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June 2018 Chemo Starters

LJ
Member

Re: June 2018 Chemo Starters

Chemo went smoothly and to time so I was home by 2pm!  Neutrophils were over 5 which is the highest they've been oven all the cycles!  Heamoglobin and platelets were lower but no one seemed bothered!  Dose was reduced by 20% which I guess was to do with the numb heel conversation.  Only one more to go!

 

Another oncologist came to see me regarding pain medication and rather than codeine she's given me Naxopren which appears to work on flu like symptoms and should prevent so much pain. Don't know how happy I am about that, but she was adamant. Have to start taking them tomorrow evening. Still have Oralmorph though.  Guess if it doesn't work I shall have to phone and ask for stronger painkillers. 

 

In anticipation of being able to have my three days in Belgium in November and it being cold I started knitting a wacky hat today!  Bit of a first for me - I've usually got so much hair I don't need the extra coverage!

 

Kit - glad you felt like baking. I find it really therapeutic, have to give a lot away though, there's a limit how much me and DH can eat!

 

CDC - deffo get the redness checked out, better to be cautious. 

 

Hugs ladies

 

LJ

Shi
Community Champion
Community Champion

Re: June 2018 Chemo Starters

Reddi, keep 💪💪💪💪the good news is the chemo is preventing it from getting larger and your onc will have seen it all before and know exactly what to throw at it 💣💣💣💣kel ❤️❤️❤️Great news for you lovely, now chuck your magic wand in reddi’s direction so she has 👍too next scan. Kip darling, a lovely lady told me to use brow powder instead of pencil for eyebrows and it worked lovely, get yourself a little kit which has 4 shades and a applicator in, they are no expensive and you can fine tutorials on you tube to show you how to apply, or get to a boots or Debenhams and the ladies in the beaty counters will show you how to use ❤️❤️❤️💕💕💕Shi xx
Kip
Community Champion
Community Champion

Re: June 2018 Chemo Starters

OOH in a day of strange feelings.... forgot to tell you... went to the bathroom, looked in the mirror and thought "hmmm something looks even weirder than usual"  and then realised.. completely have no left eyebrow!   When did that happen?  OMG... I'd only just mastered in filling in the blank bits now have to learn how to draw a complete eyebrow... right one still just about there!  Blooming T.. gives with one hand and takes with the other.

Sorry ladies... having a very odd day today...but strangely its makin me smile!  

Kip
Community Champion
Community Champion

Re: June 2018 Chemo Starters

yay good news Kell.

Reddi - good to hear you are finding the positives....certainly a good way to think that it not show massive reduction but also it hasn't grown!  Exactly!! and good to hear you are back on track with the chemo.   The old liver is doing its stuff.  I'm not sure of the levels of mine liver when I had the issue, I think it was 80 and they stil went ahead!   Oh well I'm still here... and actually ladies have to report that I feel pretty darn good today, day 10 and feeling well.  Tongue coming back to life I think, still feels burnt but much much better.  I even baked a cake today, havent done that for ages but don't know if I can taste it later but still felt good to do it. 

I had another strange feeling today... my boss rang me to say that he is expanding his business (at present just him and me and another lady who job share so both part time) he wanted to mention to me that after christmas/early spring he is employing another surveyor and may offter me more hours.  Now thats lovely but all of a sudden I had this weird feeling of... well at the moment I don't know where I'l be in terms of recovery, and what lies ahead, and then part of me was thinking this is great I'l be moving forward.  I kind of almost feel scared to think ahead.. thankfully he understands whats happenign and isn't pushing me to decide until much much later but was still a weird one... thinking about the future... hmmmm don't know how that feels but I guess we have to think ahead and make plans don't we.

KellP
Member

Re: June 2018 Chemo Starters

Thanks all for your good wishes and support..it was positive news in that I have had a good response to treatment so far in all areas. So onwards for the remaining 6 weeks of this treatment...then another scan so my onc can decide on the next steps.
Has given me a boost to know it's doing what it needs to and I will deal with the next chapter when it gets here. 💪💪

Sending you all positive thoughts and much love and thanks for taking the time to respond.
Kell xx
reddi
Member

Re: June 2018 Chemo Starters

@cdc I was going to write exactly as Shi did, to say you should get the redness checked out -- she beat me to it! One of the women at my Look Good, Feel Better workshop mentioned having redness after docetaxel, and they ended up changing her to paclitaxel because it was an allergic reaction.

 

Just back from meeting with the oncologist, and I've been cleared for my first TPH. Hurrah! Liver enzymes are recovering -- ALT is not yet in the 10-40 normal range for women, but at 67 it's in the safe zone for T (versus my original, late August level of 260). So Perjeta and Herceptin tomorrow, followed by docetaxel on Friday, as my chemo day unit spreads the first cycle of TPH over 2 days. 

 

Sadly, my neutrophils had rebounded nicely to 4+ in late August -- certainly because of the booster pack of GCSF injections I got when I had the redness/swelling/pain in my wrist -- but have slid back down to 2.65. I'm putting good odds that I become neutropenic again this cycle -- though of course I'll only know that I'm neutropenic if I get some sort of infection or other problem. 

 

And I've also heard that my mid-chemo MRI shows no appreciable changes in my tumors. I knew this was a possibilty; some tumors respond to FEC, others to T, and they don't know why (which is the whole point of the Rosco trial). But I thought I could feel some reduction in the left breast lesion. Oh, well. I've decided to absorb this news as *nothing has grown* -- which is something, too. And now I get to start my HER2-targeted drugs, which should have a significant effect on the right breast IDC and DCIS. (Not sure it will do anything to the LCIS, however...)

 

Oh, and I've also heard back that I've tested negative for disease-causing mutations in BRCA1, BRCA2, and PALB2. I won't get the full report from the geneticist until next week, as she's on annual leave, but will throw this data into my surgery decision-making folder for pondering in the next 12 weeks.

 

I'll need to read up on others' posts to respond properly -- which I'll do later. Now need to drink my celebratory detox smoothie and eat some lunch!

Shi
Community Champion
Community Champion

Re: June 2018 Chemo Starters

Cd please ring your unit about that redness that you’ve had, I’m not being mother hen just want you to keep safe as I had similar and it is worth just make by the call darling 💕💕Shi xx
Kip
Community Champion
Community Champion

Re: June 2018 Chemo Starters

Hello CDC - yayy well done on both the PICC and the first T.   Lets hope the sickness stays away and you don't have to deal with that.    I am now day 10 and feeling pretty good, this cycle has definately been easier so far than the first one.  I guess being prepared and having all the meds in place helps.   Mouth isn't slimy anymore!  but still feels like its been burnt on a hot cuppa, so not quite right but definately improving, hoping for some tasty treats at the weekend.   Your daughter being 10 and having big emotions made me smile, mine is 13 and over the summer holidays has grown up immensely, now has a boyfriend.  OMG Smiley Frustrated and wants her hair dyed!   Not sure I like htis grown up version, preferred the little girl who loved dollies!

Kell - good luck for those results today, fingers crossed for you that bad ole chemo has blasted away!

 

I'm going to try my ONC nurse again to discuss the numb thumb... I tried yesterday and got a very ominous voicemail saying "Due to unforeseen circumtances Rachel is not available"... so had nobody to talk to.!

 

KTK hope things still ok with you, and all you other ladies out there....have a good fairly SE free day!

 

Oh and managed 10 minutes on the hula hoop this morning... it felt good!  I need to find my waistline again!


Kipx

cdc1811
Member

Re: June 2018 Chemo Starters

Kip so good to hear you are having no sickness and slightly fewer mouth problems. Numb thumb is a little concerning. I am on a similar routine with the steroids, reducing them over time in the hope I don’t get a major crash again, Hope your OH did a good job with the painting! My OH was away last weekend which was probably a good thing too except I was exhausted looking after my DD who has decided that coming up to 10 years old is the time for big emotions which she can’t really handle, oh well she’s enjoying being back at school mainly as she gets to see her friends. Ooh I hope my fluff is here to stay! Think eyelashes might be going but eyebrows still sitting tight. Just wondering when I can expect mine to depart.

Ooh I meant to ask ktk I didn’t get a rash as such but my face, neck and chest area seemed to go very red and flushed yesterday evening. Could that be a reaction? Didn’t hurt or itch at all. Maybe I’ll mention it when I get to the hospital.. just got to go and cling film my PICC so I can go for a shower. Haven’t got a waterproof cover yet. Will try and get one from Boots today.

Good luck today LJ!

Sally are you still relatively SE free? I do hope so.

Reddi how are you getting on? Any news on when you can resume chemo? Not too long to wait I hope.

Take Care everyone xxx
cdc1811
Member

Re: June 2018 Chemo Starters

I got my PIcC line yesterday too KellP.  Immediately after they checked everything was in the right place I had my first dose of T.  It was so easy.  I even fell asleep until I woke myself up snoring!  I do hope all goes well today with your results.  Must be nerve-racking as theyre first one since you started treatment.  Here’s  hoping for good news.  It’s encoursging that you can feel a difference in your boob.  It’s lovely having such support from everyone on the forum isn’t it?  I too have learnt so much and thank everyone for sharing heir experiences and tips.

 

Well I feel remarkably chipper after my first dose of T.  I think the LOrazepam they gave me for the anticipatory nausea really helped.  Will see how I feel on route to the hospital again today to get my PIcC line checked.  They are also going to teach my friend (a former nurse) how to change the dressing and flush the line.  Extraordinarily the lady that got all the things ready that we’ll need to change te dressing etc..  has put three lots of chloro-prep impregnated sponged in my Take home bag - that’s despite me having red wrist bands showing I’m highky allergic to the stuff, oh well presume they can give us an alternative today.  

So far no nausea but I’m still dosed up to the eyeballs on anti-sickness meds.  My hip bone feels a bit sore so I’ve taken some ibuprofen.  Mouth ok but I know it’s early days so I’m just off to do a salt mouth wash.

 

ktk Hope you enjoy the Life Kitchen today.

 

 

Shi
Community Champion
Community Champion

Re: June 2018 Chemo Starters

Kel 🤞🤞🤞🤞❤️❤️❤️❤️👭👭👭👭for you results today darling, you are doing amazing 💪💪💪💪beautiful lady 💕💕💕Shi xx
KellP
Member

Re: June 2018 Chemo Starters

Hi all
Well I have done 12 weeks of my planned 18 pacletaxol and the se have fortunately continued to be manageable. Tiredness and achy legs and nothing tasting like it looks or smells are the consistent ones. New ones pop up from time to time like the rash on my hands and arms and indigestion. Finally had my picc line which wasn't to traumatic so no more needles on chemo days and now the taxol can be done on the pump which is quicker.
Cold cap has been quite a success it has gone thinner but not patchy and as my hair is naturally curly it helps. Eyebrows and lashes are pretty good to.
But all that being said today is the day I get the results of my CT scan which is the first one I have had since starting my treatmwnt. Loads of mixed feelings and emotions running around. I can feel a difference in my boob which is hopeful but it's the ones I can't see or feel in my lungs and bones I am more worried about.
What ever today brings as long as we have a plan of action i can do this.

I don't post very often but I read all the posts everyday..I have learnt loads over the last 12 weeks and feel more prepared for discussions around treatments and the different drugs and this is in the main due to all you lovely,strong amazing ladies.
So thank you

Sending you all much love.
Kellie xx
ktk
Member

Re: June 2018 Chemo Starters

Antihistamines do reduce swelling, which can be a cause of pain so it makes sense that they relieve pain too. I doubt that taking more drugs can do you any harm. We are so full of chemicals we probably glow in the dark!!! Kx
Kip
Community Champion
Community Champion

Re: June 2018 Chemo Starters

Anything worth a try! Go for it.
LJ
Member

Re: June 2018 Chemo Starters

There does appear to be some evidence that the active ingredient in Claritin (loradatine I believe) helps with the pain from the GSCF injections and also Herceptin. So as I'm having both of those I decided to give the anti histamine a whirl so that if it lessens those two things I might cope better with the T. Dunno if it'll work though. 

 

LJ

Kip
Community Champion
Community Champion

Re: June 2018 Chemo Starters

KTK - glad you are doing ok!   The tiredness makes things difficult though doesn't  it, but I'm still walking everyday... got to get that weight off somehow!

 

LJ - I have numb thumb but not feet, am going to find out if they are going to reduce the last dose for me too, I don't want permanent numbness!

 

KIp

xx

Kip
Community Champion
Community Champion

Re: June 2018 Chemo Starters

Hello,

CDC - that is such goods new that the new ONC was fab... makes a whole lot of difference when you get listened to!  Interesting to hear about the dense tissue, I am definately going to find out if I can have MRIs in the future.  I am so hoping you don't get any sickness with the T, you've dealt with so much of that already.  I haven't had any so far, so fingers crossed for you, and I was warned about body pains etc, but so far, thats been minimal too, paracetomol twice a day for 2 days and it was fine.  Today, I have the numb thumb issue and sore tongue, but even that is much better, no large whiteness and ulcers so hoping taste buds will reconnect sometime soon!  I think the tiredness has accumulated over time, I guess you get used to not feeling 100% after a while, but the sleep was better last night.   The big dose of steroids wasn't great on first cycle but was ok this time round, I have 8 day before chemo, 8 day of and 8 day after and then 4 a day for 3 days...  actually OH was painting the lounge all weekend so didn't see him so that might have helped with the lack of fall out !!!Smiley Very Happy  And as for the hair, mine is definately thickening up so I would imagine your fluff won't be going anywhere on the T either!   Interestingly eyebrows departting and eyelashes too!

 

KIp

xx

 

ktk
Member

Re: June 2018 Chemo Starters

Hi LJ. Glad you too had a good experience with your oncologist. At the end of the day we just want someone to listen!

CDC the antihistamine won’t help with the pain. It reduces the chance of an allergic reaction. That is also why the steroids are ramped up at the start of the cycle. I was given a Piriton antihistamine infusion before my T. It made me quite sleepy and some people do dose off! If you get a rash or itchyness after your T it would be well worth taking antihistamine. Boots own is the same as Piriton. Hope it goes well today. Kxx
cdc1811
Member

Re: June 2018 Chemo Starters

So please you’ve also had a positive meeting today LJ. So great when you feel someone is listening and wants to help isn’t it?! Can the anti-histamine help with the pain, I’ve been warned to expect extreme fatigue but also bone pain. Hope all goes well on Wednesday. Here’s to it all being over and done with! Xxx
cdc1811
Member

Re: June 2018 Chemo Starters

Thanks ktk.  Enjoy the Life Kitchen workshop and good luck on Thursday.

LJ
Member

Re: June 2018 Chemo Starters

I had a positive meeting today with one of my oncologist's registrars. She'd properly read my notes and knew all about my stay in hospital. Because of the severity of bone pain I had they will prescribe codiene and oralmorph as part of my take home meds on Wednesday. She's also going to talk to the oncologist about my numb heels which might result in a reduced dose. She was interested in my view, that if at this stage of FEC we termed my recovery as 100%, then I feel that at this stage of T I'm only at 85-90%. Both DH and I came away happy. 

 

Ive started taking anti-histamine tablets today in the hope it may help and salt water mouth washes too to keep my mouth as clear as possible. 

 

Roll on Wednesday- am dreading it, but need to get it over and done with!

 

LJ

ktk
Member

Re: June 2018 Chemo Starters

CDC so glad you had such a good meeting with your new oncologist. I have to say that T didn’t make me feel sick at all. No Emend this time either. I also now have a light fuzz of hair on my head and may even need to sort my legs out soon. T does not seem to influence hair growth. Just be aware that you are likely to feel more fatigued. I have found even simple tasks quite exhausting!! Good luck with your T. I’m doing Life Kitchen in Wednesday so have pushed next chemo back to Thursday. Kxx
cdc1811
Member

Re: June 2018 Chemo Starters

Lisa just realised I never responded to your photo-. You look amazing especially your eyes.  I think not having any hair makes people notice you facial features. I’m having to go bald a lot more at the moment as everything I wear is irritating my scalp,and making my head feel really hot,too. I’m getting more used to it
. It’s other people’s problem if they stare not mine. Two of my friends, who I haven’t seen for over two years as they now live in the south of France sent me a message to say they thought I looked ‘happy and pretty’ when we met up at the weekend.  I’ve rarely been called pretty before!  

I definitely have downy fluff growing but presume this will go again on T. Will just have to wait and see!

Take care xx

cdc1811
Member

Re: June 2018 Chemo Starters

Apologies to those also on the May surgery thread as this is a virtual copy of a reply have written on there.

i’ve felt tearful today thinking about my cousin. I sort of understand my geneticists remarks when I said it was great that I did not have the BRCA 1or 2 or PALB mutation, She said ‘yes but unfortunately you don’t have an explanation and something is going on with your family and we don’t know what it is’. I’m hoping having my genome mapped on the 100 genome study will reveal the information my family need to know how to progress in terms of chemo-prevention - taking tamoxifen as a preventative, or prophylactic mastectomies . However. I am unlikely to get the results for a number of years but hopefully this will be informative for my nieces and cousins and my own daughter.

I cannot tell you the relief at seeing my new oncologist. It was like a masterclass in how you should talk and listen to a patient. I was with him for a full hour and discussed many issues that were not even his area of expertise but he understood the need for me to talk through my experiences. He has signposted me to who can help with each concern. He also asked the Clinical Nurse who was sitting in on the appointment to arrange a meeting amongst various experts to check through my mammogram and ultrasound screening results for the last 8 year. He feels there may be an issue with the radiography department. He also said there is an ongoing discussion in the International panels dealing with screening for BC as to whether additional screening should be offered to those withnvery dense breast tissue. My OH and I are doing our own research into the studies that have been commisoned so far. Im going to demand ultrasounds in addition to my mammograms in future at least Kip! My surgeon is putting the case forward for me to have yearly MRIs
Fingers crossed.

Im feeling less anxious about starting T chemo regime tomorrow. I will be having another drug called Lorazepam which should reduce my anticipatory nausea. Onc has also said he’s happy for me to take Ondansateon and domperidome for as long as I feel they’re helpful as neither has any associated toxicity. I’ll also get the Emend/aprepitant during the chemo itself them two days after Will ask about the Fluxonole, very useful to know. Fingers crossed. My Oncologist is also hopeful I’ll be less nauseous on my next regime although he did say that I’m likely to be very fatigued and get bone pain!  He has also said I can use ibuprofen for aches and pains. Will have to see how Infar on the steroids but it looks like i’ll Have three days on a very high dose and will continue to take them at smaller and smaller doses for a few days after that.  I’ll be on them for longer but the gradual reduction should prevent steroid crash I’ve experienced before, 


Oh well what will be will be and it’s good to have another cycle under the belt and then its just 3 to go thank goodness!

Wonder if i’ll be enjoying ‘carpet’ sausage rolls this time next week although mine will have to be the veggie version! Not that I’ll be able to notice anyway.

Hugs to everyone xxx


Take Care xx

PS I will be devouring a box of luxury chocolates this evening as a farewell to my tastebuds functioning properly!  

Kip
Community Champion
Community Champion

Re: June 2018 Chemo Starters

If only I could make them not taste of carpet.
SallyG63
Member

Re: June 2018 Chemo Starters

Lol, I thought it was a special way of making them 🙂
Kip
Community Champion
Community Champion

Re: June 2018 Chemo Starters

Ha ha, sorry I meant a sausage roll that tastes of carpet... along with everything I eat at present! Numb fingers making my poor typing even worse!
SallyG63
Member

Re: June 2018 Chemo Starters

I always need to just ask the important questions.

What's a carpet sausage roll?

Kip
Community Champion
Community Champion

Re: June 2018 Chemo Starters

Hi CDC, the issue around dense breasts is worrying isn't it.  I was told at my mammogram that my tissue was dense due to being "young" so they had to do an ultrasound to see what was going on, I am concerned that in the future they will only offer mammograms as a check up?   Do you know what they do?  So sorry to hear about your cousin, but so glad she did go and get checked, its crazy how many young women are finding themselves in this position isn't it.   Whats happening with the world? 

As for the T - I haven't had any nausea with these ones, and I have heard several people say the same.  I still get the anti-sickness ONdestron to take for 2 days and then I have the metrocolampide as and when stuff too, but have never had to take any of them.   Although I have had the extra steroids I haven't had such a downer this time, and the mouth hasn't been to bad.  See if you can get Fluxonole to take, I have one tablet a day to prevent mouth thrush and although I have limited taste and slimy tongue it has helped to take it as soon as the mouth started and not wait like last cycle.  I also regullary swish with salt water and Difflam too, not sure if any of this helps but it seems to.   I haven't had any ulcers or anything.  Yesterday I had achy legs, but manageable and took paracetomal and the tiredness hit last night, but actually although the side effects are there, they are ok, numb fingers worrying though as don't want that to be permanent.  I would say the first T cycle was definately harder but this time seems to be ok, day 8 now so hoping some taste may return shortly... now eating a "carpet" sausage roll!  Still hungry.

Kip

x

cdc1811
Member

Re: June 2018 Chemo Starters

Thanks Sally That’s reassuring. Good to hear you’re halfway through and still relatively side effect free. Fingers crossed it stays that way. X
SallyG63
Member

Re: June 2018 Chemo Starters

Hi Cdc,

I'm halfway through Taxol but I got my clots before it started, just the luck of the draw I suppose. I have been told by the oncology nurse that clots are more common with picc lines but I don't have one of them either. I also don't have tingly fingers or changed food tastes so it's not a given. I've had no nausea either. I have one anti sickness tablet with the chemo but nothing apart from that. I have less steroids than on EC. Just one intravenous lot with the Taxol which is much better.
cdc1811
Member

Re: June 2018 Chemo Starters

Hi all

 

Sorry I haven’t been on the forum for the last few days.  OH was away and I decided to go down to see my Mum with my daughter.  Trying to enjoy my last weekend before my first T but have a bit of anticipatory nausea just thinking of having tho head to the hospital tomorrow for bloods and to see onc and then again om Tuesday for PICC line and first dose.  I hope everyone is doing ok. Are the blood clots more common on T?  I’ve been warned about tingly fingers, changes in taste of food  etc..Also that I may still get nauseous- noooooooooooooooo! Anything but that.  Does everyone get given anti-sickness meds as a precaution?  I’m hoping my new Onc will shed some light tomorrow.  Not looking forward to starting the extra large doses of steroids but I know they’re necessary to prevent allergic reactions.

 

I’m feeling very low tonight.  My Mum has just told me that my cousin ((her sister (who has also had BC)’s middle daughter)) has been diagnosed with breast cancer.   We have lost touch over the years but I’m just so sad for her.  She’s in her early 40s with two young children,  She decided to take herself to get checked out because of my diagnosis, They initially said she had signs of calcification so did a biopsy.  When the results came back they confirmed fast growing cells (I’m not sure what sort of BC she has) and she was told that had she left it till next year it would have been too late.  She is an extremely private person so not sure what I can do to help but I asked my Mum to pass on the details of this website so I hope she can get some support online even if she can’t talk to her family/friends,  I also discovered my younger sister has been told she has dense breast tissue,  I’ve been doing a lot of research recently as I firmly believe women should be told if they have dense tissue if it shows up on a mammogram.  Recent research in USA and Norway has said that dense breast tissue is much more of a risk factor than familial history.  In 32 states in America it is a legal requirement to tell a woman if dense breast tissue has been found,   I was advised to go on chemo-prevention last year due to my family history.  No one ever mentioned the danger of dense breasts - not only is it harder to spot during screening but the fact there is more tissue means there are more places for he cancer to develop.   What I did not know is that taking tamoxifen as a precaution can resduce the density of tissue and therefore your risk.  I felt so bad, (‘guilty’ In a way that it’s my fault I have cancer)that I didn’t take up the offer but my GP had never heard of tamoxifen being used in this way and didn’t think it was a great idea to take it as it can cause womb cancer!  My BCN has assured me it wouldn’t have made a significant difference.  It’s been making me very angry and upset.  I am trying to alert as many people as possible to the issue of dense breasts.  At least it is now listed as a significant risk factor on the NHS website,  I am also going to contact Breastcancercare as it is not listed as a high risk factor even on this site.  

 

Are most of you finished or nearly finished on the T?  I’m feeling daunted at the prospect of 3 more months on the stuff but thanks to everyone sharing their experiences at least I have some idea what to expect.  Thank you xxx

 

 

Kip
Community Champion
Community Champion

Re: June 2018 Chemo Starters

Hi all, well day 7 of second T cycle and have to say this one not so bad as 1st.  Finished injections last night and today was first morning i ached in legs, took paracetamol and thats really helped.  Mouth still slimy with not much taste but no ulcers or sore throat yet!  Fjnished steroids on Friday and havent experienced such a downer either, did fall out witn kids this morning and shed a few tears but not as bad as some cycles.  Other thjng is numb thumb and forefinger, will call onc nurse tomorrow as they wanted to know if it got worse so they can adjust the dose of last T.  Bjt worried whether thats ok to do but guesss they are the experts.  Dont want permanent numb fingers.  Anyone else having that?

Still trying to find food that tastes good, craving a roast dinner but cant be bothered to cook it when it will taste like carpet!  Back to soup again i guess.  Daughter just baked a chocolate, peanut butter and popcorn cake which looks and smells devine but im sure will taste like lard to me...  Boo hoo... I am so gojng to eat when taste buds turn up!  

Enjoy your day everyone

kip

Xxxxx

RedRose
Member

Re: June 2018 Chemo Starters

Shi, I had my Doppler scan yesterday, no clots but think I have phlebitis in superficial veins. No injections just heat and ibrufen gel for pain. Side effect from chemo so just got to grin and bare it for next 2 cycles and hope it improves afterward. Urge anyone to get themselves check though if they even the slightest bit concerned over any changes, it’s not worth the risk or the worry xx
SallyG63
Member

Re: June 2018 Chemo Starters

Shi,

I'm already on the clexane (for 2 months now) cos I did have one large and several small clots. I knew as soon as I got them and spent a nice 7 hours in A&E one night.
Shi
Community Champion
Community Champion

Re: June 2018 Chemo Starters

Ladies, please speak to your teams about your veins, they will get you scanned for any blood clots, you will then have to do daily injections for that if you have one, quiet a few of us ended up on these daily injections because of blood clots, they see it all the time, so please keep safe and just get it checked by your teams for piece of mind. If you are ok and no clots, then one of those microwaveable bean heat pads help and also ibuprofen gel rubbed on, again check with your team before using ibuprofen, hope that helps 💕💕💕Shi xx
SallyG63
Member

Re: June 2018 Chemo Starters

Just below my elbow is where I had the main clot but was told there were quite a few small ones. Haven't really got a rash bit there is a patch of redness which comes and goes.
RedRose
Member

Re: June 2018 Chemo Starters

Dints *
RedRose
Member

Re: June 2018 Chemo Starters

Can’t really see it on those photos but I have a anchor shape bruise and a a few don’t just below my elbow all of which is quite tender to the touch xx
SallyG63
Member

Re: June 2018 Chemo Starters

Oh I've had the cherry bakewell ice cream. It's lush as are their other flavours.

Your arm looks the same as mine. The photo doesnt show it but their is cording and a hard vein up the inside from elbow to wrist. I've just been told to massage it which I do with cream a couple of times a say.
RedRose
Member

Re: June 2018 Chemo Starters

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RedRose
Member

Re: June 2018 Chemo Starters

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RedRose
Member

Re: June 2018 Chemo Starters

Hi Sally I’m going to have a read later when the step children are in bed. We are currently all curled up under a throw watching Wonder again. Great film if anyone looking for one to watch while recovering. The kids asked for pizza which tasted absolutely atrocious to me, so much so I ended up brushing me teeth and using mouthwash. On the up side though discovered another thing I can taste and eat and it’s delicious, so I need to share it with you ladies. Co-op is doing their own brand ice cream and we found cherry bakewell ice cream 🤫😋😁 it’s gorgeous! Xx
SallyG63
Member

Re: June 2018 Chemo Starters

Hi Lisa

 

I've just had a read of phlebitis and that sounds just like what I have in my chemo arm I  the area I had the dvt. Unfortunately everything I read said to take aspirin or ibuprofen.  I'm on clexane and it says I must not take aspirin or ibuprofen.  2018-09-07 20.19.47.jpg

Kip
Community Champion
Community Champion

Re: June 2018 Chemo Starters

Thanks Lisa Marie ill havd a read.  I have flux stuff too, 1 a day for 10 days, so far no ulcers!  Glad no clots for you!  Go enjoy the ice-cream

RedRose
Member

Re: June 2018 Chemo Starters

Well done Sally, have one for me! Sugar and sweet stuff sounds divine to me, may go hit the cookie dough ice cream myself later 🍪. Purely medicinal of course for my throat. Doppler showed no deep vein thrombosis how ever I seem to have small veins and he said that I may have flebitis? In superficial veins which is causing the dints and bruises in my arm and oncologist say I have mouth ulcers on tounge so now have flucloxaciline and a new mouth was made of 2 tablets called Caphosol 4 x per day. Referral is being made to radiation department now so appointment should be ready 4-6 after cycle 6 so still looking at finishing around Christmas. Kip this is the page on Macmillan about the nerve tingling, nails feel sore like trapped but nothing on finger pads as yet. https://www.macmillan.org.uk/cancerinformation/cancertreatment/treatmenttypes/chemotherapy/combinati... Xx
Kip
Community Champion
Community Champion

Re: June 2018 Chemo Starters

Well done Sally, another ticked off.. go enjoy the sweet stuff.

Lisa Marie - thanks for the info, my ONC said to let them know if it gets worse and they may drop the dose of the last T to try to alleviate the finger stuff.  Its a strange feeling, nail feels like its been jammed in car door and the pad of my thumb feels like is stung by a stingy nettle.  I'll see how it goes over weekend and may call them on Monday... its just one thing after another.   I found tinned macaroni cheese at lunchtime was bearable, didn't taste of much but slipped down anyway...how I long for something salty and nice!  Good luck with the appointments.

SallyG63
Member

Re: June 2018 Chemo Starters

T x6 over and done. On bus home now, via the shops where I'm going to pick myself up a sweet treat to eat and blame the steroids for my elevated blood sugars 🙂
RedRose
Member

Re: June 2018 Chemo Starters

Loving the Yoda,Kip.😂 The force is strong with this one 💪🏻. Love Dobby on Harry Potter too! Oh I’m glad I’m not the only one that thinks potatoes taste vile atm. I can’t do salty things, tomato things, potatoes and fruit juices actually feel like they burn my tounge. Been for a cancer care review at doctors this morning but was more of a update him on what is happening and now sat waiting to be picked up later for Doppler scan and oncology appointment. Have had tingles and aches in hands and feet but no numbness, did read that if you have that you need to tell the oncologist as it’s affecting nerves. Will check and get back to you. For me it’s hard because I have ibs lots of things set off my stomach, even more so during chemo. Would love to see if I can eat eggs, but I know I will be sat on the loo. Sleep is hit and miss here to and hot sweats increasing. Roll on a relative side effects free week 🤞🏻😁 xx
Kip
Community Champion
Community Champion

Re: June 2018 Chemo Starters

Hee hee