hi ladies, just been forward reading about T part of chemo and scared myself!  Must remember that were some horror stories regarding FEC too.. still got one of those to get through as yet.  Anyone out there had T?  Shi did you?  I think I am trying to wish away the weeks ...  74 days til last one... hopefully.  

Has anyone not cold capping still got stubble on head, mine seems to be growing,  now worrying chemo out working?  

Shi
Community Champion
Community Champion

Re: June 2018 Chemo Starters

Blooming predictive text, sorry ladies it should have read start senikot or movicol 4 days after Chemo and you should be ok after couple of days👍💕💕Shi xx
Shi
Community Champion
Community Champion

Re: June 2018 Chemo Starters

Hi ladies, for botty back up while in fec usually start the senior or my civil about 4 days after having chemo, it get everything moving and you’ll be back to normal within a couple of days. Speak to your once about getting lower dosage of chemo, I got put to 80% after 1st one landed me in casa nhs for 6 days. Remember everyone is different and your treatments are tailored to you specifically, so 80% Be another persons 100%. Lisa 👭😘for you beautiful what a shocking experience for you, and utterly unacceptable. Speak to your Bc nurse too and tell them what’s happened and how upsetting it’s been, they are there to support and advise at every step of this journey. 💕💕Shi xx
reddi
Member

Re: June 2018 Chemo Starters

@JacqB I'm still between cycle 1 and cycle 2, next seeing the oncologist on Wed 18 July, with cycle 2 scheduled for PM Fri 20 July, bloods permitting. During rounds, the onco -- who happened to be the same one for my first pre-chemo appointment -- told me to be sure whoever I saw on the 18th is aware of the admission.

 

My guess is that they may give me more filgrastim injections to take (I had 5 on the first 5 days of cycle 1, plus 2 during my time in hospital isolation). I'll report back on Wednesday.

JacqB
Member

Re: June 2018 Chemo Starters

Hi reddi
Just wondered if your treatment was adjusted after your neutropenia? I’m just home after my second admission, it’s something I really don’t want to repeat next time as I suffer horrible side effects from the antibiotics. They are more unpleasant than the chemo.
Jacq x
JacqB
Member

Re: June 2018 Chemo Starters

Thank you Kip for confirming what I had thought o be the case. I too was told at the initial consultation that my lump didn’t feel suspicious. My OH and I blithely sailed through the rest of the day totally oblivious right up until the point at which we were led into the room with comfy chairs and tissues! They really should say nothing rather than give false hope.
Jacq x
reddi
Member

Re: June 2018 Chemo Starters

@LJ The nurses had me drinking 6+ litres of water a day when I was in hospital for febrile neutropenia -- and were harassing to drink more, as my BP was low. The heat is tough. Drink loads; it should help with both.
LJ
Member

Re: June 2018 Chemo Starters

So sorry you've experience such rubbish Lisa. Hope you've managed some sleep and can think about how to take it forward. 

 

Coming out of the other side of my cycle two fog now. Just sleepiness and lack of concentration fortunately but not welcome nonetheless!  Just had a bit of drama with nearly passing out in the chair 🙄 Temp was 37.4 dropping to 37.1 within ten mins. Phoned the helpline who didn't have a lot of help beyond upping fluids and being careful.  Getting a bit anxious about lack of 'movement' if you see what I mean, nothing since Thursday 🙄 Wouldn't normally worry, but everything's heightened with all this isn't it!

 

have good days ladies x

 

LJ

reddi
Member

Re: June 2018 Chemo Starters

The NICE guidelines for treating breast cancer specifically mention the need to improve training for consultants in communicating diagnosis news, and I imagine this would also include how any pre-diagnosis physical examination is framed. Making a report to PALS will help ensure doctors and nurses get adequate training. It's not something that comes naturally to everyone. 

 

I was lucky. Even though the lump that got me to my breast clinic looked benign (the radiographer rated it U3/M3, "probably benign," based on its appearance), and my consultant told me that on the day, he also was clear that they were doing a biopsy in case it wasn't benign -- that this was a possibility. He also explained that they'd seen microcalcifications in the other breast that they were concerned about. He didn't give me the BIRADS rating for that breast, but in retrospect, it was probably M4, "suspicious," as he said there was a chance I wouldn't need to see him again, should the biopsy results come back as benign. (The tumors themselves couldn't be seen on ultrasound.) Looking back on the initial conversation, I am sure my surgeon had training in patient communication -- both pre-diagnosis and diagnosis. He did think my anomalies would turn out to be benign, and the incidence of BC for the population at large means the odds were on the side of benign, too, but he made clear that they could only really know once they had the biopsy results. It can be done better -- and should be.

Kip
Community Champion
Community Champion

Re: June 2018 Chemo Starters

Dear Lisa, i hope you've managed some sleep.  What a cock up the whole process has been for you.  PALS is definitely the way to go, my mum in law has had to write to them before and they did respond and helped out.  It does seem as if telling us at initial clinic appt that all is benign is standard which is shocking.  I was referred with a lump which the consultant examined and then told my OH and I "it's benign it's a cyst" just pop off for a mammogram... I skipped of full if relief and left my hubby sitting in another dept only to have mammogram then an ultrasound at which the sonagrapher said "It looks suspicious" then did a biopsy.  I then had to sit in  the waiting room on my own  before being sent back to clinic in tears where OH was happily expecting to pop off home all ok again.  We then waited to see same consultant who on seeing me in tears said "oh it wasn't a cyst then"  I said "no" and his retort was "so why are you crying"?  Beggars belief  doesn't it.   I have been treated well since but it shoulnt be handled like this.  Make sure you write down all that happens and keep notes at appt.  As the other ladies have said  bc is tough but the other issues on top are doubly difficult.... we are here for you to let off steam take care xxx 

cdc1811
Member

Re: June 2018 Chemo Starters

Meant to say that I too understand the desire for your own child. I know of some very positive stories, and consider mine one of them, but maybe they are for another time. Just wanted to acknowledge the additional emotional journey you are on and send hugs xxx
cdc1811
Member

Re: June 2018 Chemo Starters

Oh Lisa What a shocking time you’ve been having! I’m so sorry you’re having to deal with all this ineptitude and insensitivity.  I can totally understand your frustration and anger.  If you can face it I would approach PALS to make a complaint and get them to investigate.  It’s horrendous that your letter stated the wrong procedure. What is going on??? We are all going through such an emotional rollercoaster and you have this added stress.  It’s b****y unfair.  I do so hope you can switch off just for a bit and relax over the weekend.  Thinking of you xxx

ktk
Member

Re: June 2018 Chemo Starters

Lisa this is awful. As if bc wasn’t bad enough! You really must make an official complaint about your treatment, if only to get it off your chest!😉 Even without bc you are emotionally vulnerable. I spent 34 years not wanting children then bang! I suddenly thought ‘what if I can’t have them?’ And now I have two. Your body is a ticking clock and I know how you feel. Please do something for your, and Ryan’s sake. Much love xx
RedRose
Member

Re: June 2018 Chemo Starters

Thanks ktk. I have had issues from the off and it’s been a challenge to put them behind me. Initial consultation at the breast care unit the consultant quite frankly told me it was a cyst and nothing to worry about, but he supposed I ought to have a ultrasound just to make sure. When I asked if the triple detection method was going to be used as I had read about online he said no need because of my age. Really think everyone should have a leaflet about what to expect at breast clinic. Because at that point Ryan was relieved in what the consultant said and thought I would be ok. If he had not done the ultrasound the cancer could of spread, because it was only the radiography nurse doing ultrasound that said that’s not a cyst it’s a solid mass, she then booked the biopsies and mammogram and said I would be having all 3 that day. She explained that she would do my lump and my lump nodes. The lymph node one she explained would have to be very carefully done as I had a collection of blood vessels very close to the one that was up. That then came back inconclusive. At the 2nd consultation the consultant came out with the opening line, so do you know what it’s is....? Of course not Dr that’s why I’m here! He said lump was cancer and re do under arm. The consultant then did that bursting the blood vessels and leaving the bloody ultrasound in front of my face while nurse was left to put pressure on it and clean up his mess! We complained then that my blood had not been cleaned off the machine properly by the consultant, that another pot was there with someone else’s name on it and that the consultant had to be told to wear gloves and that the local he used wasn’t given enough time to work properly. Surgery day, I was meant to be in at 10am but was told the woman before was having complications and as I had not eaten or drunk from the night before by 3pm I was emotional and begging for a drink. We were kept in a isolation room with no opening windows. Then gynecologist kept asking how long me and Ryan had been trying to conceive for .....not reading notes that I have breast cancer and Ryan had previously had a vasectomy but was thinking about reversal as I don’t have children and have always wanted them. 3 times she asked how long we had been trying! It’s been a catastrophe so far a real catalogue of errors xx
SallyG63
Member

Re: June 2018 Chemo Starters

Lisa,

That is really shoddy treatment and you're are rightly angry. I'd be putting it all in writing to Pals. I've found the while process to be a catalogue of errors. If I'd not worked in the NHS previously and been pretty vocal about shoddy treatment I don't know how long I'd have waited. If you feel the need to kick off and call them all idiots, then do it, do it loudly in the clinic, they'll soon put things right! It's also very cathartic to get it off your chest (excuse the pun). At a time when people are feeling very vulnerable it's wrong that it is basically up to the patient to make sure things are done right.
RedRose
Member

Re: June 2018 Chemo Starters

Thanks Kip. Not sure if it was me over reacting as emotional cos of drugs hair and cancer stuff and it’s my personal battle and so I’m emotional thinking I may never have a biological child. Am already panniced from the referral from fertility to gynecologist for thick womb lining to what they will find. So much so I dreamed last night of having the operation in not so hygienic circumstances and under no anesthesia. Not pleasant. So woke up teary and shaken and out of sorts. Told them they better bloody sort it out as this letter was addressed to my doctor! It’s like going in for a toe nail removal and coming out with your leg chopped off xx
ktk
Member

Re: June 2018 Chemo Starters

Oh Lisa, what a dreadful experience. Just what you don’t need. Registrars, and dare I say it, none native speakers, are the pits! When I went for my first referral from the gp the registrar said nothing to worry about, go for mammogram and ultrasound then go home. No need to return to clinic, I would get results by post. But no worries. So went for tests. Ultrasonographer did biopsy and said go back down to clinic. I said they had said go home but he insisted! I eventually got back in at 6.30 ( the day before Good Friday ) to be told that he is very sorry but I do have breast cancer and would need a mastectomy. I would be able to talk to a BCN on Tuesday! And I’d get an appointment in a couple of weeks to discuss biopsy results. Luckily I saw a consultant then.

I know that the NHS are in crisis, and I can’t complain about the treatment I have had since, but the added stress such incompetence puts us under is unacceptable.

Lisa I hope you can try to put this behind you and try to enjoy the weekend. I am sure everything will be fine on Monday. Big hugs to you today Kxxx
Kip
Community Champion
Community Champion

Re: June 2018 Chemo Starters

Omg Lisa... definite reason for anger!  That is terrible  just being in that place waiting for any appointment is hard enough without chemo in your system and added worry about fertility.  You should complain and ensure you have copies of all notes  letters etc.   What I have learnt from all this is you do have to keep asking for clarification of things and always have to chase up appointments and procedures which is awful at this time we need someone doing all the decisions and organising for us.  If he can't make himself clearly understood he should be double checking what is said is correct.  Poor you... vent away to us and try to unwind in the bubbles 

Kip
Community Champion
Community Champion

Re: June 2018 Chemo Starters

Hi all, i thought i had posted yesterdsy but it seems to be missing,  loving  all the photos, everyone looks fab.  

Cdc I hope you've controlled the sickness now, i have definitely felt nausea for longer this time around, mouth still feels burnt too.  I had horrible morning sickness during pregnancy and my chemo nurse said there is a link.   

My chemo brain is a nightmare.. keep forgetting words.  I've still got my head stubble too which seems to be growing... now panicking chemo not working!  Underarm hair gone tho.  

Dud anyone join Ellie's Friends?  My friend just won a manicure n pedicure! 

Kip

RedRose
Member

Re: June 2018 Chemo Starters

Morning ladies. Hope you don’t all mind but I’m going to vent about my experience yesterday as I’m still in shock. Would love you opinion/take on this. As I had very little sleep last night and am currently laid in a bubble bath ticking this over and over in my brain. Oncologist yesterday and as usual there was loads there waiting and appointment time came and went which is fine we are all late at time, finally got in and it’s a registrar not my doctor. He is reading my notes as I’m coming in. First thing he ask is about my hysterectomy! WTF!! Said Pardon to him. Assumed he had got my notes mixed up and asked to look at what he was reading. But there at the top was my name and date of birth (panic mode) carried on reading and noticed the date of said planned “hysterectomy”. Explained to the registrar that yet again they had made a very big error! The appointment was for my hystroscope! At least that’s what I know it to be for. His explanation.... clerical error because of his accent!! I’m sorry but the clerical errors are calling Ryan my finance instead of my fiancé, or a mistake is when they called him my husband. But not that! Continued to tell him it’s not good enough. As you all know chemo can be a very emotional roller coaster and as a 39 year old woman with no children that has recently under gone fertility drugs to collect eggs and the chemo is going to throw me into early menopause. To be told you have a thick womb lining that needs investigation is bad enough as you think it’s appeared there as well and automatically think cancer! Is it me being to sensitive as it’s my emotional battle or did he severely feck up? Oh and he did tell me that a&e didn’t do my bloods was that they tested half and then it hematised, clotted I presume as cancer blood is stickier. My white blood is low. Go figure! Hours waiting for results for nothing. So in disgust and disbelief I left the hospital without having my bloods for Monday, which when I had calmed down a bit I called to see if they did need some, after a lot of transferring and thinking they said no. Then 5 mins later after put phone down breast care nurse phones to ask me to come in to have bloods done for proceedings on Monday as it’s classed as an operation. Heads spinning as feeling all over the place and like banging my head on brick wall, series of unfortunate events or justified frustration? Xx
ktk
Member

Re: June 2018 Chemo Starters

Glad to hear your BRCA news Clare. Still a big decision with the mx. You need to do what is right for you xx
SallyG63
Member

Re: June 2018 Chemo Starters

Hi Cdc,

I only had a single but in hindsight a double would possibly have been easier in terms of uniformity.
cdc1811
Member

Re: June 2018 Chemo Starters

Ooh I forgot to say I got my letter from the geneticist confirming no BRCA mutations. However, it was disappointing as yet again because of my bilateral diagnosis she was unable to use the familial predictor tool to give me some idea of the likelihood of recurrence as it only allows you to put in data for one tumour. Seem to be hearing that.a lot. I was hoping it would help me make a decision whether to go for a single or double mastectomy. Oh well, I’m thinking the double is the way forward. Any thoughts welcome. Xx
cdc1811
Member

Re: June 2018 Chemo Starters

Loving the photos Lisa and Sally.  

Thanks for all the great suggestions with regards to nausea.  I’m trying to work out when to take what and it seems to work for a while but my oncologist did say the steroids do work with the anti nausea meds to make them more effective so maybe only having one day of steroids and none during chemo itself is making them less effective.  Thankfully I know the sticky feeling won’t last.  I didn’t realise Queasy Pops are American Reddi.  My sister in law sent a parcel from a company called Not Another Bunch of Flowers which contained a beautiful little bag and the lollipops as well as some Burts Bees skin creams.  So thoughtful.  Just wondering if anyone else who has been nauseous had really bad morning sickness?  Wondering if that part of my brain is super sensitive as I felt so grim through a lot of my pregnancy.  

We had  Trumps helicopters circling over Highbury last night, this morning and then again this evening.  It’s ridiculous!  Really rather sinister.  Why did they need to fly over so many times?  Would have loved to be on the march but just wasn’t up to it. 

Anyway off for another nap.  Have a good evening everyone. Xx

RedRose
Member

Re: June 2018 Chemo Starters

lol reddi, glad you like my FEC comment. I love father ted and used to say it fecked as they do but it’s a running joke we me and my other half, as when the oncologist say you will be having a high dose of FEC-T the other half just looked at me and me to him and we laughed. Oncologist and breast nurse though we had both cracked up. When we we got out we both said it only fitting the name of it and that I was going to have a big dose of FECT! 😂 xx
reddi
Member

Re: June 2018 Chemo Starters

@cdc My chemo nurse suggested I take my Rx for Day 1-3 anti nausea (ondanestron 4mg) breakfast and dinner and my prn anti nausea (domperidone 10mg) at lunch on Days 1-3 as well. Plus a domperidone on Day 0 before dinner (I got my chemo at 3:30pm, so this was on top of the IV anti nausea). It worked well for me.
reddi
Member

Re: June 2018 Chemo Starters

Now you're all wanting me to shave off my bob so that I can post a pic! Though I will have to make peace with my "Prince Charles" ears.

Gorgeous, everyone.

@cdc Ginger biscuits? They worked well for me. My sister also sent Queasy Drops galore -- I could shuttle a tin to Highbury if you're wanting same-day delivery. But gah, can't remember what you've already tried -- fecing US military flyover zone here, and lost my train of thought while cursing my country's president.

(Kudos to the person who used FEC this way below -- love it and borrowing. Totally appeals to the New Yorker in me.)
ktk
Member

Re: June 2018 Chemo Starters

You both look great. Well done!

Sally I couldn’t work it out either but it just went back to the mobile site after a while!!
SallyG63
Member

Re: June 2018 Chemo Starters

Do you know, the first week was hard, after that easy, and last week I couldn't get it on quick enough to cool me down after 30c temperatures.

I thought it would be harder cos I get brain freeze easily but after the initial 20 minutes first time it's been fine. Anyone considering it I'd say definitely persevere.
RedRose
Member

Re: June 2018 Chemo Starters

Morning Sally, you look great and happy, don’t knock yourself. Your hair seems to be holding up well will the cold cap. I decided against it because I’m such a cold person anyway and the length of time it added to my chemo day, so my short style so to speak won’t be here long. How are you finding the cold cap? Ice cream brain freeze? Headaches? Always wondered what it was like even though my personal preference was just fec it xx

SallyG63
Member

Re: June 2018 Chemo Starters

Can anyone tell me how to get back to the mobile version. I can't be doing with this on my phone.
RedRose
Member

Re: June 2018 Chemo Starters

Did I do it right? Are all 3 photos on? OH just raised his sleepy head and said I though I could hear your phone tapping. When I told him I was on the forum he said get the picture on and show them how beautiful and brave you are 😊 and turned over and went back to sleep. So I’m sat he grinning from ear to ear listening to him snore 😂 xxx