Hi Reddi thanks for the info, i guess ill find out soon enough, they definately mentioned tamoxofen, i suppose i have to get the surgery done first. Im just thjnking ahead.
Lisa marie... Crikey no wonder you have suffered with the chemo .all full doses!!!! Mine was reduced for 2nd T and 3rd... You really do need a break from it.... At least the BC will have been well and truly nuked!!! Enjoy the extra week out... Hope the hand improves.
My OH came in from work last night and said another colleague has just been diagnosed with BC, thats 3 since my diagnosis and all under 50!! It so scary...
Hi all, sounds like everyone is ploughing on with their chemos which is great. Hope you all manage to avoid too mahy SEs.
Cdc good idea to name my thumb.... Any suggestions...!??? Sounds like you had a lovely break away too. My tingly thumb is also very dry.. i use Flexitol on my hands and feet it also has urea and is actually really for feet but is good on hands when reallh dry.
It really concerns me that you all seem to know about what hormones you will be getting, nobody has asked\mentioned ovaries to me, i was still havjng periods before all this although chemo seems to have stopped them but as my bc is 8/8 er+ i will need to stop all eostrogen, so they mentioned tamoxofen but not anythjng like zoladex? Do you normally start the hormones after or before rads? Perhaps i should call my onc nurse to ask?
Sorry i confused you with my photo... Not exactly the kind of photo you would want on your wall but a poingnant milestone.
So day 12 today and although still tired not feeling too bad, larry tongue still hangjng around but taste buds sort of back tho not quite right..
Enjoy your Friday evening
Apparently because the Herceptin doesn't need monitoring when given on its own it is weekend only and they won't give during the week. Given it's such a non-negotiable I don't understand why no mentioned it to me before. As luck would have it I already had stuff booked for the first three cycles on the Saturday and as I couldn't do the first Sunday either it's all moved on a week and will be on a Sunday. At least it should be in and out - as long as there's no pharmacy delay....
I'll having hormone treatment too which I'm not looking forward to given all the horror stories I've heard about it. I'd at least like a little break to shift the weight I've put in over chemo and get back some level of fitness.
And of course there is the radiotherapy to contend with too! Have first appointment about that on Thursday where I have to persuade them to avoid my three days Belgium trip. That's been booked since before all treatment started so fingers crossed.
My PICC line came out this morning, feeling slightly bereft without it!
My skin is like paper too, fed up with moisturising without any effect!
Sorry, I'm all moans today, and given my slimming world journey needs to start with a vengeance again, I might need to pass on the cocktails!!!
Hugs all xxx
So much to catch up on so apologies if I miss anyone out.
i had such a great day/night away with my OH. We only went to Limehouse but I’ve was a beautiful sunny day and we really enjoyed walking along the Thames Path and listening to the waves when the boats went past. Stayed in an interesting B&B which is designed to be a place for reflection and peace. It was in the middle of a built up area but thanks to triple glazing it was indeed very quiet and relaxing.
Well I’m off for my first Paclitaxel of 9 today. Chemo nurse who did my bloods has warned I should still expect to feel very tired. Oh well, I’m just hoping for no nausea again although Larry tongue 😛 has been threatening to make an appearance over the last couple of days but hopefully I’ve sent him packing!
Its great to hear so many of you are done and dusted with chemo -I know there are still further surgeries, radiotherapy and hormones etc... to contend with but good that it’s something else to tick off. I’ll look forward to those Woo Woos at the end of Nov/beginning of Dec. Hope you’ll be joining me Reddi!
Kip I think we should name your thumb! It obviously isn’t going to let you completely forget about it just yet. Hope it stops sending you random tingles soon.
Lisa your hand really does look sore and swollen. Hope the oncologist can suggest something today to help but fingers crossed the chemo can go ahead.
LJ It’s frustrating to have to go I’m at the weekend especially when you weren’t warned.
Woo Woos coming up!!! Ill keep some chilled for those late arrivers.
Lisa your hand looks sooo sore, my tingly thumb now sends random tingles up my arm! Nobodh seems worried about and t still wont see Onc until 8th November once surgery over and healed. Ill keep everything crossed your last chemo gets done on time.
Mimi ... Your woo woo is being prepared...well done!
LJ what a pain about the weekend slots, does herceptin take long or is it just an injection?
Keep going ladies. ... Big hugs
Fingers crossed for you Lisa!
Sadly my unit only does Herceptin on its own at the weekend so I've requested a move to a Sunday as it's less disruptive over all. That does mean everything is pushed back a week and there's a possibility I might need to request another time for the December one, but I'll have to wait to see what's allocated. I feel really let down no one had said it would be moved to the weekend if that's a non-negotiable. Now worrying about my radiotherapy timetabling not being able to accommodate my three nights booked in Belgium.
YAYYYY well done KTK and LJ for reaching the end of chemo. It is a funny feeling isn't it? I was expecting to be more elated but it was pretty low key in my unit too... although my bestie came along and we counted down the drip machine from 7 seconds down to 0 and got a photo of it as it ended. It is a nice thought to know that once the SEs are done we don't have to do that again...
So to the rest of you ladies.... we'll keep doing a Shi style dance and wait for you guys to arrive with us.... I'll take up the role of making cocktails......mmmmmm what shall we start with....
@Lisa Marie Keep us posted on chemo-puppy-arm. I hope either your GP or your oncologist finds something to clear it up asap.
@SallyG63 Do you know the name of your trial? (If not, no worries -- I'll try to track it down via Cancer Research.) Sounds interesting! And though it means continuing treatment at hospital, you still get to celebrate each milestone along the way, right? While also exploring a way to prevent recurrence.
Hurrah, ktk & LJ! Can't wait to see everybody crossing the finish line, first of the last infusion, then of the last WBC trough, etc., etc. And can't wait to be joining you all there, too -- though it'll be early December when I finish up, assuming no more delays, and you never know when there might be delays.
In good news, the microbiologist at the hospital gave my oncology team the green-light to go ahead with the next cycle of chemo this Friday, even though I'm only midway through my course of antibiotics for my nasty C diff infection. (Pending good bloods and no reversals in my improving gut function, of course.) I'd basically convinced myself that I'd have another week of delay, so this was very happy news. Off to the dentist in the morning for my six month check-up -- though no hygienist cleaning this time round -- and check of my jaw health.
I can't remember if I've mentioned that I'm trying a bit of DIY cryotherapy on my hands and feet during the docetaxel infusion to potentially protect them from possible neuropathy and nail damage. It's sort of like cold-capping for your fingers and toes. While there have been multiple studies on cyrotherapy for this purpose, the evidence isn't definitive; however, The Christie in Manchester and several US cancer centers offer it to patients, and as long as the cold packs are covered with fabric -- so not touching the skin directly -- there isn't a downside, if you're able to tolerate the cold. (I won't lie: I found it tough last time.)
In case others are curious: I used some gel-pack socks that I bought from Amazon US (my sister toted them over when she visited in August to save on international P&P) and some foldable flat gel packs that I use for my hands (less than ideal, but they were what I could get/afford -- 4x £2 each from Lidl). I put them on 15 minutes before T begins, switch to a second set at 45 minutes, then keep the second set on for 15 minutes after T ends, for a total of about 90 minutes. For my first cycle, this was logistically easy, as I had Herceptin and Perjeta the day before; not sure how well this will work this coming Friday, when I start at 9:30am with, as I understand it, Herceptin and Perjeta, only getting docetaxel in the afternoon; my chiller bag may not be up to the challenge of keeping the packs nice and cold. But I'm hoping this plus my Polybalm experiment might help guard against these particular side effects.
Too bad I can't apply cryotherapy to my gut bacteria!
Snap KTK only I'd been there since 10am and as I was so delayed I had a bit of a wobbly and persuaded them to leave my PICC until my appointment with the IV team on Monday!
Felt strangely deflated as I left the unit, all very low key. Still I've got another 15 Herceptin injections to go so it's not my last time there. Have to phone about those appointments tomorrow as they've moved my day to Saturday without any consultation. With notice I can manage that, but I've got something booked for each of the cycle dates upto Christmas. Ho hum.
Hi Lisa Marie
Do you have a chemo hotline number? I have a chemotherapy treatment diary with details of side effects and when to contact the hotline, having said that the chemo nurse initially told me the redness on my hands/feet was not chemo related. She did then follow protocol and rang me very early the following morning after e-mailing the oncologist who told me to come in. It can be hard to diagnose hand/foot syndrome unless someone knows what they are looking for. Your photo shows such similar marks to mine in exactly the same place. The puppy could have exacerbated the situation by putting pressure on your hand. Have you had any issues with your feet at all- redness, feeling sore? It’s good that the GP is going to sort something else out for you. If the augmentin is making you sick that can’t be good!! If it isnt hand/foot and is an infection, the chemo team will also want to know.
Sorry you’re having to deal with this on top of everything else and hope you feel better after a day (or more) in bed. Take Care xxx
Hi Lisa you poor thing, it never rains but it pours hey! Hope your arm sorts itself with some new meds although i would have thought it more likely to be the chemo than the dog given the problems yoh have had already. Do uou only have 1 chemo to go?
LISA MARIE- your photo could have been one taken of my hand last week!! . I had exactly the same marks in the same place- th skin is now peeling from it. I believe it’s Palmer plantar. Really good you are going to see someone to check it out. The markings usually occur where the skin has pressure applied. My OH and I think mine arose on my hand in that particular position as it had been resting on a table.
Let me know now how you get on xxx