Hi all, well still feeling rubbish here, mouth is so so sore, hospital gave me Difflam and Nysticin (or something) but its so painfil. I h av to see gp today for flucozonale so hope that helps. Just hopjng that being forewaned and prepared next cycle i can prevent this getting so bad. On the plus side no nausea tho! The flu type aches are manageable with painkillers, although thr bones in my face ache... Weird! My advixe ladies is make sure you have painkillers, mouthwash and meds before you have T and start them as soon as you can. Not sure ican face another 2 lots of this but as always we have no choice. I hope j get some good days soon feeling very sorry for myself 😔
So sorry to hear you’re feeling so bad Kip. What horrible SEs! I do hope the hospital can offer some useful advice and you soon feel better.
Good luck to everyone starting T this week. I have my last AC on Tuesday and after a lovely break away I’m starting to feel super anxious. I felt constantly nauseous for the entire week after the last dose. It was horrible and that was with all the anti-sickness meds and taking steroids again albeit at a lower dose. I just hope my oncologist can suggest some alternatives when I see her tomorrow. I’m also thinking of asking for a slightly lower dose of the chemo drugs as this was suggested as a possibility when I rang the chemo hotline.
Hope everyone can have a relaxing evening. Sending hugs xxx
Got my first T on Wednesday too and am feeling very apprehensive. Much more so than before my first cycle of FEC. Guess it's the fear of the known coupled with the fear of the unknown. Also start my Herceptin injections on Wednesday so we'll see how they treat me.
Got my dark nail varnish which I'll do on Tuesday. Going to start salt water mouth washes tonight to try and avoid too many mouth problems. Need to stock up on paracetamol and up my fluid levels over the next couple of days. At least it won't be as hot this cycle as it was for the previous two, surely that's got to be better?!
Glad some of you have found the overnight All-Bran effective - you can prepare about three days worth in a go and keep them in the fridge. Last time I had it on chemo day and for three days after - along with Senna tablets and copious amounts of waters it kept everything moving well!
Hope you get some relief soon Kip.
Oh dear the T train has hit! Last night the achea started... Feel like i have been hit by a truck, mouth si sore and disgusting feel so fedupwith this. Waiting for hospital to call back re thrush, hope this doesnt last for ever!
Someone I met at Haven suggested Daktarin mouth gel when I explained I was getting a very sore mouth each cycle. I just bought it over the counter at my local pharmacy. It’s anti-bacterial and Nti-fungal and I think it can be used for oral thrush. It seems to have helped and my mouth hasn’t been as sore after I used it for about four days. I used it in conjunction with daily salt water mouth washes. Hope it clears up soon.
Senekot generally works for me for constipation.
Take Care Clare x
Thanks ladies, have been to see pharmacist today they said use lactulose for constipation. Unfortunately I think I now have mouth thrush, big white sore tongue but pharmacist couldn't give me anything without prescription...so have difflam for now and will speak to hospital tomorrow. If it wasn't for that I would be feeling fine.. grrrr
@Kip Senna does work for me -- too well, actually, so I try to avoid it.
I've also found the following helpful: 1) upping water intake considerably; 2) prunes (and I *hate* prunes); 3) dried apricots -- but in quite a quantity; 4) the All-Bran parfait that another person suggested on the boards -- I think earlier in this thread, actually.
Note of caution: I combined 2 and 4 in cycle 1 when I had steroid-provoked back-up, and that was... too much intervention.
The All-Bran parfait, so you don't have to read through pages and pages of posts: 50g All Bran, 100ml almond milk/drink, layered with fruit and yoghurt, and refrigerated overnight.
I'm noting Macrogol for the future, though, as double the steroids starting with my first cycle of T(PH) in September is surely going to have double the effect on my body.
p.s. I also eat a fairly high-fiber diet (veg and fruit), but it isn't enough.
Hi, glad your T went well Sally, it is somehow less stressful having just a drip than sitting watching poison being fed in isn't it? I'm feeling ok day 6, sore mouth the worse se so far, might try some Diflam as people say that helps. Taste odd but pretty much like FEC, it have slight achy legs but not bad enough for painkillers and I find if i get up and do stuff it really helps get them moving, I've managed to walk few miles every day which perks me up. I wonder if the fact I don't have those injections helps with that? Steroids finished yesterday though so have to wait that joyful bit out.. hopjng j don't get the big downer again. Thumb nails felt slightly sore yesterday but no worse and I think am looking for things at the moment... It's the unknown all over again. Just ticked off another day so 37 left till last T... Hubby said he will get me an early advent calendar for the last 25!!
Have a good Saturday all .Kip xx
Ps constipation.. what does anyone find works well?
Hi all, day 5 post T,. So far not too bad, tongue sore and bit white but much the same as FEc. Slight leg aches in calves but not had enough to need painkilkers. No nail pain or foot pain yet. Of .course still on steroids so could be anything waiting roundr corner, last steroids today and now starting anti biotics today too but just glad to be 5 days in and still working and walking! Still having sweats too but better sleep last night. Hope everyone else ok today xx
Oh no poor you! Thought the underarm hair situation did make me smile... .why can nothing be straight forward. I still have leg hair too... give us a break BC!
Hi all, just dropping in to report on day 4 of T cycle... so far not too bad but still lacking sleep from those bloomin steroids, now down to 4 a day until tomorrow and then none.. so wonder what will happen then... tears and more tears I expect... watch out hubby! Apart from the sleep problems, so far so good, mouth a little sore and taste slighlty weird, although still hungry, not much different from FEC. No bad aches and pains but that could be coming or be becuase I don't have the injections to give? Fingers and toes ok, no pins and needles or painful nails yet but by this time next week who knows what will be happeining. Main thing is hot sweats, not sure if thats hormones or chemo but they aren't painful . Making myself get up and do stuff so have been out on 3 mile walks each evening and it does help and back at work today, only at home but its something. Hope everyone else is doing ok, Embolorry hope you are coping with those last injections, l think you shoudl be finished them now so perphaps the pain will subside now?
Take care all
Oh dear kellie, hope the arm is improving today, when I thought I wouldn't get my treatment this week I was torn between phew and oh no... But it will happen and they are making sure you don't suffer any extra.
CDC my chemo unit is very nice, been refurbished not too long ago so very light and airy,. Ice coloured comfy recliners so a bit like a front room but j always find the depressing person to sit near too, and she's due at me next one too... must confess I can't quite get her doom n gloom out of my head this week. Still feeling ok from T slightly sleep depraved from xsreroid but mouth pretty good and no aches yet!
Embo.. I would love a swim too had bought a new mastectomy cozzie ready and didn't realise couldn't use it... We can't swim with chemo can we?
Morning all, day 2 and after intermittent sleep interspersed with heart burn and hot flushes feeling ok today so far but of course still dosed up to eyeballs with steroids until Friday. Tongue feels slightly burnt but ok, ate breakfast and can still taste it ... For now. Hope all well for you guys kip xx
Oh JuJu I just missed you then I'm was there at 1.30. sorry to hear you need blood transfusion I've never had one but funnily enough spoke to a old Fella today which had one and us having one ssturday and said it was fine. I know what you mean about positive stuff thats me too.
Yss good to be over half way and was glad I didn't get delayed. My nurses said the injections can make the pain worse, we can see how I compare! Do you have anti biotics too? Only downside to today was being set opposite a lady with secondaries who insisted in telling me her storyTWICE!! Scared me senseless but just trying to put it out of my mind. She even. Said T was the worst thjng ever.. really cheery! That's 2 ladies I've met there who were full of joys! Perhaps that's what chemo does to you! Hope you in feel better tomorrow. Sleep well
Well all done, first T in. The body. Neuts were back up from 0.6 on Saturday to 6.o today so no injections this round either so hoping that may reduce the bone pain. Was nicer having just a drip instead of the fec being fed in. Feeling ok at present npvut have been told it can start after steroids finish. I have the last big does tomorrow and then back to 4 a day for 3 days to wean down slower... Then who knows what??? Still have anti biotics too, but higher dose starting Friday so a new regime to get my head round. How you doing Em?
Thanks guys, have to go in early as neuts are low so have another blood test ... Might have taken steroids for nothing... Fingers crossed.
Hi well it's D Day today first T ! Scared!! Didn't sleep too badly last night considering 8 steroids in system alreeady and another 4 in this morning. Off to Tesco for last minute supplies and painting nails ready. 42 days until last blast... Must focus on that. Have a good day all, kip xx
Hi JuJu glad you are doing ok albeit a bit achy etc and really ploughing through the chemos. Mine no. 4 of 6 tomorrow so trying to focus on that although dreading the T ones. Good news about the scans its such a relief isn't it. I can't wait to be able to no be counting down the days to the next chemo. I've started steroids today for the chemo tomorrow ... 8 a day for 3 days so expecting lack of sleep tonight. Shame we'll miss eachother againi think !h next one is earlier on 3 sept so maybe then. kip xx.