Hoorah for movement KTK - that's good news!
I had a good night's sleep - DH slept in the spare room so I had plenty of room to move around and that definitely helped. Legs seem ok this morning, just feel as if I'm post flu now, slightly spacey and a bit out of sorts. Mouth is still ok, no ulcers and taste buds only slightly affected.
Trying to decide if it's wise to go away to our caravan tomorrow for a few days. Part of me thinks it would us good. The other is a bit scarred by events of the past two days. It's my birthday on Friday and I'd love to be on the coast for it.
Have good days ladies.
cdc sorry tk hear that the sickness is still troubling you, at least on T not many see. To auffer with that, i certainly havent. Such a shame you didnt get tk eat with OH i aas the same yesterday, we were going to have lu ch out but as i cant taste properly it seemed a waste so we didnt bother.. makes me feel so sad to keep missing out on things. Its good to hear that your daughter could share her tears with you, thats important. My daughter told me that she cried when she knew j was staying in hospital but didnt tell dad because she didnt want to upset him.. bless her.. i feel she is hiiding a lot of fears and worries from us. She said ahe didn't really jnderstund why i was in hospital either, i dknt think OH thought to explain to her.
ktk ,. I had terrible constipation too, i got some lactulose from tesco and that sorted it in a day or so. Sorrh to hear you are feeling exhausted, i am too for the first time really during this but i tujnm it buikds up as uoh go along doesn't it. I still have slimy tongue and altered taste buds but otherwize thats the only major side efect, no a aches. How are your fingers feeling?
Embolorry, good lluck for cycle 2, hopefully this one may be easier? My Onc said the first is usually the worst. Sending positive vibes xxx
Glad you are out LJ! I count myself lucky that I’ve had no hospital stays due to chemo as yet. Sorry to hear everyone is in pain too,
I’m getting worried about the T part. I’ve definitely felt an accumulation of side effects on my fourth round of AC. Even with the steroids I’m back to feeling nauseous the majority of the time and have little appetite but I don’t have any pain, I think my taste buds are gone too 😢 I’ve felt pretty ok psychologically on the whole apart from the reaction to steroids but this cycle is getting to me and I feel so low. Thankfully my sister is looking after our daughter tonight so my OH and I are having a night away. I couldn’t join him for dinner as the thought of food just made me feel so ill. Earlier, it was lovely to see my daughter so happy playing with her cousin, Haven’t seen her smile so much in weeks. Yesterday my husband was out and she came to me sobbing her heart out , She said she couldn’t explain why. In the end we just lay on the sofa hugging and crying together, Chemo sucks!! It was such a miserable day and the rain just reflected our mood, I really feel getting back to school next week will be good for her. I also need the opportunity to rest more.
Hope we we all have a good nights sleep and as you say LJ fingers crossed for a better day tomorrow.
Hugs to all xxx
They finally let me out about 2.30pm - three hours waiting for pharmacy nearly killed me! Legs are much easier today, though the hospital concentrated on high temp and haven't given me anything stronger for pain relief. I have got co-codamol left from op so I'll be taking that. Have seven days of ABs along with injections to contend with now. Have stocked up on prunes, prune juice and senna tabs as I don't want to get caught out.
Will be having a convo with Onco about pain relief and minimising symptoms for next time, I can't cope with that level of pain for that length of time again.
Have borrowed a foot spa and one of those electric impulse machines that Ian Botham advertises from our neighbours. She suffers from fibromyalgia so has a number of tips for leg pain. She's also given me some Biofreeze which is a topical cold first warm second spray, which should come in useful.
Fingers crossed tomorrow brings better days for us all
Thanks Jaqb i hope thry ofer me a reduction, i dont want a hospital stay again.
LJ hope things ok and you gethome doin. Xx
Well I've spent the night courtesy of the NHS. On an assessment ward. On a trolley. I phoned because the leg pain was unbearable and temp was 37.7 so they invited me in. Bloods were fine, but wanted to monitor me in case injections were masking sign of infection. Had a chest x-ray, three lots of antibiotics and now glugging water to try and get a sample out. Fingers crossed once I've done that they'll send me home. Just desperate to sleep.
Morning! Yayyy ulcers gone.... Slimy tongue still here but feeling slightly less slimy... Taste buds 50/50 so at least some improvement. This has been a long cycle or so it feels.
Cdc how are you feeling, less sick i hope?
Ktk hope the nasty mouth isnt getting worse .Have you had bone pain?
It was so miserable weather here yesterday like first day of Autumn but OH says September supposed to be hot?? We are havjng a woodburner fitted tomorrow.. ive always wanted one and after this diagnosis we thought why not?? Im very excited although have no idea how to light a fire🤔, .
Hopefully gettjng a walk today as yesterday got rained off. Back to work tomorrow and then Onc appt on Wednesday pre next chemo, wondering whether they wilk lower the next dose as had neutropenia? Or maybe I'll get the injections? Lots of questions to ask, also need to decide kn having nodes removed or not? Lots to think about.
Have a good day ... Kip xx
Ps .hair lookjng fluffy on top but pure White eek.
Oh dear nasth mouths seem to be the norm dont they. linda I am on day 14 and still nn taste.. althiugh, dare j say, i think it may be alowly returning. I h aventried pineapple and ii have some, might give it a go, i find i can.tolerate soup but mism things taste and feel like soap. If any of you do get ulcers i found Iglu helps a bit .it creates a barrier over them for a while. Salt water with bicarbonate of soda in as a mouthwash helps too,o, Difflam is good too.
My mouth is faring well, sweet things taste a little off but other than that all ok. I've been hit with achy legs though and my word they hurt! Consequently I didn't get much sleep so I'm not the happiest. Alternating paracetamol and ibuprofen with the occasional co-codamol. Miserable.
Hello, geat news CDC one less thing to worry about! kTK glad you are atill feeling ok, lets hope T keeps being kind. I still have sljmy mouth and no taste really altho the ulcers seem to be getting slowly better. Cant believe i only have 7 days until next T, i really hope i get some good days before then. 28 days hntil last chemo so trying to be positive and focus on that. If it wasnt for the mouth issues i havent actually had many other SEs, slight aches and fingernails hurt a bit but the mouth OMG!! I did just read the leaflet with my antibiotics s and one of the side effects is .a reduction in white blood cells... Great hey!
Enjoy your day ladies, I'm joojng to get a little walk as going stir crazy! 🙃
Good to hear you got so,e rest ktk and Sally. I’m Hoping to get a good nights sleep tonight too. I was up at 5am for breakfast and meds as I had to fast for 6 hours before my gall bladder ultrasound. Felt rather queasy all day as a result. Thankfully scan shows I do have gall stones and calcification but the BC has not spread.
I was pretty sure that would be the outcome but relieved to get confirmation all the same, Looking forward to starting to feel more normal in the next few days,
im thankful i’ll be getting a PICC line next cycle. Anything that will help me get through T has to be a bonus,
Hope your throat feels better soon ktk and your temp has stayed normal.
Yessssss! I am home. What a few days! Had atrempted blood test today by jr doc, he couldn't fin a vein, so got 2 expert ladies to do it.. nk provlem full vial of blood! 4 hours lAter he comes back tk zay they didnt have enough.. now i know they did but what happened to it i dont know so jr doc and his colleague mrs jr doc havd anothwr go, this time going directly jnto my artery inside of wrist!!! Omg never felt pain like it, both had a couple of goes each whikst i cried and winced ... No joy they couldn't get any blood. So then they got me standing up holding onto the sink whilst they laid on floor attempting to get a vein near my ankle bone!! After 2 attempts finally got some. Neuts have gone up to 0.6 so still not great but no evidence of infections so allowed home. Have ulcers ii.mouth now but told to use salt water difflam and painkillers. Cant wait for my own bed. Thanks for all your support and kind words. Just hope mouth gets back to normal before next T. Hipe uou are all keeping well xx
Hi my eyebrows and lashes have definitely thinned this cycle but still some remaining, ill ilve to transplanr the hairy toes hairs elsewhere! Just had bloods taken.. well attempted veins all done in now so waiting to see if the one drop they got was enough.. goodness knows if ill have any left for next chemo...
Sorry you're entombed Kip - hope those numbers shoot up quickly and you're back home kicking booty soon xxx
Have a little low level back ache this morning, but as I said to DH nothing worse than having slept awkwardly and I still feel pretty energetic so I'm off for a walk with the dog in a mo - gotta get a cuppa in first! I finished a crochet blanket yesterday so that will go to our caravan sometime over the next week and I've picked up another that's been languishing in the to be finished like for a while. Really enjoying this cooler bright weather.
Hair deffo much thinner, but I had so much anyway I've still got a good covering. Not stopping me looking for a hat pattern to knit up as the weather chills a little! No hairy toes here, or other hairy parts if you get what I mean ;-) Think my eyebrows are thinning, but had deliberately chose glasses with a heavier frame before this started to help disguise! Also have a friend's daughter lined up to help me draw them back in needs be!
Here's to good days ladies, chin, chin!
Morning all thanks for your good wishes. Manages some sleep lst night but get woken every 4 hrs for obs then for so me reason morning starts at 5.45am... on goes the lights and i get my IV drugs so thata sleep done.
Shi your posts always make me smile.. ill 💃💃💃💃💃 round my room !! If you pass my errant neuts whikst on your flight could you ask Captain Costa to send them back p!ease.🛬🛬🛬
Georgee how long did yoj have to stay jn? I am near the nurses station so noisy here too!!! I have ear plugs now tho. Woke up this morning with worse thrush tongue again... Feel like i will never taste again!
CDC ans ktk how are you doing? My hair is definately fluffy now altho still white.. and a!so .ade a major discovery last night (very boring jn here!!) ..... I now have hairy toes... What??? Why?? Whats happening.. not a good look!!!😕
Wishing you the speediest of recoveries Kip! Hope you’re out of there soon and can go and celebrate with your son, Huge congratulations to him, What a star!
Sending hugs and positive wishes xxx
Hi Kip and everyone...
i just popped on here as I find it helpful to see how people are doing further on in their journeys. I have been following yours Kip, as I am on FEC T plus Herceptin, but no hormones involved. Had 2nd FEC today.
My advice from being in hospital for any of you is: get some good earplugs, they are a life saver! Or in their absence, put your own relaxing music on your phone or tablet, and put your ear phones in to shut out the noise. I was put next to the nursing station in isolation, so it was incredibly noisy all day and night.
I pray that your neutrophils score shoots up very soon, and that you will escape colditz!
No one knows until being in hospital how scarey and lonely it can feel, and it can seem like a prison. Bless you.
Big hugs 🤗
Georgie Gee ❌
Well hi ladies, sorry ive been quiet but currently languishing in Casa NHS! Temperature was 38.2 yesterday rang hotline and got sent to A&E for few hours. Now isolated in a room until they come back up. Habing iv antibiotics but they are still 0.1. im so fed up, mh son got his gcse results todsy and i couldnt be there.. so shed some tears. He passed them all tho so immensely proud. Bloody bc takes all mh precious moments. Im hoping to see onc tomorrow to see if j can have injections to boost cells.
Im glad to hear you are all doing well, look after your mouths girls mine still hurts. My room is underneath a dementia ward so the screaming and shoutjng from one oftheir patients continues through out thd night, its so sad to hear a grown man screaming for his mother.
Take care ladies
I had a good night - went to bed at 11pm and woke about 7.30am, with a couple of wee breaks through the night - one of the drawbacks of copious amounts of water!
Steroids takens, just making breakfast now - porridge and plum compote. I've already unloaded and reloaded the dishwasher and tidied round the kitchen and walked the dog. Making the most of the cooler weather and feeling not too bad, which I'm sure won't last.
I think with the injections, it's luck of the draw with the approach the Oncology unit takes. So this time I've got three days of steroids, last one today, no Ondanstreton only Metoclopramide if I need them and the blasted injections. They've given me muscle ache over the last cycles and the Oncologist warned me that the T aches hit about the time you start taking the injections so I'm expecting a double whammy!
Hope your days are good ladies and side effects minimal.