Dear Georgie -- You've had such a rough time during chemo, one thing after the other. Thrush down the throat sounds so painful. Sleep and rest and sleep and rest some more and get those doctors healing you! Thinking of you.
ive been moved to another ward now. Still pretty much the same.
They are referring me to ENT to possibly look down into my throat to see whether the thrush has moved into my oseophagus (spelling?). Have some milk shake nutritional drinks to help get some energy inside. Just feel like sleeping and resting. Can't even swallow pills.
Glad things are good for you Kip after your op. It must be a relief that is over.
Ktk, Wales sounds lovely too. I think I am going to need a holiday at the end of all of this.
Cdc, keep going as you are, and I hope the right consultant / oncologist team gets appointed for you eventually. We have enough to worry about without all of their personality faults!!
Take care everyone
Georgie Gee xxx
Hi everyone. Had a pretty good sleep last night probably because i was so tired. Not too bad today, drain area sore as it's over my ribs and i dont think it will be going today as still draining. Must keep on with the exercises though, arm up to shoulder level now.
Cdc good news about Numble feeling slightly better, Tingle is slightly too. When should next chemo take place?
GeorgieGee how are you today?
Ktk hows things with you?
Is everyone bearing up?
Oh dear Georgieg sorrh to hear your news. Fingers crossed youll be out again soon. Oral thrush is terrible, do you have fluconozole to take, that helped me each cycle as sokn as it started feeljng sore.
So here I sit again in Acute Assessment Unit of hospital.
Was admitted yesterday after raging sore throat accompanying oral thrush. Temp was up to 38.2 so couldn't keep grinnng and bearing it.... joint pain terrible still.
I am wondering what to do about my future chemo. 75% of the dose I needed has still impacted with the sepsis again, and next was supposed to be 50% if this happened.
Have a chat with my oncologist coming up next week. She has said that it's a case of weighing up which course of action is less life threatening.
So so many thoughts whizzing around.
All the the best to everyone.
Sb1610, my hair started to grow back betwee. 2 and 3 T too, its its all stayed in place and now got full covering albeit still fluffy short and white! My nurse said it often grows back on T.
Ktk i also felt so exhausted after last T but by the end of week 3 i was picking up agajn. Although very stiff joints still. Now stiff from surgery too. Feel quite well though although fed up of drajn already. Can lift my arm to shoulder level today so thats good. Enjoy your break it sounds lovely!
CDC good idsa to speak to your other surgeon, im now havjng to chase hospital agajn as there is confusion over next appointment. Also before i was discharged j asked about the exercises I need to do as I was told the physio would be in to see me but my nurse so oh you dont need any just take it easy?? After i got home the physio rang to say she came to ward to see me and i had gone so she talked me through the exercises and is sending booklet in post! Another case of one department not speaking to the other.
Oh well now putting feet up and lettjng OH take the strain.
Hello ladies... Im back!! Well what a pleasant experience. Was first on list... My prayers were answered so in op at 9, baxk kn ward at 10.30 eating toast and the best cuppa ever! Sent home at 2.30 now sag on sofa eating stollen cake... Seems even anaesthetic cant stop my eating. I saw a lovely surgeon, lovely nurses and made experience much nicer. Hardly any pajn at moment but ask me agsjn tomorrow might be a different story. Had level 2 clearance in end, they said theh wiikd do whatever they could get to easily, opened same scar but have the dreaded drain! So another step forward just got to wait 2 weeks for results.
CDC, what a nightmare you have had, ao sorry its made decision even harder, but definately seek a 3rd opinion if you need. I often think that if these professionals had walked one week in Our shoes how different they would treat us. One of the guys looking after me in theatre obviously knew why i was in and said "ive walked your journey, had the same hairstyle and isnt chemo crap".turns out he had bowel cancer and is all better now... Was lovely and reassuring to see him doing his job again and he was so kind, only those in this boat truly know. Stick to your guns and dont be put off by that idiot! Hope numble behaves too.
Ljnda glad you are doing ok, well done.
Thank you all for uour good wishes, i really appreciated them, i cried all way to theatre!
@cdc Docetaxel is sold under brand name Taxotere. Regular paclitaxel is sold under brand name Taxol. Nab-paclitaxel is sold under the brand name Abraxane.
@Georgie I've been using the polybalm, but not 3 times a day; usually just 1 or 2 times. Among other things, the applicator for my toenail tube broke while I was trying to scoop balm out of the vial, which has made for a bit of a challenge. So my experiment is not ideal. Nails are holding on thus far, though my finger pads are a tad sensitive, top and bottom, both hands and feet, with a little peeling on my heels and tenderness when I walk a slight distance (usually 5ish miles), despite using Udderly on my feet morning and night. We'll see. Gah, sorry to hear about your other symptoms. I get bone/joint aches and pains, but mostly in week 1 of each cycle -- sounds like you've had it much worse.
I am on my 4th day of first 75% taxatere. So far the S E's are a bit different to those on FEC.
I have excruciating knee and other joints. Have had to use codeine with nurofen to get to sleep for 2 nights now. First 2 days had a redenned face too so took piriton. Also have lost appetite, and a fruit pastille lolly I tried to take, tasted like salt water. Feel slightly nauseous when I look at any food in my fridge. Skin on my left hand seems to be peeling off on my palm between 2 fingers.
so have come to bed early with sore throat, codeine, nurofen, cyclizine and white count injection, plus using polybalm ointment on my nails - Reddi, how did you say you were doing on this? I hope I am going to have enough! There doesn't seem to be that much in the tubes.... Have had some pain in one of my finger nails so rubbed in the cream a little more thoroughly this time.
All the the best everyone on June and August threads, where I tend to hang out.
Kip I especially will be thinking of your op tomorrow.
Be kind to yourself and take all the pampering u are offered!
Everyone else, lets all be here for one another - we are a great bunch of girls on a tough mission and between us we can all get through together 😍😊😃
Georgie Gee xx
Clare ... what a horrible man. Don’t think it’s helpful at all to talk about being in another country as don’t know what the service is like, wherever he was thinking of !! Very confusing for you but interesting that personally he would recommend a relative to have bilateral mx. Hopefully you will be able to be seen by Ms McNeil, if not go elsewhere for another opinion. Pleased you have given feedback.
Kip .. hoping you get in first tomorrow and get back home asap... hugs xx
Reddi has also left a message about the missing surgical threads
Yhats weird i i c still see the may surgery thread but cant reply to anything as its greyed out! Whats happened?
@reddi et al ... I’m not alone in the twilight zone ... thought I was going bonkers. A reboot of iPad did nothing ... definitely a site malfunction ... we await the return ......
I can't currently see May 2018 Surgery thread !! That's a fragment of my life in there !! Mwaah !! I've finally become invisible !!!
Maybe that’s it Kip.. just thought that I’ve just updated system on iPad maybe it’s made things glitchy but still no surgery threads.. looks as though it might be me that been archived 😂
Positive and fast mending thoughts for you Kip, and I too hope you are at the top of the list for the day.
Wishing you all the best, and we'll see you after your visit to the twilight zone . . . . x
Sorry for jumping into your thread ...Kip, I was going to reply on May surgery but all the monthly surgery threads have disappeared ... we’ve been archived !!!?... can’t even reply on there ... had my cuppa and biscuits, need to finish fence painting then get back on here and investigate 😈
Hugs to all
Thansk Reddi, yes I am stepping away from Google... its never a good idea but always ends up totally addictive, must has spend good part of Sunday scaring myself silly!
Hi Red Rose (very nice new name... took me a minute to work out who you used to be!!)... the pink custard gave it away as saw the photos on Facebook!
Having level 1 clearance tomorrow, nurse said thats what they can get to easily. I had SNB + 2 more taken at MX and the SNB + 1 had cancer and the third one had micromets. So they have to go...
Sorry to hear your foot/leg is still a problem but sounds like you have been busy nonetheless. You seem to have done much more than me, I have been at home mostly and panickign about surgery, wish it was today so didn't have to wait another night...
Fingers crossed you get that chemo before Halloween... appropriate though hey! Nothing more scary than chemo!